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Callie

Callie: venlafaxine XR or Effexor XR - hoping to be well someday

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LilBit

I forgot about that... I used that stuff too!  Seemed like it helped but not sure.


Diazepam (Valium) started 20mg daily - July 6 2018 - July 10 2018 PRN, tapered off from Aug 1 to Aug 24 2018, 2mg Sept 6, 2018 - present
Quetiapine (Seroquel) started 50mg Aug 15, 2018 - 22.5mg Oct 14 - Jan 12 2019, 20mg Jan 13 2019 - present
 
Depakote tapered from 1500mg Oct 2 2018 - 0mg as of Dec 7, 2019
Doxepin 10mg Aug 24 2018 - Aug 27 2018
Ambien CR 6.25mg Aug 3 2018 - Aug 10 2018
Trazodone 50mg Nov 7 2017 - Nov 21 2017, 50-100mg  Jul 16 - July19 2018, 100mg Aug 1 - Aug 2 2018
Eszopiclone 3mg nightly Jul 21 - Jul 30 2018
Lorazepam (Ativan) 2mg as needed (nightly) Jul 25 - Jul 30 2018 . 1mg daily Jul 21 - Jul 24 2018 . 1mg every other day Jul 12 - Jul 20 2018.
Temazepam (Restoril) 22.5 mg Nov 2016 - Nov 7 2017, started back Nov 21 2017  tapered down to 7.5mg over a week’s time Jul 13 - Jul 19 2018 then took 30mg on July 20 2018
Mirtazapine 7.5mg July 21 - Jul 25 2018
Paroxetine (Paxil) 10mg 5 days 20mg 2 days  Jun 28 - Jul 4 2018,   Effexor 37.5mg Jun 22 - Jun 28 2018   Lexapro 10mg Jun 14 - Jun 16 2018
Lithium Carbide 900mg Nov 2017 - Jun 27 2018
Klonopin 0.5mg May 21 - Jul 2 2018
Aripiprazole  (Abilify) 5mg Dec 2017 - May 24 2018, 2.5mg May 25 - Jun 6 2018
Latuda 40mg Oct 12 - Oct 24 2017
Lamotrigine (Lamictal) 150mg July 2017 - Oct 2017 tapered off by taking 50mg less every 3 days

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Callie

Okay, I'll try the vaporub route first as that seems to be the least harmful. If it doesn't work, I'll try low dose cold med or let it run its course. Thanks you two! Much appreciated!!

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Callie

LilBit & Rachellynn, Hii!

 

Okay, I tried vaporub for the last two nights, and it did help somewhat. No more crazy runny nose. An annoying cough kept me up last night though, so I decided to go the medicine route. Thanks, LilBit, for bringing dosage amounts to my attention. I was thinking about that, and it dawned on me to get a children's formula. That's what I did. Being extra cautious, I took only half of the recommended dosage. Hopefully, it will help without adding to my WD symptoms. I'll let you know what happens.

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Callie

I've been sick now for 10 days with a nasty head cold. Three days ago I tried a half dose of children's formula cough and cold medicine. Later that day, the skin on my arms went from the usual hypersensitive state to an extreme hypersensitive state. A little while ago, my arms suffered a severe hypersensitivity/parethesia attack so bad that it felt like 10,000 fire ants were crawling on them. I was crying. Could this be from the cold medicine I took? It's been about a year since I suffered so badly with this symptom. I'm also thinking that perhaps my body is trying hard to heal my cold that it's not working on healing my typical WD symptoms. Any thoughts from anyone?

 

As for my head cold, mucus has turned thick and white. I don't know if that's good or bad. I have a blood-red tissue burn under my nose that hurts like heck from constant blowing. My head feels as if it's going to implode and explode at the same time. This is a typical WD symptom of mine, but now it's more intense. My fever is gone though, but my temperature readings have dropped down into the 97-degree range. I will not entertain the thought of seeing doctor at this point. I'm terrified of what they may have in their bag of drugs.

 

Thanks,

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Callie

Does anyone know if taking one half dose of children's formula cough and cold medicine could ramp up WD symptoms? Or could just fighting a head cold do the same? I'd certainly appreciate knowing if anyone has the answer.

 

Thanks,

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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LilBit

I would this it is definitely possible considering how sensitive our systems are in WD.  Even supplements and foods, environmental toxins and chemicals can ramp up symptoms in some people so I can see how cough medicine, even a small dose, could do the same.


