Mentor Catina7 Posted January 19 Mentor Share Posted January 19 Where are you now @Wardy4022? Are you still at home? I thought you said the crisis team came and was taking you to the hospital. Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Wardy4022 Posted January 19 Author Share Posted January 19 3 minutes ago, Catina7 said: Where are you now @Wardy4022? Are you still at home? I thought you said the crisis team came and was taking you to the hospital. I'm at home still. The crisis team came earlier today to 'support' me, they did an assessment thing and filled out some paperwork. They are waiting on a bed for me now which was requested yesterday by the phyciatrist, he just wanted them to come out as support but he requested the bed with the hospital ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Mentor Catina7 Posted January 19 Mentor Share Posted January 19 Does your psychiatrist acknowledge in any way that you've had an adverse reaction to the drug? What is his or her diagnosis for you? Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Mentor Catina7 Posted January 19 Mentor Share Posted January 19 Is there any sort of home health care you could receive? If you go to the hospital they will only add more drugs. 1 Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
David081294 Posted January 20 Share Posted January 20 On 1/19/2024 at 5:05 PM, Wardy4022 said: If he went I'd have to go into care somewhere. I don't know what to do at home, where anything is. I can't online shop for food. I couldn't do anything if someone broke in, I can't organise bills or anything. I just can't think at all. I wander around leaving all the doors open to outside. I've begged them not to keep me alive like this absolutely begged 💔 all this stuff wrong with me and I'd be ok if it was still me but I can't explain how it's not me anymore. My memory, my emotions, my everything, personality, humour, mind all what made me me isn't there anymore 😭💔 I don't recognise my name on letters and things. Ive no connection with it at all just suffering burning and absolute hollow. I ask myself questions in my head like who have you worked with, name your family but there's nothing there 😭😭😭 I even have to ask what day it is. This is 15 months later, and I still can't add up in my head, I have to try and count on my fingers This doesn't get better for me 😭😭 I understand all that, you know I have exactly what you have and more. So according to you a 2 years old also need a psych ward? Because he can't function? No obviously he needs someone to take care of him and so are you. So please get to a caring place of some sort I agree you need that if your husband doesn't want you, talk to your parents maybe move in with them. If he refuse to understand you are injuerd and need help, and not the kind of "help" they give in a psych ward, then move out but don't let your husband decide for you you need to go to a psych ward and get further damaged, thats your life and your body! Link to comment
Wardy4022 Posted January 20 Author Share Posted January 20 On 1/19/2024 at 3:30 PM, Catina7 said: Does your psychiatrist acknowledge in any way that you've had an adverse reaction to the drug? What is his or her diagnosis for you? Yes, everyone has said we need neurology involved as well. My doctor I always see has been chasing them up, crisis team, phyciatrist all say we need neurology onboard as well. No diagnosis of anything yet Crisis team said it's complex. Mental health team at doctors surgery said it's complex. The last doctor I saw said depression, my doctor was in holiday. I said no I was living my best life before and she said well you must have been good at hiding it, they are ridiculous. I'm 41 years old I know what depression is. My husband stepped in then and said she was wrong. He said something else is going on. He's very scared, he knows how much I'm suffering, he knows I'm not getting better at home, they just don't know what to do 😭 He's even said if this doesn't get better he will carry me to dignitas himself, he said he won't let me suffer like this. He can see it wouldn't be any kind of life. He's worked from home constantly all this time, barely gone out, he won't leave me alone. Him and my mum sorting it out between themselves. They're terrified they just don't know what the hell to do and think I would be better in any hospital. They just want someone to help 💔 they think I will get other tests