Moderator Emeritus WiggleIt Posted April 28, 2019 Moderator Emeritus Share Posted April 28, 2019 Hello Wellbutrinsucks, Just wanted to check in and see how you are. It's been a while since we've chatted, but I've still not lost hope about your potential for improvement, especially after reading the answers you provided. Any kind of twitch is terrifying, but I'm so relieved to hear that your visible ones are not all day everyday; it's very hopeful that the visible ones are not constant. Heck, even the visible ones go away with time, as do the internal ones. The jerking before sleep goes away with time, too. Sleeping slightly propped up with two pillows instead of one can help cope with the nighttime jerking. Please let us know what's up on your end when you have a minute. Best, Wiggle *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
Wellbutrinsucks Posted May 20, 2020 Author Share Posted May 20, 2020 I had to take a break from this site because reading everyone’s stories has been heartbreaking. I’m almost three years out from the initial drug interaction and almost two and half years from the disasterous muscle twitching and yet still, no relief in sight. In fact, it’s gotten worse. From the time I wake up until the time I go to sleep, my legs are either “buzzing” or twitching. I’ve lost hope in any recovery. I just want to feel okay again, but it doesn’t look like that will ever happen. March 2016: Strattera June 2016: Nothing October 2016-April 2017:Wellbutrin SR Mid-March 2017-March 2017 Adderall (9 days) April 2017: Wellbutrin and Ritalin (7 days) Mid-April to mid-June: nothing early June 2017: Wellbutrin XL mid-June 2017: Wellbutrin XL, Adderall, and Hydrochlorothiazide (blood pressure); took for two days Late August: Allegra for two days, then Propranolol Link to comment
Armorall Posted May 22, 2020 Share Posted May 22, 2020 So, hold on,when you go to sleep, does it stop? Isn't that improvement? 3/21/19 started Bupropion XL 150 mg 3/21/19 started Risperidone 2mg 7/7/19 start Abilify half dose 5 mg. discontinue Risperidone 7/9/19 full dose Abilify 10 mg 7/29/19 discontinued Abilify due to panicky side effects 8/2/19 Began Latuda 20 mg 8/5/19 discontinued Latuda due to similar side effects 8/10/19 discontinued Bupropion after realizing it was causing the insomnia From 8/10/19 no drugs whatsoever Currently taking vitamin C, D, E, a probiotic and fish oil. Message me here if you want: https://www.facebook.com/morra.lal.3/ I've been getting a lot of fake friend requests, so please send a message before friend requesting me, thank you! Link to comment
Wellbutrinsucks Posted May 22, 2020 Author Share Posted May 22, 2020 I don’t feel anything when I sleep, but obviously it’s a problem throughout the day. And since it’s been better before, I wouldn’t call any of this “improvement”. March 2016: Strattera June 2016: Nothing October 2016-April 2017:Wellbutrin SR Mid-March 2017-March 2017 Adderall (9 days) April 2017: Wellbutrin and Ritalin (7 days) Mid-April to mid-June: nothing early June 2017: Wellbutrin XL mid-June 2017: Wellbutrin XL, Adderall, and Hydrochlorothiazide (blood pressure); took for two days Late August: Allegra for two days, then Propranolol Link to comment
Armorall Posted May 22, 2020 Share Posted May 22, 2020 Ok, I just remember from reading your thread that it used to bother you through the night so you had to sleep upright, so I thought that it was an improvement. 3/21/19 started Bupropion XL 150 mg 3/21/19 started Risperidone 2mg 7/7/19 start Abilify half dose 5 mg. discontinue Risperidone 7/9/19 full dose Abilify 10 mg 7/29/19 discontinued Abilify due to panicky side effects 8/2/19 Began Latuda 20 mg 8/5/19 discontinued Latuda due to similar side effects 8/10/19 discontinued Bupropion after realizing it was causing the insomnia From 8/10/19 no drugs whatsoever Currently taking vitamin C, D, E, a probiotic and fish oil. Message me here if you want: https://www.facebook.com/morra.lal.3/ I've been getting a lot of fake friend requests, so please send a message before friend requesting me, thank you! Link to comment
Wellbutrinsucks Posted September 24, 2020 Author Share Posted September 24, 2020 No I wouldn’t call it an improvement. Now my twitching feels different and I’m scared it could be something serious. Has this happened to anybody? Is it normal to still have twitching and jerks three years out? March 2016: Strattera June 2016: Nothing October 2016-April 2017:Wellbutrin SR Mid-March 2017-March 2017 Adderall (9 days) April 2017: Wellbutrin and Ritalin (7 days) Mid-April to mid-June: nothing early June 2017: Wellbutrin XL mid-June 2017: Wellbutrin XL, Adderall, and Hydrochlorothiazide (blood pressure); took for two days Late August: Allegra for two days, then Propranolol Link to comment
Jayy Posted July 16, 2021 Share Posted July 16, 2021 On 2/6/2019 at 10:43 AM, Wellbutrinsucks said: I’m also starting to get ringing in my ears again. It’s only in my left ear so far, but the sound is very high pitched and is occurring more frequently. I hope I don’t have tinnitus for the rest of my life. Ugh I knew 2019 was gonna suck. How is your Tinnitus today? Did it ever go away? Im struggling with 4 months off pristiq and still have a constant high pitch ringing that is very aggravating to deal with and it is gives me panic attacks constantly through the night. November 11th 2020 - Pristiq 50mg November 25th 2020- Cold Turkey February 28th 2021- Pristiq 50mg March 25 2021 Cold Turkey Pristiq Caused Permanent tinnitus from brain damage. Constant severe tinnitus for 9 months straight. All from taking pristiq for 24 days. Link to comment
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