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Any tardive akathisia success stories?


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Any tardive akathisia success stories?

 

Thought this might be a really nice post of hope for a condition that is usually seen as very hopeless. 🙂

 

I've seen a few people successfully heal from acute akathesia by changing their dosage etc. But was wondering if there was any success stories on tardive or withdrawal akathesia, especially for those who aren't even on meds anymore?

 

Also if anyone has been in a similar position as me - I haven't been on any drugs since 2018, but I smoked weed for a few days in June 2021, then I was suddenly hit with akathesia 3 months later (I've never even had akathesia before).

Edited by manymoretodays
merged from Success Stories, added title member had given

16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly.

?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg  / 9?.15: upped to 30mg. 

8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started.

7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey.

14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit.

8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves).

1.9.20: 99% healed ❤️

31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia.

7.22: Steadily recovering again ❤

2.23: Acute withdrawals coming back, no apparent reason.

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  • Moderator Emeritus

Hi Rbvdk,

And I did find this topic,

Blog: My akathisia experience by akathisiainfo

It does seem to document recovery from akathisia and is hopeful.

 

Meantime, I'll leave your recent query here, in Success Stories for now.

(I've been moving it around a bit, seems okay here, for now)

 

Sometimes I think that many of those who have healed from their symptoms, may not be around much anymore.

We'll see.

 

And best,

L, P, H, and G,

mmt

 

 

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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  • Mentor

@Rbvdk  I came out the other side. My Akasthesia (and TD) came from nowhere about a year after quitting SSRIs. It was so severe initially that I had friction burns on the top of my feet from movements in my sleep and my wife considered calling an ambulance. I saw a psychiatrist over it (he didn’t know why and gave me some BS cause about return of initial symptoms) 3 years post zero I occasionally get the odd mild shake and urge to squirm around for a minute or so at bedtime, but that’s all.
 

We heal. 

50 mg Sertraline Nov 2016 to Dec 2016

100 mg Sertraline Jan - March 2017

50 mg Sertraline April - June 2017

25 mg Sertraline July 2017 - Sept 2018

12.5 mg Sertraline Oct 2018

0 mg Nov 1 2018

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I had aka when I came off Lexapro for about 6 months, it was at its worst at like 9 months off then it eventually went away. 

Started Lexapro 5mg Mid March 2020

Came off Completely September 2020

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg Prozac

reduced to 20mg Prozac September 2021

Holding 20mg Prozac and 50mg Lamictal for a good while to stabilise. November 2021

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I didn’t know it was tardive dysenisia but around 3 months into withdrawal i was uncontrollable gurning expression I kept doing. I tried stopping but it was involuntary. It comes and goes now. Every time it comes back I feel so disheartened but the fact that it goes gives me hope it will stop eventually 

Put on sertraline in January 2016 50 mg. 100mg Feb 16-May18 

may 18 50 mg some withdrawals 

august 18 rapid taper off. September 22 put on 50 mg due to withdrawals 

 2 weeks later up to 100mg. Bad reaction 

on 100 for 4 weeks. Then 50 for two weeks 25 for two weeks and 25 every other day for a week 

off since 8 December having waves and windows 

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I haven't healed yet but my akathisia hit me like a sonofab***h at a year off and stayed for a year and left and didn't come back even after setbacks. 

Fluanxol dosage n/a - 6 months cold turkey Start/ may 2015 end/august 2015

Sertraline 100mg - 10 months cold turkey start/ may 2015 End/Feb 2016

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On 11/29/2021 at 11:36 PM, manymoretodays said:

Hi Rbvdk,

And I did find this topic,

Blog: My akathisia experience by akathisiainfo

It does seem to document recovery from akathisia and is hopeful.

 

Meantime, I'll leave your recent query here, in Success Stories for now.

(I've been moving it around a bit, seems okay here, for now)

 

Sometimes I think that many of those who have healed from their symptoms, may not be around much anymore.

We'll see.

 

And best,

L, P, H, and G,

mmt

 

 

Thank you so much!

 

Take care 🙂

16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly.

?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg  / 9?.15: upped to 30mg. 

8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started.

7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey.

14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit.

8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves).

1.9.20: 99% healed ❤️

31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia.

7.22: Steadily recovering again ❤

2.23: Acute withdrawals coming back, no apparent reason.

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  • 5 months later...

Not sure if Im experiencing akasthesia, but last night I used the TENS machine for neck pain and I think it may have helped a little as my focus is on the sensations in my body were on the part stimulated by the machine. 

2002-2021: 19 yrs on/off psychotropics

2/2022: Wellbutrin 150mg, Lexapro 20mg  3/22: Wellbutrin 150mg xl, Lexapro 10mg    4/22: Wellbutrin 150xl, Lexapro 5mg 

4/2022: Lexa 7.5mg total, Wellbutrin 150mg    5/2022: Wellb 112.5mg xl, Lexa 7.5mg (Stopped Clonazepam & Hydroxyzine- didn't take often)

6/2022: Welbutrin 111mg xl, Lexa 6.8mg          8/2022: Wellbutrin 100mg xl, Lexa 6.8mg            10/9/22: Wellbutrin 100 mg IR, Lexa 6.5 mg

11/3/22: Wellbutrin 96 mg IR, Lexa 6.5 mg       11/30/22: Wellbutrin 96 mg IR, Lexa 6 mg

3/15/23: Wellbutrin 96 mg IR, Lexa 6.2 mg???

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, Spiriva Respimat inhaler.  Rarely taking: OTC pain relievers, Diclofenac, Cyclobenzaprine, anti acids

SupplementsFish oil 1300mg, Nigella oil, Mag Glycinate 200mg, Probiotics 30 billion, 1/5 dose prenatals, Melatonin .38mg, (Reishi, Lion's Mane & psilocybin microdosing by cycles)

 

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  • 3 months later...

Is Tardive Akathesia and withdrawal Akathesia the same thing? 

Prozac: 2014: July 25, 10mg, 2021: September/October, 0
Lexapro: 2021: September/October, 10mg, June, 5mg, July, 0

Sertraline: 2021: June 17, 50mg, 2022: February 14, 25mg, April 6, 12.5mg, April, 16, 0, July 31-August 5, 25mg, August 6, 0

Buspar: 2022: February 22, 5mg, April 6, 0, August 6-9, 5mg, August 14, 5mg, August 15, 5mg, August 20-21, 5mg

Mitrazapine: 2022: August 1, 7.5, August 2, 7.5, August 3, 0

Trazodone: 2022, August 3, 50mg, August 4, 0

Seroquel: 2022, August 4, 50mg, August 6, 50mg, August 14, 25mg

Klonipin: 2022: August 5-11, 2022: August 11-Present

Celexa: 2022, August 10-14, 5mg, 2022: August 16, 2.5mg

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On 9/15/2022 at 3:02 AM, Morgan said:

Is Tardive Akathesia and withdrawal Akathesia the same thing? 

Not the same thing but can become the same thing for some specialists. If your withdrawal akathisia doesn't go away within 6 months it is considered tardive from then on.

Mine is on the borderline given that my last dopamine antagonist dose was in April.
It could be acute because I'm on Mirtazapine but given symptom timing that's unlikely.

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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  • 10 months later...

Came here to share happy news;

 

A dear friend who has had tardive akathisia for 5 to 6 years has virtually healed. Only having an occasional episode once every 3 months. It is good news beyond hope as she struggled immensely!

As for myself, my agitation has settled down to the point where I think it might be just physical fear or activation. My terror/fear is quite overwhelming but, given the circumstances, I am not surprised.

 

I take all this as my brain slowly rebuilding the right pathways!

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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Also, wanted to drop this post here.

