Wildflower0214 Posted June 17, 2015 Author Share Posted June 17, 2015 Thank you LL. I appreciate it. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
direstraits Posted June 17, 2015 Share Posted June 17, 2015 I think it helps when we can get out of our heads for a while happy for you xoxo went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Wildflower0214 Posted June 18, 2015 Author Share Posted June 18, 2015 Thanks so much DS. It does help!! Xox 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
btdt Posted June 18, 2015 Share Posted June 18, 2015 Well, Unexpectantly, my doorbell rings. My neighbor wanted me to come with her and her family to the pool. I can't do the chemicals and chlorine, but I went anyways and sat in a chair. It was about 8pm so the sun wasn't an issue for me. I had a conversation with a few people and didn't feel like a basket case. Afterwards, about an hour later I walked with them back to their home, which is next to mine...they invited me in and since they know I'm sick and can't go anywhere, they showed me their huge DVD collection and let me borrow a series I really like. All in all, it was nice to have a conversation and I wasn't uncomfortable or trying to find an excuse to run for the door. This time last year, it would have been impossible for me to have done that. Im grateful. So happy for you and I see in the post after this one you mentioned the word hope .. hope goes a long way Wishing you peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Wildflower0214 Posted June 18, 2015 Author Share Posted June 18, 2015 Hey btdt! Thanks!!!! 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
btdt Posted June 18, 2015 Share Posted June 18, 2015 your so welcome peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Wildflower0214 Posted June 18, 2015 Author Share Posted June 18, 2015 I actually had another intelligible conversation today with about 4 people in a room who I don't know that well, and I was able to engage like the person I once was. It was nice. Again, it's all about hope. I catch glimpses of the person I used to be 8 years ago. I know everyone is not affected by these drugs in the same way, but they literally numbed me out of my mind. I look back over the years drugged and I'm still totally amazed at how off the path I got. I have no explanation for my behavior and no excuse for it. But, I had forgotten who I used to be. It's nice to know that person is still there...just somewhere deeply tucked away, but nevertheless, still present. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
btdt Posted June 18, 2015 Share Posted June 18, 2015 I actually had another intelligible conversation today with about 4 people in a room who I don't know that well, and I was able to engage like the person I once was. It was nice. Again, it's all about hope. I catch glimpses of the person I used to be 8 years ago. I know everyone is not affected by these drugs in the same way, but they literally numbed me out of my mind. I look back over the years drugged and I'm still totally amazed at how off the path I got. I have no explanation for my behavior and no excuse for it. But, I had forgotten who I used to be. It's nice to know that person is still there...just somewhere deeply tucked away, but nevertheless, still present. "I have no explanation for my behavior" Luckily some of us here have had the same experience so you barely have to say a word if you don't want to we have already lived the same thing or at least I have it is very freaky to go thru this even the reliving of things done... to think back how you use to be to have old feeling ideas ect come back. I recall how this went for me when I was in the early stage a thread on pp was about personality changes or something like that how we changed on drugs... I wrote something said I went from a day care worker who was all into family..ect to a stripper... and I said do you think a drug can do that... I said it in jest I was so low then I had to look up to see bottom... some guy named Charlie wrote back that he thought it quite possible a that yep the drug could do that we went on to talk about bit... That was the day I got hope... even a slight chance was better then none .. at that point it seems my shattered life may end up making some sense if only I could learn what Charlie seemed to know. Truth be told I started drinking booze right there as my nerves were shot at the thought of it all.. so I drank and talked to Charlie.. I owe him a great debt and pass it on when I can. peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
AliG Posted June 18, 2015 Share Posted June 18, 2015 Wildflower, I'm so happy to read this. "It's all about hope". This has given you hope, and anyone reading this. "I catch glimpses of the person I used to be 8 years ago". I can identify with this, so well. I feel the same. These drugs "steal " our identity, and when it starts to "resurface", it feels like a "miracle". Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Wildflower0214 Posted June 19, 2015 Author Share Posted June 19, 2015 Thank you Ali!!! It does feel like a miracle. I'm grateful for the glimpse of sanity I once took for granted. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted June 19, 2015 Author Share Posted June 19, 2015 I actually had another intelligible conversation today with about 4 people in a room who I don't know that well, and I was able to engage like the person I once was. It was nice. Again, it's all about hope. I catch glimpses of the person I used to be 8 years ago. I know everyone is not affected by these drugs in the same way, but they literally numbed me out of my mind. I look back over the years drugged and I'm still totally amazed at how off the path I got. I have no explanation for my behavior and no excuse for it. But, I had forgotten who I used to be. It's nice to know that person is still there...just somewhere deeply tucked away, but nevertheless, still present. "I have no explanation for my behavior"Luckily some of us here have had the same experience so you barely have to say a word if you don't want to we have already lived the same thing or at least I have it is very freaky to go thru this even the reliving of things done... to think back how you use to be to have old feeling ideas ect come back. I recall how this went for me when I was in the early stage a thread on pp was about personality changes or something like that how we changed on drugs... I wrote something said I went from a day care worker who was all into family..ect to a stripper... and I said do you think a drug can do that... I said it in jest I was so low then I had to look up to see bottom... some guy named Charlie wrote back that he thought it quite possible a that yep the drug could do that we went on to talk about bit... That was the day I got hope... even a slight chance was better then none .. at that point it seems my shattered life may end up making some sense if only I could learn what Charlie seemed to know. Truth be told I started drinking booze right there as my nerves were shot at the thought of it all.. so I drank and talked to Charlie.. I owe him a great debt and pass it on when I can. peace Speaking of personality changes.... I am looking back over the period I was on these meds and I really think I may have been frequently hypomanic. I was doing some stuff that I would never do now or before meds. I was no choir girl before meds, but this was different. I feel like I got all caught up in some kind of whirlwind for the 7 years I was on them... It's hard to explain. But, I was not myself. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 Also, Woke up this morning and the cool feeling of the breeze on my face from my fan brought back a few good memories of Fall. I remembered some good times, I thought of pumpkin spice latte's, of the coolness when the sun is shining, of the anticiption of the changing of the leaves, and I even remembered some nice moments from when I was a teacher many years ago. I re-painted this huge pumpkin for the kids to throw bean bags through during our little harvest festival and I remembered singing Halloween songs with them. I haven't had many decent memories that I could recall for quite some time. I even had some good memories of a past relationship that ended very very badly. But, it was nice to recall why I was in the relationship in the first place. I remember now what it was that made me stay, and the whole relationship wasn't awful. I don't doubt my decision to leave. It was the right thing for us both, but it's nice to remember the good too. Things so often are not all good and all bad. So many times its a bug huge mix of messy gray area. It's nice to look back and see the glimmer of light in periods of what seemed like total darkness. Again, a year ago, I couldn't even conjure up anything good, not one memory. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Moderator Emeritus WiggleIt Posted June 20, 2015 Moderator Emeritus Share Posted June 20, 2015 YAY!!!! That's really all I have the energy to say, but you know I'm glad for you <3 *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 Well, now I remember why I never write about what happens that is good Because it all eventually turns to crap. No sleep!!!!! How long am I supposed to be able to endure this? No sleep can barely eat?! I swear this is why so many never write recovery stories, because they are all just waiting for the next wave of hell to come. I'm done!!!!! 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
luv2knit Posted June 20, 2015 Share Posted June 20, 2015 It will get better again, WF. We have to keep telling ourselves that. I would not have survived this past month otherwise. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Frustrated Posted June 20, 2015 Share Posted June 20, 2015 Sorry you are having a backslide right now but I am happy you are having little windows of improvement. I am sure you will hit another window soon. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 I just honestly don't know how any of us are surviving this. You both are in my prayers. Love you both. Xo 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 Honestly, I think those of us with autoimmune or forms of dysautonomia are having a rougher ride. Frustrated with Fibro, Luv with CFS, and me with the POTS... I feel like I started a marathon with a twisted ankle.... 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Frustrated Posted June 20, 2015 Share Posted June 20, 2015 I agree whole heartedly. I have started a marathon with a broken leg lol. I believe the withdrawals have amped up my fibro to intolerable levels. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 I know that's why insomnia is so hard on me now. It always always has been, my whole life. I get rapid heart rate and feel like I can't get enough air and feel faint. I've always been like this if so didn't get like 10 hours of sleep. And I know Luv is the same way with the CFS And you with all the Fibro pain... We are kinda in a class of our own. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 Sorry for the double post 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
luv2knit Posted June 20, 2015 Share Posted June 20, 2015 Agreed, WF. Never really had issues with insomnia, but even with 10 hours of sleep, the CFS was terrible. Now... well, I'm just beside myself!! Praying for everyone! Have been, and will continue. XOXO Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Wildflower0214 Posted June 20, 2015 Author Share Posted June 20, 2015 Ya, I never in all my life had insomnia EVER! I just had a hard time when I was forced to get up before I had 10 hours of sleep because I had some obligation...like work. Lol 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
luv2knit Posted June 20, 2015 Share Posted June 20, 2015 Yep! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
