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DaveB

DaveB: Trying to stop a roller coaster year

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DaveB
3 hours ago, brassmonkey said:

Well Dave, you've made three extremely large changes in just a few months.  It's not quite a CT but pretty darn close. Any large udose is just going to cause a lot more trouble.  It may be possible to take the edge off of the symptoms with a very small updose like in the 1 to 2 mgai range.  Read through the,thread on updosing and see what you think.  You'll have to ride this one out for a long time, hopefully the updose will take the edge off.

 

I know that paxil causes a lot of problems with hormones, but I really don't know how it will react with the T shots.  My guess is not good.  Tapering shots can be a really messy process, but again I don't know what just stopping them will do. 

 

Thanks @brassmonkey, appreciate you weighing in with your insights. I really wish I hadn’t tried the T shots, but not sure if staying on them or discontinuing them is best at this point. No question I have been worse since I started them. In the spring I was having whole week windows, that simply isn’t happening anymore. I know my tapering has been much too aggressive, I just am fed up with taking a medication that doesn’t help anything.

 

Anyone experience PE when coming down or off an SSRI? Does it go away?

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ChessieCat
8 hours ago, DaveB said:

Of topic: has anyone experienced REALLY premature ejaculation when tapering down or off Paxil or any other SSRI?  

 

5 hours ago, DaveB said:

Anyone experience PE when coming down or off an SSRI? Does it go away?

 

If it happened after the T shots, they might be the cause.

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DaveB
24 minutes ago, ChessieCat said:

 

 

If it happened after the T shots, they might be the cause.

 

Thatvis interesting, can they cause that?

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ChessieCat

That's not SA's focus.  I suggest you google it.

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DaveB
11 hours ago, ChessieCat said:

That's not SA's focus.  I suggest you google it.

 

I understand, thanks for the tip! Is it the consensus that I should quit the testosterone? Or is that changing two things at once with my recent dose reduction? Are there going to be withdrawals related to stopping the T shots? Also they give me an estrogen blocker called anastrazole, anyone know anything about that drug?

 

Also big thanks to @RusTW who has been helping me through DM work through some of this testosterone stuff. 

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ChessieCat
7 hours ago, DaveB said:

Are there going to be withdrawals related to stopping the T shots? Also they give me an estrogen blocker called anastrazole, anyone know anything about that drug?

 

As previously stated, SA's focus is on psychiatric drug tapering.  I suggest that you find sites which deal specifically with testosterone issues which will be better able to offer suggestions about whether you should get off them and how to get off them.  I'm sure that they would exist.

 

On 8/13/2018 at 7:29 AM, Altostrata said:

 

In general, I would be careful with any steroid therapy during withdrawal (or any other time). Bumping up one hormone tends to imbalance everything else, because the body depends on self-regulation.

 

There seems to be a lot of overselling of testosterone treatment right now, with much near-quackery, playing on male insecurities. Be very cautious.

 

 

 

7 hours ago, DaveB said:

Or is that changing two things at once with my recent dose reduction?

 

It may be best to wait until you are stable after the recent reduction.  You made 3 huge reductions to Paxil so it may be several months before you are stable.  If you are going to reduce your testosterone you will need to decide when it will be best to do this.  Keep it Simple, Slow and Stable

 

You will need to keep daily symptom notes so you can be objective about how things are going.

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DaveB
1 hour ago, ChessieCat said:

 

As previously stated, SA's focus is on psychiatric drug tapering.  I suggest that you find sites which deal specifically with testosterone issues which will be better able to offer suggestions about whether you should get off them and how to get off them.  I'm sure that they would exist.

 

 

 

 

It may be best to wait until you are stable after the recent reduction.  You made 3 huge reductions to Paxil so it may be several months before you are stable.  If you are going to reduce your testosterone you will need to decide when it will be best to do this.  Keep it Simple, Slow and Stable

 

You will need to keep daily symptom notes so you can be objective about how things are going.

