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Ladybug's Pax-hell Journey


ladybug

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Gidday baby girl!  How are you going now?  You said you didn't see any pattern or improvement but did a drop anyway.  How long did you last before dropping?

How is your sleep and anxiety levels?  How have these last few drops been for you as I recall those couple just under 5mg were pretty awful.  How's the dating arena going? 

 

Hi Gran! I'm doing alright so far. For the past year or so the only pattern I notice is related to my cycle. Taking your advice and tracking my symptoms has confirmed that day 5- day 16 are the absolute worst for me. It's like a switch goes off and all my symptoms increase, especially depression, stomach problems and  both physical and mental anxiety. There's usually a couple of days of suicidal ideation there too which is awful. But since I know it is hormone related I can see it for what it is and that helps. Once ovulation hits the switch goes off again and everything improves. I still have some symptoms but mood wise I improve significantly and the stomach stuff improves too. So I feel better for about a week and then PMS hits and all of a sudden everything and everyone pisses me off lol. Anxiety and sleep issues also increase significantly. So that is my pattern every month. Although I have noticed lately that my "good time" has gotten shorter. Sometimes rather than a week I only get a few days.

 

I'm still trying to figure out how the drops relate to this pattern. I have noticed some increased symptoms lately but I still follow the same overall pattern. I guess if the drops do anything they just make my bad times worse and my good times not as good if that makes any sense. One new symptom I have is having periods where I feel very uncomfortable in my own skin. Not akathisia, but more like hypersensitivity. Hard to describe. I'm also having a lot of worries that this is the "real me" which seems pretty par for the course when it comes to WD and tapering. This past drop was 2% and I held 6 weeks so I'm definitely still being conservative but that only eases the worrying a bit lol. I'm the QUEEN of What If thinking and that sure hasn't changed.

 

As for dating I'm back to not caring. :) It was a fun experience while it lasted and maybe I'll care again in the future but for now it's not really important to me.

 

Hope you are having a good day today. Thanks for checking up on me. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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Ladybug if you figure out the relationship between tapering, drops, and hormones, let me know. Like you, my symptoms follow a monthly pattern above all else and trying to pick through which is what has been pointless. Lets just hope the rollercoaster settles once our brains do. Im glad you keep dropping, honestly if it doesnt make anything drastically worse, or worse/different at all...keep going, you WILL get there!

2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.

Effexor 75mg to 262.5mg 2005-2010 for post partum depression

Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)
Rapid "tapered" from 262.5mg Effexor in 3 months

Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia)

Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows).

Paxil taper: dropped 10% every 4-8 weeks

Year 1 October 2011 to Nov 2012 20mg to 10mg

Year 2 March 2013 to Feb 2014 10mg to 4mg

Year 3 April 2014 to May 2015 4mg to 1.1mg

Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg.

Finished! Official last dose of 0.1mg on June 15/16

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ladybug, you might look for a gyn who specializes in those hormonal patterns. They also contribute to PMS. (I know one in San Francisco.)

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Thanks for update, it sure is hard to know what is w/d and what is hormonal and I still don't know if my gut issues are gall related and the ribcage aches and pains are now osteo.  Like Aberdeen has said I guess no use worrying about it, just keep turtling on and down and we will find out at the end of the road!  I have noticed like you those same issues, including the suicide thing keeps coming around every drop also and began to realise it was the w/d and not me.

 

Sorry to hear about the dating thing.  Never mind, you will meet the right guy.  My baby girl was only married 3 years when she was young and he had a one night stand and she was on her own a long, long time and did internet dating but figured out they were all losers and gave it away.  She is now 40 and about a year ago she met the loveliest guy serving coffee at her work and they are going strong!

 

I am VERY PLEASED to say we went to the big smoke today and for the first time in a LONG TIME I coped very well and have not come home like a dead duck.  I've had a nice hot shower and I am tired but able to come on here, which is amazing.  We even had lunch out which I never do because of my guts, but took the risk and had a roast pork lunch!  I do have a bit of indigestion, but coping with it.  I have been on digestive enzymes for the last 5 days and today I felt I was a bit better, so thought I'd take the plunge and it was so nice to do something normal like eat out!

 

I hope you had a good day also!

 

Aberdeen - wow, so amazing how well you have been going!  Congratulations, well done! 

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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  • 1 month later...

hey Ladybug, must be time for another update; miss you x

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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  • 3 weeks later...

Hi Ladybug. Have just read your thread and hope your getting on well :)

 

Do you find that your symptoms and your WD has a fair bit to do with hormones and your cycle? Im a male - so luckily i don't have to worry about such things, however I'm interested in learning as much about WD as possible. 

 

Anyway, i hope your healing continues.

 

Take care

Nick

Started Citalopram in 2005 (aged 15) for apparent "OCD" - 60mg 

July 2015 attempted 2 x 10% + cuts 4 weeks apart. WD symptoms intense at times. Need to slow down.

 

November 2016 - Resumed taper. 1.25 - 1.5% decrease weekly approx.

44.5mg November 2016. Jan 2017 42.5 mg. March 2017 40 mg. June 2017 37mg. September 2018 22mg. Nov 2018 Holding at 22mg to stabilise from moderate wave. January 2020 - Holding, mostly feeling fine, but still having some waves at times. 

