Carmie: accidently doubling up on Seroquel one day while tapering

[Carmie]

Hi everyone, hope you’re all coping as best you can. 

 

I usually just go with the flow and don’t get too annoyed with doctors but I felt really annoyed today when the doctor said the withdrawals might be allergies!!! Allergies???!!! I’m smart enough not discuss withdrawals with doctors so I could have kicked myself for bringing it up today. I knew better. 

 

Usually it doesn’t affect me as I know they know nothing about withdrawals. Maybe it’s the neuro emotions.

 

I’ve been concerned too that I changed from the tablets to a compounding formula because I’ve heard that they are not always accurate. I didn’t know that beforehand. On the other hand, many have had great success with compounding formulas. My brain is just all over the place trying to make sense of it all n then have the doctor say something like that really brought on great annoyance.

 

It is time to get a handle on these emotions! I must do this! I will do this!

 

Went to acupuncture again today too n will journal in a minute to get all of these ruminating thoughts out of my brain. I need to calm my brain down as I’ve been overthinking everything lately. 

 

Okay, Carmie, just take a day at a time, an hour at a time, a minute at a time and don’t worry too much about what the future holds. You can do this!!

 

I know we will all heal in the end, it’s just a matter of getting a hold on our emotions for now. 

 

Sending everyone big hugs, we can do this!!🤗

[Carmie]

THE IMPORTANCE OF HOLDS: 

 

One last thought for the day. I was looking over some old notes that I just found. I haven’t kept all the info on the tapering I did to get down from 300mg to 7.5mg. I journal every year but I throw away the journals at the end of every year when I buy new ones. 

 

Last year in the middle of May I had such severe withdrawals and I can see why.  On the 16th of February I tapered by 7% down to 9.37mg but that was only after a two week hold as I had tapered down by about 6% on the 2nd of February. 

 

I wasn’t on this site at the time but I used to wait about a month or more before I tapered the next dose. I had windows n waves the whole time after not holding long enough but this massive wave didn’t happen until two and a half months after I tapered too soon. 

 

Just goes to show our symptoms can pop up anytime. 

 

Another time I see I only held for 24days instead of a month or more, again big waves. 

 

Just goes to show how important the hold are. 

 

Hang in there everyone, wishing you all a bit of sunshine in your day☀️☀️☀️

 

 

 

 

[Hopefull]

On 9/12/2018 at 8:08 AM, Carmie said:

 

 

 

Hi Rabe, Miracle and DMV, 

 

Yes, aren’t windows great when they come. A great YAY for those windows. 

 

Yesterday was a windows and waves day, though mainly windows. Having windows on the same day as waves certainly makes the waves easier to deal with. I haven’t been too bad. It’s one day at a time though as you never know what the next moment will bring. 

 

Wishing you all lots of windows💚💚💚

 

 

 

Hi Hopefull, 

 

Thank you for your lovely message. I’m so glad you enjoyed a glorious spring day. I think it’s so important to still look at the blessings and beauty around us no matter how we’re feeling. I think nature is one of the best things ever. No matter how bad one is feeling being in nature seems to lift the spirits.

 

I remember once being so ill and I got someone to drive me to the beach and I got my emotional equilibrium back while there. I waded through the water, looked at shells, sat in the sand and enjoyed the sea breeze. I would love to live near the water. 

 

I’m off to the acupuncturist today in the City. I started acupuncture again last week. They have farmers markets in the City on a Wednesday too so I’ll get a few goodies. It is overcast today but there is sunshine in my heart😄☀️. We get lots of sunshine here in Queensland. 

 

I hope you have many more “normal” days. Our normal is quite different from those not going through withdrawals.

 

Sending hugs to you🤗

 

Hi Carmie,

You are so lucky to live in a sunny Queensland!  I would love to live near an ocean/sea.

I have traveled to Cairns /Port Douglas with my family and loved it.

I love sunshine and Melbourne weather can be really gloomy. 

Enjoy the warm weather.  I agree that nature can be really healing. 

