hardy86 Posted January 4, 2016 Author Share Posted January 4, 2016 Hi AliG I use the brand Phillips. Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 4, 2016 Author Share Posted January 4, 2016 Hi leahy, squirrellygirl Sorry if I'm making things short cut I'm struggling to stay awake. Yeah I hope my machine is working and thanks guys I will Order a watch that monitors my sleep. Yeah I'm not sure if I'm getting good quality sleep like deep sleep. If I can control this tiredness then everything will ease of depression etc. I know we cannot function on no sleep. I have booked a appointment sleep doc already to make sure. Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 4, 2016 Author Share Posted January 4, 2016 Hi leahy You mention functional doc or homeopathic doc have you seen them before interesting I just live in a isolated area small town bad support and services. But I'm trying to fly with my family on holiday and might find some support and look for these doc you mentioned. Yeah I feel like I'm running on no sleep all day this is awful. But it seems like I sleep ok but who knows back to the specialist. Hope your well leahy. H Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 4, 2016 Author Share Posted January 4, 2016 Hi squirrellygirl Thanks for the reply. I hope my sleep machine is working. Yeah that this is my next step if this doesn't settle soon I thought maybe gamble on mixing another AD with my Mirtazapine an stopping roboxetine that's what that specialist would do, but I'm so scared like you said this can be a disaster but at the same time I'm in pain. But I was thinking of waiting out this month and if no result that's 5 months of not settling having bad symptoms and around 2 months sever fatigue. But if this bad fatigue would settle I could maybe handle the other side effects. Thanks again for your support. I'm taking to 3-4 pharmacist and they tell me it's likely not med that worries me. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
AliG Posted January 4, 2016 Share Posted January 4, 2016 Hardy , I'm not sure what your last comment means, exactly. However, It sounds like you are panicking ! Quote " I'm taking to 3 - 4 pharmacists, & they tell me it's likely not the med that worries me ". ) I know that you're stressed & anxious , but the best thing that you can do right now is to calm down & breathe . This might take longer than you anticipate. Maybe you're rushing the process ? Patience, time and acceptance is " key ", in this, and pushing it will make it worse. Many here , have been dealing with this for years, not months. You might have to reconsider your time frame and adjust to it with patience and acceptance. Also , you said you were going to wait for a month . What are you planning ,after that ? You have had 5 months of symptoms & 2 months of severe fatigue. It might take a little longer. I think ,if you can be patient ,you will get through this. Ali Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Moderator Emeritus SquirrellyGirl Posted January 4, 2016 Moderator Emeritus Share Posted January 4, 2016 So, the extreme tiredness coincided with the taper you did four months ago that was about 20%? Or was it before that? I would definitely go back to the sleep people and have them assess whether the machine is working properly. With luck, that is the problem and you can get back to having more restful sleep that will allow you ditch the extreme exhaustion. How long have you been on the machine? How did you feel before starting to use it? Was exhaustion an issue back then as well? I'll keep my fingers crossed for ya! SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 4, 2016 Moderator Emeritus Share Posted January 4, 2016 Oh, I'd like to add that you might want to update your sig with the info about when you went on the C-Pap machine, sleep apnea any other info about your health that might be significant. SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 5, 2016 Author Share Posted January 5, 2016 Hi squirrellygirl The tiredness started about 2 months later after the 20% drop. Yeah I have been on cpap machine for about 1 year now. Cpap seem to work for a good few months and I wasn't taking morning naps for a while. But lately I have to nap or I will be in worst shape. I felt not 100% full of energy before I started the cpap and it did help for a while. I'm booked in to review the cpap where I bought the machine. Good idea I'll will add this into my signature. Hope you have been well squirrellygirl. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 5, 2016 Author Share Posted January 5, 2016 Hi AliG Your words keeps me going that's for sure and I will hang in there longer. I just can't believe can it be months and months of suffering caused by my changes with meds. Hard to believe it would take so long. Well I was planning to tell you the truth is go back to the doctors but I know what his step will be for me is throw in another AD with Mirtazapine and stop my second AD I'm on Roboxetine. But this can be a disaster and I'm scared it's like a gamble the way I see it. But I will keep fighting so hard to hope at least have relief soon and settle down. Hope you are feeling good AliG you deserve the best very kind. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 5, 2016 Moderator Emeritus Share Posted January 5, 2016 Hardy, I admire your courage. I know it is tempting to throw in the towel and go back to the doctor looking for relief, yet it is so risky to add meds or change, and I have read such stories that ended tragically here. It is truly the between a rock and a hard place scenario. I am praying that the Cpap is the answer! I have seen so often that insomnia and the inability to sleep is more common in coming off this drug. I suppose the histamine block at the lower doses could be part of it, but it does seem extreme. I'm doing ok, but I'm still up at 15 mg, seems so far to go, yet. SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 5, 2016 Moderator Emeritus Share Posted January 5, 2016 Hardy, I was just looking through old threads of people coming off mirt and found this one by Dave. Have a read because it is very inspirational! http://survivingantidepressants.org/index.php?/topic/7520-ten0275-im-dave-and-im-almost-there/?p=184139 SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 5, 2016 Author Share Posted January 5, 2016 Hi squirrellygirl I did ring up my sleep centre provider and they told me that my readings are good and my sleep apnea is under control. They can see in the computer as I have a chip that's sends them data but I rang her and told her I need a review as She's happy to go through everything again not so sure if the data is always showing correct results. Well I will find out today. Good to hear your feeling ok that's awesome. Nothing worst that pain. Thanks a lot for the link on daves story going to read it now. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 6, 2016 Author Share Posted January 6, 2016 Hi guys Is a little bit of coffee ok I cup a day to help with this severe fatigue? Sister suggested it to me. Do I have chronic fatigue syndrome? Im just confused cause someone said I might have this. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus KarenB Posted January 6, 2016 Moderator Emeritus Share Posted January 6, 2016 Different people react differently to caffeine. I can't have any, while I know others on this forum do have a cup each day. You'd have to try a small amount and see how it goes. 2010 Fluoxetine 20mg. 2011 Escitalopram 20mg. 2013 Tapered badly and destabilised CNS. Effexor 150mg. 2015 Begin using info at SurvivingAntidepressants. Cut 10% - bad w/d 2 months, held 1 month. Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms). 8 month hold. 2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent). 2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well. Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea. 2023 December - Now on 5 micro-beads Effexor. Minimal symptoms but much more time needed between drops. Symptoms begin to increase. 2024 April - Updosed to 6 microbeads - immediate increase in symptoms for 4 days. Decreased to 5 microbeads. 'The possibility of renewal exists so long as life exists.' Dr Gabor Mate. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 6, 2016 Moderator Emeritus Share Posted January 6, 2016 I have always had two cups of coffee in the morning, and have continued to do so without anything that I could identify as troubles from doing so. However, since you are clearly not a coffee drinker, Hardy, as KarenB said, start small! SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 6, 2016 Moderator Emeritus Share Posted January 6, 2016 Hardy, my apologies for sending a duplicate message to your mailbox! SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 6, 2016 Author Share Posted January 6, 2016 Hi KarenB Hope your well thanks for the reply. Good info from you. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
AliG Posted January 6, 2016 Share Posted January 6, 2016 Hardy. It's good to hear that your readings are good ( C/Pap) and your sleep apnoea is under control. Ruling that out, seems to bring it back around to plain old, withdrawal symptoms that you are experiencing. I understand the fatigue and the sleeping issues. There is no easy answer, unfortunately. Time, is the great healer, in this process. Best wishes, Ali Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Moderator Emeritus SquirrellyGirl Posted January 7, 2016 Moderator Emeritus Share Posted January 7, 2016 Hey Hardy, how are you doing today? Folks have been saying hello to you on the FB Mirt group with no response from you so hoping it is just 'cause you're getting a good night's sleep! SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
leahy Posted January 7, 2016 Share Posted January 7, 2016 There is a FB Mirt group, sg? 2001-2007 Rem 90 mg, xanax 2 mg synthroid 112mcg - 2007-2014 Rem 60 mg xanax 3-4 mg 2015 Feb Rem 45 mg xanax 2 mg, March Rem 30 xanax 2, April Rem 22.5, May Rem 30 xanax .25x4 hrs, June Rem 26 xanax 2-3, July Rem 22.5 xanax 2, Aug Rem 15 xanax 2, Sept Rem 22 xanax 2, Oct Rem 18 mg xanax .25 mg /4 hrs, Nov Rem 23 mg xanax .5mg, Dec Rem 24 xanax 2 2016 Jan Rem 20 xanax 2, Feb Rem 18 mg xanax 1.5, Feb Rem 14 12 mg xanax 1 mg, March Rem 10 9 mg xanax 1-2 mg Rem 7.3 8 xanax 1-2, April Rem 10 12 mg xanax 2 mg, May Rem 11 xanax 1 .75mg Nov Rem 10mg Xanax 2mg 2017 May Rem 10.25 Xanax 1 mg, November Xanax 1mg Link to comment
Moderator Emeritus SquirrellyGirl Posted January 7, 2016 Moderator Emeritus Share Posted January 7, 2016 Yes, there is, but it is silent, can't be searched for. It seems to be a relatively small group of folks just supporting each other, but several of them seem to be tapering a little more recklessly than is advised here. I asked them about the chronic fatigue that Hardy has been dealing with, and several reported that they, too, had dealt with that. If anyone wants to join I can invite them, just need their FB name. SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 7, 2016 Author Share Posted January 7, 2016 Hi all I don't mean not to reply and feel bad sorry guys. I'm just on holiday with my family and trying my best to enjoy happiness, my poor family hasn't had no family time because of my illness. Coffee works for me it gives me a little lift in energy therefore my depression drops down a little. I'm only taking like 3/4 of teaspoon and that's enough for me. Love all use guys on this forum use have done so much for me. Hope use are all well. Sorry again for keeping things short. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 13, 2016 Author Share Posted January 13, 2016 Nathan Lim Hi everyone I don't know if any of use have suffered or heard of people suffering longer, I'm coming up to 3 months of severe fatigue 24/7 and it doesn't look like stopping anytime soon. It wrecks your life totally. Well I assume it's the mirt causing the problem. Thought I'll mention I'm also taking reboxetine for a year now as well. I don't know how long I should wait? And what the best solution for me would be next? As AliG mentioned he suggested I give another 1 month of January. Thanks guys so depressing on holiday still and can't enjoy a thing. Might have to up the coffee to help a little my 1 teaspoon wearing out. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 13, 2016 Moderator Emeritus Share Posted January 13, 2016 Hi Nathan, Well, I'm glad you tolerated the coffee well, no paradoxical reaction, and didn't realize you were taking 1 tsp - is that prepared or is that the amount of grounds to make the coffee? I am fortunate, I guess, in that I just kept drinking the same amount of coffee throughout withdrawal last year and my taper now, the equivalent of four cups in the morning, and I feel totally normal on that, not jacked up. I haven't notice it being activating, but I am aware as I continue tapering that it might be a problem. I guess I am just going to keep enjoying it while I can :-) I am wondering about the roboxetine. I looked it up but it won't come up in the drug interaction checker. It is a norepinephrine re-uptake inhibitor. How did you feel when you first started taking it, Nathan? Did you change the dose at all anywhere near the time that you made the cut in mirt that set all this in motion? SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 16, 2016 Author Share Posted January 16, 2016 Hi squirrellygirl I think the coffee is starting to loose it's effectiveness for me it seem to work for a week and half. So tiring in the body and mind you sleep and wake and feel constantly run down. Going to have a break from the gym for a good week. And of course I'm very limited to how I train these days as the fatigue is a killer. But I'm still pushing on each day. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 16, 2016 Moderator Emeritus Share Posted January 16, 2016 I didn't realize you were trying to push through with working out all the while :-) A lot of people report that they become very intolerant of exercise during withdrawal and need to take it very easy. I'm amazed you've had the motivation to keep going! Give yourself a week off and see how you do. It would be one thing if exercise made you feel better. Maybe doing light walks would be more appropriate, getting some sunshine. It's summer in your part of the world, right? SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 16, 2016 Author Share Posted January 16, 2016 Hi squirrellygirl Normally I feel so good after gym like the depression can be so bad but now I never get relief in these last 3 months from all the endorphin. As the fatigue takes over. I just try to go when I can. Yeah it's sunshine here all year most times and so hot. How are you rolling well? Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 17, 2016 Moderator Emeritus Share Posted January 17, 2016 I had some waves of anxiety today after walking the dogs and doing some work outside. Took a break and wanted to be on the couch but went out and did some more work, got that second wind and felt fine. I hate the strange waves of anxiety - yuck - a raw nerve feeling and in the gut, too. i'm 10 days out from a cut and not sure why I'm getting symptoms since it was from 15 to 14.3 mg. Maybe because 15 is considered the minimum therapeutic dose and maybe like the other ADs the serotonin receptors are 80% occupied so cutting into that now? I was only on mirt for 6 weeks before tapering but shot up to 37.5 mg very fast. Sucks to have to go back down so slowly! SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 17, 2016 Author Share Posted January 17, 2016 Hi squirrellygirl I'm glad you felt better later in during work. One thing I notice is it's funny you mentioned that you felt better later, I reckon when you move around somehow when the body gets warm or blood flow through the brain you feel better. In another words I guess it's a little exercise moving around which is good. Yeah I've been so depressed cause this tiredness has really dragged me right down. Is there maybe a TCM that might help? something you have bought up before. It's not easing one bit so hard on me. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
AliG Posted January 17, 2016 Share Posted January 17, 2016 Hardy. At the end of the day, we're all in a similar place. It's not easy , but it's doable !! Stay calm , centered and stable. Be patient , and accepting! You will get through. This link might help : http://What is happening in your brain? Ali. Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Moderator Emeritus SquirrellyGirl Posted January 17, 2016 Moderator Emeritus Share Posted January 17, 2016 The problem with TCM is that it is very individual, not like Western medicine where everyone takes the same medicine regardless of their individual condition. So, no, I don't have any TCM remedy to recommend. My mom had a dog that had cancer and she worked with a holistic vet who prescribed Wei Qi Booster for the dog, but she never had a chance to really use it. When the dog passed away, she gave it to me and I tried it on my old, arthritic dog just to see if it made any difference. Despite her arthritis, she became more "engaged" in life and wanted to be included in our walks. Maybe I'm imagining it helping her. You can learn about TCM here: http://www.drweil.com/drw/u/ART03196/Traditional-Chinese-Medicine-Dr-Weil.html Acupuncture might be another option. They can do points that free up energy flow. SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
hardy86 Posted January 18, 2016 Author Share Posted January 18, 2016 Hi AliG Thanks for the information. Yeah just so hard really hard when it doesn't stop. But I will push on thanks. Hope you doing well. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 18, 2016 Author Share Posted January 18, 2016 Hi squirrellygirl Thanks for the reply. I will have a read. Hope you are feeling good today. Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 21, 2016 Author Share Posted January 21, 2016 Hi guys I'm got some blood results done recently and my CK (Creatine Phosphokinase) came back high 258. I don't know much at all about this ck. I'm worried that something more is going on with me. I said to him can it be the mirtizipine causing it he didn't know at all Dr read on the computer and said maybe it's the Mirtazapine mostly than roboxetine second AD I'm on. Drs don't know anything useless. Not sure if this is causing my fatigue he said maybe. Guys I know this is not the correct way on this forum but I recently reduced roboxetine from 8mg to 6mg and my severe fatigue 24/7 has come down a little which is better than nothing. I could not stand the bad fatigue 24/7 and had to do something different, not sure if roboxetine can cause this as I keep pointing the bad fatigue to mirtizapine. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
hardy86 Posted January 21, 2016 Author Share Posted January 21, 2016 Hi Dr suggested to me that I come off Mirtazapine in 6 weeks then I said to quick then he replied 3 months so my CK levels come down. I don't know what to say about all this one problem after another. Any ideas would be so nice. Sorry guys just depression getting the better of me. I was thinking of holding on mirtizapine 5.5mg for a while and hold on roboxetine 6mg for a while and hopefully stabilise then reduce roboxetine again 10% cut and see if my tiredness eases a little more. But at the same time doc reckons come of mirt first to reduce my CK so I'm confused what's best for me now. Hardy Currently suffer extreme CFS, Lyme, adrenal fatigue, bad gut issues, reaction bad to mold basically etc home a lot. Can hardly walk all I get crash easily. I’m currently on mirtizapine 1.7mg and Reboxetine 0.4mg. I did a cut on reboxetine on the 19/4/20 around 11%. Also taking Ativan since January 2mg. Link to comment
Moderator Emeritus SquirrellyGirl Posted January 21, 2016 Moderator Emeritus Share Posted January 21, 2016 Hi hardy! I am so happy to hear that something is a little better! It seems to me that you waited a good long time before making a change. Many folks on this forum have gone ahead and tapered due to side effects or adverse reactions, and this cut in reboxetine produced results so that is good information! My understanding of CK is that it is a sign of muscle damage, but that can be from exercise, lifting weights and the like. If you are still pumping iron, that could do it, so the thing to do, I imagine, would be to cease exercising for a week or so and then have the test again. But that would be your doc's call. You could ask him about that. Maybe do some web-searches on weight-lifting and CK blood test values. Did you get worked up for other possible causes of extreme exhaustion? I'm assuming nothing was found. You don't have tick-borne illnesses in Australia, do you? SG Started ADs back around 1995 after bad break-up, starting with Prozac. Switched to Wellbutrin, and then to Effexor in 2002 Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history. Extreme emotions, poor concentration as I stepped back down, didn't connect the dots! Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off. Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep. June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened! Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015. Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month. 12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18: 2.6 mg Remeron and 4.9 mg Effexor My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679 This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
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