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Elaine5: Introduction


Elaine5

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  • Moderator Emeritus
14 hours ago, Parisien said:

Do the moderators and those in the know here know if quitting the drug all at once rather than bit by bit can make you not get cured?

You will still recover if you quit the drug all at once, but it will be a much longer and more painful process, which is why we advocate a harm reduction 10% taper every 4-6 weeks.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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7 hours ago, getofflex said:

You will still recover if you quit the drug all at once, but it will be a much longer and more painful process, which is why we advocate a harm reduction 10% taper every 4-6 weeks.  

It is true that it is very painful especially the first months.  Thank you for your reply.  Sleep has greatly improved, I no longer have insomnia and the pains of early withdrawal such as headaches, intense dizziness, dry eyes, itchy skin, etc. are just a distant memory.  But I still have a lot of brain fog is it solved for the topic author or some of you who will read this post?  When you say that the cold tube compared to gradual weaning will make recovery much longer, what do you mean by that?  Even if it's case by case depending on the duration of taking the antidepressant, I suspect it may take years more?  Thank you and courage to all those who are currently suffering from difficult weaning

Hello everyone, I was on seroplex 10mg in October 2019 for over a year and then on brintellix from March to September for maybe 8 months. I made several attempts to stop abruptly then I resumed the treatment of brintellix recently for a few weeks because it was too difficult to stop.

Symptom when stopped: premature ejaculation, ejaculation with less orgasm. Severe insomnia, transient headaches, sensitivity to noise and light.

Last intake of brintellix 5mg: Saturday, September 11, 2021

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I think I am going to die. I need help for Akathisia. Cannot even lay down. Zero sleep. 
 

Want to leave my body it is so disorienting and painful. Not break from it no sleep. 
 

fired and worn out just want to rest. 
 

 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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@getofflexcan tapering to quick make akathisia worse? I was in the hospital the last two days and didn’t get to take an evening dose twice. Today I feel it worse than ever before, although the entire time at the hospital ironically I was totally fine and even slept a little bit. 
 

I went from 7.5 2x to 7.5 and 5, and then was told to do 5 and 5 which I did for two days, and then 5 1x and 5 1x. That is much too fast and likely why I am experience worsening today. How do I go back- i figure 5 and 5 again- this is so scary. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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They didn’t let me take evening dose while I was there and said just stop taking it even thought they didn’t think it was Akathisia but anxiety, yeah right. Then they offered me seroquel for sleep, as if. Unreal. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Moderator Emeritus

Yes, tapering too fast will make akathisia worse. Skipping the two doses in the hospital is probably why you feel a lot worse. We really don’t suggest you skip doses. Are you aware of the 10% per month tapering protocol that we use on the site?  The hospital is giving you very bad advice about these drugs. 

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus
1 hour ago, ElaineBenes5 said:

I went from 7.5 2x to 7.5 and 5, and then was told to do 5 and 5 which I did for two days, and then 5 1x and 5 1x.

Please tell me what dates you were on each of these those regimens. Give me a starting and ending dates for each please. Which drug are we talking about here?

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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@getofflexHere is the timeline for everything: 

 

- October 8 .25 and .5 Xanax 

- October 9 .5 Xanax 

- October 10 .5 xanax 

- October 11 .5 xanax/ metropolol 25 

- October 12 .5 xanax 

- October 13  Xanax .25 and .5/ Buspar 2.5 and 5/ Benadryl 25 (paradoxical reaction - very agitated) 

- October 14 Buspar 2.5 no 5 in evening/ Ativan 1mg 

- October 15 xanax .5/ Buspar 2.5 and no evening 

- October 16 xanax .375 / 2.5 and 5 Buspar 

- October 17 xanax .25/ Buspar 2.5 and 5/ trazadone 50 

- October 18 .112 Xanax/ Buspar 2.5 and 5 / trazadone 75 

- October 19 Buspar 2.5 and 5/ lunesta 3mg/ metropolol 25 mg/ l methyl folate 7.5 