 

February 2020 - Resumed taper , 1.5% reduction weekly/every two weeks. 

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Hi, guys! Sorry for the lack of update. Well, I have been almost 8 weeks on this dose. The first 4 weeks were great! So of course I went back to the question I always ask myself when I am feeling good: Is this just feeling good or hypomania? I still never know lol. On week 5 things began to go downhill, so then I wasn't sure if it was from the drop or just my usual hormonal rollercoaster. Basically I saw an increase in DR (which is always with me), depression and fatigue. I also had some sleep trouble but not too bad.

 

TMI but I've been dealing with a chronic yeast infection for 1.5 years now! I'm going to just come out with it in case anyone has any input but I basically went through a looong dry spell where I didn't have sex for 6 years. Last year my libido suddenly came back which was awesome, but the first time I had sex again I got my first ever yeast infection. Given that I was 34 I'd say that was a pretty good streak. The problem is I haven't been able to get rid of it since!

 

Now I haven't had one the entire time but every month because of my hormone fluctuations it will come back usually once sometimes twice a month! Needless to say it has made me very miserable. I've tried it all: probiotics, garlic, miconazole, the other -zole you use when that doesn't work, yogurt, homeopathic yeast pills, etc. The thing that has worked the best is boric acid suppositories that I make myself. However, it always comes back either when I'm ovulating or before my period or both. My doctors are useless and they just offered me a six month course of Diflucan but the reviews are terrifying! It's also really bad for your liver and so blood tests are needed but my doctor didn't even seem concerned about it which also worries me. So given the fact that it's not guaranteed to work I'm not sure it's worth the risk. So I'm basically on my own. Just add another awful symptom to the long list of WD crap. It definitely raises my anxiety and depression. The only thing I can think happened is that the latex from the condom triggered some sort of auto-immune reaction since they run in my family. My mother also has a latex allergy.

 

Sometimes I even get stabbing pains down there and this throws me into a panic over whether I'm going to get permanent vulvodynia which I read can be caused by chronic yeast infections. So because of that I've been increasing miserable since my symptoms seem to be getting worse and not better.

 

As for WD I held 8 weeks instead of 6 weeks and just decided to go ahead and drop. Sleep has been good and if my sleep is good I figure I'm stable enough. Like I've been saying my symptoms are very much tied to my hormones so I can never say what is what so I figure might as well try to keep moving forward.
 

Hi Ladybug. Have just read your thread and hope your getting on well :)

 

Do you find that your symptoms and your WD has a fair bit to do with hormones and your cycle? Im a male - so luckily i don't have to worry about such things, however I'm interested in learning as much about WD as possible. 

 

Anyway, i hope your healing continues.

 

Take care

Nick

 

If you didn't read that long ramble above, the short answer to your question is YES!! A thousand times yes lol. I find myself wishing I was a man quite frequently these days. :)

 

 

ladybug, you might look for a gyn who specializes in those hormonal patterns. They also contribute to PMS. (I know one in San Francisco.)

 

Sorry, Alto, I forgot to reply to you. I don't have insurance so I just get my healthcare through the county. I see whoever they assign me and I'm not working so can't afford to see anyone else and pay out of pocket. :( I'm pretty much stuck. Don't feel well enough to work a normal job, but can't afford to get good healthcare to maybe get better because I don't work.

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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Sorry to hear of your struggles Ladybug :/   All i can say is there is a lot of beauty in life , and its coming to you - Its just taking its darn time... But its coming - you'll look back on this all one day :) 

Love and hugs

Started Citalopram in 2005 (aged 15) for apparent "OCD" - 60mg 

July 2015 attempted 2 x 10% + cuts 4 weeks apart. WD symptoms intense at times. Need to slow down.

 

November 2016 - Resumed taper. 1.25 - 1.5% decrease weekly approx.

44.5mg November 2016. Jan 2017 42.5 mg. March 2017 40 mg. June 2017 37mg. September 2018 22mg. Nov 2018 Holding at 22mg to stabilise from moderate wave. January 2020 - Holding, mostly feeling fine, but still having some waves at times. 

 

February 2020 - Resumed taper , 1.5% reduction weekly/every two weeks. 

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Do you use colored or scented toilet tissue?

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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Hi Ladybug! I have the same problem although it's more recurrent than chronic. Usually it passes after several days of boric acid overnight and garlic during the day. You've probably heard this already, but sugar in the diet definitely exacerbates it, and I have noticed this to be true for me. Last year I was able to give up refined sugar for several months and had no problems during that time. Then I started eating some again and started having occasional infections again. But this summer I have been binging on ice cream and chocolate and have been getting them once a month at least. Sugar for me is a source of emotional comfort and it's really hard to give it up.

 

So glad you had four good weeks, at least! It seems like you're making good progress on your taper. I hate that feeling when a window is closing and you can feel depression and DR creeping back in and you start worrying about just how much of a wave you're in for. That's happening to me right now actually. But at least we know it will pass in its time and the windows will open again.

 

Sending you hugs!

