Cheeky: on Paxil for 23 years needing advice

[Colonial]

I agree. If a tiny updose helps You stabilize 2-3 months sooner than that is all the sooner You can eventually restart the Paxil taper. Sometimes going up is the easiest and quickest way to get further down, it just seems counter-intuitive but "we" can sometimes be our own worst enemy at this. "Toughing it out" shows You have the will power which is great, but we don't want to ruin our health or relationships in the process.

You will get their eventually, just like everyone! 🙂

 

[brassmonkey]

Yea, those are all pretty normal symptoms. Give the small updose a try, there may be an immediate improvement but it will take several days to a week before you can really tell.

 

Boy, you are getting some great support from the mentors, Well done all of you.

[Cheeky]

1 hour ago, brassmonkey said:

Yea, those are all pretty normal symptoms. Give the small updose a try, there may be an immediate improvement but it will take several days to a week before you can really tell.

 

Boy, you are getting some great support from the mentors, Well done all of you.

Thankyou . 

[Cheeky]

5 hours ago, Colonial said:

I agree. If a tiny updose helps You stabilize 2-3 months sooner than that is all the sooner You can eventually restart the Paxil taper. Sometimes going up is the easiest and quickest way to get further down, it just seems counter-intuitive but "we" can sometimes be our own worst enemy at this. "Toughing it out" shows You have the will power which is great, but we don't want to ruin our health or relationships in the process.

You will get their eventually, just like everyone! 🙂

 

Thankyou, have you had to do that yourself.

[Cheeky]

8 hours ago, Greatful said:

@CheekyI am sorry you are having such a rough day. 

 

This whole W/D process is so overwhelming.  It makes me so angry watching all of us suffer because of these drugs.

The doctors should be required in the training to take a psych drug for 2 month, so they can feel the start up side effects than stop after 2 months and we will see if their attitude changes.😡

Maybe they won't hand them out for any and everything.  Here do you want some candy

I know, I’ve given up on the corruption of this world, they need us sick to make money. 

[Cheeky]

okay update,

I increased last night to 16mg. I normally put a 25mg tablet into 20ml of water but I changed it to 25mg pill to 25ml of water. I think that should be easier to use. My husband thinks the water titration method isn't good and I should weigh the tablets instead.My only concern is the Seroquel tablets are so small and some of it will crumble. I have the scale if I need to use it , not sure if I want to change anything at the moment though. what did you do @Colonial

[Cheeky]

9 hours ago, Bee5 said:

My personal experience is that it takes between 4 and 7 days to feel some relief after an updose. But it differs for everyone. 

Have you done that yourself and did you update by 1mg

[Colonial]

I would NOT advise changing both the dose and the method administration at the same time.

I would stay with the liquid for now if that's how your doing it.

 

I just changed from liquid to a compound made by the pharmacy from crushed pills and I've had increased issues from the change over. 

 

While yours technically is the same medication, drinking  liquid into your stomach as opposed to putting the med on your tongue might throw you off for a bit since the absorption rate will be different.

 

Now, if you think there is reason to believe your husband is correct, you have the option of just changing to that method but staying at the same dose, but you would need to know if there's a good reason why He thinks the method is off. Are you making alot of liquid and using it for too many days?  Etc.

 

But if this is the way you have been taking the Seroquel all along and you only got worse after the drop from 18.5 to 15, and you didnt make an administration change as well, then your probably ok to keep going this way.

 

Regardless, if you want to change, only make one change at a time. Since if you do BOTH and feel better you wont know which was the reason.

 

 

 

Edited August 3, 2021 by Colonial

[Greatful]

@Cheeky  How are you feeling today?  Hopefully with  the up dose you will feel some relief☺️

 

This can be a long brutal battle, we will get through it♥️

[Cheeky]

15 minutes ago, Colonial said:

I would NOT advise changing both the dose and the method administration at the same time.

I would stay with the liquid for now if that's how your doing it.

 

I just changed from liquid to a compound made by the pharmacy from crushed pills and I've had increased issues from the change over. 

 

While yours technically is the same medication, drinking  liquid into your stomach as opposed to putting the med on your tongue might throw you off for a bit since the absorption rate will be different.

 

Now, if you think there is reason to believe your husband is correct, you have the option of just changing to that method but staying at the same dose, but you would need to know if there's a good reason why He thinks the method is off. Are you making alot of liquid and using it for too many days?  Etc.

 

But if this is the way you have been taking the Seroquel all along and you only got worse after the drop from 18.5 to 15, and you didnt make an administration change as well, then your probably ok to keep going this way.

 

Regardless, if you want to change, only make one change at a time. Since if you do BOTH and feel better you wont know which was the reason.

