wantrelief Posted October 22, 2022 Share Posted October 22, 2022 On 10/22/2022 at 12:05 AM, Sottana said: ive only been able to manage a couple hours here and there I know how lack of sleep can make everything feel worse. I am so very sorry you are going through this. Please consider reaching out to a moderator (perhaps Alto or Shep) to see if there are any suggestions as to what to do regarding an adverse reaction. You have been so strong and brave and I know how beyond weary you must be. Please keep holding on, Adili. I am thinking of you, WR. -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
Sottana Posted October 23, 2022 Author Share Posted October 23, 2022 @wantreliefappreciate your messages as always. I lowered my drug today and the severe adverse stuff lessened a good amount. Unfortunately, the wd deepened and got scarier. The only option for me is to keep tapering through the adverse reaction, unfortunately. I just have to remind myself 10,000 times a day this is all temporary. Its so hard. Thanks again, friend 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
wantrelief Posted October 23, 2022 Share Posted October 23, 2022 I am so glad you posted @Sottana as I've been concerned about you. I am so sorry you are in this awful position of experiencing adverse effects but then when you lower you get terrible withdrawal. You are right about it being temporary.....I have to remind myself of this too all of the time. This really is all so hard but you are doing brilliantly. We will keep going....together. -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
Roserdl Posted October 31, 2022 Share Posted October 31, 2022 On 7/2/2022 at 12:21 AM, Longroadhome said: @SottanaThere has been a few times over the last four years where I have felt desperate and just wanted off the drugs. To just stop or taper quickly. I’m very glad I didn’t as I think I’d have gone back on them and ended up on a higher dose but feeling worse, or tried different drugs and ending up on a cocktail of them. There is no quick fix. Its a good warning to stay off once your off. I tapered too fast after a reinstatement that partially worked but induced a lot of side effects. I wanted off because I was worried my body could never really fully heal around a drug that was causing so many side effects. I'm not reinstating as it seems you can then get into a cycle where any drop just starts it all over again. But, its so hard because when your suffering you always want to do something. I know more drugs wont work. But, the hopelessness of nothing working is dangerous too. Recent 2018 Zoloft 150mg (20 years taking at various times, no real issues before stopping) 2019 Risperdal one month low dose (forget amount) stopped bad reaction 2019 Remeron 7.5 mg sleep (discontinued in mid 2019) on for six months (tapered for a few weeks) Zoloft 100 mg Summer 2020/Zoloft 75 mg Summer 2021 Zoloft 50 mg November 2021/ Zoloft 25 mg First two weeks January 2022: Reinstated 50 mgJanuary Last week) Crash in February - on and off doses as doctors conflicted over serotonin syndrome/withdrawal - stopped all for two week & resumed:\ Other drugs tried in hospitals (Abilify, 1mg, 1 dose, Zyprexa 1 dose 1mg, Klonopin .25 4 doses in 2 hospitalizations) March 1 titrated Zoloft up from 0 to 65 from February to Early May Severe vision problems at 65 mg (improved depression) Taper to 55 6/15, 45mg 7/15/ 35mg 8/1, 25mg 8/15, 10 mg, 8/31 OFF 9/2022 Omg Improved with drops from August to September - November crash ONE dose Zoloft 3mg 11/17 - worsened symptoms - Remain off Zoloft Mirtazapine -3.5 mg six weeks mid march to end april, occasionally for sleep Supplements: Fish oil, magnesium, lions mane, cytokine suppress, MCT Oil Link to comment
Finnishgirl Posted November 3, 2022 Share Posted November 3, 2022 Hi @Sottana I just went through your thread and have to say that you are an amazingly strong person. ❤️ I hope you get some relief soon when you go down in dose. ❤️ 2 Citalopram for OCD 2008-2012, Drug free 2012-2015, Citalopram for anxiety 2015-2016, Drug free 2016-2017 (pregnancy), Sertralin for OCD 10/2017-04/2019. Tried fast tapering in 2019 for second pregnancy, failed (depression started), reinstated, med did not work anymore. Used Ativan then for 4 moths an tapered down in a few weeks with no problem. Built tolerance and interdose wothdrawal early on Ativan even with 3/day dosing. Since that, depression meds have had no effect. Until Jun/2021: escitalopram 20mg (monotherapy), Jun/2021-Jul/2021: escitalopram 20mg + bupropion 150mg Jul/2021-Jul/2021: escitalopram 10mg + clomipramine 10-75mg (tried to switch escitalopram to clomipramine but too bad side effects), Jul/2021-Aug/2021: bupropion 150mg (reinstated in hospital) + escitalopram 15mg, Aug/2021-Sept/27/2021: bupropion 300mg (upped dose) + escitalopram 15mg Sept/27/2021-Sept/17/2021: Bupropion 150mg (lowered dose) + Trintellix 5-10mg (switched escitalopram to Trintellix) Sept/17/2021-Dec/8/2021: Trintellix 20mg (dosage doubled after stopping Wellbutrin since Wellbutrin doubles Trintellix's blood concentration with doses 150-300mg) Dec/8/2021 : Trintellix 18mg, August 2022: crash at 5,8 mg Trintellix, hospitalized September 2022: Trintellix 20mg, Ativan 1mgx3, mirtazapine 7,5mg, October 2022: Stupid rapid taper attempt of Trintellix 20mg -> 10mg -> 7,5 mg. Back up to 15mg 10/16/2022. Trintellix: 12/12/2022 13,94 mg (-7%); 1/9/2023 13,0mg (-7%) Link to comment
Moderator Emeritus Erell Posted November 6, 2022 Moderator Emeritus Share Posted November 6, 2022 Hello dear @Sottana, I send you my support at this difficult time. I feel that we share common difficulties. I know how difficult it can be when every day is the same for a long time and is marked by adrenaline and fear, but we must remember that this is only temporary. A bad time, harder than we could have imagined, but a time, only a time, not our lives. ❤️ 1 2006 : 20mg Paxil+Bromazepam. 2008 : cold turkey of both. 2010 : Reinstatement 20mg Paxil + Bromazepam. 2014-June2017 : Switch from Bromazepam to Prazepam, slow taper to 0mg. 2018 to August 2019 : Paxil 20mg taper (3% every 15 days). 22 Aug 2019 updose to 10mg (was at 8.4mg). 25th Sept 2019 To April 2020 : found SA, holding at 10mg Paxil. April 2020 : Paxil 10mg to Prozac 7mg bridge. Details : topic/21457 Current Supplements : magnesium citrate + fish oil Current medication : * 7pm Diazepam : 0.85mg (15 Aug 2022) / 0.95 mg (24 April 2022) / 1mg Diazepam (since 29 Aug 2020) * 8am Prozac : 6.16mg (25 oct 2022, feel awful, slight updose) / 6.08 mg (9 oct 2022) / 6.24mg (11 July 22) / 6.44mg (22 May 22) / 6.64mg (4 Nov 21) / 6.72mg (8 oct 21) / 6.8 mg (15 Sept 21)/ 6.88mg (14 Aug 21)/ 6.92mg (23 Jun 21) I am not a professional, I don't give medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Longroadhome Posted November 30, 2022 Share Posted November 30, 2022 @Sottana just checking in how’s things going ? Haven’t heard from you for a while and hoping that’s a good sign🙂 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Sottana Posted December 6, 2022 Author Share Posted December 6, 2022 @Erell@Longroadhome @Finnishgirl @Roserdl@wantrelief thank you for all of your replies. It has been unbelievably hard, but I am still alive. I am still fighting every day. All the best you all 2 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
wantrelief Posted December 7, 2022 Share Posted December 7, 2022 You are very strong, @Sottana, and I really admire your perseverance. I know it doesn't feel like it now but it will pay off. I am rooting for you! 1 -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
Mentor Hanna72 Posted December 14, 2022 Mentor Share Posted December 14, 2022 Dear @Sottana Thinking of you!!!! Keep up the good work friend. I am right here beside you💕 1999-2020 20 mg Paxil Bridged with Fluoxetine to help me get off Paxil. 2022 Fluoxetine 15 mg 12/12 14mg 27/12 13mg jan 12mg feb 11mg mars 10mg, 9 mg 8,5 mg 7.6mg 7.0 mg 6,3 mg 5,6 mg 5,0 mg 4,5 mg 4,0 mg 3.6mg 3,2 mg 2,9 mg 2,6 mg 2,3 mg 2,0 mg 1.8 mg I am not a medical professional nor is this a medical advice. I only talk from my own experience. Link to comment
Sottana Posted February 25, 2023 Author Share Posted February 25, 2023 @wantrelief @Hanna72 you both inspire me. let’s never give up. For me I have decided that my existence is worth it and that these drugs can take everything from me but they cannot take my fight and my will to survive. Ever. I will battle forever if that’s what it takes and that’s what my journey entails….although deep down I know that recovery is inevitable, no matter how long it takes…..keep going 3 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Mentor Hanna72 Posted February 25, 2023 Mentor Share Posted February 25, 2023 So good to hear from you @Sottana Love your attitude. Be well my friend. 1999-2020 20 mg Paxil Bridged with Fluoxetine to help me get off Paxil. 2022 Fluoxetine 15 mg 12/12 14mg 27/12 13mg jan 12mg feb 11mg mars 10mg, 9 mg 8,5 mg 7.6mg 7.0 mg 6,3 mg 5,6 mg 5,0 mg 4,5 mg 4,0 mg 3.6mg 3,2 mg 2,9 mg 2,6 mg 2,3 mg 2,0 mg 1.8 mg I am not a medical professional nor is this a medical advice. I only talk from my own experience. Link to comment
wantrelief Posted February 25, 2023 Share Posted February 25, 2023 Well you inspire me @Sottana and what you wrote was very powerful - thank you so much. Yes, we will keep going....together 1 -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
peaceandlove Posted February 27, 2023 Share Posted February 27, 2023 On 4/17/2021 at 4:18 PM, Adili13 said: @Erell @Longroadhome thank you guys for being so supportive. I have a lot of gastroparesis and akathisia these last few days. Its very upsetting. i hope i can finally get to 10 mg and stabilize there. though, im scared due to paxils half-life hey I’m going through the same digestive issues. Has your gastroparesis went away yet ? @Sottana April 2022- Only 1 celxa pill 10mg had an adverse reaction & never took anymore again Link to comment
Sottana Posted February 27, 2023 Author Share Posted February 27, 2023 @peaceandlovesorry to say it isn’t yet my friend I wish you tons of healing though 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
peaceandlove Posted March 8, 2023 Share Posted March 8, 2023 On 2/27/2023 at 4:27 PM, Adili13 said: @peaceandlovesorry to say it isn’t yet my friend I wish you tons of healing though thanks you too 💕 April 2022- Only 1 celxa pill 10mg had an adverse reaction & never took anymore again Link to comment
Sottana Posted May 25, 2023 Author Share Posted May 25, 2023 Anyone else out there that feels like they can’t do this one more day every single day. My head is exploding with electrical agony 1 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
LostInCanada Posted May 25, 2023 Share Posted May 25, 2023 @Sottana sending hugs. You have done so well and come so far. I have nothing profound to offer or say but we have to keep fighting for each other. So sorry you are struggling…you deserve healing. ❤️ We all do. 20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin "... your strength will be in keeping calm..."-Isaiah 30:15 I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others. Link to comment
Sottana Posted May 25, 2023 Author Share Posted May 25, 2023 @LostInCanada thanks, friend. I appreciate you and your message. May all beings be free from suffering. May we all heal 2 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
direstraits Posted May 25, 2023 Share Posted May 25, 2023 On 5/24/2023 at 7:00 PM, Sottana said: Anyone else out there that feels like they can’t do this one more day every single day. My head is exploding with electrical agony Yes, I've felt like that countless times... you're not alone. 3 went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
wantrelief Posted May 25, 2023 Share Posted May 25, 2023 I am so sorry you are suffering @Sottana and wondering how on earth you are going to keep doing this. I have had similar thoughts and feelings.....often, unfortunately. But then I can usually reach down deep inside and find that small kernel of hope that this will get better, it will change. We've all just got to keep holding on, that's all we can do. You are such a special person and have so much to offer this world.....please keep going, my brave friend. 3 -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
