thelegend Posted July 7, 2020 Author Share Posted July 7, 2020 Anyone with some insight into this? “I do have a weird new symptom, like a warm feeling that runs down my upper leg on my right side. Happens a few times a day, feels like I peed my pants, really odd. Not sure if anyone else has had this, if this is WD related or something else.” @Gridley or @brassmonkey ever heard of this? Do you think it is WD related or something else? April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Moderator brassmonkey Posted July 7, 2020 Moderator Share Posted July 7, 2020 These drugs target the nervous system and cause all sorts of sensations. Hot and cold flashes, things crawling on your body, itching, phantom smells and sensations, flashes of light, I suspect this is just your nerves making some adjustments. Sounds rather uncomfortable though. With luck it should clear up in a few days. 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
Tom37 Posted July 7, 2020 Share Posted July 7, 2020 Try not to stress about it as just makes things harder.....I’ve had so many weird sensations I’ve lost count. It’s just some part of the nervous system not too happy which creates the symptom but it will go. 20mg Lexapro 2007 10mg Lexapro 2012 Started tapering approx (October 2017) 12 months ago from 10mg to 9mg then 8 then 7 then 6 then 5 then 4 then 3. Held for approx 4 to 6 weeks min on each reduction. Hit severe symptoms (started 7th Nov) after dropping to 3mg. Dropped to 3mg approx 22nd October. Back to 4mg (7th November) and stabilising. Current symptoms started 23rd November 2018 Used diazepam (2018) 10mg 10th Nov, 5mg 11th Nov, 2.5mg 12 Nov, 2mg 13th Nov. Used diazepam 10mg 24th Nov, 7.5 25th Nov and 5mg 26th November 2018 Link to comment
sunnysideup69 Posted July 8, 2020 Share Posted July 8, 2020 @thelegend The backward steps are all part of the process. I've been stabilizing for eleven months now. Sometimes this game goes on longer than we could ever anticipate. I thought I was done with windows/waves at the beginning of Feb and then had a few wonky months. Been steadily improving since May but still get waves, in a slight one now since the weekend. We will stabilise. January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg March 2016 used MDMA triggered setback April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg May 2018 used MDMA triggered setback June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg July/ August 2018 7.5mg, then 10mg June 2019 updosed to 20mg Citalopram August 2019 cold switch to Venlafaxine 75mg XR Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped. Link to comment
thelegend Posted July 8, 2020 Author Share Posted July 8, 2020 7 hours ago, sunnysideup69 said: @thelegend The backward steps are all part of the process. I've been stabilizing for eleven months now. Sometimes this game goes on longer than we could ever anticipate. I thought I was done with windows/waves at the beginning of Feb and then had a few wonky months. Been steadily improving since May but still get waves, in a slight one now since the weekend. We will stabilise. I really hope so, been trying to stabilize for 13 months now. I too thought the worst was behind me in March and April. Not the case it seems. All symptoms are back today and anxiety is CRUSHING! Really discouraged that I had a worse 4th of July this year than last year when I just started holding. 1 April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Moderator Emeritus Dejavu Posted July 11, 2020 Moderator Emeritus Share Posted July 11, 2020 @thelegend, something similar happened to me right before I stabilized. Every time I went barefoot, I felt like I was stepping in water. It was the strangest thing. Like the rest of the symptoms, it went away. You will stabilize, my friend. It took me around a year too, but it happened. It will for you as well. 2016 - Zoloft 50 mg for klonopin w/d Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020, accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave Link to comment
thelegend Posted July 27, 2020 Author Share Posted July 27, 2020 Just got back from a 10 day vacation, total window the whole time, barely even thought about anxiety or withdrawal. Hoping it would be a sign of lasting stability, 1st day back to work and anxiety is back again. Any ideas why this would be the case? Had anyone else experienced something similar where it was pretty much totally gone on a vacation, and then back to the same old crap when you get home? Today is a real struggle, which is SO frustrating as anxiety and withdrawal were totally gone for 10 days. 1 April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Mentor mstimc Posted July 27, 2020 Mentor Share Posted July 27, 2020 47 minutes ago, thelegend said: Any ideas why this would be the case? Hi Legend My guess is that while you were on vacation, your distracted mind was too busy processing your new surroundings and experiences to let your anxious feelings take over. Once you got back into a familiar environment, the distractions disappeared and the anxiety re-emerged. The good news is that your vacation shows anxiety is only as powerful as the attention you give it. If you can find some other alternative means of distraction at home, it may help. 1 Tim C Started Paxil for GAD in 1999 Unsuccessful taper attempt in 2006 Paxilprogress helped with a successful taper completed in 2009 Using therapy and CBT to manage my anxiety Link to comment
