Jump to content

LadyBartonella: lyme and WD or all in one


LadyBartonella

Recommended Posts

 

2020-2021 I was having my life back in 85%. I got mild attacks before my period, when was hummid weather, when I was hungry, but every attack I could control with famotidine. I took it 6-7 times a month, later maybe 2-3 a month. I could eat everything and drink everything. Only if I had to much sugar my conditions were worsening.
During this 2 yrs I was microtappering floxetine and decreased 20 mg - 17% and trazadon (Trittico CR 75 mg) from 75 to 25 mg.

 

End of 2021 I was feeling little worse. I decided to pause tapering.

 

2022- January- I went for trip and got stomach flu (intestinal flu) from child who went with us. I had so intense burning and panic attack on the firs day, that I didn’t know what was going on. Later it changed in weakness and nausea. After that I was again fine.

 

21 February 2022 I broke my front teeth, so I needed to put implant. I got procedure and I received Augmentin (amoxicillin) for 3 days. After that I started slowly falling apart. At the beginning waking up earlier. Later new symptoms were showing up. First time I reacted to eating lunch (spaghetti Bolognese), celery juice, coffee and I new something is going on.It was a cascade of increasing symptoms. I tried various antihistamines, but reacted to them with wave of severe depression, burning, muscle tension. I tried famotidine again, but although it still helped, it also gave a lot of side effects (burning mind, skin just after taking (30 min) , insomnia, anxiety, agitation). I tried nystatine, but I reacted (before I was feeling better after taking few days). I tried NAC- but also I reacted.

 

SYMPTOMS IN FLARE ARE WAVING to extreme levels, but also disappear for few hours.


SYMPTOMS I had profuse night sweats (only when my brain was asleep), the sweat had a bad smell of ammonia. I had chills alternating with hot flashes, a feeling of low-grade fever, irritation of the labia, bladder irritation, stomach pain, mental fog, severe depression, suicidal, anxiety, nausea, sensitivity to sound,Insomnia, diarrhea, constipation, muscle tension, sound sensitivity, muscle tension,

 

After I read Nathan Nail book I started to take quercetin and resveratrol before each meal and Pekana detox kit Itires, Renelix, apo-hepat and with 2 weeks my symptoms started to lessen and 4 weeks later I was again stable. I stopped Pekana and Quercetin.

 

On 29-31.07.2022 I started to take Pekana detox and I took 7 drops from 3 bottles. I thought I can return to previous dosage but after that I noticed one symptom. Every morning I woke up with fear, which was just for short time, so I took drops next days. When this happened 3 times I decided to stop pekana, but flare was coming anyway. Like last time it had intensified for two weeks until it was completely fool blow. I take quercetin from 3 weeks, with resveratrol, houttuynia, luteolin, perilla seed extract. Still can’t get stable. I feel positive benefits from quercetin, resveratrol and ginger, other (luteolin, perilla seed extract)  I don’t know if work or not,


Symptoms are the same like in march. I tried to take Pekana just one drop, but it increase my symptoms and insomnia. I did’t know how to get out of this flare.

In worst waves I take famotidine. It helps but also I react to it next day or day after.

 

December 2022 symptoms lessened and this lasted till MARCH 2023.

 

MARCH 2023 I got several CRASH. I didn't change dosage since december 2021, so why this crush. Also it is always in MARCH- I have mold ilness, Bartonella and MCAS, so maybe one of them have some link to early spring.

 

I have no clue why I get psychiatric symptoms every second day. Can wave by so predictable? Today I am fine, I don't react to anything them next day I m in pure mental hell (not just depressed- its is mix of panic , suicidal and burning at their highest level).

 

Thank you for all tips.