 

On 3/25/2019 at 1:45 AM, Rosetta said:

If you are feeling something that you think might be Akathisia please know it does go away.  Please don't worry about whether it is Akathisia or not.  I have learned that it doesn't matter what it's called.  I used to worry about whether is was or wasn't Akathisia and whether it would go away.  It will.  There are many different definitions for Akathisia and there are many different intensities.  There might be a continuum from anxiety to Akathisia.  It does not matter.  

 

The problem is that our language does not have words for that feeling that are universally recognized as describing Akathisia.  Each person would describe it differently.  "Intense anxiety" is the best we can do, usually, but that does not really describe it.  Some intensities create the absolutely most desperate feeling and others do not.  However, for me, the mere indication that I'm getting Akathisia causes me to panic.  I have to remind myself that it does not get super intense every time.  I have read the thread on Akathisia here and it did not help me to cope with it because distraction from it is the only thing that helps.  I have to distract!  Having a hot bath helps or a hot shower.  Showers are probably better at relieving the feeling.  Sometimes I have a hot Epsom salt bath and then I get in the shower afterward.

 

I'm so sorry you are suffering through this.  I'm also very glad you found SA.  Many people never know what is wrong with them and their doctors do not tell them that they will heal because the doctors do not know.  It's really awful to sit in front of a "psychiatrist" and be told that whatever mental condition one is feeling is a permanent worsening of the original condition.  That happened to me after I quit Zoloft.  He couldn't have been more than 30.  He had years and years of medical training, but zero understanding of his profession, real practical medicine or psychiatry.  He did not recognize a physical condition -- dysautonomia -- as I sat in front of him.  He didn't ask the right questions.  He didn't even know what to ask.  He prescribed me Trazodone, and, of course, my condition only got worse.  He was so very, very wrong.  I am sooooo much better now, my personality is back much of the time, and I have learned to cope with Akathisia.  Simply knowing what it is, not letting the doctor tell me my feelings are not real, and knowing that it will go away helps me a lot.  I hope it helps you, too.  

 

Your physical and emotional are connected to a physical disorder.  It is not all in your head.  It is a physical disorder that your body and brain are capable of healing.  I find it absolutely miraculous that this is the case, but it's true, and I know because I am living it right now.  This is temporary, Johnny.  Temporary.  You can make it through.

 

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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I have a tardive akathisia success story. 
 

I was on Effexor for about 10 years when I started to have adverse effects. I didn’t know what they were (inner restlessness, feelings of impending doom) so I assumed it was mental illness. The psychiatrists started switching my medication around, adding pills subtracting pills, the standard care. Made me far worse. Eventually I stabilized and wanted off everything. I was only on Effexor at the time and my doctor told me to go off over the course of 6 weeks. I reduced and eventually discontinued and seemed fine for about two months. In the middle of October I woke up one morning and everything exploded. I was in full blown akathisia. I restarted the medication two weeks later but that didn’t provide any relief. I had full blown akathisia for close to a year. Pacing, sitting and standing constantly, it was torture beyond what I thought a human being could withstand. I ended up hospitalized for a month. Eventually the akathisia went away. Within a few years of my hospitalization I did a proper taper and got off all the drugs. While I’m still in withdrawal, I have not had a recurrence of akathisia. So, in sum, I developed tardive akathisia from longterm Effexor use and polydrugging, followed by a too fast taper, and I healed. Hope this can help someone who is suffering. 

2000 - 2020 - Effexor 250 mg

November 2020 began Nardil 60 mg

reduced Nardil from January 2021 to August 2021 to 0 mg. Drug free. 

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After 3-4 months, my acute akathesia seemed to have resolved. My akathesia began around 2-3 months after stopping my SSRI, but I now believe it was withdrawal, not tardive. 
 

I’m currently tapering a benzo, and have buspar to taper next, so I will report back once those tapers are done. 
 

@NardilTime I’m so happy to hear about yours resolving and I’m wishing you further healing.

 

@PortugueseSea I’m hoping yours resolves soon.

 

Thank you both for sharing encouraging stories!

Prozac: 2014: July 25, 10mg, 2021: September/October, 0
Lexapro: 2021: September/October, 10mg, June, 5mg, July, 0

Sertraline: 2021: June 17, 50mg, 2022: February 14, 25mg, April 6, 12.5mg, April, 16, 0, July 31-August 5, 25mg, August 6, 0

Buspar: 2022: February 22, 5mg, April 6, 0, August 6-9, 5mg, August 14, 5mg, August 15, 5mg, August 20-21, 5mg

Mitrazapine: 2022: August 1, 7.5, August 2, 7.5, August 3, 0

Trazodone: 2022, August 3, 50mg, August 4, 0

Seroquel: 2022, August 4, 50mg, August 6, 50mg, August 14, 25mg

Klonipin: 2022: August 5-11, 2022: August 11-Present

Celexa: 2022, August 10-14, 5mg, 2022: August 16, 2.5mg

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Hi, PortugueseSea. I feel that I’ve recovered, almost completely, from aka.  Now, very rarely, I feel extremely slight physical anxiety in my legs in the evenings.  It passes pretty quickly.  The emotional anxiety it causes as it brings up memories of aka is worse than the actual physical sensation.  I do not let this bother me. I live as if I am completely healed.  I am sensitive to caffeinated coffee, and I don’t drink alcohol.  I would not dream of taking anything that might send me back into that Hell, even for a short period.

 

The most important thing to know is that this condition is temporary.  Even if it seems extreme or intense, the fear that it will go on forever is far, far more distressing than the condition itself - most of the time.  Please understand that I am not dismissing the horrible misery of it.  Quite the contrary, it is horrible, but, for me, while I was having aka — in those moments — the fear of it continuing and the fear of it returning over and over was the cause of much mental anguish and desperation to “escape” in any way possible.  When I realized that I could manage the condition with hot baths, hot showers, (some people find cold showers helpful), heated neck wraps, movement and avoiding alcohol and caffeine, I felt that I could survive through each episode — with the knowledge that one day I would be free.  One must have that knowledge.  Without it, all hope is lost.

 

Aka could stop at any time, it could become bearable at any time, and it will slowly go away if the nervous system is not agitated by changes.  The nervous system can heal itself if it is allowed to do so.

 

When I went to a psychiatrist with akathisia, he failed to diagnose it, he prescribed Trazodone, and he told me my “condition” of mental illness was permanent.  What he was saying to me was that aka was permanent whether he understood that or not.  He was telling me there was no hope.  That I continued to live after that appointment is a miracle.  His license to practice medicine should have been revoked over that incident.  He had no business prescribing drugs or being responsible for the care of patients.

 

The tragedy is that people who go to their doctors are prescribed more drugs, the dose is increased or decreased too much, or the drug is changed, or another drug is added, and THAT increases the degree of aka.  That is what kills people.  That the medical community cannot come to a consensus on this FACT is absolutely calamitous.

 

Rosetta 🧚🏻‍♀️

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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11 hours ago, Rosetta said:

Aka could stop at any time, it could become bearable at any time, and it will slowly go away if the nervous system is not agitated by changes.  The nervous system can heal itself if it is allowed to do so.

From the bottom of my heart, thank you.

 

I do not use any substances anymore, I can, thankfully, sleep over 6 or 7 hours a night. I am trying not to dabble too much with supplements, though I have sinned in the past, and stay off meds as much as possible. 

 

Thank you.

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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A very hopeful interview:

 

 

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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  • 4 weeks later...

Hi! it is usually has to do with high levels of serotonin! working on lowering your serotonin should be able to make you feel better. I recomend looking into Dr. Ray Peat work on serotonin. also Danny Roddy on youtube type his name along with lowering serotonin. SSri's cuase our serotonin levels to skyrocke which can lead to all these symptoms. I lowered mine with increasing my sodium and potassium intake. Coconut water on a daily basis with some salt for a few days is very helpful as it is high in potassium. Sodium helps lower histamine and serotonin so increasing your levels will help a lot. just make sure to use sea salt free of iodine and other chemicals. Sunshine and grounding feet to the earth help lower high levels of serotonin. l-thenine and cbd oil free of thc also help lower it. You can also try an antihistamine if your having a bada day as these lower serotonin and histamine helping the symptoms.  A huge part is also increasing dopamine, this comes with doing things you enjoy. Dopamine will help get rid of excess serotonin. But most importantly, acknowledged that your body can heal. God makes no mistakes. It's a matter of time. Hope the work of dr. ray peat on serotonin helps you like it helped me!

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  • 2 weeks later...
On 8/24/2023 at 3:20 AM, cristal27 said:

But most importantly, acknowledged that your body can heal. God makes no mistakes. It's a matter of time.


I am going through the mother of all waves and my agitation is through the roof at unbearable levels. 20 months of the causative agent, 5 months off the mirtazapine/all meds.

It is insane, this too shall pass.

I will get there.

December 2021 - Metoclopramide started. Akathisia symptoms start; Metoclopramide gets changed to PRN.

March 2022 - Akathisia diagnosed; Metoclopramide stopped; Propranolol 10mg x twice a day. Biperiden PRN (0.5mg to 1mg).

April 2022 - Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, immediate adr). Mirtazapine 7.5mg. . Discontinued Propranolol.

May 2022 - Mirtazapine upped to 15mg. Tandospirone cut to 2x 10mg. Low dose Depakote for the month; 100 to 200 to 100 to 0. Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone, Biperiden discontinued. Klonopin started PRN (0.5mg). 
September 2022 - Akathisia slowly starts improving, WD/ADR normal sets in in mid September. Hold for 4 months.
March 2023 - Off mirtazapine; no Klonopin for 5 months either! Started quercetin (250mg x 2) to soften the histamine rebound.

May 2023 - Stopped quercetin and changed from magnesium carbonate to oxide - reacted badly. Reverted back to carbonate. 
June 2023 - Added fish oil.
Current regimen: CALM Magnesium (Carbonate into Citrate) 175mg x2; Vitamin E 268mg x2; Fish oil (100mg Omega3; EPA 30mg; DHA 37mg)x2
Intro thread: 
https://www.survivingantidepressants.org/topic/27095-portuguesesea-metoclopramide-akathisia-and-mirtazapine/

 

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  • 5 weeks later...
On 12/1/2021 at 8:43 AM, mva96 said:

I had aka when I came off Lexapro for about 6 months, it was at its worst at like 9 months off then it eventually went away. 

How long did it take to completely go away for you?

2000-2018 150-200mg Sertraline and Vyvanse

2018- vyvanse 60mg to 0 over 6mo. 200mg Sertraline to 150mg. 2019- 150mg Sertraline to 100mg. Early 2021- 100mg to 87.5, two weeks later 87.5 to 75mg, 1.25-4mg bromazepam PRN. Mid 2021 - Feb 2022 taper 2.5%-5% 75mg to 50mg. March 2022 bromazepam for 3 weeks. May 9th 2022 started Propranolol, 10mg in the morning and 10mg in the evening. July 2022- off propranolol Oct 2022- off birth control. Dec 2022- updose sertraline 100mg, benztropine 1mg and Ativan 1mg. March 2023- stop benztropine. May 2023 - ativan taper finished. May 2023 - updose Sertraline to 125mg added propranolol 40mg added Ativan 1mg. July 5- sertraline 112.5mg propranolol 60mg, quick 2 week Ativan taper. Current meds: propranolol 60mg, sertraline 106.25mg, Ativan .025mg, B6, CoQ10, Magnesium Glycinate

 

 

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