 

Great advice, I really appreciate it. I think I will slowly make some reductions in the testosterone to see if it may help. 

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DaveB

Happy Thanksgiving to all you brave amazing people. Still a struggle for me (probably worse on 10 mgs than I was on 20) but I guess I a thankful that I am on less of this garbage medication than I was a year ago, 30 meg less to be precise.

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RachelSusan

Well thank you Dave.  You post really made me feel good. Not the part about you feeling less that par of course, but the wishes made me feel good. Happy Thanksgiving to you as well.

RS

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Rosetta

Happy Thanksgiving to you, too, Dave

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DaveB

Just checking in, really not doing well. Am I ever going to get better? I know I have made some big medication cuts, but I wasn't doing well on the higher dose of the medication either. Not sure if it is the cuts, the testosterone therapy, or just life stress, but I am really sick of it. I welcome any advice or encouragement. 

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Rosetta

I'm sorry you feel so bad.  All I can tell you is that you have to savor those moments when you feel better, make gratitude lists, and remember that if you are sleeping you are healing.  It is so slow.  I'm sick of it, too.  I can't believe how long this takes.  

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RachelSusan

I know you are suffering but you will get through this.  Just keep reminding yourself that time is your friend. Hold on and you will stabilize.

RS

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VincentV
22 hours ago, DaveB said:

Just checking in, really not doing well. Am I ever going to get better? I know I have made some big medication cuts, but I wasn't doing well on the higher dose of the medication either. Not sure if it is the cuts, the testosterone therapy, or just life stress, but I am really sick of it. I welcome any advice or encouragement. 

 

 

I'm still still a newbie at this but, from what I've read the brain needs time to get used to dosages. From what I gather 'stabilisation' doesn't necessarily mean you feel 'ok' it just means you've reached a point where your mood, even if its a low anxious one, is stable.  If you feel anxious all day in waves and consistantly better by evening in a regular cycle with no new or dramaticly worsening symptoms, then surely, that's stable?  Get your self to point where the days are fairly consistent, even if they're horrible, and taper.  I hope that helps. Like you, almost all of my day is awful, the only repreave comes at around 6pm. When I still don't feel 'normal', just a lot less in pain. I wish I'd have tapered Sertraline properly the first time around rather than trusting the advice of those who said 8 weeks would be enough.  One day when we're better we'll sue. We'll march, and protest and hold those who have done this to us to account.  I want to believe we will anyway.  You've just got to stay strong there is no other way.  I saw a vid of a guy who'd had extremely bad akathisia from ssris for four years today. If he can go on living, we all can. 

 

 

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DaveB
10 hours ago, VincentV said:

 

 

I'm still still a newbie at this but, from what I've read the brain needs time to get used to dosages. From what I gather 'stabilisation' doesn't necessarily mean you feel 'ok' it just means you've reached a point where your mood, even if its a low anxious one, is stable.  If you feel anxious all day in waves and consistantly better by evening in a regular cycle with no new or dramaticly worsening symptoms, then surely, that's stable?  Get your self to point where the days are fairly consistent, even if they're horrible, and taper.  I hope that helps. Like you, almost all of my day is awful, the only repreave comes at around 6pm. When I still don't feel 'normal', just a lot less in pain. I wish I'd have tapered Sertraline properly the first time around rather than trusting the advice of those who said 8 weeks would be enough.  One day when we're better we'll sue. We'll march, and protest and hold those who have done this to us to account.  I want to believe we will anyway.  You've just got to stay strong there is no other way.  I saw a vid of a guy who'd had extremely bad akathisia from ssris for four years today. If he can go on living, we all can. 

 

 

 

Interesting thought, maybe that is stable? To be fair I have reduced my Paxil load a great deal in the last few months. Hopefully the mornings can become a little more manageable soon.

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DaveB

Does it matter much when I take Paxil as far as morning or night? Right now I take it before bed with the Zyprexa, is that ok or would morning be better?

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DaveB

Just wanted to document I have decided to stop the testosterone injections. I feel the up and down nature of getting a weekly shot has only added to my instability and anxiety. I was actually starting to do much better in May before I started the injections. Hoping I haven’t done too much damage by fast tapering Paxil down to 10mgs. My brain should sort it all out over time, that is the idea right, our bodies eventually figure this out and stabilize?

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ChessieCat

I suggest you make yourself aware of the possible withdrawal symptoms:  https://mentalhealthdaily.com/2014/08/06/testosterone-withdrawal-symptoms-what-you-may-notice/

 

From the list on that website, it would be very easy to attribute testosterone withdrawal to AD WD.

 

You will need to keep daily symptom notes so that you can be objective about your symptoms.  It might also be helpful to rate them.   Rate Symptoms Daily to Check Patterns and Progress

 

Patience is going to be necessary, and you will need to try not to panic.  When we panic we can make bad decisions.  If you did decide to updose the Paxil, my suggestion would be to not increase your dose to more than 15mgs.

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DaveB

On, great info and thank you. I am not going to lie, it scared me a little bit and has me doubting whether to quit the injections. My body would go back to producing the testosterone on its own, correct?

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ChessieCat
42 minutes ago, DaveB said:

My body would go back to producing the testosterone on its own, correct?

 

No idea, you'll have to do your own research about that.

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RachelSusan

Hi Dave,

 

As I have just read in the link provided by ChessieCat, there are many factors that could contribute to Testosterone withdrawal.  From what I can understand it appears to be a type of a steroid.  I know that when people go off an oral steroid too fast they can have a heck of a problem. Also people in AD WD can be beaten up with steroids - on or off - I know, I'm one.  Should you perhaps talk to you Testosterone provider and tell them you have problems when decreasing certain types of meds? You don't have to discuss AD WD if you don't want, because it may complicate the conversation, but it might be worth getting their input as to the safest way to go off the shots. You are already suffering from a rapid change in your Paxil, don't add to your suffering by reacting to suddenly.  Perhaps do some investigating, as well as talk to your provider?  It might in indeed be right for you to go off, just be cautious as to HOW you go off.

 

Respecfully

RS

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DaveB

Thanks Rachel, all good thoughts I need to consider.

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DaveB

Today is an exceptionally bad morning. Was hoping not getting the testosterone shot this week would improve things. 

 

I did get a numbing shot shot in my nose yesterday by the dermatologist before he cut something off...any way that could be affecting me today...or am I grasping at straws?

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DaveB

I am guess no one has had a similar experience with a numbing shot by a dermatologist? Thought it may be grasping at straws...not sure why today was so bad though.

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ChessieCat

It might just be general anxiety with having to have a procedure and being concerned about that and any effects.

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Gridley

DaveB,

 

Everything in WD in so individual.  I had a a numbing dematogical shot this pm and it didn't have any effect on me.  For what its worth.

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DaveB

Really struggling today, is this ever going to get better? This just feels impossible to keep on going through this.

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Rosetta

I know.  I'm not sure how I got this far, but if I did, you can.

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DaveB
3 hours ago, Rosetta said:

I know.  I'm not sure how I got this far, but if I did, you can.

 

Rosetta, you are so sweet and strong. Thanks for letting me know you are here and you care. How are you? Making any progress? Feeling any better?

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Rosetta

Yeah, I'm better.  I know this because I can do more.  My sleep is worse, but I am activated all day long.  So, I'll be glad when sleep improves.  Still having a lot of cortisol issues through the night and in the morning.  They are probably the worst part right now.  Like you, anxiety is a big problem.  After it wears off, I am so exhausted, but I can't nap.  Fortunately, I can still see the long term improvement, and I have faith all will return to normal in time.  It will for you, too, but I know how hard it is to live through this, Dave.

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