DinaDina: overactive/painful bladder, PGAD? after sertraline

[Lauren90]

How are you Dina?

[DinaDina]

On 10/15/2022 at 8:01 PM, peaceandlove said:

wow I literally have all these same symptoms. The urge to urinate, the pain & weird sensations down there, it feeling wet when it’s really not. Has this gone away for you yet?

 

Sorry for the late reply. I'm so sorry that you're having deal with these symptoms. I'm much better now but I continue to have bladder/urethra issues. For instance, I can't have sex because it makes me worse. How are you now?

[DinaDina]

On 12/8/2022 at 11:17 PM, Lauren90 said:

How are you Dina?

It seems I continue to become better. But I need to be careful. A few days before, I thought that I could drink a little alcohol and it made me worse. Bladder issues became stronger. I'm lucky that it is becoming better now. I was really scared. It was a mistake. It is difficult to understand that I can't drink alcohol after two years without AD. Just interesting - will I be able to become the same person? 

[peaceandlove]

On 12/13/2022 at 11:28 AM, DinaDina said:

 

Sorry for the late reply. I'm so sorry that you're having deal with these symptoms. I'm much better now but I continue to have bladder/urethra issues. For instance, I can't have sex because it makes me worse. How are you now?

Sorry to hear your still going through it.
still having the same symptoms. Going to do pelvic floor exercises in the mean time on YouTube & try to go to a doctor about it. Have you tried the pelvic exercises? & also do you leak down there too? I do sometimes 

[DinaDina]

13 hours ago, peaceandlove said:

Have you tried the pelvic exercises? & also do you leak down there too? I do sometimes

Yes, I did. But I can say that it seems only time heals me.

[peaceandlove]

On 12/19/2022 at 5:04 PM, DinaDina said:

Yes, I did. But I can say that it seems only time heals me.

Ohh ok & Do you get bladder leaks too? I do 😔 @DinaDina

[DinaDina]

On 12/22/2022 at 3:34 AM, peaceandlove said:

Do you get bladder leaks too?

No, I don't. I usually feel bladder/urethra pressure. It was better but I am in wave now 

[peaceandlove]

On 8/3/2021 at 4:24 PM, morgana said:

hi @DutchMaddy, i am sorry to hear the bad news...i had a test for UTI came back fine, Dr said alright we will do an ultra sound of your kidneys and bladder, which i had on Friday will go back this week for the result, she did say if the test comes back fine...there is nothing more we can do...as everything will be fine....she did offer anxiety medication for it....which  will i not take...

 

i just know my tests will come back fine...however she said i do have a cyst i my uterus which  new i had 3 years back, she said it may be growing and pressing on something which may be causing the frequent urination, i have a referral at the hospital which she gave me 3 weeks ago but havnt heard from the hospital yet for a booking....she said they are proberly busy!.....

 

this frequent urination really affects my ability to sleep at night...

 

why do you think the TENS stopped working?

hey I’m having the same problem. Has the frequent urinating gone away for you yet ? @morgana

[DutchMaddy]

For me the bladder issues are totally gone. It lasted a few month. Now at 29 month having a lot of windows. Hold on.. the bladder issues will go. It’s  all withdrawal 

🌹

[Walleebug]

Stopping by to give you hope.  I had bladder issues while tapering benzos.  It got to the point where I had to wear incontinence pads and even peed the bed a couple times. I thought it was permanent and had no idea it was from withdrawl.   I'm now 6 months off the benzo and it is completely gone.  Luckily for me antidepressant withdrawl did not cause any bladder issues.  I wanted to reassure you that it absolutely does get better.

[peaceandlove]

22 hours ago, DutchMaddy said:

For me the bladder issues are totally gone. It lasted a few month. Now at 29 month having a lot of windows. Hold on.. the bladder issues will go. It’s  all withdrawal 

🌹

Thank you! For me this has lasted more than a few months but my case is different as I am an adverse reaction so kinda like cold turkey I guess. Glad it went away for you 🙂 

[peaceandlove]

8 hours ago, Walleebug said:

Stopping by to give you hope.  I had bladder issues while tapering benzos.  It got to the point where I had to wear incontinence pads and even peed the bed a couple times. I thought it was permanent and had no idea it was from withdrawl.   I'm now 6 months off the benzo and it is completely gone.  Luckily for me antidepressant withdrawl did not cause any bladder issues.  I wanted to reassure you that it absolutely does get better.

Wow. This sounds exactly like my symptoms. However I am an adverse reaction so kinda different, I never got to slowly withdrawal. Had harsh symptoms all at once. Thank you so much for posting giving us who are going through it hope. Glad this cleared up for you 🙂 

[peaceandlove]

9 hours ago, peaceandlove said:

Wow. This sounds exactly like my symptoms. However I am an adverse reaction so kinda different, I never got to slowly withdrawal. Had harsh symptoms all at once. Thank you so much for posting giving us who are going through it hope. Glad this cleared up for you 🙂 

& was it frequent urinating as well that you had? @Walleebug

[Walleebug]

@peaceandloveYes.  I had this for about 3 years.  As soon as I was done withdrawing it went away.  I didn't know it was from withdrawl until I joined this site.  I had many tests done during that time and everything was fine.  Of course my doctor had no idea it was withdrawl either.  

[peaceandlove]

On 1/8/2023 at 3:34 AM, Walleebug said:

@peaceandloveYes.  I had this for about 3 years.  As soon as I was done withdrawing it went away.  I didn't know it was from withdrawl until I joined this site.  I had many tests done during that time and everything was fine.  Of course my doctor had no idea it was withdrawl either.  

Thanks again ! Can’t wait until mine goes away @Walleebug

[Annazen]

Hi Dina
I read that you also have bladder problems.
I have exactly the same bladder problems as you.
The pain in the bladder is excruciating. I also have horrible burns in my genital area.
No painkillers help me. I have tried physiotherapy, electrostimulation, acupuncture, bioresonenz. Nothing decreases the pain.

Do you still have pain? Have you found anything that helps?

[DinaDina]

On 2/10/2023 at 10:33 AM, Annazen said:

Hi Dina
I read that you also have bladder problems.
I have exactly the same bladder problems as you.
The pain in the bladder is excruciating. I also have horrible burns in my genital area.
No painkillers help me. I have tried physiotherapy, electrostimulation, acupuncture, bioresonenz. Nothing decreases the pain.

Do you still have pain? Have you found anything that helps?

I haven't  I just try to live and wait for improvements. It is better now than it was but I can not say that I feel myself as a complete person. 

[DutchMaddy]

I did too. All gone now. Hold on! It’s all nerves, trying to heal going back to homeostasis. It will pass! Take care❤️

[DinaDina]

24 minutes ago, DutchMaddy said:

It’s all nerves, trying to heal going back to homeostasis.

For me it is too long, more than 2 years. And now I have deal with nervous pain in the whole body  It seems, my body is totally broken. I am very sensitive after AD and any intervention causes new pains

[DutchMaddy]

I am so sorry for you. But protracted WD can last long. Please do not give up or think you’re body is broken. I am 32 month post zero and still have waves. Hold on! ❤️

[Adeeva78]

On 4/4/2023 at 3:52 PM, DinaDina said:

For me it is too long, more than 2 years. And now I have deal with nervous pain in the whole body  It seems, my body is totally broken. I am very sensitive after AD and any intervention causes new pains

Hi Dina I have very similar symptoms as you! How are you doing now? I hope you are well!

[DinaDina]

On 5/23/2023 at 9:50 PM, Adeeva78 said:

Hi Dina I have very similar symptoms as you! How are you doing now? I hope you are well!

I'm so sorry that you have these problems. Unfortunately, I am still ill. It is much better, but I have a lot of bad health conditions. Especially with my muscular/nervous system. I'm 2,5 years off any meds now

[Adeeva78]

51 minutes ago, DinaDina said:

I'm so sorry that you have these problems. Unfortunately, I am still ill. It is much better, but I have a lot of bad health conditions. Especially with my muscular/nervous system. I'm 2,5 years off any meds now

Oh I am so sorry you are still feeling ill! Is it your PGAD or other health conditions. These drugs are awful and I am sure contributing to your other health conditions.

[DinaDina]

26 minutes ago, Adeeva78 said:

I am sure contributing to your other health conditions

I think so too. Because I didn't have any problems before AD. If say about PGAD, it is really better. But I am not able to have sex. After any stimulations, urethra pressure and urinary urge increase for some days. So, arousal increases too. After alcohol is the same effect (I tried it one time this winter, it was my mistake). 

[Adeeva78]

2 hours ago, DinaDina said:

I think so too. Because I didn't have any problems before AD. If say about PGAD, it is really better. But I am not able to have sex. After any stimulations, urethra pressure and urinary urge increase for some days. So, arousal increases too. After alcohol is the same effect (I tried it one time this winter, it was my mistake). 

I understand this! For me stimulation is fine and mine feels more like a burning but orgasm will make me burn more and it will get urethra pressure. I have not tried sex yet as I’m worried. Thank god my husband is very understanding. 
 

for me I have it some days and some days it’s normal. 
 

it’s very depressing. I find that vagisil helps!

