☼ Junglechicken

[DaddyCee]

Hey JC,

 

Sorry to hear of your troubles. They are definitely temporary and you will find strength and resilience to move forward very soon I am sure.  Sounds like leaving the job was the right thing to do and should enable your CNS to recover in a quicker fashion now.  Stay positive and take good care of yourself, you more than deserve it.

 

Peace,

 

DC.

[Junglechicken]

Thank you DC, I just have to believe it (mind over matter).

 

My other challenge is accepting my mother for who she is....that was a big blow.

 

And yes, I HAD to leave the job, it was just awful....couldn't bear it for any longer.

 

JC

[Junglechicken]

In Feb 2017, I will have been on ADs for 3 years (scary thought).  Psyching up for the re-start of my taper.

 

Have been experiencing upper body/back muscular tension from the base of the ribs upwards.  Something I didn't experience in the early days of WD, at that time it was all lower back.

 

Lifting extremely heavy IKEA flat pack furniture box didn't help my case.  Also dropped the damn thing on my little finger.....man was I swearing at it.

 

It feels as though I have pneumonia, except no phlegm, no cough, no wheezing, no fever.....really weird.  I can walk up steep hills no problem.

 

I didn't overheat last night as the heating was off/right down....a relief.  My hubby felt cold.

 

Lastly, after having waited 6 months for "NHS CBT Talking Therapies", my letter finally came through last week inviting me to my first session.  

 

HOWEVER, as we have moved to the other side of the country, I could not make use of it and had to ring them up and tell them that I would be joining the back of the queue for the equivalent in Berkshire. Great, just great :0(

[Junglechicken]

Still freaked out about my upper back, chest and trunk pain.

 

Keep imagining the worst as I have never had this before.

[Junglechicken]

Body pains have subsided once again today......this is such a head f**k. Realise what an ass I have been.....seriously if I had had pneumonia, I would not have been able to scale the hills with relative ease today on my walk.

 

Instead, slightly upset stomach all day.

 

Have registered at our local medical centre now, and will book an appointment with the doc for Monday as running out of the poison.

 

As I mentioned, went for an amazing walk in the Chiltern hills, which are TDF. It's a relief having them on our doorstep (virtually).

 

Don't really care any more about my "career", such that it was.

 

But depending on how the whole Brexit thing goes with university funding for research, I am still going to get the ball rolling with my research proposal. That is something I am NOT giving up on, then in a couple of years I will have something robust enough to present to potential supervisors. Reaearch is a blast, and I just pray that the stars will align this time round and it will actually happen.

 

When I finished my masters degree some years ago now, I had to start working as I had taken some time out to travel.

 

On a sad note, tomorrow we are off for the weekend to a blessing. An old friend of my hubby's got married in Oz where he lives last week, and is having a blessing over here in the UK as well.....he has terminal cancer :0(

[Junglechicken]

No stomach pains or body pains (so far)......life is looking up, lol.

[scallywag]

Oh those withdrawal symptoms, coming and going unpredictably.  Glad to read the pains are in a "gone" phase.

[AliG]

JC.  Now you can look back through this and go " there I go again" !  All that worrying for nothing.  Practicing acceptance can help .    I hope your symptoms continue to improve.

[Junglechicken]

Cripes, I have cystitis, and thrush.  Went to a walk-in medical clinic this evening after a weekend away.

 

The cystitis is extremely uncomfortable and well thrush is thrush - bloody annoying.

 

My urine sample presented NO bacteria or blood.

 

Have been given those cranberry crystals to drink in water, and also pessaries and cream - yippee!

 

If the tummy pains don't go away I have to go and get "swabbed" to determine what is going on down there with the type of bacteria.

[Junglechicken]

Feeling a bit better today, the lower abdominal pain has eased thank God.

 

Clearly the pH in my bladder is off, and maybe my whole body pH is off.

 

All my joints go crack when I move, my skin is wrecked, my hair is falling out, and all this internal stuff going on too......

 

All WD??

 

Am off to pick up my prescription for the poison.

 

Had a lovely weekend, despite feeling like s**t for a lot of it.

[Junglechicken]

Still managed my daily 2hr walk, the lower abdominal pains continue to be much reduced which is a good sign. The sachets of crystals I have to drink x3 a day are working to restore the pH in my bladder.

 

Feel bloated though, and not sure what the cause is.....,maybe the mayhem going on with with my bladder and bowels?? Can't keep up.

 

WD has to be the cause of all this, as I never once had cystitis or thrush before going on to AD medication...NOT ONCE.  I was in good health before taking the poison.

 

Been feeling drained today, the weekend was emotionally draining; particularly for hubby whose old friend has terminal cancer.  