Trying to get off Paxil since 2007. Was tapering by 0.1 mg every 4-5 weeks. Had awful crash in November 2015 at .5 mg; updosed gradually to 2 mg. 

 

Doing better and tapering again, much slower this time.  2016: Dropped from 2 mg to 1.62 mg.  2017:  1.62 mg to 1.2 mg. 2018: 1.2 mg to .76 mg. 2019: .76 mg to .56 mg. 2020: .56 mg to .33 mg. 2021: .33 mg to .13 mg. 2022: .13 mg to .03 mg. 6/12/23 .002 mg. OFF PAXIL 9/4/23

 

Started Klonopin in November 2015 to deal with crash. 1/10/16 started milk titration taper from .5 mg. Finished taper 12/6/17. Still take Klonopin for agoraphobia 2 - 3 times a week. 

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Sorry to hear of your struggles Ladybug :/   All i can say is there is a lot of beauty in life , and its coming to you - Its just taking its darn time... But its coming - you'll look back on this all one day :)

Love and hugs

 

Thank you! ((HUGS))

 

 

Do you use colored or scented toilet tissue?

 

Nope. But I have thought of that and am considering changing to all natural unbleached toilet paper. It's just so expensive!

 

Hi Ladybug! I have the same problem although it's more recurrent than chronic. Usually it passes after several days of boric acid overnight and garlic during the day. You've probably heard this already, but sugar in the diet definitely exacerbates it, and I have noticed this to be true for me. Last year I was able to give up refined sugar for several months and had no problems during that time. Then I started eating some again and started having occasional infections again. But this summer I have been binging on ice cream and chocolate and have been getting them once a month at least. Sugar for me is a source of emotional comfort and it's really hard to give it up.

 

So glad you had four good weeks, at least! It seems like you're making good progress on your taper. I hate that feeling when a window is closing and you can feel depression and DR creeping back in and you start worrying about just how much of a wave you're in for. That's happening to me right now actually. But at least we know it will pass in its time and the windows will open again.

 

Sending you hugs!

 

Rach, so good to hear from you! Yes, I think I used the wrong word when I said chronic. It is not one constant infection, but rather it comes and goes very frequently. Used to be once a month and lately it's even more frequent which is worrying. Boric Acid really is a god send. It's quicker, less messy and doesn't burn like the creams. And yes I have noticed that sugar can sometimes make it worse but, like you, it's hard to give up because it's such a comfort. Although, it's not like I eat all that much sugar in the first place but I do love pasta, carbs, etc.  However, I do believe the #1 trigger in my case is the hormonal fluctuations and if I'm already in one of those periods than all sugar does it exacerbate it.

 

As for the 4 week window, I was far from being symptom free but mentally I was very optimistic and I had even had fleeting moments where I felt like my old pre-Paxil self. It was nice. :) And you are right on the money about how it feels when those windows close. Sorry to hear your window is closing too, I hope this wave is a very short one for you!

 

Again, it was so nice to hear from you. Don't want to pressure you to make an update, but just from looking at your signature it seems like you are making good progress. Sending hugs right back! <3

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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  • 3 weeks later...

Gidday babygirl, just dropping by to say hi and see you you are doing?  Sounds like you have had some good days, and this taper is going pretty well?

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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  • 3 weeks later...

Just stopping by to say hi. :)

Current dose: 0! Free!  Quit June 2017.

2017: Last dose zoloft: 17 June 0,00065 mg 18 May 0, 001 mg 14 May 0,002 mg 9 May 0,003 mg 28 April 0,006 mg 19 April 0,009 mg 8 April 0,013 mg 25 March 0,019 mg 22 March 0,039 mg 18 March 0,052 mg 16 March 0,079 mg 4 March 0,086 1 March 0,099 mg 22 February 0,11 mg 15 February 0,13 mg 6 February 0,145 mg 24 January 0,15 mg 19 January 0,19 mg 10 January 0,20 mg 3 January

2016: 0,98 to 0,22 mg; 2015: 2,35 to 1,01 mg; 2014: 4,9 to 2,5 mg; 2013: 9,1 to 5,1 mg; 2012: 15,7 to 9,7 mg; 2011: Started on 25 mg - then 50 mg- dropped to 25- to 12.5 mg - back to 25 mg - after 18.75 mg started tiny tapering to 16.6 mg

Started on 25 mg Zoloft in March 2011 due to stressrelated tinnitus that gave me panicattacks. Had a terrible reaction to Zoloft from start, but was told to "hold on". After four months I was stuck. Therefore the long taper. Crazy, I know... Super sensitive to drops and have dropped by 4-6 % from the previous dose.

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Hi guys! Sorry for the delay in responding. I keep meaning to update and then keep pushing it back. Sometimes it's hard to know what to say as it's always more of the same. Well it's been a little over 5 weeks on this dose. The first four weeks sucked. Not sure if it was the drop or my normal hormonal issues or both, but I went into a wave and isolated as usual. There are times when I don't feel well and I am still able to push myself to go out and socialize despite WD and other times when I have zero desire to be around anyone. So this time it was the latter. The fatigue was particularly bad, so bad I was researching Chronic Fatigue Syndrome as I couldn't believe it could all be WD. Simple things like showering or brushing my teeth took immense effort. I started taking my iron supplements again and I think it helped a bit. I was finally able to push myself to socialize for a night and it went well enough so probably not CFS. Of course I do notice that it always takes me a whole day to recuperate after going out. I literally feel like I have a hangover even though I never drink!

