Longroadhome: think I may be tapering Seroxat / Paxil too fast

[Sassenach]

Hi LRH.

 

Will try and catch up.

Sorry You are having a rough time.

Hope all ok.

 

Sass

[Altostrata]

On 8/23/2019 at 11:44 PM, Longroadhome said:

Thank you you so much for your support I know what I have to do going forward . 

 

What is it you have to do?

 

On 8/26/2019 at 12:01 AM, Longroadhome said:

I’d like to cease recording daily symptoms Alto. I feel I’m in deep wd and at the moment getting through each day is difficult enough. 

 

It's not clear to me whether you feel better or worse after you take each of your drugs. What is your impression?

 

From what are you in deep withdrawal?

[Longroadhome]

@Altostrata

 

Morning to answer your questions as follows;

what is it you have to do?

i have to stabilise and in order to do this I have to remain stable on the medication I am taking until my CNS recovers. 

 

It id not clear to me whether you feel better or worse after you take each of  your drugs . What is your impression? 

 

I think because I have De stabilised my system symptoms are appearing disappearing etc throughout the day so it is impossible to answer this question. 

I do feel with the short life of Paxil that stomach aches each morning are to do with serotonin levels in my stomach being very low but apart from that I really don’t know. 

 

From what are you in deep wd?

 

From decreasing my pregabalin too quickly and ct both meds for 2.5 days a month ago. 

 

Monday 26th August 

 

6am.           Awake good sleep anxious 

7.25am      up and showered De caf tea 

8.30am      8.2mg Paxil Anxious 

7.30am       Walked Georgie 🐕 

9am.           Breakfast 

10am.        25mg pregabalin 

11am.        Met family. brunch calmer de 

                  Caf  Coff

1pm.          With partner de caf coffee 

                    Quite calm

2pm.           Partners house painting 

                  Quite calm 

4pm.           25mg pregabalin 

                      Snack

5pm.             Dinner 

7pm.           Relaxing calm 

10pm.          Bed calm and relaxed 

 

Tuesday 27th August 

 

6am.    Awake good sleep up and

             showered anxious De caf tea

7.30.     8.2mg.  Paxil 

8am.    Work anxious 

10am.  25mg pregabalin Anxious 

i was in work all morning . Anxiety fluctuated but always there just more intense at random times no reason behind fluctuations but appears to be based around how tense I’m feeling in any one moment. 

1pm.      Met partner de caf coff 

               Anxious 

2pm.    Work anxious 

4pm.     25mg  pregabalin 

5pm.     Shopping anxious 

6pm.     Dinner with family and friend 

7pm.     Relaxing with friend at home 

               Calmer 

9.30pm. Bed 

 

 

thank you for your continued support 

 

 

[Longroadhome]

@Altostrata

 

hello

 

Wednesday 28th August 

 

7.15am.    Awake good sleep showered

                   De caf cof

8am.         8.2mg Paxil anxious

8:15am.    Breakfast 

8:30am.     Walking Georgie 🐕 anxious

10am.       25mg pregabalin 

11am         popped into work dizzy head

                   Pressure 

1pm.         Lunch .  Met partner de caf coff 

2pm.          Walked Georgie dog 🐕 again

                   Anxious 

3pm.          Snack 

4pm.         25mg pregabalin Anxious 

                   Terrible dizzy head pressure 

                  On and off all day new  

                   symptom

6pm.          Gym dizzy but managed

                   session

7pm.          Sisters for dinner Calmer 

                   But dizzy head on and off 

8pm.         Watched movie relaxed

                   Calm

11pm.       Home and bed

 

 

symptoms all day : anxious depressed very dizzy head and head pressure bad stomach  pains that go through to my back and lots more that alternate throughout the day . 

I updosed the pregabalin exactly 4 weeks ago by 25mg but can’t say it has made any difference . 

