calithebold: Right at the beginning

[calithebold]

I will ask Alto or JanC. Thanks again btdt

[btdt]

Ask them both why not?  your welcome 

 

couple of links for you about ppi drugs

http://survivingantidepressants.org/index.php?/topic/4361-tips-for-tapering-off-stomach-acid-blockers-or-ppis-esomeprazole-lansoprazole-omeprazole/?hl=%2Bproton+%2Bpump+%2Binhibitors

 

http://survivingantidepressants.org/index.php?/topic/2533-that-acid-reflux-pill-may-be-causing-your-health-problems/?hl=%2Bproton+%2Bpump+%2Binhibitors

[btdt]

hmmm forgot this

http://survivingantidepressants.org/index.php?/topic/6216-non-psych-drugs-causing-psych-symptoms/?hl=%2Bproton+%2Bpump+%2Binhibitors

[calithebold]

Saw my pdoc and she was ok when I told her I was holding until wd passes. She accepted that it was in wd too. I told her I knew my body. She accepted what I said, so I am really happy

[btdt]

Great new  

Some times I had doctors that I thought were agreeing with me but in the end they were just humoring me and tried to change my thinking as time went on... I feel they were deceptive in how things were handled.. and disappointing.  I am not saying this is happening but keep and eye open for it.. just in case.  when we get fired up and say how things are going to be... doctors concede what else can they do ... then later when we get more passive in our care they switch... Lordly I hate being a nay sayer all the time... but maybe it is the unlucky unliked job for me.  

Hope it all holds and goes really well for now you are cool so that is all that matters deal with it as it comes. 

wishing you peace

[Meimeiquest]

I had a strange thiught for you, Cali. Do you have an exercise room in your building? Is there any chance they would put an official punching bag in there? I think it could help many people. There was a phase in my tapering where I wanted one so bad...I was just full of rage for the medical community. You are on so many "brakes" that I expect you are going to feel a lot of that as your brain moves towards normal.

 

Here is an article from beyond meds about emotions that I think is worthwhile. http://beyondmeds.com/2014/11/22/choice-and-emotion/

 

The acid-reducing drugs have two really major issues..by inhibiting normal acid production, they hinder proper digestion and absorption, and they create an environment where "pathogenic" bacteria can flourish.

 

Always pulling for you!

[calithebold]

btdt - I do know what you mean and you are most likely right. My pdoc however I think is feeling so bad about what has happened and what could have happened, that she is watching herself at the moment. But in saying that, if I have trouble with her, I have no problems with up and moving to someone else. No hesitation at all and I think she would be more concerned about me than worried about drastic changes .

 

Meimeiquest - I think a punching bag would be a fabulous idea. Thank you! I think it would help many people here get their anger out. I also think it would help me. I used to do taekwondo and love that aspect of it. I might bring it up today as a suggestion. Thanks in relation to the acid-reducing drugs info. Muchly appreciated once again .

 

In relation to the pariet, the acid reducing drug I'm, would anyone know if that needs tapering? I think my doc is going to ask me about that today as he called yesterday and asked me to make an appointment and all I can think it would be about was my medication review. One recommendation the pharmacist suggested was that now I have changed my diet, I might try a lower dose of pariet to begin with and then evenly stop taking it. He suggested going to 10mg in the morning instead of 20mg, then after a bit 10mg at night instead of 20mg, then remove the morning one, then eventually move the night one. Does pariet fall under the same rules of 10% at a time or is this faster taper okay because it is an acid reducing tablet? Any ideas would greatly appreciated so I can go into my appointment forearmed.

[Meimeiquest]

Yes, you need to taper the Pariet, and expect some rebound increased acid production. You possibly may also need to resolve other gut issues, but there is lots of info on the web and a lot of people here have experience with it if your practitioners don't.

[btdt]

I had a strange thiught for you, Cali. Do you have an exercise room in your building? Is there any chance they would put an official punching bag in there? I think it could help many people. There was a phase in my tapering where I wanted one so bad...I was just full of rage for the medical community. You are on so many "brakes" that I expect you are going to feel a lot of that as your brain moves towards normal.

 

Here is an article from beyond meds about emotions that I think is worthwhile. http://beyondmeds.com/2014/11/22/choice-and-emotion/

 

The acid-reducing drugs have two really major issues..by inhibiting normal acid production, they hinder proper digestion and absorption, and they create an environment where "pathogenic" bacteria can flourish.

