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☼ Scallywag: Cymbalta - skipping doses didn't work, time to taper

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scallywag

Was out for a walk tonight. Lot's of Pokemon hunters out and about. :D


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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AR2003

Hi Scallywag

 

I just wanted to pop in and say well done on your taper with Cymbalta. From experience , I know full well what it is like.

 

Unfortunately , my first experience : I was ct from it at quite a high dose (I think it was 60 mgs) by a senior reg psychiatrist. My own doc was on holidays. He put me on Valium. About 3 weeks later . I was put back on it and increased up to 120mgs. About 3 months later I tapered from it slowly. I did what you are doing. Counting beads. Oh myyyy ... I used to scream to high heaven back then . Why oh why me !!!

The insult at having to count these miniscule beads.... But I did it. And so will you. You are doing so well.

 

You were first to respond to me here on SD and I really appreciate it. Thank you.

.

I hope you're day is going well. I know what you mean about the Pokemon craze. My daughter has just discovered it too !!!


Antidepressants (1990 - 2013 ) intermittent prescribed use.

Lexapro Cymbalta Lithium Abilify Lamictal ( 2013 - 2014 )

Xanax crossed over to Valium ( 2013 - 2015 )

Stilnoct ( Ambien) (2014 )

I have come off all of the above medications .

Since January 2014 , I have been experiencing massive physical pain daily and consistently. Nerve pain, Paresthesia Muscle twitching ,Electric type shocks. Debilitating pain. Mental symptoms slightly improved.

Currently tapering Seroquel 25 mgs since February 1 2016.

August 23 2016 : JUMPED at 3.125 mgs (crumbs) - I AM MEDICATION FREE.

Physical pain - muscle knots and nerve continues . Stiffness slightly decreased. Mental symptoms , sleep improving.

Supplements : Magnesium 450g , Omega 3 fish oil , Evening primrose oil and probiotic.

I try to Exercise daily but due to pain levels and 'exercise intolerance' it is extremely difficult.

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scallywag

Hi AR, thanks for having a look at my intro and for posting. My initial reaction at counting the beads, especially when my 60 mg caps had around 550 of the little critters, was "You have got to be kidding!" That is best said in the tones that John McEnroe used after a call he didn't like. ;)  Now it doesn't bother me as much.

 

Day 10 on 14.6 mg: Boring is good. Problem with burning sensations on the sole of one of my feet continues but I'm finding ways to manage it.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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savinggrace

You know, Scallyway, I think it was Karen who said our mysterious symptoms seem to choose a part of the body to settle on.  Yours seems to be the bottom of your feet.  Burning feet...ugh!

 

Mine is my chest.  I wake up frequently during the night with electric shock like feelings in the middle of my chest; sometimes its crushing pain like I am having a heart attack.   It only happens at night or when I am sleeping and always in the exact same spot.  After having my heart checked months ago, I have learned to chalk it up to withdrawal.  I wonder where it is going to happen next...

 

Grace


amitriptyline from 1980-2002, along wi/ intermittent, infrequent use of benzos over 2 decades

2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg

2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )

Micro-tapered valium from 2011-2015. Hit a wall at 12.84. mg.  

Jan. 2015 Tapered 75 mg. trileptal  first year. 6 month hold.  Resumed micro--tapering trileptal 2-10% every few months

January 2020  12.74 valium, 4 mg. remeron. Resumed micro-tapering trileptal 5 mg. down to 138 mg. 1/21/20; long hold; cut trileptal to 133 mg. 

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scallywag

Day 20 on 14.6 mg:  My taper is as boring as it gets. I hope that continues. Thinking about a cut after tomorrow (21 days).

 

Grace:  I've been thinking about your comment since I read it a week ago. Last night I remembered that as a child -- 6 or 7 years old -- I had a problem with the skin on the soles of my feet. Treatment was petroleum jelly at night and then cover with plastic baggies/wrap and socks. It could well be that I have some kind of vulnerability there. If that's the case it's not surprising that a w/d symptom would show up. 


