LizaB: Lyrica / pregabalin

[LizaB]

@OldDodgydid you bruise from the injections, because I have already bruised. Any thing I can do to prevent bruising? 

[LizaB]

@OldDodgyI have contacted the doctor because the Lovenox injection tonight was excruciatingly painful. I screamed in agony because it stung so so badly. . 
 

It's like the stinging spreads  all over my abdomen and now my abdomen is aching. 
 

I’ve order more I’ve packs, as the 5 I have are not  my enough anymore. 

[Aussieblue]

Hi Liza makes sure you rob the syringe in your hands to warm the lovenox. Then inject slowly, remove the needle. You can apply slight pressure to the site, absolutely no rubbing. Avoid injecting into the same place, near bruising or even scar tissue. As your treatment progresses by right you will have a lessened sensation of stinging and/or pain. Xx

[Aussieblue]

Liza meant to say rub the syringe not rob….just roll it gently between your hands. 

[OldDodgy]

@LizaB

I am afraid it does bruise, it shows it’s working.  Follow @Aussieblue advice.  Soon it becomes a nuisance to do, but you will overcome it and it is necessary. 
OldDodgy 

[LizaB]

On 3/3/2022 at 1:59 AM, OldDodgy said:

@LizaB

I am afraid it does bruise, it shows it’s working.  Follow @Aussieblue advice.  Soon it becomes a nuisance to do, but you will overcome it and it is necessary. 
OldDodgy 

@Aussieblue @OldDodgy

I was unable to continue the injections, as they were extremely painful and the plunger was super super stiff and would bow out, and I was getting panic attacks, so with the doctors okay, I went  back on Apixaban.

 

The good news is I had an ultrasound on Thursday and the clot is getting better.

BUT right after the ultrasound, I was asked to wait, as they needed to reach the doctor, but we’re unable.
The radiologist got me really scared because she said I had to get ahold of the hematologist ASAP….turns out the original ultrasound said the clot was in the wrong vein and that’s what got them worried, but it’s all good.

 

thanks for your support! 

[KarenUpATree]

Hey you said you found a guru of medicine toxicity.  Are you able to share who or what kind of practice they have?

[LizaB]

I am so frustrated!!!

I had a blood clot on Christmas, which has been incredibly painful. 

I have not received the help I have needed and when I got the Depo Provera shot in February, my clot leg became so painful I thought I was going to tear my hair out . The pain was so bad for over a week and I still haven’t recovered from the pain. 

The Hematology referred me to a pharmacologist which was my last hope and guess what, he rejected me because I’m not hospitalized. 

What the heck am I supposed to do to get help with these bloody medication that are causing me so many problems??

Maybe I should stop all my medications, so I can get hospitalized and can see the doctor. 

I am so angry and now I can’t even escape from myself at night because the bloody lyrica side effects are back and keeping me awake all night. 

I feel like punching the wall. 
I feel alone and feel the doctors don’t care and aren’t trying. I also feel that some are making things up and causing problems.  

I try so hard and don’t know why I bother.

[OldDodgy]

@LizaB

Its crazy when you have the stress and pain from a clot!  And the medics are not helping. 
 

The haematologist should be aware that depo-provera increases the chance of clot x 4.    You should perhaps mention this.? 
 

If your leg is painful I would think your best advice would be from a “Clot Face book group” as you may have what is called post

 

phlebitic leg syndrome and it can be eased. 
 

I hope either haematology or gynaecology start to take you seriously. 
 

Hoping for better times for you very soon. 
 

OldDodgy 

[KarenUpATree]

I can’t believe the pharmacologist rejected you. That is an unacceptable response to a referral.  I didn’t know they could refuse you. Have you considered going to the ER with your pain and your story? Not necessarily the withdrawal part. Our healthcare system is failing you badly.  

[LizaB]

@OldDodgy I wish the hematologist would talk to my GP, but doubt that will happen.
I did send him the journal article about Depo and clots, and he was aware and said it would be highly unlikely to clot while on Apixaban, but he order an ultra sound any ways. 
The clot is getting better, but the pain is still nagging.
 

He wanted me  take Lovenox for the pain, but it’s caused another type of pain I could not handle.

 

 

I also found out that the pharmacologist I was referred to won’t take me, which is very upsetting. 
 

I am also starting to get Lyrica side effects  again too which really really sucks. 

[LizaB]

I haven’t reduced the lyrica since November, but my legs have  started to burn again and I don’t know what that means.  
 

My bladder has also started to bother me around 4 am. It feels like I have to pee but I don’t. 
 

i don’t know if I mixed the dose wrong or if I’m having withdrawal or side effects again. 
 

i really can’t handle anything more right now. The clot an depression is enough right now.  

[Aussieblue]

Hi LizaB, no wise words, just sorry you’re having such a hard time of it all.  Are you mixing up your own solution?  Perhaps make a new solution to rule out possible incorrect dosing/mixing. 🥰

[OldDodgy]

@LizaB

 

Sorry you are having a rough time. 
 

I can’t remember if you are still on blood thinners but they can make your legs very sensitive. (Though you had it in 2021 as well.)  
let’s trust it settles soon. 
OD 

[LizaB]

I saw the pain doctor today and he told me to reduce my 25mg of lyrica and to switch my evening and morning doses around. He figures if I  take more at night, I won’t get insomnia, which is a load of bs. 
 

i told him reduce by 25mg  would be dangerous and now he thinks the withdrawal symptoms were  psychological. (I gave him all the material about reducing by 10% and he thought that was great and now it’s like he has forgotten) 
 

i am so irritated. I am still in pain from

the clot and do not feel ready to start reducing the lyrica again, but don’t feel I have a choice. 

 

I am just starting to feel a wee bit better from the clot and have done 3 things out of the house that not medical related and facing burning leg, insomnia so bad I wake up 30 times, anxiety and urinary urgency scares me. 
 

what the heck am I supposed to do?

 

i also a begged to see a pharmacologist about the terrible pain I had after the Depo provera shot and was told no and told to just continue on it. 
 

i am sad, scared and frustrated with the Canadian health care system which is beyond broken. . 

[LizaB]

On 3/21/2022 at 4:50 PM, Aussieblue said:

Hi LizaB, no wise words, just sorry you’re having such a hard time of it all.  Are you mixing up your own solution?  Perhaps make a new solution to rule out possible incorrect dosing/mixing. 🥰

I am mixing 10mg out of 85mg and re did the last batch and it seems better, but today the stupid pain doc told me to start reducing my 25mg of Lyrica, even after he though the 10% rule was amazing. 
 

i don’t know  how I can reduce again now, when I’m still have clot pain and terrible anxiety. 

[Aussieblue]

Hi LizaB, I’d be telling him point blank you can’t reduce by 25mg, that’s way too much. If he’s not the prescriber, have a chat with whomever is, explain your situation and be forthright in admitting you’re of the belief 25mg is way too much for your system to handle given your history, or perhaps say you wish to remain on Lyrica & taper at your own pace (deceptive I know). Am assuming the pain doc’s plan is to start you on some other form of pain medication. If you don’t have enough prescription refills on file and the pain clinic refuses to assist perhaps find a G/P who would be willing to give you an Rx. No any idea if there’s any file here you could print off as well to convince the pain doc 10% maximum is the way to lower your dose.  Can’t comprehend how he’d acknowledge 10% is amazing only to want to have you reduce by such a large amount. Beggars belief.  You’ve been through so much and most certainly need his cooperation. Xx 🥰

[OldDodgy]

@Aussieblue

 

I think the SL files are still accessible - I might try in the morning to see if I can find a way. 
 

OD 

[LizaB]

1 hour ago, Aussieblue said:

Hi LizaB, I’d be telling him point blank you can’t reduce by 25mg, that’s way too much. If he’s not the prescriber, have a chat with whomever is, explain your situation and be forthright in admitting you’re of the belief 25mg is way too much for your system to handle given your history, or perhaps say you wish to remain on Lyrica & taper at your own pace (deceptive I know). Am assuming the pain doc’s plan is to start you on some other form of pain medication. If you don’t have enough prescription refills on file and the pain clinic refuses to assist perhaps find a G/P who would be willing to give you an Rx. No any idea if there’s any file here you could print off as well to convince the pain doc 10% maximum is the way to lower your dose.  Can’t comprehend how he’d acknowledge 10% is amazing only to want to have you reduce by such a large amount. Beggars belief.  You’ve been through so much and most certainly need his cooperation. Xx 🥰

@Aussieblue Thank you for replying so often.
The pain doc does not prescribe the Lyrica, fortunately, so i can continúe doing it my way, but found the appointment upsetting. He is the type of doctor who has a huge ego and thinks he knows everything. He didn’t ask me if “the plan” worked for me. All he wants  is for me to be off all my medications, and no, he will be giving nothing for pain.

 

i gave him the 10% document Amy created from the old Lyrica group and he was super impressed and prior to the clot, he told me to keep doing it this way. Not sure why today was so different and why he would say ro task my morning dose at night and night does in morning…that will just confuse my body.

 

thanks for listening. 

[LizaB]

29 minutes ago, OldDodgy said:

@Aussieblue

 

I think the SL files are still accessible - I might try in the morning to see if I can find a way. 
 

OD 

@OldDodgythanks, 

I still have those documents and gave them to my doctor last summer. He was really impressed and told me to do it that way, but he obviously forgot or is bored with me. He just says he wants me off all my medications and wants me to start getting off the next right after Lyrica…. i guess i am not entitled to a break. 
 

i don’t know why I bother going to the doctor because they only upsets me. 
 

 

[Aussieblue]

LizaB, you probably hit the nail on the head regarding his ego. Unfortunately some doctors listen but don’t hear. Shrug it off, it’s your mind & body and only you know what’s the best approach. We have all been armed with sound knowledge from the group. You can beat the medication on your own terms. 

[OldDodgy]

@LizaB

 

Stick to you guns !  
 

The clonazepam is only equivalent to ten of diazepam and you can do that slowly later if you wish. 
 

But I would insist on only ten percent Pregabalin reduction, possibly only 5 percent. 
 

Could you update your signature to say how much pregabalin you are on at the moment. 
 

Yours 

OldDodgy 

[LizaB]

@OldDodgyi am on 85mg. 50 in the am and 35 in the pm

I don’t know how to update my signature. 

[OldDodgy]

@LizaB

 

Best to try and slowly even up the doses according to previous group but don’t rush. 
 

To update your signature

 

Click on your Avatar, click on the three lines above it, choose Account, then Account settings, and the next page is “settings area”, click on that and scroll down to Signature, click on that and scroll down to your signature which you alter and save. 
 

I know it’s a pain but it helps us help you. ! 
 

OldDodgy

[MerryJayneFriday]

@LizaB

Hey I hope you are feeling better. I'm so sorry you've had a bad go at the dr.  I know how you feel when they won't listen to you. But we must remember it's our body, they would do good to remember they work for us just like the plumber or mechanic.  No offense meant @OldDodgy. 

I found a dr who will let me do my reductions my way he is a gem.  But he is the only dr I see unless I have a issue with my spinal cord stimulator, then I have to see the pain guy. My pain dr seems to have quite the ego also so I deal with him as little as possible. 

Hang in there and let us know how you are doin

MJF 

 

[OldDodgy]

@MerryJayneFriday

 

No offence taken -)))

 

OD

[LizaB]

On 3/29/2022 at 10:19 AM, MerryJayneFriday said:

@LizaB

Hey I hope you are feeling better. I'm so sorry you've had a bad go at the dr.  I know how you feel when they won't listen to you. But we must remember it's our body, they would do good to remember they work for us just like the plumber or mechanic.  No offense meant @OldDodgy. 

I found a dr who will let me do my reductions my way he is a gem.  But he is the only dr I see unless I have a issue with my spinal cord stimulator, then I have to see the pain guy. My pain dr seems to have quite the ego also so I deal with him as little as possible. 

Hang in there and let us know how you are doin

MJF 

 

@MerryJayneFridaythanks. Fortunately my GP is fine letting me do it my way, but she is very concerned about my mental health and wants to me take an anti depressant, but that’s really scares me. I hate feeling the way I do, but am so scared of medications

 

[LizaB]

My mother and GP think I’ve got crazy, which I may have.

Since the clot, my mental health has gone down the drain and I feel sad, angry, mad, and depressed all at once.
I cry for hours or days and can’t stop and although I am trying to get back to the Buddhist teachings, I’m not doing it and can’t turn what I read or watch or hear into anything. 
 

i don’t know what to do?

 

My psychiatrist tells me to take more clonazepam, but it keeps me up at night and makes me feel drugged.

 

My mom had been staying with me and left yesterday and she clearly has had enough of me and thinks if I take more medications, I’ll miraculously get better. I am angry at her for leaving and for being so insensitive.

[OldDodgy]

@LizaB

Sorry to hear you are more alone now. 
 

I hope you make the right decision regarding AD. 
 

I can only say that my own mental health took a huge hit from the clots, 

but I seem to have lost that dread of them now. 

 

Yours 

OldDodgy 

[LizaB]

1 hour ago, OldDodgy said:

@LizaB

Sorry to hear you are more alone now. 
 

I hope you make the right decision regarding AD. 
 

I can only say that my own mental health took a huge hit from the clots, 

but I seem to have lost that dread of them now. 

 

Yours 

OldDodgy 

@OldDodgywhat did you do? 

[OldDodgy]

@LizaB

If you mean how I stopped worrying about the lung clots, which were mentally dragging me down, I joined a FB group called clots. 

 

We exchanged stories and advice and slowly I came to terms with it. 
 

OD

[LizaB]

1 minute ago, OldDodgy said:

@LizaB

If you mean how I stopped worrying about the lung clots, which were mentally dragging me down, I joined a FB group called clots. 

 

We exchanged stories and advice and slowly I came to terms with it. 
 

OD

@OldDodgymore in terms of if you took anything for depression

[OldDodgy]

@LizaB

If you look at my signature you will see that I was on various antidepressants from the age of 26 to 68. 
 

In those days talking therapy was not available and I would just take what I was given by the doctors of the day in order to feed my family. 
 

ADs just may have helped me- but the non pharma treatments I have had in the last years have been as effective. 
 

Only you and your advisers can make this decision- it would be wrong for me to do so. 
 

OD 

[LizaB]

I am so sad today.

I was having a lot of anxiety, so the doctor told me I could take a bit more clonazepam, which I did, and it helped the anxiety, but now I can’t sleep at all. I slept for many 20

minutes at a time last night and my bladder kept telling me to pee, when there was nothing in my bladder. 

I was supposed to go to the Hospital for an important appointment and had to cancel because I’ve been awake all night and just feel like crying.

 

Does anyone know if clonazepam can cause insomnia and depression, urinary urgency ect???

 

 

And how can I get people to see my posts?
i very very  much appreciate the two members who always reply, but curious why no one else sees what I write?

 

 

[LizaB]

Can Clonazepam cause insomnia and/or depression

 

I have been having terrible anxiety from a

blood clot and my doc told me to take more

clonazapam, so I have been taking a bit more since Thursday, but now I can’t sleep, feel less anxiety, but more depression. 
 

Does clonazepam cause insomnia, urinary urgency and depression if you increase it slight above 0,5mg?

 

what should I do? 
 

 

 

Edited April 6, 2022 by Shep
added title after moving post from the Benzo Forum

[OldDodgy]

@LizaB

I am sorry you feel a bit neglected. 
You only get “noted” if some one is being notified of your new posts. 
 

Regarding urine issues - it is recognised side effect of clonazepam. 

https://www.drugs.com/sfx/clonazepam-side-effects.html

 

I hope you are drinking enough.  
 

I have just had Covid and still in a lot of pain so not been very helpful. Only out of bed for ten mins a day to get water and apple.  
 

OldDodgy