 

BR,

 

 

 

 

 

 

2012 March- low anxiety, I started sertraline and I got adverse reaction. -.I got depression, ss thoughts and other bad symptoms 2012 May I was put on Clonozepam & paroxetine- it helped. I stopped clonozepam after 4 months with no issue. 2012- 2016 paroxetine 20 mg/ 30 mg

10/2016-02/2017 I tappered paroxetine and during this I was feeling wonderfull. 3 months without paroxetine and withdrawal syndrome appeared. I went back to paroxetine but I couldn't stabilise. CRASH
01/08/2016--Bridge to fluoxetine. fluoxetine 20 mg , triticco / trazadone 75 mg , clonozepam 0,5mg
September 2016 I was diagnosed with Lyme disease. I did test in two different laboratories- both positive 04.03.2017. from 20.11.2017 I started tapper from 0.5 to 0.125 mg- when I got some relief from Lyme treatment. I crashed on 01.02.2018, I slowed down tappering.
20/03/2019-  clonozepam 0,0062 mg,  fluoxetine 20 mg, trazadone 75 mg
28/06/2019- clonozepam 0,0023 mg, trazadone 75 mg, fluoxetine 20 mg
29/07/2019- clonozepam 0,0012 mg trazadone 75 mg, fluo-20 mg
13/08/2019 clonozepam 0,0006 mg I cut trazadone to 50 mg bcs of terrible fatique- big MISTAKE- 21.08.2019 updosed trazadone to 62 mg-still WD- 28.08.2019 oryginal dosage 75 mg
26/09/2019 OFF clonozepam, fluoxetine 20 mg, trazadone 75 mg
06/05/2023 OFF clonozepam, fluoxetine 17 mg, trazadone 25 mg HOLD from 20.11.2021
 
FROM WD of paroxetine 2017 I have not recovered. I was diagnosed with Lyme, Bartonella , mold, I have low dao (Diamine oxidase). I don't know why but I have some relief from resweratrol, ginger, famotidine (Pepcid)
 
Link to comment
  • Replies 75
  • Created
  • Last Reply

Top Posters In This Topic

  • LadyBartonella

    51

  • Shep

    10

  • anna7887

    3

  • street129

    3

Top Posters In This Topic

I started Neural Retraining System program that uses the principles of neuroplasticity to help reverse limbic system impairment in the brain, and to regulate a maladapted stress response involved with many chronic illnesses. I will keep you informed about results.

2012 March- low anxiety, I started sertraline and I got adverse reaction. -.I got depression, ss thoughts and other bad symptoms 2012 May I was put on Clonozepam & paroxetine- it helped. I stopped clonozepam after 4 months with no issue. 2012- 2016 paroxetine 20 mg/ 30 mg

10/2016-02/2017 I tappered paroxetine and during this I was feeling wonderfull. 3 months without paroxetine and withdrawal syndrome appeared. I went back to paroxetine but I couldn't stabilise. CRASH
01/08/2016--Bridge to fluoxetine. fluoxetine 20 mg , triticco / trazadone 75 mg , clonozepam 0,5mg
September 2016 I was diagnosed with Lyme disease. I did test in two different laboratories- both positive 04.03.2017. from 20.11.2017 I started tapper from 0.5 to 0.125 mg- when I got some relief from Lyme treatment. I crashed on 01.02.2018, I slowed down tappering.
20/03/2019-  clonozepam 0,0062 mg,  fluoxetine 20 mg, trazadone 75 mg
28/06/2019- clonozepam 0,0023 mg, trazadone 75 mg, fluoxetine 20 mg
29/07/2019- clonozepam 0,0012 mg trazadone 75 mg, fluo-20 mg
13/08/2019 clonozepam 0,0006 mg I cut trazadone to 50 mg bcs of terrible fatique- big MISTAKE- 21.08.2019 updosed trazadone to 62 mg-still WD- 28.08.2019 oryginal dosage 75 mg
26/09/2019 OFF clonozepam, fluoxetine 20 mg, trazadone 75 mg
06/05/2023 OFF clonozepam, fluoxetine 17 mg, trazadone 25 mg HOLD from 20.11.2021
 
FROM WD of paroxetine 2017 I have not recovered. I was diagnosed with Lyme, Bartonella , mold, I have low dao (Diamine oxidase). I don't know why but I have some relief from resweratrol, ginger, famotidine (Pepcid)
 
Link to comment
  • 4 weeks later...

I was doing better, with my protocol BELOW and limbic system retraining till I added BETONITE CLAY. I relapsed and again I have ss waves as a reaction to food or out of nowhere and insomnia.

 

PROTOCOL:

 

Drugs:

morning fluoxetine 17 mg

evening: trittico 25 mg, desloratidine 5mg

SUPPLEMENTS:

D3 - 7 drops, Vit C - 1000 mg, Complex B, Citric Magnesium (with B6), Omega 3, saccharomyces boulardii,

HERBS:

in the morning: resveratrol 1000 mg + houttunnia 1040 mg + andrographis 400 mg + Chinese skullcap 500 mg + turmeric+ berberine 500 mg

evening: resveratrol 1000 mg + houttunnia 520 mg + andrographis 400 mg + skullcap 500 + ashwagandha 500 mg

DISCONTINUED herbs: which I was taking before the flash:  Rhodiola rosea 500 mg (Rhodiola rosea), Cordyceps 600 mg, Sida Acuta ( I could not make it)

DETOX: activated carbon 1 x 260 mg, NAC- 500 mg, milk thistle, dandelion 750 mg, epson baths, sauna

2012 March- low anxiety, I started sertraline and I got adverse reaction. -.I got depression, ss thoughts and other bad symptoms 2012 May I was put on Clonozepam & paroxetine- it helped. I stopped clonozepam after 4 months with no issue. 2012- 2016 paroxetine 20 mg/ 30 mg

10/2016-02/2017 I tappered paroxetine and during this I was feeling wonderfull. 3 months without paroxetine and withdrawal syndrome appeared. I went back to paroxetine but I couldn't stabilise. CRASH
01/08/2016--Bridge to fluoxetine. fluoxetine 20 mg , triticco / trazadone 75 mg , clonozepam 0,5mg
September 2016 I was diagnosed with Lyme disease. I did test in two different laboratories- both positive 04.03.2017. from 20.11.2017 I started tapper from 0.5 to 0.125 mg- when I got some relief from Lyme treatment. I crashed on 01.02.2018, I slowed down tappering.
20/03/2019-  clonozepam 0,0062 mg,  fluoxetine 20 mg, trazadone 75 mg
28/06/2019- clonozepam 0,0023 mg, trazadone 75 mg, fluoxetine 20 mg
29/07/2019- clonozepam 0,0012 mg trazadone 75 mg, fluo-20 mg
13/08/2019 clonozepam 0,0006 mg I cut trazadone to 50 mg bcs of terrible fatique- big MISTAKE- 21.08.2019 updosed trazadone to 62 mg-still WD- 28.08.2019 oryginal dosage 75 mg
26/09/2019 OFF clonozepam, fluoxetine 20 mg, trazadone 75 mg
06/05/2023 OFF clonozepam, fluoxetine 17 mg, trazadone 25 mg HOLD from 20.11.2021
 
FROM WD of paroxetine 2017 I have not recovered. I was diagnosed with Lyme, Bartonella , mold, I have low dao (Diamine oxidase). I don't know why but I have some relief from resweratrol, ginger, famotidine (Pepcid)
 
Link to comment
  • 10 months later...

How are you doing LB? ... I hope you're feeling OK these days.

Olanzapine (5mg) started June 2023 - This is the only drug I'm currently taking, haven't used any other psych drugs.

After 4 weeks dropped to 2.5mg for 5 days then dropped to 1.25mg for 3 days, withdrawals commenced. I then took a single dose of 3.75mg. Then went to 2.5mg. since July 19

Hoping to hold at 2.5mg  and GODWILLING I will STABILIZE.

I can't tell WD symptoms from Long Covid symptoms. I think a bit of both, and I think my quick earlier taper has made the LC symptoms worse ... what to do.

Update: Sept 28 2023: -2.5%   Oct 5: -2.5%   Oct 12: -2.5%   Oct 19: -5%   Oct 29: -5%   Nov 10: -5%  2.0mg  Nov 20:  -5%  1.9mg  Nov 30:  -5%  1.8mg  Dec 12:  1.75mg   Dec 22: 1.70mg Dec 29: 1.65mg Jan 06/24: 1.60mg  Jan 14: 1.55mg Jan 25: 1.50mg   Feb 12: Updose to 1.55mg  Apr 25: 1.50mg  May 22: 1.45mg  Jun 5: 1.40mg  Jun 25: 1.35mg

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy