Gingerhead: Ginger new member looking for advice

Posted January 10 · January 10

11 minutes ago, LotusRising said:

It was not my experience, but ia lot of people report a decline in symptoms toward the end of the day. Whether that's because of the cortisol pattern, or just your specific pattern, I don't know for sure, but it's good you seem to be getting some relief

If this is what you've done in the past and it works for you, then I would stick with it for now.

Going through this myself I'm sorry that anyone has to go through this. Now that I'm starting to realise symptoms for what they are its getting easier to continue and try push past them so far. As ive read they are only temporary and will pass eventually. I assume im in the window stage? Delt with the numbness face/top of hand and annoying but livable twitching eye today and pushed through. I used to take my meds all at the same time. When I woke up. But fear moving it to the morning would throw a curve ball at my system right now? Again I appreciate everyones time and information. It's been very helpful and I'm sure will continue to be. The fourm is a life saver and I have no idea where I would be mentally and physically right now without it. Thank you

Posted January 10 · January 10

1 minute ago, Gingerhead said:

But fear moving it to the morning would throw a curve ball at my system right now?

Ideally, you would take it in the morning if it was affecting your sleep. Is 3:00pm a time that works for you and will be easy to remember?

Posted January 10 · January 10

14 minutes ago, LotusRising said:

Ideally, you would take it in the morning if it was affecting your sleep. Is 3:00pm a time that works for you and will be easy to remember?

I can change it. And take it tomorow morning if you don't think it would send my system for a loop? Easier if I take em at the same time as my Concerta and the vitamins. Just wanted to start the first dose back on as soon as I could to try to slow possible withdraw symptoms that i feared were coming so I took it as soon as I left the pharmacy which was 3pm

Posted January 10 · January 10

What day did you restart it?

We would normally recommend moving it by an hour each day until arriving at the desired time.

Posted January 10 · January 10

I started on Monday. So yesterday

Posted January 10 · January 10

This morning only took half the B12 pill. About 10-20 min later vision started getting fuzzy. Lights had rainbows. Focusing issues (eyes didn't want to focus) and lips are tingly on and of and slight pressure behind my eyes and sinus. I assume this is all WD symptoms?

Last night 9:25 feel normal except vision issues out of left eye mostly peripheral vision, slept decent (930ish to 6:00ish only waking up a few times with no aches and pains thankfully)

Edited January 10 by Gingerhead
Added information

Posted January 10 · January 10

Good evening,

Just a update. Keep getting a random and not super painful but enough that I feel it pain in my right lower gut, hoping it's just randomness. Today was pretty uneventful except for first thing. Had sinus pressure all day and runny nose on and off (was also working outside on and off) I have noticed that I tend to vision focus out on and off . Light sensitivity is still there (if I look at a led light bulb in my house for example and look away it's as if it was a super bright light. Feet felt wet all day even though my socks were not? Took my 25mg dose at 3pm again today. Fingers crossed that the lack of extreme symptoms are a sign of me stabilizing? One weird symptom is if start urinating I can't seem to cut it off and it tends to keep wanting to urinate? But still have full bladder control otherwise (can hold it). Anything in this list anything I should be worried about? Considering the morning got worse when I had half the b12 should I eliminate it tomorow? I appreciate all the help and can't think that if I had listened to the doctor to go back on 50mg I'd be in a much more world of hurt. So I thank everyone that has assisted me so far. End goal is to get off this med as I don't really feel I need it. But learned my lesson of CT. I know I'm still not in the clear of possible worse symptoms happening but it has changed my perspective on alot of things going through this. Also was getting some ear ache symptoms on and off during the day but they wouldn't last long (5-10mins) at a time. Lips and face either have returned pretty much to normal or I have gotten used to it? I also did not get the "electrical" feeling after taking todays dose. Also super short headaches where it would be like I was going to get one and I felt it coming then it would go away? Will update if I get any worsing symptoms tonite.

Posted January 11 · January 11

2 hours ago, Gingerhead said:

Anything in this list anything I should be worried about?

If you're concerned, I would certainly talk to your doctor, but these do all sound like typical WD symptoms. I'm assuming you haven't had them prior?

2 hours ago, Gingerhead said:

Considering the morning got worse when I had half the b12 should I eliminate it tomorow?

Was this the first time you took it?