I enjoy going for a walk in the nature. 

It makes you forget your problems momentarily. 

How are you finding Acupuncture?

Is it helping?

Hugs, Hopefull.  

[Sunnyday]

Hi @Carmie, hope you're doing okay now. Neuroemotions can be very exhausting, but so can doctors so I think everyone here understands your frustration. Like you said the fact that they don't know anything about it helps to be able to have some sort of understanding towards the individual, so that is a good thing to have in mind (but difficult sometimes).

Hope you will feel better soon. You're very strong. Hugs to you.

[Carmie]

12 hours ago, Hopefull said:

 

Hi Carmie,

You are so lucky to live in a sunny Queensland!  I would love to live near an ocean/sea.

I have traveled to Cairns /Port Douglas with my family and loved it.

I love sunshine and Melbourne weather can be really gloomy. 

Enjoy the warm weather.  I agree that nature can be really healing. 

I enjoy going for a walk in the nature. 

It makes you forget your problems momentarily. 

How are you finding Acupuncture?

Is it helping?

Hugs, Hopefull.  

 

Hi Sunnyday, 

 

Thanks for dropping by. Yes, I love living in Queensland and I definitely have to get to the beach again soon. There really is nothing better than being in nature, and the sound of the waves crashing really is soothing. When I was on holidays down the Gold Coast I could hear the waves from the hotel we will staying in. So beautiful. We were in the 33rd floor too and you could see the sunrise every morning. I miss that.

 

I’m not sure how acupuncture is going. Last year I went for many months but I’m not sure if it helped with withdrawals, though it did help with my low blood pressure. When I went on Wednesday for a treatment it was so relaxing but I was agitated during the treatment on Thursday even though the acupuncturist did the same treatment. I asked him not to do anything stimulating or detoxing.

 

I don’t know if the agitation was from the acupuncture or the withdrawals. I’m guessing most likely withdrawals as I’ve never had problems with acupuncture. He says he will keep trying to help and tweak things. I’ll keep going and see if it does help, even if it helps in a small way it’s beneficial. Acupuncture does balance your body so that in itself is a good thing. He bulkbills so I don’t have to pay anything. 

 

Enjoy your walks in nature.

 

Sending hugs🤗

9 hours ago, Sunnyday said:

Hi @Carmie, hope you're doing okay now. Neuroemotions can be very exhausting, but so can doctors so I think everyone here understands your frustration. Like you said the fact that they don't know anything about it helps to be able to have some sort of understanding towards the individual, so that is a good thing to have in mind (but difficult sometimes).

Hope you will feel better soon. You're very strong. Hugs to you.

 

Hi Sunnyday, 

 

Nice to hear from you. Oh yes, those neuro emotions are fun. 

 

I’m in a bit of a wave this morning again, though it’s bearable. I’m just distracting myself by crocheting n watching DVDs. CFS is bad too so I’ll be spending most of the day in bed by the looks of it. I have been getting up every now and again to do a little housework though and then plonk myself back into bed. My body has no strength. I’m in good spirits though. 

 

Sending sunshine your way but by the sound of your username you’re alreadt having a Sunnyday ☀️☀️☀️

[Rabe]

Hi Carmie...worked with doctors for years and never realized how annoying they can be until these past few years...and annoying is an understatement!  😡

 

I wanted to say I do find when I taper that my system revs up even more and I do react to more of everything...meds, foods, perfumes and scent etc.  But I suspect he was not tying something like that TO the tapering, but deleting WD from the equation and just putting you in the allergy category.  I am kind of getting used to it all....only those hear make any sense at this point in my life...SO grateful to be here!

 

Yesterday, or whatever day I wrote brassmonkey a too long text, I also had such an insight into why I am where and how I am...though the changes in symptoms are still overwhelming.  After such a hap hazard job of tapering by myself and by doctors with various different forms, as well as meds added and deleted, it is amazing for us to even be up and about at all I guess.

 

Right now I just dont know whether to hold more or not.  Hard...just still feel so unstable but also feel it is the meds themselves.  IDK. 

