LexAnger Posted April 12, 2016 Share Posted April 12, 2016 Congratulations to being out of the hell and getting your life back! Great update and thanks for the posting! Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
Africa Posted April 12, 2016 Share Posted April 12, 2016 Congratulations DLB! Thank you for posting this as it gives us all a little more hope <p>February 2009 started taking Paroxetine 10 mg everyday. Reducing very slowly in February 2015.15 December 2015 was on 5 mg Paroxetine 4 days a week and 7.5 mg 3 days a week. Severe withdrawal. Back to 7.5mg everyday from today 25 March 2016 7.1 mg everyday (stayed on this dose for 8 weeks) 23 May 2016 6.7 mg everyday (stayed on this dose for 6 weeks) 4 July 2016 6.3 mg everyday (stayed on this dose for 8 weeks). 2 September 2016 5.9 mg (stayed on this dose for 10 weeks) 9 November 2016 5.6 mg (stayed on this dose for 8 weeks) 4 January 2017 5.3 mg (stayed on this dose for 6 weeks) 20 February 2017 5 mg (it's taken me 2 year to get half way!!) (stayed on this dose for 4 months) 20 June 2017 4.6 mg (stayed on this dose for 5 months ) 27 November 2017 4.2 mg (stayed on this dose for 7 months) 17 June 2018 3.9 mg (stayed on this dose for 7 months) 22 January 2019 3.5 mg {stayed on this dose for 2 years) 16 January 2021 3.2 mg 3 April 2021 3mg Link to comment
DLB Posted April 13, 2016 Author Share Posted April 13, 2016 Thanks again everyone. Brass, you are so close. Can't wait to see you hit zero. Lex, i don't have everything back yet but i feel it will be one day... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
aberdeen Posted April 13, 2016 Share Posted April 13, 2016 Nice to hear DLB!!!! 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
DLB Posted April 14, 2016 Author Share Posted April 14, 2016 Aberdeen!!! Nice to see you, wow you are at .3 ! This summer will be your summer of freedom from this crap. I can remember trying to measure that little amount and it was not an easy task. Can't wait to see you off! I'll be cheering you on!! Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
aberdeen Posted April 14, 2016 Share Posted April 14, 2016 Thanks DLB, yes its not really possible to even say for sure how much I take as the next 3 weights until Im off are so mall that the scale flips through each of those weights every night when I measure my dose anyway, I think its guesswork at this point and yes Im excited to be off. i know i wont see immediate improvements but I can finally forget about weighing powder everynight, and know Im not adding anything more to my brain. Im sure you will see a lot of improvement yet yourself. It takes a long time. Longer than we thought! You're doing so well! 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
Miko789 Posted April 28, 2016 Share Posted April 28, 2016 Congratulatios DLB, that is great news. 2011 protracted withdrawal symptoms from Effexor, managed to come off 2013-2015 risperidone consta 50 mg, started tapering from March 2015 to 1,66mg/day and from 02/2015 started seroxat 10mg/day 01/17 Seroxat 2,0mg,olanzapine 5mg,risperidone consta 25mg/every 15days 05/17 Seroxat 1mg,olanzapine 5mg,risp.consta 25mg/every 15days 06/17 Seroxat 2drops,olanzapine 5mg,liquid risperidone2mg 07/17 Seroxat 1 drop,olanzapine 5mg,Risperidone 0mg, 10/17 Seroxat 0mg,olanzapine,5mg,Risperidone 0mg, 12/17 Seroxat 1/2 drop, olanzapine 5mg, 04/18 Olanzapine 1,25mg, 04/18 xanax 0,5mg 24/06/2019 doc said to take 10mg olanzapine for 13days and down to 5mg been taking 10mg for 14 days, 5mg for 8 days and tapered to 3/4quart. 5mg for 14 days, 1/2 for 14 days, 01/08/19 2,5mg 08/2021 5mg olanzapine Supplements Omega 3, Turmeric, Bacopa monneri, Mucuna Pruriens Link to comment
DLB Posted June 14, 2016 Author Share Posted June 14, 2016 Hello everyone, I am currently at 14 months off and things are still pretty good. My sleep is usually 5-6 hours and still getting up at 4:00 or 4:30 with an occasional 6:00 thrown in there. I can fall asleep no problem and sometimes wake after an hour or two but get right back to sleep. I believe I'm having more good days but still not me yet although I get a few 90% me days. Not too much anxiety to mention but less stress tolerance still. Still weird feeling legs and weakness. I'm about half as strong as I was and have lost muscle mass. Get winded easy and little exercise gets my heart rate up quickly and heavy. My autoimmune issues are still here but manageable and maybe that is the reason for leg