 

Always pulling for you!

"The acid-reducing drugs have two really major issues..by inhibiting normal acid production, they hinder proper digestion and absorption, and they create an environment where "pathogenic" bacteria can flourish."

PPI drugs are actually listed here;

http://survivingantidepressants.org/index.php?/topic/6216-non-psych-drugs-causing-psych-symptoms/?hl=%2Bproton+%2Bpump+%2Binhibitors

 

As having psych effects - Insomnia-Psychosis/agitation-

BUT they are not pariet...but other ppi drugs all of those I tried and reacted badly to.. then the pharmacist suggested pariet to the doc. 

link on how to get off ppi drugs here:

http://survivingantidepressants.org/index.php?/topic/4361-tips-for-tapering-off-stomach-acid-blockers-or-ppis-esomeprazole-lansoprazole-omeprazole/

[AliG]

 You're sounding stronger, Cali. You know your own mind and body and don't let the doc push you around. Stand firm.  You have to be your own health advocate. I've learned that , as I'm sure a lot of us here, have also.  So, how did it go?   

[calithebold]

Meimei and btdt thank you so much for your awesome info. I am happy to say have a plan in place for tapering the pariet after reading about it. I am looking forward to the day I get off it. But steady goes.

 

AliG thank you and yes I do feel so much stronger, everything all turned out well with everything this week, of which I am very grateful. It was a bit of a scary week but I got through it.

 

My only complaint is that I have been very vague which is unlike me. I got the date of my uni assignment wrong. I thought it was next Sunday but it's due tomorrow. Lucky it was almost done. I keep forgetting things. It's very frustrating. At least I've been lucky enough to sometimes remembering. I guess I'll keep on plodding along.

[AliG]

 Hi Cali, Thanks for checking in on me. What did you decide about the pariet?    Hope you had a lovely "Sunday".  

[calithebold]

Ali, Oh, the pariet. I was confused. I'm going to start taking some slippery elm on advice from Jan and then taper down to 10mg in the morning (got a script from my GP) and keep the 20mg night dose still the same. Then taper it down to nothing. It will be great to get rid of another drug

[AliG]

 That sounds like a good plan, Cali.  You're doing well. How's the diet / lifestyle plan going?    

[calithebold]

Ali, the diet plan is going mostly okay. It's weird, all those years I was drinking and eating diet stuff and I'm a little bit smaller since I swapped over, which is really counter intuitive. It's very strange to me as I was conditioned to be the way I was before. I'm not used to every change yet, though I have still made the complete change over, I just watch the amount I put on my plate, as long as I get enough, which I am, I'm good.

 

The only areas I'm struggling with and I'm sure I'm not the only one, is the exercise and water intake. I struggled with both of these before anyway, but I'm much better with the water than I was, but still not enough and the exercise is just not happening. I have a bit of agoraphobia (not major) but it stops me from going out on my own to places, some days are better than others. I don't get it really as to why I have it but I think it's partly to do with my partner D. We are usually in each others pocket's and it really makes me lose my confidence when I'm on my own. So I don't go out and feel horrible going out, so I stay home and don't get any exercise, I struggle to get around the block even. It feels way too hard and I don't know how to fix that.

 

Today was tricky because of assessment for uni and I didn't leave my unit all day, except once or twice to go to D's place, which is conveniently next door and that doesn't help me with the agoraphobia part. I finished the assessment this morning and then still didn't go out anywhere. I was meant to get milk but went to sleep instead and woke up two hours later. I hate those sleeps where you wake up and you don't know where you are, what time it is, or how long you've been asleep. I hope I'm not the only one that has that happen, plus my eyes go extremely blurry when I go into a deep sleep, which worries me because I never used to do that and I don't know why. They do settle but it takes about half an hour.

 

I've enjoyed knitting again for the first time in six months but I ruined my project I had been working on for six months. I had to pull the whole thing out. I wasn't very happy about that. Mainly though I am doing well. Just a few problems to iron out. Nothing that won't eventually work out

[AliG]

Ali, the diet plan is going mostly okay. It's weird, all those years I was drinking and eating diet stuff and I'm a little bit smaller since I swapped over, which is really counter intuitive. It's very strange to me as I was conditioned to be the way I was before. I'm not used to every change yet, though I have still made the complete change over, I just watch the amount I put on my plate, as long as I get enough, which I am, I'm good.