 

I hope you rest well, Carmie.  Thinking about you!💜 

 

 

 

 

[Carmie]

Just documenting I’ve been in a wave pretty much all day with small windows. It’s day 17 since changing from tablet to capsule. 

 

Im doing okay though, been keeping myself distracted with DVDs, just watched Love And Frienship based on a Jane Austen novel. Also been crocheting n watching YouTube videos. I really do love how YouTube has videos on pretty much any subject. It certainly makes for good distraction.

 

Hi @RabeThanks for dropping by. I’m glad you got some insight into his horrific journey. It’s good when we can get our minds around it. I’ve decided to continue with the compounded capsules and water titrate them. I have to stabilise first as the switch from tablet to capsule put me into withdrawals. The measurements were probably not the same plus it’s a different medium. I noticed that syringe measurements can be different when I once tried using a different brand of syringe. 

 

What were you saying in your message? Did you mean you had no problems with your compounded formulas?

 

Yes, withdrawals can certainly make us sensitive to lots of things, you’re definitely right there. 

 

Im sorry you’re in such a predicament at the moment as to whether to taper or to hold. Some other people on here have had problems with the actual meds and had to start tapering even though they weren’t stable. It’s hard to know though whether it’s the meds or withdrawals by the sounds of what you’ve been saying. I hope you manage to come to some conclusion with the help of the moderators. 

 

Wishing you all all the best Rabe💚

 

 

 

 

 

 

[Carmie]

One last thought for the day everyone, 

 

I am soooooo sorry you are all going through this most horrific journey. Please know that we will all heal one day, we really will. I’ve read of heaps of stories n watched videos of people getting over withdrawals. It WILL happen. Don’t lose faith. We WILL do this!!

 

Sending the biggest hug to each and everyone of you 🤗

[lalala]

Hi Carmie ,

 

You are so positive, thank you for dropping by my thread... Hope you stabilize soon... How do you manage, do you live alone ?

 

xoxoxo  healing vibes for you...

[Carmie]

9 minutes ago, lalala said:

Hi Carmie ,

 

You are so positive, thank you for dropping by my thread... Hope you stabilize soon... How do you manage, do you live alone ?

 

xoxoxo  healing vibes for you...

 

Hi lalala, 

 

No I don’t live alone, I’m married and I have lots of friends. I am soooo grateful to all my friends. None of them have deserted me.  When I read on here how people have lost their friends it really makes me so sad. 

 

I really try and be positive. I just take a day at a time though. This journey is the hardest thing I’ve done in my entire life.

 

I wish the best for everyone on here, Im in tears at the moment thinking of all the pain I am going through and everyone on this site is goIng through. 

 

It really does suck what the doctors n the pharmaceutical companies have put us through. It’s such a big money making business.

 

 Thanks again for dropping by💚💚💚💚

 

 

[Carmie]

Okay, it’s nearly 9.30pm now in Queensland, Australia,

 

Okay, one other last thought for the day, the other one wasn’t enough.😃 I’m actually laughing writing this though I feel like crying. 

 

What the doctors and pharmaceutical companies have done to us is horrendous. How much pain have we gone through? I was so annoyed this week with my Pdoc, though I knew he only knows what he has been taught. 

 

I wish I could say that we will be okay. Actually, I can say we will be okay eventually because we really will. We will all heal. In the meantime though we just have to get through each day as best we can. It sucks I know. 

 

Keep finding humour when you can. If we can’t laugh we will cry. Please everyone try n find humour in your day. I was hoping to catch up with a friend tomorrow but the way I’m going this eve it doesn’t look like it’s going to happen. 

 

Maybe I’ll watch some comedic DVDs tomorrow. One day at a time does it. 

 

Again, I’m soooo sorry that everyone on here is going through this horrendous journey. 

 

Wishing you all all the best, we will get there💚💚💚

 

 

[Bee5]

Hi Carmie,

 

Now I am popping in on your thread! It is interesting that you say that changing from tablet to capsule has put you into withdrawal. I know you have given plenty of insight on my thread, but I wanted your thoughts on one more thing: do you thing that moving from controlled-release paroxetine to instant-release paroxetine could be contributing to my withdrawal symptoms (particularly the brain zaps)?

