Rhernan Posted April 30 Author Share Posted April 30 Almost 10 months off my AD and I’m still so sick, and pretty much in acute still. My worst and most bothersome symptom as this point is an intractable migraine. It is there everyday all day and I only find relief when I sleep (which is not great because of the ongoing migraine). Please did anyone else have horrible migraines too? They are lasting almost every single day now…anything that helped? My neuro wants me to start a preventative like propranolol or lamictal/lamotrigene but I’m scared to death! - Prescribed Xanax for 2 weeks after knee surgery in 2016 (reaction to anesthesia) - cold turkeyed Xanax and was in hospital then bedridden - Found Ashton Manuel and crossed over to 15 mg’s Valium - Tapering off Valium with pills and compound 2016-2018 - Prescribed Remeron nightly in July 2017 for nausea, loss of appetite, weight loss and mood (1.875 mg’s) - Finished Valium taper July 2018 - on mirt from 2017-2021 slowly tapering - got down to .25 and got very ill, updosed to .50 mgs -slowly tapered and finished July 2023 -As of January 2024 in acute withdrawals and sleep is the worst! Link to comment
ShadowDancer Posted April 30 Share Posted April 30 I wouldn't say mine are migraines.... Radiating headaches and pressure. Constant. Lexapro 10-20mg 2016-2018 2 full years cold turkey no withdrawals, Lexapro 10-20mg 01/2021-08/2022 cold turkey missed doses, alternated between high and low doses, no withdrawals 1/7-1/14/2023 Ciprofloxacin for 1 week 500mgx2 in January 2023, resulted in headaches that went away in 2 months 3/21-3/35/2023 Oxybutinin for 4 days 3/21-3/30/2023 Ofloxacin 400*9 days in March, gave me insomnia 3/23-3/25/2023 Passiflora+Valerian Capsule for 2 nights, doesn't work. 3/26-3/29/2023 Unisom (Doxylamine) for three nights, it would work on the second night but would not do anything on the 3rd. 03/29-05/10/2023 Mirtazapine 7.5mg/15mgs depending on the night this also would work for 3 nights, I would switch to Unisom every 4th night. Took for a total of 15-20 times in 42 nights. 5/11/2023 Atarax(hydroxine) only once but spiked my tinnitus and gives me DP/DR in the morning, after this I could fall a sleep on my own with no meds. Later on Unisom also spikes my tinnitus. 06/01/2023 Brain Zaps start, I get back to alternating mirtazapine,passiflora, melatonin, for 40+ more days. Symptoms got worse. 06/15/2023 Trazodone 50MGs once. Did nothing. 3/2023 - 9/2023 NAC, Alpha lipoic Acid, Magnesium, Vitamin C, Vitamin D, Calcium. Once or twice I took 5HTP and L-theanine. Took Fish Oil Omega-3 for 1-2 months. 11/8/2023 250mgs of Keppra ONCE. Link to comment
Rhernan Posted April 30 Author Share Posted April 30 13 minutes ago, ShadowDancer said: I wouldn't say mine are migraines.... Radiating headaches and pressure. Constant. How are you dealing with them? Mine are all day, everyday and constant too! - Prescribed Xanax for 2 weeks after knee surgery in 2016 (reaction to anesthesia) - cold turkeyed Xanax and was in hospital then bedridden - Found Ashton Manuel and crossed over to 15 mg’s Valium - Tapering off Valium with pills and compound 2016-2018 - Prescribed Remeron nightly in July 2017 for nausea, loss of appetite, weight loss and mood (1.875 mg’s) - Finished Valium taper July 2018 - on mirt from 2017-2021 slowly tapering - got down to .25 and got very ill, updosed to .50 mgs -slowly tapered and finished July 2023 -As of January 2024 in acute withdrawals and sleep is the worst! Link to comment
ShadowDancer Posted April 30 Share Posted April 30 I can't. I'm at the end of my rope. On top of that I have visual snow syndrome which also is said to bring in its own kind of headaches and head pressure. On the nights I can sleep I can ignore it during the day. If I can't sleep I can't ignore them and I get akathisia. Lexapro 10-20mg 2016-2018 2 full years cold turkey no withdrawals, Lexapro 10-20mg 01/2021-08/2022 cold turkey missed doses, alternated between high and low doses, no withdrawals 1/7-1/14/2023 Ciprofloxacin for 1 week 500mgx2 in January 2023, resulted in headaches that went away in 2 months 3/21-3/35/2023 Oxybutinin for 4 days 3/21-3/30/2023 Ofloxacin 400*9 days in March, gave me insomnia 3/23-3/25/2023 Passiflora+Valerian Capsule for 2 nights, doesn't work. 3/26-3/29/2023 Unisom (Doxylamine) for three nights, it would work on the second night but would not do anything on the 3rd. 03/29-05/10/2023 Mirtazapine 7.5mg/15mgs depending on the night this also would work for 3 nights, I would switch to Unisom every 4th night. Took for a total of 15-20 times in 42 nights. 5/11/2023 Atarax(hydroxine) only once but spiked my tinnitus and gives me DP/DR in the morning, after this I could fall a sleep on my own with no meds. Later on Unisom also spikes my tinnitus. 06/01/2023 Brain Zaps start, I get back to alternating mirtazapine,passiflora, melatonin, for 40+ more days. Symptoms got worse. 06/15/2023 Trazodone 50MGs once. Did nothing. 3/2023 - 9/2023 NAC, Alpha lipoic Acid, Magnesium, Vitamin C, Vitamin D, Calcium. Once or twice I took 5HTP and L-theanine. Took Fish Oil Omega-3 for 1-2 months. 11/8/2023 250mgs of Keppra ONCE. Link to comment
LukeUK Posted May 2 Share Posted May 2 On 4/30/2024 at 3:31 PM, Rhernan said: My neuro wants me to start a preventative like propranolol or lamictal/lamotrigene but I’m scared to death! Quite frankly, they have no idea what they're doing when it comes to a totally dysregulated CNS. You have a major issue with cortisol rushes. Propanolol increases cortisol and adrenaline levels. That alone highlights that they're just looking up symptoms to see what drugs are routinely suggested, rather than holistically treating your condition as a whole. I would go as far as to say that there are no traditional doctors who have the faintest clue about this condition and interventions based on symptoms are firing in the dark because you saw a flash, with no hope of knowing what the unintended consequences might be. Anyone who does know a lot (based on experience not science, as nobody is doing the science) about withdrawal can only tell you what they have observed. There are no hard rules that have been objectively measured. In general, it is a huge problem in medicine that patients are often listened to for 5 minutes, symptoms are heard, a drug or treatment is selected based on symptoms and not identifying the root cause of the symptoms and treating the whole condition, whatever it may be. 1 15mg Remeron/Mirtazapine November starting 2022 (severe physical side effects) Attempted to taper off January 2023, ended up having a major breakdown and going up to 30mg, took weeks to stabilise Therapy and self-care helped a lot mentally while stable on the drug (but with bad physical side effects) Tapered off over 4-5 weeks, felt physically better all through taper & sexual side effects & palpitations went away Last dose 20-24th April 2023 Severely physically unwell from 2nd May 2023. Had many bad symptoms eg. Palpitations, adrenaline rushes at night etc in the weeks following and couldn't eat. Many symptoms eventually resolved, but left with severe and debilitating fatigue, poor sleep and sexual side effects. Summary: 5 months using Mirtazapine, including 1 month taper ending late April 2023. Severe withdrawal since. Link to comment
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