Diazepam (Valium) started 20mg daily - July 6 2018 - July 10 2018 PRN, tapered off from Aug 1 to Aug 24 2018, 2mg Sept 6, 2018 - present
Quetiapine (Seroquel) started 50mg Aug 15, 2018 - 22.5mg Oct 14 - Jan 12 2019, 20mg Jan 13 2019 - present
 
Depakote tapered from 1500mg Oct 2 2018 - 0mg as of Dec 7, 2019
Doxepin 10mg Aug 24 2018 - Aug 27 2018
Ambien CR 6.25mg Aug 3 2018 - Aug 10 2018
Trazodone 50mg Nov 7 2017 - Nov 21 2017, 50-100mg  Jul 16 - July19 2018, 100mg Aug 1 - Aug 2 2018
Eszopiclone 3mg nightly Jul 21 - Jul 30 2018
Lorazepam (Ativan) 2mg as needed (nightly) Jul 25 - Jul 30 2018 . 1mg daily Jul 21 - Jul 24 2018 . 1mg every other day Jul 12 - Jul 20 2018.
Temazepam (Restoril) 22.5 mg Nov 2016 - Nov 7 2017, started back Nov 21 2017  tapered down to 7.5mg over a week’s time Jul 13 - Jul 19 2018 then took 30mg on July 20 2018
Mirtazapine 7.5mg July 21 - Jul 25 2018
Paroxetine (Paxil) 10mg 5 days 20mg 2 days  Jun 28 - Jul 4 2018,   Effexor 37.5mg Jun 22 - Jun 28 2018   Lexapro 10mg Jun 14 - Jun 16 2018
Lithium Carbide 900mg Nov 2017 - Jun 27 2018
Klonopin 0.5mg May 21 - Jul 2 2018
Aripiprazole  (Abilify) 5mg Dec 2017 - May 24 2018, 2.5mg May 25 - Jun 6 2018
Latuda 40mg Oct 12 - Oct 24 2017
Lamotrigine (Lamictal) 150mg July 2017 - Oct 2017 tapered off by taking 50mg less every 3 days

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Callie

Hello, Longroadhome!

Symptom Update:  31+ months AD WD

 

*Hot flashes (I prefer to call them heat surges. Two years ago I was having ~40 of these per day. Now it’s down to ~8 per day during a wave and ~3 during a window.)

*Head pressure, neck, and upper back pain/stiffness (I group these together as they are connected for me. I get immediate relief from this by pressing on trigger points in my skull, neck, and upper back. I work on trigger points daily whether symptomatic or not. See next symptom.)

*Knotted and ropey muscles in upper back and neck (Most of the knots, which were palpable, have disappeared. Still have some ropiness. I put two tennis balls in a sock and place them between my upper back and a wall. By rolling or pressing and holding on the tender spots, there’s immediate relief, even in my head. It’s all connected, you know. I use a trigger point massager on my neck. I also roll out my back with a foam roller.)

*Hair loss on scalp (This has stopped and waiting for hair to thicken back up.)

*Body hair loss (Lost most of the hair on my arms. Hair on legs grows s l o w l y. Don’t have to shave as often!!)

*Body shakes and tremors (These started in December 2017 and were pretty bad—rather violent shaking. Nowadays these happen toward the end of a wave and are very mild and short lived.)

*Chills (Get these occasionally and very mild.)

*Nasal congestion and sneezing (Happens only in evening and in morning just after getting up.)

*Throat clearing (still have this)

*Dry cough (still have this)

*Insomnia (Seems to be resolved since sleeping with white noise machine. I hear the crickets all night in my sleep!!)

*Extreme fatigue and lethargy (Days on end when I could not get out of bed. Also, sitting like a statue for hours just staring into space. Completely non-functioning. Homebound. Everything took enormous effort. This has resolved. Hope like heck it never comes back.)

*Stupor-like Attacks (Could only open eyes half way, if at all. Mouth dropped open and stayed that way. Extreme weakness. Was incapacitating. Must have looked like I was brain damaged. Could not stop moaning. Felt like I was dreaming but awake. Thought for sure that I was dying. Very weird. This has resolved for the most part. Very mild and short lived during waves now.)

*Head and chest throbbing sometimes. (Still have this but is mild compared to before when it was a hard pounding sensation.)

*Clicking sounds in both ears (Still get this occasionally. Tinnitus perhaps? Once read on a website that this indicates brain damage.)

*Creepy, bizarre, horrific, indescribable sensations throughout head and body (Still have these but not as debilitating as before. However, they do intensify during waves.)

*Gait (Sometimes appearing to be drunk as I cannot walk a straight line. Happens very rarely now.)

*Queasiness, lightheadedness, and dizziness (Occurs sometimes when getting out of bed in the morning.)

*Constipation (No longer a symptom. This stopped about 10 months ago.)

