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Wardy4022: amitriptyline severe reaction


Wardy4022

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On 2/29/2024 at 1:20 PM, Wardy4022 said:

Hey, thank you for thinking of me. 

 

Not good at all still the same. 

 

Trying to discharge myself from the hospital today xxx

What do you do in the hospital? Have they helped you in any way? 
 

what will you do back home? 
 

are you any better? I am now a few years in and I’m no better and I’m scared and don’t know what to do. Though I feel hopeful for a better future

Jan 2020-Jan 2021 Mirt 45mg CT by gp

venlafaxine Feb 21-March 21

sertraline around December 21-Jan 22

Citalopram can’t remember date

nortryptyline can’t remember dates 

amytryptyline can’t remember dates 

chlopromazine aug 22-sept 22

prozac aug 22-oct 22 diazepam - PRN 3 years then antibiotics for a severe infection in 2020-2021:

Doxycycline 3months minocycline azithromicyin then IV Ceftriaxone

 

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  • 2 weeks later...

Hi! @Wardy4022

 

were you able to get home from

Hospital? How are you doing? Thinking of you and hoping things are a little better ❤️

Aug-Oct 2018 - 22 doses of Ativan (0.25 mg) stopped CT .Nov 2018 - Zoplicone 7.5 mg (stopped CT Dec 18) .Dec 2018 - 5mg Valium (tapered to 0.25 mg felt good so stayed on this dose for a long time) .Dec 2021 - Pregabalin one week CT .Jan 2022- Mirtazapine 3.75 mg, 2 weeks then 2 week taper. Updose Valium to 15 mg .June 2022 - 10mg Valium, currently tapering 

March 2022-Dec 2023 - Tapered 13mg over 19 months down to 1.5 mg. Nov 2023 made error with liquid and solid dose. Updosed by 60% by accident. 

Dec 2023 - 1.5 mg Valium 

Feb 2023- 4mg Valium, 400mg  Gabapentin. 1.5 mg Mirtazapine

(discontinued after short taper) 

 

 

 

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  • 2 weeks later...

@Wardy4022

 

I was very impacted by your story. Let me know how you are.

2010 - 2017 20mg Lexapro
2017 - 2023 60mg Cymbalta
july 2023 90 mg Cymbalta

august - november 2023 - 150mg Pristiq  + 0,25 Rexulti + 0,25 xanax SOS
dezember 2023 -  january 2024 - 20mg Lexapro + 0,5 Rexulti + 0,25 xanax SOS

february 2024 - 20 mg Lexapro + 50 mg Luvox + 0,25 xanax 3 times a day

march 2024 - 600mg Lithium + 25 mg Amitriptyline  + 25mg Luvox

03/15/2024 - 600mg Lithium + 25 mg Amitriptyline + 12,5mg  Luvox

03/25/2024 - 600mg Lithium + 12,5 mg Amitriptyline + 12,5 mg Luvox 

04/03/2024 -  600 mg Lithium + 12,5 mg amitriptyline + 0 Luvox

04/09/2024 - 600 mg Lithium + 10 mg amitriptyline + 0 Luvox

04/12/2024 - Onset of withdrawal symptoms: anxiety, dread upon waking, depression. I will try to reduce Amitriptyline to 8.33 mg only after stabilizing at this dose.

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31 minutes ago, Warpman said:

@Wardy4022

 

I was very impacted by your story. Let me know how you are.

Hi, thank you ❤️

 

I'm not good

 

Back home been discharged over the phone today.

 

They were glad to get rid of me as every single time I saw them I've said how barbaric they are, how it's against every human right I had me being kept alive in this disgusting state.

 

How disgusting the poison is they dish out, how this is nothing short of human torture and murder. They can't blame mine on a pre existing condition because I took it for pain.

 

To be fair to them they did stop pushing their drugs eventually and none of them want me to die. 

 

The occupational therapists have been in tears many times with me pleading to die and having no emotions and the disgusting state I'm in, so have the nurses. 

 

In the end they diagnosed me with 'dissociation'

 

They have offered me at home care and occupational therapy.

 

In no uncertain terms have I told them to f off. I do not want help with laundry and making food when I'm not even human by any stretch. I can't live with how disabled I am. 

 

This is not ok. None of this is ok. I'm 42 years old. There is absolutely no me left to be able to deal with this 😭

 

Time and time again I've slurred to them would you want to live like this and they look at the floor.

 

Thank you for asking about me ❤️ I'm sorry I haven't been on to update I'm so over this mess. First contact with assisted dying in Switzerland has been made although I will more than likely not be accepting for this.

 

Still as ever waiting on a neurology appointment.

 

I know that is triggered for some to read and I'm sorry, but that's where I am and it's part of my story and looks like it will be the end of it too 😭 xxxx

 

 

? - April 22 (for 5yrs+) - citalopram 20mg day

Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22

11th-18th october 22 - Amitriptyline  10mg daily - no longer take - adverse reaction 

Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take

28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take 

Nov 22 - omega 3 - 1x daily

8th dec 22 - magnesium 

16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped 

 

 

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On 3/14/2024 at 4:52 AM, Comfyquilt said:

Hi! @Wardy4022

 

were you able to get home from

Hospital? How are you doing? Thinking of you and hoping things are a little better ❤️

 Thank you C xxx

? - April 22 (for 5yrs+) - citalopram 20mg day

Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22

11th-18th october 22 - Amitriptyline  10mg daily - no longer take - adverse reaction 

Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take

28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take 

Nov 22 - omega 3 - 1x daily

8th dec 22 - magnesium 

16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped 

 

 

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They were good people in there.

