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☼ getofflex: weaning of Lexapro


getofflex

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  • Administrator
4 hours ago, getofflex said:

My husband suspects it's related to sinus and inner ear.

 

Hi Getofflex,

Hubby may well be right - sinus and inner ear issues can certainly cause the symptoms you mentioned. When I read your post, my first thought was, do you have a virus/infection?

 

I'm certainly not trying to dismiss your concerns. It'd be good to see if the doctor finds any sign of infection.

 

Wishing you well 

Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions.

2017 – 2022:   Vortioxetine 15mg, Jan ’22, 15mg->5mg over 4 weeks, Feb ‘22 5mg -> 7.5mg due to WD, July ’22 6.75mg (found SA website), Aug 6.07mg, Sep 5.46mg, 11 Oct 5.00mg, 18 Oct 4.88mg, 25 Oct 4.75mg, 1 Nov 4.63mg, 8 Nov 4.5mg, 3 Jan ’23 4.39mg, 10 Jan 4.28mg, 17 Jan 4.06mg, 13 Feb 3.95mg, 20 Mar 3.85mg, 3 Apr 3.75mg, 10 April 3.65mg, 31 May 3.58mg, 8 June 3.50mg, 15 June 3.43mg, 22 June 3.35mg, 12 Jul 3.29mg,  19 Jul 3.22mg, 26 Jul 3.15mg, 3 Aug 3.09mg, 30 Aug 3.02mg, 7 Sep 2.96mg, 14 Sep 2.89mg, 21 Sep 2.82mg, Oct 11 2.75mg, Oct 19 2.70mg, Oct 26 2.64mg, Nov 2 2.59mg, Nov 23 2.53mg, Nov 30 2.48mg, 7 Dec 2.43mg, 17 Dec 2.38mg, 19 Jan 2.33mg, 26 Jan 2.28mg, 2 Feb 2.24mg, 8 Feb 2.19mg,  29 Feb 2.15mg,  7 Mar 2.10mg,  14 Mar 2.06mg,  21 Mar 1.99mg,  10 Apr 1.95mg, 17 Apr 1.91mg, 24 Apr 1.87mg,

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  • Mentor
9 minutes ago, Emonda said:

 

Hi Getofflex,

Hubby may well be right - sinus and inner ear issues can certainly cause the symptoms you mentioned. When I read your post, my first thought was, do you have a virus/infection?

 

I'm certainly not trying to dismiss your concerns. It'd be good to see if the doctor finds any sign of infection.

 

Wishing you well 

That's what came to my mind as well.  My ears get plugged easily due to seasonal allergies, and I have bouts of dizziness. My blood pressure is also at the low end, so if I'm on my knees pulling weeds for a prolonged period, I get lightheaded when I stand.  Occasionally, I get bouts that last a day, which may also be related to inner ear crystals that come loose from my middle/inner ear. 

Tim C

Started Paxil for GAD in 1999

Unsuccessful taper attempt in 2006

Paxilprogress helped with a successful taper completed in 2009

Using therapy and CBT to manage my anxiety

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  • Moderator Emeritus

Hi @getofflex I think the Mgus is a long shot.*  Even if you have developed a marker for it, the chances are overwhelming that you won't progress to a cancerous blood disorder.  I'm glad I had mine checked (at the beginning of w/d) as now my hematologist monitors it for developments toward nonhodgkin's disease or multiple myeloma.  The important thing right now is to catch these very early.  Also dietary changes which I'm making right now as new information comes out, may help in keeping it from developing.  Some studies link Mgus to chemical exposure, as well as increasing age.  There are even some showing high odds with antidepressant use.**  Since many of the Mgus symtoms mimic w/d symptoms, I wonder at the overlap:  parethesias, vision problems, iron and thyroid issues, stabbing pains, hip pain, dizziness, high cortisol, broken sleep, etc.  I also wonder if Mgus has a bearing on PAWS.  I hope this is helpful even if your dizziness is caused by other things.

All my best to you!  You've come such a long way🕊️

Arbor

 

*  A non cancerous blood disorder that rarely develops into serious blood cancers.

 

** An example:

The risk of non-Hodgkin's lymphoma was elevated by 40 percent with the use of fluoxetine, although the 95 percent confidence interval included one (ASOR = 1.4, 95 percent CI: 0.8, 2.4). No pattern was observed with duration of any antidepressant medication use and non-Hodgkin's lymphoma risk (table 4).Sep 15, 2004

Zoloft: 1995 - 2015

Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on  December 15, 2018

Gabapentin: 2016 to 2019  (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019

Enalapril: 2010 - 2019

Lipitor: 2017 -2017

Metformin: 2000 - 2020

Liothyronine: 2007 - 2019

Levothyroxine: 2000 - 2022

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  • Moderator Emeritus

Thanks @Happy2Healfor all the information.  I will look it over soon.  I'm seeing the doctor this morning for my yearly checkup and will mention it to him.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus
18 hours ago, Emonda said:

I'm certainly not trying to dismiss your concerns. It'd be good to see if the doctor finds any sign of infection.

Thanks, Emonda.  I didn't feel you were dismissing my concerns - I too suspect sinus issues. 

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus
18 hours ago, mstimc said:

My ears get plugged easily due to seasonal allergies, and I have bouts of dizziness.

Thanks mst.  I also have chronic allergies and sinus issues. 

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus
17 hours ago, arbor said:

All my best to you!  You've come such a long way🕊️

Arbor

Thank you Arbor!  I sincerely hope that you are feeling better.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus

Well the doctor also thinks my dizziness is caused by sinus trouble (allergies).  He suggested Flonase and Claritin.  I'll try one at a time, in low doses.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator

My favorite "cure" for allergies was to run a swimming pool through my nose. I would go swimming and allow the water to clear things out. Worked really well. In a less active vain, saline spray really helps. I found Claritin to be too activation and avoid it.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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  • Moderator

Hi @getofflex

dizziness sucks - I get it often as well - in my case also due to dysautonomia. Are you hydrated enough? That helps cope with it for me. 


In terms of allergies - there are a few things to do beyond medicines. It is important to be tested for allergies to find the culprit especially if it is constant and change your environment, whenever feasible, rather than yourself. In my youth I developed asthma as a result of allergies and my awesome GP at the time did this for me instead of just giving me an antihistamine. Once you identify the allergen - in my case it was a specific kind of prevalent mold, you can do things to prevent it. Dust mite allergies are much harder but even they can be alleviated through removing carpets, encasing bedding in allergy proof casings, air purifiers etc. And if you are allergic to stuff outside - then you can do things like wash your hair when you get inside, use an N-95 mask when you are outside etc. 

 

Regarding the meds - Flonase is a corticosteroid which can, in theory, create agitation but in my experience, pre-withdrawal did not, perhaps because the dose is so low when applied topically.  

 

In terms of the antihistamines - Allegra (fexofenadine) is less sedating than Claritin (loratadine). That means that it occupies less of the H1 receptors in the brain. It is not necessarily the same as not impacting the brain as much - they all cross the blood brain barrier. But if Claritin gives you symptoms, then you might want to try Allegra (both are over the counter). 

 

Hope you start feeling better soon, 

OMW

 

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

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  • Moderator Emeritus

Hi @Onmyway.  Yes, I drink plenty of fluids.  The good news is, the dizziness is completely gone!  I believe I had a respiratory virus that was affecting my inner ear.  While I had the dizziness, I also had other respiratory symptoms. So, I won't be taking the drugs the doctor suggested.  

 

I was tested for allergies years ago, and had an allergy to dust.  I got allergy shots for that.  Thanks for the help and support.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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Hi, Getofflex,

 

(not Onmyway, I’m gonna put on my dunce hat now, lol)

 

I’m happy to hear that you are feeling better!  How scary to feel dizzy, but, yep, sinus issues can cause it.  So glad that has subsided for you.  
 

Take care,

🧚🏻‍♀️Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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  • Moderator Emeritus
Posted (edited)

I'm currently being affected by the transition from winter to spring.  Last night, I was in a full on wave.  A couple of times I was about to fall asleep, then was awakened by a burst of adrenaline.  Thankfully, the rest I had this afternoon helped, and I'm feeling a bit better.  Every year, I go into a wave at this time.   It's giving me a chance to use my coping skills - acceptance, CBT stuff (like telling myself this is only temporary, this too shall pass, etc), prayer and spiritual life, forest bathing and walks outside, and just taking it slow and being gentle with myself.  

 

Tomorrow is a big day, the original plan was to accompany hubby while we go get taxes done with 3 friends of ours, and then meet for lunch with 7 other people.  I'm probably going to just stay home, and let him go without me, unless I feel a lot better tomorrow.  That's quite a lot of stimulation for my CNS to deal with. 

 

Fortunately the dizziness completely resolved almost a week ago.  I suspect a respiratory virus that affected my inner ear.  

 

I'm very thankful for this site, for all the support and validation and information here!  

