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BfromNJ: mirtazapine taper


BfromNJ

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5 hours ago, ShiningLight said:

Hang in there. Not sure re urinary symptoms--I've certainly had some on gaba. In my opinion the rest of your log is classic gabapentin withdrawal. It's evil. There are many of us out there suffering similarly, if that helps at all. A whole battalion of us invisible and silent warriors. 

Thanks.  I am . lol.  feeling better today.  started my antibiotic so hopefully that will help the urinary issues, since there is bacteria present.  So frustrating!  now I will need to hold more on tapering till I am done with antibiotic and stable again.  Ive done just one gabapentin drop!  oh well.  better safe than sorry.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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I started with frequent urination and genital sensations a while back while taking Pregablin/Lyrica which I believe is similar to Gabapentin? It was actually my GP that suggested it could be that medication causing the urinary issues as every test was negative (I've had cameras and tests everywhere). 

 

After reducing down from 300 to 25mg I'm now getting good windows of less needing to urinate with less intense waves. Luckily I've not had the genital sensations for quite afew months. All my cultures were negative.

 

I don't know if that helps with me being on lyrica but I thought I'd chime in with them being similar. I know how bad it can be, my life has been on hold due to this symtom. 

April 2007 -  Seroxat 20mg

August 2008 - Cold Turkey

August 2009 - Cold Turkey

November 2009 - Reinstatement adverse reaction akathesia/suicidal/anxiety

March 2011 - Start taper

November 2012 - Crash badly at 1.25mg akathesia/suicidal/extreme anxiety

January 2013 - 5mg Seroxat, 300mg  Lyrica

April 2017 - Successfully get off Seroxat with taper followed by 4 month of withdrawal 

January 2018 - Start with constant urinary urge/pain/burning/genital sensations 2 week after anxiety/akathesia ends

January 2019 - Started reducing Lyrica as I suspect it's causing frequent urination, tinnitus, fatigue, brain fog and mental decline.

December 2019 - Off all pysch meds

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59 minutes ago, Boris said:

I started with frequent urination and genital sensations a while back while taking Pregablin/Lyrica which I believe is similar to Gabapentin? It was actually my GP that suggested it could be that medication causing the urinary issues as every test was negative (I've had cameras and tests everywhere). 

 

After reducing down from 300 to 25mg I'm now getting good windows of less needing to urinate with less intense waves. Luckily I've not had the genital sensations for quite afew months. All my cultures were negative.

 

I don't know if that helps with me being on lyrica but I thought I'd chime in with them being similar. I know how bad it can be, my life has been on hold due to this symtom. 

thank you Boris.  it does help to know i am not alone.  although I really hate hearing that you suffer as well.  Im glad you are doing better.   I have a ways to go, as i have just started to taper and had to hold due to needing some symptoms to settle, life changes and also this urinary issue.  I did have cultures.  one came back positive for ureaplasma bacteria, so this could be the cause of my problems or at least oontributiing to it.  its been better, thank you to god.  at least for today.  because as you very well know, it can change day to day.  But i am hopeful that it is merely the bacterial infection causing my grief and it will settle more. 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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8/7 daily log
 
6:00- up
-183 mg gabapentin and probiotic
-urinary frequency 
-tinnitus and some zaps (hard to explain this, weird sensation in throat), fullness in head, feeling off- lasted the day
6:45- breakfast
-100 mg doxycycline antibiotic
9:00- legs feel activated 
- internal tremor/shaking/pulsing in left foot, leg
12- tremors worsen now also in chest, head
12:30- 183 mg gabapentin and 18.75 mg luvox
1:30- slight headache- passed
2:00- slight genital symptoms
-feeling depressed,  hopeless
-legs feel activated
6:30-doxycycline 100 mg
9:00- gabapentin 183 mg
9:30- seroquel 25 mg
- very bad nights sleep, kept waking up through the night.  pulsing, pressure sensation in head

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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8/8 daily log-
 
6:00- up.  sleep was terrible last night
  kept waking up, thumping sensation in head
- 183 mg gabapentin and probiotic 
6:30- weird zap sensations in head and throat when swallowing, moving head- feels like sand paper rubbing
-dizzy, feel off
8:00- tinnitus and hyperaucosis - worsens 
11:20- tinnitus worsens. and thumping/pressure in head.  
12:30- 183 mg gabapentin and 18.75 mg luvox
2:00- fatigue.  depressed, feeling hopeless, down
5:30- dinner
7:00- 100 mg doxycycline 
9:00- 183 mg gabapentin
10:00- 25 mg seroquel
 
