Jump to content
Hell

Hell: I am very scared (mostly about insomnia)

Recommended Posts

Altostrata

Since you increased a little less than a month ago, you could lower it to 4.5mg and see if that helps.

 

Or, if you prefer to continue 5mg with the side effects, you can do that, too. There's no remedy for side effects other than lowering dosage.

Share this post


Link to post
manymoretodays

Oh Hell!  B)

 

Have you tried positional changes when you sleep.  I mean like staying fairly propped up in a relaxing chair or with pillows in your bed.  To see if that benefits your breathing?  And the breathing issues started with the mirtazapine WD?

 

You haven't been on the 5 mg dose of Zyprexa for even a whole month yet.  That's why I suggested that.  Plus the anehedonia and apathy might let up even a little bit, with a lower dose.

Lower dose also equates to less toxic effects.  I've got such strong negative feelings about Zyprexa too.  I may be being a bit biased.  I was basing a greater than usual reduction, on that you've been on it just barely a month, and that might make it smoother. 

 

Okay.  Well.  Ultimately, up to you, and if you really feel the benefit(for sleep) is better at 5 mg........well, okay.  I might have misread your updates and answers.  I thought sleep was still a mighty issue.  Or lack of it.

 

Best,  L, P, H, and G,

mmt

 

 

Edited by manymoretodays

Share this post


Link to post
Hell
13 hours ago, Altostrata said:

Since you increased a little less than a month ago, you could lower it to 4.5mg and see if that helps.

 

Or, if you prefer to continue 5mg with the side effects, you can do that, too. There's no remedy for side effects other than lowering dosage.

What side effects? Being unable to sleep is my main issue and it started during withdrawal.

 

9 hours ago, manymoretodays said:

Oh Hell!  B)

 

Have you tried positional changes when you sleep.  I mean like staying fairly propped up in a relaxing chair or with pillows in your bed.  To see if that benefits your breathing?  And the breathing issues started with the mirtazapine WD?

 

You haven't been on the 5 mg dose of Zyprexa for even a whole month yet.  That's why I suggested that.  Plus the anehedonia and apathy might let up even a little bit, with a lower dose.

Lower dose also equates to less toxic effects.  I've got such strong negative feelings about Zyprexa too.  I may be being a bit biased.  I was basing a greater than usual reduction, on that you've been on it just barely a month, and that might make it smoother. 

 

Okay.  Well.  Ultimately, up to you, and if you really feel the benefit(for sleep) is better at 5 mg........well, okay.  I might have misread your updates and answers.  I thought sleep was still a mighty issue.  Or lack of it.

 

Best,  L, P, H, and G,

mmt

 

 

Breathing problems when trying to sleep started when I stopped taking zyprexa and zoloft for 10 days. After that I reinstated zyprexa 2.5mg and after that 5mg. It is still there. I try sleeping on different positions but it doesn't help. And yes sleeping is the main issue. Just because it is a little better on 5mg it is not that good and I doubt it will be. I wanted to stabilise on 5mg but dunno if it's possible.

Share this post


Link to post
Altostrata
21 hours ago, Altostrata said:

Your sleeping pattern may indicate a paradoxical reaction to too much Zyprexa.

 

Share this post


Link to post
Hell

Hmmm I dunno. I slept worse on less tho. I will think about it and tapper soon maybe. Thanks.

Share this post


Link to post
RM123

Hi @Hell I’m really sorry to hear what your going through. Thanks for sharing your story. I too have developed insomnia from withdrawal and reinstating and is my main concern right now. Most of the time I can fall asleep but I wake up within an hr when it used to be 3-4hrs and can’t go back to sleep. It’s killing me. I’m finding it so difficult because of the lack of sleep and what it brings. For me I have developed eyes bags/dark circles too and look like I’m so sick. I never used to have them before this and it makes me feel even worse looking at myself in the mirror. I don’t even look like me anymore. I really hope you and me, all of us will recover and sleep again. 