*No sensations for basic bodily needs (i.e. hunger, sleep, bathroom needs, or thirst. These have all returned. Thirst was the last one to come back.)

*Extreme weight loss/muscle loss (Literally was skin and bones. Now back to normal weight, so this has resolved.)

*Labored breathing or rapid, shallow breathing (Air hunger perhaps? Still have this during waves.)

*Biting inside of cheeks, tongue, and lips when eating (Deep wounds. I think this has to do with lack of coordination. Doesn’t happen anymore, so resolved.)

*Loss of sense of taste at times or hypersensitive to taste (Resolved)

*Yawning (Resolved)

*Sense of smell (Couldn’t tolerate fragrances of any kind. Resolved)

*Twitching (Mild around mouth and eyelids)

*Muscle cramps (Feet and lower legs)

*Weakness/impaired stamina (Still experience this when I overdo it.)

*Stabbing with knife sensations all over (These went away but now occasionally have sensation of being pricked with a few thick needles along my mid spine.)

*Pinching sensation on back of left arm (Was quite a nuisance, but now resolved)

*Urine output (Seems to be greater than liquids taken in. Still struggle with this.)

*Numbness in tip of little finger, left side (Still have this but it comes and goes.)

*Cold-to-the-touch patches of skin that migrate around my body (Still have this.)

*Skin issues as follows:

**Itching (Insatiable itching subsided months ago. Still have itching that comes in waves.)

**Sparking sensations on arms (Went away months ago.)

**Burning (Intensity has eased but still very uncomfortable, especially on arms.)

**Stinging (Intensity has eased but still very uncomfortable, especially on arms.)

**Feeling that arms are wrapped in cactus plants (Gone)

**Frozen to the bone (Felt this in my arms and hands. Now occasionally, only my hands. Use an electronic hand warmer to ease this symptom.)

**Light touches cause tickly sensation that goes directly into my head.

**Formication (Fire ants on skin sensation and worms crawling just beneath skin. No more of this. It’s resolved.)

**Hypersensitivity (Mostly affects fingers, hands, and arms. Extremely smooth, textureless things feel normal. Anything with the slightest texture feels like sandpaper, burlap, etc. It’s like my sense of touch is enormously amplified and distorted. That explains it better than the word “hypersensitivity”. Another way to describe it is like having no skin, just raw, exposed nerves. Sometimes I think that the tactile sensory filtering gates in my brain are always open.)

**Rashes/Skin Eruptions (Easing up on these. Hives. Single, itchy eruptions that look just like mosquito bites. Rash erupted in 2018 on skin that had received radiation therapy over 20 years ago. This rash completely disappeared but came back recently with less intensity. It’s disappearing again. Two very rough textured rashes. One on my arm is gone. One on leg is still there. These last for months.)

**Fingers are most often pruny looking

**Tight looking skin on palms of hands

**Dermatographia

**Some things like dental floss and eating utensils leave red indents on my fingers and palms that last for hours.

 

I have and have had more symptoms than these. I just can’t remember or think of them all. Regarding emotional symptoms, I remember having anxiety early in WD. That went away. I do not have depression either. I’m doing okay emotionally.

 

I still experience waves and windows. I am nowhere near healed, but I know I’m getting there. It’s like there’s this thick veil between me and total recovery. There are a lot of tiny holes in that veil though; and someday that veil will completely disintegrate. I’m sure of it. I have hope. Patience, perseverance, acceptance, and time will help us all heal.

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Longroadhome

Can’t remember if I have replied to this post already but thanks for taking the time to  detail all of your symptoms Callie it really helps. 

Great that you are healing you have been through so much and show great strength of character . 

It really does seem that people see marked difference from two years onward if they don’t mess with meds. 

You had sooooo many symptoms do you think this was because of fast taper ? 

Why did you change meds from 2004 to 20017 was it due to poop out ? 

Keep in touch

LRH 


October 2004 -  October 2018 Paxil 20mg

October 2018 - November 2018 15mg Paxil 

Nov 2018 -  2x50 mg Pregabalin to help with Paxil WD

December 2018 - January 2019 10mg Paxil  

January 2019 - February 2019  7.5mg Paxil crashed 

February 2019 - 8.5mg Paxil

August 2019 - stopped both meds for 2.5 days meltdown 

August 2019 -  daily: 50mg Pregabalin April 2020 45mg May 40mg June 35mg, beg July 30mg, end July 25mg, Aug 24mg

Nov 2019 - 8mg Paxil, March 2020 7.2mg April 6.5mg May 5.9mg June 5.4mg July 4.8mg

 

these dates are approximate 

 

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Callie

Hello, Longroadhome!