weakness, hopefully my hormones will straighten this out. I had something called geographic tongue that started a few months after final dose and it finally went away and this is something I never had in my 47 years so I would guess it was Paxil WD induced, apparently it can be hormonal. Lately psoriasis is happening more though and this is also something that started right at poopout/ withdrawal and usually people of my age don't get their first episode at my age and another bonus is that it came along with a strange thing called enthesitis which is a form of psoriatic arthritis but it goes after your tendons and ligaments. I am hoping that this one will get better because it is my worst part of this whole thing that happened to me. Overall I think I am seeing a unsteady upward healing but it is so slow you wouldn't really know it unless you look back many months. Hang in there everyone.. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator Emeritus scallywag Posted June 14, 2016 Moderator Emeritus Share Posted June 14, 2016 Hey DLB, thanks for taking time to let us know how you're doing. Your positive attitude is very encouraging! This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to 0.0 mg Aug. 12; details here scallywag's IntroductionOnline spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet Link to comment
Moderator brassmonkey Posted June 14, 2016 Moderator Share Posted June 14, 2016 Wow, 14 months and showing stead improvement. That's excellent. I'm so glad to hear it. 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
DLB Posted June 15, 2016 Author Share Posted June 15, 2016 Thanks scally and brass. I am looking forward to more healing. Today was a 95% my old self day with less pain and high motivation. I feel like this year I will have turned a corner permanently and healing more linear. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
LexAnger Posted June 15, 2016 Share Posted June 15, 2016 My goodness, I am so happy for you DLB! Almost as excited as I am there myself! Keep the great work and get all the life back as soon as possible! Thanks for the great inspiration! Love Lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
DLB Posted September 15, 2016 Author Share Posted September 15, 2016 17 month update. All is REALLY good here (sorry to those that are suffering and have to read that, but it is also proof you will get better!) I am consistently feeling about 95% back to normal with a few days a month where I feel like crap, but after a tired crap day, the next day I feel good again. It seems I have turned a corner over the summer and the good and even great days far outnumber the bad. I have a lot more energy, sleeping somewhat better but not consistent and can even doze off in the afternoons (this is something I could not do since the first day I took this crap 13 years ago, I would always startle awake as I felt myself dozing off) , my weakness problem recently seems to be getting much better, I want to actually do a lot of things more often and can carry out most plans without forcing myself. Of course there is that pesky low sex drive which for me was unthinkable a few years ago and does bother me a bit. The only thing I have done different in the past few months is eat tons more protein and protein drinks, smoothies and anything that has lots of protein. I actually did this to regain some lost muscle and prevent further loss. Also just this week I started taking something called "Vital Reds", it is basically a super antioxidant mix of powdered berries and fruits. I don't know if it is the placebo effect or what but in a week it really seems to give me more energy and feel really good (I am never a sucker for things like this and am always a skeptic of them and only take it for the health benefits and not some super cure for withdrawal). I hope everyone is doing well and if there are any questions I will check back or PM me. Oh, one more thing, my withdrawal induced psoriatic arthritis (autoimmune) seems to be lessening up a bit thank God. 1 Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
aberdeen Posted September 16, 2016 Share Posted September 16, 2016 This is great news DLB!! I especially like that you are more motivated, I struggle with that still, just want to zone out and do nothing first chance I get. Happy to hear about the arthitis too! Keep going! 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