 

The other patients used to zip my coat up for me, put my hood up when I was sat outside and it was raining, put my dressing gown on and take it off, make me roll ups, sort my tobacco tin out, get my cutlery when I was slumped over at the table, get me hot chocolate.

 

One even used to just sit and hold my hand for hours when I was slumped on the settee not moving unable to speak staring at the floor, he'd just sit there without speaking 😭😭😭

 

They were good people that I couldn't like, love or make bonds with or laugh and have conversation with because of what's been done to me and some of them would have been my best friends 😭😭😭😭😭 

 

I have never known cruelty like this in my life 😭 not ever 

? - April 22 (for 5yrs+) - citalopram 20mg day

Reduced as per dr felt fine 6 months until taking the amitriptyline in Oct 22

11th-18th october 22 - Amitriptyline  10mg daily - no longer take - adverse reaction 

Oct/ beginning Nov 22 - propanolol 40mg 3x daily- no longer take

28th Oct - 4th Dec 22 - diazepam 2mg - take 1 as required not every day- no longer take 

Nov 22 - omega 3 - 1x daily

8th dec 22 - magnesium 

16th dec 22 - reinstated amitriptyline for a few days made me feel worse so stopped 

 

 

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  • 4 weeks later...

By the looks of most threads, people do not seem to recover at all. I'm throwing in the towel.

April 2017 (court-ordered by the age of 16) to mid 2019Risperdal ~2-4mg (can't remember dosage), fast taper by 2019. Persistent anhedonia.

 

Mid 2021 to May 2023 (age of 21-23) — Fluoxetine (Prozac) starting by 20mg, fast taper through oral solution by 20% decreases until May 2023. By late 2023, possible WD kicking in with sleep disturbances, averaging 5-6 hours of highly interrupted sleep with extreme fatigue along with skin/body pain and extreme brain fog (never had none of these, thanks pharma), along with worsened anhedonia (thanks again).

 

By the beginning of 2024, I feel constant tingling on my feet (and, sometimes, up to the knee from behind), possible neuropathy(?) worsening by night. Sleep quality decreased, taking more hours just to fall asleep. NO WINDOWS OR WAVES, but WORSENING of SYMPTOMS through the months (suspected brain damage).

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6 hours ago, DisplayName3332024 said:

By the looks of most threads, people do not seem to recover at all. I'm throwing in the towel.

Typically when people get better they don’t post here so you just see the worst of the worst.

I’ve made quite some progress. Still much to go but definitely hopefull.

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  • Moderator
On 4/20/2024 at 10:33 AM, sammahjih said:

Typically when people get better they don’t post here so you just see the worst of the worst.

 

This is correct. For the majority of people, when they recover, they return to their life and don't visit this site any longer.

 

@DisplayName3332024, would encourage you to share on your own thread if you are experiencing concerns.

 

Pre- October 2022: Wellbutrin, Escitalopram, CitalopramSertraline, Adderall IR, Vyvanse, Propranolol, Buspar, Ativan, and Latuda

Oct 13, 2022 - Oct 24, 2022 and Oct 31, 2022 - Present: Zyprexa (2.5 mg). Jan 14, 2023 -> Began transition to liquid suspension. Jan 29, 2023 = 2.375mg -> Feb 12, 2023 = 2.25mg -> Feb 27, 2023 = 2.14mg -> Mar 12, 2023 = 2.025mg -> Mar 27, 2023 = 1.93mg -> Apr 10, 2023 = 1.82mg -> Apr 23, 2023 = 1.74mg -> May 7, 2023 = 1.64mg -> May 21, 2023 = 1.56mg -> June 4, 2023 = 1.48mg -> June 19, 2023 = 1.4mg -> July 2, 2023 = 1.33mg -> July 16, 2023 = 1.26mg -> July 31, 2023 = 1.2mg -> Aug 13, 2023 = 1.14mg -> Aug 27, 2023 = 1.08mg -> Sep 13, 2023 = 1.02mg -> Jan 22, 2024 = 0.97mg -> Feb 4, 2024 = 0.92mg -> Feb 19, 2024 = 0.87mg -> Mar 3, 2024 = 0.83mg -> Mar 17, 2024 = 0.78mg -> Mar 31, 2024 = 0.74mg -> Apr 14, 2024 = 0.7mg -> Apr 28, 2024 = 0.66mg

Oct 14, 2022 - Present: Prozac (40mg) upped from 20mg on Nov 1, 2022.

Oct 31, 2022 - Present: Gabapentin (300mg 3x day) -> May 3, 2023 = 300mg 2x day -> Oct 1, 2023 = 570mg -> Oct 15, 2023 = 540mg -> Oct 29, 2023 = 510mg -> Nov 13, 2023 = 484mg -> Nov 27, 2023 = 460mg -> Dec 9, 2023 = 436mg -> Dec 24, 2023 = 414mg -> Jan 7, 2024 = 400mg

 

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