LotusRising: Buspar, Ativan

[Frogie]

We don't have a lot of snow on the ground now, but it is snowing today and it was not in the forecast. Not sticking to the street or sidewalks, but on the grass.

 

The holistic nutritionist sounds really interesting, and I think will tie in nicely with your nursing degree! Maybe I can look you up when you have your business going and get some information. I would love to learn about it.

 

I was in California when I was 4 (many, many years ago), but I do have a dear friend that lives about an hour from the ocean by the bay. Maybe someday I will visit. If you are ever in Colorado let me know. I'd love to meet you!!

[LotusRising]

I WILL let you know! Would love to meet you - you've been so helpful throughout this journey  

 

[Terry]

On 3/1/2023 at 1:36 PM, MedRN said:

I've been working on a distance diploma program for a few years, but really want to get it done by the fall. It would qualify me as a holistic nutritionist and I'm hoping to tie it in with my nursing degree in some kind of private practice.

That sounds wonderful!  Glad to hear you're able to pursue your studies.  You must be doing well with your taper to have the energy to do this.  Wishing you well!

[Frogie]

1 hour ago, MedRN said:

I WILL let you know! Would love to meet you - you've been so helpful throughout this journey  

 

I would love to meet you also! You have done so well in this journey, as hard as it has been😊

[LotusRising]

So, I'm really close to stepping off the drug. My full daytime dose is so low now, only 0.016, so my doses are teeny tiny.

 

I'm still dosing 4 times a day and have a predictable pattern of symptoms that ebb and flow with when I take my dose. Symptoms have improved significantly in the last 4-5months, but I still get them for a large part of the day and worry about the possibility of new and emerging symptoms. I'm having a lot of anxiety thinking about the next steps. When I stop, do I just stop all 4 doses at once, or should I be consolidating them all together. Thoughts?

[LotusRising]

@Frogie

 

Hi, not sure if you saw my last message, I forgot to tag you. 

 

Any thoughts on this? Did you just stop all your doses at once? Or do you think it would be easier for my body if I start eliminating doses one at a time?

[Frogie]

 

You could go as low as you think is possible, but I would not jump off all of them at once.

 

So you could take the less activating one and get down as low as you feel comfortable and then stop it. Then the next less activating one and so forth.

 

Does that make sense? 

 

 

Edited November 3, 2023 by LotusRising

[LotusRising]

@Frogie

 

Yes, absolutely makes sense. Thanks for getting back to me 😊

 

I‘m planning to start with my early morning dose. 
 

I’ll let you know how it goes. 

[Frogie]

 

I excited for you.

 

You have done a great job and weathered all the obstacles in the way.

 

You are on the home stretch!

 

 

Edited November 3, 2023 by LotusRising

[Frogie]

I just wanted to stop by and say hi and see how you were doing?

Edited November 3, 2023 by LotusRising

[LotusRising]

@Frogie

Hi! I totally missed this! I'm doing well  Struggling with a lot of fatigue, which is quite frustrating, but feeling mostly okay otherwise. I can't exercise either, but I've started yoga again and seem to be tolerating it. Symptoms are at an all time minimum - annoying mostly. Lots of physio and massage to get my muscles working properly again. I wonder when these symptoms will go completely ... hard to believe it's been almost two years with them. 

 

But the good stuff - spending a lot of time watching my son race. He absolutely fell in love with running and has had a track meet almost every weekend. It's so fun to watch. A couple kids triathlons coming up too, for both my kids, so looking forward to that. I'm almost finished my program! 1 course left and an exam in the fall and then will come the daunting part of starting a personal business. Yikes. We've got a big camping trip coming up in July too, so lots of positive things on the horizon. I am grateful every day that I'm here, but damn those old, scary days creep up when you least expect it. Mostly try to sit with it and then let it go.

 

How are you?!

[Carmie]

Hi @LotusRising, how are you doing? It’s nice to see all your encouraging posts everywhere 🧡

[LotusRising]

Hi @Carmie, thanks for stopping by.

 

I'm doing well, mostly!