 

The only areas I'm struggling with and I'm sure I'm not the only one, is the exercise and water intake. I struggled with both of these before anyway, but I'm much better with the water than I was, but still not enough and the exercise is just not happening. I have a bit of agoraphobia (not major) but it stops me from going out on my own to places, some days are better than others. I don't get it really as to why I have it but I think it's partly to do with my partner D. We are usually in each others pocket's and it really makes me lose my confidence when I'm on my own. So I don't go out and feel horrible going out, so I stay home and don't get any exercise, I struggle to get around the block even. It feels way too hard and I don't know how to fix that.

 

Today was tricky because of assessment for uni and I didn't leave my unit all day, except once or twice to go to D's place, which is conveniently next door and that doesn't help me with the agoraphobia part. I finished the assessment this morning and then still didn't go out anywhere. I was meant to get milk but went to sleep instead and woke up two hours later. I hate those sleeps where you wake up and you don't know where you are, what time it is, or how long you've been asleep. I hope I'm not the only one that has that happen, plus my eyes go extremely blurry when I go into a deep sleep, which worries me because I never used to do that and I don't know why. They do settle but it takes about half an hour.

 

I've enjoyed knitting again for the first time in six months but I ruined my project I had been working on for six months. I had to pull the whole thing out. I wasn't very happy about that. Mainly though I am doing well. Just a few problems to iron out. Nothing that won't eventually work out

[AliG]

 Oh, I don't know how that happened!   I just quoted your whole post!     Didn't mean to do  that. 

 

 Anyway, I know what you mean , about the exercise, h2o, and "agoraphobia".  I struggle with all of those things as well.

[calithebold]

Ali I wondered how that happen   I use the term agoraphobia loosely in my case, when I have appointments I can go usually, but not when I don't, I get stuck here because of some stupid fear about silly things that doesn't any make sense whatsoever.

 

So I had a crappy night. The weather is horrible here at the moment and I don't mean too cold or too rainy but I mean humid and hot then I will get too cold and so last night I kept taking the blanket on then off and then on - damn night sweat - you get my drift. So I didn't really sleep. I got up for the first time at 11pm or something crazy and it didn't get much better. Not only that but then I was awake at 3.45am. To top it off I have woken up dizzy, nauseous and tingly in my fingers and toes, plus a headache. I have two appointments today, one here at home and one to an icky hilly area that I have to walk to see my psychologist, Emma, who is so lovely and so on my side it's not even funny. We slowly work away on the trauma behind all the reasons I went on psych meds to start with, she knows her stuff and she knows me well and is scarily accurate in her ideas and assessments of things. With the dizziness I am not looking forward to the walk to her house and back. Ugh! I wish I could stay home.

[btdt]

Since the walk is so bad what about taking a cab if you can afford to... just an idea. 

peace

[JanCarol]

B, we have excellent public transport.  I don't think she gets cab vouchers - they do provide those for the elderly who cannot climb onto the busses and trains.  But a 4 block walk from the bus or train, is still a 4 block walk.  Taxis here are too dear to use.

 

And the walk will do her good!     (even when she doesn't feel up to it - she's strong and persistent, and so will make it)

[calithebold]

btdt, yes the public transport is excellent around here and like Jan says, I am really close to a major bus/train network, plus it's very affordable. I can't afford cabs though. Very expensive here. Thank you for the thought though   Also thanks Jan, you know me too well

 

Well the bad weather got me yesterday and I had a fall in the rain. I was walking down a very steep hill and my foot slipped and down I went. I landed face first into the ground, hit my head; my nose started bleeding a little from hitting my nose, though I didn't break it; I cut my knee slightly, some light but nasty grazes, some right up my left leg; jarred my neck and both shoulders where I landed into them. Jeez I did a good job. I burst into tears and rang home and they said they'd pay for my cab if I paid them back today (I got paid today), so I did. Then the nurse here patched me up but the wound thingies kept falling off because it's near my knee and every time I bent it, they would fall off. I did eventually find something at my place and it covered it really well. I was very sore last night but feeling sore but okayish today. At least it's not meant to rain today