 

Has anyone else moved from controlled-release to instant-release and experienced brain zaps?

 

Regards,

Bee

[Carmie]

3 minutes ago, Bee5 said:

Hi Carmie,

 

Now I am popping in on your thread! It is interesting that you say that changing from tablet to capsule has put you into withdrawal. I know you have given plenty of insight on my thread, but I wanted your thoughts on one more thing: do you thing that moving from controlled-release paroxetine to instant-release paroxetine could be contributing to my withdrawal symptoms (particularly the brain zaps)?

 

Has anyone else moved from controlled-release to instant-release and experienced brain zaps?

 

Regards,

Bee

 

Hi Bee, 

 

Thanks for dropping by. I haven’t changed from controlled released to instant release but one thing I do know is that every time we change to something different it puts us into withdrawals. It is more than likely that that is what has happened to you. 

 

If anyone else is reading this that has changed from these two different formulas please give Bee some of your expertise. 

 

Good night everyone, I’m off to bed soon💚💚💚

[Miracle123]

Hi Carmie, Yup.....we only know our pain and suffering each day in between window and waves.....up and down.....moody or happy. Hope your windows getting more and frequently. Hugs and goodnite.😪

[Carmie]

Good morning everyone,

 

I just wanted to say listening to the Claire Weekes videos on YouTube is really calming. She has such great advice and listening to her voice is really soothing. She sounds like a caring grandmother. 

 

There’s even a short video entitled: An Encouraging Talk Before Bed - Let Tomorrow Be What It Will.

 

Take care everyone 💚

 

 

7 hours ago, Miracle123 said:

Hi Carmie, Yup.....we only know our pain and suffering each day in between window and waves.....up and down.....moody or happy. Hope your windows getting more and frequently. Hugs and goodnite.😪

 

Hi Miracle, 

 

Yes, it’s certainly up, down, up, down. Amazing what the meds do to our emotions. All we can do is take each moment as it comes. I’m not too bad withdrawal wise this morning but I can barely move due to CFS so it looks like I’m stuck in bed for the day.  

The withdrawals ramp up my Chronic Fatigue Syndrome which is also a CNS illness. 

 

I’m going to listen to some more of the Claire Weeke’s videos on YouTube. I really like them. I will watch some DVDs too, I have a TV in the bedroom. It’s certainly come in handy. I have lots of DVDs, I also get them from the library. I watch Netflix in the loungeroom, the bedroom TV won’t connect to it. 

 

Hope you get lots more windows too💚

[direstraits]

thinking of you, @Carmie

hope you feel better soon.

sending love and healing thoughts.

xx🤗❤️

[Rosetta]

Quote

 

Hi Carmie,

 

(No idea how that quote box just appeared!)

 

I wish you weren't feeling bad right now, but thanks for being positive.  Hope you stabilize quickly!

 

R

 

[Carmie]

Just documenting that I had mainly waves today but also some windows. Woke up in a window. (Day 18 since changing from tablet to capsule.

 

7 hours ago, direstraits said:

thinking of you, @Carmie

hope you feel better soon.

sending love and healing thoughts.

xx🤗❤️

 

5 hours ago, Rosetta said:

Hi Carmie,

 

(No idea how that quote box just appeared!)

 

I wish you weren't feeling bad right now, but thanks for being positive.  Hope you stabilize quickly!

 

R

 

 

Hi direstraits and Rosetta, 

 

Thanks for your kind words. I hope that you’re both coping as best you can. I’ve just been watching DVDs n doing some crocheting in bed. I’ve managed to get up a little here n there to do some housework but have been mainly in bed. 

 

Im enjoying watching Larkrise To Candleford. Love period dramas. Well, it’s back to my show. 