Share this post


Link to post
getofflex

I'm praying hell and rm123 on here who cannot sleep.  It does get better, gradually and slowly.  My sleep has very slowly improved over the past year.  I have slowed my taper way down.  The past 2 nights I was able to get about 7 to 8 hours of sleep.  I'm grateful for that.  Hang in there, and don't give up.  I'll keep praying. 

 

Share this post


Link to post
Hell

Nearly two months have passed without my situation improving. I refuse to live like this. My eyes are red from lack of sleep. My memory is horrible. I feel like I have dementia. I only stopped meds for 10 days and this hell happened. Reinstating helped a little but it is hardly anything. Days are passing and nothing is getting better. I am supposed to live like this? No thanks. I decided. First day when I get alone at home I am ending this. **** this kind of life. Time is not helping like people here say, not for me. If it did it would get better. Two months and nothing. For some people years without a single improvement, why should I be any different? And stop denying there are people here who stopped sleeping and their situation didn't improved at all and years passed. So there is no hope for me. I'm done. Life without sleep is not living. I would rather die from cancer.

Share this post


Link to post
Erell

Hi Hell, 

 

I can only imagine how hard it is to live with so little sleep. But we don't lie when we tell you thats things get better : it does.

I see that the last dose change you made was on 3d December : so you're in very early days of stabilisation. It took me three months to feel way better, and i'm not back to normal yet. But, life is way more easy !

It will for you too, I wish I could tell you when. It will take time, but you will sleep again, and then thank your oldself for all the strenght you have now.

❤️

 

Share this post


Link to post
Hell

Doubt I will stabilise if others who cold turkeyed didn't. Plus I am getting muscle twitches now from the zyprexa, especially on my right eye. Every few minutes. I will probably have to taper even tho my sleep is non existant.

Share this post


Link to post
Cocopuffz17

There is plenty of people on this forum who CT and have fully healed and are loving life. It can be done and it is very hard to get through, but it can be done. Everyday that passes is one more day closer to being healed! 

Share this post


Link to post
Hell
3 hours ago, Cocopuffz17 said:

There is plenty of people on this forum who CT and have fully healed and are loving life. It can be done and it is very hard to get through, but it can be done. Everyday that passes is one more day closer to being healed! 

Ct from zyprexa and fully healed? Show me where.

Share this post


Link to post
Shane88L

I was very similar to you, with the most torturous depression and dp/dr also.
I also c/t'd from zyprexa, and it was terrible, especially in the first 6 months after stopping, but it gets better with time. There are nights where I get little to no sleep still, as I am still not 100% healed, but healing is happening. More time is all thats needed.
You're still at the very beginning of withdrawals. Zyprexa is nasty, yes, bt there are people who have recovered. I'm feeling much better myself, and sleeping better overall.

Share this post


Link to post
Hopela
38 minutes ago, Hell said:

Ct from zyprexa and fully healed? Show me where.

Hi Hell,

I'm in a similar situation to you since I finished my olanzapine taper from 10 mg (for one month) to 0 mg in 6 weeks time, 2.5mg tapering every two weeks as prescribed by a doctor. Their recommendation was to stay on it for 1-2 years more so I'm glad they gave me a tapering plan when I wanted off. But judging by this forum it's almost a cold turkey. Going from 2.5mg to 0 mg (december 6th ) took away my ability to sleep (instead tremors, sweating, muscle spasms, head aches). After two weeks without sleep I took 7.5 mg Olanzapine but still couldnt sleep. I thought I was going to die possibly by my own hand due to how I was deteriorating and called an emergency psychiatric number. They told me sleep wouldn't come without medicine so the next day I got a couple of extra sleep medicines. (Zopiclone and Propiomazine) They also wanted me back up on 5mg Olanzapine. I don't think Olanzapine does much for sleep anymore for me but I am noticing that I'm less zombified now when Im also taking other sleep medication. I still don't remember sleeping or waking up just rolling in bed but I must be getting 2+ hours of very broken sleep instead of 0-1 hour per night now because I feel life is sustainable on the extra medication.  You might need sleeping aid other than Olanzapine for your brain to recover.

