Cheeky: on Paxil for 23 years needing advice

[Cheeky]

Okay update ……

mentally the last couple of days I’ve been feeling okay but this problem with wanting to go to pee all the time is getting me upset , I feel like my nervous system is so sensitive, I’m jumpy at the slightest loud noise and when in my car and someone’s driving I’m constantly feeling like I have to brake when I’m not even driving. I feel like I’m over stimulated in certain things. I just hope I wake up tomorrow feeling okay .

[Carmie]

14 minutes ago, Cheeky said:

Okay update ……

mentally the last couple of days I’ve been feeling okay but this problem with wanting to go to pee all the time is getting me upset , I feel like my nervous system is so sensitive, I’m jumpy at the slightest loud noise and when in my car and someone’s driving I’m constantly feeling like I have to brake when I’m not even driving. I feel like I’m over stimulated in certain things. I just hope I wake up tomorrow feeling okay .

Sorry to hear that you have to pee all the time Cheeky,

 

That must be frustrating, I hope it settles. Yes, our nervous systems certainly take a beating and we never know what symptoms we will get.  
 

Overstimulation is a real problem, I can’t settle a lot of the time either, so I just have to distract myself. For example, a lot of the time I can’t just sit and watch a show or a movie, I have to be doing something with my hands such as crocheting. When I’m listening to something I do some colouring in or diamond paintings etc as well. My nervous system is on edge too, I’d say pretty much everyone on this site is going through this. 
 

Take care and I hope you have a better day tomorrow. I’m off to sleep soon, good night🧡
 

 

[Greatful]

@Cheeky

10 hours ago, Cheeky said:

mentally the last couple of days I’ve been feeling okay but this problem with wanting to go to pee all the time is getting me upset ,

Sorry about this cheeky,  Are you actually peeing all the time or is it just a sensation?  Can you ignore it at all or do you start to pee your pants?  

Being over stimulated is the pits.  I can relate to that.  I can get over stimulated sometimes just talking on here.  Today I walked on the treadmill it made me feel over stimulated.  Thank goodness I was going to meditate after so that centered me again.  One day everything is stimulating, noise, movement, talking with hubby, then the next day not so much.  

 

Hang in there.  One day at a time.❤️

[Cheeky]

3 hours ago, Greatful said:

Sorry about this cheeky,  Are you actually peeing all the time or is it just a sensation? 

It’s just the sensation, I went to the doctor today and they did some test, so I won’t get that back from a couple of days but she said she can see white patched down there and thinks it is Llichen Sclerosis.  I don’t know I’ve had enough today and just can’t stop crying. This is so unfair. I’m just sick of pretending I’m okay when every day I feel like I’m just trying to get through it. 

[Cheeky]

3 hours ago, Greatful said:

Hang in there.  One day at a time.❤️

You too ❤️

[KenA]

Dont give up!!! This too shall pass!! Always remember when you are at the bottom youve nowhere to go but up!! This truly is non-linear healing, but its still healing!!! As my boss always told me on the bad days, "Just keep swimming"

[Cheeky]

8 hours ago, KenA said:

Dont give up!!! This too shall pass!! Always remember when you are at the bottom youve nowhere to go but up!! This truly is non-linear healing, but its still healing!!! As my boss always told me on the bad days, "Just keep swimming"

Thankyou @KenA I sure have no Other option then to swim

[Cheeky]

Okay update…

I am really depressed since I’ve got this unknown thing happening down the bottom. The urgency to pee all the time with an ultra sensitive clitoris is driving me crazy. I went to a doctor yesterday and they did some tests but so know and have a gut feeling it’s the Seroquel I’m taking that’s causing this. I don’t know what to do……. I feel like just throwing the pills out but I also know that’s a CT and is dangerous. I’ve been on Seroquel for 6 years a low dose but I feel it’s causing damage to my CNS. I have an appointment with a Gyno that I hope can help. I don’t want to take any medication because these meds cause more harm then good. Any advice would be appreciated @Altostrata @Colonial  @brassmonkey  @ChessieCat Any mod that would give me some advice would be appreciated 

[Colonial]

I hate to say: "It only just started" because I know how distressing any new symptom is.

When I was hemorrhaging blood in January for a week, I had strange sensations like thinking I had to urinate all the time and burning sensations for almost a month, it did go away.

 

I don't know much about Seroquel but I don't see the connection on why you would blame that if you haven't changed the dose.  Meds may become less effective over time but I don't know why you feel it's provoking that reaction.  What is you line of thinking here?

 

 

[Colonial]

Llichen Sclerosis.

 

This condition occurs primarily in girls who haven't started menstruating and in postmenopausal women. Lichen sclerosus is thought to be related to genetics, immune disorders, trauma, or infection.

Lichen sclerosus can cause discomfort, itching, and easy bruising or tearing of the skin.

Treatment is usually topical corticosteroid ointments or creams used to reduce itching and complications.

 

The cause of lichen sclerosus is unknown. An overactive immune system or an imbalance of hormones may play a role.

 

This seems more possibly a temporary reaction to the vaccine to me.

They are created to provoke an immune response and tests show they interact with the reproductive organs for both sexes. Maybe the gyno will have more info on how the shots are working in this regard.

[Cheeky]

35 minutes ago, Colonial said:

don't know much about Seroquel but I don't see the connection on why you would blame that if you haven't changed the dose.  Meds may become less effective over time but I don't know why you feel it's provoking that reaction.  What is you line of thinking here?

 

 

Because since I dropped too much of my Seroquel by 3.5mg, January the 10th this year I’ve been having constant problems and Symptoms, like today my hands are slightly shaking and last night I was waking up all the time. I’ve had crying spells but I think that could be because I’m just tired of all of this. 

[Colonial]

2 minutes ago, Cheeky said:

like today my hands are slightly shaking and last night I was waking up all the time. I’ve had crying spells but I think that could be because I’m just tired of all of this. 

 

Those would be typical wd symptoms and or destabilization symptoms from too much stress-cortisol.

I would not say that means increase your med after a year but throwing them out isn't the answer either since I don't think your having an adverse reaction to that drug all of a sudden.

 

Your dealing with a lot of stress, and the vaccines are know to create a lot of the spike proteins in both the ovaries and testes, so it's not surprising you would be having reproductive organ symptom-issues. 

 

Many women well past Menapause are having periods again post vaccination, so it is having some sort of interaction. 

 

I don't think this is a psyche med symptom. You'll need to do some off site research and speak to the gyno about the side effects of the shots in regard to your reproductive system

[DinaDina]

On 11/4/2021 at 1:35 AM, Cheeky said:

I am really depressed since I’ve got this unknown thing happening down the bottom. The urgency to pee all the time with an ultra sensitive clitoris is driving me crazy.

 

I'm so sorry that you're going through this, it's really awful. I have had these symptoms for 10 months after stopping Zoloft. I didn't receive any help from doctors and I'm just waiting now. It's becoming better but it's too slowly. 

 

 

[Colonial]

I was just going to suggest looking up the lot number of your shot against the List of problematic Lots in the report that did research into the VEARS system in the USA that account for 5% of all the deaths to see if you received one of the known problematic lots or batches, and then I realized Your in Australia.

 

I don't remember if you had Covid too but if You did that can cause these issues as well. Regardless of how You are exposed to the Spike Protein there can be problems. During 2020 survivors of the Covid symptom set had new issues with their reproductive systems before the vaccines were even available. 

 

WD itself can cause menstrual cycles to be knocked off balance, it did for Me, but if your symptoms are a bit different and from a diagnosis that suggests overactive immune symptom you need to differentiate how that stacks up next to overactive cortisol. They can be related to some extent, and there are some who believe that chronic cortisol dysfunction can lead to a form of auto immune disease, but it's not the same in the sense of how things show up on basic blood work tests.

 

 

[Cheeky]

On 11/5/2021 at 10:56 PM, DinaDina said:

 

I'm so sorry that you're going through this, it's really awful. I have had these symptoms for 10 months after stopping Zoloft. I didn't receive any help from doctors and I'm just waiting now. It's becoming better but it's too slowly. 

 

 

Thankyou @DinaDina 

The symptoms change hour by hour, sometimes it doesn’t happen at all for a day or so then just starts again .

[Cheeky]

Okay update………

Ie had a few days with less symptoms and now that I’m getting my periods everything is ramping up again. I want to know is when do people feel okay to do another drop. If I haven't had consistent stability I think I have to wait more time. What do other people do?

[Colonial]

Well, people do a lot of different things.

But being here as long as you have you know the basic premise, keep it simple and only one change at a time.

 

If your asking what has proven to have a higher percentage of positive out come (again, subjective), it is to wait until the hormonal flux of monthly cycles are not making symptoms worse. 

 

You've had a lot of stress, and now you have a new symptom.

I would get that figured out and addressed and find out what that reaction is about first.

 

We are in a whole new ball game with these gene therapies interacting with our bodies. If I was you, I would consider that a major health treatment and not plan on making a med drop for at least 6 months after your last shot as long as your having new or worsening issues, and keep good notes until then.

 

Maybe you will progress faster, maybe not, but stressing yourself to go forward does not seem wise.

What is your logic for wanting to make a drop while having new symptoms?

 

When were your shots again, and when did this new diagnosis come?

Were you ever Diagnosed as having C-19 as well?

 

[Cheeky]

22 minutes ago, Colonial said:

What is your logic for wanting to make a drop while having new symptoms?

To be honest, there really is no logic I just feel staying on them any longer will make things worse. I do know that it’s not true

[Cheeky]

24 minutes ago, Colonial said:

Were you ever Diagnosed as having C-19 as well?

I haven't been diagnosed with that and I have read a lot that the symptoms I’m having is due to withdrawal 

[Colonial]

Well, the good news is knowing the thinking is illogical. 😉

In which case, you do NOT want to play into it by taking to yourself about it and asking yourself questions.

 

As far as waves coming with your cycle, that is def a wd issue, and it throwing them off as well.

The:

Llichen Sclerosis.

 

That is new from what I know of, when if your doctors appointment for that again?

And how long after your second shot did this particular itching and problem begin?

 

Long Covid", in some ways mimics wd, so that's why I was wondering about that.

"We" as a community have a lot of things thrown at us at once as to why something could be, right?

 

Listening to first hand accounts, people with confirmed auto-immune issues are having some bad reactions to the covid shots, and it's interesting the first thing that popped up about that is:

 

"The cause of lichen sclerosus is unknown. An overactive immune system or an imbalance of hormones may play a role."

 

Now, it does say hormonal as well, and the hormones are def out of wack for us in this regard but it's the first time i've heard this diagnosis, so I'm interested in seeing what the doctor seems to think as to what could be a contributing factor.

[Rosetta]

I have had some odd skin issues. My freckles - freckles I have had for 20 years  or more —have peeled off and never came back.  I’ve had rosacea on my face, too.  I suspect that this strange problem you are having will eventually go away. The rosacea gets better for me as time goes on.  It’s hard to tell was is an allergic reaction and what is auto-immune related or what is age related.  However, when something is itchy or painful it’s hard to wait it out or stop worrying about it.  Of course, have issues “down there” is even more distressing.

[Cheeky]

2 hours ago, Rosetta said:

I have had some odd skin issues. My freckles - freckles I have had for 20 years  or more —have peeled off and never came back.  I’ve had rosacea on my face, too.  I suspect that this strange problem you are having will eventually go away. The rosacea gets better for me as time goes on.  It’s hard to tell was is an allergic reaction and what is auto-immune related or what is age related.  However, when something is itchy or painful it’s hard to wait it out or stop worrying about it.  Of course, have issues “down there” is even more distressing.

It sure is

[Cheeky]

@Colonial @Rosetta

I went to a new doctor today and told him my history on these drugs. Surprisingly he was very good and though I need testing to see if I’m pre-measpousal  and referee me to a Gyno . He did say that if it is lichen Scelorous that it make everything down there inflamed. He  was very concerned a doctor would put me a Seroquel when I’ve never had psychos and was alarmed with that. He said I should want to taper off that first and was happy to support me. He even used the would withdrawals that was music to my ears . I will have all the tests done and see how it goes. 

[Rosetta]

Wow.  That’s great to have found this doctor!

[Colonial]

Great news!

 

[Greatful]

@Cheeky

How are you doing? 

On 11/9/2021 at 7:29 PM, Cheeky said:

He  was very concerned a doctor would put me a Seroquel when I’ve never had psychos and was alarmed with that

What am I hearing you right.  A doctor with some common sense.  Did you find out anything yet?

 

 

I was reading Jadenatalie's thread and she is having issues similar to you, treated for a suspected uti and everything,   Read her thread, compare notes........ for her they are looking at 

 mention IC and the uro-gynae lady has mentioned vulvodynia/nerve and guess what the treatment plan is  SSRIs.  The ssri is probably what caused the damage and they want to give it for treatment.....Here do you want some candy......It's the new elixir of the 1800's. Take this for what ever ails you, never mind what it does to your brain....... okay okay I will get off my soap box.

