Jami: need help and advice

[LostInCanada]

10 minutes ago, Jami said:

I have had the Pgad the entire time of tapering the zyprex and the valume

So this tells us that the pgad you are experiencing is from the withdrawal. You have made alot of changes quickly. I think trying not to make any changes is going to benefit you greatly. If supplements cause issues don't use them. Definitely anything that affects your CNS is best avoided. Concentrate on healing, no stress. This will pass. Find non stimulating distractions. Walks in nature. Reading, gentle exercise, painting, anything that relaxes you. Allow yourself time to heal before the next taper. 

[LostInCanada]

3 minutes ago, Jami said:

I have such bad anxiety ? I don’t know . I never had before wds . I feel like my eye muscles can’t focus and my brain is pulling also . And I get nervous . Being out in public

This is very common and normal when dealing with withdrawal. See if you can do an online free CBT course. Also Claire Weekes book Hope and Help for Your Nerves is good. 

[Jami]

Ok . I’ll do that . It’s so dam frustrating. Amd scary . So this def sounds like all wd to u . Not a disease . So even if I have a bit of Lyme I am probably dealing w more of the wds . This sounds very familiar to u . ? Ok thanks for the advice . This is just so crazy . Lonely and just cruel . Hoping it passes soon 🙏❤️‍🩹

[LostInCanada]

5 minutes ago, Jami said:

So this def sounds like all wd to u . Not a disease

Definitely withdrawal. It sucks and there is no rushing it. The best you can do is accept the process and embrace it. Give yourself grace. Don't make demands upon yourself other than relax and heal. ❤️💯🙏

[Jami]

Ok . I will try that . It’s so messed up all of this 😢. I get worried that cristy huff was like a mentor of mine . And I don’t know if she killed herself and that’s scary . She was off benzos 8 years . So it’s very scary . I’m sorry I’m having a very hard time . But this does seem like all wds . Nothing new to u . ? 

[LostInCanada]

6 minutes ago, Jami said:

Nothing new to u . ? 

Nothing new unfortunately. 

 

 

[LostInCanada]

Please watch this BBC program 

https://rumble.com/v2wlt7g-the-antidepressant-story-bbc-panorama-documentary.html

 

[Jami]

Ok . I don’t think I’m in ssri wd . But In benzos and zyprexa . I have been on the Prozac for a year and half . After I came off lex . 5 months later was put on those meds cause of lex wds . So I have been off lex almost 2 and half years . But went on the Prozac for the lex wd . It’s a mess . Capsule I be in lex wd still . I don’t think so . I had bad walking aka . And bad flu sxs . Coming off the lex .

[LostInCanada]

2 minutes ago, Jami said:

don’t think I’m in ssri wd

The symptoms and healing are the same.

[Jami]

Omg . Ok ! Thank you so much !!! 🙏please god give me my life back ! Amd what’s so messed up is the drs and the Lyme drs and they say I’m not buying it !!!! 😳so scary they don’t know 😢thank you 🙏❤️‍🩹

[Jami]

I am a little scared right now . I watched the documentary. On ssri . And this women has permanent sexual numbness I think for like 25 years after stopping. I am worried that my Pgad is going to be w me for life . And I’ll just die from that cause it’s so bad and uncomfortable. 😢. And the teeth pain . I’m sorry . I’m having a hard time and praying that the Prozac isn’t making things worse because it’s going to take me years to come off that 😢

[LostInCanada]

23 minutes ago, Jami said:

I’m having a hard time and praying that the Prozac isn’t making things worse because it’s going to take me years to come off that

The key is not doing anything quickly. She had those sexual side effects from starting and staying on the drug. You are having these issues from going off. Your body is trying to recalibrate all the changes. It is trying to get you back to normal. That is why I sent you the YouTube video because it shows as it makes changes other areas can get messed up but eventually it will all work out. Your body is working hard. Accept the process. Don't make your body deal with other stressors by changing anything. You will heal.