luv2knit Posted June 20, 2015 Share Posted June 20, 2015 When my daughter was in karate and cheer leading, and I had to be available for all these after-school activities, I would cope by sleeping almost all day--and this was when I was on the Zoloft, which was supposed to be helping my CFS. I would still sleep 8-10 hours at night. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Frustrated Posted June 20, 2015 Share Posted June 20, 2015 Yes I would always prepare myself in some way if I had to be somewhere for my kids and be a normal parent. That is when I could actually function somewhat. Now I suffer through everything. Even groceries and making dinner. Compared to now I was actually functionning well back then. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
Wildflower0214 Posted June 21, 2015 Author Share Posted June 21, 2015 I did that too Luv and F, I always had to take a nap. Or I would get so worn out at family events I would have to go home after and take a nap. It's always been like that. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted June 21, 2015 Author Share Posted June 21, 2015 I'm just scared. I don't know what else to say. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
luv2knit Posted June 21, 2015 Share Posted June 21, 2015 Yeah, me too, WF! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Wildflower0214 Posted June 23, 2015 Author Share Posted June 23, 2015 New symptoms. My POTS is getting increasingly worse: Very rapid heart rate in the morning, feeling like I'm going to pass out in the shower or after bending over. And, I feel like I have to make myself remember to breathe. It's scary. Too much info: had diarrhea for a few days and I get dehydrated easily. But it hasn't been severe. So, who knows if that has anything to do with it. This is kinda scary 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Frustrated Posted June 23, 2015 Share Posted June 23, 2015 I am sorry WF. I don't have pots but I do get very dizzy and feel like passing out when I get up from lying down or sitting too long and I do frequently get heart palpitations. It is very scary to me so I can only imagine what you go through. I continue to pray. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
luv2knit Posted June 23, 2015 Share Posted June 23, 2015 Sorry, WF. Praying this will be short-lived. I get dizzy too, and sometimes have rapid heart rate. My heart rate seems to be related to the akathisia, though. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Wildflower0214 Posted June 23, 2015 Author Share Posted June 23, 2015 Frustrated and Luv, Thanks for the support. It stinks. and, I had forgotten how frightening it is when this stuff starts happening. I'm sorry you both deal with this stuff too. It's scary. We just have to keep praying. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
SelmaLady Posted June 24, 2015 Share Posted June 24, 2015 That does sound very scary, WF. I've had bad vertigo and felt as tho I would pass out when bending over. It's an awful feeling. Praying and will continue to pray that this gets better for you. xoxo 1971-81 Valium 5mg c/t PAWS 1992- through now Zoloft 25mg 2003-05 Valium 12mg Slow Taper Off 2013 Afrin Exposure to CNS 2013 O/D Val 230mg 2013 Doxepin 50mg Clonidine 2mg Zoloft 25mg 3/15/16 Doxepin 49mg Micro Tapering Zoloft 24.3mg Holding taper 3/15/16 Clonidine mg 0.1 1/2 - Decreasing incrementally. DISCONTINUED 10/9/16 Doxepin 48.9 Zoloft 24.3 Clonidine 01.10 Continuing micro taper on Doxepin. 11/16/16 Doxepin 48mg Zoloft 24.3mg Clonidine 1.30mg 5/4/17 Doxepin 45mg Zoloft 24mg Clonidine 1.20mg Micro taper of Doxepin , Clonidine 01/13/19 Doxepin 45mg Zoloft 21mg Will start Micro taper of Doxepin 2/19 12/21/21 Doxepin 20 mg ? Reducing using water micro taper--Pulling 24ml from 75ml 12/2121 Zoloft .060 grams by weight--HOLDING (info from post added by CC: On 12/21/21 my dosage was .060grams by weight or 20mg. ) 26 Apr 2022 - Zoloft at -0- Link to comment
Wildflower0214 Posted June 24, 2015 Author Share Posted June 24, 2015 Thank you selma!!! Love to you! Vertigo is horrendous. So sorry you had to deal with that. Praying for us all Xo 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
btdt Posted June 24, 2015 Share Posted June 24, 2015 Hi WF I know you had the POTs before wd and I know it may be different now based on your history still it is something that some have in wd. Scotty's son from the other site increased his salt and wore compression stockings in the shower. I had it too but was too late finding the information to make much use of it. Getting light headed in the shower is not the same thing... I think it is bad in the morning because wd everything is worse in the mornings for a long time that is just how it goes. When I had the POTs I drank a lot of electorlye replacement for babies I seriously would be hanging onto the drug store wall drinking my pedialyte like an addict getting a fix. It helped me at the time I was not sure why and I only went to it from hearing a radio show that it cured hangovers and I felt like I had the worst hangover of my life... all accidental if anything actually is.. I am beginning to wonder as it seems I "found" things serendipitously when I needed them. I know you have doctors who see to this.. and I have what may seem like a stupid question... bp does you bp go up and down seems to me it does.. and mine still does which causes people to scratch their heads and blame anxiety... like the kidney doc last month who I was seeing for high bp... it changed rapidly while I was in her office... so much so we tried 3 different machines... but still no answers I bet she put anxiety down on the paper.. I don't have the symptoms like I use to tho and I don't generally have a bp over 200 like I use to with POTs Maybe time will take you back tot he baseline you had before wd... I wonder were you on these drugs when you were first dx with POTs forgive my memory if you said already. I wish you peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
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