Tom37 Posted July 27, 2020 Share Posted July 27, 2020 Sorry to hear about that. I can’t offer any advice as to why that would happen other than maybe less stress involved. For me waves hit whenever they want even on holiday so I can’t relate to it. Good sign though that the anxiety can ease up. It’s shown it’s weakness so in time you should see less anxiety during daily life. 20mg Lexapro 2007 10mg Lexapro 2012 Started tapering approx (October 2017) 12 months ago from 10mg to 9mg then 8 then 7 then 6 then 5 then 4 then 3. Held for approx 4 to 6 weeks min on each reduction. Hit severe symptoms (started 7th Nov) after dropping to 3mg. Dropped to 3mg approx 22nd October. Back to 4mg (7th November) and stabilising. Current symptoms started 23rd November 2018 Used diazepam (2018) 10mg 10th Nov, 5mg 11th Nov, 2.5mg 12 Nov, 2mg 13th Nov. Used diazepam 10mg 24th Nov, 7.5 25th Nov and 5mg 26th November 2018 Link to comment
thelegend Posted July 28, 2020 Author Share Posted July 28, 2020 17 hours ago, Tom37 said: It’s shown it’s weakness so in time you should see less anxiety during daily life. I would take this as a very encouraging sign, but I had a similar experience last year on vacation (though the symptoms did not abate to the degree I experienced this time) yet here I am a year later and still struggling. Today has been so bad, I can’t believe it can change so quick, I am not exaggerating when I say I had pretty much no anxiety or WD symptoms while on vacation, now it is as bad as ever! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Tom37 Posted July 28, 2020 Share Posted July 28, 2020 It’s interesting how it happens like that for you. Do you find weekends any better? Just keep hanging in there. I know it’s hard as not doing too great myself at the moment after feeling significantly better so feeling pretty low about ever getting out of this. 20mg Lexapro 2007 10mg Lexapro 2012 Started tapering approx (October 2017) 12 months ago from 10mg to 9mg then 8 then 7 then 6 then 5 then 4 then 3. Held for approx 4 to 6 weeks min on each reduction. Hit severe symptoms (started 7th Nov) after dropping to 3mg. Dropped to 3mg approx 22nd October. Back to 4mg (7th November) and stabilising. Current symptoms started 23rd November 2018 Used diazepam (2018) 10mg 10th Nov, 5mg 11th Nov, 2.5mg 12 Nov, 2mg 13th Nov. Used diazepam 10mg 24th Nov, 7.5 25th Nov and 5mg 26th November 2018 Link to comment
bijay Posted July 29, 2020 Share Posted July 29, 2020 @thelegend. It is incredibly frustrating to fall so fast after feeling so good. The rollercoaster ride of healing is stressful in itself, beyond just dealing with the WD symptoms. Since you’ve had unusually good experiences while on vacation, have you used other self-care methods that could help extend these windows? I went through part of the thread here but didn’t see if you had tried thing's like CBT, meditation, exercise, etc. Apologies if I’m going over old territory. But even if these approaches are not quite the same as a week of vacation, they may at least help smooth out the bumpy ride when dealing with the normal stresses of life. Started .25 mg. clonazapam Oct. 2016 Started 10 mg. Celexa Dec. 2016 Started 10 mg. amitriptyline January 2017 Also took 60 mg. Dexilant Oct. 2016 through April 2017, successfully tapered off Stopped Celexa successfully Oct. 2017 Fast taper of amitriptyline Dec. 2017, had major WD symptoms and reinstated at 10 mg. Jan. 2018 Slow amitryptyline taper started Mar. 2019, reduced from 10 mg. to 0.93 mg. currently Also still taking .25 mg. clonazapam daily in late evening Link to comment
thelegend Posted July 29, 2020 Author Share Posted July 29, 2020 14 hours ago, Tom37 said: It’s interesting how it happens like that for you. Do you find weekends any better? Just keep hanging in there. I know it’s hard as not doing too great myself at the moment after feeling significantly better so feeling pretty low about ever getting out of this. yes, weekends are typical much more manageable. It really is weird! It is amazing how things can flip so quickly to where you feel like you are back where you started. April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