[Jami]

Ok . Thank u 🙏 for being here for me . And I hope when I am ready that I can ask for help w the Prozac taper . I also hope I heal even while being on the Prozac . I hear lots of people tell me oh u won’t heal as long as ure takimg any pharma drug . So I pray I’ll be ok . Thank u for understanding and listening to me 🩷

[morgana]

Hi @Jami what you are experienciNg are all Zyprexa WD symptoms....the burning hot sweats is the worst, paranoia, anger, joint pain, my jaw is extremely stiff and sore, no sleep, ackathesia, constantly sniffing, noise and being around people extremely difficult to deal with....now that you have tapered stay away from it...never go back on another anti pychotic....I cold turkeyed off anti depressant first...as they cause extreme anxiety and irritability....I am still tapering Zyprexa and on 1.25mg....and basically still going through hell....I wish you all the best..

[Jami]

Wow . Thank you for that Morgana . I didn’t know which wd was causing what ? It’s so strange . Because as I was tapering valume . I was also liquid tapering the zyprexa . Why in the hell they put me on zyprexa and Prozac together just because they told me that if I was in lexipro wd . This would help 😢. So after a month of the Prozac and the zyorexa the akarhesia went away . But I was in wd still from the wds and coming down off the valume . So I never knew which wd was from what ? Is all the same all bad . And I am beyond at the end of my ropes . 3 and half years almost 4 of being house bound with a few days of being some what ok . Has been a nightmare ! I am desperate to come off the last drug Prozac now but being told by eveyone to not start the taper . Just wondering if the Prozac is working against me ? What a nightmare. I even went on an iv pick line and antimalarias during this past 3 years being told that I have Lyme ! And that’s why I am like this ! And everyone that knows about wd knows that I’m in wds . Except the f drs ! So I think they were treating me based on antibodies . And symptoms . So sick . But I am waiting to clarify this with a new test I had taken last week . Praying that I do not have anymore active Lyme . It’s been hell . But the zyprexa when I stopped at the smallest dot liquid . I stopped after a week after going down to that . And bam ! 2 days later . I had tremors , shakes brain shakes . Screaming w anxiety and terror . Burning so bad . Waking up after only 2 hours sleep . Burning and shaking ! That has calmed down a lot . But still get waves of it . But my knees and back and neck and elbows hurt . And my teeth and nerves . I never know what symptoms going to be every day ? A little over 2 months off the zyprexa . Mabe as I was tapering slow I was experiencing wds from zyprexa that I thought was valume ? Or both . My god . And the Pgad . Is relentless ! Had it all through valume taper and off and zyprexa taper and off. 😢. It’s absolutely gross and so maddening. Thanks for ure comment . And prayers for u 🙏🙏🙏

[Jami]

Oh Wow . Thank you for that Morgana . I didn’t know which wd was causing what ? It’s so strange . Because as I was tapering valume . I was also liquid tapering the zyprexa . Why in the hell they put me on zyprexa and Prozac together just because they told me that if I was in lexipro wd . This would help 😢. So after a month of the Prozac and the zyorexa the akarhesia went away . But I was in wd still from the wds and coming down off the valume . So I never knew which wd was from what ? Is all the same all bad . And I am beyond at the end of my ropes . 3 and half years almost 4 of being house bound with a few days of being some what ok . Has been a nightmare ! I am desperate to come off the last drug Prozac now but being told by eveyone to not start the taper . Just wondering if the Prozac is working against me ? What a nightmare. I even went on an iv pick line and antimalarias during this past 3 years being told that I have Lyme ! And that’s why I am like this ! And everyone that knows about wd knows that I’m in wds . Except the f drs ! So I think they were treating me based on antibodies . And symptoms . So sick . But I am waiting to clarify this with a new test I had taken last week . Praying that I do not have anymore active Lyme . It’s been hell . But the zyprexa when I stopped at the smallest dot liquid . I stopped after a week after going down to that . And bam ! 2 days later . I had tremors , shakes brain shakes . Screaming w anxiety and terror . Burning so bad . Waking up after only 2 hours sleep . Burning and shaking ! That has calmed down a lot . But still get waves of it . But my knees and back and neck and elbows hurt . And my teeth and nerves . I never know what symptoms going to be every day ? A little over 2 months off the zyprexa . Mabe as I was tapering slow I was experiencing wds from zyprexa that I thought was valume ? Or both . My god . And the Pgad . Is relentless ! Had it all through valume taper and off and zyprexa taper and off. 😢. It’s absolutely gross and so maddening. Thanks for ure comment . And prayers for u 🙏🙏🙏