 

 

 

Yeah I agree, this only happened since my last drop and haven’t had a problem so far. So I will keep to that. If however I need say a dose of  14.82mg how would I go about doing that. I have currently a 10ml , 5 ml and 1 ml syringe.  Can I round the .83 to 9

[Cheeky]

14 minutes ago, Greatful said:

@Cheeky  How are you feeling today?  Hopefully with  the up dose you will feel some relief☺️

 

This can be a long brutal battle, we will get through it♥️

Just feeling disheartened, I’ve been keeping my distance from my mother

and sister but they keep on wanting to see me. If they know what’s happening to me they will tell me go back in my medication and I don’t want that. They both love pills and take them for everything . I know they love me but I don’t want the added stress at the moment. It’s hard to convince people what these drugs do to people. 

[Colonial]

  Can I round the .83 to 9

 

 

 

If your talking about dropping in the future, As long as the drop is small enough percentage wise and you wait long enough in between,  it doesn't really matter if it's a bit different from drop to drop.  Each drop doesn't have to be exactly the same. But your getting ahead of yourself if that's what you mean.

 

And if it's too problematic to updose to exactly 16mg, you can go a tiny bit above or below.  Don't stress if the most precise dose is an updose to 15.93,  or 16.12, etc.  The stability from dose to dose is as important as the updose.

 

 

[Cheeky]

1 minute ago, Colonial said:

  Can I round the .83 to 9

 

 

 

If your talking about dropping in the future, As long as the drop is small enough percentage wise and you wait long enough in between,  it doesn't really matter if it's a bit different from drop to drop.  Each drop doesn't have to be exactly the same. But your getting ahead of yourself if that's what you mean.

 

And if it's too problematic to updose to exactly 16mg, you can go a tiny bit above or below.  Don't stress if the most precise dose is an updose to 15.93,  or 16.12, etc.  The stability from dose to dose is as important as the updose.

 

 

Okay that’s good to know thanks. I have so much aniexty at the moment I’m working over everything.

[Greatful]

@Cheeky 

17 minutes ago, Cheeky said:

Just feeling disheartened,

Please be kind and gentle with yourself. ♥️ You are taking care of yourself the best that you can.

What ever goes on in your home is between you and your hubby.  You do not have to tell them anything.  Give it a few days and see how you feel, see if this up dose help you, then maybe you can get together.  

 

 

 

 

[Cheeky]

Yeah , hopes so. I just hope this doesn’t ant my permanent state.

[Cheeky]

I don’t know what to do , really struggling this morning. I really hope I get a window so at least I can get my confidence back. Has anybody gone through this and stabilised, I feel I’m getting worse not better.I’m trying to keep busy to get my mind off things but it’s so hard .

[Rusty1]

2 hours ago, Cheeky said:

okay update,

I increased last night to 16mg. I normally put a 25mg tablet into 20ml of water but I changed it to 25mg pill to 25ml of water. I think that should be easier to use. My husband thinks the water titration method isn't good and I should weigh the tablets instead.My only concern is the Seroquel tablets are so small and some of it will crumble. I have the scale if I need to use it , not sure if I want to change anything at the moment though. what did you do @Colonial

Not agreeing you should switch to pills, do what is most comfortable for you, but if you did the way to get an exact dose even if the pill crumbles is to put it in a gel cap. 

[Cheeky]

30 minutes ago, Rusty1 said:

Not agreeing you should switch to pills, do what is most comfortable for you, but if you did the way to get an exact dose even if the pill crumbles is to put it in a gel cap. 

Okay Thankyou .

[Greatful]

@Cheeky   

1 hour ago, Cheeky said:

I just hope this doesn’t ant my permanent state

This is not your permanent state.  I know that you will get better.  I can finally look back to this spring and see that I have progressed.  So will you.  Please don't panic.  Remember to stay in the day, even the moment.  I have to tell myself when I am losing control....I am okay at this moment.

And you will find that you are.  You are breathing, your heart is pumping and you are okay.

1 hour ago, Cheeky said:

I’m trying to keep busy to get my mind off things but it’s so hard .

 

Sometimes I have to tell myself to slow down with what I am doing.  I think we can tend to get nervously busy trying to out run the feelings.  Slow your mind down (this is were meditation helps) slow your breathing down and calmly do whatever you are doing.  Maybe visualize doing it it in slow motion.

 

My heart is hurting for you❤️

[brassmonkey]

Starting to use a 25mg tablet dissolved in 25mL of water will help make your doses easier to measure. This will give you a 1:1 dilution ratio so 1mL of liquid will contain 1mg of active ingredient. Then you take the same dose volume as the desired dose strength. The dose volume can be controlled by the lines on the syringe and combining different syringes.