- October 20 Buspar 5 and 5 

- October 21 Buspar 5 and 5 

- October 22 Buspar 5 and 5/ xanax .25 

- October 23 Buspar 5 and 5 

- October 24 Buspar 5 and 5/ belsomra 10mg 

- October 25 Buspar 5 and 5/ belsomra 10 mg/ 3 mg melatonin with b6 

- October 26 Buspar 5 and 5 belsomra 10 mg/ 3 mg melatonin with b6 

-October 27 Buspar 5 and 5/ belsomra 15 mg 

- October 28 Buspar 5 and 5/ belsomra 15 mg 

- October 29 Buspar 5 and 5/ belsomra 20 mg 

- October 30 Buspar 5 and 5/ belsomra 20 mg 

- October 31 Buspar 5 and 5/ belsomra 20 mg 

- November 1 7.5 and 7.5 Buspar/ belsomra 20 mg 

- November 2 7.5 and 7.5 Buspar/ belsomra 20

- November 3 7.5 and 7.5 Buspar/ belsomra 10/ gabapentin 300 mg 

- November 4  7.5 and 7.5 Buspar/ belsomra 10/ gabapentin 300 mg 

- November 5  7.5 and 7.5 Buspar/ belsomra 10/ gabapentin 300 mg 

- November 6  7.5 and 7.5 Buspar/ belsomra 20 

- November 7 through November 22: 7.5 Buspar and 20 belsomra

- November 23 7.5 and 5 Buspar/ 15 belsomra 

- November 24 5 and 5 Buspar/ 15 belsomra

- November 25 5 and 5 Buspar/ 20 belsomra 

- November 26 5 Buspar/ 20 belsomra 

- November 27 5 Buspar/ 20 belsomra 

 

I had been relatively stable and okay for most of the time, seemed to be doing better- then noticed more restless legs return to worse sleep week of November 12. This continued to worsen gradually until all at once on Nov 22 I didn’t sleep and was pacing all night and had a strange feeling. The next night was fine. Nov 24 again, worse with severe Akathisia all night. Remitted in morning and spent day in hospital and evening. Nov 27 came home in afternoon in excellent spirits feeling great, then a couple hours later started to feel very dysphoric, depressed, which turned into restlessness and extreme jerking, pacing, feeling of terror, anger, not myself. Couldn’t rest all night or morning, and seemed to have gotten worse this am with anger, aggravation, and feeling very sick. Suicidal urges, very uncomfortable thoughts and feelings. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Moderator Emeritus

What drug?  Buspar?

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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  • Moderator Emeritus

I can see why you are feeling so bad.  You are jumping around on your drugs way too much. Why did you titrate up, and then down so fast?  You have to realize that these drugs don't work like an Advil, where it makes you feel better while you take it, and once you stop taking it and it's out of your system, that's it.  These drugs make profound changes to our brains, and our brains adapt and change and become dependent upon them.  Please read this link: 

 

How Psychiatric Drugs Remodel Your Brain

 

When we change the doses frequently, jump on and off different drugs, this confuses and destabilizes the brain, and causes major problems that take a long time to resolve.   What you need right now is stability.  This is extremely important.  

 

Keep It Simple, Slow, and Stable

 

Considerations About Stability - Stop Jumping Around

 

This link talks about our tapering protocol, which is 10% reduction of the current dose every 4-6 weeks. 

 

 Why Taper by 10% of my Dosage  

 

Please decide on a dose, and stick to that dose, and take this at the same times every day, and don't miss or skip or vary doses.  Do this for several months.  You should start to feel better.  Then, you can resume a very careful 10% taper.  

 

In your signature you say: 

 

"- Various sleep meds trazadone 50 and 75 mg 2 nights, lunesta 3mg 1 night, melatonin 3mg, Gabapentin 300mg for RLS 3 nights, Belsomra 10,15,20mg "  

 

What are the dates for these drugs please? 