Sottana Posted May 25, 2023 Author Share Posted May 25, 2023 @wantrelief thank you so much, what a kind a thoughtful thing to say. It really means so much to me. You’re an incredible person too, my friend. I hope you’re having an ok night tonight 1 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Sottana Posted May 30, 2023 Author Share Posted May 30, 2023 Is anyone else’s akathisia tied to explosive head pressure 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Moderator Emeritus Carmie Posted June 1, 2023 Moderator Emeritus Share Posted June 1, 2023 I’m so very sorry you’re suffering so much @Sottana , Akathisia is just awful. I’ve had it a number of times. No, I don’t think I had head pressure with it, but one just cannot settle when one has it. Do you get any reprieve from it? I know it’s really hard to distract from Akathisia, but do you have any distractions that help you get through the day? Sending big hugs🤗 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Sottana Posted June 1, 2023 Author Share Posted June 1, 2023 @Carmie thanks for your message. It’s been so hard and I’ve been so alone. It goes back and forth between aka and the pressure and feeling extremely brain dead/fried with a lot of other symptoms. I pray one day I find some relief. How are you? 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Moderator Emeritus Carmie Posted June 1, 2023 Moderator Emeritus Share Posted June 1, 2023 Yes @Sottana, it’s a sad way to live. Sometimes all we can do is distract ourselves the best we can, as we don’t have any other choice. It’s survival mode. My withdrawals are bearable at the moment, but my nervous system is so shot that I’m so on edge, even when I’m in a window. I can’t just sit still and do nothing, even when I’m watching movies or shows I have to knit or do something else with my hands. I do have chronic fatigue syndrome as well, so my nervous system wasn’t great to start off with. I’ve had it for three decades, so I’ve dealt with severe brain fog for that long too, everything around me feels surreal. Some days I can’t read or think straight to save my life. I also have other severe health issues, my body attacks my lungs, so I struggle to breathe a lot, so life is hard. I try really hard to focus on things I can still be grateful for though, I think that helps. There’s always some little joys we can find in a day. I hope you manage to find one small thing today that brings you joy💛 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Sottana Posted June 1, 2023 Author Share Posted June 1, 2023 @Carmie yes, all we can do is get through the day and keep going. You’re right. im so sorry you’ve been through so much. I’ve followed your page here and there for years on this site and you’re certainly a warrior. I have a special place in my heart for all of us long-haulers. I should try to do some gratitude stuff too. I hope you have some nice moments over the coming days 1 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Moderator Emeritus Carmie Posted June 2, 2023 Moderator Emeritus Share Posted June 2, 2023 On 6/1/2023 at 2:14 PM, Adili13 said: @Carmie yes, all we can do is get through the day and keep going. You’re right. im so sorry you’ve been through so much. I’ve followed your page here and there for years on this site and you’re certainly a warrior. I have a special place in my heart for all of us long-haulers. I should try to do some gratitude stuff too. I hope you have some nice moments over the coming days Thank you for your very kind words Adili, yes we’re both certainly long-haulers on here. I’m going to be tapering for an extremely long time yet as I can only taper in teeny tiny doses. Yes, I find that looking at things to be grateful for helps, I’m sure you’ll benefit if you decide to do it. You don’t have to do it on this site, you can just write what you’re grateful for in a book at home if you prefer. I’m really struggling with my health, so I try to find things that can still bring a little smile to my face. I hope you have some nice moments in the coming days too💛 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Sottana Posted June 8, 2023 Author Share Posted June 8, 2023 @Carmieas long as you’re making progress it doesn’t matter how long it takes I’m going to write in my journal tonight, thanks for the suggestion my friend. how’s this week been for you? 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Sottana Posted June 10, 2023 Author Share Posted June 10, 2023 Are there any success stories of people that have had unbelievable kindling and explosive head pressure out there? 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Moderator Emeritus Carmie Posted June 11, 2023 Moderator Emeritus Share Posted June 11, 2023 On 6/7/2023 at 11:25 PM, Adili13 said: @Carmieas long as you’re making progress it doesn’t matter how long it takes I’m going to write in my journal tonight, thanks for the suggestion my friend. how’s this week been for you? Hey there @Sottana, yes, I guess slow and steady wins the race, despite us going at a snail’s pace🐌🐌🐌😁 I hope journaling has been of benefit to you. I’m really struggling at the moment, thanks for asking. I have so mainly debilitating health issues ( unrelated to withdrawals) and they’re taking their toll on me. I haven’t tapered for three months now as I’ve been in tons of waves due to updosing LDN, I need to try and calm down my immune system. It’s going to take me forever to get up to the dose I need to be at. I can’t taper my meds and updose the LDN at the same time. Tomorrow I will have been in a window for a week, so I think I’ll do my next drop of the Seroquel. How are you doing? 💛 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Sottana Posted June 13, 2023 Author Share Posted June 13, 2023 @Carmie so sorry that you’re dealing with a lot. Is the LDN useful for your health issues? I hope you’re able to resume tapering soon I’m struggling but I also feel like things have to change at some point. I often feel so lonely and like my life is over, like all the things I want feel farther and farther away. I miss some people so much that were once a big part of my life. I hope something shifts for me soon. I think if this explosive head pressure would reduce I’d feel a lot more hopeful. Baylissa says everyone heals eventually, I have to believe that. I have no other choice. I feel kindled to high heaven but I guess even the worst of cases heal. sorry if this was all over the place. I haven’t really slept much over the past couple days. I hope you have a decent day today 1 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Moderator Emeritus Carmie Posted June 13, 2023 Moderator Emeritus Share Posted June 13, 2023 Hi @Sottana, Yes, the LDN is to help autoimmunity etc. I’m not sure if it will work as yet, I have to keep trying things. I’m still not at the dose I need to be at. I’m on lots of supplements as well. My immune system seems to attack my lungs and I struggle to breathe every day. I’ve been in a flare for two years now, ever since the vax. My body doesn’t seem to want to go into remission again. I’m so very sorry you’re struggling, it’s easy to feel helpless and hopeless. I get like that too at times, especially with all my health issues, on top of withdrawals. Tears are shed, I’m sure there have been many tears shed from people on this site. It must be awful to have that head pressure all the time. I hope it eases for you in the near future. Do you get times were it eases a little? Sending some sunshine your way☀️ 1 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
wantrelief Posted June 14, 2023 Share Posted June 14, 2023 10 hours ago, Adili13 said: I’m struggling but I also feel like things have to change at some point. I often feel so lonely and like my life is over, like all the things I want feel farther and farther away. I miss some people so much that were once a big part of my life. I hope something shifts for me soon. I think if this explosive head pressure would reduce I’d feel a lot more hopeful. Baylissa says everyone heals eventually, I have to believe that. I have no other choice. I feel kindled to high heaven but I guess even the worst of cases heal. I am so sorry you are struggling, Adili. You are right though, things will change.....it is inevitable. It is just so so difficult waiting for that time to come though. I so hope you get some peace soon, my friend. 2 -1/06 - 3/07 Cymbalta. Fast taper (essentially CT); withdrawal symptoms after 4 mos (didn't realize was WD) -10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin after 4 mos. Several unsuccessful slow tapers of Zoloft; went up and down in dose a lot -Spring 2013 back on 1 mg Klonopin to counter WD symptoms; switched over 5-6 mos from Zoloft to 35 mg citalopram -Two attempts at slow tapering citalopram, always increased dose due to WD; also increased Klonopin to 1.25 mg in 2014, then to 1.5 mg in 2015 -8/17-9/17: After holding one year at 20 mg, feeling withdrawal symptoms due to stress - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?) - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg). Supplements: fish oil; magnesium; vitamin D3; curcumin Citalopram taper: 2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg I 2021: 7.8 mg - 5.26 mg I 2022: 5.2 mg - 3.36 mg I 2023: 3.3 mg - 1.47 mg 2024: 1/5/24: 1.44 mg; 1/19/24: 1.40 mg; 1/26/24: 1.37 mg; 2/2/24: 1.34 mg; 2/9/24: 1.31 mg; 2/23/24: 1.28 mg; 3/1/24: 1.25 mg; 3/8/24: 1.22 mg; 3/15/24: 1.19 mg; 3/29/24: 1.17 mg; 4/5/24: 1.14 mg; 4/13/24: 1.11 mg; 4/20/24: 1.09 mg; 4/27/24: 1.06 mg Link to comment
Sottana Posted June 17, 2023 Author Share Posted June 17, 2023 @Carmie I’m so sorry my friend, that sounds so incredibly challenging. I really hope the LDN helps you soon. I’m really sorry to hear the vax has created this very long setback in you. I will be thinking of you and hoping you find something that helps really soon. Thank you for your kindness. I do get periods where it comes and goes, yes. It seems like when it’s gone it’s just that other stuff is more present, but it does come and go, yes @wantrelief i so appreciate your positivity and friendship, Wantrelief. I hope you have a day with some nice moments today 1 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
Sottana Posted June 20, 2023 Author Share Posted June 20, 2023 Does anyone know of any functional doctors that are wd-wise and implement that knowledge into their practice? 2008: start Lexapro 10 mg which is quickly upped to 20 mg. 2008:2013 try at least four individual times to get off Lexapro, never get lower than 5mg, settle at 15 mg. 2015: again, attempt to get off Lexapro and get to 5 mg. After 6 months, feel i'm stabilizing but go back on a higher dose because of one stressful event. 2016: go to 20 mg from 15 mg due to work stresses, hit severe tolerance for the first time and become very suicidal. 2016-2017: try viibryd and cymbata in an attempt to feel better. Also add Lamictal 150 at some point. 2017: eventually land on paxil 37.5 and Lamictal 150. January 2018: cut paxil to 25. April-July 2018: reduce Lamictal in 50 mg increments till im off August. 2018: reduce paxil to 20 mg. december 2018: dropped Paxil to 18 mg, SEVERE CRASH. March updosed to 20 mg April 11: dropped to 19.4 mg due to akathsia (still experiencing akathsia symptoms from updose) April 20: 19 mg Paxil May 4: 18.7 Paxil July 5: 18.2 July 12: 17.8 Aug 19: 17.5 Aug 26: 17.3 Oct 20: 17.1 Nov 3: 16.9, 8/17/20: 16.6 after nine month hold, 8/24/20: 16.4, 8/31/20:16.2, 9/14/2020: 16.0, 9/21/20: 15.8, 9/28/20: 15.6, 10/19/20:15.4, 10/26/20: 15.2, 11/2/20: 15.1, 11/7/20: 14.8, 3/6/2-: 14.5, 3/20/20: 14.3, 4/3/20: 13.9, 4/10/2021: 13.7. 4/21/21: 13.5, 5/5/2021: 13.1, 12.2 8/12/2021 (slowly microtapered to this number. I just can’t remember the exact dates), 11.8 9/6/2021, 11.6 9/13/21, 11.2 9/27/21, 11.1 9/30/21.....11/5/21 switched to 10 mg tablet. I am holding to stabilize for the foreseeable future. 3/25/22: 9.4, 5/6/22: 9.0, 5/30/22: 8.25, 6/7/22: 8.1, 7/722: 7.65, 8/16/22: 7.39, 9/22/22: 6.91, 10/1/22: 6.78 Medication signature.docx Link to comment
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