Flowers: tapering citalopram

[Frogie]

9 minutes ago, Flowers said:

I have made a bit of a mess of today.  I didn't sleep well last night as had cramp in my feet. I still awoke early though with heart palps and feeling jittery.  Couldn't face any breakfast and usually I force myself to eat something but nausea was bad and then I forgot. I forgot a lot when I am in wave!

 

I then went out with my husband for most of the day doing some work and then visiting a friend in hospital. Still hadn't eaten anything.

 

Our friend in the hospital has broken 4 ribs and was in a lot of pain and struggling to breathe.  This weirdly brought on anxiety in me and I was struggling to breathe too although I kept it well hidden. It was as though his symptoms had transferred over to me!  I felt as though I was going to pass out. The last time I was in a hospital to visit was nearly 2 years ago when our best  friend died and it brought it all back. I felt so weak and wobbly I could just about make it back to the car.

 

Got home  and felt nauseous, shaky, anxious, trouble breathing so just went to lie on the bed. My brain felt overloaded and my body felt overstimulated. My feet were freezing cold and I couldn't get warm.  Muscles twitching in legs. Still in bed and not feeling much better. Want to sleep but can't.

 

So I have only myself to blame . Concentrating too much on distraction and not enough on relaxing and rest.

 

Note to self: Doing too much while in a wave will make symptoms worse. Take the time to think  first before going into situations (like the hospital visit)  that will upset you. Remember self preservation.

 

This has been a learning day and I will try to look after myself a lot better during this wave and make sure I get enough rest.  No matter how much you want to feel normal in a wave you have to be gentle with yourself.

 

Just wanted to get some thoughts down 'on paper'.

 

Flowers xxx

 

 

 

 

 

 

Hi Flowers:

 

I answered you on my thread.

 

Just want you to know I hope we both feel better tomorrow!

 

Take care,

Frogie xx

[apace41]

20 minutes ago, Flowers said:

 

So I have only myself to blame . Concentrating too much on distraction and not enough on relaxing and rest.

 

Flowers,

 

Don't make the mistake of blaming yourself for wanting to be "normal."  We all are forced into a situation where we can't do what we used to be able to do because we are so compromised from a nervous system perspective.

 

Try to relax and remember that this will pass.  Tomorrow will be better.

 

Hang in there.

 

Best,

 

Andy

[wantrelief]

Oh Flowers, so sorry you aren't feeling well after your full day.  It is so hard to know what to do when we aren't feeling well - sometimes it seems to help to do things, other times not.  It was so kind of you to even try to go see your friend in the hospital.  I am hopeful after you get some rest tonight, tomorrow will be a better day!

[Junglechicken]

Hi Flowers,

 

I know when I was in really bad waves, pushing too much physically just finished me off completely and was a set back to recovery.

 

These days I am much better able to cope, but still nothing like I was in my marathon running days, although I am sure that was all adrenaline fuelled (almost manic) due to my state of mind (completely messed up).

 

We do have to listen to our bodies as they tell us everything we need to know!

 

Love and hugs,

JC xxx

[Flowers]

1 hour ago, apace41 said:

 

Flowers,

 

Don't make the mistake of blaming yourself for wanting to be "normal."  We all are forced into a situation where we can't do what we used to be able to do because we are so compromised from a nervous system perspective.

 

Try to relax and remember that this will pass.  Tomorrow will be better.

 

Hang in there.

 

Best,

 

Andy

Thanks Andy - I know you will understand as you still seem to keep going too somehow!

 

I  get fed up  when I have to give in and rest like an invalid but I know deep down it is for the best.  I should know better than to do too much after all this time in WD.

 

Thanks for your encouragement and support. It means a lot.

 

Love from Flowers xxx

[Flowers]

24 minutes ago, wantrelief said:

Oh Flowers, so sorry you aren't feeling well after your full day.  It is so hard to know what to do when we aren't feeling well - sometimes it seems to help to do things, other times not.  It was so kind of you to even try to go see your friend in the hospital.  I am hopeful after you get some rest tonight, tomorrow will be a better day!

Thanks so much wantrelief.

 

I know it is about getting a balance but sometimes I get a bit carried away and forget I have to be careful. You wouldn't even try to ride a bike with a broken leg would you!

 

I feel so much better since I have come home to rest in bed and be quiet and peaceful. So hope like you say a good nights sleep will bring a better day tomorrow.

 

Thank you for visiting me. Hope you are OK?

 

Love from Flowers xxx

[Flowers]

26 minutes ago, Junglechicken said:

Hi Flowers,

 

I know when I was in really bad waves, pushing too much physically just finished me off completely and was a set back to recovery.

 

These days I am much better able to cope, but still nothing like I was in my marathon running days, although I am sure that was all adrenaline fuelled (almost manic) due to my state of mind (completely messed up).

 

We do have to listen to our bodies as they tell us everything we need to know!

 

Love and hugs,

JC xxx

Hi JC

 

You are so right and I should have known better.  Just got a bit carried away I think.

 

I am going to take your advice and listen to my body from now on and try to get the right balance physically and mentally.

 

Lesson learned.

 

Hope you are OK and having a good weekend.

 

Love and hugs for you too

 

Flowers xxx

[wantrelief]

So glad you are already feeling better after some rest - I definitely think that is a good sign that tomorrow will be a better day for you!

 

I am ok - still no changes really but still hanging on to hope that this will get better in time, as it has for you.  

[RachelSusan]

Flowers,

Thank you for taking the time to post on my page while you are feeling so awful yourself. I am glad you are feeling better with a bit of a rest.  I hope that after a night of sleep you feel even better.

RS

[TikkiTikki]

On 16/10/2017 at 10:45 PM, joy2730 said:

 

I was following someone called TikkiTikki on here, she was withdrawing from citalopram and had gone down to 9 mg and this disappeared off this site, I am hopefully not guessing correctly that it all caught up with her. 

Joy

 

Hi Joy and Flowers,

 

No still going okay!! Down to 8mg now. Stayed at 9mg for 11 weeks in total I think, and now at 8mg for about four weeks. 

I am feeling a little flatter in mood, I think, overall, but have recently started a regular exercise program and avoiding sugar to see if that helps. I was also super busy and then camping in the last few months (hence no presence here).

I'm still committed to tapering right off, but it will be a year or two away I imagine. I was pretty rapid with going from 40–10mg, and always knew this last bit was going to be the business end of thing!!

 

Best of luck to you both,

TikkiTikki

[Scorpio]

Hi flowers

i hope you are feeling a little better after giving yourself a rest last night. I have posted all about the seretide experience on my thread addressed to you but never sure if you get notified. One other horrible symptom I had was excessive hair on my upper lip and chin. It was a daily tweezer time and I was terribly embarrassed about it. Pleased to report that has also gone. 

Look after yourself today, no rushing about. Just remember as you tell me that anxiety and all those symptoms will go your window will be back stronger and longer. Now if I keep saying that to myself I might also start to believe it. 

Let me know if there are any similarities in seretide use. 

Love

scorpio 

[direstraits]

Hi Flowers,

sorry to read about your setback but I understand wanting to do things and trying to  lead a normal life....but unfortunately we just can't do that right now.

we have to remember to put ourselves first,especially in WD...you wanted to be there for your friend ,understandably but it was at your own expense.

 

I hope you had a better night last night and abetter day today.

big hugs,ds

xxx

[Flowers]

On 11/11/2017 at 11:11 PM, RachelSusan said:

Flowers,

Thank you for taking the time to post on my page while you are feeling so awful yourself. I am glad you are feeling better with a bit of a rest.  I hope that after a night of sleep you feel even better.

RS

Thanks RS.

 

Sometimes thinking of others takes our mind off ourselves.

 

Hope you are getting towards that window!

 

Love from Flowers xxx

 

 

[Flowers]

On 12/11/2017 at 5:56 AM, TikkiTikki said:

 

Hi Joy and Flowers,

 

No still going okay!! Down to 8mg now. Stayed at 9mg for 11 weeks in total I think, and now at 8mg for about four weeks. 

I am feeling a little flatter in mood, I think, overall, but have recently started a regular exercise program and avoiding sugar to see if that helps. I was also super busy and then camping in the last few months (hence no presence here).

I'm still committed to tapering right off, but it will be a year or two away I imagine. I was pretty rapid with going from 40–10mg, and always knew this last bit was going to be the business end of thing!!