Posted January 11 · January 11

9 minutes ago, LotusRising said:

If you're concerned, I would certainly talk to your doctor, but these do all sound like typical WD symptoms. I'm assuming you haven't had them prior?

I'm not overly concerned. Like I said there hasn't been like fall over pain or extreme symptoms I can't work through thus far. I had no symptoms before hand other then the occasional muscle twitch and restless leg symptoms which have seemed to pretty much stopped for the most part. It's funny because I keep telling my wife how great it is to be able to urinate normally again. Funny how the little things you take for granted until they are taken from you then are given back to you, you appreciate them more.

9 minutes ago, LotusRising said:

Was this the first time you took it?

I've been taking B12 since roughly two weeks after I went cold turkey and started to get blurred vision and vertigo symptoms. Im just afraid skipping tomorrow's dose might send me in a world of hurt. I guess I could always bring it with me to work and take it if need be? It's a under tounge tablet. I unfortunately wasn't keeping a very good record before I found this forum. I thought it would be just a couple weeks of pain and suffering and be done.

Posted January 11 · January 11

Good morning.

Night was somewhat uneventful. Woke up a few times feeling like I had to take a leak,(did of course but not enough that I felt warranted waking up to) and went back to bed. Woke once with slight chest (left side) pains, which through breathing I calmed down and shut down overthinking it and went back to bed. Becoming more enlightened to how I have actually been the whole time I've been on this med. Was talking with my wife and she even seen the difference and sees what I'm assuming is the windows of when in her words "you actually give a ****". She's very supportive and understands that this is going to be a possibly a long bumpy road but there is light at the end of the tunnel as I had glimpse of my true self when I was coming off it CT. Hatred towards doctors are growing and I'm becoming even more adamant that my end goal is to get off this med and finally "feel" again. I've always been good at projecting emotion when needed so most people around me will probably not overly notice until I finally become my true "clear" self off this med. Again i fear where I would be if it wasn't for the forum and I truly appreciate and thank everyone who volunteers. You are helping many broken souls to eventual become whole again. In other words I'm not going anywhere 😂 I'm on this forum for the long haul and hopefully once I become healed eventually I can pay it forward by helping other people going through the same horror and come out on the flipside a better and truer self.

Skipped B12 dose -no weird effects like yesterday

Some tingling in lips still and sometimes finger tips but slowly going away each day.

Brain fog still but slowly I feel it's getting better (at least thats what I'm telling my self).

Still getting random discomfort in lower right side but not crippling

Will update later tonite more then likely

Posted January 11 · January 11

So I've been noticing that my symptoms tend to taper quite a bit until I take my dose then within a couple hours I start to experience a new wave of symptoms. It has become pretty predictable as I brace every night for them as it generally hits after I get home from work. Is this a normal trend to stabilisation?

Posted January 11 · January 11

@Gingerhead

Unfortunately, everyone's path to stabilization will look a little different.

What date did you reinstate? In general, do you feel your symptoms have improved?

Posted January 11 · January 11

15 minutes ago, LotusRising said:

@Gingerhead

Unfortunately, everyone's path to stabilization will look a little different.

What date did you reinstate? In general, do you feel your symptoms have improved?

I restarted on Monday @25mg as advised in here not as advised by doctor to start @50mg

it's hard to say, as each day seems to be new symptoms that eventually ease away towards the time that I take the next dose. Most new symptoms happen within two to - 5 hours after taking the dose of 25mg. I've noticed in the past couple days since reinstating I've become numb and unable to really feel any emotion to things that should. A hour after taking todays dose I just got a feeling as if my head is trying to radiate heat on and off then it has gone away for now, Not extreme by any means but enough to notice it when it happened. Ear feels like border earache is trying to start noticed that yesterday as well within a couple hours of taking the dose. My "zoning" out /zombie feelint also seems to become slightly worse as does the sinus pressure. I'm trying to keep a list of symptoms as they happen each day. I'll start timing them in relation to taking the dose as well. Most of my body aches have gone away recently not sure if that's related or not.

Posted January 11 · January 11

That was definitely a significant drop in dose, so it could take some time to stabilize. I would give it a week to see how you feel.

Posted January 12 · January 12

17 hours ago, LotusRising said:

That was definitely a significant drop in dose, so it could take some time to stabilize. I would give it a week to see how you feel.

