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Barbarannamated: pain<-->depression...chicken<-->egg

Barbarannamated

By Barbarannamated
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Nikki Newbie

Nikki

Posted
Posted

Hey Barb...

 

Have you just started taking an adrenal medication and thyroid medication? Maybe starting off on a small dose for each would be good. Very often doctors over prescribe. If you levels have been very low it may be a shock to your system right now....easy does it.

 

You have so much fortitude...you really do.

 

Consider yourself hugged:)

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Barbarannamated Newbie

Barbarannamated

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Just dropped by to let you know I'm thinking of you, my friend. {{{hugs}}}} love you

 

Thanks, Tezza. I need it more than ever. I cant even speak about how low my life has sunk right now.

 

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Karma Contributor

Karma

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I'm thinking of you, too, Barb. Thanks for dropping by my thread and lending your support.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Nikki Newbie

Nikki

Posted
Posted

Barb you know more than the Doctors do about your situation. I know you do research and keep at it.

 

It sounds like Addison's Disease. If so, the prednisone should help. Can you list all the meds you are currently taking. Maybe if we all put our heads together, we can collectively figure something out in terms of treatment.

 

You know you are in the right church - now you just have to find the right pew. Although the hospital sent you home undiagnosed, you were able to understand what this is.

 

Hugs

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Barbarannamated Newbie

Barbarannamated

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Posted

Barb,

 

I know Rhi is very, very wise. I'm just not sure what she was saying I should do at this point. I'm afraid she is upset with me. I trust her but Im not sure what she was advising.

 

Oh, I didnt read it that way at all, tezza! I think Rhi understands very well the bind you and I are in having been on several different drugs. I think she was suggesting that you may need to hold on a dosage or combo for awhile to let your system settle. I dont think anyone knows the answer as to when to hold or updose.

 

No, i didnt hear any upset whatsoever. We all love you. :)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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alexjuice Newbie

alexjuice

Posted
Posted

Hey Barb,

 

I wanted to tell you to hang in there. You are an amazing person. And you're in this situation, health wise, which is demanding and uncertain. You've talked about lack of support before, your husband etc, and I know how hard it is to have to do it all on your own. Even doctors orders have to be double checked. It's frustrating, for me anyway, to exist in this world where I am consistently misunderstood and consistently given poor care/dangerous advice due to misunderstanding of the underlying issues on THEIR end though they will, at times, be rude or dismissive to ME as the sick one, crazy one or needy one.

 

It takes a lot of inner resolve to continue to stand up for yourself in a situation like this.

 

The main reason I am posting is to tell you something I really feel like I need to tell you.

 

You are doing a good job.

 

This is really hard and you are doing a really good job.

 

I just wanted to tell you that.

 

Loves

Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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Nikki Newbie

Nikki

Posted
Posted

http://www.mayoclinic.com/health/addisons-disease/DS00361/DSECTION=coping-and-support

 

You may have already read this...if not, it has lots of info.

 

I believe there are support groups for Addison's.

 

Hang in there kiddo

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Nadia Newbie

Nadia

Posted
Posted

Barb,

 

I'm so sorry for your uphill battle... I was just fantasizing about having a team of doctors really getting to the bottom of what's going on with me. Reading your thread it strikes me just how complicated it can get.

 

I hope somehow you find something that helps, especially to get out of the dark place. I've been struggling with that the past few days myself.

 

HUGS,

 

N.

'94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.
6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.
11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.
9/11-9/12 Waves and windows of recovery.
10/12 Awful relapse, DP/DR. Hydrocortisone?
11/12 Improved fairly quickly even though relapse was one of worst waves ever.

1/13 Best I've ever felt.

3/13 A bit of a relapse... then faster and shorter waves and windows.

4/14 Have to watch out for triggers, but feel completely normal about 80% of the time.