thelegend Posted July 29, 2020 Author Share Posted July 29, 2020 9 hours ago, bijay said: @thelegend. It is incredibly frustrating to fall so fast after feeling so good. The rollercoaster ride of healing is stressful in itself, beyond just dealing with the WD symptoms. Since you’ve had unusually good experiences while on vacation, have you used other self-care methods that could help extend these windows? I went through part of the thread here but didn’t see if you had tried thing's like CBT, meditation, exercise, etc. Apologies if I’m going over old territory. But even if these approaches are not quite the same as a week of vacation, they may at least help smooth out the bumpy ride when dealing with the normal stresses of life. great advice, I have tried some CBT, didn’t seem to help much, though admittedly I may not be very good at it. I need to be better at self-care though for sure, it could make a big difference I am sure. April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
bijay Posted July 29, 2020 Share Posted July 29, 2020 Please don’t feel that it’s necessary to be good at any of this for it to help. It’s more important to let go of expectations and just keep at it, whatever it is. I do use the Calm app for meditation, and it has a lot of resources for addressing issues with anxiety and sleep. Or maybe looking for things outside your normal environment would help - volunteering at a food bank, even riding your bike around a new neighborhood could spark that sense of being away on a mini-vacation. The brain is a powerful thing - just think about how you were transformed during your vacation. Meditation, exercise, and other approaches change brain chemistry too - we are not just at the mercy of the drugs we take. Started .25 mg. clonazapam Oct. 2016 Started 10 mg. Celexa Dec. 2016 Started 10 mg. amitriptyline January 2017 Also took 60 mg. Dexilant Oct. 2016 through April 2017, successfully tapered off Stopped Celexa successfully Oct. 2017 Fast taper of amitriptyline Dec. 2017, had major WD symptoms and reinstated at 10 mg. Jan. 2018 Slow amitryptyline taper started Mar. 2019, reduced from 10 mg. to 0.93 mg. currently Also still taking .25 mg. clonazapam daily in late evening Link to comment
thelegend Posted July 29, 2020 Author Share Posted July 29, 2020 @bijay - thanks for the advice and kind words. I need to try some of this stuff, anxiety is off the charts today, so crazy how the flip can switch and put you back in complete hell! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
thelegend Posted July 31, 2020 Author Share Posted July 31, 2020 Safe to say I am firmly in a terrible wave right now after a great window last week. Why am I still getting slammed so hard this far out? I mean a year and two months of holding and still doing terrible? Am I doing something wrong? Why am I not stabilizing? Seems like most people stabilize a few months after reinstatement. Am I stuck like this forever? Sorry just really down today, could use some advice and encouragement! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
thelegend Posted July 31, 2020 Author Share Posted July 31, 2020 Today is exactly 15 months into reinstatement. April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Mentor mstimc Posted July 31, 2020 Mentor Share Posted July 31, 2020 Hi Legend Unfortunately, waves are part of the unpredictable recovery process. You had a window last week, so that should tell you that this wave isn't permanent or undefeatable. Try to accept that waves will come but they won't last. The farther you move toward recovery, the less powerful the waves will be. Don't be too hard on yourself by expecting too much while you are in recovery. It does take time and you'll run into these roadblocks, but you will recover! 1 Tim C Started Paxil for GAD in 1999 Unsuccessful taper attempt in 2006 Paxilprogress helped with a successful taper completed in 2009 Using therapy and CBT to manage my anxiety Link to comment
Moderator Emeritus Dejavu Posted July 31, 2020 Moderator Emeritus Share Posted July 31, 2020 Matt, I want to remind you that you have had windows, which indicates that you will stabilize. I'm sure it's coming soon. It took me about a year to reach stability; you're not too far outside that. And I was very worried because I had no real "windows," per se. Just a very gradual, up-and-down type of improvement, until I realized I wasn't having symptoms any longer. We all stabilize, but we are all different in how our brains get us there. Try to think ahead to how wonderful it will be when you reach a stable state. Keep the faith, my friend. Soon it will be your turn! Its 4:30p Texas time. I won't be back on until tonight, but you can reach out to me anytime. Pam 2016 - Zoloft 50 mg for klonopin w/d Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020, accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave Link to comment
Lynnardgirl Posted July 31, 2020 Share Posted July 31, 2020 @thelegend Yes you had a wonderful window your healing ! I am 19 months from last taper and still having waves! I know healing is taking place because of some beautiful windows! Especially last week! Stay strong and you have to believe healing is happening everyday ! God bless you my friend 1 1997 regular Effexor 150 mg2016-2017 up dosage to 225 tried several times to taper no luck fast taper Back on panic attacks anxiety Insomnia 2017 doing ok after a year but then insomia doctor put me onTrazodone was on Trazodone for 6 months or longer did a fast taper getting panic attacks 2018 Doctor switched me to Effexor XR an reduced my dose to 225 - down to 150 felt worse went back on regular Effexor Venlafaxine 2018 taper again, To fast tapered down to 112.5 from 150 take half twice a day 56.25 Link to comment
sunnysideup69 Posted August 1, 2020 Share Posted August 1, 2020 Hello @thelegend, Want to reiterate what the others have said. You're having windows and that is a sign that you are recovering. You have to hang onto that fact. It's great that you felt so good whilst away. Unfortunately, these waves are all part of recovery - remember, they are a natural part of the healing process. Eventually they will be barely noticeable. Do try not to count the months, unless you can give it some spin eg You're 15 months closer to recovery. I know it's difficult not to count the passage of time, still catch myself doing it. I'm not far behind you, buddy, nearly a year for me and I have absolute faith that I will stabilise to the point of feeling pretty normal most of the time. So will you. Sometimes even a pleasant change of scenery can trigger a wave. Or sometimes, even though you've had a nice event where you've felt good, it can still be taxing on a fragile nervous system and you wobble for a while afterwards. Hang on in there. Recovery is S L O W. January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg March 2016 used MDMA triggered setback April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg May 2018 used MDMA triggered setback June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg July/ August 2018 7.5mg, then 10mg June 2019 updosed to 20mg Citalopram August 2019 cold switch to Venlafaxine 75mg XR Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped. Link to comment
thelegend Posted August 2, 2020 Author Share Posted August 2, 2020 Man struggling so bad, this wave may be the worst in yet. Thank you all for your kind words and encouragement, all that is getting me through at the moment. Last week seems like a lifetime ago where I was in an amazing window, it all just seems impossible now! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Moderator Emeritus Dejavu Posted August 2, 2020 Moderator Emeritus Share Posted August 2, 2020 I'm so sorry Matt. I can relate. Yesterday was awful for me too. Pretty much dizziness, crying, depression and anxiety all day. Today is not fantastic, but much better nevertheless. Maybe your tomorrow will be as well. Just want to remind you it took me a very long time to stabilize as well, but when I did, I felt 95-99% normal, maybe even 100% (it's a shame I knocked myself off the wall again). I've learned to trust the mods on this site implicitly, and they say that stability eventually happens. You've put a lot of time into this stabilization, and it will pay off. Keep your chin up. There are good things in store for you. 2016 - Zoloft 50 mg for klonopin w/d Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020, accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave Link to comment
thelegend Posted August 2, 2020 Author Share Posted August 2, 2020 Pam, I am so sorry you are going through the wave you are, but it actually is helpful to know I am not alone. We can get through this together! Like you, I find myself really wanting to start my @brassmonkey slide to get off this garbage, but know I am simply not there yet as this wave is proving! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
thelegend Posted August 5, 2020 Author Share Posted August 5, 2020 Well July I had my best window yet (on my vacation) and some of my worst days as well. Doesn’t sound much like stabilizing even though I am now 15 months into a hold. Here is my update. August Update: Extreme Anxiety - probably as bad as ever other than the 10 day window. Gone during the window Warm Sensation in leg - New and really annoying, probably less severe than last month. Sensitive to sound - gone Sensitive to touch - gone Pins and needles - gone Burning eyes, arms, back, feet - sometimes eyes, I can also feel chest and arms at times, but not to the degree they once were Hyper stimulation - still around, like I am always keyed up Bad sleep - much worse than the Spring, probably not as bad as the beginning. Waking with cortisal spikes - again, has come back significantly, not as bad as the beginning. Light headedness, or feeling like you are not quite all there - This has been quite prevalent during this wave, probably as bad as ever IBS - a little better than last month Shaking - better than it used to be Sweating - better than it used to be Overall it’s looks like there is improvement, but my worst symptom (the anxiety) is still around and at times it is as bad as it ever has been. Why is it not getting better after all this time? April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