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

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I didn’t develop full blown Akathisia until November 22. That is why I started to decrease Buspar. 
 

Before this timeline I had been having severe insomnia and feeling hyper, over adrenaline, and on edge. However, this would pass and not last all day. 
 

week of November 12 saw a change for the worse after having seen some inprogemts. 
 

 

since November 22, I have been experiencing awful bouts of extreme Akathisia, it feels like my entire body is seized up in anger and terror, thoughts that are not my own, and zero sleep. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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If I reinstate at 5 and 5 and taper from there is this acceptable? @getofflex it seemed like things were trending good at that dose. Maybe it’s all lost now. 
 

Doctors said if you are having bad reaction “perceived” than stop taking it. 
 

I cannot continue like this. Is there any option to help while I am tapering Buspar more slowly? I can’t survive this feeling of inner rage and torment much longer. It has been constant since 6:30 last night. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Moderator Emeritus
54 minutes ago, ElaineBenes5 said:

 

If I reinstate at 5 and 5 and taper from there is this acceptable?

 

Yea I think that would be OK.  Please be patient and give it time. Things should slowly improve with windows and waves.  Please don’t taper for a while. Give yourself time to stabilize and heal.  

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment
  • Moderator Emeritus

Please stop changing your dose of Belsomra and any other drugs and supplements. When you start tapering again only do one drug at a time. 

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment

Yesterday I had a beautiful day. Towards the evening I noticed a feeling of disconnect. 
 

By bedtime I had full body burning, dysphoria, painful electric energy, headache, unbearable. Lessened urge to walk/pace/get up. No sleep whatsoever. 

I don’t know if I’m making the right decision. Some say when experiencing Akathisia or EPS this severe to stoop the offending drug immediately or risk permanency. 
 

I believe there are ways of mitigating some Akathisia symptoms via other drugs, of course this is taboo here and potentially deleterious for the system. 
 

How does one continue through such overwhelming pain and suffering with no end in sight. 
 

 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment
  • Moderator Emeritus

 

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment

There is no ability to calm this down. It is terror. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment
  • Moderator Emeritus

In that case, we suggest you do whatever you can to distract yourself.  You are in acute withdrawal, because of the many frequent dose changes you made to these drugs over the past several months.  When I was in acute WD, I distracted myself by easy stuff that kept my hands busy - sewing, knitting, adult coloring books, light yard work, light housework, etc.  It helped.  

 

Did you reinstate the Buspar to 5mg and 5mg like you said you planned on doing? 

Edited by getofflex

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment
  • Moderator Emeritus

Hi ElaineBenes5,

How are you doing today?

Are you home from hospital?

What are your current drugs being taken?

I saw the Buspar 5 mg twice a day and then possibly some Belsomra.

I found the Belsomra:  https://www.drugs.com/belsomra.html

It's not one I have seen used a lot.

 

I too, went through it, and lived to tell the tale of survival, and now thrive drug free.  Do hang in there.

Weighted blankets can be great when feeling so internally agitated.

Weighted blankets and bed tents for restlessness, akathisia, insomnia, and anxiety

 

And best. L, P, H, and G,

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

@getofflex @manymoretodays 

 

hello, thank you, 

 

I am not in hospital currently. Some moments are okay some moments are terror.

 

yesterday was golden and bright and happy. Last night I was plagued with burning body, panic, and restless. 
 

today I am numb so far. 
 

against SA advice, I continue to quickly taper the Buspar at 2.5. The reason is because I believe the issue stems from Buspar adverse reaction and not acute withdrawl from other drugs tried this past two months. I believe this as it coincides within a couple weeks of an updose of Buspar. Could i be wrong? Terrifyingly likely. But I cannot continue to take a medicine that is making me suicidal and dysphoric beyond reference. I did not experience these issues on any other med except Buspar/Belsomra combo- and it is a known potential side effect of Buspar. 
 