DLB Posted September 17, 2016 Author Share Posted September 17, 2016 Hi Aberdeen, yeah the anhedonia really sucks but it will go for you too.It seems to be in little steps that it disappears. How are things with you? I hope you are doing well. I can't believe all the new people on here, this is criminal what is being done to people... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
aberdeen Posted September 17, 2016 Share Posted September 17, 2016 I agree. It only seems to be getting worse, but maybe it has to before it can get better, enough people to make a bigger noise about the dangers of these meds. Its hard when so many people happily swallow their pills and feel better, or those who come off without issue, it takes the thunder out of our stories. Then there are all those who will be harmed but never connect the dots and believe what theyre told by doctors. Ugh. I'm doing pretty good, no major anxiety crash, though I wake up anxious and ruminating and have trouble getting back to sleep early in the morning still. Its a milder version now though than it used to be for sure. Also spells of depression, again, milder than before and usually hormone related (although wd isnt separate from that im sure). The anhedonia does improve in spurts but always comes back. However even with the anhedonia level I'm at most days I can now read a novel, and that has been impossible for a long time! So its coming. Ive been off 3 months. 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
ravijaua Posted September 30, 2016 Share Posted September 30, 2016 What I find great about this thread, is the original poster sounds like a tough guy, a construction worker. He definitely kills the stereotype that we are all softies and wusses. This can affect ANYONE! This is proof of that. Update 8122017 Zoloft 2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011. Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft. Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016. Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help. 12/14/2016 - 15.95 mg (291 mg pill weight) 12/16/2016 - 15.83 mg (289 mg pill weight) 12/23/2016 - 15.67 (286 mg pill weight) 8/12/2017 - 15.34 (280 mg pill weight) Link to comment
ravijaua Posted September 30, 2016 Share Posted September 30, 2016 Ketoconozaole triggered my poopout. But I really think the poopout in both my situation and the original posters happened just due to time on the drug. Update 8122017 Zoloft 2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011. Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft. Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016. Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help. 12/14/2016 - 15.95 mg (291 mg pill weight) 12/16/2016 - 15.83 mg (289 mg pill weight) 12/23/2016 - 15.67 (286 mg pill weight) 8/12/2017 - 15.34 (280 mg pill weight) Link to comment
DLB Posted September 30, 2016 Author Share Posted September 30, 2016 Thanks Rav, yes you are right,I work in the trades.I had a horrible time working full time with 2 hr. sleep many many days and alot of 4 hour nights. I am now at 5-6 hours of sleep. The weakness is unbelievable and i tell all my helper and apprentices what is going on with me and they help out real well. I have a wife and three children to provide for. So between that and complete stubbornness (half German) I will not be beat by this. I am definitely worn out by the end of the day and never used to be.Also lost alot of muscle mass and am weaker now. Went from 210 to 190 during this mess and it was 90% muscle that i lost as i am not overweight. In 12 days i will be 18 months off and i hear there could be a wave around that time but it don't seem like i can be hit out of nowhere now. Hang in there, it will certainly get better. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
ravijaua Posted September 30, 2016 Share Posted September 30, 2016 I think you should get better progressively. I am not sure if your muscle loss is related to withdrawal or your autoimmune disease as reading around I haven't really read about muscle loss without people not actually eating less or something like that. Update 8122017 Zoloft 2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011. Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft. Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016. Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help. 12/14/2016 - 15.95 mg (291 mg pill weight) 12/16/2016 - 15.83 mg (289 mg pill weight) 12/23/2016 - 15.67 (286 mg pill weight) 8/12/2017 - 15.34 (280 mg pill weight) Link to comment