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • 1 month later...
  • Moderator Emeritus

Hello.  I was out of town from March 24 - 30 with my younger son and husband.  My younger son had a cold on the trip.  Unfortunately, I caught his cold the day after we got back from the trip.  It got very severe.  I didn't realize one could get this sick from a cold.  On day 10 of the cold, it went into a secondary bacterial infection in the respiratory system, and I also got a UTI.  So, now I've been on Cefdinir for 3 days.  It is working, and thankfully, it's not aggravating my WD. I believe the stress from the trip, which caused lack of sleep, plus 2 eleven hour drives in 6 days, was too much for me.  I won't be doing that again.  We did have some good times on the trip, so not all was lost.  I'm going to just be staying close to home for a good long time! 

 

We are having some beautiful spring days here - I've got greens in my garden, birds singing, things leafing out and blooming!  I love spring!  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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Sorry about your cold being so intense. You have a very good mindset and with some rest your health will catch up to it. Best wishes!

22.10.2020 sertraline (50 upped to 100mg for two months) and pregabalin (150mg for half year)

2021 mirtazapine (30mg for some months), amitryptyline (cascading dose but doctor took me off it before reaching five tablets), olanzapine (5mg), lithium (this one I reacted to terribly as well, maybe due to my Hashimoto disease)

2022 duloxetine, reboxetine, venlafaxine (all unsuccessful attemps stopped after one day with no side effects following days, only reboxetine pushed through with one box)

2023 mainly bupropion (150mg stopped after few weeks, 300mg stopped after few another weeks, 150mg stopped after few months) until IAR, buspirone (5mg) tried for 3 days 

autumn 2023 - 150mg bupropion daily,

12.12.2023 - bupropion stopped,

16.12.2023 - 100mg sertraline,

18.12.2023 - 150mg bupropion,

19, 20 & 21.12.2023 - 150mg bupropion & 5mg buspirone,

Nothing ever since 21.12.2023.

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  • Mentor
2 hours ago, getofflex said:

I believe the stress from the trip, which caused lack of sleep, plus 2 eleven hour drives in 6 days, was too much for me.

Stress and being in an enclosed space for a long time is the perfect recipe for getting sick. And there does seem to be an unusually severe cold bug making the rounds. But glad to hear you're on the mend!

Tim C

Started Paxil for GAD in 1999

Unsuccessful taper attempt in 2006

Paxilprogress helped with a successful taper completed in 2009

Using therapy and CBT to manage my anxiety

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  • Administrator
On 4/13/2024 at 4:18 AM, getofflex said:

It got very severe.  I didn't realize one could get this sick from a cold.

 

I'm sorry to read you've been really unwell, getofflex. Wishing you a speedy recovery.

 

On 4/13/2024 at 4:18 AM, getofflex said:

plus 2 eleven hour drives in 6 days, was too much for me.  I won't be doing that again.

 

It takes it out of you. I did that late last year—two 12-hour drives in the space of a week. Be kind to yourself.

 

On 4/13/2024 at 4:18 AM, getofflex said:

We are having some beautiful spring days here - I've got greens in my garden, birds singing, things leafing out and blooming!  I love spring!

 

That sounds beautiful. It's autumn here, and at times, it feels like summer, although I did need a jumper for the first time just the other day.

Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions.

2017 – 2022:   Vortioxetine 15mg, Jan ’22, 15mg->5mg over 4 weeks, Feb ‘22 5mg -> 7.5mg due to WD, July ’22 6.75mg (found SA website), Aug 6.07mg, Sep 5.46mg, 11 Oct 5.00mg, 18 Oct 4.88mg, 25 Oct 4.75mg, 1 Nov 4.63mg, 8 Nov 4.5mg, 3 Jan ’23 4.39mg, 10 Jan 4.28mg, 17 Jan 4.06mg, 13 Feb 3.95mg, 20 Mar 3.85mg, 3 Apr 3.75mg, 10 April 3.65mg, 31 May 3.58mg, 8 June 3.50mg, 15 June 3.43mg, 22 June 3.35mg, 12 Jul 3.29mg,  19 Jul 3.22mg, 26 Jul 3.15mg, 3 Aug 3.09mg, 30 Aug 3.02mg, 7 Sep 2.96mg, 14 Sep 2.89mg, 21 Sep 2.82mg, Oct 11 2.75mg, Oct 19 2.70mg, Oct 26 2.64mg, Nov 2 2.59mg, Nov 23 2.53mg, Nov 30 2.48mg, 7 Dec 2.43mg, 17 Dec 2.38mg, 19 Jan 2.33mg, 26 Jan 2.28mg, 2 Feb 2.24mg, 8 Feb 2.19mg,  29 Feb 2.15mg,  7 Mar 2.10mg,  14 Mar 2.06mg,  21 Mar 1.99mg,  10 Apr 1.95mg, 17 Apr 1.91mg, 24 Apr 1.87mg,

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On 4/12/2024 at 8:18 PM, getofflex said:

 I didn't realize one could get this sick from a cold.  On day 10 of the cold, it went into a secondary bacterial infection in the respiratory system


Hi @getofflex

 

Indeed! I had the same experience a year ago and felt deathly ill. 
 

