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PSSD Post-SSRI sexual dysfunction

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CharlieBrown

Hey everyone! Unfortunately medication side-effects can be permanent. But I feel there are a lot more people out there who recover and never speak of their sexual issues.

 

I didn't recover for about 5-7-10 years. It was gradual, after only a year on various meds, I was "ruined" for years. But I wasn't ruined. I am whole again.

 

I think in time many can and will recover.

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Shar244
4 hours ago, CharlieBrown said:

Hey everyone! Unfortunately medication side-effects can be permanent. But I feel there are a lot more people out there who recover and never speak of their sexual issues.

 

I didn't recover for about 5-7-10 years. It was gradual, after only a year on various meds, I was "ruined" for years. But I wasn't ruined. I am whole again.

 

I think in time many can and will recover.

 

2 years 7 months off for me now and it has felt like a lifetime. It must have been amazing for you to finally heal! Would you say you’re 100% back to pre med state now? I hope I’m one of the lucky ones! Take care :) 

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Ryguy

PSSD can last years and years and years 

 

 

my only suggestion:

 

dont kill yourself

 

eat omega 3 meats in small amounts, sashimi/eggs

 

and most importantly 

 

megadose citrulline along with citrulline rich foods, yellow watermelon juice, beet juice, cucumber juice 

 

use 10 grams a day, work yourself up, and stay on for a month... 

 

only advice 

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Spruce30

I have been in a wave with this PSSD for about 6 weeks now. Genitals as numb as ever, zero libido, pleasure less orgasms. I had quite a good window through April and May and was feeling fairly confident i had put the bad waves behind me, but then the rug was pulled out from underneath me. Yet again. It is quite hard to stay positive.

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rowdybaby098
8 minutes ago, Spruce30 said:

I have been in a wave with this PSSD for about 6 weeks now. Genitals as numb as ever, zero libido, pleasure less orgasms. 

Hi,

Do you find any improvements in your PSSD ??

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Spruce30

Yes i do rowdybaby098, but the improvements are small, and some days i feel i am going to be an old man before i recover.

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CharlieBrown
On 7/8/2019 at 4:16 AM, Shar244 said:

 

2 years 7 months off for me now and it has felt like a lifetime. It must have been amazing for you to finally heal! Would you say you’re 100% back to pre med state now? I hope I’m one of the lucky ones! Take care :)

 

Yes, I am 100% … I can say with absolute certainty that I am recovered from SSRI side-effects.

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Spruce30

Just so we don't forget. A year ago today a young man called Ali from Iran who used to post on the PSSD facebook group took his own life. He was 23 and posted just before taking his life, that he was doing so because he could no longer live with PSSD. I just wanted to remember him on here. Please everyone with PSSD,  let us keep going for Ali's sake, and let us not stop until the world becomes aware of this hell called PSSD, and all the other withdrawal problems from SSRI's too. We must not stop until the world knows the truth of what happened to us.

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rowdybaby098

Let me tell my story,

Took Escitalopram 5mg for 1 month. Cold turkeyed it. In October 2018. It's been around 9 months off from Escitalopram.

 

Suffering with PSSD. No morning erections. No libido. Nothing at all....

 

Last month I started taking 5grams of black maca powder along with watermelon juice or warm milk. Added fish in my diet (4 times in a week). Hitting gym(mainly focusing on Squats and dead lifts and cardio moderately).

 

With in 10 days I got my first morning wood. Very less improvement in libido. 

 

It's been around 30 days since I am on this life style. Random erections are improved. Slight improvement in libido. 

 

I don't know wether it is a proper observation or not, 5 days back one random girl near one traffic signal turned me ON!!! I felt completely normal for 2 minutes. After that again back to low libido state. 

 

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Shar244
11 hours ago, CharlieBrown said:

 

Yes, I am 100% … I can say with absolute certainty that I am recovered from SSRI side-effects.