Ok will tough it out. Should note I got a second flush of head/face @430. 16min after the doseage, here's the list of what I experienced throughout the night into today so far

Took dosage at 3pm

Hands showing color change 3:50
410 head flush
426 ear ache not felt
Gut pain not felt
Zoned out zombie feeling
430 flushed face feeling
447 face flush
Ear poping 507
519 face flush 534 face flush
Balance little off 540
626 unable to retain simple directions from food boxes
720Itchy feeling around neck and head

Some balance issues

430 woke up. Urinated
Violent nightmares
Some violet intrusive thoughts but I shut them down I assume related to still waking up from nightmare?

Took concerta and vitamin D 7:00am

Posted January 12 · January 12

Should note that the itchyness might be unrelated as I have been having a shower in the morning then a bath a night for the past week and other family members are experiencing dry skin as well.

Posted January 13 · January 13

Update for the duration of the day. Felt clearish a few times today.

1133 midsection itchyness.

Lower right side pain/ache sometimes in front sometimes in backside

2ish Feels like I'm wobbling when I'm standing still (bobbing forward to back)

233 zoning out

3pm took 25mg dose

325 normalish feeling. Clearish

508 sinus pressure

532 zoned out feeling left ear pain slight on and off

700 normalish feeling

715 gut ache but haven't ate supper yet

Should also note I used to be a heater at night (slept with only one blanket and always had a fan on me and heat down low) and now sleep with three blankets on me and a hoody with hood up and warmish

pj bottoms

851 ache from lower right above hip gut area again on and off. Pretty much all day. Heading to bed hopefully it will be a uneventful night

Felt pretty good when I first got home from work as well around 550ish till about 7ish

Posted January 13 · January 13

Should note I had the following for supper

Salad (broccoli,cucumbers, lettuce,carrots) with ranch dressing and cayenne pepper

rice with diced Canned tomatoes,cooked beef with taco seasoning.

lunch I had canned beans (not very many) cooked frozen fries and chicken fingers with Arby's horsey sauce and cayenne pepper on fries

breakfast was

bagel with butter and herb and garlic cream cheese and coffee (double double)

snack when I took dose was a little container of apple sauce

also had a glass of milk and a banana before heading to bed. Milk I've been doing as a way to keep my calcium up for two or three months now. Before WD and CT

Posted January 13 · January 13

Good morning.

Was a pretty rough night. Lots of tossing and turning and gut ache and gas. Here's what I remembered to write down as it happened.

138 bathroom

430 panic ish - bathroom

648 bathroom Ache in lower left side above hip

657 took concerta and vit d with diced peaches

Farting relief

812 emotional numbness again

Most gut symptoms have diminished

I have also noticed that I need to force myself from holding my "gut" midsection in as if it doesn't relax on its own?

814 feel guts bubbling

Posted January 13 · January 13

Went to edit the post but I guess it timed out. I keep getting this "gut" feeling that 25mg is to high of a dose. I assume it's to early on in my reinstatement to try a lower one?

Posted January 13 · January 13

Quick question. Is it normal to start to feel "better" as my dosing time approaches? I take my next dose in about a half hour and feel more clear/grounded. Also here's a update on my experience throughout the day thus far.

10:03 pressure behind left eye and sinus
10:10 pressure gone
1010 feels like cold breeze on groin area
11:02 leg muscle twitch
12:28 brain fog slight gut pressure
157 sweating but just did physical labour
201 numb but somewhat content feeling

Posted January 13 · January 13

4 hours ago, Gingerhead said:

I assume it's to early on in my reinstatement to try a lower one?

It's been a week, is that correct?

In general, do you feel better since reinstating, or do you feel worse?

Posted January 13 · January 13

11 minutes ago, LotusRising said:

It's been a week, is that correct?

In general, do you feel better since reinstating, or do you feel worse?

It's been five days. I feel more numb. Unable to really feel much emotion. Tons of brain fog. Wife says I get more moody and robot like after taking the pill. Not sure what else except for the symptoms I've experienced thus far. I've noticed as my dosing schedule approaches I start to feel more clear and able to grasp things such as what I'm writing now (screen isn't just a bunch of letters and words)

237 feeling flushed but just shoveled snow

Posted January 13 · January 13

I feel like you may need more time. I would give it 7-10 days before making any changes.