 

Best of luck to you both,

TikkiTikki

Glad you are doing OK Tikki Tikki.

 

Always nice to hear good news.

 

Love from Flowers xxx

 

 

[Flowers]

20 hours ago, direstraits said:

Hi Flowers,

sorry to read about your setback but I understand wanting to do things and trying to  lead a normal life....but unfortunately we just can't do that right now.

we have to remember to put ourselves first,especially in WD...you wanted to be there for your friend ,understandably but it was at your own expense.

 

I hope you had a better night last night and abetter day today.

big hugs,ds

xxx

Hi DS

 

You are so right - I do need to put myself first but that really goes against my nature so is very difficult.

 

Thanks for your good wishes and hope you are OK?

 

Love from Flowers xxx

[joy2730]

Sorry you are not well Flowers.  You seem to do well but then soon slide back into symptom's again.

 

I have been really naive over withdrawal.  I thought people would have one wave, get over it, have a period of wellness, taper again have another wave and then recover again in a step like fashion. 

 

However Flowers you have kept to 20 mg and repeatedly have gone into waves without tapering further - am I right?

 

I can't see signatures atvpreseñ

 

Joy

 

 

[Frogie]

Hi Flowers:

 

I'm sorry you aren't feeling well.

 

I hope you get a huge window very soon. You deserve it.

 

Just rest and take care of yourself.

 

Take care,

Frogie xx

[Flowers]

18 minutes ago, joy2730 said:

Sorry you are not well Flowers.  You seem to do well but then soon slide back into symptom's again.

 

I have been really naive over withdrawal.  I thought people would have one wave, get over it, have a period of wellness, taper again have another wave and then recover again in a step like fashion. 

 

However Flowers you have kept to 20 mg and repeatedly have gone into waves without tapering further - am I right?

 

I can't see signatures atvpreseñ

 

Joy

 

 

Hi Joy

 

Thank you for visiting me here.

 

No, I am not well and  in another wave. 

 

If only the windows and waves pattern could be as you understood it. I think it is for some but we are all different.

 

I went into a bad WD when my Dr got me off Cit too quickly and it took me a year to get back to normal after that.   Then I tapered last year and  I did a 5% reduction each month or so and had very little problems. Then I crashed and because my symptoms were so severe and dibilitating tried switching to Ven. 

 

It made me so ill that I went back to Citalopram.  It was May before I got my med dosages sorted out and have been trying to stabilise since then. I am getting windows for around 3 weeks now which is lovely and much improved  but then plunge back into a wave. I am not going to start tapering again until I am much more stable. I think that would be a recipe for disaster. 

 

I don't think my pattern of windows and waves is unusual. It is just the CNS trying to stabilise after a lot of disruption in the first half of the year. I haven't changed anything dose wise and don't think there is much more I can do except wait it out. The fact that I am getting these nice windows keeps me going through the waves. 

 

I think I saw you had had a good day yesterday shopping.  I am so pleased your husband is doing well too.

 

Love from Flowers xxx

 

 

 

 

 

 

[Flowers]

32 minutes ago, Frogie said:

Hi Flowers:

 

I'm sorry you aren't feeling well.

 

I hope you get a huge window very soon. You deserve it.

 

Just rest and take care of yourself.

 

Take care,

Frogie xx

Hi Frogie

 

Thanks for being here! Are you just starting your day? It is nearly 4pm here, a lovely sunny day and I have been stuck in the house.

 

This wave started around 2 weeks ago so I am hoping I get some relief soon. 

 

How are you doing today?

 

Love from Flowers xxx

 

 

[Frogie]

4 minutes ago, Flowers said:

Hi Frogie

 

Thanks for being here! Are you just starting your day? It is nearly 4pm here, a lovely sunny day and I have been stuck in the house.

 

This wave started around 2 weeks ago so I am hoping I get some relief soon. 

 

How are you doing today?

 

Love from Flowers xxx

 

 

Hi Flowers:

 

It's Monday, 7:51am. I started my day almost 2 hours ago. I get up before me fiancé goes to work so I can see him.

 

I am having a little anxiety, but nothing like I have been.

 

I'm really sorry that you have been in this horrible wave. Just hold and rest. I hope you come out soon.