Hope you feel better soon 🥰

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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  • Moderator
On 4/12/2024 at 7:18 PM, getofflex said:

Hello.  I was out of town from March 24 - 30 with my younger son and husband.  My younger son had a cold on the trip.  Unfortunately, I caught his cold the day after we got back from the trip.  It got very severe.  I didn't realize one could get this sick from a cold.  On day 10 of the cold, it went into a secondary bacterial infection in the respiratory system, and I also got a UTI.  So, now I've been on Cefdinir for 3 days.  It is working, and thankfully, it's not aggravating my WD. I believe the stress from the trip, which caused lack of sleep, plus 2 eleven hour drives in 6 days, was too much for me.  I won't be doing that again.  We did have some good times on the trip, so not all was lost.  I'm going to just be staying close to home for a good long time! 

I meant to reply to this last week and time went away from me. I am so glad you are feeling a bit better @getofflex. Colds can be really hard. I had a sequence of Covid and flu earlier in the year and it knocked me down substantially. And the colds this year have been brutal - some schools closed here for a week because the colds were so harsh. Some people are still coughing from colds they got around New Years. They call it the 100 day cough. So pls don't beat yourself up for doing something that caused you a cold. It was likely inevitable if you ever see people.  Hopefully with spring the bugs should be gone. 

 

Sending you warm hugs, 

OMW

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

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Hi getofflex,

So sorry to hear of your recent bout of infectious illness. Sending best wishes for ongoing recovery. 

I have not been able to participate on SA but think of you often and am so thankful for all you contribute.

How amazing that you have been off psych drugs for almost 2 years! What a remarkable achievement.  

With love and gratitude, get well soon,

A.

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp fish oil blend w/ morning meal (incl. vit. A+D+E); calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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  • Moderator Emeritus

Thank you @Emondafor your support!  It means a lot to me.  I'm still recovering.  I am able to do some physical things, but have to pace myself.  

 

@gentlehermioneI'm sorry to hear that you got that sick, too.  

 

@Onmywaythanks so much for letting me know that the colds have been brutal this year, and reminding me not to blame myself!  That helps a lot.  

 

@Ariel It's wonderful to see you! I can't believe I've been off almost 2 years.  

 

I'm still in protracted WD.  Every so often, a nasty wave hits me, like it did Monday - severe insomnia, agitation, anxiety, and major neuro emotions!  Crying spells all morning.  Wow.  Thankfully this wave didn't last long, only a day.  I may have overdone the physical activity, so now I'm being more careful to pace myself.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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On 4/24/2024 at 2:26 PM, getofflex said:

.  

 

I'm still in protracted WD.  Every so often, a nasty wave hits me, like it did Monday - severe insomnia, agitation, anxiety, and major neuro emotions!  Crying spells all morning.  Wow.  Thankfully this wave didn't last long, only a day.  I may have overdone the physical activity, so now I'm being more careful to pace myself.  

Wow, seems so unfair given how slowly you went. I’m glad your windows seem really short now. 

May 2019 started lexapro 2.5 mg; 2020 went to every other day; 2021 beginning of Mar, tried to stop but had insomnia; Mar 30, 2021 reinstated 1.25 ev other day, WD symptoms, not enough

April 19, 2021 started liquid, .85 mg/day; May 1, 2021 .8 mg, May 6 .75 mg; June 6 .7 mg, June 20 .65mg, June 30  .6mg, Jul 24 .55 mg, Oct 17 .5 mg, Dec 5- .45 mg; Jan 26, 2022- 4mg,  April 18- .375 ; April 24- .35; April 29- .3; Jun 12- .25 mg; Jun 28- .2 lex; Sept- .15 mg, Nov .1- long hold, never got better

June ‘23- PPPD started 🙁, Jun- .09, Jul- .08, Oct- .07, Dec- .06, Jan ‘24- .05!

Taking Magnesium, whole foods iron, & natural supplements as needed for sleep

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