 

I apologize for my late response.

 

On 12/1/2019 at 8:32 AM, Longroadhome said:

You had sooooo many symptoms do you think this was because of fast taper ? 

 

Yes, I’m pretty sure that’s the reason, plus Venlafaxine XR (Effexor) is one of the worst to be on and really hard to get off of due to its short half-life. At least, that’s what I’ve read. Here’s how the doctor tapered me off:

 

            Trazodone 100 mg. (Had taken for 13 years, 2004-2017):  No taper, cold turkey

            Buspirone 30 mg. (Had taken for 13 years, 2004-2017):  2-week taper

            Lexapro 20 mg. (Had taken for 6 years, 2004-2010) Cold turkey?

            Abilify 5 mg. (Had taken for 7 years to boost effects of Venlafaxine XR, 2010-2017):  No taper, cold turkey

            Venlafaxine XR 225 mg. (Had taken for 7 years, 2010-2017):  7-week taper

 

I was off all drugs in less than two months. I found out too late about proper tapering, so I could not go back on them and do it the right way. I don't know if it would have made a difference anyway.

 

 

On 12/1/2019 at 8:32 AM, Longroadhome said:

Why did you change meds from 2004 to 20017 was it due to poop out ? 

 

Yes, it was most likely poop out. I was being bullied at work and wasn’t coping with it well enough, so my doctor changed my prescription in 2010. It was an abrupt switch from Lexapro to Venlafaxine XR and Abilify.

 

Longroadhome, how are you doing? Please let me know.

 

Callie

(aka dupedbydoctors)


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Ryguy
On 2/12/2018 at 11:58 PM, JanCarol said:

Hey Callie - 

 

While I was here I just reviewed your thread - and really - really - really - 

 

You went off 4 drugs just 9 months ago.  Two of which - Effexor and Abilify - are absolute demons.  These and the Trazadone hit multiple receptors, so - it's no wonder your system is in an uproar.

 

So this is to encourage you - an "uproar" is quite normal for recovering this drugging and rapid withdrawal (Really, cold turkey, or fast taper).

 

All of the symptoms you report - are not nutritional deficiencies, they are normal withdrawal.  It's sad, but true.  These things you are experiencing - many others have experienced before you!  

 

There is a Delayed Onset of Withdrawal Symptoms - so 9 months out is perfectly normal.  (notice I'm using the word "normal" a lot?)

 

Try this video, it explains the way that your systems repair...

Healing from Antidepressants - Patterns of Recovery (by Toxic Antidepressants)  (just 4 minutes long)

 

What happens is - your endocrine, digestion, muscular, and nervous systems have all been discombobulated (that's a technical term).  When you are having symptoms, it means that system is repairing.  So when you are having hot flushes, or numbness, or muscular disruption, digestive troubles - any number of body symptoms and emotional symptoms too - this is your body repairing that system.

 

You can say, "I am having symptoms," or you can say, "I am healing."  Which do you prefer?

Many people are helped by seeing a list of possible symptoms. Additionally, you can print out several of these to track your progress over the weeks.  When I was fully drugged, I had 29 of these symptoms, and at last check it's down to about 12.  Here is the list:  Dr. Joseph Glenmullen's Most Common symptoms of Withdrawal

 

* * *
Later - I thought of you as my "what's next" took over this post, and I had to abandon it.

 

I took my walk.  I went 20 minutes!  And a big hill!  Next, I got into a cool mag bath (remember it's stinking hot here), and soaked for 20 minutes.

While I was there, I thought - what's next? and washed my hair.

After getting out of the mag bath - omg - back feels better!  When I woke up today I thought - no way was I going to make it through the day without pain drugs - but - here I am, almost dinner time, and drug free.  I even felt well enough to make a fresh juice as a digestive before dinner!

 

Having a large tool kit helps with "what's next."

True confessions:  As I was in the bath, I resented it.  (I'm being honest here).  I kept thinking about things I wanted to say to you, to this friend and that friend - I wanted to be in here, in the cool office talking to you.  But that wasn't on my "what's next" plan.  So I told myself "Later," and here I am writing to you again!

 

That's another key to "what's next," is sometimes things have to be told, "LATER."  In telling a thing that it's "Later," then you can settle back into the present moment, and "what's next."

 

* * *

The other thing I want to ask - even though all of your symptoms are normal for withdrawal - is how your doc checked thyroid.  99% of docs just check TSH and then say, "You're fine," but there are a number of conditions which show up in a more detailed profile, including Free T3, Free T4, Reverse T3.  TSH is measuring a pituitary hormone, and is not measuring the thyroid at all.  I'm not suggesting you have a thyroid problem - I don't think you do.  I believe you have withdrawal.