bijay Posted August 5, 2020 Share Posted August 5, 2020 Hi @thelegend sorry to hear that you continue to have anxiety after your window of a vacation, but it's good you can see there is overall improvement. During the window, did the other symptoms improve as well? Started .25 mg. clonazapam Oct. 2016 Started 10 mg. Celexa Dec. 2016 Started 10 mg. amitriptyline January 2017 Also took 60 mg. Dexilant Oct. 2016 through April 2017, successfully tapered off Stopped Celexa successfully Oct. 2017 Fast taper of amitriptyline Dec. 2017, had major WD symptoms and reinstated at 10 mg. Jan. 2018 Slow amitryptyline taper started Mar. 2019, reduced from 10 mg. to 0.93 mg. currently Also still taking .25 mg. clonazapam daily in late evening Link to comment
Mentor mstimc Posted August 5, 2020 Mentor Share Posted August 5, 2020 1 hour ago, thelegend said: Overall it’s looks like there is improvement, but my worst symptom (the anxiety) is still around and at times it is as bad as it ever has been. Why is it not getting better after all this time? Hi Legend I think anxiety is among the last things to improve because its a learned behavior, and it comes from the most basic part of our brains, the part that is most difficult to "reprogram" during recovery. I still have anxious thoughts and it can be difficult the manage them, especially in recovery, but you are making great progress! Tim C Started Paxil for GAD in 1999 Unsuccessful taper attempt in 2006 Paxilprogress helped with a successful taper completed in 2009 Using therapy and CBT to manage my anxiety Link to comment
thelegend Posted August 5, 2020 Author Share Posted August 5, 2020 7 minutes ago, bijay said: Hi @thelegend sorry to hear that you continue to have anxiety after your window of a vacation, but it's good you can see there is overall improvement. During the window, did the other symptoms improve as well? All symptoms were pretty much gone. I had that warm sensation in my leg a few times in those 10 days, but that was it! 3 minutes ago, mstimc said: Hi Legend I think anxiety is among the last things to improve because its a learned behavior, and it comes from the most basic part of our brains, the part that is most difficult to "reprogram" during recovery. I still have anxious thoughts and it can be difficult the manage them, especially in recovery, but you are making great progress! thanks, I just hope I start seeing some meaningful improvement in the anxiety soon! April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
bijay Posted August 5, 2020 Share Posted August 5, 2020 19 minutes ago, thelegend said: All symptoms were pretty much gone. I had that warm sensation in my leg a few times in those 10 days, but that was it! thanks, I just hope I start seeing some meaningful improvement in the anxiety soon! Wow, that's amazing that all but one symptom disappeared. It does seem like there is a switch somewhere in the body that controls these things .... Started .25 mg. clonazapam Oct. 2016 Started 10 mg. Celexa Dec. 2016 Started 10 mg. amitriptyline January 2017 Also took 60 mg. Dexilant Oct. 2016 through April 2017, successfully tapered off Stopped Celexa successfully Oct. 2017 Fast taper of amitriptyline Dec. 2017, had major WD symptoms and reinstated at 10 mg. Jan. 2018 Slow amitryptyline taper started Mar. 2019, reduced from 10 mg. to 0.93 mg. currently Also still taking .25 mg. clonazapam daily in late evening Link to comment
thelegend Posted August 6, 2020 Author Share Posted August 6, 2020 Why does it feel like everyone is stabilizing except for me? @brassmonkey and @Gridley, what am I doing wrong? April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Moderator Emeritus Dejavu Posted August 6, 2020 Moderator Emeritus Share Posted August 6, 2020 You're not doing anything wrong. Let's look at this pragmatically. All those changes in 2019. All those changes! Your poor CNS had no idea what hit it. It took me a year to stabilize - with ONE drug, and ONE fast taper. Your brain is continuing to sort all this out. Stability is coming. That's a given. The best thing to do at this point is provide it the stability it requires to finish the job. Also, I think the fact that you enjoy nice windows when you're away from home speaks volumes. I'm just the opposite. My home life makes me feel safe and secure. Maybe start thinking about what you love about getting away. Is there anything about your day to day existence that stresses you? Anything you might need to change? In my case, I had a very demanding, unreasonable and narcissistic client who was making my job miserable. I was always afraid to dump him because he represented about 30% of my income. But when I was struggling so hard to stabilize, I could almost barely work at all, so I knew there was no way I could deal with him. I had no choice but to send him packing. It was the best decision I ever made. With the stress of dealing with him off the table, my anxiety decreased, which gave me a boost in job satisfaction. And I've never missed the money. Other clients came along to replace him. So if there's something that makes being at home a source of anxiety for you, try to think of small ways you might be able to make adjustments. I wouldn't recommend any radical changes at this point in your life, just maybe modest tweaks. For instance, let's say you've had to spend a lot of time in your bedroom because you don't always feel well, and that is depressing you. How about a coat of paint on the walls? Don't underestimate how far little changes like that can go to change your headspace for the better. It creates new and positive pathways in the brain and promotes neuroplasticity for healing. Learning this skill now will still be beneficial long after you've healed and gone on with your life. Hang in there, Matt. This too shall pass. 2016 - Zoloft 50 mg for klonopin w/d Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020, accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave Link to comment