DLB Posted April 13, 2017 Author Share Posted April 13, 2017 2 years off update: Well it defiantly has been a better year this past year. Things are s-l-o-w-l-y getting better and better. I have defiantly more ambition to do things and follow through and anhedonia is basically non existent. I still have this weird muscle tightness and weakness in my legs (it moves from calves to thighs) and muscle pain, however this may be to psoriatic arthritis which is also getting better and started at the same time as poopout. I actually have gotten more involved in my hobbies than I have in the past almost 4 years since poopout and my 15 month taper from 10 mg. Paxil that I poisoned myself with for 10.5 years. My sleep is pretty good at 5-6 hours a night now and can usually fall back asleep for an hour or two in the am on weekends. I still have slight memory problems and am defiantly not as sharp as I used to be. Last week I also drank 4 beers at a party without fear or feeling bad for days after. I have not drank more than a very rare beer or two in 5 years. I look forward to probably writing my success story next year after a few little bugs are worked out. But even if they don't get much better, I am in a pretty damn good place now. Oh, and PSSD is defiantly better by probably 90%. Really sad to see the continuing flow of new people here though and I still see some of the old crew. I wish you all good health and continued healing and never give up. Nice to see you are about to jump Brassmonkey!!!!!! On a side note, I was damaged by fluoroquinolone antibiotics almost 14 years ago and this is what caused me to go on this crap to begin with. After getting floxed again 9 years ago I realized that the antibiotic caused my body to fall apart and my mind. I have made it a point to warn all of my friends about the dangers of fluoroquinolone sand have actually stopped people from taking them while they were in the midst of being damaged. Unfortunately a family member got prescribed them and took them and is now almost crippled. I guess the FDA black box warning was ignored by doctors once again. I did find a few doctors that said they would have a hard time prescribing them even if it were a life and death situation (this is how bad they are). One member on here, Aeroman was doing great for several years after having a hell of a withdrawal from ssri's and was given fluoroquinolones and it caused basically another withdrawal. So if anyone out there is prescribed these horrible antibiotics ask if there is something else you can take. I personally don't think I would allow one given to me even if it was to save my life. I would insist on any other thing they can give me and would take the chance. Please never take one if it can be avoided, I know several people that were damaged by just a few pills and the pain lasted years and the psychological damage it causes is a horror. "When you are going through Hell..... KEEP WALKING". I welcome any questions, DLB.. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator brassmonkey Posted April 13, 2017 Moderator Share Posted April 13, 2017 Congratulations on hitting the two year mark DLB. I'm so excited that things are going so well for you. Can't wait for you to write that success story. Brass 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
LexAnger Posted April 13, 2017 Share Posted April 13, 2017 Thank you so much DLB for coming back and give the so needed hope! Fabulous update, I am truly happy for you to have your life back! You are so well deserve it! I actually have been reading through your entire thread many times recently as I was stuck in a very low dose of Lexapro from a super fast last dose reduction due to drug reaction. I am curious about your tapering from 10 to 0.8 mg Paxil in 2014, the schedule and how you felt. Were you rather stabilized at 0.8mg before further tapering down from there? How long did it take for you feel much better after thr final dose? I hope you are getting your muscle back and the remaining symptoms gone soon! Again, this is marvelous!! Best, Lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
LexAnger Posted April 13, 2017 Share Posted April 13, 2017 Oh one more question, have you been able to work? Thanks Lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
