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Freedom15

Freedom15: Reinstated back onto amitriptyline after CT by doctor

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Freedom15

Preparing for a reduction again this weekend.

 

Will be reducing to 0.009mg

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Freedom15

Reduced on the 17th june down 0.009mg.

 

While hold for 3 weeks then reduce to 0.008mg

 

Slowly getting down now.

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Freedom15

Had ruff day today with continued side effects of drug sand possible a wave.

 

Felling little more settled later part of today altho the physical anistetic effects of meds causes

my head to be numbed out and pain and tingling/pins needles all time.

 

If it was a wave at lest i will feel little better once it stops so that is the positive to having to go through the

negative..

 

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Freedom15

Currently at 0.008mg

 

Side effects are still constant 

 

Going on holiday next week to the beach hopefully this will take my mind of things.

 

Feeling vary tired and like its never ending still even on such low dose..

 

Next reduction after holiday will be to 0.007mg 

 

 

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Freedom15

Reduced to 0.007mg on july 29th 2017

 

Both being on and coming off medication is getting harder at this low dose.

 

From day 5 till about day 14 of the reduction is hard. Physical and emotional issues happening daily.

 

some days struggling to stand up and function all tho some how my body gets me safely through the day everytime.

 

i can reduce down to 0.001mg on the current dilution which will take around another 5 months. After that will need to decide if dilute again and reduce further.

 

find it so upsetting at moment the suffering and damage we all have to go through in hope of making it back to a medication free life. 

 

Luckly i have support around me from loving people some dont.. 

 

 

 

 

 

 

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Terry4949

I am so sorry you are suffering still , I know how you feel , you have done a remarkable withdrawel taper and yet you are still struggling , you have gone so slow which proves that not all slow tapers will be damage free , I was c/t 5 months ago and I am going through hell , why did you go on meds to start with , maybe this is not withdrawel if you suffered depression and anxiety prior to this and it's your base line returning , not everyone will stop antidepressants and suddenly go back to being happy when the drugs are out of their systems , there are many people struggling daily who have never taken a a/d , so we mustn't put it all down to withdrawel , I have started to realise that I have become obsessed with w/d and that everything is to do with the drugs , but I think that the original problem is still there and I am putting to much time and hope in for this recovery when I will be well again , I hope you do finally feel better when of the last bit of the drug and things will get better but don't be afraid to get help if it doesn't , 

 

Edited by scallywag
deleted quote of immediately previous post for readability

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Freedom15

Hi thanks for your reply.

 

i was put on amytriptaline for migraine precention so everything that is happening now is a result of either the meds or reduction..

 

In about a weeks time it should settle doen hoprfully to more level base line.

 

 

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Terry4949

I hope you feel better soon , it's awful to think that you have had to suffer so much for the treatment of migraine , my younger sister was given amytriptaline for migraines as well, she only took it when she got one , never more than 3 days at a time , didn't do much for her , I showed her this site and she refused to take anymore , she is on something else , and not a a/d , I hope when you are finally of you can get back to your true self wishing you a speedy recovery 

Edited by scallywag
deleted quote of immediately previous post for readability

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Freedom15

Reducing to 0.006mg tonight.

 

Have decided to make up the syringes a little different this time.

 

I have made new batch of meds up and then drawn off 21 seperate syringes with caps which i will store in fridge and use each day as i am reducing every 3 weeks at moment. I am hoping this will give a better precision on the meds over the time as they are drawn from same fluid consistance at same time as i am finding when i redue the meds and draw daily from salution and maybe because on low dose now its quite up or down sometimes. 

 

Will report back on how it go's after..

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Freedom15

Pritty sure today is a wave day just feel totally out it and really unsettled  and just not my self. Will just ride it out like i have everytime this happens. The good news is hopefully once it all settles down i should get period of stability within the continued quest to get meds free..

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Freedom15

Been suffering for few days like i am in a wave situation.

 

Hightened anxiousness and pounding heart rate.

Bit restless and pacing.

Lots pain and pins needles.

Poor sleep.

 

Had planned a reduction again this saturday to 0.005mg will see if it carms down or continues as may hold extra week if needed.

 

Physical side effects of the meds still high..

 

 

 

 

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Freedom15

Symtoms have carmed down over last few days so will continue on with my sceduled reduction.

 

Dropping to 0.005mg tonight. I think poss because the reductions are so low and over the 10% now this is poss whats making the recovary to base level longer.

 

Can reduce to 0.001mg on current dilution then will have make dicission if totally drop off or change dilution and reduce even more. 

 

Will see what i am like once i have done all reduction to 0.001mg so good few weeks away yet..

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Freedom15

Reduced to 0.004mg last night.

 

 

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Freedom15

Hi i really could do with some help with what to dilute to next..

 

i am currently at 0.003mg 

 

the dilution i am at is 10mg tablet to 100ml of water which is 1:10 ratio.

 

The dose is so small at end syringe now i need get it diluted more as the last couple drops are outside the 10% now altho i have managed them with minimal difference tbh..

 

Still feeling the physical side effects of on coming off drugs.

 

Thanks 

 

 

 

 

 

 

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Freedom15

Reduced to 0.002mg on 12th Nov.

 

Have decided to do the next dilution to 10mg tab to 500ml water.

 

Which will give me a 1:50 ratio.

 

This will mean at current dose i can move back up the syringe to 0.1ml and reduce further and keep within the 10% rule. 

 

The last reduction from 0.003 to 0.002 was way to high as i am defo feelin it more and way off the 10% i have been sticking to.

 

Will ride the symptoms out unless they continue to get worse and then would updose. Altho i would prefere to ride symptoms.

 

I am also considering longer hold this time as well to compensate for the larger drop as well.

 

Anxiatiy and panic is higher than normal altho walking outside seems settle it quite quickly only when in house do i feel worse.

 

Its so worrying that even at such low dose the drugs are way powerfull and still have massive hold on my emotional and physical functions.

 

 

 

 

 

 

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joy2730

You have done so well.  I used to take 225 mg dothiepin which is a similar drug to yours and could only get down to 50 mg, before transferring to dothiepin. 

 

The side effects from citalopram are not as bad as the tricyclics but now I am stuck with being dependent on citalopram.  I think you are doing brilliantly.  I know someone in my village who is struggling to get off your drug following pain with shingles.  It is such a shame the GPs give this out for pain as it causes so many problems.

 

I am so impressed that you have done so well but it has taken a long time?  2 years plus?  Yuk

 

Joy

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Freedom15

Hi Joy,

 

Thanks for your reply and sorry for that lateness in posting back as you know time flys when in the middle of it..

 

This sat sees another reduction.

 

I am changing the dilution to 50:1 ratio so that i can continue on further at around 10% ish reductions.

 

I have carmed down from the other day with the pacing and stuff so thats good. The physical side effects are always constant and draining.

 

Sometimes it feels like i will never be well. Other times i feel i am going to make it..

 

I think the way i handle it is to just focus on one drop at a time and hope longterm i will get off meds and then recover..

 

I know if i had not found this website and taken on the 10% reduction plan i would never have made it this far for sure.

 

 

 

 

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Freedom15

Reduced down to 0.0016mg tonight.

 

 

 

 

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Altostrata

Good to hear, Freedom. Do you still have withdrawal symptoms when you reduce?

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Freedom15

Yep still got side effects and withdrawl at this vary low dose..

 

 

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Freedom15

Reducing tonight to 0.0014mg 

 

Have moved in full time with my partner now. I am so lucky she is so supportive in my reduction and daily ups and downs..

 

 

 

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Freedom15

Reduced to 0.0012mg on friday night.

 

 

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Freedom15

Preparing myself for my next reduction at the end of the week.

 

The anticholinergic side effects at still pritty extreme at this low dose and causing me daily suffering. The numbness and pins and needles are still all across my head, face, hands and feet.

 

Its been such a slow and long painfull journey so far atho i am still here and hopefully the more i reduce the closer i will be to med free and give my body the bigest change of longterm recovary from this ordel.. 

