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meistersinger

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I had just received a part of the distribution to my mother's estate.  While most of that money went into the bank, and help pay the house payment, (my brother bought the house), I spent some money for an iPad.  When my brother found out, he got angry, and threatened me with insurance fraud.<br /><br />Last year, before our mother died, we had massive rainstorms here.  The ceiling collapsed in my bedroom.  She had gotten sick at this time.  While I was not executor of her estate, I did file a claim with her insurance company.Part of that claim money I took to replace items that got destroyed in the collapse, which the remainder of the family knew I did, via electronic banking.  The remainder I spent to get materials to repair the ceiling, leaving money in her checking account to pay the contractor.  Unfortunately, she died before the work began, and the funds ended up in probate.  However, I made the stupid mistake of retuning all the materials and spent the funds.<br /><br />After that little confrontation this morning, I took some of that money, bought the materials, and purchased a money order to pay the contractor for doing the work, once I can contact him.  However, I'm still feeling down about this, even though I have made restitution.  I,'m tempted to turn myself into the police and have my put my keister thrown in jail and stay there for the rest of my miserable life.  <br /><br />

 Why do I always do this stupid crap?  It has been a big issue with me all my adult life.  I've totally Fouled up my credit, have had 2 cars repo'ed, can't find work, and am afraid I will never get social security disability, because the rest of the family think I'm faking everything.  I even feel like a fake most of the time.  I know how to keep a ledger, but my finances are in such a disarray, it is not funny.  I've had a worthless feeling most of my life, and feel like I'm not happy unless I'm trying to self-destruct.<br /><br />There, I've admitted it.  Can someone call the police to have me arrested and thrown in jail?

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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OMG.. meister, I'm so sorry to hear what happened, and NO I'm not going to call the police, but then you know this.

 

You are not worthless.. only different. Asperger's is difficult and the fact your brother denies it is real in no way changes this. Your families' attitude will not influence the SSI claim. They are very dysfunctional, otherwise they would help with your IADLS (independent activities of daily living).

 

They may be more functional in the world than you are, but they do not have the heart you do. Meister.. you are a good person. Unfortunately your family is getting relief from their own distress by dumping on you. I think you will start to get help with your living situation when you qualify for SSI. At the very least, you will have your own income and not need to kow tow to their every dictate. I know it seems easy for me to say from the outside, but hang in there mon ami.

 

Keep sharing with us, K? Call the police indeed... I don't think soooo.

 

Schuyler, who is still shaking her head.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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I managed to get to church on Sunday. As usual, kept to myself. The 11:00am is the traditional Lutheran Service (formal liturgy and all, minus the smells and bells of the Roman and some of the Anglican services). The service is mostly the elderly, and is the oldest service in this congregation (same time for almost 150 years). One of the elderly gents that teach Sunday School, greeted me, and tried to make small talk. I didn't say very much (i was never one for small talk). The sermon was on Ii Corinthians 12. St. Paul wrote in weakness, God's work is perfected. The assistant pastor did an excellent job on this subject. (Why she doen't have her own congregation is beyond me.) I pray this gets me through this hell I'm currently suffering.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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Raised Ukrainian Orthodox. I know smells n bells. LOL!

 

I'm thinking about you, Meistersinger. I'm sorry I don't have anything more to add right now. Hang in there. I appreciate you and im sure alot of other people do also.

 

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Meistersinger,

 

If it's any consolation, my once-stellar credit has bit the dust. We lost a house a few years back (after putting savings of $300k into in). I used to balance my accounts to the penny on weekly basis (expense reports for work involved). I gave up several years ago. I feel like i have lost all control, can't do anything to improve my income (thankful I DO have some), and after essentially throwing several hundred thousand dollars away, it all seems moot. I just need to take care of the animals.

