Jump to content
Carmie

Carmie: accidently doubling up on seroquel one day while tapering

Recommended Posts

Hazel

Sending you hugs right back Carmie🤗

Share this post


Link to post
LexAnger

Hi carmie, 

thank you so much for stopping by multiple times to my thread and providing your kindest support!

i want you know now you are in my thoughts and prayer too! 

 

Also so interstingly jus saw your post about knitting. I was thinking about it this morning as I found it always brings my sxs down even the physical ones like burning, needling, stiffness etc,  it's truly the best technique to cope both mental and physical sxs.

 

i hope I can get it started soon when I feel a bit better. I tried this morning but was too sick to do it, still in bed ridden status.

 

send you healing vibes and love!

 

lex

Share this post


Link to post
Carmie
3 hours ago, LexAnger said:

Hi carmie, 

thank you so much for stopping by multiple times to my thread and providing your kindest support!

i want you know now you are in my thoughts and prayer too! 

 

Also so interstingly jus saw your post about knitting. I was thinking about it this morning as I found it always brings my sxs down even the physical ones like burning, needling, stiffness etc,  it's truly the best technique to cope both mental and physical sxs.

 

i hope I can get it started soon when I feel a bit better. I tried this morning but was too sick to do it, still in bed ridden status.

 

send you healing vibes and love!

 

lex

 

Hi Lex, thanks so much for dropping by today, 

 

It’s much appreciated. I’m glad knitting helps you too. Definitely something to get into to help cope with withdrawals. That or crocheting both have the same effect. It’s good that it brings down some of your symptoms too.

 

I find I can’t just sit and watch Netflix or DVDs. I need to be doing something with my hands as well. 

 

I’m bed ridden a lot of the time too like you but it’s not always from withdrawals, it’s the CFS too. I’m lying down all day today.

 

My brain is all over the place today though and I’m feeling numb at the same time so I can’t seem to settle on what I want to watch. I’ve been watching a bit of Gilmore Girls ( my favourite show ever!) and some of Murder She Wrote. I have them on DVD. I watch DVDs in the bedroom and Netflix in the loungeroom. I’ve just gone to lie on the lounge to watch Netflix.

 

Don’t have much concentration so I have to watch something lighthearted or else just watch something and not care whether I take all the info in as I can always watch it again. 

 

I love sci fi, it’s great escapism. I really hope Lost In Space season two comes out soon on Netflix. Actually I might watch a bit of Star Trek Voyager now. 

 

Hope you find find some good distractions too. 

 

Take care Lex and thanks again for dropping by💚

 

 

Share this post


Link to post
Carmie
On 5/9/2018 at 5:34 AM, Hazel said:

Sending you hugs right back Carmie🤗

 

Hi Hazel, 

 

Missed your hugs from the other day, thank u. 

 

Im glad you’re getting some not too bad times now. It’s good to get a little reprieve here and there. Even if it’s not a lot it helps us to see that there will eventually be windows.

 

I’m still in a windows n waves situation but there are many more windows. 

 

My husband went to get my script for seroquel yesterday but they gave me the seroquel brand instead of the generic. I’m going to take it back n get the generic. I’ve always used the generic n I know there can be discrepancies between brands so I don’t want to risk it. 

 

If anyone else else is reading this, have u found the same thing?

 

Well, I’ve been lying down most of the day, no strength, though I did do some housework. The birds on my balcony are chirping. We feed them every day, we get kookaburras, magpies, mynas etc. Nature is good in this healing process. I wish I lived near the beach, how great would it be to have a beach in walking distance. There’s something soothing about the sound of the waves crashing. 

 

Take care Hazel💚

 

 

 

Share this post


Link to post
Songbird
Posted (edited)
34 minutes ago, Carmie said:

 

I’ve always used the generic n I know there can be discrepancies between brands so I don’t want to risk it. 

 

If anyone else else is reading this, have u found the same thing?

 

 

Some people are very sensitive to the differences between brands and various generics, while others don't notice a difference.  It's an individual thing.  It is sensible to try to continue with whichever one your system has become used to.  No point taking the risk if you don't need to.

Edited by Songbird

Share this post


Link to post
LexAnger

I was switched from brand to generis lexapro by insurance in the middle of Tapper without knowing it. Felt the difference in a bad way. Switched back per request.