This week the cloud lifted and I was close to my WD normal self. Today was a gorgeous day and I enjoyed it by going to an outdoor Greek festival with friends. That was a feat in itself considering I got little to no sleep the night before because I had an interview in the morning. I did have some dizziness and heart palps but I was still able to have a great time. It felt amazing to be out in the sunshine.

The good news is it looks like I might have found another job that I can do from home! I'm not sure there will be many hours to begin with but at this point I will be happy with any money coming in. So today was a very good day and for that I'm incredibly grateful. :) Hope everyone is having a good or at least better day today too. I think of y'all every day even though I don't post. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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It is always good to hear from you, so thanks for keeping in touch!  I know what you mean though, about always posting the same old thing over and over, just that the symptoms may vary, but yes, is usually a drag. It will be helpful for others who get down to this dose to see how others are going, so I think it is important to keep us informed. 

 

I know how 4 weeks can seem like a year when it is bad!  I find it a struggle to relate to others also and to have any sense of hope, but it's those rare days that the sun comes out and you feel almost human that keeps us going, so keep turtling on and keep getting some sunshine because I think it does help.

 

I have experienced many days of lethargy, heaviness, feeling weak and tired so I am pretty sure it is w/d and for you probably hormonal as well.  I haven't had too many days of total fatigue (not being able to get off couch/bed/chair or do anything) until we got back from our trip to Tasmania and I am only just recovering some energy now after 3 weeks, so take your time, rest & relax and hang in there!

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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I read your story and I feel that you made great progress in a long journey. I hope one day you can come of this poison that all are taking.

Update 8122017

Zoloft  2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011.  Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft.

Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016.

Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help.

12/14/2016 - 15.95 mg (291 mg pill weight)

12/16/2016 -  15.83 mg (289 mg pill weight)

12/23/2016 -  15.67 (286 mg pill weight)

8/12/2017 -  15.34 (280 mg pill weight)

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Hi ladybug i saw u had headaches and neck tension a short while ago? Are these better now? Did anything like supplements or otc meds help with those symptoms? I am currently suffering from those symptoms. Thx

Update 8122017

Zoloft  2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011.  Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft.

Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016.

Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help.

12/14/2016 - 15.95 mg (291 mg pill weight)

12/16/2016 -  15.83 mg (289 mg pill weight)

12/23/2016 -  15.67 (286 mg pill weight)

8/12/2017 -  15.34 (280 mg pill weight)

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It is always good to hear from you, so thanks for keeping in touch!  I know what you mean though, about always posting the same old thing over and over, just that the symptoms may vary, but yes, is usually a drag. It will be helpful for others who get down to this dose to see how others are going, so I think it is important to keep us informed. 

 

I know how 4 weeks can seem like a year when it is bad!  I find it a struggle to relate to others also and to have any sense of hope, but it's those rare days that the sun comes out and you feel almost human that keeps us going, so keep turtling on and keep getting some sunshine because I think it does help.

 

I have experienced many days of lethargy, heaviness, feeling weak and tired so I am pretty sure it is w/d and for you probably hormonal as well.  I haven't had too many days of total fatigue (not being able to get off couch/bed/chair or do anything) until we got back from our trip to Tasmania and I am only just recovering some energy now after 3 weeks, so take your time, rest & relax and hang in there!

 

That is a good point about keeping a record to inform others. Although I do often worry about newbies being discouraged by the length of my taper when they read my posts/journal. I almost want to put a disclaimer at the end of all my posts: It probably won't take you this long! Everyone is different. :)

 

The fatigue really is awful. I've also noticed that I feel more fatigue after taking my iron supplements which is very strange as it should be the opposite. My iron pills are chelated and so they are binded with glycine for better absorption and I wonder if it's the glycine that is the issue but the amount of glycine is much less than is in actual glycine supplements so who knows.

 

I'm sorry you are not doing well, but I think it's amazing that you were able to push yourself to travel despite all you were going through. You are one tough lady! Thinking of you and pray you keep improving. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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I read your story and I feel that you made great progress in a long journey. I hope one day you can come of this poison that all are taking.

 

Thank you, Ravijaua. I hope I can too. <3

 

Hi ladybug i saw u had headaches and neck tension a short while ago? Are these better now? Did anything like supplements or otc meds help with those symptoms? I am currently suffering from those symptoms. Thx

 

Yes, they are basically gone! I'm still not sure what caused them but I think it was probably stress from work, WD, and also working all day on the computer. I usually spend a lot of time on the computer but when working I was having to focus on numbers all day and it might have put too much stress on my eyes. Once I left that job the headaches/neck tension cleared up within a few weeks. I still get them from time to time but it's no longer an all day/every day type thing. I'm so sorry you are currently going through this because I know how awful it is and how it wears you down after awhile. I wish I had more advice but I know how mad it made me when doctors and others told me I just needed to relax and "de-stress". YOU try to relax when you are in constant pain! I hope it passes for you soon. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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From what I have read lots of people suffer headaches and they tend to subside on their own. Which I hope!