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tezza Newbie

tezza

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Thank you so much for ALL you do. You are one of the greatest people I know. You always make me feel so much better. You always know what to say to help others. I don't think this forum would be right without you. You really are precious to me....plus all that Alex said. Hugs and love you bunches.

 

I'm just a bundle of nerves right now, I hope I haven't upset anyone.

http://survivingantidepressants.org/index.php?/topic/1644-tezza-risperdal-withdrawal/

 

Seroquel and Mirtazipine

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Nikki Newbie

Nikki

Posted
Posted

Barb I am beginning to think that your situation with adrenal failure may be something alot of AD users may have. Your battle and ability to share about it is going to help so many of us who suffer from burn out.

 

I did some research last night on your condition. I read the medical info and was wondering if there are holistic treatments to bolster your adrenals.

 

Maybe Karma can advise. Are you on Thyroid and Steroid meds?

 

My understanding is that when the adrenals poop out the thyroid levels drop.

 

Does this mean you do not have anxiety or cortisol/adrenaline dumps?

 

Maybe the B vitamins can give your energy? What about Ginseng?

 

There is a website I'll post later for you regarding supplements....

 

Hugs and more hugs

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
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Posted

I wanted to tell you to hang in there. You are an amazing person. And you're in this situation, health wise, which is demanding and uncertain. You've talked about lack of support before, your husband etc, and I know how hard it is to have to do it all on your own. Even doctors orders have to be double checked. It's frustrating, for me anyway, to exist in this world where I am consistently misunderstood and consistently given poor care/dangerous advice due to misunderstanding of the underlying issues on THEIR end though they will, at times, be rude or dismissive to ME as the sick one, crazy one or needy one.

 

It takes a lot of inner resolve to continue to stand up for yourself in a situation like this.

 

The main reason I am posting is to tell you something I really feel like I need to tell you.

 

You are doing a good job.

 

This is really hard and you are doing a really good job.

 

I just wanted to tell you that.

 

Loves

Alex

 

Alex,

 

Thank you so much. Your encouragement means the world. I know you're going through your own hell and have been for many years even before withdrawal hell. I don't have the words to express how much you and all mean to me.

 

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

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Posted

Barb I am beginning to think that your situation with adrenal failure may be something alot of AD users may have. Your battle and ability to share about it is going to help so many of us who suffer from burn out.

I did some research last night on your condition. I read the medical info and was wondering if there are holistic treatments to bolster your adrenals.

Maybe Karma can advise. Are you on Thyroid and Steroid meds?

My understanding is that when the adrenals poop out the thyroid levels drop.

Does this mean you do not have anxiety or cortisol/adrenaline dumps?

Maybe the B vitamins can give your energy? What about Ginseng?

There is a website I'll post later for you regarding supplements....

 

Thank you, Nikki. I appreciate the time and effort you took to look into this. I don't understand it very well yet and it seems most doctors dont either. There is a strong genetic component and I can now see evidence of it throughout my family.

 

I have Schmidt's Syndrome or Autoimmune Polyendocrine Syndrome #2 of which Addison's is just one part. It is what JFK had. It's a very rare condition and i suspect years of drugs accelerated it, but dont want to imply that this is solely due to psychotropics.

 

Essentially, my endocrine system is shutting down and the hormones that are missing have to be replaced. At this point, I'm on thyroid, steroid (Cortef) for cortisol, estrogen (premature ovarian failure likely present long before diagnosed). I have much labwork in my future as well as MRI to assess pituitary/brain involvement and cerebrovasculature. Fludrocortisone will likely be necessary to replace aldosterone. I THINK this is related to SIADH that has been linked to SSRIs.

 

I am in adrenal failure Stage 4 (Addison's). I dont know the prognosis yet. My understanding is that in this stage, the body is shutting down unnecessary functions in order to survive - a catabolic state. Just walking from one room to another requires much energy. I stay in contact using my mobile from bed. It's pretty amazing what I've learned to do on Droid. ;)

 

My "consciousness" seems altered at times, a delirium of sorts. Other times, I feel ok. I feel fortunate to not have back/flank pain, which is common when the adrenals are involved.

