DMV64: reinstate Saphris?

[DMV64]

I always have bad affects from antibiotics, so Im just glad it’s over.

[Rosetta]

I'm glad it's over, too, DMV.

[DMV64]

Thank you Rosetta. Xoxo

[DMV64]

@manymoretodays @JanCarolI do want to start the water dissolve taper part of Saphris now and just hold it through vacation then drop again when I get home. I have to look back to see exactly what JanCarol told me to do. Pretty sure it was dissolve in 5ML and take 2ML, which seems like a lot actually since right now I am only taking 10 of a weight of 25. But I don't understand the maths. I just don't want to mess myself up! 

[DMV64]

Been feeling really isolated lately. and I feel really sad that I can't seem to be on here consistently and that I only have one follower. Not trying to sit on pity pot but well, maybe I am anyway.

[DMV64]

@manymoretodays well I am still feeling unsure about the water taper. I haven’t heard from anyone so I guess I will just hold. I know that’s what you suggested anyway. 

[manymoretodays]

Sounds good to me DMV64, 

HOLD while traveling.  No changes.  Also......you are how far out now, since the onset of bronchitis to pneumonia, and additional medications?

 

As it turns out DMV, you are going to need to dilute your Saphris wafer in more than 5 mL of water. 

Otherwise the mL for your present dose of 0.1 mgai will be so miniscule, it will be impossible to hold in your mouth, under your tongue for any amount of time

 

I think, like any other cross over........you should stick to your present dose of 0.1 mgai  too BEFORE tapering.

Let me know when you are back from travel.

 

And no, I don't want you to start until you are back from your holiday vacation, of sorts.  To the other sunny retiree and relax, state in the U.S. of A., with beaches, and warmer temperatures.

There may be symptoms no matter what you do, when we make this crossover, so I would rather have you at your home base, when you start it.

 

On 12/3/2018 at 6:32 AM, DMV64 said:

Been feeling really isolated lately. and I feel really sad that I can't seem to be on here consistently and that I only have one follower. Not trying to sit on pity pot but well, maybe I am anyway.

Could be just the winter blues DMV.  And you are still recovering from bronchitis that went to pneumonia. I don't know much on the weather there right now.......it's cold here.   And daylight is over before I'm ready each day. 

Snowy....but cold here.  Some sunshine though.  Walks are warm.   The pool seems cold but my sauna after is great!   And I may hit the slopes before the New Year, ski.  

 

You could try and find a PM buddy and/or look on the FB page, you'd have to join I imagine, to post there and read all the comments.  

Have you considered just reading when you are here.  Exploring a bit.  One doesn't have to chat, chat to be here.........just exude strength and positive energy or something.

 

I know you have mentioned visual problems.  I'm still moving between 3 pairs of glasses myself and a bit limited with screen time now. 

Back to the optometrist I go......today or tomorrow. 

I've got to make copies and submit all my paper work too, to insurance, so I can get at least some reimbursement eventually for the costs out of my pocket.  Fun, fun, fun!!!  Oh well!

Yes.....maybe you are a bit bored and going to self pity.  I don't know why.......it happens.

 

Get your Saphris wafer, chopped and weighed.......so you don't have to be calibrating and balancing your scale.  And the rest of your meds set up until you get back.

 

.......best I can do on the chit, chat and a bit more information for you.

 

Love, peace, healing, and growth,

mmt

[DMV64]

2 minutes ago, manymoretodays said:

HOLD

Yes that’s what I’m planning to do. I’m confused about sea dissolving of the way for in general. Because I think it one point JanCarol or maybe it was brass monkey had said that it was best to have a really small amount of water to hold so it would be easier to hold it without swallowing because swallowing it reduces it to like 4% of the dose. 

 I am about three weeks since the start of the bronchitis and I feel like it’s almost all the way gone. And maybe a week away from the meds that I had to take. Maybe a bit longer. 

I do try to get on here and do some reading and just kind of catching up with people’s stories. I also tried to comment as best I can or just say hello and offer support. I don’t know sometimes I just feel lonely I guess.

[DMV64]

As far as the Saphris goes, I really want to understand and make sure that I’m getting the proper dose. Honestly because of my visual problems and also my memory problems I even forgot what mgai stands for! I’m on my phone now but I would have to scroll back to see how all that fits together.

[manymoretodays]

mgai = milligrams of active ingredient. 

I think you are fine.....

If you are always sticking with a dose that weighs 0.10 grams on your scale. 

That's what you reported last.

 

So.....no worries on that.

Consistency of measurement, and timing of doses, is good, good, good.

 

[manymoretodays]

.....and oh well......you are lonely.......I am just sad from time to time.  Holidays.  Intermittent small bursts of joy, and glee though.

Tis life I suppose.

[DMV64]

Actually my dose measures .010 yes

[manymoretodays]

42 minutes ago, DMV64 said:

I’m confused about sea dissolving of the way for in general. Because I think it one point JanCarol or maybe it was brass monkey had said that it was best to have a really small amount of water to hold so it would be easier to hold it without swallowing because swallowing it reduces it to like 4% of the dose. 

 

Hey.....from what I see, you will wind up with a really small amount of water.  The issue was around how long to hold it under your tongue, without letting it absorb too quickly sublingual.

I know I had asked you once how long you held your present dose, under your tongue, before you felt it had absorbed.  There's some information in the literature regarding the sublingual absorption.  I don't think it's here, on your thread.

 

I don't think you answered on that.  I was looking for a comparison.

 

JC's instructions were tips on how to hold the liquid in your mouth, for as long as you could.  So.......when you get to a desktop or before........scroll on back for that post. 

 

Over and out.  Busy day in paradise here, per usual.

L, P, H, and G,

mmt

Okay good.  On your last post......above.  I can give you the math, for what it's worth, which is a lot........when next here.

 

[DMV64]

Yes. Math please

[manymoretodays]

Copy that DMV64.  Thank you.

Your dose weighs 0.010 grams on your scale.

Not 0.10 grams....that was what I last posted.

I'll get back to you when I can.

 

Edited December 5, 2018 by manymoretodays
back to BTS math

[DMV64]

@brassmonkey Repost: I’m confused about sea dissolving of the way for in general. Because I think it one point JanCarol or maybe it was brass monkey had said that it was best to have a really small amount of water to hold so it would be easier to hold it without swallowing because swallowing it reduces it to like 4% of the dose. I believe JanCarol said dissolve whole wafer in 5ML water and take 2ML. Is this right? The dry dose weight is .010 down to .009

[DMV64]

Also MMT is helping me. 

[DMV64]

@ShepBENZO FREAK OUT. In IOP today I heard horror stories about people in the hospital at the end even after a "slow" taper with a doc. Even group leader said basically I will suffer. It just made me feel so hopeless. I am already struggling like most of us here. I want to believe I can get off Benzo too. Any words at all are much appreciated.

[bubble]

Shep is writing so much about coming off benzos in the benzo subforum. Any thread you open will soon give you the answer and reassurance you need.

[DMV64]

8 minutes ago, bubble said:

writing

Thanks Bubble. I am really upset by what went on this morning in iop. One person acting like it was no big deal she just stopped taking them. Then the other horror stories. Plus I am not having a great taper day myself today. Thanks for responding so quickly. When I get back home off the phone I will check out the benzo forum. 

[Rosetta]

Dmv, remember that the people said "slow taper with a doctor."  It was probably not slow enough, and I greatly doubt the doctor let the person slow down when that was indicated by the symptoms.  Especially near the end when the doses are small it seems that SA says slow down, it's not a race, it doesn't matter how long it takes, but doctors are often said to get impatient.  That's the difference.

[DMV64]

Thanks Rosetta. It is good reminder. I just felt like “there’s no way out of this” when I was there. Like I should check myself in for a detox. One doc had mentioned a 9 day program. I know that’s way too fast but it’s so hard with all these symptoms and I haven’t even started the benzo yet. 

So far no one has said the going into the hospital is a good idea. 

[DMV64]

I feel like I am falling apart right now. The anxiety is so bad

[Rosetta]

Could you be hungry?  I mean, you may have no appetite, but you need to raise your blood sugar?

[DMV64]

I don’t think so.  I ate brunch at 12:30. It’s kinda been like this week. 

[Rosetta]

I'm sorry you feel that way.  So about 3 hours ago you ate.  Maybe a snack would help anyway.  I've been there, of course.  You know, my should wrap heated in the microwave sometimes helps me.   Or a warm cup of tea?

[DMV64]

I’m on my way home now. When I get home maybe I’ll have a little yogurt and granola with some tea. I think that’s a good suggestion. Food usually does help. I don’t know why this past week my anxiety symptoms have been so bad but it’s really been rough and I’ve been trying to use as many tools as I can.

[DMV64]

I know you have been there. Right now I’m still pretty functional. Teaching three adult classes a week and 2 to 3 kids classes a week of yoga. And then taking on a Doula client here and there. But in this last week I’m starting to feel like I’m not going to be able to keep this up. And really feeling how nonlinear this whole process is

[FarmGirlWorks]

3 hours ago, DMV64 said:

. One person acting like it was no big deal she just stopped taking them. Then the other horror stories

Exactly: there is no way to know what your journey will be. I’ve friends who just stopped with no problems. Me, not so much. So who is to say what you’ll experience. So hopefully — and probably — you’ll be fine. Plus! We got your back!

[DMV64]

9 minutes ago, FarmGirlWorks said:

got your back!

Thank you so much! Yes we are all different. I think the woman who said  she had almost no problem had a little bit of an attitude and kind of pissed me off 

[manymoretodays]

On 12/5/2018 at 10:23 AM, manymoretodays said:

Copy that DMV64.  Thank you.

Your dose weighs 0.010 grams on your scale.

Not 0.10 grams....that was what I last posted.

I'll get back to you when I can.

 

On 12/6/2018 at 5:31 AM, DMV64 said:

The dry dose weight is .010 down to .009

 

Hi DMV64,

Did you just do a 10% dose decrease?  That's what your dry weight difference amounts to.  I don't get why you would do a decrease right now........???  😧 🤓 (bewilderment, concern faces)

 

From the information that you have supplied, here's what I've got with the Math/Maths/Calculations.  Some important terms are included, or abbreviations of terms, as well as how to report what you are doing.

 

MGAI: milligrams active ingredient: mgai. This refers to the entire dose strength listed on the box or bottle from the pharmacy or the doctor who supplies you. At present I am assuming you are using a 2.5 mgai pill/tablet. Further down, in this post, I've calculated what you are presently taking in dose strength mgai, based on the weight of your pill/tablet now.

 

Capsules may be best defined as pill/tablet + fillers enclosed in an actual capsule.

Some pill/tablets are large ovals.

Let's not refer to those as capsules.

 

MGPW: milligrams pill weight: mgpw. This represents the physical weight of your dose. It starts as the full weight of your pill/tablet but decreases as a person tapers, when using a scale to determine weights.

 

AIC: Active Ingredient Concentration. This represents a ratio of how much active ingrediant is in a set amount of each pill/tablet. For the ease of calculation, when weighing, that set amount is based at 1.0 mgpw.

So.......assuming that you got an average pill weight of .025 gram on your scale for your 2.5 mgai dose strength pill/tablet.

.025 grams of pill weight : 25mgpw

2.5mgai/divided by 25= 0.1 mgai/1 mgpw

 

 

The .010 you reported on your scale : 10mgpw

(And good job on referring to that weight in words.  You stated:  dry dose weight)

10 mgpw X(multiplied) by 0.1 mgai = 1 mgai for your dose, when the weight on your scale reads .010.

I'm assuming you are using a Gemini 20 scale that gives a read out in grams.

 

Now you are reporting taking a .009 gram weight of your dose.  I used gram weight instead of dry dose weight here.

9mgpw X 0.1 mgai = 0.9 mgai for your present dose.

 

Please use Account Settings and update your signature with your recent 10% decrease.   You made that change yesterday?  Just note the dose in mgai please.

 

You are presently taking 0.9 mgai Saphris.

Which, by the way, was a 10% decrease from your previous dose of 1 mgai.

You just tapered by 10%

I hope it all works out well in the next 4-6 weeks for you.

 

This is how that works:

.010 multiplied by .90 = .009 dry weight

.009 dry weight or grams :  9mgpw : 0.9 mgai   at present

 

So, there is the math/maths you asked for. 

 

All for now.

L, P, H, and G,

mmt

 

Edited December 31, 2018 by manymoretodays
please report dosages in mgai instead of grams

[DMV64]

11 minutes ago, manymoretodays said:

dose

Omg. Thank you this really makes my head spin. But yes I did a 10% decrease. And I know you’re scratching your head as to why am doing it now and I’m not really even sure today because it’s been a bad day.

[Rabe]

Please take care DMV....you are doing so much...maybe a break now and then would help too?  Perhaps pushing too hard sometimes...I know I have done that.  Also the food thing is huge for me...I try to eat about every 2 to 3 hours...jsut take things with me...seems to help...usually.  But somedays have among of their own...or parts of days. @Rosetta Good points Rosetta...VERY good points...I had a 'slow' taper too...riiiight.

Hugs DMV!!

[DMV64]

Thanks Rabe.  Movie I am pushing too hard I don’t now. I don’t know if I keep working like I’m working. I’m also starting to have some restless legs kept symptoms at night I can never remember how to spell that symptom. 

You know like I feel the energy in my body. I don’t know what to do about it because honestly I haven’t paid that is a tension to what people have said about it because I never have it

[DMV64]

Also  went to see in integrative medicine doctor a number of weeks ago. He took a lot of blood. He increased my estrogen after the blood came back since he said it was low. He also recommended that I take zinc because my zinc to copper ratio was off and CO Q 10 -other people had mentioned Coq10 but I don’t know what it’s really supposed to do. Thoughts?

[DMV64]

Oh also mentioned N.A.C supplement