What is happening that you feel you need less?

Posted January 13 · January 13

5 minutes ago, LotusRising said:

I feel like you may need more time. I would give it 7-10 days before making any changes.

What is happening that you feel you need less?

Ok I'll tough it out then. The part that makes me feel I need less is how as I approach dosage time I get clearer and more able to function and talk, brain fog starts lifting, I can enjoy some things again. I'll take my dosage at 3 as I have been so far. Basicly I stop feeling "drugged" I guess for lack of a better word. I'll keep updating as things happen and note any changes on here. I have a doctors appointment on Thursday. Ill be bringing up that I want to stay at 25mg and eventually want to taper. If they resist I'll just tell them I'm gonna stay at my current 25mg dosage assuming no really bad effects happen between now and then and figure out a way to taper without their help. The one doctor at the walk-in wanted to switch me to another drug. Which after reading people's experiences I have no interest in doing.

Posted January 13 · January 13

3 minutes ago, Gingerhead said:

The part that makes me feel I need less is how as I approach dosage time I get clearer and more able to function and talk, brain fog starts lifting, I can enjoy some things again

These could be side effects from the drug, that "numbing" feeling people talk about when they're on antidepressants. Did you have these symptoms before you stopped abruptly?

Posted January 13 · January 13

50 minutes ago, LotusRising said:

These could be side effects from the drug, that "numbing" feeling people talk about when they're on antidepressants. Did you have these symptoms before you stopped abruptly?

To be honest I've always been somewhat emotionalless but I've also been on these since I can remeber. Only felt waves of strong emotion once I CT in december.and have been chasing that since restarting. I don't recall the brain fog or any of the other symptoms I have had thus far tho. I also used to have a bulletproof gut and could eat just about anything without any issues. Last night was the first time ever experiencing gut issues other then the previous stabbing pain three or four hours after taking the 100mg previously. This is also what I've felt since taking todays dose. Not sure if the med has started to be digests yet

237 feeling flushed but just shoveled snow
Took dose at 3
315 clearish feeling but had that approaching doseage time as well. I also want to be around family which I did not at all most of the day
Heavy feeling of eyes want to go to bed but also bored
341 Inner warming feeling

Also slight itchyness in face area but it is winter and house is dry

Posted January 14 · January 14

Night was somewhat uneventful.

400pmCold feeling to core
Stomach gurgling and burping a couple times
420pm cold breeze feeling on left hip area
437pm gas
535pm ate supper
558pm Gut pressure
600pm gas
626pm right ear slight ache
833pm Normalish feeling going to bed attempting

548am anxiety over losing self
600ish wanting to be with family
817 took concerta and vitamin D
844 memory blankness for things I should know names of
850 feel clearish and normalish
1017 headache behind right eye
Noticed burping even though I'm not drinking anything that should cause it. I am drinking at least two glasses of milk everyday since this journey has started and been drinking as much water as I can to stay hydrated

Posted January 14 · January 14

1249 listening to a song caused goosebumps as I can relate to it and made me chuckle with happiness somewhat

146 random front left temple ache for a few seconds then gone

330 mostly right knee sorta achey and feel on and off like it sorta wanna lock up,mind you I was experiencing this before stopping the pill cold turkey?

Been trying to stay busy to keep my body moving to aid in any digestive problems I was having. For the first time since starting back on the pill @25mg I've started to get glimpse of emotion again which I'm enjoying as it comes and clinging onto them during the moments I don't really have much emotion. Hand eye coordination might be a tad off, but I'm pushing through it. One weird effect I have noticed and keep mentioning to my wife is that most of my body aches have been gone for at least three ish weeks. My knees and legs and lower back and hips used to hurt something awful and now they don't? Could this be related? Also get spurts of anxietyish when pill time is approaching but I feel that's due to fearing what symptoms I'm going to feel afterwards.

Posted January 14 · January 14

Should also note. I keep getting the lower right side roughly above my hip gut aches on and off throughout the day since I've started this @25mg

Posted January 15 · January 15

Just placed a order for some of the recommend supplements.

400IU vitamin E

Natural Factors - RxOmega-3 Extra Strength 600mg

Trophic Max Mag (Magnesium Bisglycinate), 450ml, Raspberry Lemonade liquid

I am hoping I picked the correct things, and any suggestions on how to start on them (do I just start taking them?)