is the dysphoria and Akathisia resultant from the other drug changes recently, and not Buspar, could be. Am I adding to the problem by rapidly tapering Buspar, could be. But I could also be adding to the problem by staying on it. This situation is a bit of a choicless choice. I let me depression about pssd cloud my judgment and open the door to so many more graver issues. I regret this. But I am trying to do everything I can to survive this. 
 

i am in a precarious place and doing my best to move through it. Only time will tell what happens. 
 

thank you for checking in. If it doesn’t work out for me, please know I appreciate what you do here and if I make it through this, I want to be involved one day. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment
  • Moderator Emeritus
3 hours ago, ElaineBenes5 said:

 

against SA advice, I continue to quickly taper the Buspar at 2.5.

Please clarify. Are you taking 2.5 twice a day?  What are taking each day?   

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment

I was on 2.5 once a day the last three days and today did not take anything. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment
  • Moderator Emeritus

Please update your signature with all the drug changes you’ve made recently.  

Please do not private message me.  Only tag me for urgent questions about tapering and reinstating - thank you.  

 

***Please note this is not medical advice.  Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one.

 

Lexapro   Started Apr 15 2010 - 10 mg;  started taper August 2017, recent taper info: Apr 2 '20  0.18 mg; Jul 16  0.17 mg, Aug 23  0.16 mg, Oct 7  0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005,  Jul 8, 0.00.  Psych Drug Free as of July 8, 2022!!  Woohoo!!!

other meds: Levothyroxine 75 mg

magnesium in small amounts at 4 AM, before bed

suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc

suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg

 

Paxil 2002 - 2010, switched to Lexapro 2010 

Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 

Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly 

Link to comment

It’s okay, not necessary. I did so many things wrong there is no helping this. Either it gets better or it doesn’t. If I’m still here I will update. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment

The insomnia and pacing are a lot better. I feel very very disconnected and empty though. Like void of good feelings and this is very scary. Like i have no connection to anything and it feels weird. 
 

i hope that gets better too. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Administrator
23 hours ago, ElaineBenes5 said:

The insomnia and pacing are a lot better.

 

Good to hear. Other withdrawal symptoms should very gradually fade.

 

Are you still taking Belsomra?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Thank you so much all who have offered guidance. 
 

I am continuing to take the Belsomra at night. I am not taking Buspar any longer. I am taking propanolol to try and help with Akathisia. Is that bad? Probably who knows.

 

I am scared and uncomfortable. Is it normal in Akathisia to have constant fever pitch of feeling like you want to die because it’s so unbearable for 24 hours straight? It gets better and then gets worse again. 
 

i try to commiserate with people who have it and realize they have it in episodes of 3 hours something- meanwhile mine can last for days on end. 
 

Is there any coming back from this? 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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@getofflex @manymoretodays 

 

After experiencing an episode of Akathisia on September 22, which I believed was an adverse reaction to Buspar two weeks after after raising the dose to 7.5 2x a day, I quickly tapered off Buspar going to 5 2x a day, to 5 once a day, to 2.5 once a day over the course of about a week and a half. 
 

I continued to have several intense episodes of Akathisia during that taper, which lasted for about half a day or the entire evening, and the next day would feel normal. 
 

Currently, having been off Buspar for about 6 days now, I continue to experience Akathisia. I can’t tell if it’s truly less severe or not. It does however seem to be more constant- in that it seems to last day into day, with even less time feeling “normal.” However, I guess I don’t feel as extremely bad? I really can’t tell. I have also been taking Propanolol two to three times a day for that issue. 
 

I know I was told by SA to not taper quickly off Buspar, however I thought I was having an adverse reaction that could be mitigated by stopping. I’m still experiencing the Akathisia and now maybe it’s less but it’s also constant. 
 

I don’t know what to do here. My entire drug history Sans proponalol is a few posts Above. Signature won’t let me edit it meaningfully due to line limit. 
 

Do I wait out the Akathisia longer and hope it passes? Do I reinstate a small amount of Buspar if this is now withdrawl Akathisia on top of an adverse reaction? Is this just how I am now and I give up? I mean this is brutal. 
 

i had been doing well I guess on a lower dose of Buspar even after a horrible reaction to beef gelatin- it even helped my libido greatly with pssd for a time!! And then boom- mid November things went haywire. 
 

i would really like to survive this and feel better. It’s getting to the point where every moment is uncomfortable and I can’t handle feeling that way much longer. If I reinstate it could get worse, better, or stay the same. If I stay off it could get worse, bigger, or stay the same. Please help. 
 

it might be getting better slowly and I just can’t really tell. But it’s hard to gauge when everything feels crap. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

Link to comment

Also the original prescriber has offered zero guidance about this becaue they are via telehealth and since I am experiencing physical symptoms, they say to follow up with someone in person. Which is such utter bull. 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Moderator Emeritus

Hi ElaineBene5,

Is the propranolol helping?

And once taken regularly, it is a drug that will require some tapering to come off of later.  More about it and tapering it:

Tips for tapering off propranolol

Tapering Beta Blockers or Alpha Blockers

 

1 hour ago, ElaineBenes5 said:

i would really like to survive this and feel better. It’s getting to the point where every moment is uncomfortable and I can’t handle feeling that way much longer. If I reinstate it could get worse, better, or stay the same. If I stay off it could get worse, bigger, or stay the same. Please help. 
 

it might be getting better slowly and I just can’t really tell. But it’s hard to gauge when everything feels crap. 

 

Well this is good, you've made some progress and it sure sounds like you are into Waves and Windows, with periods where you feel better.

And yes, I briefly.......I mean to the best I can recall...... experienced some of the extreme restlessness, internal agitation, and had to pace, and hold a pillow tight to myself while I did so.  It came on off and on at different times during my WD. 
Here's our topic, if it hasn't already been linked up to here:

Akathisia vs. restlessness, anxiety, agitation

and likely you experience a bit of all of these ^

 

I would suggest that for right now, that you limit going to sites where akathisia is the main focus.  Perhaps later, you could go offer comfort and compassion, but for right now........it may not be helpful.

Have you tried weighted blankets yet?

Or could you try doing magnesium, in the form of Epsom salts, in a bath?

Magnesium, nature's calcium channel blocker

 

And from what I can see you also had a lot of on briefly and then off again trials of medications.  What that can serve to do is just put one into a state of nervous system gone wild, or hypersensitivity, sometimes autonomic dysregulation too.

 

It's only been 6 days since you quit Buspar?  November 29th was your last dose?  Can you add that to your signature:  Signature update, edit

When had you started the Buspar?  Your signature just says October 2022.  Was it early October, late October, or give an estimate.

I'm hesitant to have you reinstate that right now, in case of adverse reactions to it(you are unclear on that or unsure if you had them..... but), and you are on 2 other medications now as well.

 

So.......

 

Can you NOTE for us your current medications, and when you take them.  Also note your symptoms pattern in relation to your current medications.  Use this format:

Daily drug and symptom notes

 

What we need to see for every single day over several days is what symptoms you get before and after you take your drugs. If you're not taking any drugs and have withdrawal symptoms, we still need to see your symptom pattern throughout the day:

 

The time of day, dosage, and severity of symptoms are essential information. Include

 

- Time and dosage for all drugs taken throughout the day, psychiatric and non-psychiatric.

- Following each dose, note any symptoms. If you are having a reaction to the drug, it may take hours for a symptom to show up -- that's why we ask you to keep notes all day long.

- If you're not taking any drugs, your symptoms throughout the day.

- Your sleep pattern. Since so many drugs disturb sleep, if you find you're waking in the middle of the night, it could be from a drug you took earlier in the evening. If you're not taking any drugs, there may be ways you can improve your sleep.