 

Happy Halloween folks!

[Junglechicken]

Feel really really down, my weight has suddenly increased by about 5Ibs.  I have to cut out sugar, and reduce carb intake.

 

I think my body is overrun with Candida, and just pray this bout of cystitis clears up.  The thrush is a nightmare, and last night I scratched so hard that I bled - yes, I am treating it with internal and external cream and pessaries.

 

When the nurse took my temperature I was fine so no fever.

 

An ongoing issue is really bad IBS/cramping and trapped wind, which I got yesterday evening.  

 

Also, I have terrible acne, eczema, and random spots appearing in weird places.

 

And, I have lower abdominal pain and lower back pain.  Also, random stingy sensations, and sometimes leg pain, and below my butt.  Still getting chest pains which migrate.

 

Last but not least, our bed has finally arrived after 2 months of camping out in the living room.

[AliG]

JC.   I feel for you. I'm sorry that you're overrun by symptoms at the moment. All I can say is that I was too at one point . This process seems to take the patience of a saint. You have had a lot of windows and waves and it seems to be continuing. Hang on - it could be a good sign.

I hope you find some relief , very soon.

Hugs,

Ali

[Junglechicken]

Thanks Ali for your support.

 

I am obviously in a wave triggered by that blasted job (I was crying on a daily basis) and all the emotional stuff with my mum being a narcissist.

 

Also, my hubby and I are going through a rough patch at the moment as there is so much stress.

 

My body/CNS has gone nuts, and immune system now compromised.

 

It really scares me having a compromised immune system.

 

I hope to God that I will get through this wave. The waves seem to trigger cystitis and IBS as I got it during my previous wave earlier in the year.

 

And since being back in the UK, I have had countless brands of Cipralex, and picked up yet another brand today "Macleods".

 

At least I now have a proper bed to sleep on as opposed to rock hard camp beds and sofas.

[Junglechicken]

Our bed is lovely and we treated ourselves to some decent bedding.

 

I still woke up in the middle of the night feeling hot, and had to get up and pee.

 

Also, felt as though I was going down with something yesterday evening.

 

Also had lower back pain and lower abdominal pain. I think the lower abdominal pain might be connected to IBS/trapped wind.

 

I am going to make an appointment to get checked out "down there"......can't wait.

 

Not having a good time of it with this current WAVE.

[Junglechicken]

It's always during a wave that I get the feeling I am going down with a cold, but never actually do.

[Junglechicken]

Upper back pains (that felt as though I had pneumonia) have left the scene - big sigh of relief!

 

Woke up this morning with lower back pain, and continue to have IBS/cramping, cystitis sensation (urgency to pee) plus occasional pain in the pubis area.  Yesterday, I even had pain in the pelvic area and butt.  Once again we were lifting heavy furniture, and both of us are out of condition at the moment (haven't been working out).

 

The feeling that I am going down with a cold only happens in the evening, not during the day.

 

My eye sight is awful lately, and my skin itches like crazy especially on my face and arms.

 

I know all of this is stress-related.  

 

However, I slept well last night thankfully.

[Junglechicken]

So my doc appt is set for Wednesday 9th......yippee, can't wait.

 

Hubby is excited about a possible contract position - things are looking up.

 

Sale of our house goes through today.

 

(Trying to look on the bright side).

[Junglechicken]

Giving the apple cider vinegar (ACV) a go to see if it will help settle me internally (bladder and GI tract).

 

Also plan to buy colloidal silver.

 

Want to avoid doc appts as much as possible.

[Junglechicken]

Ok, so I am becoming my own doctor again.

 

I have diagnosed "interstitial cystitis". All the symptoms I have match the description of IC.

 

AND apparently it can be auto-immune and so triggered by stress, sitting for too long, and certain foods can exacerbate it. I remember thinking I had a UTI, yet again no bacteria or blood were found in my urine.

 

The correlation is, is that I last had exactly the same symptoms during my last big wave earlier in the year, and also before we left Canada for the UK. It drove me nuts because I continually felt as though I had a UTI, but bacteria and blood were NEVER found in my urine.

 

Other current auto-immune responses include this on-going eczema break-out (face, arms) and acne.

 

All I can do is reduce my stress levels, as there is no cure for it, unless anyone has heard any differently?

 

For the first time I am beginning to see a pattern in the way my body responds during a wave.

 

During a WAVE I seem to get the following main symptoms:

 

Anxiety increases exponentially

Body pains

eczema

Acne

IBS

Headaches

interstitial cystitis

sleep issues

Temperature disregulation

 

This feels like a breakthrough for me, as there is now less "mystery" to what's going on with my physically.