 

Struggling with a lot of fatigue since April, a tiredness that's quite unlike anything I've ever felt before. But, I'm adapting. Now that the cortisol isn't rushing through me non-stop, I think my body is in recovery mode, so I'm trying to give it what it needs. I've just added in some light yoga and am working with physio and massage to get my muscles moving freely again. It's a work in progress  

 

A lot of emotional ups and downs - frustrated that I can't keep up with my husband and kids like I used to, angry that this happened to me and everyone, wanting to make a difference, so many things. When I first started this journey, I didn't believe I'd get to the place I'm at right now, so I'm of course just so grateful to be here ❤️

 

How are you doing?

[Carmie]

It’s good to hear that you’re coping mostly @LotusRising, it must be hard taking care of a child when you’re not well, they have so much energy. That’s good news to hear that you don’t have too many cortisol rushes now. It’s an awful feeling being really hyped up, as you can’t settle. 
 

I just saw above that you watch your son race, that must be fun. Oh, to only have the energy to do that yourself. I’ve had chronic fatigue syndrome for three decades, so I’m always beyond exhausted. I’ve learnt to live with it, but what I’m not coping with too well is struggling to breathe every day as my immune system attacks my lungs. I hope I’ll go into remission again some time, but I’ve been in a flare for over two years now. There’s always hope. 
 

You’re a nurse, I see. I’ve got a lovely friend, who is a nurse too. My husband lives in a care home and there are nurses there 24/7, they’re all so nice. I can’t go into the care home anymore, as it’s too risky with my lungs, but I talk to them on the phone, or email them. External carers take my husband out, and I join them here and there. I just have to be extremely careful not to catch any viruses. 
 

How did you enjoy studying nutrition? 

 

I hope that your energy picks up soon🧡
 

 

[Angus]

@LotusRising I’m fairly new on this site and have seen some of your encouraging comments/support on other’s threads. I’ve read your thread as well and it has given me hope for recovery/healing. I am a mom and I look at your experience with hope that I may also have similar progress and healing. 
Thank you for your positive example- and I trust that you will have continued healing.🌸

Angus

[LotusRising]

@Carmie yes, it's been challenging with the kids, but they've also been one of my biggest motivators. I kept a picture of them beside my bed when things were at their most challenging, and on the really tough days, I would look at that picture to remind myself to keep pushing - so grateful those days have passed. 

 

Yes, I LOVE watching my son race. We were just at a race yesterday and he placed 6th in our province! Quite a feat. My kids train in a triathlon club too, so it's really motivating to see them doing something they really enjoy. Their energy is endless! And on the drive home from the race, there was a beautiful chinook arch and I couldn't help but just be grateful for the little things. Just one of the little positive nuggets from withdrawal.

 

I'm sorry you're having such a hard time with fatigue. Three decades is a long time to live with CFS -  have you found things that help you to cope? What is happening with your lungs?

 

Are you able to talk to your husband, or facetime with him?

 

I love learning about holistic nutrition! It's a whole new take on health, working from a preventative perspective, rather than the reactionary approach we currently have in our healthcare system. It's been a passion of mine for as long as I can remember, so I'm hoping I'll be able to help people stay off medication. 

 

Starting to get little glimmers of energy, so I think things are very slowly improving.

 

 

[Carmie]

Dear @LotusRising, nice to see your son had fun at his race and did really well. I can’t read or write much today, my CFS brain fog is severe. 
 

I do see my husband, I just can’t go into the care home anymore,  as it’s too risky with my lungs. He’s got external carers, which I organised. The national disability insurance scheme pays for them (NDIS). They can pick me up too and we all go out and about. I do outdoor things with them, the beach, parks, anywhere in nature, outdoor cafes etc. I wear a mask in the car. When there are too many viruses around I have to be careful, and can’t get into cars, so the carers bring him here and I chat to my husband outdoors. 
 

Glad you’re getting a bit of energy back🧡

 

[Poppy745]

@LotusRising Just came across your post after searching for positive experiences. I am glad that you are starting to get signs of energy back! It is very comforting to read about you doing well. I hope your healing continues to grow at speed. I see that others are also greatful to hear your positive feedback. Thank you. 🙂

[Doctorsrcrap]

You are an inspiration! 

[LotusRising]

@Doctorsrcrap thank you! Happy to help!