[calithebold]

I've just scanned back over my last week and it seems like a while since I have spoken about wd. Is it possible that they are lessened, god forbid, I haven't really noticed anything but some fleeting things here and there. Nothing that really lasted all day long. For all I know I did and I wrote about it up there but skim read it and missed it   Yesterday I did end up really dehydrated as I forgot my water bottle and I was in the suburbs where there were no shops. Bummer! I must remember it in future. Not much to say, my body is still healing from its battering the other day but at least it's healing. Let's hope my chatter becomes more and more about stuff and not much or any about wd. Then I'll know I'm on the right road

[AliG]

  You are sounding happier, Cali, despite your fall.  Thank goodness, the sun has come out!  This is one of my favorite times of the year. Sunny, during the day and slightly cool at night.   I'm so glad you're doing well.  

[calithebold]

Thanks Ali, I am happier. I really feel the cold, so this morning I'm finding it's really cold. Brrrr! In saying that I still overheated last night, which is so annoying.

[btdt]

Glad your doing better  

peace

[calithebold]

Thanks btdt. It's been a few days since I was here. I have a done a few dumb things though accidentally without meaning to. Yesterday morning I was desperately doing uni work to catch up as I was a week behind. I did about 3 or 4 hours study and caught up but at a price. I forgot to take my morning medication, which consists of 250mg lamictal, 20mg of abilify, pariet 20mg and 375mg of lithium. I started feeling dizzy at lunch time as was weepy and lonely and just plain sad. At one point I started to cry. Then I realised what had happened but it was too late. I put a recurring reminder in my mobile phone so hopefully this never happens again.

 

In the middle of all of this I had taken the dose of movicol (don't know what it's called elsewhere but if you don't know it's a powder you put in water for constipation) for impaction. I took some in the morning and then some at lunch time. STUPID and also stoopid! I didn't start needing to go until 4pm and by that stage I knew it was too late to do anything. I was up until 12.20am and then fell asleep. I was amazed to wake up at 7am as I usually am up at 4am. Then it was pointed out that I probably depleted some of my night meds as well. Joy! Now I can't go anywhere and I would love to have but am frightened I will need to go and there won't be anywhere and well you get the picture. I really have to start thinking before I do things and not to just blindly follow medical advice that's on the packet.

 

Other than that I am doing really well. No mood swings, just steady. I'm starting get hopeful that the pristiq withdrawals are lessening and on the way to disappearing. I know I may be too hopeful for that, but it would be awesome if it had come to that. I had my last semi-wave on the 18 April, which is great. Fingers crossed that this window lasts at least for a good while

[btdt]

I hope your feeling better and are able to get out.  Hope your weather is nice we had snow a few times this wk.. last wk was good i was in all wk.. better this wk it snows... today is suppose to be better.  

It is a good idea to start slow on things if you can... I know there is not always an option... don't be too hard on yourself for doing what doctors say they are suppose to know.

Wishing you peace

[calithebold]

Thanks btdt, I did get out and all was fine thankfully. I won't ever do that again, at least I know now! Sometimes you just have to stuff up to learn and at least I have learned

[Fresh]

Oops Cali , lol.     I did it too , forgot to take pristiq before bed last night and had the oddest night.    

I like the idea of a regular phone alarm.    Thanks for the tip.

Good to hear that overall things are improving for you   .

[calithebold]

Yeah oops for you too, I'm so glad I'm not the only one, lol! Yeah the phone reminder is great, went off this morning but I would never have forgotten this morning, it's the first thing I did. Here's to not forgetting again

[calithebold]

I've started to taper the pariet, first change yesterday from 20mg in the morning and night, to 10mg in the morning and 20mg at night. So far I haven't noticed a difference. We'll soon see. Nothing else has changed at all, rather boring really, though I must say I kinda like boring. I hope you are all doing okay

[Meimeiquest]

Proud of you!

[calithebold]

Thanks Meimei, I'm pretty happy with myself too

[AliG]

 Well done, Cali. I think in this case boring is good. Glad you're doing well. Sending positive thoughts your way. 

[calithebold]

Thanks Ali

[btdt]

Thanks Meimei, I'm pretty happy with myself too

There is no better medicine than that!