BeyondGabapentinoids: Transitioning Members from Lyrica Survivors FB group

[Aussieblue]

21 hours ago, Frogie said:

Maybe try to do just as I have done and use the "quote" on the bottom of the response. This is what you will see, but you will be able to respond. Let me know if this works.

Hi Froggie I'm now on my laptop and the same issue is occurring.  Probably b/c I'm using safari.  Will try to comment on someone's post.  Thank you.

 

[OldDodgy]

My typing does always appear using an I pad !  
but ok on my phone-))

[Frogie]

That’s really strange. If it keeps up I’ll make a report and see if they can figure it out.

[Altostrata]

If you are from the Facebook group and have not yet started your own Introductions topic, please add the tag "gabapentinoids" (no quote marks) when you enter your topic title. This will help your friends from the Facebook group and others find you.

[SurvivingInjustice]

On 2/20/2022 at 5:21 PM, Altostrata said:

If you are from the Facebook group and have not yet started your own Introductions topic, please add the tag "gabapentinoids" (no quote marks) when you enter your topic title. This will help your friends from the Facebook group and others find you.

Hey do we go where the forums are and start a new topic or go to the chat group from Facebook about lyryca?   Thanks 

[ChessieCat]

1 minute ago, SurvivingInjustice said:

Hey do we go where the forums are and start a new topic or go to the chat group from Facebook about lyryca?   Thanks 

 

I've sent you a Friendly Warning 0 point which explains what to do.

[SurvivingInjustice]

Sorry for my mindset at the moment but being in chronic pain and withdrawals isn’t helping me to gain any knowledge of how to use this sight for what it’s intended use is. So bc I’ll be in withdrawals for a good while,I’ll go ahead and excuse myself bc I’m so intolerant of even myself atm much less not knowing how to work a website. Please forgive me as my brain is in such terrible shape and feels like it’s declining. I thank you all for always there for us,it’s just this is too extremely hard for me,aftr the first week of another drop in my dosage,I need support and I don’t say those words lightly. My kidneys or lower back feel as tho they’re on fire and won’t let up on top of all the other acute wd Iv had. But anyways I can’t see anymore for my eyes feeling with tears. This is quiet a bit of hell on earth!!      Prayers to you all. 
im sure I’ll do this wrong but oh well gotta try sumjn before I give up! 

[Altostrata]

You are in the Introductions forum. All you have to do is click on the link in the breadcrumb trail at the top of the topic page (Home > Support > Introductions and updates >....) and start a topic by clicking on the big blue Start New Topic button at the top right of the page.

[OldDodgy]

@SurvivingInjustice

I know you had valuable support with your pain relief in the other place. 

As you know I am in a lot of pain and my doc wants me back on ADs for it which I declined. 
I found entering Pain in the search bar quite helpful. We aren’t the only ones in trouble. ! There are some helpful posts in there. 
OD 

[MerryJayneFriday]

@SurvivingInjustice

Hey I just wanted to jump on and say you can message me anytime you want ill help you if I can figure it out. I'm still learning too but things are getting easier I think.   Hang in there we will get thru this!! And 

@OldDodgy. Thanks for the recommendation to put pain in the search bar I will try it. This is my first winter since 2010 I haven't had a lomg acting opioid on board and it's been a new experience in pain. But I haven't added any new Rx drugs and I will not!  

Hang in there you two XOXO 

MJF

[FionaM]

Hi @MerryJayneFriday and @oldDodgy

where is the forum to chat about tapering from L ? Sorry still a bit confused ! 
thanks

[SurvivingInjustice]

6 hours ago, MerryJayneFriday said:

@SurvivingInjustice

Hey I just wanted to jump on and say you can message me anytime you want ill help you if I can figure it out. I'm still learning too but things are getting easier I think.   Hang in there we will get thru this!! And 

@OldDodgy. Thanks for the recommendation to put pain in the search bar I will try it. This is my first winter since 2010 I haven't had a lomg acting opioid on board and it's been a new experience in pain. But I haven't added any new Rx drugs and I will not!  