 

Sending you both hugs🤗🤗

[Miracle123]

Hi Carmie, So good to hear that. Claire Weeke’s videos on YouTube really helpful. Look like you really got a lots distraction.........😆 Hope tomorrow is your sunny day🌻

[Carmie]

Been mainly in a wave today but am keeping myself distracted. 

 

Been doing a diamond painting of a beautiful beach scene. If anyone needs a good distraction it’s a pretty good one. You can get them cheap on eBay and you can get all sorts of pics, there’s animals, nature, scenery etc etc. You just stick little shiny beads on to the picture. I’ve got a few here so when I finish this one I can start the next. 

 

I put some of them on my “happy wall” in the bedroom. Nice to wake up to my wall that makes me smile. I’ll probably also frame some and give them away to friends. 

 

I’ve been crocheting and watching DVDs too. Feel shocking at the moment but I just keep distracting myself. I keep alternating between doing my diamond painting and crocheting while watching DVDs. Still watching season one of Larkrise To Candleford. I must buy the other three seasons, great show if you love period dramas. 

 

My temperature keeps going up and down too. One minute I put on the fan and the next minute the heater. In the past on some days I’ve actually from the heater to the air conditioner throughout the day. 

 

Anyway, I’m going to float through the rest of the afternoon and try not to focus on all my symptoms. Time to distract again.

 

Just got boiling again, okay fan, come on here!😀

 

Hang in there everyone 💚

15 hours ago, Miracle123 said:

Hi Carmie, So good to hear that. Claire Weeke’s videos on YouTube really helpful. Look like you really got a lots distraction.........😆 Hope tomorrow is your sunny day🌻

 

Thanks for dropping by Miracle, 

 

Yes, Claire Weekes is amazing. It’s funny, all through the years that I’ve been tapering the Seroquel I’ve kind of done that floating thing without really knowing I was doing it. I kept distracting myself and tried to just focus on what I was doing. I’ve used so many different distractions, at one stage I was playing hours and hours of Words With Friends. 

 

Sending you sunshine too ☀️☀️☀️

 

 

 

[Rabe]

Hi Carmie..monsoon season around here!  Waves everywhere!  Ive had such a hard time walking ...get so short of breath and my heart goes off and

I find myself force breathing.  But have done some yoga and breathing and meditations which help.  Also looked at Claire Weekes and would like to listen to some of these in the days ahead. At least was able to get some groceries today.  Yay! 

Thank you for bringing a beautiful ray of sunshine to this damp weather! Take care Carmie!💜 Hooe your taoering goes well!

[Carmie]

Just checking in to document it was a windows and waves days. More windows than yesterday. I kept myself distracted with crafts and went for a walk. Pretty braindead. 

 

Hi @Rabe

 

You made me laugh with your monsoon comment😂. We need to keep our sense of humour, that’s for sure. 

 

So sorry you’re struggling to walk, I hope you are a bit better soon. Glad you got your groceries though. I went and got groceries today too. 

 

Yes, the Claire Weekes videos are worth watching, they’re very relaxing with her calm, kind and gentle voice. She has good advice. Fighting what we’re going through doesn’t change anything, it doesn’t make it better. It can actually make it worse. Better to distract oneself doing other things and float through the symptoms. That doesn’t mean it’s always easy but it’s best just to get through an hour at a time and do the best you can. 

 

Distract, distract, distract and focus on something else while in waves. I keep looking into new crafts to do. I’ve got some signs to paint and I’m doing a diamond picture now with a million air balloons in it, it’s really colourful. It’s easy to do, you just keep sticking the beads on the numbers they go on. I just stuck another two diamond paintings on my happy wall, the beach one I finished today and a sunflower one. More things that will make me smile when I look at my bedroom wall in the morning.

 

Well, my brain has disappeared so I’ll say bye for now and thanks for being a ray of sunshine too. ☀️☀️

 

Sending hugs🤗🤗

 

 

 

 

[DMV64]

I am just learning to knit! I want to learn more. I bought a book but I don't learn that well from books, so I am hoping to find a class near me. It does help calm me down for sure. Also would love to learn to crochet! How wonderful you are doing this!