What I am suggesting is - when you get labs done - get a copy of your lab reports and start a file at home so that you can track your own bloodwork.  You can use your labs to start educating yourself about your health.  While you are in withdrawal, these numbers may be all over the place - but as you start moving into health, getting your labs and learning about them is a key piece to taking charge of your own health.  It annoys doctors,  they don't want you to be the expert about yourself - but some doctors appreciate that you are making an effort to get informed.  This practice has come in handy for me this past year, as I have started tracking cardiology reports, labs and performance.

 

Okay!  What's next?  Supper's on!

I hope you see the sun today!

 

He doesn’t mention skin problems in his withdrawals oddly enough


Was put on SSRIS at age 18, came off at 20 due to side effects, have been in withdrawal ever since, am 27 now. 7 years of protracted withdrawal. have not been able to work. I didnt taper, i basically came off cold turkey in less than a month....no one informed me of anything, including protracted withdrawal . my symptoms include absolutely everything you can imagine, you name it, i have it 

 

 

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JanCarol
9 minutes ago, Ryguy said:

He doesn’t mention skin problems in his withdrawals oddly enough

 

Glenmullen's list is by no means complete or comprehensive.  It is a list of the most common symptoms.

Skin symptoms are extremely common - from severe cystic acne, to dry flaky skin, to itchy skin. . . it, too, is another system which needs to re-regulate.


"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Ryguy
1 hour ago, JanCarol said:

 

Glenmullen's list is by no means complete or comprehensive.  It is a list of the most common symptoms.

Skin symptoms are extremely common - from severe cystic acne, to dry flaky skin, to itchy skin. . . it, too, is another system which needs to re-regulate.

Thanks for the prompt reply and thanks for confirming that , appreciate it , he should add that in since it’s not only common but very distressing 


Was put on SSRIS at age 18, came off at 20 due to side effects, have been in withdrawal ever since, am 27 now. 7 years of protracted withdrawal. have not been able to work. I didnt taper, i basically came off cold turkey in less than a month....no one informed me of anything, including protracted withdrawal . my symptoms include absolutely everything you can imagine, you name it, i have it 

 

 

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sunnysideup69
14 hours ago, JanCarol said:

 

Glenmullen's list is by no means complete or comprehensive.  It is a list of the most common symptoms.

Skin symptoms are extremely common - from severe cystic acne, to dry flaky skin, to itchy skin. . . it, too, is another system which needs to re-regulate.

 

Hi, just popping in here to say, thanks @JanCarol. This is helpful. I like Ruyguy was noticing that skin symptoms are not on Glenmullens list, so this is helpful to know. I did a cold switch from Cit to Ven last year and, 3 months after quitting the Cit, my skin went bonkers. I've gone from clear skinned to spotty faced with eczema. Pretty sure it's from cessation of the Cit as it started to happen bang on three months after stopping it. Guess it's another case of accepting and letting time pass.


January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also currently reducing caffeine, aiming to get off.

 

 

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Longroadhome
On 12/7/2019 at 2:32 PM, Callie said:

Hello, Longroadhome!

 

I apologize for my late response.

 

 

Yes, I’m pretty sure that’s the reason, plus Venlafaxine XR (Effexor) is one of the worst to be on and really hard to get off of due to its short half-life. At least, that’s what I’ve read. Here’s how the doctor tapered me off:

 

            Trazodone 100 mg. (Had taken for 13 years, 2004-2017):  No taper, cold turkey

            Buspirone 30 mg. (Had taken for 13 years, 2004-2017):  2-week taper

            Lexapro 20 mg. (Had taken for 6 years, 2004-2010) Cold turkey?

            Abilify 5 mg. (Had taken for 7 years to boost effects of Venlafaxine XR, 2010-2017):  No taper, cold turkey

            Venlafaxine XR 225 mg. (Had taken for 7 years, 2010-2017):  7-week taper

 

I was off all drugs in less than two months. I found out too late about proper tapering, so I could not go back on them and do it the right way. I don't know if it would have made a difference anyway.

 

 

 

Yes, it was most likely poop out. I was being bullied at work and wasn’t coping with it well enough, so my doctor changed my prescription in 2010. It was an abrupt switch from Lexapro to Venlafaxine XR and Abilify.

 

Longroadhome, how are you doing? Please let me know.