 

So happy for you! Only the people that are going through/have been through this will understand the complete and utter desperation to be back to normal. You’ve given me hope.. just wish I could fast forward the years and see what the future holds. It’s the not knowing that often worries me so much, if I knew I’d be ok in say 5 years time it wouldn’t play on my mind every day! 

 

Do you have any any advice that you think helped you to recover? Or would you just put it down to time? 

 

Thanks, Shar 

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CharlieBrown
On 7/18/2019 at 3:46 PM, Shar244 said:

 

So happy for you! Only the people that are going through/have been through this will understand the complete and utter desperation to be back to normal. You’ve given me hope.. just wish I could fast forward the years and see what the future holds. It’s the not knowing that often worries me so much, if I knew I’d be ok in say 5 years time it wouldn’t play on my mind every day! 

 

Do you have any any advice that you think helped you to recover? Or would you just put it down to time? 

 

Thanks, Shar 

 

You're welcome, I felt the need to share my story with others on this site. In 2010-2015 I was very distressed about PSSD. I was alone and couldn't really talk to anyone. I thought it would never end. I found this website, people here helped me. It was on outlet, where I could share my feelings and was given support from strangers.

I feel this website is much better than other support forums. Thanks to the creators, administrators and especially.

 

Though I don't post, or visit often. I came back after years to share "My Story" that recovery is very possible. I always like to mention the bell-curve of recovery. Everyone is somewhere on the curve. No one knows what the future holds... I can understand the worry, but we don't know what happens after we die. Does that play on your mind everyday?

 

I have been "through the mill" in the past 10 years. I didn't expect it, or worry about it, until after. But troubles come and go. I think it's better to not know the future. Though I do think about death of course.

 

What helped me recover? It was time, I didn't do anything really. Supplements I tried were bad. Abstinence from drugs is what I would recommend. But I'm not a Dr.!

I think that, belief, faith or hope. That you will recover is important. I think that eating right and exercising is helpful. It fills time and can make you feel good, once you're into a routine. Fruit smoothies are great! But faith in recovery surely counted for something.

 

I knew I would change and recover, I let things be for a few years, and everything went back to normal "downstairs."

 

God Bless You.

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Altostrata

Thanks, CharlieBrown, and thanks for your success story

 

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CharlieBrown
3 hours ago, Altostrata said:

Thanks, CharlieBrown, and thanks for your success story

 

Oops! A typo in my last post. "THANKS ESPECIALLY TO THE ADMINISTRAITORS" Thanks for posting "My Story." I am grateful for the avenue this website has given me, to help myself and others.

That means you Altostrata! and all the others who have given me support over the years. (Sorry, I won't name you all now, but you know who you are.) I am truly grateful for everyone who has conversed with me.

 

It's satisfying to me and helpful to others, I know there are many people who recover from side-effects and never speak of them before or after. I want to be a voice that says: "It may take years, it will be hard, but in time, your body changes and recovery from medication side-effects is not only possible it is highly probable!"

 

If anyone is in doubt, look at the numbers of people prescribed SSRI's or other meds, and then compare that to people speaking and complaining about chronic issues related to the drugs.

 

Many people will not express the full extent of the side-effects they experience, or even know what reactions in their body may be occurring. (It is now reported that over 50% of SSRI users have some form of sexual dysfunction.) I feel the majority of post SSRI/SNRI/Anti-psychotic/Benzodiazepine/Whatever else. Drug users are ashamed of PSSD and other mental side-effects. The social stigma keeps them from speaking about current pain, and once they have their issues resolved, they want to distance themselves from any thought of previous sexual dysfunction or mental instability.

 

Thanks again Altostrata and others!

 

For anyone struggling, know you are not alone, though you may feel it. There is a light. Hold fast!

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PgadAdam

i only took 1 dose of Setraline 50mg in march and suffering from for pssd for 4 and a half months symptoms are as follows: emotional blunting, anhedonia,apathy, no sex drive, difficulty maintaining erections,brain fog and memory loss. is this likely to last a long time or even possibly be permenant from a single pill? i only was able to find out about the dangers of SSRI's after taking it unfortunately :(

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Spruce30

People do recover Pgad Adam, but it can take a long time, often many years

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PgadAdam
1 minute ago, Spruce30 said:

People do recover Pgad Adam, but it can take a long time, often many years

have u talked with other people who have it from single pill?

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Spruce30

Yes. It can happen after one pill

 

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DavidfromTexas

Each time I have dropped down in medication dosage I have noticed increasing issues with PE. 

When I am taking a higher dosage or a mid-level dosage of Cymbalta steadily, I have no issues with lasting a decent/average amount of time. But now that I have been experiencing some withdrawals (really just emotional), I am wondering if once my system stabilized and/or once Im completely off the medication after tapering off correctly, if this is an issue that should resolve itself??

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Ryguy

alto you are incredibly informative and well versed in withdrawal, there seems to be one conclusion from your findings, that there is no clear cut answer, maybe the body will heal itself in its own time, but proper diet and some very mild supplements can be somewhat beneficial? it seems you are just encouraging patience more then anything else. 

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frasier23
On 7/18/2019 at 8:31 AM, CharlieBrown said:

 

Yes, I am 100% … I can say with absolute certainty that I am recovered from SSRI side-effects.

Any tips & tricks? :)

 

Read your success story so nv.

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frasier23
On 7/10/2019 at 6:51 AM, Ryguy said:

PSSD can last years and years and years 

 

 

my only suggestion:

 

dont kill yourself

 

eat omega 3 meats in small amounts, sashimi/eggs

 

and most importantly 

 

megadose citrulline along with citrulline rich foods, yellow watermelon juice, beet juice, cucumber juice 

 

use 10 grams a day, work yourself up, and stay on for a month... 

 

only advice 

Hey Ryguy and thanks for your advices.

 

How much citrulline do you take and with/without food?  Do you believe supplementing with citrulline will create permanent results or just temporal like with Cialis?

Do you press your own juice everyday or whats your routine?

 

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Ryguy
Just now, frasier23 said:

Hey Ryguy,

 

How much citrulline do you take and with/without food?  Do you believe supplementing with citrulline will create permanent results or just temporal like with Cialis?

Do you press your own juice everyday or whats your routine?

 

hey frasier23, 

 

i use supplements, nitric oxide pills, they are completely natural, zero side effects or anything, and also drink pressed juices, either from whole foods or i do it myself, usually watermelon/cucumber for citrulline content, but in all honesty ive been doing it for about 3 months now, and id say the progress is about 5-7% %, its noticeable on some level , but i don't think its going to get me passed 5-7% , because i think the damage my body has taken from SSRIS has nothing to do with increasing nitric oxide. or if it does, its only a small piece in the puzzle....i think my body just needs to heal...but taking nitric oxide supplements and drinking pressed juices certainly won't do any harm , in fact it might be a healthy addition to whatever your diet is currently.... 

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frasier23
12 minutes ago, Ryguy said:

hey frasier23, 

 

i use supplements, nitric oxide pills, they are completely natural, zero side effects or anything, and also drink pressed juices, either from whole foods or i do it myself, usually watermelon/cucumber for citrulline content, but in all honesty ive been doing it for about 3 months now, and id say the progress is about 5-7% %, its noticeable on some level , but i don't think its going to get me passed 5-7% , because i think the damage my body has taken from SSRIS has nothing to do with increasing nitric oxide. or if it does, its only a small piece in the puzzle....i think my body just needs to heal...but taking nitric oxide supplements and drinking pressed juices certainly won't do any harm , in fact it might be a healthy addition to whatever your diet is currently.... 

Sure is man., I drink a lot of various juices myself and I believe it is a factor in healing plus it keeps me motivated. I may start doing some l-citrulline myself, will keep you updated. Ive tried Arginine in the past (before all mental stuff) and my experience is that the effects wears of pretty quickly (within weeks) but maybe my dose was too high. 

 

Are you able to regularly exercise / sun bath / other healthy things  today?