 

Having a tough morning. Sorry to be such a downer.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Had a session this afternoon with my therapist. He seems to think (and I agree), part of my issue is with my current living situation. He did ask if my brother and I have any meaningful conversation, which I responded no, since his mind is already made up. He did also ask what were my goals for the next 12 months, which I replied to be in my own apartment as well as a job, preferably in music. I'd even take a audio production job in radio, if I could find one. I did tell him I worked at the campus radio station, doing most of the classical music programming as an undergraduate, with my best shift being Saturday afternoons when the metropolitan opera broadcasts were in season, and later, the lyric opera of Chicago broadcasts. I also relayed the fact that the current press secretary for penndot, was the person responsible for teaching me production techniques when he was the station manager. I also said about the depression forum online, where there is a topic name 3 things that I did successfully today, where 1) I managed to get out of bed, 2) I did all the dishes in the sink, even though it was my brother that made most of them dirty, and 3) got to his office for therapy. He asked me if I have given up trying, and I came back, for the most part, as I seem to be stuck in this depression. I was going to same something further, but decided not to go there, which to him, means I still have some hope. He is saying we still need to work with you on your black and white thinking. He did apologize for the hospital for letting me go without therapy for so long. How much help he'll be remains to be seen, but he'll be forwarding his notes to me to OVR ASAP, as I have that appointment Thursday afternoon.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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  • Moderator Emeritus

Hi meister.. what do you think of him? The therapist is working with you, and seems open to your participation on the forum. Also a big plus he forwarded your info OVR.. mayhap he could have been better, but he really does not seem so bad IMHO.

 

Hmmm, black and white thinking, ya think? :) ~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Meistersinger,

 

I sure understand the negative effects of a bad living situation. Mine is different in that it's not generally confrontational as yours is, but complete lack of any speaking and very isolating. I hope you are able to get out soon. A change of venue can do a world of good.

 

Just a suggestion... when describing how you feel, especially to medical people, try to avoid using the term "depression". I've written about this elsewhere and caught myself just recently. Do whatever you can to identify the underlying feeling or causes contributing to your distress: trapped in living situation, frustrated about career/job opportunities, grieving/missing your mother, unappreciated, etc. It helps others understand us better and, for me, it helps to break it down rather than have the big D word hanging over my head. Also, if we diagnose ourselves, there will always be an MD/DO ready to prescribe another anti-D.

 

I don't mean this in any negative way toward you. I think you are a very special, talented and creative man and our world has extremely little understanding of your gifts or needs.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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  • Moderator Emeritus

Just a suggestion... when describing how you feel, especially to medical people, try to avoid using the term "depression". I've written about this elsewhere and caught myself just recently. Do whatever you can to identify the underlying feeling or causes contributing to your distress: trapped in living situation, frustrated about career/job opportunities, grieving/missing your mother, unappreciated, etc. It helps others understand us better and, for me, it helps to break it down rather than have the big D word hanging over my head. Also, if we diagnose ourselves, there will always be an MD/DO ready to prescribe another anti-D.

 

I don't mean this in any negative way toward you. I think you are a very special, talented and creative man and our world has extremely little understanding of your gifts or needs.

 

I agree with Barb here.. depression is a descriptive word that refers to a low mood, but the medical profession has turned this generic word into a DIAGNOSIS. You don't want to have a script thrown at you!

 

de·pres·sion

Noun:

Severe despondency and dejection, accompanied by feelings of hopelessness and inadequacy.

A condition of mental disturbance, typically with lack of energy and difficulty in maintaining concentration or interest in life.

~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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<br />Hi meister.. what do you think of him?  The therapist is working with you, and seems open to your participation on the forum.  Also a big plus he forwarded your info OVR.. mayhap he could have been better, but he really does not seem so bad IMHO.<br /><br />Hmmm, black and white thinking, ya think?  <img src='http://survivingantidepressants.org/public/style_emoticons/default/smile.gif' class='bbc_emoticon' alt=':)' /> ~S<br />

<br /><br /><br />

 

In my upbringing, yes. As far as my parents were concerned, you were 100% right, or 100% wrong. It was pretty much Boolean thinking. As far as my father was concerned, I was almost always wrong, even if I proved to him I was in the right, which would lead to the inevitable argument, which would lead to be threatened with violence or eviction.

 

Actually, when I referred to him on the depression forum, I was talking more of another board that I read, depressionforums.org. A lot of people over there believe in antidepressants. It takes a LOT for me to stay silent, although, if they want to get off meds, I'll refer them to the harm reduction guide from the Icarus project, which, correct me if I am wrong, is the plan that influences this board, and have them show it to their doctor.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment

<br />Meistersinger,<br /><br />I sure understand the negative effects of a bad living situation.  Mine is different in that it's not generally confrontational as yours is, but complete lack of any speaking and very isolating.  I hope you are able to get out soon.  A change of venue can do a world of good.<br /><br />Just a suggestion... when describing how you feel, especially to medical people, try to avoid using the term "depression".   I've written about this elsewhere and caught myself just recently.  Do whatever you can to identify the underlying feeling or causes contributing to your distress: trapped in living situation, frustrated about career/job opportunities, grieving/missing your mother, unappreciated, etc.  It helps others understand us better and, for me, it helps to break it down rather than have the big D word hanging over my head.  Also, if we diagnose ourselves, there will always be an MD/DO ready to prescribe another anti-D.  <br /><br />I don't mean this in any negative way toward you.  I think you are a very special, talented and creative man and our world has extremely little understanding of your gifts or needs.<br />

<br /><br /><br />

Thanks. The way this therapist talks, I think, he understands that my low mood is situational, with some medical (diabetes) thrown in. I know what happens when my glucose goes above 170: I get extremely irrational, then in a low mood as it falls. Also, it has always been my habit to avoid confrontation at any cost. It's probably why I have so many issues.

 

While I haven't said anything with this therapist, I have left the psychiatrist know that antidepressants and I do not agree with each other, especially after the reactions I had with Prozac, Effexor, amitryphilene, Celexa, Buspar and Viibryd. I need to show him the harm reduction guide, since I left him know I was trying to gradually get off Viibryd, rather than c/t when I had my reaction. He hasn't tried to dissuade me: I'm probably one of the few patients he has that will actually read the PI sheet, after long and bitter experience with other drugs. Even my GP knows now to discuss the options before putting me on a different drug, especially after all the bowel problems I had with statins. My cholesterol is doing much better with niacin therapy, thank you very much. Last bloodworm I had done, my GP called me with the results: he was quite pleased.

 

I think you have to actually get involved in participatory medicine. I don't know about other locations, but there is the patient's bill of rights. Knowing what I do now, I tell the doctors whenever I have an adverse reaction, my body is telling me this doesn't work. When they object, I come back, this is MY body telling me this: find another alternative, or lose this patient. All the doctors I have seen lately, are fairly young: My GP is a third year resident, and is a lot more willing to listen than a doctor that has been in practice for a while. As a matter of fact, I've had him whip out his iPod touch on many of an occasion to check the PDR app for drug interactions. Of course, there the adage, "Never get a librarian angry. We hold the keys to the access of knowledge."

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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"Never get a librarian angry" LOL!!

 

You have a great sense of dry humor!

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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<br />"Never get a librarian angry"  LOL!!<br /><br />You have a great sense of dry humor!<br />

<br /><br /><br />

It isn't even one of my quotes. When I worked at the Pentagon back in the mid-90's, there was a lot of discussion on the archives listserv on integrating archival systems with online public access library systems. I stole that quote from there. BTW, the only difference between a librarian and an archivist is how we approach and organize information. Archivists are concerned primarily with the chronological record of their subject, where the librarianis concerned with access via subject matter.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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Yes, you did reference that as an adage in original message. It's the manner in which you relate the material that I appreciate. ;)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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  • Moderator Emeritus

Yes, you did reference that as an adage in original message. It's the manner in which you relate the material that I appreciate. ;)

 

YES YES YES! I was in process of writing that you deserve credit because you remembered it for almost 20 years, AND the judicious use of humor in this reference. My goodness.. accept a compliment awready? :)

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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<br />

<br />Yes, you did reference that as an adage in original message.  It's the manner in which you relate the material that I appreciate. <img src='http://survivingantidepressants.org/public/style_emoticons/default/wink.gif' class='bbc_emoticon' alt=';)' /><br />

<br />YES YES YES!  I was in process of writing that you deserve credit because you remembered it for almost 20 years, AND the judicious use of humor in this reference.  My goodness.. accept a compliment awready?  <img src='http://survivingantidepressants.org/public/style_emoticons/default/smile.gif' class='bbc_emoticon' alt=':)' /><br />
<br /><br /><br />

One of the blessing's(?) of Asperger's Syndrome. But thanks anyhow. We Pennsylvania Dutch are quite modest about accepting complements.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment

For once, I got some halfway decent sleep, even though I did wake a couple of times due to stimming. Before anybody asks, here a definition:

 

http://life-with-aspergers.blogspot.com/2007/10/what-is-stimming-and-what-does-it-feel.html.

 

It is a common trait in the autism spectrum, though not limited to autism.

 

My form of stimming is knee bobbing and foot tapping. It sometimes takes the form of restless leg syndrome.

 

Don't try to get someone to stop it, as it is (at least for me), a form of nervous energy release. You can't begin to imagine the hell I went through when my parents would try to force me to stop, as it was an embarrassment to them, as a child.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment

Come next month, my father will be dead 26 years. Come November, my mother will be dead 1 year. Lately, I've been reminded of their memories and have had frequent crying spells about the pain of losing both, especially trying to get off antidepressants, which has not helped me in the least bit. Dad and I never really got along, but he died before I had a chance to reconcile, as I was living in Chicago at the time. He had developed liver cancer, and went downhill quickly.

 

Mom, on the other hand, suffered many a year from depression, due to diabetes, breast cancer, and arthritis. She died of an aneurysm last November in a nursing home. The ensuing fight that broke out between my brothers and I has pretty much destroyed all relationships in the family.

 

I took their deaths the hardest, and to this day get in an extremely low mood at this time of year. If I try to discuss it with any of my brothers, I get shut down with they're dead and gone, get over it! If I try to push it, I get labelled a crybaby and told to take my crazy medicines. No one is in this family is willing to acknowledge my problems.

 

I'm currently in therapy, but have yet to talk about this. I'm tired of being made into an arse by the rest of the family because of this. I'm tired of being in a low mood most of the year. I'm tired of taking the blame for everything that goes wrong. I'm tired of having to stifle my anger to keep everybody else happy. I'm just tired.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment

Meistersinger,

 

My heart is with you. I understand complicated families. The grief is compounded, I think, because there is no cohesion.

 

I've never heard of that but I've done the uncontrollable knee bobb since I was a kid. Fascinating. It's classified as a movement disorder by some. Sounds a bit like akathisia.

I was editing as you posted message below. The Wiki link to Stereotypic Movement Disorders (from Stimming page) is even more revealing.

 

Here's another try to your original link:

http://life-with-aspergers.blogspot.com/2007/10/what-is-stimming-and-what-does-it-feel.html?m=1

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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<br />Meistersinger,<br /><br />My heart is with you.  I understand complicated families.  The grief is compounded, I think, because there is no cohesion.  <br /><br />Your link to stimming didn't work for me.  I've never heard of that but I've done the uncontrollable knee bobb since I was a kid.<br />

<br /><br /><br />Try this link to Wikipedia

 

http://en.wikipedia.org/wiki/Stimming

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment
  • Moderator Emeritus

<br />Meistersinger,<br /><br />My heart is with you.  I understand complicated families.  The grief is compounded, I think, because there is no cohesion.  <br /><br />Your link to stimming didn't work for me.  I've never heard of that but I've done the uncontrollable knee bobb since I was a kid.<br />

<br /><br /><br />Try this link to Wikipedia

 

http://en.wikipedia.org/wiki/Stimming

 

Gosh, with your family history, and this symptom, you did not get diagnosed earlier than you were? I am sadly amazed. I will be most interested to see how you make out with OVR.. is the apt today? Or next Thursday. ~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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&lt;br /&gt;

&lt;br /&gt;

&amp;lt;br /&amp;gt;Meistersinger,&amp;lt;br /&amp;gt;&amp;lt;br /&amp;gt;My heart is with you.  I understand complicated families.  The grief is compounded, I think, because there is no cohesion.  &amp;lt;br /&amp;gt;&amp;lt;br /&amp;gt;Your link to stimming didn't work for me.  I've never heard of that but I've done the uncontrollable knee bobb since I was a kid.&amp;lt;br /&amp;gt;

&amp;lt;br /&amp;gt;&amp;lt;br /&amp;gt;&amp;lt;br /&amp;gt;Try this link to Wikipedia&lt;br /&gt;&lt;br /&gt;&lt;a href='http://en.wikipedia.org/wiki/Stimming' class='bbc_url' title='External link' rel='nofollow external'&gt;http://en.wikipedia.org/wiki/Stimming&lt;/a&gt;&lt;br /&gt;
&lt;br /&gt;Gosh, with your family history, and this symptom, you did not get diagnosed earlier than you were?  I am sadly amazed. I will be most interested to see how you make out with OVR.. is the apt today? Or next Thursday. ~S&lt;br /&gt;
&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;<br />Asperger's didn't make it into the DSM until 1994.  Actually, Herr Asperger's papers didn't get translated into English until 1980.  I never heard of it until my brother and sister in law made mention of it a couple of months ago, since they were seeing traits in me that they saw in their son and daughter.  Besides, I was in public school in the 60's and 70's.  Autism really wasn't defined in the DSM until 1980.  Also, my parents usually considered psychologists to be full of ****.  You don't want to know what they thought of speech therapists, let alone modern education trends.  Dad was always of the opinion the one room schoolhouse was good enough for him, modern educators were full of ****.  I tried telling him several times that was a different era, but if you know anything about the Pennsylvania Dutch, once they get it in their minds this is the way it is supposed to be, it's like talking to a brick wall.  It's the old story, I'm still right, even if proved otherwise. <br /><br />As for stimming, asperger' s don't all present in the same way.  Some flap hands and rock like others in the autism spectrum, some drum their fingers, some verbalize their thoughts to themselves ( I also do that a lot)' some tap their toes, some bob their knees.<br /><br />I just came back from OVR.  It was primarily all the intake paperwork that needed to be signed and filled out.  My caseworker gave me the forms to fill out from O-Net.  I told her I would prefer part time work, due to all the issues I had in the past with burnout and sensory overload.  I won't hear anything further from them until at least the beginning of August, while her secretary gathers all the records and transcribes them.  Besides, the caseworker is in the York office Monday through Thursday, and in Lancaster on Fridays.  We did discuss briefly what I wanted to do.  I would prefer music, but in this economy, that won't work.  I was looking to go back into it support, configuration management or repair on a part time basis, considering my issues with burnout after 2 years.  I'd even consider archives and records management., since that is rather low stress and in my area of training.

 

When she asked for a list of my medications, I gave her that list, and let her know I was trying to get off antidepressants, as I have suffered too many adverse effects while taking them. I did advise her my psychiatrist knows about this and referred her to the harm reduction guide put out by the icarus project. She wasn't exactly convinced, but if my psychiatrist knows about, there's nothing she can do.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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ms, I agree with Schuyler, a microtaper may be the way to go for you. You'd have to be very systematic about it.

 

You'll have to get the smaller 1mL oral syringes, which have ticks for .02mL or .01mL. Don't feel you can't use these if you need to decrease by those tiny amounts.

 

Start off with a .1mg decrease for 4 days, so you can see how you do. If no problem, try .2mg decreases, etc. If problems, make smaller decreases.

 

It's a good sign you're getting some sleep. Can you put a rocking chair out in the yard, or a swing, so you can use them at night when you can't sleep?

 

Also, some swear by ginger or ginger tea for nausea.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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Hi meistersinger, I also have Aspergers Syndrome. I was diagnosed when I was 21 after almost a year of assessments. It wasn't pciked up before because I am the more quiet type, so people just thought I was shy and I guess it's "mild" compared to some people. I suspect SSRI's may make AS worse - I find it harder to communicate with people because my head feel "empty" (less so now I'm on 35mg), and I've heard reports that they can make you even more sensitive to light, sound, touch, etc.