 

Callie

(aka dupedbydoctors)

Hi Callie 

how are you doing ? 
I’ve  just read all of your thread and glad I have as I see for many many months you felt you were getting worse . 
well that’s how I feel at the moment and I’m still on a low dose of two meds . The pregabalin was given to help with the side affects of tapering of Paxil. 
I’m  thinking of starting to taper slowly as I think my symptoms will remain throughout anyway as I started off in poop out . 
my hives are still with me. Though more tolerable and not as bad some days . However I’m getting lots of head pressure really weird dizzy sensations that don’t go away even when I lie down . It lasts all day every day did you have this ?
Thank you for your reply in December and a belated 

Happy New Year to you !!!  
 

you’re really starting to heal Callie I can see that from reading through your thread 

that’s fantastic well done you show so much courage ! 

 

did you have support from family and friends ? 
 

take care 

LRH 
 


October 2004 -  October 2018 Paxil 20mg

October 2018 - November 2018 15mg Paxil 

Nov 2018 -  2x50 mg Pregabalin to help with Paxil WD

December 2018 - January 2019 10mg Paxil  

January 2019 - February 2019  7.5mg Paxil crashed 

February 2019 - 8.5mg Paxil

August 2019 - stopped both meds for 2.5 days meltdown 

August 2019 -  daily: 50mg Pregabalin April 2020 45mg May 40mg June 35mg, beg July 30mg, end July 25mg, Aug 24mg

Nov 2019 - 8mg Paxil, March 2020 7.2mg April 6.5mg May 5.9mg June 5.4mg July 4.8mg

 

these dates are approximate 

 

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Callie

Hello, Longroadhome!

And a belated Happy New Year to you as well! Almost time to say Happy Valentine’s Day!

You mentioned that you’re thinking of tapering slowly. Have you gone ahead with it? From my experience, I know that a fast taper sends a person right into torturous hell, so I would recommend to anyone to go as slow as molasses, a turtle, a snail. If I had known 34 months ago what I know now and could have found a knowledgeable doctor, I’d still be tapering today. I do read a lot about people suffering through their tapers, so the only thing I can conclude about that is perhaps the reduction schedule is incorrect. I could be wrong about that; I’m no expert on this, for sure.

You mention three symptoms that you are struggling with, among others, I’m sure:  Hives, head pressure, and dizziness. It’s taken so long for me to respond to you—and I do apologize for that—that those symptoms may have already decreased in intensity for you or have vanished completely, which I do hope the latter. As for hives, I had them, too. They’d pop up and then disappear in 12-hours time. I can’t remember the last time I had an episode of them, so I’m hoping it’s safe to say that I’m done with that symptom. Because it resolved for me, it will definitely resolve for you and for anyone else that’s experiencing them. I only had them once in my life before—long before having taken ADs—and that was the day after I had gotten a tetanus shot. I, therefore, can conclude that the hives I had gotten after stopping ADs, were definitely related to AD WD. Just be patient. They’ll go away.

Regarding head pressure…Yes, me, too. I worked on that for months and hopefully can say that that’s pretty much in my past as well. I don’t understand how or why, but these drugs/chemicals do affect muscles. However, within the muscles are trigger points, pressure points, nerve bundles, tender spots, whatever you want to call them. For me, it was those in the scalp/skull, face, neck, and upper back (shoulders and shoulder blades) that were associated with my head pressure. The muscles in the aforementioned areas spasm or tighten like a vice. I would just feel around my head, face, etc. for tender spots—in the skull and face often found in divots —and press on them for a minute or two or roll a couple of tennis balls in a sock between my upper back and a wall. The head pressure would be relieved immediately. It would always come back after a while, but I was persistent in pressing the spots all over my upper body, often three or four times daily. Knock on wood, I haven’t had head pressure for some time now. I still experience only lower left neck and left upper shoulder pain on occasion. Luckily, I found the spots that affect those areas and press on them or massage them. That would be the scalene muscles in the neck and the area just below and along the left collar bone. So I must say that for me, muscle spasms were the cause of my head pressure. I don’t know if that is the case for you or anyone else. Whatever helps, I certainly hope that you and anyone else that suffers from that debilitating symptom finds a coping mechanism and, in turn, quick relief.

Dizziness, well, yes, dizziness… I had dizziness and nausea early on and it just resurfaced a couple of months ago. I have it now sometimes upon getting out of bed in the morning. It’s like having morning sickness, but no, I’m too old for that! It doesn’t last long at all. Sometimes I get dizzy, too, if I change positions too quickly. I recover from it fast though. The only thing I can think is that our inner ears must be affected at times in WD. This is just another symptom that will resolve in time, I'm sure. I must say that I am sorry to hear that you have it most often during the day and hope with all my heart that you recover from it quickly.