And so forth. A diary, in chronological order, looking something like this:
 

Example:


DATE:

 

6 a.m. Woke with anxiety
8 a.m. Took 2.5mg Lexapro
10 a.m. Stomach is upset
10:30 a.m. Ate breakfast
11:35 a.m. Got a headache, lasted one hour
12:35 p.m. Ate lunch
4 p.m. Feel a bit better
5 p.m. Took 2.5mg Lexapro
6 p.m. Ate dinner
9:20 p.m. Headache
10:00 p.m. Took 50mg Seroquel
10:20 p.m. Feeling dizzy
10:30 p.m. Fell asleep
2:30 a.m. Woke, took 3mg Ambien (NOT "took 1/2 tablet Ambien")
2:45 a.m. Fell asleep
4:30 a.m. Woke but got back to sleep

 

An appointments diary is perfect for this and can be bought at stationery stores. They have a page for each day with times for appointments which can be filled in with doses, symptoms etc as shown above. Or, you can copy and paste from a cell phone app -- but make sure the result is easily readable.

 

EB5,  I think it's likely that it WILL start to get better.  Plug that thought and hope into your thinking now.  Don't get lost into "worst stories" or scenarios.  You've reported some improvement and that can really be a great sign of healing.  Those Windows.  They can be great.

 

Okay, so a couple questions, and then use paper and pen, or track times of day and symptoms, and then report those back in a reply.  Get your present drugs in there by name and dose too.  That should help, you as well as us to see what happens in 24 hours of time.  Post first one whole day.  And then at least a couple more.

 

Use as much non-drug coping as you can too.  What have you got in your arsenal or collection of non-drug coping skills/practices so far?

 

And best, L, P, H, and G,

mmt

Edited by manymoretodays
additions, coping, bolding

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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@manymoretodays  I think the Propanolol is helping or at least doing something? Windows idk because I was mostly okay before Nov 22. So this was sudden and then progressively worse. 
 

as for coping, drawing, messaging friends, talking to my mom (which is taking a big toll on her), breathing, watching tv for some kind of distraction, taking a nice shower, going for a drive with a friend/family member, calling a crisis line to chat, playing with my dog- granted all these things I can do but offer very little in the way of comfort or distraction when things are bad. I will still try. 
 

thank you for helping me try to figure this out and make it through this. I appreciate you. 
 

notes

12/6 

 

2am - can’t sleep, feel panicky, , body is hot, scared, want to jump out of my skin but can’t. Take 10mg propanolol. Sleep a bit. 

 

7am - family making noise wake up and go to other room. Feel sleepy and uncomfortable. Sleep some, lay there.  


11am - get out of bed. Feel weird but not too terrible. Have pbj sandwich.

 

12pm- at IOP group therapy (went for insomnia caused by “anxiety” originally) feel restless but not terrible, laugh with some friends there 


12:30pm take 10mg Propanolol. Feel crummy but not intolerable. Some dysphoria, but don’t want to die. 


3:00pm eat chicken sandwich and drive home. Feeling uneasy, inner restlessness very bad, SI, don’t know how much longer I can feel like this. 


4:00pm feeling better, almost normal, watching funny videos and laughing 

 

6:00pm feel like I need to die, in pain, trying to figure out where pain is coming from but when I scan my body there is none, it’s so weird. 

 

7:00pm feeling lethargic and uncomfortable but don’t want to die, go for a drive with my mom and to grocery store. Have some laughs. Feel like I have bad gerd/acid reflux? Even in ear canals too. 


7:30pm - wave of sadness - think of how strong and dynamic I was just a short while ago, think of my ex and how he’s doing just fine, and how I don’t know if I’ll live or die through all this. 
 

8:00pm - eat Greek salad, chicken,  for dinner with bread roll, feel in bit better spirits! Watch funny videos with my mom and feel okay, even kind of normal? 
 

8:40pm ears feel hot, feel a little uneasy, keep asking my family am I going to make it though this and be myself again? Some hot pressure in left side of head, some slight tingling in head. Popping in legs. 