Update 8122017

Zoloft  2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011.  Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft.

Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016.

Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help.

12/14/2016 - 15.95 mg (291 mg pill weight)

12/16/2016 -  15.83 mg (289 mg pill weight)

12/23/2016 -  15.67 (286 mg pill weight)

8/12/2017 -  15.34 (280 mg pill weight)

Link to comment

Hi ladybug i saw u had headaches and neck tension a short while ago? Are these better now? Did anything like supplements or otc meds help with those symptoms? I am currently suffering from those symptoms. Thx

Headaches are actually a side effect from paxil and I had regular headaches while on paxil.  They are also a w/d symptom.  I read that Bit. B and a herb called "feverfew" is good for migraines and found good relief from a capsule containing both made by Blackmores, but not sure if that is available in the US.

 

I agree with ladybug that they are also caused by stress, so when you add other stressors to the stress of w/d it can compound.  I have just proven this to myself this week.  I felt the best I have for a long time one day this week so I did 10 mins weeding but had to lie down for an hour afterwards.  Next day I tried again and got the shakes.  We just don't realise how stressed out our body is just from the w/d.  I waited for 3 days until felt good enough and tried another 15mins yesterday and got a headache. 

 

It's trying to figure out what is causing the headache can also give you a headache!  I wish you all the best!

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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The fatigue really is awful. I've also noticed that I feel more fatigue after taking my iron supplements which is very strange as it should be the opposite. My iron pills are chelated and so they are binded with glycine for better absorption and I wonder if it's the glycine that is the issue but the amount of glycine is much less than is in actual glycine supplements so who knows.

 

I'm sorry you are not doing well, but I think it's amazing that you were able to push yourself to travel despite all you were going through. You are one tough lady! Thinking of you and pray you keep improving. ((HUGS))

 

Bless you and thank you for your thoughts and prayers, same here, always wondering how you are going and pray for you.  It is weird about the iron, some things just don't make sense.  I've been having high anxiety and palpitations again so I went back to the lemon balm which I was quite sure helped me before, but this time has not done anything!!  Honestly!

 

Make sure you drink plenty of water.  One day I felt quite weak (which is different to fatigue) and I hadn't drank any water that day.  I am starting to recover now from the trip and gaining some energy and have had 2 half days that were quite good.  The trouble is when you have a better day, you want to do stuff and then it takes me another 2 or 3 days to recover from that!

 

I had days of fatigue all thru w/d but not for weeks on end, so I really hope you will get some energy again soon.

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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The fatigue really is awful. I've also noticed that I feel more fatigue after taking my iron supplements which is very strange as it should be the opposite. My iron pills are chelated and so they are binded with glycine for better absorption and I wonder if it's the glycine that is the issue but the amount of glycine is much less than is in actual glycine supplements so who knows.

 

I'm sorry you are not doing well, but I think it's amazing that you were able to push yourself to travel despite all you were going through. You are one tough lady! Thinking of you and pray you keep improving. ((HUGS))

 

Bless you and thank you for your thoughts and prayers, same here, always wondering how you are going and pray for you.  It is weird about the iron, some things just don't make sense.  I've been having high anxiety and palpitations again so I went back to the lemon balm which I was quite sure helped me before, but this time has not done anything!!  Honestly!

 

Make sure you drink plenty of water.  One day I felt quite weak (which is different to fatigue) and I hadn't drank any water that day.  I am starting to recover now from the trip and gaining some energy and have had 2 half days that were quite good.  The trouble is when you have a better day, you want to do stuff and then it takes me another 2 or 3 days to recover from that!

 

I had days of fatigue all thru w/d but not for weeks on end, so I really hope you will get some energy again soon.

 

 

Thank you! Fortunately the past couple of days I have had a good spurt of energy. I'm post ovulation which is always my best time hormone-wise, coupled with the fact that I'm far enough away from my period that my iron levels have had a chance to be replenished and I think that's why I'm feeling not as fatigued. I really wish I could figure out this hormone stuff but considering I'm too scared to take any hormone supplementation it probably doesn't matter. My best friend also has hormone issues and is seeing a specialist this month. If she has a good experience then I might make an appt myself, although she has health insurance and I don't. I'm willing to pay the money because it's hard having to live like this for years. Although, I do think WD has a lot to do with it as well. And I'm convinced long term Paxil use is what caused my hormonal issues in the first place.

 

I actually have been making it a point to drink more water! I bought a big jug that I fill with at least 32oz of lemon water every day. I definitely notice I feel better when I am well hydrated.

 

Thank you for the prayers, Gran! Thinking of you always. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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  • Moderator Emeritus

I've wanted to say hi for a long time :) I've been reading through your thread and found a lot in common: long and slow taper, life on hold when one should be most productive, comparing with friends, working, possibility of missing an opportunity to have a family (child)... I'm 39 (and a half).