[Carmie]

Good morning everyone, 

 

I just wanted to say making a “happy wall” in my bedroom has really helped lift my spirits. Every morning when I wake up that’s what I face. I have all sorts of things on there that make me smile. I am recently adding a collection of diamond paintings of things that I love on it. So far I have a beach scene, sunflowers and animal pictures.

 

My next diamond picture I’m doing is going to be of air balloons. I love balloons in general, I also blow them up and put them on my wall.

 

I woke up feeling terrible this morning but looking at the wall made me smile. I have to put on my glasses first though to see it properly. 🤓 It reminds me of all the things I am grateful for. 

 

I also put encouraging signs on there that I’ve painted. 

 

I hope everyone is coping okay today, just an hour at a time. I’m off to catch up with a friend today. Hang in there everyone 💚💚

[Rosetta]

I'm glad you can go out to see a friend.  Hope you have fun. -R

[Carmie]

Just checking in to document that I’m in a windows and waves situation again today. More windows today though. Severe brain fog at the moment(CFS) and am struggling just to write this.

 

6 hours ago, Rosetta said:

I'm glad you can go out to see a friend.  Hope you have fun. -R

 

Hi Rosetta, 

 

Thanks for popping by, I hope you’re getting through each moment as best you can. Yes, I had a lovely time with my friend. We are going to the movies next week too and we’re going to spend one day at the manmade beach in the middle of the city. We will have morning tea and lunch there too. Heaps of cafes and restaurants.

 

Actually, I was asked by other friends to go to the movies this Friday too, so I’ve got lots of fun things to look forward too. Who knows how I will be though as I’m still in a windows and waves situation. I have gone out with friends in the midst of a wave in the past though. 

 

Take care, my brain has left the building again💚💚

[Lilabella]

Hi Carmie,

Hope you are ok, just dropped by your thread to see that it's been a bit challenging..but I know you are so strong and good with distracting yourself and finding joy in the windows. 

Just wanted to send you all my best wishes. I know how hard this is. And I've only been doing it a short while. 

I feel sad it's all us women who seem to have it hard especially around menopause age. I feel terrible for my son. What an extra burden we don't need! But we will heal, people just do. 

Lilabella x

[TheWayBack]

Glad to hear you are doing quite alright!

 

-ALL.RIGHT!  😎

[Bee5]

Hi Carmie,

 

Just checking in. How is the latest wave? Have you settled into your transition to beads instead of tablets?

 

Regards,

Bee

[Carmie]

On 9/17/2018 at 10:21 PM, DMV64 said:

I am just learning to knit! I want to learn more. I bought a book but I don't learn that well from books, so I am hoping to find a class near me. It does help calm me down for sure. Also would love to learn to crochet! How wonderful you are doing this!

 

Hi DMV, 

 

Knitting and crocheting are definitely amazing distractions when going through withdrawals, definitely very calming. I hope you find a class near you to learn how to knit. I only know the basics, but I tell you what, knitting millions of twirly scarves and crocheting blankets for friends has kept me sane through waves. 

 

Have you checked out youtube videos? They can really help too if you have trouble learning from a book.

 

Take care and enjoy your knitting💚

 

14 hours ago, Lilabella said:

Hi Carmie,

Hope you are ok, just dropped by your thread to see that it's been a bit challenging..but I know you are so strong and good with distracting yourself and finding joy in the windows. 

Just wanted to send you all my best wishes. I know how hard this is. And I've only been doing it a short while. 

I feel sad it's all us women who seem to have it hard especially around menopause age. I feel terrible for my son. What an extra burden we don't need! But we will heal, people just do. 

Lilabella x

 

Hi Lilabella, 

 

Thanks for dropping by. I was glad to hear that you stabilised a bit. This is a roller coaster ride though. We will go through lots more waves. It means our brains are trying to heal though. Yes, good idea to distract, distract, distract when in waves and make happy memories when in windows. 

 

It must be hard going through this when you have children. You want to try and be chirpy and upbeat for them but you are barely getting through the day when in a wave. I feel for you. 

 

Im happy to hear you’re sounding more positive about this journey though. One day at a time, hey. Will will win this fight! 

 

Sending hugs🤗

 

 

11 hours ago, TheWayBack said:

Glad to hear you are doing quite alright!

 

-ALL.RIGHT!  😎

 

Hi TheWayBack, 

 

Thanks for dropping by. It’s a struggle, isn’t it? I’m sorry you’ve been having such a hard time with the akathisia. It really is the worst symptom ever. I can cope with any other symptom but when that kicks in I feel like I’m going to go nuts. 

 

I’m in a windows n waves situation at the moment, but I’m getting windows which is always a blessing. 

 

Sending you hugs🤗

 

11 hours ago, Bee5 said:

Hi Carmie,

 

Just checking in. How is the latest wave? Have you settled into your transition to beads instead of tablets?

 

Regards,

Bee

 

Hi Bee, 

 

My wave comes and goes. I have been getting windows inbetween. Phew! I’m not using beads, I just had my tablet compounded. I used to crush a 25mg tablet and I got down to 7.5mg so now I got the compounding pharmacist to make me a 7.5mg capsule. I will water titrate that once I stabilise. 

 

Take care, sending sunshine your way☀️☀️

[Hazel]

Thanks for stopping by my thread Carmie! You’re always so positive🤗

[Carmie]

1 hour ago, Hazel said:

Thanks for stopping by my thread Carmie! You’re always so positive🤗

 

Hey there Hazel, 

 

It’s always nice to hear from you. I’m glad you pop in on this site every now and again still. 

 

Ive had a quiet morning so far. It’s nearly ten am n I can’t seem to get out of bed, no strength due to CFS. My housework is calling me though😂. I’m in a window so far though so that’s good, can’t complain there. Yay for windows! 

 

I think I’ll just put on a DVD n crochet and get up every now and again and do a little bit of housework. Slow and steady wins the race. Consistency over intensity is a great motto to have. I painted a sign on my “happy wall” with that saying on it. 

 

Take care and I hope you have a happy day with some sunshine in it☀️☀️☀️

[Carmie]

Just checking in briefly to document that it’s been a windows and waves day. Spent the morning on SA here n have been watching DVDs and crocheting. 

 

Going to catch up with friends tonight, though I may be in lala land because my brain seems to be leaving me now. I’ll lie down if I have to, my friends are used to me. 😀 I’ve been sick so long with CFS they’re used to me lying down or sitting on the floor as I get really faint a lot due to low blood pressure. 

 

Take care everyone, each day is a step closer to healing💚💚💚

[Lilabella]

2 hours ago, Carmie said:

Just checking in briefly to document that it’s been a windows and waves day. Spent the morning on SA here n have been watching DVDs and crocheting. 

 

Going to catch up with friends tonight, though I may be in lala land because my brain seems to be leaving me now. I’ll lie down if I have to, my friends are used to me. 😀 I’ve been sick so long with CFS they’re used to me lying down or sitting on the floor as I get really faint a lot due to low blood pressure. 

 

Take care everyone, each day is a step closer to healing💚💚💚

Have a lovely evening Carmie X 

[Steve61]

3 hours ago, Carmie said:

Just checking in briefly to document that it’s been a windows and waves day. Spent the morning on SA here n have been watching DVDs and crocheting. 

 

Going to catch up with friends tonight, though I may be in lala land because my brain seems to be leaving me now. I’ll lie down if I have to, my friends are used to me. 😀 I’ve been sick so long with CFS they’re used to me lying down or sitting on the floor as I get really faint a lot due to low blood pressure. 

 

Take care everyone, each day is a step closer to healing💚💚💚

Have a great time with your friends, Carmie.  You deserve to have good times. Your encouragement has helped me enormously these last few weeks.

 

Steve xx

[Miracle123]

Hi Carmie, Hope you have a joyful and great time with your friends. Wish you every day is your window and happy day. Big big hugs.🤗