[DinaDina]

11 hours ago, Adeeva78 said:

I find that vagisil helps!

For me, it is more pressure than arousal. I studied anatomy and understood that all nervous are very close in this area. Urethra pressure starts pressure on clitoris nervous. I couldn't to wear jeans for more than year but I'm able now. So, I think I continue to become better. I dream to be a complete person.

[DeeVe]

Hi @DinaDina,

 

I recognize your story. Just got of sertraline a month ago and now have Pgad symptoms. I’m going mad. I still take 0,5mg AP (fluanxol). I am so scared to stop this medication. Because of severe anxiety. And I’m afraid the symptoms will get worse. Because AP suppresses the nerve system. I’m afraid I can’t handle that. I just want to die. 
really would like to know if there’s still improvement with you? I’m so scared this is my life now. Hope to hear from you. Thank you…

[valentin]

On 4/4/2023 at 10:22 PM, DutchMaddy said:

I did too. All gone now. Hold on! It’s all nerves, trying to heal going back to homeostasis. It will pass! Take care❤️

I agree it is about nerves especially Pgad.But how can stopping Zoloft or other Ad damage our nerves ? You talk about pudendal nerves i guess ?

[DinaDina]

On 8/2/2023 at 5:02 PM, DeeVe said:

I’m going mad. I still take 0,5mg AP (fluanxol). I am so scared to stop this medication. Because of severe anxiety. And I’m afraid the symptoms will get worse. Because AP suppresses the nerve system. I’m afraid I can’t handle that. I just want to die. 

 

I feel you. So sorry that you're having deal with this condition. I think you should decrease your meds slowly and stop that. Maybe it will be better if you create your own thread and admins help you with the taper. 

 

On 8/2/2023 at 5:02 PM, DeeVe said:

if there’s still improvement with you? I’m so scared this is my life now. Hope to hear from you. Thank you…

If you are about PGAD I can say that I am much better than I was. But I still have some low abdominal and urethral pressure. And I still don't have sex. So, I can live but not the full life. I try to think that I need more time for the healing.  

[DeeVe]

@DinaDina thank you so much for your reply. I’m searching for some positive experiences because I am so anxious.

I stopped the fluanxol last Monday. I didn’t really understand the tapering. And 0,5mg is the lowest dose there is. So far bladder pain is increasing. How did you experience the pain? Was there anything helpful to reduce it a little? Or was it more the pressure with you and not pain?

[valentin]

Also have Pgad after i stopped Zoloft 3 months ago.I tryed restarting it and did not help me.My arousal is non stop not simple to live like this i hope i will get better also Dina....but this can take years in some cases

[DeeVe]

@DinaDina sorry to bother you again. But I didn’t read very well, I see you prescribed your pain in an earlier post.

 

Have another question though. Yesterday I experienced what you described as ‘if you had to pee through your clitoris’. I got very upset and scared. Do you still experience this sometimes? Today I ‘just feel my clit’, but not the feeling of passing urine through it. It changes so rapidly. Do you still have sensations in your clitoris? And if not, did this fade or was it gone instantly?

[DinaDina]

On 8/9/2023 at 6:21 PM, DeeVe said:

And 0,5mg is the lowest dose there is

I know that you can make the liquid with meds and it will be lower dose. But I didn't know about that and just stopped to take Zoloft (1/4 of the pill).

 

4 hours ago, DeeVe said:

Do you still experience this sometimes?

Rarely. Usually it is not so intense that it was. Feels like pressure. But that's why I can't have sex. It does this body part very sensitive and I will want to urinate for some days. 

It was becoming better, better and better. Not instantly. 

[DinaDina]

@DeeVe 

 

On 8/9/2023 at 7:12 PM, valentin said:

but this can take years in some cases

 

I am almost 3 years off meds now. I am better but I am not healed  

I hope my body can heal after some years more.

[Rudbeckie17]

Hi @DinaDina how are you now? I too developed symptoms similar to pgad because of Zoloft but I have no pain, just a feeling of urinary infection at times and random arousal! I only took this medication for a week and a half! 25mg to start then 50mg the second week! Rudbeckie 🌼

[DinaDina]

On 11/15/2023 at 2:36 PM, Rudbeckie17 said:

Hi @DinaDina how are you now? I too developed symptoms similar to pgad because of Zoloft but I have no pain, just a feeling of urinary infection at times and random arousal! I only took this medication for a week and a half! 25mg to start then 50mg the second week!

 

Hi! I'm really sorry that you are having deal with this condition. Unfortunately, it seems I don't notice any improvements the last year. It is much better that it was but I am not healed.