as well, lots of assessments. They think someone will get to the bottom of it. He's not sleeping, he's getting really bad anxiety because of it. He's working full time from home, looking after me and my daughter. My mum and dad are in their 70's watching this. Everyone is just scared. They've seen what it did. They can see I'm not the same person at all with the same abilities. The second it happened I turned around and just said someone needs to take me to dignitas now something just happened in my brain, and I've never been the same since 💔💔💔 We're all suffering massively because of this 😭😭 and nobody knows what to do They see and hear the suffering every second 😭😭😭 ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Mentor Catina7 Posted January 20 Mentor Share Posted January 20 Hopefully a neurologist or some other brain specialist can run some tests and find out exactly what has happened. I just watched a 60 Minutes special about Dr. Ali Rezai, a neurosurgeon in Morgantown, West Virginia USA and how he has treated people with addiction and Parkinson's disease by doing treatments on their brains. The results have been remarkable! I wonder if there is anything he could do for you. Here is a link that discusses it: https://www.cbsnews.com/news/neurosurgeon-works-to-slow-alzheimers-progression-treat-drug-addiction-60-minutes-transcript/ Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Chompoo Posted January 20 Share Posted January 20 @Wardy4022 I went through the same thing. I only took ONE pill of an antidepressant before coming down with all sorts of symptoms. I went to see mutiple specialists in the hospitals, did all sorts of MRIs, CT scans, ultrasound scans, gastroscopes, stool sample, blood testing etc. They idenitified a tiny lesion in my brain but couldn't tell what it is. And couldn't offer me treatment. They also found some small abnormality in my liver, but not serious enough to be treated. The psychiatrists tried to gaslight me by insisting I am depressed, until my husband stepped in to say I am not depressed. The problem we have is not recognised by Western medication and this is why we can't get a diagnosis or treatment. I had to go to a holistic / functional doctor to get the right diagnosis. It turned out that I had invasive Candidiasis. Candida is a yeast that lives in all of us, mostly in the stomach. But it can overgrow and start invading our other organs. In less serious cases, in our bladder (urinary tract infection), sexual organs (vagina thrush) , foot (althelete's foot), or mouth (oral thrush). In serious cases like mine, Candida has entered my bloodstream, brain, ears, eyes etc. This gave me all the systems I still have. Candida is able to become invasive when our immunity is lowered by antibiotics (these kill off all bacteria in our stomach, including the good bacteria that keeps Candida in in check), costicosteroids, birth control pills, serious infections (e.g. Covid), poor nutrition, bad eating habits (lots of sugar and carbs, which feeds it) and surgery (many low immunity people catch it after a major operation). Invasive Candidiasis is not recognised by Western medication because doctors see candida as natural parts of our body and helps in some functions like digestion. There is no such thing as it overgrowing into other organs. At the most, they only acknowlegde this in elderly patients after surgery, who are the most likely to catch it under their watch. This is why even the stool samples hospitals collect do not test for yeast/candida. Forget about getting treated in a Western hospital. Western doctors are clueless. They will gaslight you and mess you up even further. You have wasted enough time not to mention money getting all the medical tests (I wasted a fortune). Time to give another method a try. I really recommend taking the Organic Acids Test I mentioned. It tests your urine to identify your health issues. Maybe your problem isn't invasive Candidiasis like me. But trying another method of diagnosis is still better than going back to the same old clueless doctor again and again. 1 Jan 29, 2023 - Took my one and only dose of Mirtazapine (15 mg). Developed an immediate adverse reaction with list of withdrawal-like symptoms. Link to comment