Thank you Alto 

 

 

 

[Longroadhome]

@Altostrata

 

hope the werkend ahead ahead is a good one for you Alto

 

Thursday 29th Aug 

 

7:30am. Awake and up de caf cof

                Good sleep 

8am.       8.2mg Paxil anxious

8.30am.  Walking Georgie 🐕 anxious

9am.         Breakfast 

10am.     25mg pregabalin 

10.30am. Gym anxious

11am.      Brunch with family head    

                  pressure. Dizzy 

1pm.        Home very dizzy dinner prep

4pm.         25mg pregabalin 

4:30pm.    Snack 

5.30pm.   Met partner de caf coffee dizzy

6pm.         Gardening dizzy anxious 

7pm         Dinner dizzy 

8pm.       relaxing calmer 

10pm.      Bed 

 

 

 

 

 

 

 

 

[Longroadhome]

@Altostrata

 

Friday 30th August

 

6.30am.  Good sleep up and showered de

                 Caf tea Anxious 

8.30am.   8.2mg Paxil Anxious

 9am.        Breakfast 

9.40sm.   Work. meeting. dizzy 

10am.      25mg pregabalin 

11.30am. Met friend for coffee de caf

                  Anxious

1pm.          Met partner lunch de caf cof

2pm.         Shopping calmer 

3pm.          Snack.  gardening.  calmer but 

                   Still anxious 

4pm.          25mg pregabalin 

6pm.          Travelling to mother in laws

                    2.5 hour drive . Calmer. 

                    Snack 

8.40pm.     Mother in laws. Dinner . Calm 

9.30pm.    Relaxing. Calm

11.30om.  Bed 

 

Have a a good weekend Alto and thank you for support. 

[Longroadhome]

@Altostrata

 

Saturday 31st August 

 

Staying At mother her in laws this weekend 

 

5.30am.  Awake good sleep dozed

                 On and off 

7.45am.   Up. Cup of tea

8.10am.   8.2mg Paxil calm

9.15am.   Breakfast calm cup of tea

10am.       25mg pregabalin  

11am.       Shopping calm 

1pm.          Lunch. calm. cup of tea

 

though calm still have symptoms of anxiety  but manageable 

 

2.30pm.  Shopping calm

4pm.        25mg pregabalin 

5pm.       Snack then  Resting 

7pm.       Dinner fast heart beat

8pm.      Watching tv fast heart beat most

                 Of night until bedtime

11pm.     Bed 

 

Put fast heart rate down to cups of tea. No de caf

[Longroadhome]

@Altostrata

 

Sunday 1st September

 

4:30am.      Awake . Dozing on and off 

7am.            Awake.up cup of tea 

                     Anxious fast heart beat 

8:10am.      8.2ng Paxil 

8:30am.      Breakfast dizzy 

10am.          25mg pregabalin Anxious 

11am.         Reading papers relaxing 

                     Akathisia but slowly went

                     Away 

12:30.          Gardening anxious 

1:30pm.      Lunch.  cup of tea 

3pm.            Went for a long walk in the 

                     Countryside . Calmer 

4pm.            25mg pregabalin 

5pm.             Snack . Cup of tea 

7pm.            Dinner calmer

8pm.            Relaxing . Cup of tea

11pm.           Bed 

 

 

symptoms all day come and go . Symptoms calmer night time but still there.

 

Alto do do you think  I reinstated too much of the pregabalin And this is why my symptoms are ramped up 

or is it because I’ve destabilised my system from the fast tapering of pregabalin and the 2.5 days of taking no meds a month ago ? 

 

Some  symptoms have improved: tinnitus , vertigo. Both still around but not as intense. But anxiety and Akathisia at times are unbearable . 

 

Thank you for your your continued support 

[Longroadhome]

@Altostrata

 

just to add onto my previous message 

could the ramp up

of symptoms be purely down to taking less pregabalin than what I started with ( was on 150mg per day at one point now on 50mg per day) and so I’m feeling the Paxil wd symptoms more?

i also have a clear picture from jotting down my daily symptoms this being : 

my anxiety and Akathisia come on instantaneously at a thought or situation that I may feel apprehensive about and at the moment that could even be a trip to the shops. Therefore am I right in thinking this is more wd CNS instability than re Instatement at the wrong dose instability ? 

 

Thank you Alto 

[Altostrata]

15 hours ago, Longroadhome said:

my anxiety and Akathisia come on instantaneously at a thought or situation that I may feel apprehensive about and at the moment that could even be a trip to the shops. Therefore am I right in thinking this is more wd CNS instability than re Instatement at the wrong dose instability ? 

 

Yes, I think this is what's going on. You are sensitized so normal stress is amplified.

 

But you have periods of calm, so that's good. It appears to me that your overall symptoms have been lessening in intensity, is that so? Keeping to a regular drug schedule might be working.

 

Good job on the daily notes, thank you.

[Longroadhome]

@Altostrata

thank you for your reply. 

Anxiety and Akathisia are very intense at the moment and are unrelenting but yes I do have periods of calm. 

 

Monday 2nd September 

 

5.10am.     Awake dozing on and off

7:15am.     Got Up cup of tea Anxious 

8.15am.     8.2mg Paxil Anxious 

8.30am.     Breakfast

9:30am.     On the road home (been at 

                    Mother in laws for weekend) 

10am          25mg pregabalin 

12 noon.     Stop for coffee decaf Akathisia 

1pm.           Back in Birmingham met with

                    Partner de caf coff 

2pm.           Shopping 

2:30pm.     Popped into work Akathisia      

                    Awful

3:30pm.     Walked Georgie 🐕 Akathisia 

4pm.           25mg pregabalin. Snack

5pm.           Preparing dinner

6:30pm.     Dinner Akathisia very bad all

                    Day 

8pm.           Relaxing calmer but bad

                     Akathisia 

 10pm.        Showered and bed 

 

 

Akathisia has been unrelenting today . I had quite a good day on Saturday and yesterday and especially today have been as bad as ever but this is the nature of WD.  

Onward and upward. 

 

 

[Longroadhome]

@Altostrata

 

Tuesday  3rd September 

 

awake on and off from 3:30am . But managed to doze on and off

7am.           Up and showered anxious 

8am.            8.2mg Paxil

8.30am.       Breakfast 

9am.             Daughters. Taking

                     granddaughter to clinic 

                     Akathisia 

10am.         25mg pregabalin 

12 midday  lunch with daughter Akathisia 

1pm.            Shopping very dizzy 

2pm.            Preparing dinner

3pm.           Walking Georgie 🐕 

4:30pm.      Home. 25mg pregabalin    

                     Akathisia 

6pm.            Dinner with family 

8pm.            Ironing Akathisia 

10am.          Bed

 

Akathisia and anxiety very bad today . No reason why when looking over my notes.  Can’t put it down to anything but unstable CNS wd. 

[Longroadhome]

@Altostrata

 

Wednesday 4th September 

 

Awake 4am. But dozing on and off

 

7am.        Got up de caf tea 

7.45am.    Chiropractors Anxious 

8.30am.    Popped into work problem 

                   Anxious

9am.          Daughters house de caf

                    anxious 

9.30am.    8.2mg Paxil. Breakfast 

10am.        25mg pregabalin 

11.00am .  Home . Showered

11:30am.   Out with daughter and

                     Granddaughter . Anxious

                      Lunch de caf cof and

                       shopping . 

3pm.            Home calmer de caf tea 

3:30pm.        Snack

4pm.           25mg pregabalin calmer

5pm.           Walked Georgie 🐕 calmer 

7.15pm.      Sisters for dinner calm

11pm.         Home. Bed. Calm 

 

 

morning wasn’t too good had Akathisia and was anxious but by night time I was calmer with periods of feeling like my old self . 

 

Thank you Alto I really appreciate. 

 

 

[Longroadhome]

@Altostrata

 

Thursday 5th September

 

4:30am.     Awake but dozing  anxious

7:30am.     Up . De caf tea Anxious 

8;30am.     8.2mg Paxil  

9am.          Breakfast 

9.30am.     Popped into work 

10am.        25mg pregabalin 

10:30am.   Hairdressers Akathisia 

1pm.           In work . Akathisia 

2:30pm.      Met partner de caf cof 

                    Lunch Akathisia 

4pm.           25mg pregabalin 

5pm.           Snack 

6pm.          Dinner

7pm.          Relaxing Akathisia 

10pm.        Bed 

 

akathesia and anxiety all day. Not a good day 

                  

[Longroadhome]

@Altostrata

 

Friday 6th September 

 

6:30am.     Awake 

7:45am.      Got up walked Georgie 🐕

8:45am.     8.2mg Paxil  de caf tea

9am.           Breakfast de caf tea

9:30am.     Gym very dizzy and anxious 

10:30am.  25mg pregabalin 

11am.        Friends house brunch dizzy

                    Two de caf cof 

12noon.     Home showered out for lunch

                    With partner dizzy anxious

                     Manageable de caf cof

                    Diet Coke 

2:30pm     Shopping dizzy 

4pm.          Snack home 25mg pregabalin 

6pm.          Dinner de caf tea

7pm.          Relaxing asleep most of the 

                   Night calmer 

                   Anxiety symptoms but

                  manageable 

10pm.        Bed 

 

Saturday 7th September 

 

7:30am.     Up showered de caf tea 

                    Breakfast 

8am.           8.2mg Paxil Anxious 

                    Dizzy 

9am.          Work. All day course . 

                    First Aid. De caf tea 

10.30am.    25mg pregabalin 

                    Had dizzy spells and bit of 

                    Anxiety but not a bad day 

12.15pm.   Lunch de caf cof

1pm.           Afternoon course resumes 

                    Coped well 

                     De caf tea

3pm.           Snack 

4pm.          25mg pregabalin 

4.30pm.     Walked Georgie 🐕 

6pm.           Dinner

7.30pm.     Relaxing doing embroidery 

                    Felt calm 

10.30pm.    Bed   

 

Even though ugh I had symptoms today was a better day 

 

Have a a good weekend Alto . Thank you for continuing to support me. 

[Altostrata]

On 9/5/2019 at 11:42 PM, Longroadhome said:

7pm.          Relaxing Akathisia 

 

How does relaxing and akathisia happen at the same time?

[Longroadhome]

2 minutes ago, Altostrata said:

 

How does relaxing and akathisia happen at the same time?

😊 sorry using wrong word ! 

Mean sitting on sofa calm surroundings but still symptoms of akathesia 

[Altostrata]

What do you mean by "akathisia" at those times?

[Longroadhome]

 

sitting on sofa have the need to keep

moving. Legs toes twitching as well as feeling of deep agitation . A feeling of wanting to jump out of my skin. 

[Longroadhome]

Comes and goes some days all day other days once or twice etc 

[Longroadhome]

@Altostrata

 

Sunday 8th September 

 

7.30am.   Good sleep. Up awake. 

                  Showered. Anxious De caf tea

8.40am.    8.2mg Paxil 

9am.         Breakfast. Home. Tidying 

                  Round. Akathesia 

10am.      25mg pregabalin 

10.30am. At friends house de caf cof

                   akathesia 

11.30am.  Met partner de caf cof

                   akathesia . Snack

12:30pm.  Called into my nursery 

                   Work to do Akathisia 

2:30pm.    Shopping 

3pm.          Ate sandwich 

4pm.          25mg pregabalin 

4:30pm.    Preparing dinner de caf tea 

6pm.         Dinner akathesia 

7:30pm.    Walked Georgie 🐕 

8:30pm.    Watching tv  . Calmer de caf tea

10.30pm.   Bed. Calmer 

 

At the the moment I have anxiety all day. Like the switch is permanently ON. In-between I have what I think is akathesia but could be periods of intense anxiety with extreme inner  agitation and feeling the need to move even if it’s just parts of my body like tapping my foot or moving my toes etc 

is this common in wd will it settle down? These are my two worse symptoms I do have lots of others. 

 

Many thanks Alto for your continued support. 

[Longroadhome]

@Altostrata

 

is there any information on nervous system being permanently switched ON? That I can read on this site ? 

 

[Longroadhome]

@Altostrata

 

Monday 9th September 

 

7:20am.   Good sleep up showered. 

                  Anxious De caf tea

8:20am.   8.2mg. Paxil 

9:20am.    Breakfast de caf tea 

9:40am.   Daughters house akathesia 

10am.      25mg pregabalin 

10:30am   Shopping with daughter and 

                   granddaughter akathesia 

12noon.    Costa coffee with family 

                  De caf cof feeling calmer

2pm.         Met partner de caf cof

                  Anxious

2:50pm.   Food shopping Anxious but

                  Calmer

4pm.        25mg pregabalin. Snack . 

4:15pm.   Preparing dinner 

5:20pm.   Walking Georgie 🐕   calmer

7pm.        Gym. Calmer

8pm.        Dinner

8:45pm.   Sitting doing embroidery. Calm

10:45pm. Bed

 

Anxiety and Akathisia all day/night but different levels of intensity mornings seem to be when it’s at the most intense and towards evening it is less intense . 

 

Didn’t  have lunch today because I didn’t feel hungry. 

 

 

                   

 

[Altostrata]

The way you write up your daily notes, it appears you get akathisia after taking each of your drugs every day. Is that what's happening?

 

(I have a feeling I've asked this before. If so, please clarify your daily notes so I don't have to ask again.)

 

Note: Pregabalin has a half-life of less than 7 hours.

[Longroadhome]

@Altostrata

 

i have answered  this before . It is not just around taking the drugs it is throughout the day/night and I cannot put it down to taking the drugs . 

[Altostrata]

Could you please change the way you express your symptoms in your daily notes?

 

Do you wake up with akathisia? Do you have it before you take Paxil or pregabalin? When is it most intense? Do you get it during the night when you're sleeping?

 

I need to see this indicated in those notes.

[Longroadhome]

@Altostrata

yes I will do this going forward . 

I may not be able to write one for the next couple of days as I have a water infection and have just started antibiotics which may affect my symptoms. 

[Longroadhome]

@Altostrata

 

do you want me to write daily notes while on antibiotics as last time they did affect my daily symptoms , or shall I wait until I have finished them ? 

[Longroadhome]

@Altostrata

 

Tuesday 10th September 

 

7am.              Awake. Up feel anxious 

8.50am          8.2mg.  Paxil.   breakfast 9:30am.         Gym. Anxious 

10am.            25mg pregabalin 

11am.            Coffee with friend de caf 

                        Brunch. Anxious 

12:30.             Popped into work felt dizzy 

1pm.              Manicure 

2:15pm.        Met partner de caf cof

3:15pm.        Food shop felt dizzy and 

                       Anxious 

4pm.             25mg pregabalin 

4:30pm.         Home. calmer 

6pm.              Walked Georgie 🐕 calm

7:30pm.        Dinner

 

i realised early evening I had a water infection and started taking antibiotics. 

Today was mainly anxiety   fast heart beat  

tension in body muscle tightness in neck. 

 

I have never had Akathisia wake me up from sleep . 

 

Please let let me know if you want me to record daily symptoms or wait until I have finished antibiotics.

 

Thank you for your help Alto. 

 

 

[Longroadhome]

@Altostrata

 

Wednesday 11th September 

 

i am posting today because despite being on antibiotics  I had a fairly good day. 

To re iterate akathesia has never woken me up from sleep. 

 

7:30am.  Good sleep up awake showered 

                 Anxious but manageable 

                  De caf tea 

8am.         Antibiotic. Water infection 

8:50am.   8:2mg Paxil Anxious but

                  continuation of waking up like

                  It

9am.         Breakfast de caf tea

9:30am.    Work. Anxious 

10am.       25mg pregabalin 

11:30am.  Daughters house de caf tea 

                   Anxious but manageable 

12:30.pm. Shopping with partner

1:15pm.    Lunch de caf coffee. calm

3:50pm.    25mg pregabalin 

5:30pm.   Home calm

6pm.         Antibiotic 

6pm.         Met partner. Costa de caf cof 

7:15pm.    Sisters for dinner. Calm good 

                  Night 

11:40pm.   Home. Bed

 

i did not have Akathisia today . I  felt anxious at times throughout the day but it was manageable. 

This was a better day for me. 

[Altostrata]

This looks like the same as usual. Maybe your nervous system is settling down.

 

You may or may not have a reaction to the antibiotic.

[Longroadhome]

@Altostrata

 

Thursday 12th September 

7:15am.    Awake good sleep anxious

                   Manageable de caf tea

8:10am.    8.2mg Paxil 

8.30am.    Breakfast . Antibiotic 

9.10.          On way to gym came across my friend involved in accident stopped to help

 

10.30am.  25mg pregabalin 

Stayed at friends house until her partner came home. 

11am.      Home . Housework. Anxious but 

                 Manageable 

1pm.         Met partner de caf cof 

1.40pm.   Took daughter out for lunch

                  A little anxious but mainly calm

                  De caf coff

Started to get bad stomach cramps and low back ache 

3:40pm.    Prepping dinner at home 

4pm.          Gardening 

5:10pm.     25mg pregabalin 

6pm.           Walked Georgie 🐕 

                   Calm but bad stomach cramps 

                   And low back ache 

                    Snack 

7pm.           Dinner. Antibiotic 

8pm.           Embroidery and watching tv 

                   Calm but stomach cramps and low back ache 

 

10:40pm.   Bed 

 

thank you Alto 

[Altostrata]

The antibiotic might be causing the gut symptoms. People say to take a probiotic at a different time from the antibiotic to help keep your gut operating normally.

[Longroadhome]

25 minutes ago, Altostrata said:

The antibiotic might be causing the gut symptoms. People say to take a probiotic at a different time from the antibiotic to help keep your gut operating normally.

Thank you I did suspect this . 

[Altostrata]

We rely on people to take care of themselves here. We don't have the staff to do hand-holding for general health issues.

[Longroadhome]

Friday 13th September

 

7:30am.    Good sleep awake de caf tea

                  Anxious 

8:30am.    8.2mg paxil

8.40am.    Antibiotic

9am.           Breakfast de caf tea 

10am.        25mg pregabalin 

 

11amtl 5pm.   Embroidering at home .

                          Calm. Lunch de caf

                          Tea

4pm.            Antibiotic snack 

4;30pm .       25mg pregabalin 

5pm.             Dinner calm 

6pm              walked Georgie 🐕 

7pm.              Embroidery. Calm De caf tea

10pm.           Bed calm 

 

did have anxiety but low level . 

Lots of other symptoms like dry eyes tinnitus muscle spasms etc etc but nothing out the ordinary. 

 

Have  come to realise the akathesia I think I have may in fact be  intense periods of anxiety as they come on and off during times I feel

more stressed . Last few days I have felt calmer. 

 

Saturday 14th September 

 

7:40am.  Good sleep up and showered

                 Anxious 

                 De caf tea 

8am.       8.2mg paxil

8.30am.  Antibiotic breakfast anxious 

9am.       Work First Aid Course all day

10am.     25mg pregabalin  

12am.     Lunch de caf tea calm 

1pm.       First Aid Course . Calm 

4pm.       Snack 

4:30pm.  Home walked Georgie 🐕    

                Calm

5:20pm.   25mg pregabalin 

 6pm         antibiotic 

7:20pm.   Snack calm De caf cof 

8.40pm.   Out with partner calm 

11pm.       Home. De caf cof  Bed. Calm 

 

thinking about  going into work made me Anxious this morning . No reason just came on as I thought about being in a crowded room etc