 

 

 

 

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Freedom15

Reducing to 0.001mg tonight 

 

 

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Freedom15

Been hit with hard symptoms last night and today. Lots of physical related symptoms. Days like this makes feel like i will never get well. Hooefully start tail off in next couple days or so.. 

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Freedom15

Starting to stabilise altho anxiousness and fear/panic still high. 

 

Lucky i have a supportive partner. 

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Freedom15

Stabilised a bit better now in my emotions and being able to participate in life.

 

My daughter has moved in with me and hopefully i will be able to deal with this. A few months ago i think it would have been impossible to do.

 

I also have the support of my partner as well so this is a massive help. 

 

Next reduction in not this weekend but next.

 

i am not sure when i change the dilution again if to cut tablet in half with same water or to double the water again its just then i will be at 10mg tab with 1lt water which will be 1:100 ratio.. its getting hard with things that will hold that amount of water. 

 

 

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Freedom15

Reducing tonight to 0.0008mg 

 

seems absolutly redeculous the small amount i am on now to the effects i have being on and coming off it still..

 

The actual reductions are more than 10% now because i am just struggling to keep it within that due to being such low dose now. 

 

So reducing from 0.001 to 0.0008mg.

 

Is a little ruffer for first couple weeks but settling down on the end of the second or begining of the third before reducing again. 

 

The final drop off is the thing that is concerning me because i am still getting such effects at this vary low dose.. 

 

 

 

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ChessieCat

You are being amazingly patient.  Well done.

 

However, you might want to consider holding for longer than you are doing.  You are so close it would be a shame to trip up so near to the end.

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Freedom15

Hi chessiecat

 

Thanks for your reply..

 

The 3 week reduction seems to be working at momment altho i also hear your caution. 

 

I am monitoring the actual time it takes for me to be what i consider stabile and if it is getting longer i will hold longer. When i get to what ever the final drop off point is i will also then hold for a good few months before then doing the final bit. 

 

The waves have stopped and i am currently just getting side effects from the meds by the time i am currently reducing.

 

 

 

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ChessieCat

I'm glad you are going carefully.  Good luck!

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Freedom15

I think i will need to start to hold longer as the symptoms have been cycling abit between reductions.

 

I think prob combination of the drops being out of 10% now as so low and only waiting 3 weeks is starting to show signs of needing to slow down. Must always remember the longerterm gain ver short term game. 

 

I am ok in the sense that i am managing and things are not extreme its just i am becoming alittle bit more agitated and getting cycling conditions which are poss withdrawl effects over side effects. Normally this kinda stuff carms over time. 

 

I am due a reduction in about 6 days so i will set up my syringes for 28 days ver 21 days as i draw them all in one go and see how that is from there. 

 

I really dont want to go backwards after all this time. 

 

 

 

 

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ChessieCat
7 minutes ago, Freedom15 said:

Must always remember the longerterm gain ver short term game. 

 

Yes, I agree.  I will confess that I nearly made a reduction this morning after a 3 week hold when I had planned to hold for 4.  I took 10mg and a bit later I realised how silly it was to risk upsetting things and took the extra 1mg.

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Freedom15

Yep defo.

 

I have had alot of stressfull situations as well recently with my daughter moving in full time and the joys of dealing with blended familys. So i think thats put alot pressure onto my already fragile nervous system. I think i need to step out of the situations at the moment tbh and watch what i am doing.

 

There is only so much of symptoms i can endure to the point where i need break from it and i think i am at that point tbh. 

 

If i get to end of 6 days and still feeling unsettled then i will hold next week.

 

if not i will hold the full month the next time. 

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Freedom15

Pritty bad wave day yesterday was defo the peak as i am more humanised and settled today and will feel better each day now as it will all settle down. 

 

Its so distroying when your in that tuff place and no one other than who’s experianed it can ever fully understand 

 

 

 

 

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Freedom15

Reduced to 0.0006mg

 

Have made 28 syringes up at this dose so i can hold for 4 weeks now instead of 3 weeks.

 

 

 

 

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