[Jami]

I was just wondering . What actually makes it so hard to be out in public or even around people or family going through wds ? Is it the pain and discomfort? Or is it the not being able to focus and feel dizzy ? Is it the fear something is going to happen to us ? Or is it truly a mental symptom that just comes out in wds that we never had before ? I was never ever ever an agoraphobia? I was never house bound during anything in my life like this ? I try and go out and I end up having to go home ? And I can’t explain to anyone what this actually feels like . No matter what literature I send them or videoes . I still can’t explain this . And not quite understand it myself? 

[Believer]

Hi @Jami

I have given this a lot of thought the past couple of years (especially since my vax injury, which very much for me, mimic w/d symptoms). I think the things you stated above are some of the reasons, I.e, dizziness, lack of ability to focus, not being able to know how our mind and body will react to stimulus that never overwhelmed you before.  I don’t believe it’s agoraphobia and would encourage you not to give your symptoms a “psychiatric” label. Your CNS finds all of those things too stimulating, like an onion that has had most of its layers peeled off. I have felt this way for much of the past three years. When I get over stimulated, my brain feels overloaded, overwhelmed; like a computer that has to defrag, runs slower and slower the more stimulus (buttons being pushed) that is added, then the bodily symptoms ramp up. Thankfully I have seen a lessening in these symptoms, but it has taken a very long time. It’s very frustrating to accept that we can’t do the things we so easily used to do, the every day “ normal” stuff. Time (sometimes a lot of time), patience and acceptance are key. Hang in there, it does get better. Treat your CNS as gently as you can and allow yourself to go home, or stay home if you feel it’s necessary. 

[Jami]

Thank you believer , I was just in deep thought about this . Also , me for almost 4 years . Being polydrugged and tapering and coming off many phyc drugs . For no reason at all other than one wd after the other . I am home most of the time . I do try to go out to the store or to the holidays etc . But am just not able to right now still . Had to tell family I won’t be at the holiday tomm , because I am still not well . And to not be able to explain it also . It’s beyond maddening. And upsetting . Yup , being stuck like this . I have a sister that has stage 4 breast cancer and metastatic cancer now . For 9 years . And her cancer is eating her body away . But yet I complain and I cry and I tell her the pain I’m in . And then I wonder how I could even do that ? Wtf is wrong w me . My sister has a terminal disease. Which make me have more health anxiety : and now I have been smoking again because of the stress . I’m 46 years old . And 4 years have passed and just so upsetting what I will be like and when . ? Sorry . Just venting . Also waiting for this dam Lyme test to come back . When they only go by symptoms. My dr said my Lyme came back . From 19 years ago . And the rest was possitive in 21 . I have treated it so aggressive and still not better ! Because it’s wds ! These assholes . I’m sorry I get so angry . But again : thank u and hoping you heal very shortly! 🙏❤️‍🩹

[Jami]

Does the nerve pain in teeth Amd skin and head Amd Pgad ever go away ? Feelimg so helpless . 😢Amd defeated . 

[LostInCanada]

13 hours ago, Jami said:

now I have been smoking again

When did you start again? Nicotine is a stimulant. This is very upsetting to your central nervous system.

Anything stimulating is counterproductive.

Things to avoid: caffeine (including green tea, black tea, coffee, even decaf coffee, chocolate), alcohol, weed, CBD, msg, sodium nitrates, too much refined sugar)

 

 

[Jami]

I started again like a month ago😢

[Jami]

I have been extremely stressed and depressed from all this 😢right now have a wierd acid reflux that I never had . But the phad and the ears are ringing and the teeth nerves . Muscles don’t ache as bad today . But the nerve stuff is . And  cann nj t focus eyes clear yet . When I look in mirror I like am looking through myself ? Still . 

[LostInCanada]

23 minutes ago, Jami said:

started again like a month ago

Can you try to quit again? It would be definitely beneficial. You need to support your body and CNS as much as possible. This is a long process of healing. Concentrating on the symptoms won't help. Your symptoms are unfortunately normal and you will heal. It doesn't matter what symptom is from what drug. They will fade with time and patience. 

 

21 minutes ago, Jami said:

wierd acid reflux

Common too. Don't eat 2 hours before bed. Smoking aggravates this. Keep your head elevated when sleeping. Avoid fatty foods. 

 

23 minutes ago, Jami said:

cann nj t focus eyes clear

I deal with this still as well 

 

These drugs affect the CNS which affects everything. There is strength in being calm. You are safe. You will heal. Support the process by staying physically and emotionally healthy. Try not to spiral in your thinking. Read success stories on here. Focus on positive things. Take time to be thankful. Journal if that helps. 

[Jami]

Ok . I will try to stop again . I know how bad it is . I have just been in a bad way . I know it’s no excuse . Yeah , I don’t know why I have acid reflux Mabe ate something late last night . I usually don’t do that . But I did last night . So do u think it’s possible for me to heal even though k am still taking Prozac . ? Like will my brain be able to heal while I’m still in a phyc drug ? 🙏

[LostInCanada]

2 minutes ago, Jami said:

So do u think it’s possible for me to heal even though k am still taking Prozac

Absolutely. Everyday your body is working towards healing and adjusting. Tapering prozac at this point would be an unnecessary stress on your overstressed CNS. Once stable you will be able to start tapering prozac but that is many months away. Try to enjoy life as best you can now. Develop a positive routine and don't beat yourself up over setbacks. 😊

[Jami]

Ok . Thank you : I will try my hardest . Tonight is another holiday . That I am missing . So it’s just very hard . And I  am nervous Becaise I am waiting for this dam Lyme test . And I don’t know what I’ll do if it comes back possitive. So I am just feeling very upset w all this . And my ears are screaming loud . It just happens . 🤷‍♀️ok . Thank you . 🙏❤️‍🩹

[LostInCanada]

9 minutes ago, Jami said:

I  am nervous Becaise I am waiting for this dam Lyme test . And I don’t know what I’ll do if it comes back possitive

The tests aren't accurate for Lyme. They result in many false positives and vice versa.

This is a good quote from the CDC:

The tests for Lyme disease detect antibodies made by the immune system to fight off the bacteria, Borrelia burgdorferi. Your immune system continues to make the antibodies for months or years after the infection is gone.

https://www.cdc.gov › lyme › faq

Lyme Disease Frequently Asked Questions (FAQ) | CDC

 

So antibodies do not mean anything if you have had Lyme disease before. Your symptoms are withdrawal not reinfection. Like I mentioned before, you haven't been doing anything that would result in another tic bite 

[Jami]

Right . I agree w u on that . I was told that the cdc doesn’t do accurate testing ? So I used igenex lab . But I do know what u mean . Could just be antibodies . There is so much controversy w this Lyme **** . The cdc doesn’t believe in chronic Lyme . And the he lyme lit drs don’t believe in the cdc ? It’s messed up . I took a test to see if the disease is infact active . If it shows me the same bands and the antibodies then I k ow this is antibodies . I know what u mean . I do . I know my symptoms are wd at this time . It’s to obvious . Just don’t know when this will start to go . I am trying to be so patient . Thanks for ure advice and help 🙏

[Jami]

And ure sure that my symptoms . Teeth nerves , ears , eyes , vagina , aches and pains . And of balance and anxiety and joints , itching . Blurred vision etc . These wds 😢😢😢. My mom she can’t take it anymore : she’s so stressed trying to help me and I just break down and cry . In frustration . And that I can’t do the things I used to or want to . It’s very very scary and so upsetting 

[LostInCanada]

@Jami I am sure. Please start learning to use the search icon. Type in any of your symptoms and you will see hundreds of people with the same symptoms. We have nerves throughout our body. Anything that has a nerve can be affected. 
Scroll through the site. Be informed by doing research.

3 minutes ago, Jami said:

And that I can’t do the things I used to or want to

Start finding what you can do. Concentrating on the loss is self defeating. Reshape your life within the boundaries that now exist. 
 

 

4 minutes ago, Jami said:

My mom she can’t take it anymore

Journal instead of venting. Try to be calm.  She is no doubt overwhelmed like you. Time and patience. 

[Jami]

Ok : thank you 🙏 

[Emonda]

1 hour ago, Jami said:

And ure sure that my symptoms

 

Hi Jami,

I keep a copy of this link handy on my phone / saved to my computer for personal reference. My wife has a copy, too.

 

Daily Checklist of Antidepressant Withdrawal Symptoms (PDF) 

 

Variations of the symptoms you mention are definitely on the list. I know that doesn't make it more bearable, but I find it reassuring that it's WD, not a relapse or something else.

 

Personally, I've certainly noticed WD symptoms that have slowly eased with time.

 

I hope this helps.

[Jami]

Thank you . Does this go for all phyc drug wds ? I’m at almost 9 weeks off zyprexa and almost 8 months off valume . I’m having this Pgad and nerve pain in my teeth so bad lately . And just drained but can’t sleep . Feelimg ugly and muscle wasted . And just so afraid my brain will be like this for so so long . I did slow tapers on both . But I guess at the end was too fast to come off 🤷‍♀️am missing the holiday . Am embarrassed to me house bound . Was never this person . Thank you . Feelimg like quitting . 😢

[Jami]

Thank you guys for being here for me . I am waiting for the ray to come when I see that smile on my face like I had almost 4 years ago. I haven’t seen it since . And miss it very much . 

 

Edited April 22 by Jami
I sent a personal pic that I wanted to remove

[Jami]

I wish I knew how long this will continue. I find it torturous the unknown. It’s so hard because I came off one med after the other all together while trying to heal from one wd onto another while not healed . Wasn’t belived . Still not by most . The physical part of it is so hard for me to understand or to except . Never having a dibilitating illness . Not even 19 years ago w Lyme ? Never like this . How to plan ahead ? How to know if u will ever be able to have a baby . Getting to old . How to know how much longer ? Why the joints in the knees and elbows ? They come and go . But always the same joints . Or the back of my shoulder blades pinching tight . Or my throat choking ? And this relentless Pgad and nerve pain and tinitus. I mean . Please someone tell me that not everyone goes through this after 18 months . I’m at 7 and half months and 8 weeks off that low dose of zyprexa . Why I was ever put on it and listened . That it would help my lexipro wd go away then . I didn’t know what to do ? I was having Akathesia for 5 months after the lex stopped . I almost died from that . Paced until my feet bled . W no one believed me that could happen or how to stop it ! I am hysterical . The ptsd also is just something that is coming up every time I think about this past 4 years .! I’m writing a book . But I need to know when the finish line will be w me to conclude it . I know how frustrating this must be for u guys to here this over and over again . But I’m grateful that I have this forum to talk when things are this bad . And feelimg like giving up eveyday . Some days I feel like I’m making progress then to be hit w worse symptoms or new ones . Has anyone healed . From this . I know the benzo groups were to scary for me to be on I had to stop that group . Thank you for ure support 🙏❤️‍🩹