 

I'm stuck in the house almost everyday. My fiancé and I decided because of the holidays coming, and the anxiety I'm having, I'm not going back to volunteering until the 1st of the year. Just too much stimulation for me.

 

It's supposed to be in the 60's today, usually we have had some snow by now, wish we would.

 

It's always nice to talk to you.

 

Take care,

Frogie xx

 

 

[Flowers]

Just an Update - hope this wave is peaking. Physical symptoms have worsened and mental symptoms have eased over last day or two.

 

Laying on the bed resting is the only thing I can do to make me feel better. I am not depressed or anxious but feel physically exhausted. 

Still waking early in the morning with heart palpitations and inner trembling. Moving around is hard as feel unsteady on feet, shaking starts and heart starts to bang.  Don't really want to connect with anyone in person today as just can't be bothered to talk.  This is different as I usually get needy and want company in a wave.

 

Want to sleep so much but am unable to even doze. Nausea first thing but that gets  better as day goes on  so can manage to eat a little. 

 

Laying in bed is not so bad as can hear the surf crashing up the beach - my favourite soothing sound.

 

Thank you to everyone for your continued support and care.

 

Flowers xxx

 

 

 

 

[wantrelief]

15 minutes ago, Flowers said:

Hi Joy

 

Thank you for visiting me here.

 

No, I am not well and  in another wave. 

 

If only the windows and waves pattern could be as you understood it. I think it is for some but we are all different.

 

I went into a bad WD when my Dr got me off Cit too quickly and it took me a year to get back to normal after that.   Then I tapered last year and  I did a 5% reduction each month or so and had very little problems. Then I crashed and because my symptoms were so severe and dibilitating tried switching to Ven. 

 

It made me so ill that I went back to Citalopram.  It was May before I got my med dosages sorted out and have been trying to stabilise since then. I am getting windows for around 3 weeks now which is lovely and much improved  but then plunge back into a wave. I am not going to start tapering again until I am much more stable. I think that would be a recipe for disaster. 

 

I don't think my pattern of windows and waves is unusual. It is just the CNS trying to stabilise after a lot of disruption in the first half of the year. I haven't changed anything dose wise and don't think there is much more I can do except wait it out. The fact that I am getting these nice windows keeps me going through the waves. 

 

I think I saw you had had a good day yesterday shopping.  I am so pleased your husband is doing well too.

 

Love from Flowers xxx

 

 

 

 

 

 

I am so sorry you are in a wave, Flowers.  I am hopeful that this will be a short lived one - that maybe it is just a reaction from having done so much yesterday and the hardship of seeing your friend in pain.  It is such a good sign that you have had these lovely windows that you are stabilizing.....you will get there!

[apace41]

1 minute ago, Flowers said:

Laying on the bed resting is the only thing I can do to make me feel better. I am not depressed or anxious but feel physically exhausted. 

Still waking early in the morning with heart palpitations and inner trembling. Moving around is hard as feel unsteady on feet, shaking starts and heart starts to bang.  Don't really want to connect with anyone in person today as just can't be bothered to talk.  This is different as I usually get needy and want company in a wave.

 

 

I'm sorry to hear this, Flowers.  It is such a difficult ride dealing with these meds.  I hope things lift for you soon.

 

Can you distract in some way? Reading, television, podcasts, music, anything to take your mind off the symptoms?

This too shall pass, Flowers.  

 

Best,

 

Andy

[Flowers]

1 minute ago, apace41 said:

 

I'm sorry to hear this, Flowers.  It is such a difficult ride dealing with these meds.  I hope things lift for you soon.

 

Can you distract in some way? Reading, television, podcasts, music, anything to take your mind off the symptoms?

This too shall pass, Flowers.  

 

Best,

 

Andy

Hi Andy - thank you for always  being there.

 

Yes, I can watch TV and read. I  just can't be bothered to do anything today I feel so exhausted. I feel like I am getting over the flu or some other horrible virus. My mind wants me to do things but my body just won't play ball!!!

 

 If I feel better this evening ,which is often the case, I will go into the lounge and watch TV with my husband. 

 

I should be getting used to all this by now but as you know some days are harder than others.

 

Hopefully tomorrow will be better as I have continued to rest.

 

Love from Flowers xxx

 

 

 

 

 

 

 

 

 

 

 

 

[wantrelief]

Hi Flowers,

 

I have been thinking about you and saw your post on Scorpio's thread that you are still in this wave.  How are you feeling today?  

 

You had mentioned on my thread about your wondering if you are in tolerance/poopout.  I was curious why you think that about yourself? I am not sure if this is what is going on with me or not....but I did get full on withdrawal symptoms at a full dose when triggered with stress so maybe this is happening to me. But the same thing would happen to me at lower doses too.  It is all so confusing.  :/  I do wonder if there is something to what you said about something being different in the way we metabolize this drug?  I am so sick of thinking about all of this and wish I could just make it all go away for all of us!  I guess for now we have no choice but to hold where we are and hope to stabilize.  

 

I saw that you have the show Outlander.  My sister is really into that show - I think it can be quite violent but is some sort of time travel romance.....if the violence is not triggering for you, it might be a good escape!

 

I hope you are feeling a bit better today.  

 

 

[Flowers]

2 hours ago, wantrelief said:

Hi Flowers,

 

I have been thinking about you and saw your post on Scorpio's thread that you are still in this wave.  How are you feeling today?  

 

You had mentioned on my thread about your wondering if you are in tolerance/poopout.  I was curious why you think that about yourself? I am not sure if this is what is going on with me or not....but I did get full on withdrawal symptoms at a full dose when triggered with stress so maybe this is happening to me. But the same thing would happen to me at lower doses too.  It is all so confusing.  :/  I do wonder if there is something to what you said about something being different in the way we metabolize this drug?  I am so sick of thinking about all of this and wish I could just make it all go away for all of us!  I guess for now we have no choice but to hold where we are and hope to stabilize.  

 

I saw that you have the show Outlander.  My sister is really into that show - I think it can be quite violent but is some sort of time travel romance.....if the violence is not triggering for you, it might be a good escape!

 

I hope you are feeling a bit better today.  

 

 

Hi WR

 

Thanks for thinking about me.  I was only wondering if I was in tolerance because it takes me so long to stabilise after any major changes like I have had this year.  I  don't think any of us can handle much stress anymore, it is a big trigger for WD symptoms.

 

I have been trying to get a liver enzyme test (gene test) done which shows  if we have the right enzymes to metabolise or tolerate different types of  AD's. I have had 2 trips to a clinic who will do the blood test. It is 2 hours drive away and each time I haven't been able to get it done for operational reasons. I am still hoping to get this done. It might not show anything of any value but you never know.

 

I haven't started watching Outlander yet - thanks for the tip off re the violence. I will shut my eyes for those bits!lol!  Is it on the TV in US? I only have Series 1 and will see how things go. My friend who bought it for me says if I like it she will get me the next Series for Christmas. Better start watching it soon.

 

I have had a better day today but am still having symptoms so just resting really. I did get out for a drive with my husband earlier. I hate staying in the house for days on end - it makes me worse!

 

How are you today? What do you do to pass the time? 

 

Love from Flowers xxx

 

 

 

 

 

 

[wantrelief]

17 minutes ago, Flowers said:

Hi WR

 

Thanks for thinking about me.  I was only wondering if I was in tolerance because it takes me so long to stabilise after any major changes like I have had this year.  I  don't think any of us can handle much stress anymore, it is a big trigger for WD symptoms.

 

I have been trying to get a liver enzyme test (gene test) done which shows  if we have the right enzymes to metabolise or tolerate different types of  AD's. I have had 2 trips to a clinic who will do the blood test. It is 2 hours drive away and each time I haven't been able to get it done for operational reasons. I am still hoping to get this done. It might not show anything of any value but you never know.

 

I haven't started watching Outlander yet - thanks for the tip off re the violence. I will shut my eyes for those bits!lol!  Is it on the TV in US? I only have Series 1 and will see how things go. My friend who bought it for me says if I like it she will get me the next Series for Christmas. Better start watching it soon.

 

I have had a better day today but am still having symptoms so just resting really. I did get out for a drive with my husband earlier. I hate staying in the house for days on end - it makes me worse!

 

How are you today? What do you do to pass the time? 

 

Love from Flowers xxx

 

 

 

 

 

 

Yes, I was wondering the same about the length of time to stabilize for me as well, if this means I am in some sort of tolerance.  Stress is definitely a big trigger for WD symptoms.....mine just seems like such an extreme reaction.  If you do end up getting the enzyme test, I'd be super curious to know what it shows.....maybe there is something to the way our bodies are reacting to SSRIs that make it so difficult to get off of them.  I was speaking with a friend last night who had been on an AD (unsure how long) and did a quick taper off without any problems.....I think this is why we confuse medical providers as there are people out there who don't have any problems with these medications.  It seems so strange to me given all of us on here but there is this other side where folks don't suffer this way.  So unfair!  Sorry - had to be childish there for a minute.

 

SO glad to hear you have had a better day today even though symptoms are still present.  

 

Outlander is on TV here.  I think it now into the 3rd season or something like that.  I hope you like it if you watch it!

 

I know what you mean about staying in the house.  It is such a strange time for me as I don't feel like doing anything but then get tired of being in the house - but then can't even think about what I would like to do.....it is really an awful feeling (normally I would be able to think of things I would like to do).  So I do make myself get out as well to help pass the time.  Yesterday I met a friend for lunch, today I have an appointment. I'll try to do a little bit of housework here and there.  I can't usually concentrate very well on TV but do watch it at night with my husband.  I find I can concentrate on reading here - I guess it is the only thing I can relate to at the moment or it is my brain's way of trying to figure out what is going on. 

 

Sorry for the long post on your thread.  I am really pleased to hear you have noticed some improvements....I hope with more rest, you'll experience another wonderful window!

[Flowers]

2 minutes ago, wantrelief said:

Yes, I was wondering the same about the length of time to stabilize for me as well, if this means I am in some sort of tolerance.  Stress is definitely a big trigger for WD symptoms.....mine just seems like such an extreme reaction.  If you do end up getting the enzyme test, I'd be super curious to know what it shows.....maybe there is something to the way our bodies are reacting to SSRIs that make it so difficult to get off of them.  I was speaking with a friend last night who had been on an AD (unsure how long) and did a quick taper off without any problems.....I think this is why we confuse medical providers as there are people out there who don't have any problems with these medications.  It seems so strange to me given all of us on here but there is this other side where folks don't suffer this way.  So unfair!  Sorry - had to be childish there for a minute.

 

SO glad to hear you have had a better day today even though symptoms are still present.  

 

Outlander is on TV here.  I think it now into the 3rd season or something like that.  I hope you like it if you watch it!

 

I know what you mean about staying in the house.  It is such a strange time for me as I don't feel like doing anything but then get tired of being in the house - but then can't even think about what I would like to do.....it is really an awful feeling (normally I would be able to think of things I would like to do).  So I do make myself get out as well to help pass the time.  Yesterday I met a friend for lunch, today I have an appointment. I'll try to do a little bit of housework here and there.  I can't usually concentrate very well on TV but do watch it at night with my husband.  I find I can concentrate on reading here - I guess it is the only thing I can relate to at the moment or it is my brain's way of trying to figure out what is going on. 

 

Sorry for the long post on your thread.  I am really pleased to hear you have noticed some improvements....I hope with more rest, you'll experience another wonderful window!

Don't apologise WR. It is so nice to talk with you and maybe help each other in some way.

I have friends too who just start and stop AD's with no problems. I have done this in the past but it was a long time ago when I was younger.  It is unfair but they may be where we are now one day.  I have tried explaining to them about what has happened to me but they think their Dr's know best so it's a waste of time.

 

The enzyme test is to show if I have the right enzymes to process these drugs. If not then it can mean I get side effects from the drugs. They can actually tell you which AD's are best for you to take so I will definitely get it done soon. Not that I ever want to take another AD again! It would be interesting to see how my body deals with Citalopram.

 

I am so like you - can't always handle much but can manage to read on this site. It has been a life saver.

 

I am glad you are able to get out to meet friends etc even if you don't feel like it.  I watch TV in the evenings too with my husband. Not that  there is much that I like at the moment!

 

Keep in touch and let me know how you are doing.  Lets hope things get better for us soon.