 

I was following your thread daily as I'm desperately looking for positive outcomes on the net, I hope you will be one.

 

I found one perhaps fully healed outcome here: Search for a comment by "Tracey" in this thread:

https://mentalhealthdaily.com/2014/07/10/zyprexa-olanzapine-withdrawal-symptoms-how-long-do-they-last/

 

Even if one doesn't get fully healed it's enough if life can be enjoyable.

Share this post


Link to post
Hell
3 hours ago, Shane88L said:

I was very similar to you, with the most torturous depression and dp/dr also.
I also c/t'd from zyprexa, and it was terrible, especially in the first 6 months after stopping, but it gets better with time. There are nights where I get little to no sleep still, as I am still not 100% healed, but healing is happening. More time is all thats needed.
You're still at the very beginning of withdrawals. Zyprexa is nasty, yes, bt there are people who have recovered. I'm feeling much better myself, and sleeping better overall.

You didn't took it for long and it was a very small dose. I took 7.5mg and 10mg for a while. 

 

I am glad that you are fine but there is a difference. 

Share this post


Link to post
Hell

I did a blood test and my prolactin is high. Appearently it could cause insomnia too. Should I treat it? I hate meds in general now so I would rather not.

Share this post


Link to post
Altostrata

Elevated prolactin is a recognized adverse effect of olanzapine. Reducing olanzapine can reduce the adverse effect.

 

Otherwise, please discuss this with your doctor.

Share this post


Link to post
Hell

I have a short trip planned soon so I will start tappering after I come home. I really hope my sleep won't suffer even more when I do.

 

Btw I visited psychiatrist yesterday. She is denying that ct'ing caused my insomnia and blames it on prolactin lol. And she wants me off zyprexa in like few days lol. She even planned to put me on more meds. Thank God I found you guys otherwise I would be medicated to hell and suffering another full blown zyprexa withdrawal.

 

And also, are constant muscle twitches I am getting from zyprexa dangerous? I hope not because I want to tapper slowly. 

Share this post


Link to post
Hell

Eyelid of my right eye is twitching every 5-10 minutes since few days back. It is getting annoying. I noticed it is twitching less few hours after taking zyprexa last night but comes back in the morning. I hope it goes away it is so annoying.

Sleep is not that good either.

Share this post


Link to post
Cocopuffz17
3 hours ago, Hell said:

Eyelid of my right eye is twitching every 5-10 minutes since few days back. It is getting annoying. I noticed it is twitching less few hours after taking zyprexa last night but comes back in the morning. I hope it goes away it is so annoying.

Sleep is not that good either.

Mine use to do this as well. It does get better in time. 

Share this post


Link to post
Shane88L

Mine also - my right upper eyelid twitching quite regularly. Stress causes it I've figured.

Share this post


Link to post
Hell

Tappered to around 4+ mg last night and slept worse.

Share this post


Link to post
Hell
On 1/12/2020 at 12:39 PM, Hell said:

Tappered to around 4+ mg last night and slept worse.

Woke up hundreds of times last night. It seems I can't tolerate tappering. It is not like 5mg is that good but tappering is even worse.

 

Btw now my right cheek is twitching as well as the eyelid.

Share this post


Link to post
Gridley
3 hours ago, Hell said:

It seems I can't tolerate tappering

How long are you holding between drops?  You may need to hold longer to let your system stabilize between drops.

Share this post


Link to post
Hell

This is the first time I tappered in a while. I was on 5mg for a month. I need to buy a scale to tapper precisely. I plan to hold for a month after every drop.

 

The problem is it is already affecting me after first time I dropped recently.

Share this post


Link to post
Hell

Will I sleep less with every tapper? If yes, I will just get to square one when I get to zero mgs... Just like when I stopped the first time. Why did I even reinstated if I am going back to no sleep again eventually... 