 

All symptoms can be correlated to this wave and thus stress being the trigger.

 

A lightbulb moment shall we say in the path to recovery!

[Junglechicken]

Yet again I woke up with lower back pain....is this part of the IC package???

 

I have had lower back pain 3 days straight now, my mind usually jumps to my kidneys being the cause.  This is me catastophising.

 

Its more than likely to be referred pain from the pelvic area and lower abdomen because of the IC.  OR just emotional/stress response.  At least it hasn't locked up like it did in Canada - now that was excruciating.

 

Am still not sleeping all the way through the night.  

 

Walked for 2 hours yesterday with hubby.

 

Didn't get the going down with a cold feeling yesterday evening - when the nurse practitioner took my temperature on Sunday, I didn't have one.

 

I'm not sure that the ACV is working - have started drinking some before every meal, and will continue to do so until its finished.  It seems to react with my stomach and make it sore.

 

During a WAVE I seem to get the following main symptoms (forgot some): 

Anxiety/health anxiety increases exponentially
Body pains
eczema
Acne

Hair loss

Poor eye sight (blurred vision/seeing double)

Palps
IBS

Acid reflux/GERD

Weight loss/gain
Headaches
Interstitial cystitis
sleep issues
Temperature disregulation

Going down with a cold feeling

Depression/low mood

Thrush/candida - NEW

 

Will probably have to go back to the walk-in clinic re: the IC.  I remember the last time I had it, it eventually went away on its own. My previous doc had given me ABs and at the time I also had IBS and my period had gone haywire all at the same time.

 

The challenge is trying to reduce the number of symptoms going on at once.  Its like a bomb has gone off in my body and all this stuff is going on with it.

 

My weight seems to have dropped back down by a couple of Ibs.  I suspect the IBS has upset the digestion process.

 

My mother rang a couple of nights ago (she always rings so late).  My hubby spoke to her, and the conversation usually turns back to it being about her (same with my MIL).  My brother is about to be made redundant after 16 yrs with his company.  She asked my hubby a lot of questions about what my brother could do......however no interest shown in the fact I had to quit my job and what I was going to do.

 

Looks like Christmas this year will be with my MIL after all.  The nagging started, with the decisions being left up to us (as usual). She doesn't do decision making.

[Junglechicken]

Have FINALLY ordered the colloidal silver - OK AliG, lets see what happens 

 

ALSO reading Laura Delano's story........the paragraph below I can relate to so well.  I think in response to my parent's financial crisis/mis-management, I became obsessive about setting goals for myself.  Whether it be running marathons, working my way up the corporate ladder, anything to keep on some kind of path where I didn't have to think about the mess my parents were in and the fact that I was expected to clean it up for them.

 

"Without the structure that came with being a student, my day-to-day life unraveled rapidly. There were no reading assignments to complete, papers to write, or practices to get to. Without these daily goals, I felt unable to orient myself towards making any sort of progress, to fuel myself with even the slightest amount of momentum, and I floundered. I couldn’t handle being faced with the state of my life, with the fact that it seemed as though everyone around me had direction and passion and excitement, an ability to connect with others through laughter or even simple conversation (a skill I was convinced I’d forgotten), a sense of self-confidence that encouraged ‘adult’ choices like pursuing a job, preparing to apply for graduate school, developing healthy relationships."

 

Wow, she has taken the words right out of my mouth, so I'm not the only one that felt this way.

 

"Anything and everything that might have communicated even the slightest hint of happiness or enjoyment to a ‘normal’ person felt fake and foreign to me. How could I ever, in a million years, raise another human being when I was barely living myself? How could it ever be possible for me to find passion for a career, or anything, for that matter? It was as though the rest of the world had been given a manual to life and I had somehow missed it. An alien from a foreign universe, I had been dropped down into an utterly baffling environment without any of the skills required to live in it successfully."

[Junglechicken]

Here is Laura's story:

 

http://recoveringfrompsychiatry.com/story/

[Junglechicken]

Don't want to speak too soon, but no lower back pain this morning, and yesterday evening the cystitis pain just stopped and is still not present.

2 days ago I started drinking ACV.

Have also ordered colloidal silver.....so we shall see.

 

The upper body pains that started suddenly have reduced too.

The only thing I can think of, is that my body (GI tract) became so acidic, that it triggered a whole load of symptoms. I was suffering from GERD a couple of weeks ago, just after I quit my job.

 

AliG and Fresh, mentioned eating as alkaline diet as possible....so this is what I have to do as well as reducing my stress levels.

 

Well, the sale of the house went through yesterday, and hubby may well have an awesome work contract, so things are getting better.

[Junglechicken]

I had to pee a couple of times on my 2hr walk today but had been drinking loads of tea this morning, and the uncomfortable cramping lower abdominal pains have continued to subside.

 

Drank more ACV before lunch, and I will drink it again before dinner.

[Junglechicken]

Had some frequent urination this evening, but the stingy, crampy lower abdominal pain I had before is not present. I think this is due to the ACV.

 

Will monitor the lower back pain and see if it returns.

 

In any case, I am seeing the doc on wed.

[scallywag]

Abdominal pain not present? Nice! I hope that continues.

[Junglechicken]

Woke up with no lower back pain.

 

Continuing to monitor and take ACV, although I will be seeing the doc re: thrush treatment and suspected "IC"

(INterstitial Cystitis).

[Junglechicken]

Although I had to pee a couple of times on our walk this afternoon, the very uncomfortable IBS and "IC" pains have subsided.

 

I think (of course I can't be sure whats round the corner in this healing process) but it feels like the worst of the storm (WAVE) has moved on/dissipated.....<<HUGE sign of relief>>.

 

I'm not actually sure how doctors diagnose "IC", whether there are tests that can be done, or whether they go by the patient's list of symptoms.

 

If I analyse how my body reacts to stress; and thus setting off a WAVE; its like a bomb going off with the outfall being what I can only describe as a chain reaction of symptoms.  Some of these symptoms I believe to be auto-immune.

 

My symptom log for October and early November is absolutely chocca bloc.

 

I can see now how important it is to keep stress to a minimum in order to allow the CNS to heal properly.  Any stress thrown into the mix, sends the CNS and body into overdrive, and just delays healing.

[Junglechicken]

Still experiencing frequent urination, but all the excruciating lower abdominal pain, colon pain and IBS has subsided.

 

I wonder if the ACV has played a major part in making this happen??

 

Also, I am sleeping through the night once again.

[Junglechicken]

Am not suggesting I am out of this wave yet, but the "IC" and "IBS" have gone.

 

I have a doctor appointment tomorrow morning, and will be picking up the colloidal silver from the post office today as we were out when they tried to deliver.  Will keep you guys posted as to how my body responds to this.

 

Also, I have a potential temp contract......

 

Our Southwest UK SA Group is meeting on saturday, can't wait 

[Junglechicken]

OK, so I picked up the colloidal silver today.

 

I have since applied it "where the sun don't shine", and the itching stopped almost immediately......incredible.  

 

I have also taken it orally as it helps with candida and any other viral issues that may be going on.

[marie123]

I'm interested in your experience with colloidal silver. I've been having similar urinary symptoms except I did have a UTI that was treated by antibiotics. Was tested by gyn for yeast, bacterial vaginosis and uti since I was still getting symptoms. It came back negative. I think withdrawal messes with our systems including urinary and endocrine. I still feel the sensation to urinate often. Like you said you had these symptoms before and they went away only to come back in a wave. I do think that our systems become to acidic. I cut out oj this morning and feel an improvement.

 

What is the cs used for and how do you use it? I may have to get some. Thanks.

 

Marie

[Junglechicken]

Hi Marie,

 

Thanks for your message.

 

To confirm, I have only experienced the frequent urination, UTI, Interstitial Cystitis (i think) and IBS symptoms during a wave (NEVER in between during a window).

 

Here is the information for where I bought my "starter kit" from a company in the UK.

 

http://www.ukcolloid...CFQ5sGwodwTkGUg

 

It includes:

 

http://www.ukcolloid...standard-kit-4/

 

It cost £29.00 which isn't bad really.  

 

There was also a very informative product sheet with all the dose instructions and the ailments that CS gets rid of including: bacterial and viral infections. Women's issues mentioned include: cystitis, UTIs, thrush and candida.

 

I will keep updating my intro page as to how I am getting on with the CS, and any medications / supplements used are recorded on my symptom log.

 

JC

[marie123]

Thanks JC. I will be following.

 

Marie

[Junglechicken]

My new doctor is absolutely lovely........feel relieved.

 

So a list of things:

 

1) Confirmed thrush diagnosis, everything else looked normal.

2) Urine test came back fine/normal - no blood or bacteria.

3) She has done a swab so will see what the result is.

4) My "fungal bum" is actually dermatitis/eczema.

5) At this point I don't have interstitial cystitis - so it is the WAVE(s) setting off UTI/cystitis like symptoms.  She said that I need to keep monitoring and can discuss further if needed.

6) My smear test and flu jab are booked for next monday.

 

Not so bad after all.  However, I will keep taking the CS and ACV.

 

JC