 

At the moment I also identify with what you describe as hormonal storm because that's what it is. Mine has a slightly different pattern in the sense that days before the period (up to a week) get unbearable: massive anxiety, irritability, inner restlessness, constant pain in the lower abdomen... It's so brutal that it makes my daily struggle to function almost impossible. I also don't feel like having my hormones tested is an option. They most likely are out of whack but I have no intention of taking anything to 'fix' them and not really sure if there are any other options except the usual: healthy eating, physical activity, resting, avoiding stress... Like I really can do much above surviving...

 

I'm sorry that you also got caught up with this but I'm happy that we can here meet people who make this dreadful journey less lonely. I hope the good period continues and becomes more frequent. I will keep an eye on your progress.

 

Best,

 

Bubble

Current: 9/2022 Xanax 0.08, Lexapro 2

2020 Xanax 0.26 (down from 2 mg in 2013), Lexapro 2.85 mg (down from 5 mg 2013)

Amitriptyline (tricyclic AD) and clonazepam for 3 months to treat headache in 1996 
1999. - present Xanax prn up to 3 mg.
2000-2005 Prozac CT twice, 2005-2010 Zoloft CT 3 times, 2010-2013 Escitalopram 10 mg
went from 2.5 to zero on 7 Aug 2013, bad crash 40 days after
reinstated to 5 mg Escitalopram 4Oct 2013 and holding liquid Xanax every 5 hours
28 Jan 2014 Xanax 1.9, 18 Apr  2015 1 mg,  25 June 2015 Lex 4.8, 6 Aug Lexapro 4.6, 1 Jan 2016 0.64  Xanax     9 month hold

24 Sept 2016 4.5 Lex, 17 Oct 4.4 Lex (Nov 0.63 Xanax, Dec 0.625 Xanax), 1 Jan 2017 4.3 Lex, 24 Jan 4.2, 5 Feb 4.1, 24 Mar 4 mg, 10 Apr 3.9 mg, May 3.85, June 3.8, July 3.75, 22 July 3.7, 15 Aug 3.65, 17 Sept 3.6, 1 Jan 2018 3.55, 19 Jan 3.5, 16 Mar 3.4, 14 Apr 3.3, 23 May 3.2, 16 June 3.15, 15 Jul 3.1, 31 Jul 3, 21 Aug 2.9 26 Sept 2.85, 14 Nov Xan 0.61, 1 Dec 0.59, 19 Dec 0.58, 4 Jan 0.565, 6 Feb 0.55, 20 Feb 0.535, 1 Mar 0.505, 10 Mar 0.475, 14 Mar 0.45, 4 Apr 0.415, 13 Apr 0.37, 21 Apr 0.33, 29 Apr 0.29, 10 May 0.27, 17 May 0.25, 28 May 0.22, 19 June 0.22, 21 Jun updose to 0.24, 24 Jun updose to 0.26

Supplements: Omega 3 + Vit E, Vit C, D, magnesium, Taurine, probiotic 

I'm not a medical professional. Any advice I give is based on my own experience and reading. 

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Thank you for stopping by! Yes, it certainly seems we have a lot in common. :) I definitely recognize you but am not sure if I'm totally familiar with your story so I look forward to reading more about it. It really does help to know we are not alone in this. When I hang around my friends and have to explain my struggles with people that don't get it I really start to feel like it's "all in my mind" or I'm somehow creating or exaggerating it. Then I come here and I'm like NOPE! This is absolutely real and I'm not the only one. So very grateful for this place and for all of you. <3

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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  • 1 month later...

Wow, it's been a long time since I've done update! Ok, well I've been on this dose for 6 weeks now. Usually I'll drop again at this time but I haven't been feeling so great so decided to just hold a bit. I always dread this time of year as it usually means a big wave for me and I guess this year is no different. Was feeling more anxious in general but able to push through and socialize, etc. Unfortunately, a couple of weeks ago my sleep began to deteriorate. Not sure what triggered it but I had been trying to do 30 minutes of Pilates a day right before. That could've been it or maybe I just didn't feel the drop until 4 weeks. Either way it's been going downhill. Went from 8-9 to 6-7, then to 5 and now it's even less than that. My sleep is always up and down, some days I would get like 3 hours and then 11. So the worrying thing now is how consistently crappy it is which of course has set off the "what ifs." 

 

I've also been having a ton of depression/self loathing about my work situation. Sending out dozens of resumes and getting nowhere. I'm in this weird limbo of desperately needing a job to support myself and for my self esteem, but at the same time being terrified to work because of how unpredictable my WD is, my crazy hormone rollercoaster, etc. But I finally got a call and have an interview tomorrow for a FULL TIME job. Of course I'm freaking out. My last position I worked mostly from home which was great because any time I did have to go into the office my anticipatory insomnia kicked in and I got ZERO sleep. Then about 4 months into the job I started getting these terrible all day headaches that didn't respond to aspirin or anything. That horrible period lasted for two months until I stopped working and they "miraculously" went away a couple of weeks after. I still don't know if it was an issue with staring at the computer all day or stress. So you can see what I question my ability to do this job. It's not a remote position and I will still be working on a computer all day. I'm just scared of all the ways it can go terribly wrong. I'm scared of getting a job at this crucial dose range where a lot of people seem to crash or have problems. I'm scared I'm heading for a crash. I'm just SCARED.