DLB Posted April 13, 2017 Author Share Posted April 13, 2017 Thanks Brass, glad you are doing well and traveling. Lex, I did basically the 10% taper but I did speed it up slightly at times. At the higher doses there were really no problems but i was already feeling like crap from poopout. Once I got down to about 2.5 mg. all hell broke loose and it was real bad for about 6 months. I did work through it all and there were weeks of 2 hour sleep but yet I wasn't tired. I absolutely forced myself through because I knew I had to work fir my family.I am one determined stubborn person and refused to let this beat me and I think that helps alot.. Also, after my last dose there were no fast changes at all,just some small wi dows and some bad waves but steadily recovering in the typical non linear fashion. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Dwell Posted April 13, 2017 Share Posted April 13, 2017 Thank you for your story DLB I just read through it and it gives this Paxil withdrawer a lot of hope for imptovrment! Paxil 20mg started around 2013 dropped to 10 mg at some point dropped to 5mg for 1 week then C/T August 2016. Buspar 10 mg 2x daily started 2013 fluctuating amounts. Tried cylexa 1 week at beginning of August 2016. Tried wellbutrin 1 week after cylexa stopped both. I have been off all meds for around 4- 5 years. Link to comment
DLB Posted April 14, 2017 Author Share Posted April 14, 2017 You can do it Dwell. It can be the hardest thing physically and psychologically you may ever do, but if you don't mind a really messed up body and brain for a while and not let it get to you, it can be done and you will eventually feel better. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
LexAnger Posted April 14, 2017 Share Posted April 14, 2017 Thank you so much DLB for answering my question! You certainly have my admiration for being so strong, determined and stubborn beating this beast up! Wishing you best to full recovery and great life moving forward! Lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
aberdeen Posted April 16, 2017 Share Posted April 16, 2017 This is great news DLB! You've come a long way. So happy to hear how well you're doing. I think healing will still continue for you, even though you're already in a pretty good place! 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
DLB Posted April 19, 2017 Author Share Posted April 19, 2017 Thank you Aberdeen, I'm not on here all that much anymore but I do check in occasionally and I hope all is well with you and I'm sure you are past the real tough part. I see Brass finally jumped too, that is three more off that were long time users and are keeping our heads above water!! Thanks for stopping by! Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
grandmaD Posted May 14, 2017 Share Posted May 14, 2017 I managed to get through your thread. I just stunned now to read you and others have the same issues. Since this last spasm I had 8 weeks ago, I have been convinced by doctor it is osteo and a friend that it is arthritis so I came to believe that and accept that this will probably be with me and get worse. Now I have seen quite a few others with the same issues! When you had those issues was it for weeks and weeks on end and months? You said on my thread it was 2.5 years so are all those symptoms gone now? I see you were at PP too, but don't remember you from there, were you called DLB there? I do remember Ever, and Aberdeen though. 1995-2007 20mg Aropax/Paxil for pain. Years of up and down doses 2008 Endep, Lexapro and then Esipram (hell!) CT (oh dear!) 2009 20mg Aropax. Tried skipping doses for a year (more hell!) 2010 10mg. 10% taper. Lasted 4 months. Crashed again 2011 5% taper. 9mg-7mg (hell got even worse!) 2012 2.5% taper. 6.6mg – 5.6mg (worser still & unbearable) 2013 5% taper. Big mistake. 5.5mg – 4.6mg (even worserer) 2014 2.5% taper. 4.9mg – 4.5mg; 2015 2.5% taper 4.4 - 4.0mg 2016 2.5% taper. 3.9mg Feb 3.8 Mar 3.7 May 3.6 Jul 3.5 2017 2.5% taper. Jan 3.4; Mar 3.35; Apr 3.3; Oct 3; Dec 2.9; 2018 2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3 2019 Jan 2.2; Feb 2.1; Link to comment
mustangwoman Posted May 18, 2017 Share Posted May 18, 2017 Just read your thread and remember seeing you on pp. According to the dose equivalencies converting luvox to paxil, my dose is equivalent to 0.4 mg of paxil. Your story is very encouraging. Thank you for spreading peace. zoloft 2004-08 tapered too fast(2 weeks) Luvox 5/08 100 mg 07/10 40mg via small reductions, 08/10 39mg, 09/10 38mg, 10/10 37mg, 11/10 36mg,2/11 35mg, 5/11 34mg, 8/11 33mg, 11/11 32mg, 01/12 31mg, 03/12 30mg, 4/12 29mg, 5/12 28 mg, 8/12 27 mg, 11/12 26 mg, 1/13 25 mg, 3/13 24 mg, 4/13 23 mg,6/13 22 mg, 7/13 21 mg, 8/13 20mg, 10/13 19 mg, 11/13 18 mg, 12/13 17 mg, 1/14 16 mg, 3/14 13 mg, 9/14 10.9 mg, 1/15 10 mg, 3/15 9 mg, 5/15 8 mg. 11/15 7.12 mg. 4/16 5 mg, 6/16 4.5 mg, 9/16 4.2 mg, 1/17 3.48 mg, 2/17 3.2 mg, 4/17 2.2 mg, 5/17 2.0 mg, 6/17 1.74 mg, 7/17 1.58 mg, 9/17 1.27 mg, 11/17 1.0 mg, 1/18 0.79 mg Link to comment