2003-2011: Paroxetine,Citalopram,Effexor; Aug/Sept 2011: Effexor to Mirtazapine; Oct 2011: C/T Mirtazapine back to Effexor; Nov/Dec 2011: Fast Tapered Effexor - w/d hell; Feb 2012: Reinstated Effexor 37.5mg; June 2012: Dropped to 35.6mg; Jan 2016: Propranolol 2.5mg per day for general anxiety; Feb 2016: Finasteride 0.25mg per week to slow hair loss; 18th May - 8th June 2019: Started Vyvanse 7.5mg and increased by 7.5mg weekly to 30mg (lowest “therapeutic” dose for adults).; 21st June 2019 - 12th July: Cross tapered from venlafaxine brand Rodomel to Efexor (1/4 > 1/2 > 3/4 weekly before ditching Rodomel); 13th July 2019: Cut Vyvanse dose to 15mg; 15th July 2019: Akathisia returned after years of being free; 16th July 2019: Went back up to Vyvanse 30mg

Supplements: Omega-3, Vitamin D, Zinc, Phosphatidylserine 

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<br />ms, I agree with Schuyler, a microtaper may be the way to go for you. You'd have to be very systematic about it. <br /><br />You'll have to get the smaller 1mL oral syringes, which have ticks for .02mL or .01mL. Don't feel you can't use these if you need to decrease by those tiny amounts.<br /><br />Start off with a .1mg decrease for 4 days, so you can see how you do. If no problem, try .2mg decreases, etc. If problems, make smaller decreases.<br /><br />It's a good sign you're getting some sleep. Can you put a rocking chair out in the yard, or a swing, so you can use them at night when you can't sleep?<br /><br />Also, some swear by ginger or ginger tea for nausea.<br />

<br /><br /><br />

 

It's my brother's house, and the answer is almost always NO. There is a glider, but that's on the front porch. This neighborhood isn't exactly the greatest, although its better than the inner city. I can take you into places in the Nation's First Capitol that you don't dare venture in the daytime.

 

As for sleep, i take my Viibryd liquid, and go to bed. I'm pretty much back to sleeping 2-3 hours, waking up at 2:00 in the morning, going online for a few hours, wandering around the house several times, heading to the bathroom, then going back to bed. I was like this before medications, so, some is beginning to normalize. Also, the hand stimming is coming back, although with me, I hear a symphony orchestra in my head (usually it sounds like Chicago or Philadelphia, sometimes Boston), and can't help but conduct. The anxiety attacks are still here. It usually lessens when my brother leaves for work. Lately, I been using a technique someone on depressionforums.org uses called flooding. Instead of panicking, you face it head on, and keep repeating the same thought until bored. In the music biz, it's called wood shedding, you keep practicing the same sequence you have trouble with until it becomes second nature.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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Your talk of symphony made me :) That's so special.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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I agree with Schuyler, a microtaper may be the way to go for you. You'd have to be very systematic about it. You'll have to get the smaller 1mL oral syringes, which have ticks for .02mL or .01mL. Don't feel you can't use these if you need to decrease by those tiny amounts.Start off with a .1mg decrease for 4 days, so you can see how you do. If no problem, try .2mg decreases, etc. If problems, make smaller decreases. It's a good sign you're getting some sleep. Can you put a rocking chair out in the yard, or a swing, so you can use them at night when you can't sleep? Also, some swear by ginger or ginger tea for nausea.

MEISTER.. FOCUS

 

What do you think about tapering in .1 ml/.2 ml increments. Will you ask for an oral syringe? You should not have problems with this way.

 

Barb.. I love music too. I LOVE Classical, and Baroque, Madrigals, a capella, Gregorian Chants ..... but we are talking taper chronicles in this post. Lynn ducks quickly, deflecting Barb's ire at being so roundly chastised. Classical music to the back of the bus... gosh, this woman knows no bounds!

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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meister.. I'm really tired tonight.. but do think about the taper?

 

And I do hope you can use the front porch? Really hot in PA. Supposed to be 95 or so here tomorrow, but we have missed the full brunt.. you guys are getting clobbered. Try to stay cool, temperature, and temper, K?

 

Sorry the summer has been so hard thereabouts. Hope you can get into your church to get some cool.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Must have missed that rule. Proceed.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Must have missed that rule. Proceed.

 

:)?

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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<br />meister.. I'm really tired tonight.. but do think about the taper?<br /><br />And I do hope you can use the front porch? Really hot in PA. Supposed to be 95 or so here tomorrow, but we have missed the full brunt.. you guys are getting clobbered. Try to stay cool, temperature, and temper, K?<br /><br />Sorry the summer has been so hard thereabouts. Hope you can get into your church to get some cool.<br />

<br /><br /><br />

Sorry, went off on a tangent. Of course, I don't dare lose my temper. As for the syringe, I'll see what I can find.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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<br />meister.. I'm really tired tonight.. but do think about the taper?<br /><br />And I do hope you can use the front porch? Really hot in PA. Supposed to be 95 or so here tomorrow, but we have missed the full brunt.. you guys are getting clobbered. Try to stay cool, temperature, and temper, K?<br /><br />Sorry the summer has been so hard thereabouts. Hope you can get into your church to get some cool.<br />

<br /><br /><br />

Sorry, went off on a tangent. Of course, I don't dare lose my temper. As for the syringe, I'll see what I can find.

 

Hi meister.. I don't mind if you go off on tangents.. just not this time, eh? I got 1 ml syringes from my pharmacist and I'm starting to use a larger syringe along with that size so I can take the smaller decrements off higher doses of my Lyrica. Using the larger syringe for the small cuts just did not work because it was too much of a guesstimate. Heh, I get this image of myself as 'the mad scientist', mixing up a concoction!

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Tried a little experiment. I took an unused u-100, 1cc insulin syringe, drew plain water to the 100 unit mark, and expelled into a beaker. It came to 1ml of water. I am making the assumption that 10 units= .1ml. I guess I can micro taper with insulin syringes, as long as they are 1cc and u-100 syringes.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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Tried a little experiment. I took an unused u-100, 1cc insulin syringe, drew plain water to the 100 unit mark, and expelled into a beaker. It came to 1ml of water. I am making the assumption that 10 units= .1ml. I guess I can micro taper with insulin syringes, as long as they are 1cc and u-100 syringes.

 

These should be okay, provided the bevel is large enough to draw up the suspension. I can't use a diabetic syringe for diazepam, but that is a thick solution. You might not get as much suspension in the needle? Hmmm. Put a question in for Alto?

 

.1 ml = 10 units, yes. If you decide to go with oral syringes, the pharmacist should give them to you on request.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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And I wonder why I am on psych medicine? I did the dishes this morning at 4 AM, right after my brother got up. As soon as he sees me leaving my room, he starts dropping the F-bombs left and right. I was tempted to tell him what he could do with himself, but I'd be out the door. He raised all hell because I didn't fold the dish towel and hang it up properly. He threw the teaspoon he used to stir his coffee on to the counter. Of course, I said nothing and washed it anyway. Why am I always everbody's scapegoat?

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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And I wonder why I am on psych medicine? I did the dishes this morning at 4 AM, right after my brother got up. As soon as he sees me leaving my room, he starts dropping the F-bombs left and right. I was tempted to tell him what he could do with himself, but I'd be out the door. He raised all hell because I didn't fold the dish towel and hang it up properly. He threw the teaspoon he used to stir his coffee on to the counter. Of course, I said nothing and washed it anyway. Why am I always everbody's scapegoat?

 

Have you shared the problem with your OVR counselor. You need to work on this in counseling, and put your name in for housing wherever there is a list.

 

Sadly, your brother learned to scapegoat you from your parents. They, and now he deals with his stress by blaming someone else, this being you. Really sorry you are getting dissed like you are, it's miserable to put it mildly.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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