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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savinggrace

That makes sense, Scallywag...about your feet.  I remember someone on a benzo board years ago that was off benzos but talked about the pain in his feet constantly.  I often wonder how long that took to resolve as I lost touch with him.

 

I just looked at your tapering rate since January.  It doesn't really look like something that would be advised here at SA. Well, the skipping doses part anyway. Did that catch up with you? Is that why you started the 10% cuts of current dose?  Seems like your body is letting go of this Cymbalta pretty easily if you describe a 10% cut as boring.

 

Grace


amitriptyline from 1980-2002, along wi/ intermittent, infrequent use of benzos over 2 decades

2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg

2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )

Micro-tapered valium from 2011-2015. Hit a wall at 12.84. mg.  

Jan. 2015 Tapered 75 mg. trileptal  first year. 6 month hold.  Resumed micro--tapering trileptal 2-10% every few months

January 2020  12.74 valium, 4 mg. remeron. Resumed micro-tapering trileptal 5 mg. down to 138 mg. 1/21/20; long hold; cut trileptal to 133 mg. 

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scallywag

Grace: Yes, I started skipping doses inadvertently and then figured "Why not continue?"  When I mentioned to my doctor's replacement (she was on a maternity leave) that I was thinking of discontinuing, he recommended skipping days. Absolutely not what's recommended here!

 

I was at the point where I skipped three days between doses, e.g. take it on Monday, then next on Friday. I started getting mild withdrawal lightheadness and then mild nausea a few hours after taking the next dose. Once  I re-established daily dosing, the nausea went away and most  other symptoms resolved within a month. Insomnia took a bit longer.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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savinggrace

Aah thanks. Skipping doses, while it seems like a faster, easier route eventually catches up wth most.


amitriptyline from 1980-2002, along wi/ intermittent, infrequent use of benzos over 2 decades

2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg

2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )

Micro-tapered valium from 2011-2015. Hit a wall at 12.84. mg.  

Jan. 2015 Tapered 75 mg. trileptal  first year. 6 month hold.  Resumed micro--tapering trileptal 2-10% every few months

January 2020  12.74 valium, 4 mg. remeron. Resumed micro-tapering trileptal 5 mg. down to 138 mg. 1/21/20; long hold; cut trileptal to 133 mg. 

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scallywag

Day 26 on 14.6 mg: I decided to hold for another week. Seems to have been a good choice -- the burning skin on my foot has weakened.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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scallywag

Day 2 on 13.2: I reduced dosage yesterday 10% from 14.6.  I notice that I'm now safely below 25% of my original dosage (60 mg). Definitely worth celebrating the decreased demand on all those liver enzymes that metabolize Cymbalta.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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herewego

So happy for your success scallywag!


Medicine History

June 2011 I was put on 10 mg Olanzapine. I stayed on that for 7 months then went down to 5 mg for 3 months and then went down to 2.5mg and slowly went down to less than .3 every few days. I have tried to come off 4 times, each time getting down to less than .3 before having to go back on at 5mg or 2.5mg. I would cut by 50% each taper. From Jan 2015 to June 2015 I reduced from about 5mg to .3 mg. This last time I went on 2.5 mg last June 2015 until July 2, 2016. July 3, 2016 I went down to 1.25mg - withdrawal hit. Up dosed to liquid 2 mg July 23, 2016.

Medicine Current

2 mg Olanzapine as of July 23, 2016

Supplements

Omega 3 1000mg, Vitamin E 400 UI, Vitamin C 1000 mg Time Released, 200 mg Magnesium Bisglycinate, Multi Probiotic, .25 mg melatonin for 3-5 days as needed

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brassmonkey

Congratulations Scally-- getting down to 1/4 of your original dose is quite a milestone, well done.

 

((((((((((((((((((HUGS)))))))))))))))))


20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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nz11

Way to go SW.


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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tntd

So happy for you. I hope your taper continues to be "uneventful" :)


Buspirone to 40mg, Cold Turkey St. John's Wort 600mg Jan 1, 2016. Cold Turkey Buproprion 150SR June 1 due to severe Akathisia that did not decrease with reducing the dosage.