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Ryguy
45 minutes ago, frasier23 said:

Sure is man., I drink a lot of various juices myself and I believe it is a factor in healing plus it keeps me motivated. I may start doing some l-citrulline myself, will keep you updated. Ive tried Arginine in the past (before all mental stuff) and my experience is that the effects wears of pretty quickly (within weeks) but maybe my dose was too high. 

 

Are you able to regularly exercise / sun bath / other healthy things  today?

Yeah I’m not entirely sure how long the supplements last either and how significant the impact is, but also I’ve laid off from taking too many things because almost anything seems to activate mental issues...i Barely ever sunbath but I sometimes do, lying down for more then a few minutes gets my heart rate up unfortunately , also exercise has been out of the question for me for years. I have what’s called exercise intolerance , my body is already in fight of flight mode so when I start running , it just gives up immediately, was not like that before the withdrawal and the meds, in fact I used to run regularly ...stuff has taken everything from me, but I’m going to take everything back , I won’t let big pharma win 

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hussy

I got a prescription for wellbutrin from my Doctor ( endocrinologist) . He thinks that it can potentially help with libido. What do you guys think.

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Zeipii
Posted (edited)

bupropion (brand names:  Wellbutrin and Zyban) was what originally gave me pssd.... 

 

 

Edited by ChessieCat
added drug brand name

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Altostrata
On 7/29/2019 at 9:14 AM, hussy said:

I got a prescription for wellbutrin from my Doctor ( endocrinologist) . He thinks that it can potentially help with libido. What do you guys think.

 

Wellbutrin has the reputation of countering the sexual dysfunction caused by other antidepressants -- but why would you want to add an antidepressant to one that's causing undesirable side effects? The first drug should be dumped.

 

If you have PSSD and are hypersensitive to drugs because of withdrawal, you might have a very bad reaction to bupropion -- the side effects for which Chessie posted a link and more. Very commonly, it causes jumpiness and sleeplessness.

 

If you have withdrawal hypersensitivity, experiment with drugs at your own risk. If you feel you must try something, I would try only a very tiny amount -- a fraction of the lowest available dosage -- to see how it affects you. Very few doctors will understand this, they will want to clobber your symptoms with at least normal or higher dosages.

 

No guarantees about buproprion helping PSSD.

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hussy

I have been off the SSRI for 2.5 years. Still sever PSSD. thats why i am trying to use wellbutrin to get some improvements

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Leo1983

Hussy has most other things healed for you?

 

Is PSSD your main symptom?

 

When you say PSSD what are the symptoms?

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Spruce30

I wouldn't bother with the wellbutrin hussy, the people who i have seen heal from PSSD have done it naturally

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CharlieBrown
Posted (edited)
On 8/3/2019 at 7:58 AM, hussy said:

I have been off the SSRI for 2.5 years. Still sever PSSD. thats why i am trying to use wellbutrin to get some improvements

 

"it took about 3 years off medications to regain a good emotional range and my youthful lust." … "In 2013 I had a libido, arousal, erections but was still suffering from lack of sensation in my genitals. Upon climax I would have no pleasure, only muscle movements."

 

I don't know what you would consider "severe." I wrote my success story because, in "2016 the lack of sexual pleasure and anhedonia are not a problem for me anymore."

I only spent about 1 year on various meds. Everyone is different. Sometimes one dose can cause problems. Some people recover faster than I, After taking meds for a longer time.

There was a definitive change for me, after 4 years post meds. That continued through 7 to now 10 years, post SSRI's.

 

I would recommend against "Wellbutrin" AKA Buproprion. It may act on nicotinic receptors, but it has an NDRI (Norepinephrine/Dopamine Reuptake Inhibitor) Having the most prominent effect on dopamine receptors.

