Sycamore Posted May 6, 2020 Posted May 6, 2020 (edited) Sycamore Hi there everyone! First of all, I want to thank the ones who made this forum, and all those who have posted – this is basically the only platform where those of us who want to quit these pills can get some understanding, information and knowledge, and this is so very important as the official information from doctors and medical sites are downright denying the truth of what it means to come off these pills. In my case I discovered it a bit too late, five and a half years into withdrawal having suffered tremendously and I really wish I knew about it sooner- it could have made it easier to understand that these reactions was not me, but reactions from a wrecked nervous system. Oh well. I will attempt to tell my story: I was taken to a doctor after a suicide attempt at age 15. I had been severely depressed for more than a year, lost 10 kilos, lost my period and generally living in a heavy darkness that never seemed to lift. After I started, 60mg of Zoloft, I remember feeling a bit better, for about 8-10 months. However, after that I got worse. I developed severe anxiety; I had anxiety to begin with, mostly panic attacks but after starting the pill I believe it got worse I got agitated, fidgety, and very nervous, and my depression also came back so the doctor increased the Zoloft up to 200 mg. Then I started getting hallucinations. The doctor put me on antipsychotics: 800 mg of Seroquel and 100 mg of Solian, as well as reducing the Zoloft to 100 mg. She did tell me, before I left her office, that my symptoms could be a reaction to Zoloft. In hindsight, I think that is exactly what it was. However, I was already deep in medication, and trusting of the therapists’ methods, so I did not see it at the time – also, I was 17 and desperate. Anyway, after begging to quit the antipsychotics – I was drowsy and sluggish, couldn’t understand what people were saying to me, couldn’t concentrate on reading and I had to quit school because of this – and gained 30 kg as well. I stopped taking them after two years of being on them. Quitting cold turkey was not smart, but no doctor or therapist supported it – actually they threatened me with not getting any treatment if I refused to take them - so that’s what I had to do. I continued Zoloft, after some years I asked to switch to a different one, Fontex (fluoxetine). This one I tapered down extremely slowly – I think I spent about two years of cutting down little by little. I had previously tried to cut them and not managed because of the debilitating symptoms, so I understood that I had to ignore my doctor’s advice and go very slowly. In November 2015, after 10 years on antidepressants I took my final dose. I was, however not aware of the withdrawal phenomenon – I interpreted everything coming as my “real” condition surfacing. I suffered bone pain, electric jolts through my body, intense headaches, pain in the collarbone, anger, mood swings, pressure on the eyeballs and an anxiety worse than I could ever have imagined – I was constantly on the edge. Akathisia, rumination (I was spinning around past mistakes that kept me paralyzed and at the same time extremely agitated and unable to do anything – at one point I didn’t leave my house for 8 months), couldn’t sit down to concentrate on anything, deep, heavy depressions that never lifted (one lasted almost two years without windows) anhedonia, depersonalization, derealization and two years after quitting, I got hypomania, and then again two years after. At the time I thought I had bipolar disorder, but after having read that mania is a symptom of withdrawal, I am thinking that maybe that was it. I don’t know. I have been working with meditation for three years which has helped a great deal. Only now, after five years, have the intense debilitating anxiety somewhat lifted, and I can at least do simple things like take walks and do shopping etc. Becoming aware of withdrawal gave me a new perspective on myself and my condition, and made it easier to treat myself with some patience and love, and of course, get some bloody hope. So a big thank you to everyone on this forum! Edited May 6, 2020 by Gridley
Moderator Emeritus Gridley Posted May 6, 2020 Moderator Emeritus Posted May 6, 2020 Welcome to SA, Sycamore. You have done a fantastic job of progressing through protracted withdrawal. It was great that you were able to realize that what you were feeling once you were off the drugs was not the "real you" but rather was withdrawal. Congratulations on being able to get out of the house and do shopping and other simple things. After all you've been through, that is a remarkable accomplishment. The meditation is a big help, I know. I'm going to give you a little more information about withdrawal. Some of it you may have already seen, but in case you haven't, this may be of benefit to you. Protracted Withdrawal or PAWS (post-acute withdrawal ... What is withdrawal syndrome. Daily Checklist of Antidepressant Withdrawal Symptoms (PDF) The Windows and Waves Pattern of Stabilization These explain the healing process very well. Video: Healing From Antidepressants - Patterns of Recovery On 8/30/2011 at 2:28 PM, Rhiannon said: When we stop taking the drug, we have a brain that has designed itself so that it works in the presence of the drug; now it can't work properly without the drug because it's designed itself so that the drug is part of its chemistry and structure. It's like a plant that has grown on a trellis; you can't just yank out the trellis and expect the plant to be okay. When the drug is removed, the remodeling process has to take place in reverse. SO--it's not a matter of just getting the drug out of your system and moving on. If it were that simple, none of us would be here. It's a matter of, as I describe it, having to grow a new brain. I believe this growing-a-new-brain happens throughout the taper process if the taper is slow enough. (If it's too fast, then there's not a lot of time for actually rebalancing things, and basically the brain is just pedaling fast trying to keep us alive.) It also continues to happen, probably for longer than the symptoms actually last, throughout the time of recovery after we are completely off the drug, which is why recovery takes so long. We don't recommend a lot of supplements on SA, as many members report being sensitive to them due to our over-reactive nervous systems, but two supplements that we do recommend are magnesium (glycinate is a good form) and omega 3 (fish oil). Many people find these to be calming to the nervous system. Magnesium, nature's calcium channel blocker Omega-3 fatty acids (fish oil) Add in one at a time and at a low dose in case you do experience problems. These link are helpful for dealing with anxiety. The last link about the restorative yoga pose I've found very helpful for anxiety. Audio: How to Recover from Anxiety - Dr Claire Weekes VIDEO: Peace from Nervous Suffering - Claire Weekes (1 hour) (http://sendvid.com/vgquc1dg) Anxiety Stuff - all kinds of stuff about anxiety attacks and things that help … 10 minute Restorative Yoga for Relaxation | Up the wall This is your Introduction topic, where you can ask questions and connect with other members. We're glad you found you way here. Gridley Introduction Lexapro 20 mg since 2004. Begin Brassmonkey Slide Taper Jan. 2017. End 2017 year 1 of taper at 9.25mg End 2018 year 2 of taper at 4.1mg End 2019 year 3 of taper at 1.0mg Oct. 30, 2020 Jump to zero from 0.025mg. Current dose: 0.000mg 3 year, 10 month taper is 100% complete. Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium Feb. 2021, begin 10%/4 week taper of 18.75mg Valium End 2021 year 1 of Valium taper at 6mg End 2022 year 2 of Valium taper at 2.75mg End 2023 year 3 of Valium taper at 1mg Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper. Taper is 95% complete. Imipramine 75 mg daily since 1986. Jan.-Sept. 2016 tapered to 14.4mg March 22, 2022: Begin 10%/4 week taper Aug. 5, 2022: hold at 9.5mg and shift to Valium taper Jan. 24, 2024: Resume Imipramine taper. Current dose as of Oct 15: 3.2mg Taper is 96% complete. Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg, iron, serrapeptase, nattokinase, L-Glutamine, milk thistle, choline I am not a medical professional and this is not medical advice. It is information based on my own experience as well as that of other members who have survived these drugs.
Sycamore Posted May 8, 2020 Author Posted May 8, 2020 Thank you very much for the supportive words, and for the links - I found them very useful. I also did not think to be careful with supplements, which is probably wise - I will stick to Omega 3 and Magnesium for now.
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