Share this post


Link to post
Erell

Hi Hell, 

 

main thing with a taper of these meds is "Slow" : you just dropped last Saturday, it is possible that your CNS needs time to try to stabilise to a dose.

On 1/13/2020 at 4:40 PM, Gridley said:

How long are you holding between drops?  You may need to hold longer to let your system stabilize between drops.

 

 

Stay strong ❤️

 

Share this post


Link to post
getofflex
On 1/14/2020 at 5:41 AM, Hell said:

Will I sleep less with every tapper? If yes, I will just get to square one when I get to zero mgs... Just like when I stopped the first time. Why did I even reinstated if I am going back to no sleep again eventually... 

Hell, I am still tapering my Lexapro, and my sleep is vastly improved to what it was a year ago, and much better than it was 6 months ago.  I was tapering way too fast before I found this forum, and now I'm tapering extremely slowly.  My pattern is usually that a few weeks after a taper, my sleep worsens, but then about 4-6 weeks into the taper my sleep improves.  Right now it's been almost 3 months since I last tapered.  I'm doing this because a) I really need for my nervous system to stabilize, as I got burned out dealing with WD, and 2) I've had many external stressors, including that my mom is aging and having a lot of health issues and needing help.  

 

You could possibly try just holding at your dose for a few months, and let you sleep improve before you try to taper again. 

Share this post


Link to post
Hell

Maybe I should have stayed at 5mg. I will try to endure this but I feel horrible from the lack of sleep. 

Share this post


Link to post
Hell

On top of everything I got myself a flu. Like it isn't enough what I am already going through.

 

Anyways nothing new to report. Everything is still hellish and I have constant suicidal thoughts.

Share this post


Link to post
getofflex

Hell, I'm deeply sorry for the awful time you are having.  Please, don't go through with the suicidal thoughts.  I was having a very rough time with my emotions a month ago, I was crying a whole lot, and filled with terrible anxiety.  I started going to AA (I had a drinking problem years ago), and this has helped tremendously.  It has helped by giving me a a lot more support, and also working the 12 steps has given me a method for dealing with all of my emotions that the antidepressants were covering up.  I feel so much happier and more peaceful now, and less alone in dealing with this withdrawal.  

Share this post


Link to post
Hell

It is hard not to. The flu is killing me I have high tempearute and can't breath through the nose so I don't sleep at all since last night.

Share this post


Link to post
Armorall

Hell-, since insomnia hit, I also can't sleep when I can't breathe through the nose. I bought one of those devices that holds open your nostrils at night and it works well. I thought it'd be too annoying but I got used to the feeling after a few minutes and fell asleep. This one has three sizes in a pack, I think the small fit me. 

Rhinomed Mute Anti Snoring Aid Solution, Nasal Dilator for Snore Reduction, Breathe Better, Sleep Aid, Comfortable Nose Vent, Assorted https://www.amazon.com/dp/B011LR55UU/ref=cm_sw_r_cp_apa_i_yVvjEbWX0X3HQ

 

Share this post


Link to post
Hell

Approaching 3 months. Zero improvement. I give up. It is obvious nothing will get better.

Share this post


Link to post
IWantToHeal

@Hell have you tried sleep meditation music videos on Youtube?

 

They really help me get a good night's sleep and sometimes I feel better in the morning from listening to certain frequencies. There is something called "binaural beats" and the waves are mind altering, or so the theory goes.

 

Below is my personal favourite:

 

 

Share this post


Link to post
Hell

I did but nothing works. I can fall asleep on zyprexa at night but I wake up every second. I am tired of this. I look like hell and feel like hell. I am going to give up this fight. Thanks everyone for trying to encourage me but in some cases there is no light at the end of the tunnel. Not everyone can recover from this. I am just one of those cases. 

Share this post


Link to post

Please sign in to comment

You will be able to leave a comment after signing in



Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy