EternalOptimist: 17 days on generic remeron, want off

September 13, 2015

Hello EO,

Sorry to hear your not doing so well. Hang in there!

September 13, 2015

Thank you Tgirl.

How have you been? I'm sorry I don't post here much due to brain stuffarola!

I'm hoping you are making good headway in your recovery.

Been soooo ill, like very early w/d from xanax and maybe this last med combined.

Hanging on by skin of my teeth. Don't know what is causing what with so many possible diagnoses.

Started working with a ND from home, only one session yet. Still working with homeopathic...from home.

11 years off xanax and 1 1/2 years off remeron...was soooooooooooooooooooo much better last October and

better most of the year save some difficult spots.

How much of the suffering is from these drugs is a huge question for me. Think it's a lot.

I didn't want to post such a downer but it is here where I found caring support and couple of nice friends.

My heart and prayers are out there for everyone going thru w/d to recover fully and enjoy life again, sooner than later.

My best,

EO

September 16, 2015

I'm sorry to hear you are in a wave EO. I don't know what your other possible dxs are, but still having symptoms at 18 months out is not unusual around here, especially in people with a long history. When did you start to feel worse again? I read back through your thread a bit. Looks like this one hit about the middle of August?

I'm beginning to think of the Lyme diagnosis again but don't want to .

Have you been diagnosed with Lyme?

September 17, 2015

Hi Petunia:

How are you?

Thank you for your post here.

I'm struggling with trying to understand the severity of this wave.

I know I'm 18 months off remeron but still confused about the xanax w/d of 11 years now.

Maybe both? This time around, something is different, maybe a mutation of sorts.

Been over a month in this setback. Think something is turning but still quite intense and

rendering me quite ill and limited in functioning. I know I am not alone and so many here

are struggling soooo much for which my heart goes out to them.

I wish it were clear to me what is wrong given the CFS dx and possibly the lyme which I'm too ill

to even address. OH, Holistic docs say lyme, allopathic don't agree. argh Enough about me.

I pine to focus on other things in life than how I feel. I'm sure I'm among many of the same mind.

Best

EO

September 29, 2015

Hello EO,

How are you doing?

Tgirl

September 30, 2015

Hi Tgirl,.

How are you?

Still having a rough time....

Going on 2 months of this intense stuff. think in part is anxiety issues,

then the CFS, feel like early w/d. Sorry not better report. Still believe we can heal.

I was soooooooooooooooooooooooo much better for a year or so.

Let me know how you're doing.

EO

October 3, 2015

Hi All.

This has been a horrific wave, now 2 months, worse 2nd month than first. Had a better year with some nasty waves.

This one is like early w/d..like 2 years ago when ended up in H and on remeron for 9 weeks. Scared, exhausted, confused,

Anyone relate to going back into "it" far off, esp after real good window?

October 3, 2015

Hi EO,

Sorry to hear your back in it again. It's terrible!

What are your symptoms in this wave?

I wish I had some advice for you.

Hang in there,

Tgirl

October 3, 2015

Hi Tgirl, how r u?

Thnx for replying.

Head pressure severe severe, crippling, with a sense of crazies. Intrusive thoughts, legs feel sick and weak, early morning

Waking feeling almost unable to bear it...

Hanging on by fingernails.

October 3, 2015

EO,

Can you take an Epsom bath? It seems to help me with the leg issues.

Can you lay down and take a nap or rest a bit?

Tgirl

October 3, 2015

Sounds good but head pressure makes it too uncomfortable to sit in a bath or anywhere.

Glad Epsom salt bath helps with your legs.

I'm laying down hoping to get some relief.

Best

October 4, 2015

EO, Just stopping by to say how sorry I am that your battle still rages. You are so brave!

October 4, 2015

Hi Meimeiquest:

Hi, thnx for stopping by so to speak! I don't feel brave, esp now but still holding out for those better times.

Hope you've improved considerably since last we posted.

Best

October 4, 2015

Hi, lifted my head off the pillow and had intrusive suicidal thought. Arms n legs feel weak n strange. Jittery...nerves raw...can't imagine going on like this. Why worse ? Need hope. Stress, anxiety may have thrown me back into this but that's over. Had 3 little Windows a month ago. Head pressure won't quit. Sorry, just feel near hopeless and tortured for too long. Need a safe place to share.

October 4, 2015

Hello EO,

Can you tolerate magnesium? It might help with the head pressure.

Tell those thoughts to hit the road!

Get well,

Tgirl

October 4, 2015

Hi Tgirl. Yes, take lot magnesium at night to help sleep.

No joy, feels like just suffering , can't understand this at this point.

How r u doing?

October 4, 2015

Eq,

You can take mag during the day to. It may help with your head pressure and help you to relax a bit.

I'm hanging in, thanks for asking.

Tgirl

October 4, 2015

EO,

You can take mag during the day too. It might help with your head pressure and help you relax some.

Have you seen a doctor about that?

I'm hanging in.

Tgirl

October 4, 2015

Thnx Tgirl.

Been too health challenged to get to a doctor but in the past she didn't know what to do .

Good you are hanging in there .

October 5, 2015

EO,

Can't you have your son or someone get you there.

Just for a check, to make sure nothing else is going on?

Tgirl

October 5, 2015

Hi Eternal Optimist,

Sorry to hear that you are still feeling unwell 18 months off Rameron.

I can relate to your post about going back to square 1, and feeling like you are at the beginning of your wd symptoms.

I recently had a bad setback since tappering off Mirtazapine.

I feel like I am back to square one too.

On a positive note, I am slowly stabilizing.

Don't loose hope Eternal Optimist. Things have to come to an end at some point.

Unfortunately no one has an answer as to when.

I too get weird sensations, pressure in the head from time to time.

Have you experienced burning , pins and needles in the head?

Do you feel the pressure in your temples?

Is it possible that the natural remedy is causing you to experience the head pressure?

Just a thought.

Best wishes, Hopefull.

October 5, 2015

Reaching out, am nearly where I was when called 911 Nearly 2 years ago,

Can't sleep, shaking, jitteriness, sick, poisoned feeling, intrusive thoughts, depression anxiety. Sooooo scared. 1am...

----

Thnx Hopeful. Glad u r stabilizing. Head pressure is all over. Pins needles not really. Maybe a kind of burning sensation or strange warmth.

October 5, 2015

EO,

Maybe you should go visit the doctor. Just to be on the safe side. All of the symptoms you have mentioned are the same as mine.

Sorry you are not sleeping well.

Tgirl

October 5, 2015

Know she'll have to refer, 2 Drs., drugs..don't know who will take me...so sick, nervous, dang

October 5, 2015

Hi,

Son too far. Significant challenge to even go to the doctor. I did earlier this year , supposed to go for a blood draw, never got to it as it's extremely uncomfortable to be in a car in the morning, anytime right now. Gosh, this feels like early Xanax withdrawal.

Last time I went to my dr. She suggested I go back on Xanax for the rest of my life since I functioned better on it. Haven't been back to her since. Probably refer me to another neurologist another ride another doctor appointment. Sucks to have multiple health problems.

I think the chronic fatigue syndrome plays a role in my difficulty.

Thank you again for your concern and your help. You are precious.

October 5, 2015

Hi EO, I'm sorry to read that you are still in this awful wave. I haven't been around for a while with personal stuff going on so just catching up.

When my daughter had CFS she would be fine for a while then have relapses that had her bedridden for weeks, usually when she did too much. She would feel better and try to do the things most teenagers were doing but it always floored her. Thankfully she started to pace herself and recovered eventually. Sadly you have CFS and withdrawal that makes things worse. A relapse AND a wave together are pretty dire. The good thing is that they will both pass, I hope this doesn't go on much longer for you, take good care of yourself while your body is recovering and treat yourself with the kindness you would show anyone else.

Do you take fish oil? I get awful head pressure and odd feelings in my head if I don't take it for a few days!

October 5, 2015

HI MammaP So nice to hear from you. I hope when you're away from here you are doing considerably better???

I'm so glad your daughter is much better. I didn't pace and got into CFS relapse then WAVE and also old anxiety disorder.

Will that pass too?

I try to doze and then am awake jittering. What's up with that?

I do take fish oil but haven't the last few days as I've felt so rotten, no appetite or thirst and know this isn't good either.

I'm going to try a new remedy tonight for sleep, homeopathic. I know most don't believe in taking anything but I got better

working with this doc and taking remedy so hope this helps. won't name it til I try it. don't want to be too afraid to try something as

I ended up in hospital on Remeron last time I was in this.

thanks again

hugs

EO

October 5, 2015

I think the original anxiety disorder started this setback off along with not pacing and triggering wave.

do any of you have serious anxst disorder and how do you cope? AT times, I have no anxiety and it's a blessing.

thanks

October 12, 2015

Hi again,

Have a question...

I was sooooooo much better off remeron (of 9 weeks use) at 7 months off and for the next year tho did have significant waves.

For the past 2 months, the last month being the worst, I feel as if I'm back in early w/d from xanax and/or remeron...

I've heard and read many start getting worse at 6 months off but that's not the case here, quite the opposite.

I wonder how much of the sxs are w/d or maybe something else? Not catching a break and it has been severe.

The head pressure has been relentless along with cognitive and visual struggles, weakness (including leg sensations of

weakness) and intrusive thoughts.

Anyone know of others who were better for a year then got much worse (from whatever trigger(s))?

Thanks

Best to all.

EO

October 13, 2015

EO,

I think everyone experiences different symptoms at different times. No two brains are alike. No two waves or windows are alike.

What are your symptoms now?

Are you able to sleep? Did you try the homeopathic that you spoke of? Maybe it is what causing your symptoms?

Hope you are well,

Tgirl

October 13, 2015

HI Tgirl and all.

I put my sxs in post above.

This is my morning post now:

I felt as if I'd go insane this morning.. I took 1/2 tablet of calms forte cause I awake so

early and by 5am think I can't do this anymore. I've taken this a few times and not sure

if it helps. Maybe it doesn't. It's homeopathic. I've also cut down the magnesium I take

for sleep just a bit cause I am not drinking enough and having diarhea..feel like i'm in full

blown w/d and I'm not withdrawing from anything. I'm so ill and weak. I don't get to places for

help easily ...

I'm soooooooooooooooooooooooo scared I won't make it this time and didn't take anything.

was this bad 2 years ago when ended up calling 911 ....can't do that again.

I don't think just anxiety is doing all this.

i'm confused, exhausted,

sorry, just need to share..hope ok.

hope you are ok too.

Best

October 17, 2015

Are there those of you who are so compromised you can't even stand to sit in a car and ride a few blocks?

The head pressure seems relentless with weakness ( all over) and arms and legs that feel sick .

Still difficult to wrap my mind around being so ill after having a better year with significant waves but a followed by decent windows.

Anyone relate to being better a long time and then back in it severely? Thnx

October 18, 2015

I don't want to b a downer yet feel the need for some encouragement. I'm hanging on by a thread it seems.

Joy laughter hope seems remote. I'm at a loss for what to say. Will the brain heal just haniging on ?

October 18, 2015

Do you think you could handle the effort and expense of some dietary recommendations? If I were starting over, I would try the Wahls protocol. (By Terry Wahls)

October 18, 2015

Hi MM...thnx for suggestion. Right now I feel too ill to figure this out tho do know about it.

Cont well wishes for healing

October 18, 2015

There really needs to be a place for the weary ones to go and just be taken care of!

EternalOptimist: 17 days on generic remeron, want off

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