You had asked if I get support. With the exception of my husband, yes, everyone in my life is extremely understanding and kind. I hope those that surround you are just as supportive. Remember, you have everyone here on SA, too.

Well, I’ll let your eyes rest for now! You take care of yourself, LRH!! I’ll be thinking of you.

Callie

(aka dupedbydoctors)


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Ryguy
On 1/22/2020 at 7:21 AM, JanCarol said:

 

Glenmullen's list is by no means complete or comprehensive.  It is a list of the most common symptoms.

Skin symptoms are extremely common - from severe cystic acne, to dry flaky skin, to itchy skin. . . it, too, is another system which needs to re-regulate.

You say “extremely common”, which i believe must be true if im going through these skin issues during withdrawal, but there doesnt seem to be any mentioning of it on this site, not as much as i would think, where did you get that data from? 


Was put on SSRIS at age 18, came off at 20 due to side effects, have been in withdrawal ever since, am 27 now. 7 years of protracted withdrawal. have not been able to work. I didnt taper, i basically came off cold turkey in less than a month....no one informed me of anything, including protracted withdrawal . my symptoms include absolutely everything you can imagine, you name it, i have it 

 

 

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JanCarol

Hey RyGuy - 

 

2 hours ago, Ryguy said:

where did you get that data from? 

 

It's spattered here and there over the site.

The people I've seen having trouble are the ones who are on drugs which hit multiple receptors, especially H1 (histamine).  These are the neuroleptics like Seroquel and Zyprexa.  Can also occur with others which are multi-receptor drugs.

But Effexor - hits on SSRI and SNRI and has a cascade which is similar to Seroquel in that, at different doses it has different effects.  Strangely, I haven't heard about this with Pristiq, which is Effexor's granddaughter. (desvenlafaxine) - maybe it's the "time release" preparations which help it a bit?

There's one member in particular, in NZ, who suffered from severe skin distress as he lowered his Effexor dose.  

  

And he's not the only one, just a prominant one.  There was little we could do to soothe his skin as he withdrew, and I haven't checked in with him in awhile to see how he's going. . . 

I hope you see the sun today!


"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Rozon1

@Callie if you don't mind me asking, how is your quality of life now compared to 30 months + ago? Are you better than you were? Could use some words of encouragement! 


Example:

2018 - Started Effexor 37.5 in Janurary of 2018
2019 January, 2nd  - Cold Turkeyed from Effexor for 3 days. Reinstated on the third day, then stabilized(It took 3 months to stabilize)

2019 June - I switched from Effexor instant release to Extended Release 37.5 for better tapering. I tapered to 50% in 4 weeks before reinstating my dosage back to 37.5(due to withdrawls). I waited 2 months to stabilize but never did at 37.5

2019 September - continued to taper in to 25% on extended release

2019 October - continued to taper to half of the beads(18.75mg)... WIthdrawls were so bad I tried switching back to the instant release at the same dosage(18.75mg)

2019 November 28th - Discontinued effexor at 18.75 without anymore tapering.

 

2020 January - Just can't sleep, have constipation, low libido and still lack of full emotion

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Ryguy
53 minutes ago, JanCarol said:

Hey RyGuy - 

 

 

It's spattered here and there over the site.

The people I've seen having trouble are the ones who are on drugs which hit multiple receptors, especially H1 (histamine).  These are the neuroleptics like Seroquel and Zyprexa.  Can also occur with others which are multi-receptor drugs.

But Effexor - hits on SSRI and SNRI and has a cascade which is similar to Seroquel in that, at different doses it has different effects.  Strangely, I haven't heard about this with Pristiq, which is Effexor's granddaughter. (desvenlafaxine) - maybe it's the "time release" preparations which help it a bit?

There's one member in particular, in NZ, who suffered from severe skin distress as he lowered his Effexor dose.  

  

And he's not the only one, just a prominant one.  There was little we could do to soothe his skin as he withdrew, and I haven't checked in with him in awhile to see how he's going. . . 

I hope you see the sun today!

Interesting, yeah mines been bad for the entire 7 years of withdrawal....