 

 

[Cheeky]

7 minutes ago, Greatful said:

On 11/10/2021 at 12:29 PM, Cheeky said:

that

What am I hearing you right.  A doctor with some common sense.  Did you find out anything yet?

No not yet, I have a pelvis ultrasound next week and an appointment for the Gyno in a month. 

[Cheeky]

9 minutes ago, Greatful said:

mention IC and the uro-gynae lady has mentioned vulvodynia/nerve and guess what the treatment plan is  SSRIs.  The ssri is probably what caused the damage and they want to give it for treatment.....Here do you want some candy......

I know right, this is just so hard. I will look into her thread.

[Cheeky]

10 minutes ago, Greatful said:

How are you doing? 

I just don’t know anymore. I’ve been crying a lot lately. I’m so scared of losing everything to these drugs. I just want to curl up in a ball and hide. I’m so trying to do what I’ve always done but it’s proving difficult. I’m at a loss to how to move forward. Waiting waiting for what? I don’t think I will be able to get 100% stable. I don’t want to stress my family or my husband or make any irrational decisions but I don’t know what the future holds for me. I’m just so scared of this.

Sorry to sound negative, I’m just having a bad day.

[Greatful]

@Cheeky

I can surly relate to the distress these drugs have put on our lives.  Are you depressed?  What is the most pressing symptoms you have.  Are you having any windows at all?  

Are you still working full time?

 

Man it must be hard when you have to be ready to go when you own your own business. 

 

I wish I could find the quick fix for all of us.   

 

[Jadenatalie]

11 hours ago, Greatful said:

@Cheeky

How are you doing? 

What am I hearing you right.  A doctor with some common sense.  Did you find out anything yet?

 

 

I was reading Jadenatalie's thread and she is having issues similar to you, treated for a suspected uti and everything,   Read her thread, compare notes........ for her they are looking at 

 mention IC and the uro-gynae lady has mentioned vulvodynia/nerve and guess what the treatment plan is  SSRIs.  The ssri is probably what caused the damage and they want to give it for treatment.....Here do you want some candy......It's the new elixir of the 1800's. Take this for what ever ails you, never mind what it does to your brain....... okay okay I will get off my soap box.

 

 

@Greatful yup, its disgusting how they hand them out when they have no clear diagnosis. I've been on this merry go round for approx 8 weeks now! madness. 

[Cheeky]

I’m having a difficult day today. I find that some nights I have perspire in my sleep  and wake up with aniexty , I have it all day then I will feel better in the afternoon and night. Today I’ve been having head aches for no reason and just feel very nervous with aniexty I have noticed I have a couple of good days then get hit with withdrawal symptoms again. I don’t understand why this is still happening when my dose is the same. I haven’t changed my dose from the updose I did on the 3/08 this year. Any help with advice would be appreciated. @brassmonkey

[Believer]

Hi @Cheeky

I have that same symptom at night and during the day. I call them anxious hot flashes. I had them in perimenopause and now for three in menopause. I think withdrawal makes them worse. For me it didn’t matter whether I was holding or tapering, but they are worse when my other WD symptoms ramp up. 

[ChessieCat]

  

On 7/29/2021 at 4:40 PM, Cheeky said:

I'm only 44 years old so its not menopause

 

From https://www.healthdirect.gov.au/menopause

 

"Most women become menopausal between 45 and 60 years of age"

 

It might be the very start of menopause.

 

[Cheeky]

1 minute ago, ChessieCat said:

  

 

From https://www.healthdirect.gov.au/menopause

 

"Most women become menopausal between 45 and 60 years of age"

 

It might be the very start of menopause.

 

@ChessieCat I have recently had my blood work done and am waiting in getting the results back. I feel that this is medication related as I’ve had sharp pains in my head and feel very anxious. Can you still feel like this after so long?

[Cheeky]

5 minutes ago, Believer said:

Hi @Cheeky

I have that same symptom at night and during the day. I call them anxious hot flashes. I had them in perimenopause and now for three in menopause. I think withdrawal makes them worse. For me it didn’t matter whether I was holding or tapering, but they are worse when my other WD symptoms ramp up. 

Hi @Believer,

I don’t have it during the day on the aniexty and it didn’t happen all the time. I just turned 45 and had blood work done , so will see what it says in the results,