EternalOptimist: 17 days on generic remeron, want off

[lolly]

Can you up your dose again? That helped me when I was feeling like you and it's stopped the adrenaline rushes. Maybe get an appointment with your doctor and explain it all and ask to go back up to something like 15mg and slowly taper from there. My sleep is not too bad which I'm grateful of. the feelings of doom are like I feel something bad will happen sudden flashes of fear then I feel like I can't cope.

[chicken]

Chicken

no I am in michigan. I'm glad you are doing well on your new med. What are your current meds?

Lolly

thank you for your reply. Are you sleeping? Do you still get hit with adreal aline rushes? What do you mean feelings of doom?

I am really having a hard time here.

And I can't eat or sleep? I am so shake and tired, scared and confused. It took me forever to write this?

Tgirl,

Are you able to see my sig line? The meds are listed there. I have tapered them about half way since I left the hospital in August.

I was bridged from Remeron to Zyprexa and Pamelor. I was already on tranxene since May. The second night off Remeron all the symtoms dissapeared, anxiety, suicidal thoughts, insomia all left immediately. I checked the calendar every day expecting a withdrawal but so far none. I still have none. Of course I don't know what it will be like when I go off these current meds. Like I said I am half off all of them since I left the hospital. I hope to be off the zyprexa by the end of the year.

 

I sometimes wonder if I had quit Remeron at a higher dose would I have been better. Remeron seems to work backwards from the other ADs since it's in a class of it's own. I remember talking to Dr. Shipko and he knew nothing about tapering remeron, neither did the doc in Asheville know and he specializes in tapering. My current PDoc bridged it. I know most here don't recommend switching to a different drug but it worked for me and at least I was able to keep my job and insurance. I believe this time I will be able to taper much better. At least Pamelor comes in a liquid form.

 

I'm thankful to be stable on these meds. I belive the Lord helped me as  I asked him to give me an my doctor wisdom. Ask the Lord for wisdom when you pray.

 

Remeron does come in liquid form for animals only in the US. A veterinarian can get it for pets but people can't. Go figure.

[tgirl]

Chicken I will keep you in my prayers for an easy taper.

Loli

I feel that upping my dose could hurt me more, it has been a month (I think) @ this dose and I don't want to lose the time (pain) I have put into this drop.

I just want to say thank you to all 3 of you for all your help. And i am sorry I've been such a big baby. You all have your own symptoms and I feel like I haven't support you all as much as you have me. That being said, I'm sure tommow I will be back on here whining. Lol

do any of you seem to have an easier time at night?

I've noticed that after around 7 pm I start to feel a little better. Hmmm.

Although mornings are absolutely horrid especially only getting 2 hour a night. Seems as though I can eat better a night too. I did get some epsom salt and that seems to help the burning sensation in my skin! I need to get some magnesium. Anyone know what brand and what mg. Also, where do you all live?

Thanks again for all your support!

[tgirl]

Oops! Chicken I can't see your signature line. Good night ( I hope)

[tgirl]

Eo, how ya doing today. How's the weather in Ca? It's 30○ here. Yuck! God bless!

[tgirl]

All of us should lobby the US to make a liquid form available. If they are going to put this drug out on the market they should atleast provide a better tapering solution! Rant over!

[EternalOptimist]

Eo, how ya doing today. How's the weather in Ca? It's 30○ here. Yuck! God bless!

Hi Tgirl. Like your rant. does that mean you're a hair better?

Had a rough night again and so was reminded of jus a few months ago so had to work on my thinking.

Feel viral again too. Neighbor took me to eye doc this evening and we were rear-ended at stop light. Got head now back ache but sure I'll be ok.

Thinking of you and all here. Best, EO

[lolly]

Don't worry about whining that's what these groups are for! It's a relief to know others are going through the same as you. I've been where you are so I understand and it does get better.

 

I'm in England and it's cold and raining! Which is normal for the UK

[tgirl]

Hello there,

How is everyone today?

[lolly]

I'm not great I feel sick and dizzy and my anxiety is bad. I feel like I'm on a rollercoaster at the moment up and down. Keep trying to stay positive and try and tell myself I'm healing.

 

How are you doing t girl do you have any plans for your next taper? Or are you just hanging in there? How's your sleep I've been having horrible nightmares x

[tgirl]

I'm not doing so good today. No sleep and I feel defeated! I'm starting to wear down don't feel that I can last much longer like this.

[Meimeiquest]

What part feels unbearable?

[tgirl]

The lack of sleep. The overwhelming suicidal thoughts. The fear. The brain fog. Just feeling like I'm not going to make it so what's the point

[lolly]

Aw t girl I really do fell for you. Please keep us posted every day even if it's just to check in. Remember this will pass just hold on to that. you've gone a month on a massive drop you have done amazing. Hold to thinking you will get a good day next. Then a few good days this is how it gets better. Do you have an appointment to see a doctor soon? I forgot to say a drug called propranolol helped we with sleep and the adrenaline rushes. It reduces adrenaline. You have done so well I really do hope you start feeling better soon

[Meimeiquest]

I am really sorry. What a good night's sleep might do (me too). I think it is hard (not that I know) when you have finished going off everything because it takes away the "if I just hold on till this med is gone" hope.

[tgirl]

I am really struggling with hope. I find I have none. I've lost it all. I feel that I am no longer the person I used to be and will never see her again.I'm scared and just plain tired.

[tgirl]

How are you doing EO?

[EternalOptimist]

Hi Tgirl.

Thnx for asking.

Been having rough time of it last 10 days. CFS relapse with return of w/d Sx and Sx from being read-ended tho think they'd be minor if didn't have these other conditions. Disappointed but not giving up. I had a good run. Waiting for the next one.

Took me few years in xanax w/d til I felt hopeful. I know it's so painfully slow but recovery does come tho not linearly.

I understand you are struggling so much. I am so sorry for this suffering. It's inhumane what some of us go thru to get our lives back.

I hope and pray you hang in There. I used to borrow others' hope as I had none for so long. Do try to distract, stay connected here and get thru the next 5 mins. Til u get thru another day, one day closer to getting out of this.

EO

[tgirl]

Thank you! Hope you see a window soon!

[EternalOptimist]

Posting for self now. This CFS w/d relapse hit all time hi. Then rear ended in car set off more head Sx. Awake most night, diarheA, shaking, trembling, scared cause of ending up in H last Dec. started taking NAC week ago hoping to boost immune system, used to take it ok years ago. Took about 175 mg lysine as antiviral once just yesterday.. Dont know what's going on but won't take any today, Son and g.f. Coming today to cook early Thanksgiving dinner, first time to have T. Dinner with son in many years, don't know of I can cope. Feel fragile, raw, jittery, weak, so weary. Holding on. What to do. Am curled up in fetal position in bed typing w 1 finger. Needed someone to talk to. Thnx

[tgirl]

Hello EO,

Sorry to hear you are not doing so well.

That is great that your son is comin to cook you diner! You will cope.

Remember you told me, DISTRACT!

Remember that.

Eat well

[lundeliz]

Awww EO, I'm so sorry you are going through this at this time.

 

Try not to stress over having company. It's good that you will

 

have family with you today. You will be in my thoughts and prayers.

 

You have been strong for a long time. Hang in there. I'm pulling

 

for you and hope things take a turn for the better very soon.(Hugs)

[EternalOptimist]

Oh, God, thank u my dears. I just cancelled dinner. Didn't know if could enjoy and don't want them to feel stressed around me.

Curled up on couch now. Dang it. Not fair! havent cried yet but feel like it's there. Dang anxiety too, called homeopathic doc early this morn, wonder if she can shed light on what's going on. Up until yesterday, was not going to consult her for rest of the year as she's expensive. Lysine may have been excitatory.

 

hugs to u both

[tgirl]

Perhaps tomorrow will be a better day for

them to visit.

sorry you don't feel well

praying for you.

[EternalOptimist]

Prayers appreciated, thnk u Tgirl.

Son and g,f, are leaving tomorrow for a trip. Maybe after that.

God bless.

[mammaP]

Sorry you have hit this wave EO, the accident wont have helped any and I'm glad you weren't 

seriously hurt. Did you maybe suffer a whiplash? It would have been a traumatic experience 

even without being injured so it is no surprise that you are feeling bad. I'm really sad that you had to 

cancel dinner with your son and hope you will be able to get together when they get back from their 

trip.   Hope you feel better soon EO. Hugs.

[EternalOptimist]

Sorry you have hit this wave EO, the accident wont have helped any and I'm glad you weren't 

seriously hurt. Did you maybe suffer a whiplash? It would have been a traumatic experience 

even without being injured so it is no surprise that you are feeling bad. I'm really sad that you had to 

cancel dinner with your son and hope you will be able to get together when they get back from their 

trip.   Hope you feel better soon EO. Hugs.

Aw, thanks MammaP.  I feel your compassion and thank you.  I looked up whiplash and not sure I have one 

but definitely know the incident has impacted the head sx and probably exacerbated the nervous system, as you suggested here.

Now, a week later, I'm experiencing migraine-like headaches and visual disturbances with light sensitivity.  

My hopes are that you have improved over the last 3 months or so.  I wish it were easier for me to get on this site and read up on others.  Seems like it's all the energy I have to just post when I need and respond to those who respond.  Regardless, prayers for healing for us all.

EO

[lolly]

Hello EO and girl

 

EO how's your CFS relapse? Light sensitivity is horrible isn't it..just want to hide under a duvet, even moving makes you feel awful it's always a sign to me I've done too much physically and mentally. Try to stay away from bright screens and get some peace.

 

Tgirl how are you doing now? I hope you are starting to stabilize. Are any of your symptoms improving at all?

 

Lolly

[tgirl]

Hi lolli,

Yes some of my syptoms have been better.

I do get some sleep , but feel when I wake that I've had non. My body sometimes jersey too and my muscles ache.

hope you are doing well.

[EternalOptimist]

Hi Lolly.

Thnx for checking in, having such awful day. Headache back with a vengeance . Eye dr said come in to make sure retina not detaching...too ill to go in. Anxious , fighting memories of the hell I went thru last yr. how much is w/d, relapse, getting rear ended?

How can it be his bad again? Yesterday was considerably better. Can we do a group hug ?

[EternalOptimist]

Hi lolli,

Yes some of my syptoms have been better.

I do get some sleep , but feel when I wake that I've had non. My body sometimes jersey too and my muscles ache.

hope you are doing well.

I can relate Tgirl to the sleep issue. It did get better and believe it will again. Seems you're some better than when you first posted on this thread?

[EternalOptimist]

Dang if I'm not getting anxiety now. Least the kind I can identify. I'm remembering going down last year this time and telling myself not going to repeat that,

 

Re: shady feeling in one eye,..does anyone identify with this weird Sx? Outer edge of one eye feels like there's a see-thru film.

Thnx

Peace to all

[EternalOptimist]

Hi,

After 3 better months and 8 1/2 months off, can one experience severe wave again? Thnkz

[EternalOptimist]

2am..woke up shaing like a leaf,..feel real sick 2nd time in 5 days woke up shaking but last week had diarhea during the night.

Headaches got little better but head pressure continues. This isn't making sense.

[tgirl]

You poor thing!

Hope it gets better?

[EternalOptimist]

Thnx

Nerves R so raw....started to doze finally at 6 am then my cat me owed . Everytime I move I shake, jitter.

Tortured again. Nothing emotional brought me down but now have PTSD around memories of last year ending up in H then on the drug, overdoing can do me in but now I feel in near danger mode. What to do?