9:30 back feels hot, but in relatively good spirits, watching Sebastian Maniscalco 

 

10:00 pm thighs popping like restless legs slightly, feel GERD again and ears/area around ears feels uncomfortable, but nothing terrible. 
 

10:30pm feeling off, unpleasant dysphoria but nothing intolerable.  took 10mg propanolol. Starting to get nervous and anticipate what horror awaits me. 


10:45pm feel some popping/tingling throughout body, like restless legs feeling but in arms and back. Back starting to feel hot/burn slightly. Glands on side of head by ears feel irritated. Realize I’ve been sitting calmly without any fidgeting for the last 2 hours. Feel crummy. Head is throbbing a bit. Eyes feel tired and worn out, general headache setting in on top of weird Akathisia head feeling. I would go to take a Motrin, but idk what is Akathisia, what is pain, and if anything will help or make it worse. 
 

11pm - feel crummy but don’t want to die. Head pressure feels tense. Ears feel irritated and throbbing. Eyes heavy. GERD. Watching a prison documentary and focuses in on it. Fidgeting a bit on the couch (flexing toes, playing with remote, nothing noticeable to others). 
 

11:30 head tingling, body tingling. Head pressure. Thighs feel hot. But not deathly? Just really crummy. Had a good laugh at Seinfeld. Feel tired but not sleepy or relaxed or comfy. 
 

11:50pm take 20mg Belsomra feel okay but afraid to go to bed and have an “on guard” feeling. 

12/7 

12:30am actually feel great. Joke around with a friend. Dance around the living room rona song. Get into some discussion about history. Feeling good feeling like myself. Some head pressure in the background. Go to bed. 
 

around/before 2:00am after dozing off for a few moments I wake up with panic, burning tingling throughout body, inner restlessness, and I get out of bed to have some water. Very uncomfortable and scared. Overwhelming discomfort and feeling that “things are not right.” Go back to bed and sleep a bit. 
 

7:30am wake up by alarm. After being awake a few moments I can still feel the burning restlessness and discomfort. Try to go back to sleep. Take 10 mg propanolol 
 

10 am - woken up by family; irritable go back to sleep after tossing and turning 

 

12pm -  startled awake by end of bad dream. Get out of bed. Feel uncomfortable and scared, some hot/burning/tingling. Feel restless energy in calves like restless legs. GERD feeling in esophagus and feel my ear canals are irritated. Eat bagel for breakfast. 
 

( I underlined times I took meds and bolded times symptoms were unbearable) 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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12/7 

1pm Took shower felt off, very flat, disconnected, emotionless. 

 

2pm drove to city with family and walking around. Actually got excited to go into a specialty grocery shop. 
 

2:30pm painfully aware of lack of romantic feelings/ any deeper excitement, irritable 

3pm hungry, grab a Turkey sandwich, happy it tastes delicious

 

3:30pm take 10mg propanalol 

 

3:50pm feel popping legs like restless legs but no desire to move them. Feel a bit hot on my back. Relatively flat emotionally. Had pumpkin pie that was tasty. Conversing with family and holding a conversation. Feeling nervous. Jittering leg as i sit down. Keep asking my mom if I’m going to make it through this. 
 

4:15 noticeable popping feeling in legs. Feeling nervous.  
 

4:30 Dr. Appt, was chipper, felt fine 

 

5:00pm walked around, felt good 

 

6:00pm ate dinner out, had nice time, felt myself but a bit unable to relax 

 

7:30pm feeling tired, mostly fine, head tingling/twitching in back of head and neck,driving back 

 

7:50pm legs feel warm, tingly

 

8:00pm feel tired, irritable, but mostly okay 

 

 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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9pm felt totally fine, happy even 

 

11:15pm take 10 mg propanolol, feeling good 

 

11:50pm feeling mostly good, a bit excitable, but not in a bad wag, take Belsomra 20mg. Some twitching of neck and upper back and by ears. Feel some slight tingling in legs. GERD feeling 
 

12am unwind with some tv, feeling nervous, on edge, legs popping more, arms feel hot, worried about what I’m going to experience, head feels cold and hot 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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12/8 

- 1:00am asleep

-2 am - awake with Akathisia feeling of burning and panic and extreme discomfort. Have some water and deep breathing. Look at phone.

- 3am asleep I think

-8 am awoke by family - have water and take 10 mg propanol feel sleepy and slight discomfort 

 

 

Aug 2020 - Feb 2022 on and off Lexapro 5 and 10mg,  Rapid taper

Nov 2021 - May 2022 on off Wellbutrin 100mg, 150mg, 75mg CT clindamycin cycle and also Plan B bc 1x 

Fall 2020- June 2022 - Xanax .5 PRN usually 4x a week, CT 

June 2022 - Z pack, Buspar 7.5 3 days

September 20-24th - low tryptophan diet and 20-30g beef gelatin powder

Oct 3- 16 - Xanax .5 for sleep each pm, 1 mg Ativan in ER, .25 Xanax —> .125–>0 

Oct 14-17Trazadone 50/75, Lunesta 3mg 

Oct 24-  start Belsomra, 4 days to20mg 

Nov 3-5 10mg Belsomra and 300mg Gabapentin 

Oct 13-Dec 1 Buspar 7.5 2x/day rapid taper over 2 weeks due to ADR 

Recent: Belsomra 20mg since 10/23/2022 to 15mg mid December for 2 nights —> 20mg —> 15 mg since 12/22/2022 —>14 mg compounded 02/11/2023 —> 15 mg 2/13 —> 10mg 2/22 —> 5mg 3/1 —> 0mg 3/8/2023 

Current:  Propanolol 20mg AM, 10mg 4pm, 20mg PM since 11/30/2022

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  • Administrator

Please explain what you mean by "akathisia".

 

Otherwise, your symptom pattern does not show withdrawal syndrome. It appears you may have a paradoxical reaction after taking propranolol and Belsomra.

 

About your legs "popping":

 

On 10/8/2022 at 4:42 PM, Altostrata said:

Are you drinking enough water every day? Have you tried applying magnesium oil, taking a potassium supplement along with magnesium, stretching, physical therapy, or chiropractic?

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Moderator Emeritus
On 12/7/2022 at 10:20 AM, ElaineBenes5 said:

as for coping, drawing, messaging friends, talking to my mom (which is taking a big toll on her), breathing, watching tv for some kind of distraction, taking a nice shower, going for a drive with a friend/family member, calling a crisis line to chat, playing with my dog- granted all these things I can do but offer very little in the way of comfort or distraction when things are bad. I will still try. 
 

thank you for helping me try to figure this out and make it through this. I appreciate you. 

 

Hi ElaineBene5,

You are welcome.  I see a blank reply box above, and a question from Altostrata for you to answer.

 

And good non-drug coping.  Yah, on the Mom and you feeling like it is taking a big toll on her.  I remember, my own Mum......oh my gosh, she was gung-ho on psychiatrising me further for awhile..........and could not grasp onto what I WAS doing, when I was tapering, and then trying to remain medication free.  She could not shift.....not at her age......could not shift her thinking, and could not stand to see me struggling.  They worry.  Keep going, find a friend that you might talk with(rather than just text)......I mean ask one, or two......so you are not feeling like too much goes to any one person.   Ask about your mom too, for sure......maybe she needs comfort and encouragement.  Mine did.  When I shifted to her, we did great.  And I don't know your age, or your Mom's age.  It might be a bit different.  Go easy with your mom though......I'd suggest, sounds like you have a good one, as did I.......they worry and fret and sometimes that is how they love.

 

Good, good with the other.

 

And it must be coming in waves then.......your symptoms.  Not non-stop.  So that is promising.

 

All for now.

 

L, P, H, and G,

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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