- tinnitus and senitivity to noises along with dizzyness and feeling off and disconnected, pressure in head were the worst symptoms for today.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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  • Mentor

By the way, be careful about the gabapentin facebook group. It used to be better than it is now. There used to be better mods and more posts from people doing slow titration. Recently there has been a culture change over there with the retirement of one of the mods. There are still people doing slow titration but they don't post as much.

 

I saw that you eat a lots of nuts and veggies. I had to be careful about eating high magnesium foods within 2 hours of gaba; I couldn't tolerate almonds at all when I was in a severe state. They would send me into a reaction. Almonds and spinach are high if I remember correctly.

Now: 100 mg Zoloft am, 50 mg Trazodone.  Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢

Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg,  9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg  7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total
🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg.

Jul 16 trazodone from 100 to 50 mg.

Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d.

Apr 24 Stopped klon!!! 🌞 Apr 4  Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019   0.25 klon March 11  Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use

Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d

Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months

July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day)

Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many.

*I speak from my experience. Nothing I say is medical advice. I'm not a doctor.

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1 hour ago, ShiningLight said:

By the way, be careful about the gabapentin facebook group. It used to be better than it is now. There used to be better mods and more posts from people doing slow titration. Recently there has been a culture change over there with the retirement of one of the mods. There are still people doing slow titration but they don't post as much.

 

I saw that you eat a lots of nuts and veggies. I had to be careful about eating high magnesium foods within 2 hours of gaba; I couldn't tolerate almonds at all when I was in a severe state. They would send me into a reaction. Almonds and spinach are high if I remember correctly.

you might be right on the magnesium rich foods.  as i cant tolerate magnesium supplements.  i will keep an eye on this. 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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 8/9 log

 

5:45- up.  slept good
- 183 mg gabapentin and probiotic
7:00- 100 mg doxycycline
- no/low tinnitus
8:00- genital symptoms- pass by noon
- internal tremor/pulsing/shaking  in foot , groin
9:30- head feels think, thumping sensation (I think may be antibiotic)
12- lunch
-weird throat/head sensation (zaps?)
12:30- 183 mg gabapentin and 18.75 mg luvox
1:00- tinnitus starts (none all morning)

- log not finished for day.  but most of day was good symptom wise.   tinnitus was acting up but not all day.  overall felt good today. 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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  • Mentor

👏 so glad you felt better today!!!

Now: 100 mg Zoloft am, 50 mg Trazodone.  Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢

Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg,  9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg  7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total
🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg.

Jul 16 trazodone from 100 to 50 mg.

Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d.

Apr 24 Stopped klon!!! 🌞 Apr 4  Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019   0.25 klon March 11  Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use

Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d

Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months

July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day)

Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many.

*I speak from my experience. Nothing I say is medical advice. I'm not a doctor.

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8/12 Daily log -

 

6- up.  slept good. 
- 183 mg gabapentin and probiotic
6:30- breakfast
- 100 mg doxycycline
-urinary frequency/urgency all morning (two prior days this was much better to non existent)
12:30 - lunch
- 183 mg gabapentin and 18.75 mg luvox
- weird throat head sensation (zaps?) - starts right after eating
- pressure in head.  slight tinnitus
2:30- urinary problems lesson some, but not much
- feeling a bit down, depressed
4:00- workout
5:30- internal tremor/pulsing/vibrating in left foot, leg, genitals and abdomen
6:00- dinner
- 100 mg doxycycline
8:30- 183 mg gabapentin
9:45 - 25 mg seroquel

-urinary frequency and urgency is very bad and persisted all day.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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  • Moderator Emeritus

BfromNJ,

 

Until you have a follow up test to check whether the Ureaplasma bacteria is eradicated we can’t know for sure, but it’s starting to look like the urinary and genital issues are withdrawal symptoms or adverse reactions, appearing in the windows and waves format we often talk about. 

PLEASE NOTE:  I am not a medical professional.  I can only provide information and make suggestions.

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2 hours ago, eymen23 said:

BfromNJ,

 

Until you have a follow up test to check whether the Ureaplasma bacteria is eradicated we can’t know for sure, but it’s starting to look like the urinary and genital issues are withdrawal symptoms or adverse reactions, appearing in the windows and waves format we often talk about. 

I was afraid of that.  I'm still on the antibiotic till friday, but I thought I'd be better by now. This is pretty debilitating if it is and by far the worst symptom yet.  I am uncomfortable all day long and in pain.  I dont know how to ride this one out if it is adverse/withdraw related.    It is really impacting my life, making me depressed  and anxious.  I'm tired of it all.   I haven't made a cut since 6/5 .  So disheartening.  I was planning on one next week once I've made my move to VA and the antibiotic is done.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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  • Moderator Emeritus
27 minutes ago, BfromNJ said:

This is pretty debilitating if it is and by far the worst symptom yet.  I am uncomfortable all day long and in pain.  I dont know how to ride this one out if it is adverse/withdraw related.    It is really impacting my life, making me depressed  and anxious.  I'm tired of it all.   

 

BfromNJ,

 

I’m sorry you are in this situation and are struggling so much, but please be mindful of your tendency to catastrophize. You have experienced some windows as of late and you are likely to experience more.

 

It was only Sunday you reported reduced symptoms and an overall good day, so please try to see the positive side of things. I know that is hard in withdrawal, but we have many members who have worked on this and found ways to accept symptoms. 

PLEASE NOTE:  I am not a medical professional.  I can only provide information and make suggestions.

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28 minutes ago, eymen23 said:

 

BfromNJ,

 

I’m sorry you are in this situation and are struggling so much, but please be mindful of your tendency to catastrophize. You have experienced some windows as of late and you are likely to experience more.

 

It was only Sunday you reported reduced symptoms and an overall good day, so please try to see the positive side of things. I know that is hard in withdrawal, but we have many members who have worked on this and found ways to accept symptoms. 

sorry if I sound as though I am catastrosizing.  I do not mean to.  I seems everytime I have a window, the next wave is even worse.    Its hard to do anything when you are in the bathroom literally all day long.  :(     What I am thinking about is this - I do not see in my research that frequent urination/urgency is a side effect of the gabapentin.  But it is listed pretty high up in the side effects of the luvox.  So this is just making me rethink my next course of action as far as tapering.    I reduced luvox already back in april, a big cut of 25%.  But then it looked like I was having adverse reaction from gabapentin so it was suggested I go for the gabapentin reduction and hold off on the luvox.  I have done one one gabapentin reduction on 6/5 of 8%.   And that is where I have remained, due to the antibiotics, etc.   I suppose I stay the course still with the gabapentin, even if it isn't the cause of my urinary woes, as I guess I cant know for sure. 

 

Of course, this could still be infection related.  Never thought I would be hopeful for an infection.  sigh.....

 

I am going to see if I can find on here and online any ways to reduce the urinary discomfort naturally, if that is even possible.  Besides dehydrating myself.  lol. 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment

@brassmonkey

@ChessieCat

 

or whomever else reads this.  

 

Hello. I have a question   Not on tapering seroquel but here goes.   I did know where to post this.   I take 25 mg.  I was cutting a 50 mg pill in half.  Some time ago my doctor did give me 25 mg to make things easier, but i took it one night and did not sleep well, so i thought it was that maybe active ingredient differnece or something.  So i went back to just taking half a 50.  I have a hard time cutting them, so i recently tried to take the 25 mg tablet again and actually did fine with it.  seemed to sleep even better.  Turns out its the same manufacturer.  

 

Im just wondering if this could give me problems ?  Is it considered making a change?  Im not sure how it works filler wise and active ingredient. Like if i was even getting an even amount of active ingredient by cutting or if the filler amounts/type vary from one dosage strength to another.   I did measure both pieces on my scale afterward just to be sure, and if the were off i would make sure to even it out with another extra little piece or take off it it was over.    I would think this is even better to just take the 25 mg since its consistant?  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Moderator Emeritus

Hi BfromNJ,

Are you on the immediate release form of Seroquel?

Extended release is labeled XR.