 

"It has also been found to act as a releasing agent of dopamine and norepinephrine (NDRA), similarly to other cathinones. (This release could help stimulate sexual function, as other Dopamine releasing agents "CAN" stimulate the body as Altostrata said. This would include sexual stimulation.) However, when ingested orally by humans, bupropion is extensively converted in the body into several active metabolites with differing activities and influences on the effects of the drug during first-pass metabolism. These metabolites are present in much higher concentrations in the body compared to bupropion itself."

 

Wikipedia again: "According to a survey of psychiatrists, it is the drug of choice for the treatment of SSRI-induced sexual dysfunction, although this is not an indication approved by the U.S. Food and Drug Administration."

It's off-label prescribing of Risperidone to me when I was 16 that really messed me up. "In August 2012, Johnson & Johnson agreed to pay $181 million to 36 U.S. states in order to settle claims that it had promoted risperidone and paliperidone for off-label uses including for dementia, anger management, and anxiety." Pennies to J&J...🤐

 

Buproprion varies with genetics/biology just like all other medications. Though it doesn't act on Serotonin very much. It does have major effects on Dopamine and Norepinephrine. All three affect hormones and neurotransmitters. Which could/would have some effect on sexual function.

 

I would recommend abstinence. From medications and any sexual activity. (Having sex without pleasure is disappointing, I know. Also masturbation attempts also led me to disappointment.) The Dr.s' say many medications take weeks or a month to "build up in your system." They don't mention it is "re-wiring" / changing the neurotransmitter functions. They say: "Balancing off-set chemicals."

 

No no no, They are usually off-setting regular brain communication/transmitter function. Eating healthy, Exercising, Thinking Positive, Abstaining from all drugs (Alcohol too)… and maybe a little prayer. Are much more effective than a drug that is comparable to a placebo 50% of the time for DEPRESSION. There are no reliable studies on Buproprion's ability to increase sexual function or desire. I will reiterate what others have already said: Wellbutrin (Buproprion)

 

On 7/29/2019 at 9:31 PM, Zeipii said:

bupropion (brand names:  Wellbutrin and Zyban) was what originally gave me pssd.... 

 

On 7/29/2019 at 9:14 PM, ChessieCat said:

Yeright.  I just checked the side effects of Wellbutrin here https://www.rxlist.com/wellbutrin-side-effects-drug-center.htm "loss of interest in sex,"

 

A late reply from me, "sorry." Altostrata on the ball, With pertinent information.

Good luck to you Hussy!

 

On 7/28/2019 at 7:24 PM, frasier23 said:

Any tips & tricks? :)

 

Read your success story so nv.

 

Sorry this is really late, I'm not sure what you mean by "...Story so NV" ? No worries, All my tips and tricks are in my success story. And right here in this comment in BOLD.

Take care!

Edited by CharlieBrown
Compression, (Personal braket addition on stimulation) Typo: "Lead to Led"

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frasier23

@CharlieBrown meant nvm , nevermind (read your story instead). Im having similiar mindset / strategy as you and I believe thats the only way forward for longterm success. I try to be open to all solutions though except for medicines.

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CharlieBrown
On 8/8/2019 at 5:15 PM, frasier23 said:

@CharlieBrown meant nvm , nevermind (read your story instead). Im having similiar mindset / strategy as you and I believe thats the only way forward for longterm success. I try to be open to all solutions though except for medicines.

Silly me! I am surprised I didn't realize that right away.

 

Yes, I believe, medicines and supplements are a band-aid, temporary patch, for deeper issues. Though as I've grown, I am wary of certain spiritual practices.

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frasier23
On 9/4/2019 at 10:32 PM, CharlieBrown said:

Silly me! I am surprised I didn't realize that right away.

 

Yes, I believe, medicines and supplements are a band-aid, temporary patch, for deeper issues. Though as I've grown, I am wary of certain spiritual practices.

Yes its easy to turn to spiritual things when lost.  Though Ive found stability in believing in different concepts like , "truth will always come to surface", karma, optional life afther death etc. It has brought a lot of piece and stability but existential thinking can make people psychotic / more psychotic if dwelled on at a sensitive episode in life , I know :)

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