Hang in there you two XOXO 

MJF

I’m just trying to figure out how to do my signature and detoxing info if I hadn’t already done it right bc I can tell.   And I thank you for the offer. It’s getting really hard to figure this out but I won’t give up. I have to take breaks or I’ll get frustrated like the other day which I don’t mean to. Thank you MJF and olddodgy you’ll are very appreciated! 

[Altostrata]

It's always frustrating to learn a new place in cyberspace. Breathe calmly, take breaks, eat the elephant one bite at a time. You'll get it.

[HopefulHedgehog]

Hi all, Xenia R from Facebook here. I'm glad we have a new support place after the Facebook group closed. I only joined it a few months ago and wasn't very active there, so you probably don't know me. Now I'm in need of support again, so I decided to join this forum. I'm still a bit confused to be honest. I created an introduction topic, and got redirected here. Hope you all are doing well!

[ChessieCat]

8 hours ago, HopefulHedgehog said:

I created an introduction topic, and got redirected here.

 

Frogie gave you the link to this topic so that you could find other FB members.

 

Your own Introduction topic click on this link is the place where you ask questions specific to your situation and journal your progress.  That will keep your history in one place and means you do not have to repeat your story.  I have tagged MerryJayneFriday in your Introduction topic asking her to assist you in that topic.

[ChessieCat]

If you would like your FB member name added to your drug signature and you are not able to do this, please PM me advising your FB name I I will do that for you.

 

To make it easier for members to find the Introduction topic of other members this morning I have tried to find FB members' Introduction topics and added "My Intro topic" links the drug signatures.  If I could see a FB member name I have also added that.  I have NOT changed any other information in the drug signature.

 

Please check that the information (ie the link goes to the correct topic and the FB name) I have added is correct.  If you are not able to fix this yourself, please send me a PM and I will do it for you.

 

If your Introduction topic does not have a "gabapentinoids" tag please PM me and I will add that.

 

This link will go straight to your own drug signature.  Remember to click Save.

 

Account Settings – Create or Edit a signature

[themartian1000]

Do we "join" the group just by replying here? Do we tell our name somehow? Thanks!

[ChessieCat]

1 minute ago, themartian1000 said:

Do we "join" the group just by replying here? Do we tell our name somehow? Thanks!

 

There is information in Post #1 of this topic and also more posts made by staff.  Please read them.

[themartian1000]

Got it - thanks!

[LizaB]

Is anyone having luck getting members from the old group see your posts?

 

I have not seen anyone else’s posts and only 2 people see mine. 

[OldDodgy]

@LizaB

 

There are not many active. I know about 6. 
 

I got to know new people by seeing if any new posts in introduction ls were relevant and with a day. 
 

Also I have two mods helping me get better. 
 

I don’t post as I used to because this site has much tighter rules. 
 

OD 

[MerryJayneFriday]

@LizaB

Hey I am still here lurking lol. But like my pal OD I do not post as much here. 

 

MJF

[Altostrata]

Please look for the tag "gabapentinoids" and post in others' topics to find your people.

[ChessieCat]

9 hours ago, LizaB said:

Is anyone having luck getting members from the old group see your posts?

 

I have not seen anyone else’s posts and only 2 people see mine. 

 

2 hours ago, Altostrata said:

Please look for the tag "gabapentinoids" and post in others' topics to find your people.

 

Link to tag search:

 

https://www.survivingantidepressants.org/tags/gabapentinoids/

[Quilter1011]

22 hours ago, LizaB said:

Is anyone having luck getting members from the old group see your posts?

 

I have not seen anyone else’s posts and only 2 people see mine. 

I only come on here if I get notifications. There just aren't many people here from the old group. Just kind of waiting for the new website or the FB group to start up again. 

[Aussieblue]

LizaB - I’m rarely active on here, remain a bit lost. Am also waiting for either the group to resume or the website. Manage to lose my way on the site - am blaming it on my denuded Lyrica brain!!!  Suppose I need to add age as well.  

[OldDodgy]

@Aussieblue

 

I can’t always blame pregabalin any more. 
 

Having coped Covid I now know what true brain fog is about. And as for the cheerful bunnies that said it’s just a “cold”’- I hate them. 
 

Even a good Australian Shiraz tastes like gargle-)) 

 

Hey ho 

OldDodgy 

[Aussieblue]

A dear friend with multiple comorbidities, living in USA contracted the virus & described it as no worse than a cold!!  Believe it must depend upon the sub variant. 
 

The day will come OD you shall wake clear of head with taste buds yearning and jumping for joy from the subtleties of Aussie vino. 
 

You’re an amazing person graced with inner fortitude and shall prevail. 
 

Kind thoughts, love & light. 

 

[OldDodgy]

@Aussieblue

 

I am glad your friend did well. 
Three weeks in I am still pretty weak. 
 

Bit alarmed by Swedish study showing Covid gives you 20x chance of a Pulmonary embolism in first six months. My doc unaware and didn’t recommend thinners for a while so had further pleurisy in the night. Bother 
 

This is hardly conducive to having another bash at diazepam withdrawal! 
 

I hope other LS group have more cheerful news !  
 

OldDodgy 

[Aussieblue]

OldDodgy, believe this is the time to hold and wait for a diagnosis.  To inflict withdrawal on one’s body whilst continuing to be symptomatic from the virus is too much of a challenge on an already overburdened immune system. Just my two cents worth. 
 

To quote a moderator from LS - “this is a marathon and not a sprint”.  Heal thyself first. 
 

You’re in my prayers. 
 

kindest regards. Aussieblue aka MicheleG

[mazlou76]

Hello I’m from fbook group and feel bit lost trying to navigate this site. Someone please say hi Lori Lee are you here?

[ChessieCat]

Hello mazlou and welcome to SA,

 

Thank you for creating your Introduction topic.  Please follow these instructions and create your drug signature:

 

Instructions:  Withdrawal History Signature

 

A moderator will respond to you in your Intro topic as soon as they can, and once approved then that post will be visible to all members.

 

I have added a link to your Intro topic in your drug signature.  Please click BELOW it and then start typing your drug history (this is different from the information you provided when you joined; that is only visible to staff members).  This link goes straight to your signature (please read the instructions above first):  Account Settings – Create or Edit a signature

 

 

Edited May 30, 2022 by ChessieCat

[MerryJayneFriday]

@mazlou76

Hey I'm here only on here I'm MerryJayneFriday lol.  Chessiecat has told you already how to get started and I'll be in and out. Hope you're doin well

MJF

[Lovetobefree]

On 5/30/2022 at 9:17 PM, mazlou76 said:

Hello I’m from fbook group and feel bit lost trying to navigate this site. Someone please say hi Lori Lee are you here?

Hi Mazlou, 

I'm from the fb group too, hope you're doing ok.  I have trouble navigating too.

 

[Lamalein]

Hello all,

 

I was also member in the FB group at the end of its time. I still take all the crap and not feeling very well. Hope to get off of all these drugs. Started with tapering of Quetiapine and Mirtazapin at the beginning of the year. 

 

Best wishes,

Sonja aka Lamalein here

[andy96gr]

Hello guys, Maybe my question will be unrelated but I'm desperate for some advice because I don't have where to go and feel stuck.I have been taking lyrica for almost 4 months now after lots of mistakes by tappering fast (docs recommendations) and an error I did lastly which since then Im in a terror .

I did the mistake by taking 3 doses of 94mg from 47 mg I should had taken, because did my water solution calculation wrong.So now Im in a difficult situation because i have thought of harming other people and me ,very high agitation chest pain that are massive and I feel Im loosing my mind since.

I just want your opinion if it would be best for mee to do now in oreder to reduce symptoms and achieve stability to increase the dose and stay there let's say 2*75 daily for some months  until  reach some level of stability and then start tappering slowly because now things are not good.@Altostrata(sorry alto I didn't want to tag you here just cant delete now your name )

 

So what would be the best thing to do in this situation?To increase ,and how fast to increase? Because I am lost and no where to go.