Was put on SSRIS at age 18, came off at 20 due to side effects, have been in withdrawal ever since, am 27 now. 7 years of protracted withdrawal. have not been able to work. I didnt taper, i basically came off cold turkey in less than a month....no one informed me of anything, including protracted withdrawal . my symptoms include absolutely everything you can imagine, you name it, i have it 

 

 

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Rozon1

oops, can a mod delete this post as its a second post? Sorry


Example:

2018 - Started Effexor 37.5 in Janurary of 2018
2019 January, 2nd  - Cold Turkeyed from Effexor for 3 days. Reinstated on the third day, then stabilized(It took 3 months to stabilize)

2019 June - I switched from Effexor instant release to Extended Release 37.5 for better tapering. I tapered to 50% in 4 weeks before reinstating my dosage back to 37.5(due to withdrawls). I waited 2 months to stabilize but never did at 37.5

2019 September - continued to taper in to 25% on extended release

2019 October - continued to taper to half of the beads(18.75mg)... WIthdrawls were so bad I tried switching back to the instant release at the same dosage(18.75mg)

2019 November 28th - Discontinued effexor at 18.75 without anymore tapering.

 

2020 January - Just can't sleep, have constipation, low libido and still lack of full emotion

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Callie

Hi, Ryguy!

 

 

14 hours ago, Ryguy said:

You say “extremely common”, which i believe must be true if im going through these skin issues during withdrawal, but there doesnt seem to be any mentioning of it on this site, not as much as i would think

 

You'll find a whole heck of a lot about skin issues on this site that might be helpful to you. Try this:

 

Go to Google (other search engines don't seem to work for this). Key in:   site:survivingantidepressants.org skin

 

I found this is the best way to find specific information here. Good luck with it, and I hope you find something pertinent to your symptoms that will be of help to you.

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Ryguy
11 hours ago, Callie said:

Hi, Ryguy!

 

 

 

You'll find a whole heck of a lot about skin issues on this site that might be helpful to you. Try this:

 

Go to Google (other search engines don't seem to work for this). Key in:   site:survivingantidepressants.org skin

 

I found this is the best way to find specific information here. Good luck with it, and I hope you find something pertinent to your symptoms that will be of help to you.

 

Callie

Thanks!!


Was put on SSRIS at age 18, came off at 20 due to side effects, have been in withdrawal ever since, am 27 now. 7 years of protracted withdrawal. have not been able to work. I didnt taper, i basically came off cold turkey in less than a month....no one informed me of anything, including protracted withdrawal . my symptoms include absolutely everything you can imagine, you name it, i have it 

 

 

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Altostrata

Hello, @Callie, how are you doing?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Longroadhome

@Callie

 

hi there it’s Longroadhome 

how are you you haven’t posted in a while and I was wondering how you are doing ? 
Your posts have helped me  over time and I’m really hoping you are continuing to improve x 


October 2004 -  October 2018 Paxil 20mg

October 2018 - November 2018 15mg Paxil 

Nov 2018 -  2x50 mg Pregabalin to help with Paxil WD

December 2018 - January 2019 10mg Paxil  

January 2019 - February 2019  7.5mg Paxil crashed 

February 2019 - 8.5mg Paxil

August 2019 - stopped both meds for 2.5 days meltdown 

August 2019 -  daily: 50mg Pregabalin April 2020 45mg May 40mg June 35mg, beg July 30mg, end July 25mg, Aug 24mg

Nov 2019 - 8mg Paxil, March 2020 7.2mg April 6.5mg May 5.9mg June 5.4mg July 4.8mg

 

these dates are approximate 

 

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Callie

Hello, Altostrata and Longroadhome!

 

I am doing well, and thank you for asking! I expect to be fully recovered in a couple more years and so look forward to the day when I can write my success story. Meanwhile, I still work on tolerating daily the few symptoms I have left. The most predominant is tactile hypersensitivity of arms and hands. It used to feel like my sense of touch was magnified a gazillion trillion times but now only about a million times normal, so I'm getting there.

 

I don't post often because I am so busy now catching up on lost time. I was totally non-functional at one point and for quite a while. Today I am just so grateful for the miracle of healing and to be functioning at a normal level.

 

So again, thank you for your concern and best wishes to both of you and to all SA members.

 

Callie


Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Longroadhome

That’s great news Callie and proof everyone heals despite how we come off these drugs and how many we were on. 
 

Happy healing I look forward to reading your success story in the near future . 


October 2004 -  October 2018 Paxil 20mg

October 2018 - November 2018 15mg Paxil 

Nov 2018 -  2x50 mg Pregabalin to help with Paxil WD

December 2018 - January 2019 10mg Paxil  

January 2019 - February 2019  7.5mg Paxil crashed 

February 2019 - 8.5mg Paxil

August 2019 - stopped both meds for 2.5 days meltdown 

August 2019 -  daily: 50mg Pregabalin April 2020 45mg May 40mg June 35mg, beg July 30mg, end July 25mg, Aug 24mg

Nov 2019 - 8mg Paxil, March 2020 7.2mg April 6.5mg May 5.9mg June 5.4mg July 4.8mg

 

these dates are approximate 

 

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