 

So not a positive update, but just wanted to get this off my chest. Thanks for listening.

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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Ladybug, you can always quit, you know. I feel for you, I absolutely know how hard it feels with the unpredictability during wd. But if you dont give it a try you might regret it. Go to the interview, and then reconsider. You dont have to decide now.

 

Hugs!

Amy

 

*** And nice to see you again. Long time ago! ***

Current dose: 0! Free!  Quit June 2017.

2017: Last dose zoloft: 17 June 0,00065 mg 18 May 0, 001 mg 14 May 0,002 mg 9 May 0,003 mg 28 April 0,006 mg 19 April 0,009 mg 8 April 0,013 mg 25 March 0,019 mg 22 March 0,039 mg 18 March 0,052 mg 16 March 0,079 mg 4 March 0,086 1 March 0,099 mg 22 February 0,11 mg 15 February 0,13 mg 6 February 0,145 mg 24 January 0,15 mg 19 January 0,19 mg 10 January 0,20 mg 3 January

2016: 0,98 to 0,22 mg; 2015: 2,35 to 1,01 mg; 2014: 4,9 to 2,5 mg; 2013: 9,1 to 5,1 mg; 2012: 15,7 to 9,7 mg; 2011: Started on 25 mg - then 50 mg- dropped to 25- to 12.5 mg - back to 25 mg - after 18.75 mg started tiny tapering to 16.6 mg

Started on 25 mg Zoloft in March 2011 due to stressrelated tinnitus that gave me panicattacks. Had a terrible reaction to Zoloft from start, but was told to "hold on". After four months I was stuck. Therefore the long taper. Crazy, I know... Super sensitive to drops and have dropped by 4-6 % from the previous dose.

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Hi Ladybug,

 

I'm also with you on the hormonal roller coaster.......this is all new territory for me (peri meno) and very disconcerting. Like you, I'm struggling with the dreaded yeast infection (candida), and each month something different shows up (near my period), this month it's IBS. My new MD suggested Diflucan aswell, but fortunately I never took it as it reacts with Lexapro.

 

Anyway, this year is the first time I have ever had a full blown yeast infection. Like others, it's a struggle to stay away from sugar.

 

Also, not sure how effective hormone testing would be for women in their early forties? My previous MD wouldn't do it.

 

Hugs,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Ladybug, you can always quit, you know. I feel for you, I absolutely know how hard it feels with the unpredictability during wd. But if you dont give it a try you might regret it. Go to the interview, and then reconsider. You dont have to decide now.

 

Hugs!

Amy

 

*** And nice to see you again. Long time ago! ***

 

Thank you, Amy! I'm definitely going to push myself to go. If it doesn't work out, it doesn't work out but I know I have to at least try. ((HUGS))

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

Link to comment

Hi Ladybug,

 

I'm also with you on the hormonal roller coaster.......this is all new territory for me (peri meno) and very disconcerting. Like you, I'm struggling with the dreaded yeast infection (candida), and each month something different shows up (near my period), this month it's IBS. My new MD suggested Diflucan aswell, but fortunately I never took it as it reacts with Lexapro.

 

Anyway, this year is the first time I have ever had a full blown yeast infection. Like others, it's a struggle to stay away from sugar.

 

Also, not sure how effective hormone testing would be for women in their early forties? My previous MD wouldn't do it.

 

Hugs,

JC

 

It's so crazy how our hormones can affect us not only physically but mentally. I'm in awe of it every time it happens. I can have the exact same situation happen to me in one time of the month and it's fine, but if it happens during the bad time suddenly I'm a sobbing mess and life no longer feels worth living. Keeping a daily symptom tracker has really helped me to see how it's not me, it's my hormones.

 

I also get stomach issues after my period along with everything else. My appetite becomes non-existent and my stomach becomes way more sensitive. I forgot to mention in my post that this happened again recently and I lost 5 pounds in a week. Thankfully, it has come back but now I'm due for my period in a week so better enjoy it while it lasts. Sigh.

 

I was also scared to take Diflucan after reading the reviews. I will say the #1 treatment that has saved me when it comes to yeast infections is boric acid suppositories. I bought a pack of 250 empty gelatin capsules size 00 for like 12 bucks and then pharmaceutical grade boric acid for 3 bucks and using my scale I make out 600mg suppositories. For 15 bucks you can get enough treatment to last a whole year or more depending on how frequent you get them. It's not as messy and doesn't burn like the creams and I've had no side effects other than watery discharge the next day but that is very normal. It knocks it out within a few days, it's amazing.

 

I actually convinced my GP to test my hormones and of course everything came out normal. But that was just 1 blood test at a random time in the month. From what I have read it's better to test your hormones throughout the month to see what your pattern is. Given the time of month I usually feel my best (right after ovulation until a few days before my period) I'm thinking my issues have to do with not enough progesterone. Of course I've also read that sometimes it's not even about having a hormonal imbalance but rather you are just more sensitive to your natural hormonal fluctuations in general. Again, I find it deplorable that most doctor's don't take women issues seriously. I've done so much reading online after I started having issues and there are a TON of women out there suffering, some for decades, and their doctors have nothing to offer them other than ADs of course. It's infuriating.