Clonazepam 1.25mg, started daily liquid micro taper of clonazepam on Nov 1, 2016. Changed to sxs based taper 01/17. Slow and steady

11/10/16 .4104 3X day; 11/17/16 .4091 3x day; 11/28/16 .406 3x day; 12/4/16 .404 3x day; 12/11/16 .4028 3x

01/12/17 .39267 3x day holding; 02/25/17 .3902 3x day, holding. .3823mg 3x day. Tapering weekly at .0019mg, as of 09/21/18 .3542mg 3x day.  1/3/2019 .339mg 3x day. 6/25/19 .3307mg 3x day. 8/24/19 .317mg 3x day 2/13/20 .2886mg 3x day

L-theanine 200 mg, L-glycine 500mg 1x day and 1000mg 1x day, vit C 1000 mg sustained release 2x day. Fish oil 1800mg EPA + DHA. Vit E 400 IU, magnesium in various forms. Inositol 3x a day abt 14mg, Taurine 500mg.

5/20/16 Using Cranial Eletrotherapy Stimulation. 2x day 1 hour at level 1. Using Alph-Stim AID. 

 

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downtongirl

Congratulations...way to go!


1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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elbee

Thumbs up! :)


My suggestions are not medical advice. They are my opinions based on my own experience, strength and hope.

You are in charge of your own medical / healing / recovery choices.

My success story |  My introduction thread

 

ZOLOFT FREE - COMPLETELY DRUG FREE 4/28/2019! - total time on 28+ years

BENZO FREE! 4/7/2018 - total time on 27+ years

REMERON FREE! 12/11/2016 - total time on 15 months

Caffeine & Nicotine Free 2014 / 2015 - smoked for 28 years

Alcohol Free 4/1/2014 - drank for 30 years

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Wishes19

Yay!!


Started on Effexor 75 immediate release 1/2015. Took it once a day, which was the way the doctor prescribed it.  

Stopped Effexor after taking it for 4 months; fast taper over 3-4 weeks;  5/2015-6/2015

Daily "brain zaps" and other neurological symptoms  (vertigo, dizziness, headaches, ticking in left ear) without improvement since stopping Effexor, starting early 6/2015

Brain zaps and other neurological changes for about 16 months, then decided to go back on Effexor, 9/2016

Symptoms disappeared on Effexor 112.5 mg (I ramped up from 37.5 to see what would work)

Slow taper back down.  Brain zaps recurred especially below 75 mg.  

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scallywag

Hi thanks everybody!  It's a cool milestone and also amusing (to me) that I didn't notice it for weeks. :blink:

 

Day 6 on 13.2: no gnus is good gnus.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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LexAnger

Good sign getting down rather quickly without bad bump!

Congrats to the true milestone!


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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manymoretodays

Hi scally.  Stopped by your journal and I will be back.  I especially want to read the links on blue light that you posted.  I am a bit tired now as I just completed a survey link.

 

I am very sorry for your loss of the love of your life........I wish I knew a better way to put that........

 

Congrats from me too on the 13.2mg. success!

 

And thank you.  For being here and for sharing and moderating.

 

mmt


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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scallywag

mmt: Thanks for reading and posting.

 

Day 10 on 13.2 mg: TLDR version: (too long, won't read) It pays to track and rate your symptoms AND to review your notes.
 
Full version:
 
I've been rating symptoms every day but I haven't been paying attention to trends or patterns. I've been feeling a bit "flat" the last week or so. Messing about in my Excel file to open up a symptom row for feeling flat, I noticed something. Just a cursory glance at my notes revealed that I've been rating my lethargy as low-medium for several weeks.
 
Looking at the likely suspects for this and reviewing my calendar, I was at a family celebration in July and indulged in a few glasses of wine. If I recall correctly, I've also been meeting friends for a pint every 2-3 days since. In all probability, booze consumption is not a good idea.
Given what I feel and what I've read about drinking while taking or tapering SSRIs, not to mention the guidance that moderators have given other members, I'm shaking my head and rolling my eyes :rolleyes:  :blush: ... and moving forward ...