DLB Posted April 17, 2018 Author Share Posted April 17, 2018 Well, it's been 3 years now and things are doing good. My sleep is about 95% of what it used to be. I don't know how many on here ever had this weird symptom of starving for air when you are about to fall fall asleep and you need to wake yourself up to be sure you can breathe, well I had it for my entire time on Paxil and have not had it once since three years ago. This was definitely a Paxil side effect that I had no idea until I recently thought about it not occurring anymore. My leg muscles seem to be a lot weaker and I am almost certain that Paxil use brought about my psoriatic arthritis which is an extremely painful thing to have. My form of it affects my tendons and muscles , it is called enthesitis and it came on right after starting or stopping Paxil when first ever took it and every time I quit or re-instated it. Now that I am off permanently it has not gone away and I have tried many options to help but I now must take Humira which is pretty scary but I have no choice if I want to function. As for any anxiety or other issues, they are completely gone. Just still can't be 100% of what I used to be physically due to this auto immune disease. PSSD is almost completely gone and if I weren't in so much pain every day I am sure it would be completely gone. In all, I would say that if it weren't for the psoriatic arthritis I would be healed 99%. Who knows, I could have come down with this anyways. I do have this gene for connective tissue issues called HLA-B27 and it might have showed up anyway. But I do know that either Levaquin or Paxil triggered it because it started happening within 2 weeks of taking both. Paxil was given due to a horrendous reaction to Levaquin and sometimes I think that the Levaquin caused it all along and the Paxil kept covering up the pain! Oh well, aside from my tendon and ligament issues all is well and if there is anymore improvement I will consider it a bonus but I don't feel I need it. Now if only humira will fix my autoimmune issues I will be 100%. I am saddened to see all these new names on here and hope that I can be the light in the darkness for you all. You can beat this with patience and determination. Good luck to you all and PM me if you need any info (It may take a few days to respond though as I'm not on here much anymore). DLB.... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator brassmonkey Posted April 17, 2018 Moderator Share Posted April 17, 2018 Hi DLB-- thank you for dropping in with such a wonderful update. I'm so happy for you. I'm celebrating one year drug free as of yesterday, so you post has given me a lot to look forward to. brass 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
Moderator Emeritus Dan998 Posted April 17, 2018 Moderator Emeritus Share Posted April 17, 2018 Thanks for the update. I've been drug free for 11 months and I've been in a horrible wave for the last 2 months. Your post gives me hope that I will actually recover from this and I too am looking forward to getting my life back. 2001: 20mg paroxetine2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg; Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg Finished taper 17 May 2017. Read my success story I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider. Link to comment
Ogres Posted April 18, 2018 Share Posted April 18, 2018 Great update, DLB! Glad that you've recovered almost completely. I'm 19 months off of Prozac and have some remaining WD symptoms. The most annoying is insomnia which in turn brings other symptoms not present otherwise. Happy that your PSSD improved with as well. Seems the only way to get rid of WD is let it heal with time. Wish you full recovery and looking forward to reading your success story. Feb 2009-Jul 2015 was on Prozac 20mg/day with breaks for weeks and months off in between. Jul 2015-Feb 2016 off (cold turkey). Feb 2016-Aug 2016 back on Prozac 20mg/day Sep 2016- completely off (cold turkey) Link to comment
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