 

The thing is, generic and brand name are manufactured by different companies, even the active ingredient is same, other additives are different which can affect a sensitized brain.

Share this post


Link to post
Carmie
2 hours ago, Songbird said:

 

Some people are very sensitive to the differences between brands and various generics, while others don't notice a difference.  It's an individual thing.  It is sensible to try to continue with whichever one your system has become used to.  No point taking the risk if you don't need to.

 

Thanks Songbird, I think I have had the original a long time ago. I’m not sure if I’m sensitive to the changes or not but no use taking the risk. When I eventually do the microtapering it will be the generic brand but not the same one I’m getting now as I get the Terry White chemist brand and they don’t compound that. 

1 hour ago, LexAnger said:

I was switched from brand to generis lexapro by insurance in the middle of Tapper without knowing it. Felt the difference in a bad way. Switched back per request.

 

The thing is, generic and brand name are manufactured by different companies, even the active ingredient is same, other additives are different which can affect a sensitized brain.

 

Thanks for replying Lex. Sorry it affected you in a bad way Lex. Aren’t we all so sensitive?

 

Ive been pondering about windows n I was just thinking when I am in windows it isn’t really 80% or 90%. It’s more like 60% or so but it’s a great relief.

 

When we all eventually heal the windows will feel like 100% windows. Yay! Here’s to dancing 💃 when we finally get there! What a relief that will be! 

 

Thanks again for your replies xxxx

 

 

Share this post


Link to post
Carmie
On 5/9/2018 at 5:34 AM, Hazel said:

Sending you hugs right back Carmie🤗

 

Hi one n all, how are we all going today?

 

Just a few of my thoughts for the day.

 

I think I must have accidentally pressed on your quote from the other day Hazel n I don’t know how to erase it. Anyway, I’m sooooo glad you’re having some better times. It’s great to get a bit of reprieve.

 

I bought one of Claire Weekes’ books but I’m too braindead to read it at the moment. I just skimmed it, it’s really all about fearing fear. We have so many “what if’s.” We start becoming so scared of everything. Every time we taper we become petrified, we become petrified of the symptoms and thus heightening our symptoms even more. 

 

We all know that in the end we will heal, it’s just time, it’s ALWAYS about time. When we are going through waves that never seem to end it seems that there is never an end. I’m still in a windows and waves situation but I am getting some reprieve. I even had a whole day of being in a window this week.

 

When we are in windows that is when we need to start putting strategies in place because when we’re in waves we can’t think straight. 

 

I think one of the best things you can do is go in nature. I remember when I was in such a severe wave that I wanted to die I got someone to take me to the beach. I was still in torture at the beach but at the same time it helped me to cope.

 

Distractions! Distractions! Distractions! That’s all we can do when in waves. I do crafts, mainly knitting n crocheting. Today I bough acrylic paints n I’m going to paint some canvases in the future. You don’t need to be artists to do this, just do abstract painting. 

 

Humour is another amazing thing that can help us cope. I suffer from anhedonia a lot of the time and feel numb but it still perks me up to watch comedies. I’m watching Brooklyn nine nine on Netflix at the moment. 

 

I live in a a sunny state but now that it gets a little cool here n there I love how turning the heater on gives you that lovely cosy feeling. When I stayed at my friend’s place last week we sat outdoors around the fire pit, so beautiful watching the wood burn. 

 

I just want want to say my heart really goes out to all of you, Wishing everyone all the best on your way to recovery💚💚

 

 

 

 

 

Share this post


Link to post
Carmie

Hi again everyone,

 

Just one last thought for today: 

 

Feeling soo numb but am watching comedy.

 

I really hope that each n every one of you finds distractions to get you through each day.

 

We have to keep looking for the light at the end of the tunnel. Sometimes we can’t see any light at all but if you’re on a train in a literal tunnel there is always light at the end of it. You feel like the tunnel is never going to end but it does eventually. 

 

Im fortunate enough to have lots of friends that help me to keep on going even though they don’t understand what I’m going through. 

 

Here’s to each n everyone of us surviving the hardest fight of our lives.

 

Sending u all a MASSIVE BIG HUG 🤗

 

 

Share this post


Link to post
Rosetta

You are doing so well, Carmie.  I know you are struggling and putting all your effort into getting through this.  You really have some great strategies.  

 

I wonder if you would like to try paint by number.  If you are suffering cog fog it will give you a plan for your painting.  It seems like a great way to distract!  

 

Thanks again for all your posts.

 

Rosetta

Share this post


Link to post
Carmie
9 hours ago, Rosetta said:

You are doing so well, Carmie.  I know you are struggling and putting all your effort into getting through this.  You really have some great strategies.  

 

I wonder if you would like to try paint by number.  If you are suffering cog fog it will give you a plan for your painting.  It seems like a great way to distract!  

 

Thanks again for all your posts.

 

Rosetta

 

Paint by numbers sounds like fun Rosetta, 

 

I love an empty canvas and experimenting, though but I have seen them, you never know I might get one one day. I’ll keep a look out. I did a lot of colouring in when I first starting tapering. 

 

I just said to a friend I’ve got new acrylics n am getting some canvases if she wants to join me. She’s too scared to try as she doesn’t think she can paint. I told her all you have to do is pretend you’re a first grader and go for it. They have no inhibition. Just slap it on n makes patterns and the like😃. If you don’t like it just paint over it with white n start again. 

 

By the way, if anyone who has cold turkeyed is reading this, this particular friend cold turkeyed off really high doses of benzos n she has recovered. She went through a really hard time, she felt like she was going to have a stroke but she didn’t. It’s so dangerous cold turkeying off meds, especially benzos as you can have a stroke.

 

I knew nothing about meds back then or withdrawals but I was chatting to her about it this week. What a hard time it would have been. Only now that I’ve been cold turkeyed n am tapering at the moment too do I realize the hell she went through all those years ago. I’m not sure how long it took her to heal but heal she did. 

 

We will all heal eventually. No consolation when you’re in agony but at the same time it gives us hope.

 

Here’s to keeping our hope xxxx

 

 

 

Share this post


Link to post
DMV64

Hey friend! how are you feeling today??

Share this post


Link to post
Carmie
9 hours ago, DMV64 said:

Hey friend! how are you feeling today??

 

Thanks for dropping by DMV, 

 

Pretty braindead today but it’s a combination of withdrawals and CFS. I’ve had a foggy brain for about 23 years due to my illness but with withdrawals on top of it some days I can’t think to save my life. Just got a bit of brain back n thought I’d check out this forum again.

 

Spent a few hours with friends this morning and have been lying down for the rest of the day. Don’t have much strength. Been watching DVDs. 

 

I think I’m all peopled out. I’ve spent a lot of time with friends lately and it’s time to switch my brain off a bit and get a bit centred. I’m usually a lot more balanced between alone time and spending time with friends but recently I stayed with a friend for five days. 

 

I’m married but my husband works full time so I can get a little quiet time on my own during the day. Haven’t got too much on this week, though I’m going to the Imagine Dragons concert. Can’t wait! “Thunder, feel the thunder, lightening n the thunder🎼😃

 

Thanks again for dropping by and im sorry you had such a bad day, sending hugs🤗💚

Share this post


Link to post
xyz

hi carmie,

sorry about your brain dead day!

but it seems that you know yourself well enough to rest.

i love to listen to rock music. wear earplugs though, protect those fine hearing cells, they are not meant to survive a highly noisy environment.

some people develop Tinnitus after repetitive exposure to sound (i have Tinnitus, hence the warning!)

 

how long did it take for your friend to recover from her benzo CT? on what dosage was she?

 

 

Share this post


Link to post
Carmie
26 minutes ago, xyz said:

hi carmie,

sorry about your brain dead day!

but it seems that you know yourself well enough to rest.

i love to listen to rock music. wear earplugs though, protect those fine hearing cells, they are not meant to survive a highly noisy environment.

some people develop Tinnitus after repetitive exposure to sound (i have Tinnitus, hence the warning!)

 

how long did it take for your friend to recover from her benzo CT? on what dosage was she?

 

 

 

Hi xyz, 

 

Yes, I must get some ear plugs for the concert. I was thinking about that the other day. I’ve never worn earplugs to concerts and I’ve been to many but I’ve seen some people wear them so I think that would be wise. The last concert I went to was Bryan Adams but it was outdoors n the volume wasn’t too bad. I actually love loud music but like you said I don’t want to end up with tinnitus so I’m off to get earplugs this week. Thanks for the heads up. Don’t need another health problem.

 

My friend was on over 100mg of Valium a day, I have severe memory problems but I think she said about 170mg.  I can’t remember exactly how long it took for her to recover but it was a couple of years. I can’t believe she cold turkeyed that, though at the time I knew nothing about meds. Her doctor was so surprised that she cold turkeyed and said not many people are that strong.

 

I wouldn’t call it strong, I’d call it insane knowing what I know now. I don’t think she knew anything about withdrawals either. Her doctor would have wanted her to taper but his taper schedule would have been real quick too. I go to the same doctor now and he pretty much let’s me do my own tapering as he doesn’t know how to help me. He knows nothing much about withdrawlals.

 

Its pretty sad though that doctors and psychiatrists aren’t taught about how deadly these meds are. All they know is what they are taught at university. 

 

Hope youre doing a little better xyz. I’m still in a windows and waves situation but am getting a few more windows now and they are lasting longer. 

 

Take care, sending hugs🤗

 

 

Share this post


Link to post
Carmie

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Share this post


Link to post
Hazel
46 minutes ago, Carmie said:

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Good for you Carmie.  You need to do what is best for you at this time in order to heal.  I'll be thinking of you as well and wishing you lot's of healing!

Share this post


Link to post
Waterfall

Wishing you all the best this week, Carmie. 

I hope it really helps.  

Share this post


Link to post
DaveB
On 5/13/2018 at 6:14 AM, Carmie said:

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Hope all is well Carmie and a break does you good. 

Share this post


Link to post
Carmie

Hi one and all,

 

I thought I’d just check in and say you are all so brave in this hardest fight of our lives.

 

I was going to have a week just to myself but my beautiful friends are always there for me and I can’t seem to cut them off even for a week. I hope everyone out there has the same support system. Had a lovely time Wednesday night spending time with friends. I love spending time with kids too and they always cheer me up. I’m a big kid at heart and have a lot in common with them despite being over fifty.

 

One of the kids got me into watching Brooklyn Nine Nine on Netflix and it’s so funny. I watched all four seasons within a month. Great distraction and I think we all need some comedy in our lives. I’m all for distractions. My motto in withdrawals is distraction, distraction, distraction!!

 

We will all eventually come out of the other side of this terror we are going through but at the moment we just have to keep distracting ourselves. I really feel for those of you who have to work, that must be so hard. I’m extremely ill with CFS, which is also a CNS illness and I can’t work. Sometimes the symptoms of CFS and withdrawals are overlapping but I still know when I’m in a wave. There are unmistakable!!!!

 

I have the Imagine Dragons concert tomorrow night, excited!! I go to millions of concerts but I’m excited about this one. Going with two teenagers. The last concert I was extremely excited about was Twenty One Pilots, again went with a teenager. I’m pretty chill when it comes to concerts as it’s the norm for me but every now and again I get excited. 

 

Thank you you so much @DaveB @Waterfall @Hazel for your kind messages. I’m so sorry that you are all struggling so much too. And Waterfall, I love what you wrote on Dave’s thread, it was so insightful. I must write it down n put it in my journal. 

 

@Kristine I’m soooo sorry you are so ill. I’m bedbound a lot of the time too, but it’s a combination of the CFS and withdrawals. I’ve had CFS for over twenty years so I’m used to not being functional a lot of the time, but I tell you what, withdrawals takes it to another level completely. I’m sorry the weighted blanket made you feel claustrophobic. I’m still going to eventually get one when I have the finances. 

 

Hang in there everyone, this is definitely no fun.

 

Sending everyone the BIGGEST HUG EVER💚💚

 

 

Share this post


Link to post
Carmie

A few last thoughts for the day, 

 

Thanks again everyone for your support. 

 

It’s a day at a time, an hour at a time, a minute at a time. 

 

This forum is amazing for information and support and supporting others. Again, absolutely AMAZING!!!

 

At the same time sometimes we need to also switch off from all the sad stories and try and live our own lives as best we can. It is sooooo hard with this pain we are going through but we also need to focus on strategies. Each and every one of us will find different strategies that work. What works for one person may not work for another.

 

I think we need balance in everything we do and I will be checking into this forum a couple of times a week to see how you are all doing and to learn new things myself. 

 

Wishing everyone the best in their healing and thanks soooo much to those who have connected with me too xxxxx

 

Share this post


Link to post
DaveB
11 hours ago, Carmie said:

Hi one and all,

 

I thought I’d just check in and say you are all so brave in this hardest fight of our lives.

 

I was going to have a week just to myself but my beautiful friends are always there for me and I can’t seem to cut them off even for a week. I hope everyone out there has the same support system. Had a lovely time Wednesday night spending time with friends. I love spending time with kids too and they always cheer me up. I’m a big kid at heart and have a lot in common with them despite being over fifty.

 

One of the kids got me into watching Brooklyn Nine Nine on Netflix and it’s so funny. I watched all four seasons within a month. Great distraction and I think we all need some comedy in our lives. I’m all for distractions. My motto in withdrawals is distraction, distraction, distraction!!

 

We will all eventually come out of the other side of this terror we are going through but at the moment we just have to keep distracting ourselves. I really feel for those of you who have to work, that must be so hard. I’m extremely ill with CFS, which is also a CNS illness and I can’t work. Sometimes the symptoms of CFS and withdrawals are overlapping but I still know when I’m in a wave. There are unmistakable!!!!

 

I have the Imagine Dragons concert tomorrow night, excited!! I go to millions of concerts but I’m excited about this one. Going with two teenagers. The last concert I was extremely excited about was Twenty One Pilots, again went with a teenager. I’m pretty chill when it comes to concerts as it’s the norm for me but every now and again I get excited. 

 

Thank you you so much @DaveB @Waterfall @Hazel for your kind messages. I’m so sorry that you are all struggling so much too. And Waterfall, I love what you wrote on Dave’s thread, it was so insightful. I must write it down n put it in my journal. 

 

@Kristine I’m soooo sorry you are so ill. I’m bedbound a lot of the time too, but it’s a combination of the CFS and withdrawals. I’ve had CFS for over twenty years so I’m used to not being functional a lot of the time, but I tell you what, withdrawals takes it to another level completely. I’m sorry the weighted blanket made you feel claustrophobic. I’m still going to eventually get one when I have the finances. 

 

Hang in there everyone, this is definitely no fun.

 

Sending everyone the BIGGEST HUG EVER💚💚

 

 

 

Wow some awesome concerts! Imagine Dragons and Twenty One Pilots are my two favorite current bands (and fun.) Sounds like you are doing well, considering the circumstances and enjoying life to your best ability. I agree, @Waterfall's post on my thread was simply amazing!

Share this post


Link to post
Waterfall

@Carmie and @DaveB

Aw, thanks guys.  

I'm just glad that I could be helpful.  

It's still hard to be patient through these waves, but it helps if we can understand it a little, eh?  

Our poor brains.  😜

Share this post


Link to post
Carmie

Just have to record this today. I’ve had an all day window. Woohoo! 

 

Had a fabulous time last night at the Imagine Dragons concert. So great! We need to find things we love. I loooove music! 

 

Im struggling to think at the moment because of CFS and I just can’t read all the pain everyone is going through at the moment but next week I’ll contact my beautiful support system here again. You know who you are and I really appreciate you with all my heart.

 

I have so many more years of tapering to go but I’m going to hold for a few months now as I need a life. I’m still limited in what I can do because of CFS but I just need a break from the daily massive waves that don’t stop. 

 

Just want to say you are all the bravest people I’ve ever known in my entire life. 

 

I hope you all have an amazing support support system. My friends have been sooooo great. I love them to bits and they are just the best. Despite not knowing the pain I go through they never abandon me. I have friends of all ages, I went to the concert with teenagers. 

 

Sending everyone here the BIGGEST HUG EVER🤗

 

 

 

 

Share this post


Link to post
Hazel

Hugs to you Carmie!

So glad to hear you had an all-day window.   Hope you continue to do well🤗

Share this post


Link to post
Carmie
15 hours ago, Hazel said:

Hugs to you Carmie!

So glad to hear you had an all-day window.   Hope you continue to do well🤗

 

Thanks for the hugs Hazel, 

 

Just a quick check in here to journal I’m having my second day in a row in a window. Windows are never totally symptom free but about 60% to 70% . Feels good to feel a little more normal. Today is day 78 since I last tapered.

 

💚💚💚

 

 

Share this post


Link to post
LexAnger

Good work carmie and so happy for you!

Slow and steady wins!

Hugs,

Lex

Share this post


Link to post
xyz

Awesome Carmie so happy for you!

I love when that happens to me, it kinda put all the suffering in perspective and gives me hope again.

Keep holding! Xoxoxo

Share this post


Link to post
Carmie
On 5/20/2018 at 4:22 PM, LexAnger said:

Good work carmie and so happy for you!

Slow and steady wins!

Hugs,

Lex

 

Hi Lex, thanks for dropping by. Yes, it does feel great to get lots of long windows again, and I’m going to hold for a few months now.  Going to spend more time with friends, go on a holiday, start some new crafts, and the list goes on. I still spend lots of time lying down and in bed  though because of the CFS. I’ve learnt to be very balanced in the last twenty years or so.

 

While I’m getting long windows I’m going to do lots of organising and a bit of spring cleaning because I won’t stand a chance of doing that when I’m in a wave. 

 

Hope you’re coping ok today💚

 

 

On 5/18/2018 at 3:12 AM, DaveB said:

 

Wow some awesome concerts! Imagine Dragons and Twenty One Pilots are my two favorite current bands (and fun.) Sounds like you are doing well, considering the circumstances and enjoying life to your best ability. I agree, @Waterfall's post on my thread was simply amazing!

 

Hi Dave, 

Yep, Imagine Dragons concert was great. Radioactive is AMAZING live. The instrumental in that is fantastic. I knew they would finish off on that song, and they did. 

 

Im so glad to read about you getting windows now too, very happy for you Dave💚

 

On 5/18/2018 at 6:13 AM, Waterfall said:

@Carmie and @DaveB

Aw, thanks guys.  

I'm just glad that I could be helpful.  

It's still hard to be patient through these waves, but it helps if we can understand it a little, eh?  

Our poor brains.  😜

 

Hi Waterfall, 

 

All I can say is it definitely is hard being patient through waves, you’re so right there. 

 

Like you said, it does help though to understand it. 

 

Thanks again for that great post and I hope you’re not doing too bad at this minute💚

 

 

On 5/20/2018 at 4:34 PM, xyz said:

Awesome Carmie so happy for you!

I love when that happens to me, it kinda put all the suffering in perspective and gives me hope again.

Keep holding! Xoxoxo

 

Hi XYZ, 

It certainly does feel good to get windows.

 

I see you are stopping your benzo taper for a while and are going to taper your other med instead? Is that correct. Will you be coming back to your introductions and update thread.

 

Yes, I’ll definitely be holding for a few months now, maybe three or more. It’s time for a bit of a break💚

Share this post


Link to post
Rosetta

Hi Carmie!

Share this post


Link to post
Rabe

Enjoy your time 'off' Carmie....goodness it is well deserved!  Enjoy the view from your windows!!!  Life is good!!!   Take care!  Will be thinking about you!!

Share this post


Link to post
Carmie
6 hours ago, Rosetta said:

Hi Carmie!

 

Hi Rosetta and everyone else on here, 

 

Just checking in briefly to document I’m still in a window. Actually woke up in a window. Mornings are usually the worst and I wake up shaky or with vibrations in my body, but none today. Yay!! It’s 11.30am and I’m still in a window. 

 

Windows make us realise we will eventually heal even if it takes us many, many years.

 

Sending big, big hugs to everyone out there who is going through this horrific process🤗🤗💚💚

Share this post


Link to post
LexAnger

Very happy for You! Enjoy ever minute of it and hold on to it when the tough time comes.

Lots Hugs!

 

Share this post


Link to post
Carmie
4 hours ago, Rabe said:

Enjoy your time 'off' Carmie....goodness it is well deserved!  Enjoy the view from your windows!!!  Life is good!!!   Take care!  Will be thinking about you!!

 

Thanks Rabe, 

 

Nice of you to drop by and thanks for thinking of me, it means a lot. Yes, it certainly is great being in a window. Yes, I’m enjoying the view😀. Not looking forward to tapering again in three months or so but I’m not going to think about that now. Just going to enjoy some breathing room.

 

Im hoping to go and visit a friend at the end of next week and stay a few days. She’s got a fire pit in the backyard, and how relaxing is it to sit around the fire in the evening. Can’t wait. 

 

In bed for most of the day today, not because because of withdrawals but because of CFS. Am watching Gilmore Girls. Have watched it a million times. Best show ever!!! I love shows with quirky characters. 

 

I keep changing my mind as to how often to check into this forum. Sometimes I can’t cope with all the sadness, but at other times I think how amazing the support is here. 

 

Hope you’re coping okay today Rabe, Sending hugs🤗🤗

 

 

2 hours ago, LexAnger said:

Very happy for You! Enjoy ever minute of it and hold on to it when the tough time comes.

Lots Hugs!

 

 

Thanks Lex for the hugs, much appreciated, 

 

Yes, the windows certainly help us to see that when we are in waves that better times are ahead. One day at a time is all we can do. I know that when I’m eventually off seroquel many, many years from now I will get rebound insomnia and withdrawals more severe than I have now but you can’t dwell on the fear of the future. All you can do is live in this very moment and make the most of it.

 

Sending hugs right back at you🤗🤗

 

Share this post


Link to post
Rabe

Hi Carmie...oh yes...a fire pit is WONderful, especially at night with the stars out...beautiful!!!  Enjoy!!!

 

I have been dx with CFS as well...not fun...SO fatigued on and off for so long can't even remember when it started...I empathize and am sorry you deal with that.  Happy to hear you are resting and watching your shows...good medicine!

 

I know...sometimes I cry...OFten I cry reading what is posted here...my heart seems to just overflow with all the emotions and feelings.  But, as you said, the support is SO essential to healing.  Coming here has been the best medicine I have had....and I found it just by chance while searching the internet.  This is a true gift!  Not sure how they do it , but I have said God's work is being done here.

 

Thank you for thinking of me Carmie...means so much!  I had a very nice day, difficult but wonderful, and am grateful!!  Continue to take care of you!  Hope you feel better soon!!  Love and hugs Carmie!!

Share this post


Link to post
Carmie

Okay, one and all on this site, it’s time for a rant.

 

First of all I’d like to say this site is amazing and I thank @Altostrata sooo much.

 

I try and stay away from this site for a few days at a time as it hurts me so much seeing everyone else in pain. At the same time though it’s amazing to have this community to vent how we are feeling, our success and our pain. We really need this, as no one out there understands the pain we go through.

 

Im incredibly fortunate to have a lot of friends who are always there for me despite not knowing what I go through. It pains me so much when I read some of you don’t have that support system in the real world.

 

I’m in a window now, which I’m soooo grateful for and I’m not going to taper again for at least three months. The way I’m going it might take me ten years to get off these meds but I don’t want to be suicidal again. 

 

The medical professions and the pharmaceutical companies are in cahoots and we are all in this mess because it really is a big money making business.

 

My downhill spiral started because of chronic pain and they milked it for all it was worth and I’ve been in torture for such a long time because of it.

 

That being said, getting upset with these institutions doesn’t help us. We need to make peace with it and live each day as it comes. Getting upset with what people have done to us doesn’t change anything. 

 

We need to think in in terms of practically. What can we do to help ourselves each and every day.

 

In this forum we can see so much helpful advice to help us with different symptoms.

 

When we’re in a severe wave though we feel nothing helps. All we can do is to keep distracting ourselves so we stay alive.

 

Distractions! Distractions! Distractions! is always my motto. I’m not really a tv watcher but I watch dvds and Netflix when I’m in waves. I crochet non stop. I’ve made a million blankets for friends. It gives me a great distraction n is therapeutic while at the same time making me happy as I have presents to give to people. 

 

Hang in there everyone, my heart goes out to all and I appreciate your support soooo much💚💚💚

 

 

 

 

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×

Important Information

By using this site, you agree to our Terms of Use.