 

Tips for tapering off Seroquel(quetiapine)

Splitting an extended-release tablet appears possible (there are many reports on the Web of people doing this), but this compromises the extended-release quality, possibly resulting in immediate-release quetiapine. If you are used to the extended-release form, you may be sensitive to the "dosage dumping" resulting from immediate release of the drug.

(not to worry about this ^, if you have been using immediate release all along)

 

If you were halving the immediate release AND weighing you were okay.......I do see your point though, of the ease of a 25 mg tablet.

 

If you are on the immediate release and your new tablet is immediate release, same manufacturer, I don't you need to worry on active ingredient and filler changes at all. 

There might be a minimal adjustment, to deal with, yet, maybe none.

You may be good to go with the 25 mg tablet.  We usually encourage some form of crossover from old to new:

3/4 old + 1/4 new, hold for 3-7 days

1/2 old + 1/2 new, same hold

1/4 old + 3/4 new, same hold

Then on to the dose with your new tablet.

 

You've had some windows!  Yay!  And when is the upcoming move?

L, P, H, and G,

mmt

 

 

 

Edited by manymoretodays

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

No its not extended release.   The move is Saturday.  Yikes!

 

Edited by ChessieCat
removed quote

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Moderator Emeritus

That's good then.

If you have some of the old, you could do 1/4 of that(12.5 mg) and half of the new 25 mg(12.5 mg) for a couple of nights. 

And then just go to the new.

 

Practice your coping skills, as much as you can, self soothe, etc.  Moving is a biggie. 

I think you are going to be fine with it, BfromNJ.  From what you've said.......it's for the better.  More community and family to be around will be great! 

People need other people.  If your bio family works for you......that's a plus.

I'm optimistic.  Yes, Yikes.  Plenty to keep you busy I'm sure.

 

L, P, H, and G,

mmt

Edited by manymoretodays

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

This may seem like a dumb question, but here goes.  Can you get withdrawal after finishing a round of antibiotics?   

10 hours ago, manymoretodays said:

That's good then.

If you have some of the old, you could do 1/4 of that(12.5 mg) and half of the new 25 mg(12.5 mg) for a couple of nights. 

And then just go to the new.

 

Practice your coping skills, as much as you can, self soothe, etc.  Moving is a biggie. 

I think you are going to be fine with it, BfromNJ.  From what you've said.......it's for the better.  More community and family to be around will be great! 

People need other people.  If your bio family works for you......that's a plus.

I'm optimistic.  Yes, Yikes.  Plenty to keep you busy I'm sure.

 

L, P, H, and G,

mmt

I could try that.  I didnt think to do a crossover.  Its just that its such a pain to cut the 50 mg, probably even harder to quarter them.  I have just been taking the new 25s.     So you think that the new 25s (same manufacturer) has the same strength as cutting the 50s in half?   Just want to make sure i dont upset the apple cart.  lol.   im sure i will adjust.  i do feel more clear headed the next morning and day, not so dopey.  which is a plus.  But, it seems like my urinary issues is worse the last couple of days.  Yesterday, it was terrible in the am, then by late afternoon it was like i had no problems at all.  I was then thinking, hmm, maybe its the seroquel thats doing it and the new 25s are making it worse. but i would think if its pretty much the same dose wise, etc that could not be it.   

So this may be a dumb question, but here goes.  lol 

 

Is it possible to have withdrawal symptoms after finishing an antibiotic?   

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Moderator Emeritus
2 hours ago, BfromNJ said:

 

Is it possible to have withdrawal symptoms after finishing an antibiotic?   

 

Hi BfromNJ,

My best guess is, that it's not so much ABX WD, rather just another change to your whole system, and the subsequent CNS/ANS response to that.  A little change in the "apple cart" is all.

Here's what we've got collected, as far as ABX go, cautions, and other members experiences.

Cipro, Levaquin, Azithromycin(Z-pack)and other antibiotic

 

3 hours ago, BfromNJ said:

I have just been taking the new 25s.     So you think that the new 25s (same manufacturer) has the same strength as cutting the 50s in half? 

 

With your new 25 mg Seroquel, same manufacturer, yes, I do think the active ingredient is going to be 25 mg.  Of course, you might be feeling a bit of adjustment variance.  If you have already gone 7 days with the new.......if I were you, I'd just ride it out.  Otherwise, go ahead with some form of crossover(as described above).  That should limit any waveish-ness I think.

 

L, P, H, and G,

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

I've been very busy with the move and settling in.  So not here much.  I've holding my own I guess.  Urinary issues are still quite an annoyance and disruption to my day..  and painful.   I am stuck until I have my new insurance if I want to follow up with doctor.  

 

I have an interview today.  Which is great.   Fingers crossed!  

 

I am planning a gabapentin reduction tomorrow.  It will be 7%.  Figured I'd do a bit less than the 10% but more than 5.  😁

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment

So I actually decided on 10% for this reduction.  First dose this morning.  I will log it .

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment

Well this will be my 4th day of my gabapentin drop.  I am guilty of not doing my daily logs I must admit.  I have been settling in with my move and out of the routine of doing them.  I know they are important but sometimes I feel as though in doing them I focus on my symptoms , etc too much and become ocd about it.  I feel like then it just brings them too much front and center.  Any one have advice on this?  

 

 The only thing this far I have noticed is starting last night an increase in my tinnitus.  I still struggle with urinary and genital issues.  Most distressing is the discomfort of urinary urgency and frequency.  It's pretty constant now and oh so uncomfortable.  And pain in the area. I've also been very bloated and feel a constant pressure.  I cant go to doctor yet as my new insurance does not start until 9/1.  I feel like this may not be drug or withdraw related but we shall see. 

 

 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Mentor

Glad to hear your drop is going well! You could also think of the log as a way to keep your focus off the symptoms, by writing it down and getting it out of your head.

 

Good for you for going on an interview in the middle of all this!!! How did it go?

Now: 100 mg Zoloft am, 50 mg Trazodone.  Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢

Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg,  9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg  7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total
🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg.

Jul 16 trazodone from 100 to 50 mg.

Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d.

Apr 24 Stopped klon!!! 🌞 Apr 4  Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019   0.25 klon March 11  Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use

Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d

Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months

July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day)

Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many.

*I speak from my experience. Nothing I say is medical advice. I'm not a doctor.

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  • Moderator Emeritus
On 8/21/2019 at 6:23 AM, BfromNJ said:

So I actually decided on 10% for this reduction.  First dose this morning.  I will log it .

Hi BfromNJ,

Sounds okay to me.  Yes, log it, and then also get the dose in mg noted in your signature with the date.  Note the active ingredient mg, not the amount in mL(millileter) or pw(pill weight), as that helps alot too.  Account Settings > signature over on the left, where you can edit and update.

 

On the logs and that seeming to exacerbate symptoms.  Just try and do a few days every week, to post here altogether.  Like, for example, just post 3 days of the more brief ones, in the more abbreviated format:  Date, then time on the left, ALL medications and supplements on the right, with dosages.  Symptoms, WD symptoms,  and or adverse drug effects(and/or interactions) on the right as well.  Sleep.

 

Then keep a more positive calendar or day planner type thing going.  Even a good old block calendar with notes of changes, all changes.......or regular practices of non-drug coping.  I still do that, the block calendar and use my colorful pens to note this and that.  Makes it real easy to see progress as well as what really helps me live well now.  No reason to make this(WD) a negative experience at all.  Get creative, in other words.  Find that silver lining and all......  Blah, blah, blah.........B)

 

Are you adjusting okay to the move and all?  Started working or still looking for the right job?

 

And darn, sorry the urinary/genital symptoms persist.  Do post what you find and seems to be helpful in the way of non-drug coping for this.  That can be so helpful for others, with same symptoms.

 

Okay, happy Sunday.

L, P, H, and G,

mmt

Edited by manymoretodays

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment
10 hours ago, manymoretodays said:

Hi BfromNJ,

Sounds okay to me.  Yes, log it, and then also get the dose in mg noted in your signature with the date.  Note the active ingredient mg, not the amount in mL(millileter) or pw(pill weight), as that helps alot too.  Account Settings > signature over on the left, where you can edit and update.

 

On the logs and that seeming to exacerbate symptoms.  Just try and do a few days every week, to post here altogether.  Like, for example, just post 3 days of the more brief ones, in the more abbreviated format:  Date, then time on the left, ALL medications and supplements on the right, with dosages.  Symptoms, WD symptoms,  and or adverse drug effects(and/or interactions) on the right as well.  Sleep.

 

Then keep a more positive calendar or day planner type thing going.  Even a good old block calendar with notes of changes, all changes.......or regular practices of non-drug coping.  I still do that, the block calendar and use my colorful pens to note this and that.  Makes it real easy to see progress as well as what really helps me live well now.  No reason to make this(WD) a negative experience at all.  Get creative, in other words.  Find that silver lining and all......  Blah, blah, blah.........B)

 

Are you adjusting okay to the move and all?  Started working or still looking for the right job?

 

And darn, sorry the urinary/genital symptoms persist.  Do post what you find and seems to be helpful in the way of non-drug coping for this.  That can be so helpful for others, with same symptoms.

 

Okay, happy Sunday.

L, P, H, and G,

mmt

Hello.  I have to say that my worst, consistent symptom is the urinary frequency and urgency.   Havent found anything to help or ways to cope I'm afraid.   It's terrible to feel like having to go all the time.  I'm beginning to think since it seems to get better some as day wears on that maybe it's from my nighttime seroquel.  But who knows.  Insurance kicks in on 9/1 so I can see doctor again.  Otherwise I'm doing okay.  Dare I say so and jinx myself.   I'm settled in post move and that's fine, although tonight I miss my daughter and being there terrible.  It just hit me.  I suppose that will happen.  I do like it here though.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment

It really is a horrible symtom regardless of the cause. I found baths, hot water bottle, ice, stretching, anything to try change the sensation on that area helped a little.

 

The doctor will hopefully be quick ruling out other causes for you. The NHS here really messed me about. 

 

Mine seemed to be better in the morning and worse towards the evening.

April 2007 -  Seroxat 20mg

August 2008 - Cold Turkey

August 2009 - Cold Turkey

November 2009 - Reinstatement adverse reaction akathesia/suicidal/anxiety

March 2011 - Start taper

November 2012 - Crash badly at 1.25mg akathesia/suicidal/extreme anxiety

January 2013 - 5mg Seroxat, 300mg  Lyrica

April 2017 - Successfully get off Seroxat with taper followed by 4 month of withdrawal 

January 2018 - Start with constant urinary urge/pain/burning/genital sensations 2 week after anxiety/akathesia ends

January 2019 - Started reducing Lyrica as I suspect it's causing frequent urination, tinnitus, fatigue, brain fog and mental decline.

December 2019 - Off all pysch meds

Link to comment
5 hours ago, Boris said:

It really is a horrible symtom regardless of the cause. I found baths, hot water bottle, ice, stretching, anything to try change the sensation on that area helped a little.

 

The doctor will hopefully be quick ruling out other causes for you. The NHS here really messed me about. 

 

Mine seemed to be better in the morning and worse towards the evening.

Yes it is.  I dont really have the genital sensations anymore.  Just urinary frequency and the urge to go all the time.  Stinks running to bathroom all day.  🙄

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • 2 weeks later...

@manymoretodays

@ChessieCat

@brassmonkey

 

So I just picked up my refill of gabapentin.  It's a new manufacturer.   I really dont think I have much choice in this now since I am in a new state,  new pharmacy bc of new insurance.    

 

I'm on two weeks now of my 10% reduction.  And I must say doing ok!  I am afraid though that this may put a wrinkle in things.  

 

Any words of advice or tips?  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Moderator Emeritus

Hi BfromNJ,

Do you have enough of the old manufacturer gabapentin to do a careful cross- over?

Change in drug manufacturer or generic substituted for brand-name drug

 

CROSS OVER:

 

3/4 old + 1/4 new, 1/2 + 1/2, 1/4 old + 3/4 new  - take each of these combinations for 3 to 7 days

 

Then you go to all new.

This should minimize any bumps in the transition.

 

And patience too, as you've got the 3 doses/day to prepare and all.

 

Another option:

Check with your insurance, as far as what might be needed to stay on the old manufacturer formulation.

Often they tell you it is exactly the same as what you had.  Yet, many do report a difference, with changes in manufacturer.

Sometimes you can just do a form, with your doctors signature and approval, and stay on the old.

 

 

So glad that your 10% taper has gone really well too!  Yay!

L, P, H, and G,

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment
2 hours ago, manymoretodays said:

Hi BfromNJ,

Do you have enough of the old manufacturer gabapentin to do a careful cross- over?

Change in drug manufacturer or generic substituted for brand-name drug

 

CROSS OVER:

 

3/4 old + 1/4 new, 1/2 + 1/2, 1/4 old + 3/4 new  - take each of these combinations for 3 to 7 days

 

Then you go to all new.

This should minimize any bumps in the transition.

 

And patience too, as you've got the 3 doses/day to prepare and all.

 

Another option:

Check with your insurance, as far as what might be needed to stay on the old manufacturer formulation.

Often they tell you it is exactly the same as what you had.  Yet, many do report a difference, with changes in manufacturer.

Sometimes you can just do a form, with your doctors signature and approval, and stay on the old.

 

 

So glad that your 10% taper has gone really well too!  Yay!

L, P, H, and G,

mmt

I called the pharmacy and they only have the new manufacturer in stock.  What i didnt realize was how many days of my old i had left, because they told me i was due for a refill.  So i have 13 days of the old left.      Which is good.  My old doctor is in NJ, so getting a letter and all may be difficult.  also, Its medicaid, so i am limited to what pharmacy i can use, etc.  

 

Im confused on the crossover.  So what i do now is i take two capsules and empty them on to the scale.  then i remove what i dont need to get to the .214 i am taking.   how would i do 3/4 and 1/4.    so If I do .214, it would be .161 of the old and .054 of the new?  am i understanding that correctly?  guess then i would need two separate containers so i dont mix up my extra powder.  

 

 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
  • Moderator Emeritus
30 minutes ago, BfromNJ said:

Im confused on the crossover.  So what i do now is i take two capsules and empty them on to the scale.  then i remove what i dont need to get to the .214 i am taking.   how would i do 3/4 of old and 1/4 of the new?   i can see 1/2 and 1/2 being easier. 

 

and what if the weights of the new capsules are different?  do I still do the .214 I am taking now?  

 

Okay, yes.......I wasn't sure of your method.   You are weighing then.  I can see too, how 1/2 and 1/2 might be easier.  You might find you are able to do 1/4 and 3/4 too, once you get going on this.

 

You are going to need a new doctor at some point, won't you?  I don't know any doctors who do lifetime prescriptions.  Is your old doctor still prescribing for you across state lines?  I'm confused now.   And okay, medicaid may not allow for substitutions or other pharmacies.  I'm more familiar with medicare and how that all works.

 

You'll need to weigh your new capsules out again for sure.  Take the average weight,  and then go from there, to get your dose.  Just like you did with the old. 

You can't assume the same weight per dose strength with the new.

 

What does the .214 refer to?  mg in weight? We try and have members abbreviate that as mgpw.

What is your current dose/day.  We try and have members abbreviate that as well to mgai (for mg of active ingredient)

 

I'm going to have to back track, or perhaps you could share that information again here.

What dose strength capsule are you using now?  How much does that weigh(average)?

 

When you get the new, or if you have them........ let me know the same on them as above.

 

From there we can figure this all out.

 

Thanks BfromNJ,

mmt

 

 

 

 

 

 

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment
  • Mentor

I think you will do ok even if you do have to take the new stuff, just follow the mods. Sorry for the worry it is producing though! It is so nice to hear you feeling better!!!!!

Now: 100 mg Zoloft am, 50 mg Trazodone.  Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢

Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg,  9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg  7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total
🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg.

Jul 16 trazodone from 100 to 50 mg.

Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d.

Apr 24 Stopped klon!!! 🌞 Apr 4  Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019   0.25 klon March 11  Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use

Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d

Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months

July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day)

Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many.

*I speak from my experience. Nothing I say is medical advice. I'm not a doctor.

Link to comment

@BfromNJ : How long have u had tinnitus ?

mine has been constant from the day i stopped amitriptyline ( i  got Tinnitus from withdrawal ) 

 

had it continous for about 10 months now.

Sept 28 : nov 10 amitriptyline 10 mg

no history of drugs in past 

 

symptoms 

mild grainy vision , visual snow 

tinnitus 

dizziness

floters 

difficult in focusin 

muscle pain

Link to comment
On 9/5/2019 at 2:06 AM, shawny said:

@BfromNJ : How long have u had tinnitus ?

mine has been constant from the day i stopped amitriptyline ( i  got Tinnitus from withdrawal ) 

 

had it continous for about 10 months now.