[Cheeky]

29 minutes ago, brassmonkey said:

Starting to use a 25mg tablet dissolved in 25mL of water will help make your doses easier to measure. This will give you a 1:1 dilution ratio so 1mL of liquid will contain 1mg of active ingredient. Then you take the same dose volume as the desired dose strength. The dose volume can be controlled by the lines on the syringe and combining different syringes.

Okay will do . 

[Cheeky]

2 hours ago, Greatful said:

@Cheeky   

This is not your permanent state.  I know that you will get better.  I can finally look back to this spring and see that I have progressed.  So will you.  Please don't panic.  Remember to stay in the day, even the moment.  I have to tell myself when I am losing control....I am okay at this moment.

And you will find that you are.  You are breathing, your heart is pumping and you are okay.

 

Sometimes I have to tell myself to slow down with what I am doing.  I think we can tend to get nervously busy trying to out run the feelings.  Slow your mind down (this is were meditation helps) slow your breathing down and calmly do whatever you are doing.  Maybe visualize doing it it in slow motion.

 

My heart is hurting for you❤️

I will try that. 

[Bee5]

8 hours ago, Cheeky said:

Have you done that yourself and did you update by 1mg

I reinstated from 0 mg to 3.125 mg, and I am still stabilising from that change, but I did start to feel relief after about 7 days. 

[Cheeky]

3 hours ago, Bee5 said:

I reinstated from 0 mg to 3.125 mg, and I am still stabilising from that change, but I did start to feel relief after about 7 days. 

Okay thanks, I’m just hanging on for relief

[Cheeky]

I just feel so depressed and feel like I just won’t get better. I hate being negative and I’m grateful for so much I life. I keep thinking is this my future, how much can someone insure. I had to tell my family , mother and sister how I’ve been and they were really worried about me but didn’t tell me to see a doctor which was great. They try to understand what’s happening but can’t understand  how there is nobody to help out there. I feel if I don’t get better, I will lose everything  I love. I don’t want my kids to see me like this, it’s not far on them.  This makes me want to go back on my full dose of Seroquel just to be back to normal. This is too hard. 

[Greatful]

@Cheeky The pain is very horrendous. The depression can be so dark that you don't see a way out.  Remember that is your unhealthy brain talking to you.  You will get better and you will heal.  I know you have you the ability and strength to weather this storm. ♥️ This a huge a wave it is not permanent  

Have you read kenA  thread or cocopuffz .  These stories can validate your pain, and give you hope that there is a way through it

 

 Hold on to your husband, lean on him, let him be there for you.  Let the  pain out.  Be vulnerable, let go. 🤗 

2 hours ago, Cheeky said:

I had to tell my family , mother and sister how I’ve been and they were really worried about me but didn’t tell me to see a doctor which was great.

I am glad that it went well with your family.

3 hours ago, Cheeky said:

They try to understand what’s happening but can’t understand  how there is nobody to help out there. I feel if I don’t get better,

Maybe this will be a eye opener for them to see the destruction that these meds can cause and the lack of knowledge in the medical field.

 

I wish I could be there to hold you and remind you that you are okay right now and that you will heal.🤗  

[Colonial]

  This makes me want to go back on my full dose of Seroquel just to be back to normal. This is too hard. 

 

That may  make you worse than better.

 

Once withdrawal issues become predominant going back to the original dose can have paradoxical effects.

This is why a small up dose of only 1mg or so was advised and not back up to 18.

 

Your brain has already made significant changes are reinstating at the original 50 mg dose generally will not be of assistance.  Smaller doses do more in the brain than we realize, the rate of brain interaction is not linear.  Each mg is not doing the same about of brain interaction.

 

It's not unusual to take a week or so to see if you start to feel better.

Hang in there and try to distract Yourself as best you can.

Edited August 4, 2021 by Colonial

[Rosetta]

Awww, I’m sorry you are feeling so bad.  Hang on.  It’s going to get better.  Can you distract somehow?  That always helped me.

Rosetta

[Cheeky]

4 hours ago, Rosetta said:

Awww, I’m sorry you are feeling so bad.  Hang on.  It’s going to get better.  Can you distract somehow?  That always helped me.

Rosetta

Rosetta do people get stable eventually.?

[Cheeky]

6 hours ago, Colonial said:

  This makes me want to go back on my full dose of Seroquel just to be back to normal. This is too hard. 

 

That may  make you worse than better.

 

Once withdrawal issues become predominant going back to the original dose can have paradoxical effects.

This is why a small up dose of only 1mg or so was advised and not back up to 18.

 

Your brain has already made significant changes are reinstating at the original 50 mg dose generally will not be of assistance.  Smaller doses do more in the brain than we realize, the rate of brain interaction is not linear.  Each mg is not doing the same about of brain interaction.

 

It's not unusual to take a week or so to see if you start to feel better.

Hang in there and try to distract Yourself as best you can.

Okay so just wait and see . I’m sorry for being so needy, this is life changing. 

[Colonial]

All of your questions are very intelligent and your replies show that your willing to do anything you can to get better, which is all anyone can ask. HOW any of us do that can take a decent bit of discussion and time.  All of us have been there and know how long and how many questions pop up.  I know how many questions I had that took Me awhile to get the answers wrapped around my head so I felt comfortable with My plan. And as usual, the answer to one question leads to a plethora of other possibilities and things we hadn't considered yet.  Eventually everything becomes easier to understand and we transition from the ones asking questions to the ones answering them. 🙂

[Cheeky]

Do people feel better when there on a lower dose . I was feeling amazing before this last drop, I had more energy and didn’t feel like such a zombie all the time. 

[Colonial]

That's a great question. 

 

As your were reading some drugs are stimulants and others are brakes which affect functions.

Then you have some drugs that act as one sort up to a certain dosage and differently at higher levels.

Sometimes side effects affect a person at one dose but another person not so much.

Then the issues of ply-drugging and how 2 meds synergistically combine for an unknown responses.

It is possible  to have different responses the lower you go in your taper.

New symptoms can occur anywhere alone the way.

Also, other health issues or other drug interactions complicate the process, so anything really is possible.

You have had some serious life stressors recently, so you brain may be trying to "shut down" for self protection and for the time it needs to heal. 

Symptoms can be a sign of healing.

Or the brains way of telling us we are throwing too many stressors at it at once and it needs to slow down.

 

[Cheeky]

9 hours ago, Greatful said:

@Cheeky The pain is very horrendous. The depression can be so dark that you don't see a way out.  Remember that is your unhealthy brain talking to you.  You will get better and you will heal.  I know you have you the ability and strength to weather this storm. ♥️ This a huge a wave it is not permanent  

Have you read kenA  thread or cocopuffz .  These stories can validate your pain, and give you hope that there is a way through it

 

 Hold on to your husband, lean on him, let him be there for you.  Let the  pain out.  Be vulnerable, let go. 🤗 

I am glad that it went well with your family.

Maybe this will be a eye opener for them to see the destruction that these meds can cause and the lack of knowledge in the medical field.

 

I wish I could be there to hold you and remind you that you are okay right now and that you will heal.🤗  

Thankyou, yesterday was rough and I slept half the day. I woke up and in the evening I felt better, so I went to my mums place. 
I think my major problem is the impact this will have on my family,  that’s what  really hurts. How are you family coping with this.

[Greatful]

@Cheeky We have 6 children 4 girls and 2 boys. 5 of my children are moved out and are married and # 6 is away at collage.   When he was home in July I told him about it. He took it in stride.  If he is worried he didn't say anything to me that he is.  He just told me he was here for me. my 2 youngest daughters are very supportive and I know will always be there for me

My twins ( the oldest) I really haven't said much to them about it.  They know I am have issues with medications and I am not doing well.  One is a Physic Nurse Practitioner, I try not to  say  much to her about it.  This is what she does for a living, and I don't really want to rock the boat in our relationship with my new feelings towards meds.  The ironic part is I kind of encouraged her to go into the field.  I didn't know then, what I know now.  My oldest son is supportive, he talks to my husband about it.  He stops by home here before he goes to  work several mornings a week to run with hubby.

I really don't talk to any of them to much right now.  It is hard when I don't have anything to say except how awful I feel. Like I told you, I feel like a failure, so I (mind read) and think they will also think that.      They are letting me heal and when I am ready they are waiting. 

 

39 minutes ago, Cheeky said:

I think my major problem is the impact this will have on my family,

I don't know how old your kids are.  I crashed a couple of times hard once when the kids were little and I hid it as much as I could,  they were so busy being kids, playing etc I don't think they really noticed to much. At least they haven't said anything about it.  I guess it all depends on the age of the kids if you can explain anything to them

 

51 minutes ago, Cheeky said:

I woke up and in the evening I felt better, so I went to my mums place. 

Oh good, I am glad you were feeling a little better.  Is your mom supporting you?  It would be very helpful for you to have them in your corner.

 

How is your day going for you so far?

[Cheeky]

2 hours ago, Greatful said:

feel like a failure, so I (mind read) and think they will also think that.   

You should never think that , you grown 6 children up to be happy people , why would you say such things, if your having a bad day today I totally understand is WD talking. I think you would’ve made a wonderful mother. If only we k is back then so many problems were caused by these drugs.