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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Thanks for the tip off re: the gelatin capsules and boric acid Ladybug.......the Canestan products here for yeast infections are soooo expensive. By the way, did you also get an applicator(s)?

 

One of the Canestan pessaries (powder as opposed to gel) gave me this bright white discharge, as I had to use them for 3 consecutive nights. About 5 days later there was a flood of this discharge - that freaked me out!

 

I'm with ya sister!

 

Hugs,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Thanks for the tip off re: the gelatin capsules and boric acid Ladybug.......the Canestan products here for yeast infections are soooo expensive. By the way, did you also get an applicator(s)?

 

One of the Canestan pessaries (powder as opposed to gel) gave me this bright white discharge, as I had to use them for 3 consecutive nights. About 5 days later there was a flood of this discharge - that freaked me out!

 

I'm with ya sister!

 

Hugs,

JC

 

PM'ed you. :)

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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  • 2 weeks later...

Well I got the job! I've been there for a week now and so far I love it. The atmosphere is relaxed and my coworkers are very friendly and welcoming. I must admit it's scary considering I haven't worked full time in 8 years. Of course, I was worried about my anticipatory insomnia ruining things but I'm happy to say I have not had one sleepless night since I started, not even the first night! However, I am sleeping very little (averaging about 4-5 hours per night.) I've always been a night owl and it's near impossible for me to fall asleep before midnight. So even on a good night I fall asleep around 12am and then my brain wakes up at 5am and I sleep off and on until 6am or so. It's hard but it's way better than no sleep. I've also begun dating someone and it's going well.

 

Things are definitely looking up (so my catastrophizing brain is waiting for it all to come crashing down) and if it wasn't for this awful issue "down there" I'd say I was pretty happy. But this issue is making me miserable and I'm counting down the days (or months) until my appt. with a specialist. As for tapering I've been on this dose for 8 weeks now because I decided to hold a bit longer because of the job and holidays. Tapering while working is always a stressful situation chock full of "what ifs" but I'll take it one day at a time. So that's it for now. Hope everyone is doing well or at least having a better day today. <3

a.k.a JMarie

Paxil since Mar.1998

2006-2007:40-20mg
2009: 20mg to 14mg 2010: 14mg to 10.5mg 2011: 10.5 to 7.6mg  2012: 7.5 to 6.8mg

2013: 6.7-6.3mg 2014: 6.2mg-5.8mg 2015: 5.7 to 5.15mg 2016: 5.1-4.6mg

1/19/17: 4.5mg 3/17/17: 4.4mg

6/15/17: 4.35mg 8/10/17: 4.3mg

1/29/18: 4.1mg 5/07/18: 4.0mg

7/31/18: 3.9mg

 

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Wow, congratulations! Inspirational!

Hugs!

Current dose: 0! Free!  Quit June 2017.

2017: Last dose zoloft: 17 June 0,00065 mg 18 May 0, 001 mg 14 May 0,002 mg 9 May 0,003 mg 28 April 0,006 mg 19 April 0,009 mg 8 April 0,013 mg 25 March 0,019 mg 22 March 0,039 mg 18 March 0,052 mg 16 March 0,079 mg 4 March 0,086 1 March 0,099 mg 22 February 0,11 mg 15 February 0,13 mg 6 February 0,145 mg 24 January 0,15 mg 19 January 0,19 mg 10 January 0,20 mg 3 January

2016: 0,98 to 0,22 mg; 2015: 2,35 to 1,01 mg; 2014: 4,9 to 2,5 mg; 2013: 9,1 to 5,1 mg; 2012: 15,7 to 9,7 mg; 2011: Started on 25 mg - then 50 mg- dropped to 25- to 12.5 mg - back to 25 mg - after 18.75 mg started tiny tapering to 16.6 mg

Started on 25 mg Zoloft in March 2011 due to stressrelated tinnitus that gave me panicattacks. Had a terrible reaction to Zoloft from start, but was told to "hold on". After four months I was stuck. Therefore the long taper. Crazy, I know... Super sensitive to drops and have dropped by 4-6 % from the previous dose.

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This is so wonderful to hear, Ladybug! Congratulations and happy holidays to you!

Trying to get off Paxil since 2007. Was tapering by 0.1 mg every 4-5 weeks. Had awful crash in November 2015 at .5 mg; updosed gradually to 2 mg. 

 

Doing better and tapering again, much slower this time.  2016: Dropped from 2 mg to 1.62 mg.  2017:  1.62 mg to 1.2 mg. 2018: 1.2 mg to .76 mg. 2019: .76 mg to .56 mg. 2020: .56 mg to .33 mg. 2021: .33 mg to .13 mg. 2022: .13 mg to .03 mg. 6/12/23 .002 mg. OFF PAXIL 9/4/23

 

Started Klonopin in November 2015 to deal with crash. 1/10/16 started milk titration taper from .5 mg. Finished taper 12/6/17. Still take Klonopin for agoraphobia 2 - 3 times a week. 

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Welldone on getting the job Ladybug.

I can sure relate to that scary feeling of starting work for the first time in a long time.

Im sure you will do well

All the best

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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