Wardy4022 Posted January 23 Author Share Posted January 23 I'm being sent to a unit at half 7 against my will I've told my parents I hate them and never to come near me not to come to my funeral I've had to tell my own daughter I'm going absolutely emotionless knowing she will never see me again and I can't even care I can't cry Nobody listened I was damaged my pleas my begging my desperate texts because I can't speak Nobody listened 7 tablets did this to me 💔 ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Wardy4022 Posted January 23 Author Share Posted January 23 I've got severe burning and nerve pain in my head I'm going to die in there ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
David081294 Posted January 23 Share Posted January 23 20 minutes ago, Wardy4022 said: I'm being sent to a unit at half 7 against my will I've told my parents I hate them and never to come near me not to come to my funeral I've had to tell my own daughter I'm going absolutely emotionless knowing she will never see me again and I can't even care I can't cry Nobody listened I was damaged my pleas my begging my desperate texts because I can't speak Nobody listened 7 tablets did this to me 💔 I'm ashamed of this human race really... I would just run away.. better to die on the streets then surrounded by doctors Link to comment
Mentor Catina7 Posted January 23 Mentor Share Posted January 23 @Wardy4022, I'm so very sorry. Maybe something good will come out of it. Maybe there will be a doctor in there that will understand what has happened to you. You will be in my heart as always. ❤️ 1 Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Moderator FireflyFyte Posted January 23 Moderator Share Posted January 23 32 minutes ago, Catina7 said: Maybe something good will come out of it. Maybe there will be a doctor in there that will understand what has happened to you. I agree, where possible, try to find good in the experience whether that is meeting people in similar situations, learning new therapy techniques, and having the opportunity to talk to new doctors who might have different points of view. 2 Pre- October 2022: Wellbutrin, Escitalopram, Citalopram, Sertraline, Adderall IR, Vyvanse, Propranolol, Buspar, Ativan, and Latuda Oct 13, 2022 - Oct 24, 2022 and Oct 31, 2022 - Present: Zyprexa (2.5 mg). Jan 14, 2023 -> Began transition to liquid suspension. Jan 29, 2023 = 2.375mg -> Feb 12, 2023 = 2.25mg -> Feb 27, 2023 = 2.14mg -> Mar 12, 2023 = 2.025mg -> Mar 27, 2023 = 1.93mg -> Apr 10, 2023 = 1.82mg -> Apr 23, 2023 = 1.74mg -> May 7, 2023 = 1.64mg -> May 21, 2023 = 1.56mg -> June 4, 2023 = 1.48mg -> June 19, 2023 = 1.4mg -> July 2, 2023 = 1.33mg -> July 16, 2023 = 1.26mg -> July 31, 2023 = 1.2mg -> Aug 13, 2023 = 1.14mg -> Aug 27, 2023 = 1.08mg -> Sep 13, 2023 = 1.02mg -> Jan 22, 2024 = 0.97mg -> Feb 4, 2024 = 0.92mg -> Feb 19, 2024 = 0.87mg -> Mar 3, 2024 = 0.83mg -> Mar 17, 2024 = 0.78mg -> Mar 31, 2024 = 0.74mg -> Apr 14, 2024 = 0.7mg -> Apr 28, 2024 = 0.66mg Oct 14, 2022 - Present: Prozac (40mg) upped from 20mg on Nov 1, 2022. Oct 31, 2022 - Present: Gabapentin (300mg 3x day) -> May 3, 2023 = 300mg 2x day -> Oct 1, 2023 = 570mg -> Oct 15, 2023 = 540mg -> Oct 29, 2023 = 510mg -> Nov 13, 2023 = 484mg -> Nov 27, 2023 = 460mg -> Dec 9, 2023 = 436mg -> Dec 24, 2023 = 414mg -> Jan 7, 2024 = 400mg Link to comment
Comecloser80 Posted January 23 Share Posted January 23 I am so sorry for all the things you are going through. May god bless you. ❤️🩹 Clonazepam 0.5 mg (30 tablets, maximum twice a week) Temazepam 10mg ( 40 to 45 tablets , upto 30 mg at once , sometimes together with Mirtazapine) 2022 Mirtazapine 15mg for 2 weeks and stopped CT Started Amitriptyline 20mg for 3 weeks and stopped CT Again,Mirtazapine again 7.5mg for 3 weeks and stopped again CT. 7th Jan 2023 - last dose of 7.5mg Mirtazapine. Currently on supplements: Mag glycinate 600mg Fish oil Probiotics Vit C and Vit D Link to comment
modelarz71 Posted January 23 Share Posted January 23 1 hour ago, David081294 said: Wstydzę się tej rasy ludzkiej, naprawdę.. Po prostu uciekłabym.. Lepiej umrzeć na ulicy, niż otoczona lekarzami Sorry to write here but I can't find Your personal thread but I was interested in your statements. Can you tell what drug has harmed you? Maybe I should surrender to psychiatrists and give my health to them again, I am on PAWS from escitalopram for 9 months now maybe sould take their advice and take rispolept, uetapine or sulpiride ? What do you think. But I hope you will say that it is wrong to give up to them 2022 escitalopram from July 25 2.5 mg, 5 mg, 10 mg August-December- 7.5 mg, 5 mg, (1 month) 2.5 mg - C/T WD 2023 Short reinstatement from WD date: escitalopram May 25-June 12 5 mg, 2.5 mg plus interrupted Reinstatement 24 07.23 0.5mg escitalopram, 18.08.23 0.22 escitalopram, 07.09. 0.28 Now 0.30 mg escitalopram Last year 6 months on escitalopram, I was very agitated, hypomaniacal and with little need for sleep. Since July 2023 reinstated and reduced from 0.50 mg to 0.30 mg Lexapro - difficulty sleeping and lack of sleep, eye pain and IBS. Anhedonia. November 2023 - 0mg Link to comment
Wardy4022 Posted January 23 Author Share Posted January 23 1 hour ago, Catina7 said: @Wardy4022, I'm so very sorry. Maybe something good will come out of it. Maybe there will be a doctor in there that will understand what has happened to you. You will be in my heart as always. ❤️ Cat I feel like such a freak even on here. They are watching TV and talking I can't 💔 I'm shuffling around in this state I can't feel anything just sat here but burning ringing and damaged. I can't feel my family at home I can't miss them I'm just pacing around I can't settle at all ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
David081294 Posted January 23 Share Posted January 23 47 minutes ago, modelarz71 said: Sorry to write here but I can't find Your personal thread but I was interested in your statements. Can you tell what drug has harmed you? Maybe I should surrender to psychiatrists and give my health to them again, I am on PAWS from escitalopram for 9 months now maybe sould take their advice and take rispolept, uetapine or sulpiride ? What do you think. But I hope you will say that it is wrong to give up to them If you want to destroy your brain then take the neurotoxic brain destroyer pills they give Link to comment
Mentor Catina7 Posted January 23 Mentor Share Posted January 23 39 minutes ago, Wardy4022 said: I feel like such a freak even on here You're not a freak at all. You are a beautiful worthy human being who has been harmed by a drug that was supposed to help you. Sending much love your way dear one. ❤️ 2 Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
sammahjih Posted January 24 Share Posted January 24 On 1/23/2024 at 8:34 PM, Wardy4022 said: Cat I feel like such a freak even on here. They are watching TV and talking I can't 💔 I'm shuffling around in this state I can't feel anything just sat here but burning ringing and damaged. I can't feel my family at home I can't miss them I'm just pacing around I can't settle at all Don’t beat yourself up over it. Try to let it wash over you. It’s not your fault. Link to comment
Wardy4022 Posted January 25 Author Share Posted January 25 Thanks everyone. I'm sorry I haven't replied individually. Thank you for everyone's kind words and support. Haven't been forced any meds... Yet. I said I don't want antiphycotics and the doctor seemed surprised and said why would I give you them so I said the phyciatrist I saw previously, not here, said and he said he doesn't know why he said that, he reeled off the off label use and that was that. He said obviously I haven't any structural damage as it would show up on the MRI but functional he doesn't know as he's not a neurologist. Was offered diazepam if I wanted it but I said no Waiting on neurology and I may be able to see them quicker through here Sorry I can't write much just wanted to thank you xxxxxx 1 ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
David081294 Posted January 25 Share Posted January 25 1 minute ago, Wardy4022 said: Thanks everyone. I'm sorry I haven't replied individually. Thank you for everyone's kind words and support. Haven't been forced any meds... Yet. I said I don't want antiphycotics and the doctor seemed surprised and said why would I give you them so I said the phyciatrist I saw previously, not here, said and he said he doesn't know why he said that, he reeled off the off label use and that was that. He said obviously I haven't any structural damage as it would show up on the MRI but functional he doesn't know as he's not a neurologist. Was offered diazepam if I wanted it but I said no Waiting on neurology and I may be able to see them quicker through here Sorry I can't write much just wanted to thank you xxxxxx It's good that there are good doctors there that you are able to talk to and they are listening, my bet is they will just get you out of there soon because even neurologist can't see this kind of damage, my heart is with you. Stay well S***y. Link to comment
Mentor Catina7 Posted January 25 Mentor Share Posted January 25 51 minutes ago, Wardy4022 said: Thanks everyone. I'm sorry I haven't replied individually. Thank you for everyone's kind words and support. Haven't been forced any meds... Yet. I said I don't want antiphycotics and the doctor seemed surprised and said why would I give you them so I said the phyciatrist I saw previously, not here, said and he said he doesn't know why he said that, he reeled off the off label use and that was that. He said obviously I haven't any structural damage as it would show up on the MRI but functional he doesn't know as he's not a neurologist. Was offered diazepam if I wanted it but I said no Waiting on neurology and I may be able to see them quicker through here Sorry I can't write much just wanted to thank you xxxxxx Sending so much love to you @Wardy4022! As I said before, maybe something good will come out of this. Please hold onto hope that a neurologist can at least give you some answers and direction. I look forward to hearing how you're doing when you get a chance. Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Comfyquilt Posted February 10 Share Posted February 10 Hi @Wardy4022 I wanted to see how you are? I think of your story often. I am so sorry this has happened to you ❤️🩹 Aug-Oct 2018 - 22 doses of Ativan (0.25 mg) stopped CT .Nov 2018 - Zoplicone 7.5 mg (stopped CT Dec 18) .Dec 2018 - 5mg Valium (tapered to 0.25 mg felt good so stayed on this dose for a long time) .Dec 2021 - Pregabalin one week CT .Jan 2022- Mirtazapine 3.75 mg, 2 weeks then 2 week taper. Updose Valium to 15 mg .June 2022 - 10mg Valium, currently tapering March 2022-Dec 2023 - Tapered 13mg over 19 months down to 1.5 mg. Nov 2023 made error with liquid and solid dose. Updosed by 60% by accident. Dec 2023 - 1.5 mg Valium Feb 2023- 4mg Valium, 400mg Gabapentin. 1.5 mg Mirtazapine (discontinued after short taper) Link to comment
Wardy4022 Posted February 10 Author Share Posted February 10 12 hours ago, Comfyquilt said: Hi @Wardy4022 I wanted to see how you are? I think of your story often. I am so sorry this has happened to you ❤️🩹 Hey, thank you for thinking of me and your kind message ❤️ I'm not good at all. I'm sorry I can't write much ❤️❤️ 1 ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Moderator Emeritus getofflex Posted February 10 Moderator Emeritus Share Posted February 10 @Wardy4022my thoughts and prayers are with you. Hang in there. Please do not private message me. Only tag me for urgent questions about tapering and reinstating - thank you. ***Please note this is not medical advice. Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one. Lexapro Started Apr 15 2010 - 10 mg; started taper August 2017, recent taper info: Apr 2 '20 0.18 mg; Jul 16 0.17 mg, Aug 23 0.16 mg, Oct 7 0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005, Jul 8, 0.00. Psych Drug Free as of July 8, 2022!! Woohoo!!! other meds: Levothyroxine 75 mg magnesium in small amounts at 4 AM, before bed suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg Paxil 2002 - 2010, switched to Lexapro 2010 Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly Link to comment
Wardy4022 Posted February 11 Author Share Posted February 11 17 hours ago, getofflex said: @Wardy4022my thoughts and prayers are with you. Hang in there. ❤️❤️ Thank you x ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Mentor Catina7 Posted February 11 Mentor Share Posted February 11 Thinking of you dear @Wardy4022 and sending you much love. How are things going? Write back if you're able to and feel up to it. Catina ❤️ Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Wardy4022 Posted February 11 Author Share Posted February 11 1 hour ago, Catina7 said: Thinking of you dear @Wardy4022 and sending you much love. How are things going? Write back if you're able to and feel up to it. Catina ❤️ I don't know what to do cat, my head the burning twisting clenching it's horrible I'm not sal anymore I can't explain my body the burning how uncomfortable it is the blank head but I'm not in it I don't even know how to explain in my head just a constant barrage of nonsense and monologue I've not one emotion nothing What did they do cat 💔💔💔💔 ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Wardy4022 Posted February 11 Author Share Posted February 11 16 months and it's just as bad as day 1 😭😭😭😭 this isn't going to go away ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Mentor Catina7 Posted February 11 Mentor Share Posted February 11 24 minutes ago, Wardy4022 said: 16 months and it's just as bad as day 1 😭😭😭😭 this isn't going to go away Now, now, now dear @Wardy4022.... we don't know that for sure. Were you able to meet with a neurologist? Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Kaylaq Posted February 11 Share Posted February 11 My heart goes out to you, so sorry for the suffering you are experiencing. Give yourself lots of self love, compassion, surrender to a higher power, it helps! you have so much support here! may you experience some relief soon!!! 😊😊 On Venlafaxine for 30 years, 150mg 2018 first tapered, over 2 months, horrible crashed, reinstated 3 months later February 2023, tapering again, every 4 weeks reduced by 50% 150mg down to 37:5mg June 2023, from 37.5, broke open capsule, started tapering by one bead at a time every 2 weeks August, 2023 stopped last bead. Nov, 2023, started Saint John Wort, 600mg, 3x a day = 1800mg - reduced 1 capsules 300mg on Feb 15, 2024 Supplements, magnesium bisglycinate, B complex, multivitamin, Omega 3 complex, Vitamin D3, digestive enzymes also, use L-Theanine, occasionally natural GABA, - stopped this in Jan 2024 For H.Pylori- Manuka Honey, 850mgo, Mastica Chios gum, Kefir, & probiotics Link to comment
Wardy4022 Posted February 11 Author Share Posted February 11 37 minutes ago, Catina7 said: Now, now, now dear @Wardy4022.... we don't know that for sure. Were you able to meet with a neurologist? Not yet, still waiting on neurology Phyciatrist says it's depression and all these symptoms are symptomatic. You couldn't make them up let alone symptomatically do it to yourself. Tried to put me on duloxetine ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Wardy4022 Posted February 11 Author Share Posted February 11 30 minutes ago, Kaylaq said: My heart goes out to you, so sorry for the suffering you are experiencing. Give yourself lots of self love, compassion, surrender to a higher power, it helps! you have so much support here! may you experience some relief soon!!! 😊😊 Thank you ❤️❤️❤️ ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
Mentor Catina7 Posted February 11 Mentor Share Posted February 11 49 minutes ago, Wardy4022 said: Not yet, still waiting on neurology Phyciatrist says it's depression and all these symptoms are symptomatic. You couldn't make them up let alone symptomatically do it to yourself. Tried to put me on duloxetine I'm glad you know better than to believe your psychiatrist's diagnosis and also to take more drugs, but I'm sorry you still do not receive validation from anyone beyond this site. Keep fighting for yourself and what you know to be true. Do you have any idea how long you will be hospitalized for? Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Comfyquilt Posted February 28 Share Posted February 28 @Wardy4022 how are you? I am hoping you are ok and still hanging in there. Many good thoughts to you and big hugs ❤️ Aug-Oct 2018 - 22 doses of Ativan (0.25 mg) stopped CT .Nov 2018 - Zoplicone 7.5 mg (stopped CT Dec 18) .Dec 2018 - 5mg Valium (tapered to 0.25 mg felt good so stayed on this dose for a long time) .Dec 2021 - Pregabalin one week CT .Jan 2022- Mirtazapine 3.75 mg, 2 weeks then 2 week taper. Updose Valium to 15 mg .June 2022 - 10mg Valium, currently tapering March 2022-Dec 2023 - Tapered 13mg over 19 months down to 1.5 mg. Nov 2023 made error with liquid and solid dose. Updosed by 60% by accident. Dec 2023 - 1.5 mg Valium Feb 2023- 4mg Valium, 400mg Gabapentin. 1.5 mg Mirtazapine (discontinued after short taper) Link to comment
Wardy4022 Posted February 29 Author Share Posted February 29 On 2/28/2024 at 3:00 AM, Comfyquilt said: @Wardy4022 how are you? I am hoping you are ok and still hanging in there. Many good thoughts to you and big hugs ❤️ Hey, thank you for thinking of me. Not good at all still the same. Trying to discharge myself from the hospital today xxx ? - April 22 (for 5yrs+) - citalopram 20mg day Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22 11th-18th october 22 - Amitriptyline 10mg daily - no longer take - adverse reaction Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take 28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take Nov 22 - omega 3 - 1x daily 8th dec 22 - magnesium 16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped Link to comment
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