Posted January 15 · January 15

4 hours ago, Gingerhead said:

listening to a song caused goosebumps as I can relate to it and made me chuckle with happiness somewhat

This sounds so good!

4 hours ago, Gingerhead said:

One weird effect I have noticed and keep mentioning to my wife is that most of my body aches have been gone for at least three ish weeks. My knees and legs and lower back and hips used to hurt something awful and now they don't?

I expect this was likely a side effect from the drug. Great that they are gone!

1 hour ago, Gingerhead said:

Just placed a order for some of the recommend supplements.

I would start only one supplement at a time and pay attention to how you feel.

Keep it simple, slow and stable

Posted January 15 · January 15

2 minutes ago, LotusRising said:

This sounds so good!

I expect this was likely a side effect from the drug. Great that they are gone!

Does this mean me reinstating at 25mg will bring back the aches and pains?

2 minutes ago, LotusRising said:

I would start only one supplement at a time and pay attention to how you feel.

Keep it simple, slow and stable

Ok will do. Any recommendations one which one I should try first? Will check that link out as well

Posted January 15 · January 15

Magnesium bisglycinate is helpful for calming, muscle relaxing properties, whereas omega 3's are good for overall inflammation and brain health. I would just have a quick read on all them and that might help you decide what to try first. And whatever you choose, I would start with a low dose if you can.

Posted January 15 · January 15

22 hours ago, LotusRising said:

Magnesium bisglycinate is helpful for calming, muscle relaxing properties, whereas omega 3's are good for overall inflammation and brain health. I would just have a quick read on all them and that might help you decide what to try first. And whatever you choose, I would start with a low dose if you can.

Ok thank you, also got soft chews of the omega 3 so I'm able to choose how much to take at one time, same as the magnesium is liquid and Ill be able to control how much at one time as well. Night was up and down with having to go to the bathroom every couple-4ish hours. Woke with panic again but talked myself down again and went back to bed. Had a spout of ringing in my left ear but came somewhat mild then disappeared within 4 seconds. Vision seems to be getting clearer and I can grasp most everything I did before reinstating a week ago. Bladder issue (having to go but weak stream like a UTI) hit but then a hour later I urinated just fine. Here's the list of the little bit I felt today. Kept myself pretty busy all day at work. Had to shut down myself from worrying about what other people were doing that would effecting other people (was always like this as long as I remember) a couple times as I felt it ramp up but was short-lived and controlled. Noticed my hands are not overly steady when I try to hold them steady. But they really havnt been in the past as far as I can remeber and seem to be improving over what they have been since I've been checking since I started this. I also giggled at my kid today over something she was doing that was silly. So I guess for now emotion is also coming back.

12pm ear left side slight ache

108pm slight ringing in right ear for less then a minute then went away

Took dose at 3pm

415 Feeling like I had to rush to bathroom to urinate but symptoms replicating UTI again (weak stream slow flow)

456 urinated fine/normal

Should note I've been drinking as much water as I can, might slow down on it at night as it's somewhat annoying waking often to urinate. Been also trying to space my meals out more regularly then I have in the past before starting this "Journey"

Open to any suggestions on things I can do differently or improve on.

Posted January 17 · January 17

Good evening,

Nothing much to report today. Still feel slight brain fog, took my dose at 3pm again along with my Concerta and vitamin D at 7am this morning. Noticed joints started to "crack" again including my knees. I'd assume it's the 25mg sertaline doing this? Slept throughout the night without much issue. Not having to urinate as much but also cut my water back some as going to the bathroom every couple hours was starting to get annoying. Had emotional experiences during the day so there's that (not feeling completely numb anymore) I'd almost hazzard to say I'm almost to were I was before I quit the 100mg cold turkey over a month ago if it wasnt for the brain fog/zoning out on and off part. Knock on wood I keep stabilizing and then can attempt to taper down. How will I know I stabilized? Once/if the brain fog lifts? I am thankful again I found this forum as I can't help but think back to if I had listened to the doctor and reinstated at 50mg what world of hurt I might be in. I know I'm not out of the woods yet for symptoms but I still want to thank everyone here again! I will update again tomorow with hopefully nothing to exciting to report.

Gingerhead: Ginger new member looking for advice

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