 

Love from Flowers xxx

[apace41]

1 hour ago, wantrelief said:

 I was speaking with a friend last night who had been on an AD (unsure how long) and did a quick taper off without any problems.....I think this is why we confuse medical providers as there are people out there who don't have any problems with these medications.  It seems so strange to me given all of us on here but there is this other side where folks don't suffer this way.

 

It is one of the great uncertainties in this area WR as to what percentage of people suffer withdrawal from getting off SSRIs.  It depends on a lot of factors including things like length of time on, amount taken and which AD we are talking about.  In general, however, the estimates are from a low end of 20% of people to a high end of 60% of people.  Of course, it is hard to know how that is measured and whether that includes people who are having some symptoms but don't "know" it is withdrawal.

 

Best,

 

Andy

[wantrelief]

That is interesting, Andy.  This might be what you are saying, but I do wonder if the percentage is higher in that some people are not counted as they end up back on an AD thinking they have had a "relapse" when in actuality it was WD.

[apace41]

Just now, wantrelief said:

That is interesting, Andy.  This might be what you are saying, but I do wonder if the percentage is higher in that some people are not counted as they end up back on an AD thinking they have had a "relapse" when in actuality it was WD.

 

That is definitely a piece of it WR.  It's so hard to determine how they come to the percentages.  I personally believe there are a TON of people out there living suboptimal lives (by a long shot) because of the meds who don't know it's because of the meds.

 

Best,

 

Andy

[Hopefull]

Hi Flowers, 

Just wanted to see how you are doing.

It has been a while. 

Hang in there and take care. 

Best wishes,  Hopeful. 

[Flowers]

6 hours ago, Hopefull said:

Hi Flowers, 

Just wanted to see how you are doing.

It has been a while. 

Hang in there and take care. 

Best wishes,  Hopeful. 

Hi Hopefull

 

Really great to hear from you. I do read your thread and see that you are doing well. That is fantastic.

I am in a wave and suffering again. PGAD has flared up again this time too which as you know is no fun.

I am sure I read somewhere that you had a pharmogenetic test done? Did it show up anything?

I am hoping to get this done soon.

 

Love from Flowers xxx

 

[bheb]

Hi Flowers. Thought I'd stop by and say hi since I have some similar symptoms...shaky agitation, uneasiness, restlessness. Hope those things are at bay for you right now though I see you mention PGAD is acting up.

 

Also wanted to mention, as wantrelief brought up, that I too have lots of friends and family members on ADs that hop on and off at high doses with 0 problems. It makes it all the more less believable to them that people can feel this way. But also as Andy points out maybe they do suffer just haven't connected the dots. 

[Flowers]

7 hours ago, bheb said:

Hi Flowers. Thought I'd stop by and say hi since I have some similar symptoms...shaky agitation, uneasiness, restlessness. Hope those things are at bay for you right now though I see you mention PGAD is acting up.

 

Also wanted to mention, as wantrelief brought up, that I too have lots of friends and family members on ADs that hop on and off at high doses with 0 problems. It makes it all the more less believable to them that people can feel this way. But also as Andy points out maybe they do suffer just haven't connected the dots. 

Hi bheb

 

Nice to meet you and thank you for visiting my thread.

 

I am sorry you are going through similar symptoms with agitation etc. It is the pits isn't it? I am in a wave at the moment and the shakes etc are really bad. In a window they are much easier to cope with and sometimes go away altogether.  

 

I try to get out and walk somewhere each day even if it is just around the town. It does help with the agitation sometimes. 

 

I don't understand why some people don't have any ill effects from taking or coming off AD's.  Two of my family members changed AD's and although they had a couple of days they weren't feeling great it was nothing like what we experience.  Just lucky I guess?

 

How are you today?

 

Love from Flowers xxx

[bheb]

30 minutes ago, Flowers said:

Two of my family members changed AD's and although they had a couple of days they weren't feeling great it was nothing like what we experience.  Just lucky I guess?

 

So strange...you would also think there must be something genetic that makes one more susceptible, but haven't seen any proof of that in my own experience.  

 

Do your waves include all your symptoms? Or do you have waves of specific ones?

 

I'm not so great either myself. I don't have any gnawing agitation in my limbs currently, but more uneasiness throughout my chest and whole body. Maybe a little terror too. Hope a window is around the corner for you and me both.