Moderator Emeritus Gridley Posted August 6, 2020 Moderator Emeritus Share Posted August 6, 2020 6 hours ago, thelegend said: what am I doing wrong? As Dejavu said, you're not doing anything wrong. I looked back through some of your recent posts and really it looks to me like you're doing pretty well, considering. The current situation with the virus is unfortunately conducive to anxiety. I've had it come and go and come and go throughout my taper. This feet up the wall restorative yoga pose has been really helpful to me when anxiety strikes. If you can't get your feet all the way up the way, hooking your lower legs over a chair as you lie on the floor also works very well. 10 minute Restorative Yoga for Relaxation | Up the wall Gridley Introduction Lexapro 20 mg since 2004. Begin Brassmonkey Slide Taper Jan. 2017. End 2017 year 1 of taper at 9.25mg End 2018 year 2 of taper at 4.1mg End 2019 year 3 of taper at 1.0mg Oct. 30, 2020 Jump to zero from 0.025mg. Current dose: 0.000mg 3 year, 10 month taper is 100% complete. Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium Feb. 2021, begin 10%/4 week taper of 18.75mg Valium End 2021 year 1 of Valium taper at 6mg End 2022 year 2 of Valium taper at 2.75mg End 2023 year 3 of Valium taper at 1mg Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper. Taper is 95% complete. Imipramine 75 mg daily since 1986. Jan.-Sept. 2016 tapered to 14.4mg March 22, 2022: Begin 10%/4 week taper Aug. 5, 2022: hold at 9.5mg and shift to Valium taper Jan. 24, 2024: Resume Imipramine taper. Current dose as of April 1: 6.8mg Taper is 91% complete. Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs. Link to comment
thelegend Posted August 8, 2020 Author Share Posted August 8, 2020 Shoot guys...I really messed up!!! I meant to take my Zyprexa tonight as usual, accidentally took the Zoloft instead! So I double doses my Zoloft today. Is this going to really screw things up? Really kind of scared, but this has to happen all the time right? April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Moderator Emeritus ChessieCat Posted August 8, 2020 Moderator Emeritus Share Posted August 8, 2020 No it doesn't happen all the time but yes it does happen. I've made errors in my dosing several times during my taper. Did you take your Zyprexa? If not, you need to take that. Tomorrow just take both drugs as usual. Things might be a bit rough for a little while but hopefully it will settle down quickly. Unfortunately we can't say how it will affect you and for how long. Nobody knows. All you can do it stay as calm as possible and try not to add anxiety into the mix. At least you know what has caused any issues so just remind yourself of it. It's happened and you can't change it. All you can do is do your best to get through whatever the consequences of it are. * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment
thelegend Posted August 8, 2020 Author Share Posted August 8, 2020 5 hours ago, ChessieCat said: No it doesn't happen all the time but yes it does happen. I've made errors in my dosing several times during my taper. Did you take your Zyprexa? If not, you need to take that. Tomorrow just take both drugs as usual. Things might be a bit rough for a little while but hopefully it will settle down quickly. Unfortunately we can't say how it will affect you and for how long. Nobody knows. All you can do it stay as calm as possible and try not to add anxiety into the mix. At least you know what has caused any issues so just remind yourself of it. It's happened and you can't change it. All you can do is do your best to get through whatever the consequences of it are. ok I was thinking wouldn’t it be better to just not take the Zoloft this morning and just chalk it up to having taken it 8 hours early, rather than doubling up? Yes I took the Zyprexa last night as well. April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs). April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to... June 2018 - Novemeber 2019: Lexapro 10mgs August 2018 - Current: Zyprexa added for early morning extreme anxiety November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly. New Doctor reinstated: May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa Link to comment
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now