 

I'll be testing my hypothesis by holding my dose longer this time, 6 weeks at least, and by abstaining from alcoholic beverages at least until I've been off Cymbalta for a few months.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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savinggrace

Hi Scalliwag,

 

The honesty of this post is so refreshing and even commendable! I can tell you from personal experience, that until 3 years ago I "allowed" myself one drink/ week; maybe 2 if it was a wedding or something. I was tapering faster then as well. (Valium)

 

I think about this a lot as I know alcohol acts on GABA receptors, but it did make tapering easier in the short run. I finally got honest with myself a little more than 3 years ago and have had one drink in 3 1/2 years, (the night my grandson was born). If it is healing we are trying to achieve, it is not going to happen with alcohol. God knows I have wanted to relieve my symptoms w/ alcohol more than once, but is a very slippery slope and with my already troubled liver and family history, I can't risk it. I know I can never drink again. I do miss that social part of life though. I don't miss the alcohol or crave it; just the life that allowed it.

 

Thanks for sharing,

Grace

 

Thanks for sharing,


amitriptyline from 1980-2002, along wi/ intermittent, infrequent use of benzos over 2 decades

2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg

2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )

Micro-tapered valium from 2011-2015. Hit a wall at 12.84. mg.  

Jan. 2015 Tapered 75 mg. trileptal  first year. 6 month hold.  Resumed micro--tapering trileptal 2-10% every few months

January 2020  12.74 valium, 4 mg. remeron. Resumed micro-tapering trileptal 5 mg. down to 138 mg. 1/21/20; long hold; cut trileptal to 133 mg. 

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scallywag

Thanks Grace.

 

You wrote: If it is healing we are trying to achieve, it is not going to happen with alcohol.

 

Two thumbs up. I'd give more if I had 'em. ;)


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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manymoretodays

Hi scallywag,

 

Got my sample size of biotene..........and will continue to do my coconut oil on gums.  Apparently the biotene is fairly cheap and a good mouth rinse as well.  My dentist thought.......sure, could be..........a bit of dry mouth contributing to cavities.  So for today......my dentist and I, well, we are not so old........we are getting wiser.

 

Have a most excellent weekend.  :)

 

mmt


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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scallywag

Day 17 at 13.2: I'm relieved to think about holding and surprised at that relief.  It sure is odd when I think about the urgency I felt 4 months ago. No new symptoms, just the old familiar ones -- occasional sleep problems, the burning on the sole of one foot, some lethargy & lack of motivation. Though less than ideal or "perfect," it's all tolerable and manageable.

 

Counted the beads for 10 more doses. So bleeping tedious, that.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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scallywag

Day 22 at 13.2 mg:  No new symptoms and the previous ones seem to be slowly resolving. Gotta admit it: I like holding at a dose, especially when I've already made up a week's worth of doses. It's as much a "no-brainer" as just peeling open the foil pack of manufactured doses.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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elbee

Good news scallywag!


My suggestions are not medical advice. They are my opinions based on my own experience, strength and hope.

You are in charge of your own medical / healing / recovery choices.

My success story |  My introduction thread

 

ZOLOFT FREE - COMPLETELY DRUG FREE 4/28/2019! - total time on 28+ years

BENZO FREE! 4/7/2018 - total time on 27+ years

REMERON FREE! 12/11/2016 - total time on 15 months

Caffeine & Nicotine Free 2014 / 2015 - smoked for 28 years

Alcohol Free 4/1/2014 - drank for 30 years

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scallywag

Thanks elbee!

 

Day 25 at 13.2 mg:  I'm probably going to stay at this dose for another 10 days, making it 5 weeks at this level rather than 6. I'd like to shift my sleep pattern so that I'm tired earlier and wake up earlier. Today I'll go for an evening walk, stay off the computer, and start a melatonin "reset."

 

Random observation: I was responding to another member's post and instead of entering "Cymbalta," I started to type "Cymptoms."  Made me LOL.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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manymoretodays

Well.......important update on the biotene stuff........ha, ha..........just killing time until I start yet another DVD movie.  This one called "Genius".........the description looked okay.  I finished the sample.  It's alot like this other natural kind called "Jasons"..........it kind of bubbles up when you gargle and swish with it.   Sooooo...........as I am almost out of the sample I went to my regular grocery store to get some more..........it's pricey stuff too.........the biotene...........I guess it's cheaper at Wallmart so will do the Wallmart thing one of these days.  Anyway.........I got a spray instead of the mouthwash and will do that for awhile.  Time will tell I suppose.........if no cavities in a years time I think I can say it's successful.

 

Long walk today with neighbor M.  Nice lady.  New friend and support type person.  She gets all this.........she's a lawyer too.  Always grateful for new friends.

 

Tough day today.  Finished 2 days of training........peer stuff...........and I guess my expectations were too high about the whole thing.  Anyway........now I have to figure out some way to teach it and hopefully find a partner to do so with..........all those employed for money as peers here seemed to be all buddied up already or had the confidence to do the teaching(and then 8 week support group) on their own.........maybe not.........I am not so hard to find if someone wants to do it with me.  Feels like a burden tonight though........how I will meet that commitment...........and I will find a way I am sure...........and do what I signed on to do........to get the CEU's and stay certified.

 

Just jibbering.  Sometimes I get so damn lonely I still cry in short bursts.  My pet cat is here and a fine comfort.  And dear son checked on in.  And I even have a new friend.

 

So that's the biotene update and review.  And a bit more.......

 

manymoretodays

 

I look forward to tomorrow.  :)   Thank you for all your kind help.


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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Mammoth

Hi Scallawag - How's your taper going these past few days? Are you still at 13.2mg? 

 

I have a question for you - also posted on my thread in more detail. When reducing the Cymbalta dose by 10%, is it 10% by milligram or 10% of the beads? Isn't it the same thing? So if I take 90mg, would I not have the compounding pharmacy make a dose of 81mg? So they would reduce the number of beads to get 81mg? 

 

Thanks!

 

Edit: I saw your answer on my thread. Wasn't sure you would see my question, so posted it here as well. Thanks so much!

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scallywag

Day 36 at 13.2 mg:  Saying goodbye to this dose and welcoming a dose reduction to 11.9 mg tomorrow.

 

I'm glad to be solidly out of the wave of low mood and energy that I was experiencing during August. It's an odd thing with my waves of emotional & cognitive symptoms: my recognition occurs once I'm out of it, "Oh, I was in a wave." When I'm in it, it's just the way things are. The paradox of cognitive symptoms: I'm supposed to use cognitive capacities to notice deficiencies in cognitive capacities.

 

In my notes I keep track of the bead count, which has been 119 and starting tomorrow is 107. The actual dose is less than 11.9 mg, maybe 11.5, because I'm choosing to divide by 9 instead of 9.28. I suppose I could have used 10 beads/mg it would make dose estimations easier. Not going to change horses midstream.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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tntd

Good luck Scallywag,

 

I hope this cut goes well for you. I'll be thinking about you.

 

Hugs and healing


Buspirone to 40mg, Cold Turkey St. John's Wort 600mg Jan 1, 2016. Cold Turkey Buproprion 150SR June 1 due to severe Akathisia that did not decrease with reducing the dosage.

Clonazepam 1.25mg, started daily liquid micro taper of clonazepam on Nov 1, 2016. Changed to sxs based taper 01/17. Slow and steady

11/10/16 .4104 3X day; 11/17/16 .4091 3x day; 11/28/16 .406 3x day; 12/4/16 .404 3x day; 12/11/16 .4028 3x

01/12/17 .39267 3x day holding; 02/25/17 .3902 3x day, holding. .3823mg 3x day. Tapering weekly at .0019mg, as of 09/21/18 .3542mg 3x day.  1/3/2019 .339mg 3x day. 6/25/19 .3307mg 3x day. 8/24/19 .317mg 3x day 2/13/20 .2886mg 3x day

L-theanine 200 mg, L-glycine 500mg 1x day and 1000mg 1x day, vit C 1000 mg sustained release 2x day. Fish oil 1800mg EPA + DHA. Vit E 400 IU, magnesium in various forms. Inositol 3x a day abt 14mg, Taurine 500mg.

5/20/16 Using Cranial Eletrotherapy Stimulation. 2x day 1 hour at level 1. Using Alph-Stim AID. 

 

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SkyBlue

 

I'm glad to be solidly out of the wave of low mood and energy that I was experiencing during August. It's an odd thing with my waves of emotional & cognitive symptoms: my recognition occurs once I'm out of it, "Oh, I was in a wave." When I'm in it, it's just the way things are. The paradox of cognitive symptoms: I'm supposed to use cognitive capacities to notice deficiencies in cognitive capacities.

 

 

Hi Scallywag!

 

I'm dropping by to say hi and to follow your thread. 

I totally understand what you wrote earlier on this thread about holding! And about the urgency you felt previously. A few months ago I was thinking, yeah, just keep pushing, get this out of my system -- now I'm actually listening to my body and trying to treat it well! 

 

And yes, recognizing it as a wave *after* the wave has passed. Totally! ! ! ! 

 

I saw on another thread that you mentioned using light therapy. Could you say a little more about it? I have a light box

and starting in the fall going to use it more regularly. 

 

I see you're from Canada -- do you ever watch Corner Gas?? I love that show!


Current: 2019: 0.04 mg Paxil!! This is real. Soon, after taking Paxil my entire adult life, I will be free.

Long story short: After 18 years on Paxil, "tapered" almost completely off over a month, at doctor's advice in July 2015.

Self-care includes magnesium, reasonable exercise, mindfulness, this forum and nutrition/eating enough food.

Also on 100 mg Zoloft unfortunately!! (which I now will have the knowledge to taper properly)

-------------------------------------------------------------------------------------------

Longer version: On Paxil since 1996--anxiety & depression caused by (undiagnosed) under-eating / eating disorder.

Doctor kept increasing dose, up to 60 mg; it never really helped but said it really was the best "med" for me.

Rapid doctor-led "taper" July 2015, down to 5 mg, with Zoloft as a "cross-taper" = Essentially a cold turkey. 

Severe withdrawal but didn't know it; believed it was my "underlying condition," and kept tapering, 5mg to 4 to 3  to 2 to 1.  

Feb 2016: Found SA! As of June 2016, tapering from 1mg at rate of 5-10% per month, Brassmonkey Slide! 

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scallywag

I discussed the light that I use in this post of my intro. I usually sit in front of the light for 20 - 40 minutes in the morning while I eat breakfast and during my read and reply time on SA.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

Share this post


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SkyBlue

Cool, thanks. 


Current: 2019: 0.04 mg Paxil!! This is real. Soon, after taking Paxil my entire adult life, I will be free.

Long story short: After 18 years on Paxil, "tapered" almost completely off over a month, at doctor's advice in July 2015.

Self-care includes magnesium, reasonable exercise, mindfulness, this forum and nutrition/eating enough food.

Also on 100 mg Zoloft unfortunately!! (which I now will have the knowledge to taper properly)

-------------------------------------------------------------------------------------------

Longer version: On Paxil since 1996--anxiety & depression caused by (undiagnosed) under-eating / eating disorder.

Doctor kept increasing dose, up to 60 mg; it never really helped but said it really was the best "med" for me.

Rapid doctor-led "taper" July 2015, down to 5 mg, with Zoloft as a "cross-taper" = Essentially a cold turkey. 

Severe withdrawal but didn't know it; believed it was my "underlying condition," and kept tapering, 5mg to 4 to 3  to 2 to 1.  

Feb 2016: Found SA! As of June 2016, tapering from 1mg at rate of 5-10% per month, Brassmonkey Slide! 

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scallywag

Day 8 of 11.9 mg: No news is good news; boring taper is boring.

 

I had an extreme histamine reaction last weekend to something at my father's house -- nose running like a fire hydrant and puffy, itchy, watering eyes. Good thing it happened on the morning I was leaving. After I left the house, I went immediately to a pharmacy bought an antihistamine, loratadine, and took 1 dose of it. There's no way I could have driven 2-3 hours home with my eyes the way they were. It's taken a week to get to the point where each eye gets itchy only once a day. YIKES! I'll try to figure out what caused this reaction the next time I'm visiting.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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