Well I've had it a very long time, just never really noticable. A bit here and there.  Long before meds and like I said it was something i never thought of.  It became bothersome in January.  I cant say what was a factor, as i also had other things at the time that could have contributed to it- dental work for example.  

 

I dont have it as bad now and I have days where i cant even notice it.  Maybe i have habituated to it.  But it's better.  But some days it creeps in and is bothersome.  Like when the weather changes and its humid.  

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

Link to comment
On 9/3/2019 at 3:13 PM, manymoretodays said:

 

Okay, yes.......I wasn't sure of your method.   You are weighing then.  I can see too, how 1/2 and 1/2 might be easier.  You might find you are able to do 1/4 and 3/4 too, once you get going on this.

 

You are going to need a new doctor at some point, won't you?  I don't know any doctors who do lifetime prescriptions.  Is your old doctor still prescribing for you across state lines?  I'm confused now.   And okay, medicaid may not allow for substitutions or other pharmacies.  I'm more familiar with medicare and how that all works.

 

You'll need to weigh your new capsules out again for sure.  Take the average weight,  and then go from there, to get your dose.  Just like you did with the old. 

You can't assume the same weight per dose strength with the new.

 

What does the .214 refer to?  mg in weight? We try and have members abbreviate that as mgpw.

What is your current dose/day.  We try and have members abbreviate that as well to mgai (for mg of active ingredient)

 

I'm going to have to back track, or perhaps you could share that information again here.

What dose strength capsule are you using now?  How much does that weigh(average)?

 

When you get the new, or if you have them........ let me know the same on them as above.

 

From there we can figure this all out.

 

Thanks BfromNJ,

mmt

 

 

 

 

 

 

I am taking 164 mg three times a day.  For a total now of 494 mg.  

 

.214 pill weight is 164 mg.  

 

I would think the new capsules weight shouldn't matter since I've done two reductions thus far.  Its not like I'm starting from the beginning.  Am I wrong?  Dont I still want to stay at .214?  

 

I weighed two new capsules already and they were the same.  I just wanted to see.  So I think I'll be okay anyway.  But I have time to think about it bc I still have old left.   

 

On another note-  my urinary frequency and discomfort was a bit better but not it's back with a vengeance.   On a scale of 1-10 it's a 12.  I am so uncomfortable it's hard to even distract from it.    I was reading that this is a side effect of seroquel ( and really probably all the meds anyway).   But I was considering lower that a bit and holding on the gabapentin.   I feel like reducing the gabapentin may be having a paradoxil effect on the seroquel? Maybe?   I feel like I get some relief in the afternoon which seems to correlate to when the seroquel would be more out of my system.   

 

These urinary issues seemed to all come on after I started reducing gabapentin.   

 

I'm so damn miserable .     I do see a urogynocologist on 10/9, to rule out something other than meds.  Crazy we have to wait so long to see specialists.  

 

 

 

 

 9/2018- lexapro low dose few days.11/3/2018- zoloft 2 days

11/7/18  - 11/15/18 - Prozac 9 days, from 10 mg for week, to 20

11/16  inpatient put on Lexapro for a few days, Cymbalta, 2 days

11/24-12/8 - gabapentin 100 mg 3xs per day - a very fast taper

1/7 - tbuspar for  three days- blurry vision, jerky eye

1/17/19 - 2/15/19- mirtazapine 15 mg - started taper on 1/30 

2/20/19 gabapentin 600 mg. .  12/20-  taper finished

2/20/19 - seroquel 25 mg current - taken  10 pm

2/20/19- luvox (generic) 25 mg.  4/6/19  to 18.75 mg .held  . Started taper again  1/7/21- 15 mg, 2/7/21- 12.5 mg, 3/7/21 -10 mg, 4/1/21- 9 mg, 5/1/21- 8.1 mg, 5/27/21- updose to 10 mg,  6/21-  in patient updose to 50 mg,  6/25/21- reduce to 10 mg (current) .  9/5- split dose 5mg am/5 mg pm.  9/20- 4 mg am/5 mg pm . 

9/1/21-  took one dose of vistril 50 mg.   

9/1/21-accidental double dose of seroquel- 50 mg 

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