 

My body and brain feel extremely "powered down" as if needing to recover or restore energy. My instinct is telling me not to push myself and listen to my body right now.

 

I think this was present long before I began psych drugs and it was treated as depression. It definitely became "depression" after years of wrong treatment.

 

Karma has been very helpful to me. Her knowledge is right there with the best endocrinologists. I do trust my current endocrine doc. The one I had been going to for years missed all of this. I doubt many doctors ever see a case like this.

 

I'm just taking things day to day.

 

Thanks to everyone!

 

Your support and friendship are priceless!

 

Barb

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

Posted
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Posted

I'm so sorry for your uphill battle... I was just fantasizing about having a team of doctors really getting to the bottom of what's going on with me. Reading your thread it strikes me just how complicated it can get.

I hope somehow you find something that helps, especially to get out of the dark place. I've been struggling with that the past few days myself.

 

Thanks, Nadia. I think we are our own "team". That feeling was confirmed after my recent hospital stay for cardiac testing. I was told many blatantly wrong things. Lab results were misread. I overheard doctors and nurses telling patients things I knew were potentially harmful and, in some cases, wrong. Realizing now how western medicine works, I can easily spot the influence of business in healthcare. Doctors do not look at patients as one being. Each is locked into his specialty and look only at their designated "part". Nobody is in charge, it seems. I'm incredibly thankful to have all of you and the sharing of knowledge that takes place here.

 

My case is very rare with genetic components. I don't want everyone to start thinking adrenals or endocrine.

 

The one key symptom that MANY doctors dismissed for years was significant (30%) and unintended weight loss (140 to 90s). Psychiatry questioned me about an eating disorder, which ive never had (and WHY do I get defensive?!) but nobody investigated further.

 

If anything can be learned from my experience, it's to listen to your instinct and body. Mine told me something was wrong years ago, but I didnt fight hard enough. I DID tel my old endocrinologist back in 2008 that I thought my adrenals were going. He did a cursory ACTH and said I was fine.

 

Ive read evolutionary psychologists say that these drugs numb us fifths point that we motor thru life when we really need to slow down and tend to injuries, physical and emotional. That resonates with me.

 

Thanks, Nadia :)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

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I'm so sorry for all you've been through and are still going through. I'm sure everyone here wishes we could help in some way. You are very dear to all of us.

Big hugs and lots of love,

Tezza

 

Thanks, Tezza. You are an amazing person and special friend!

 

I just cant give you enough {{{HUGS}}}!!

 

Love, B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

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I'm thinking of you, too, Barb. Thanks for dropping by my thread and lending your support.

 

Karma

 

YOU are a GODSEND!! Your knowledge and application of it continually amazes me! I see messages from you and immediately feel relaxed :) You are a gifted lady. Thank you.

 

Hugs!

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

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Nikki,

I think I dumped all of the cortisol i had left. :o. I do still get morning dread/doom, but not usually the anxiety and racing heart like I did early in withdrawal. I have a theory about how that's related to cortisol/fight ot flight on an evolutionary basis. Still in formulation. ;)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Nikki Newbie

Nikki

Posted
Posted

Barb I recently bought a book on Amazon by Dr.Brian Weiss (Psychiatrist) Miami University. He is know for his meditation work. The book was less than $4 and it came with a mediation/relaxation tape.

 

Wonderful stuff. Maye something along these lines may be helpful for you to relax to help the body mend. He mentions that alot in the CD.

 

Dr. Lam said that in Stage 4, given the medications + plus being a fighter is what works. You have both ;) You are a fighter. You have a very strong inner reserve.

 

Visualize all of us holding your hand ;)

 

Barb Reiki works well for me. Unfortunately it is $100 per session. I really have reaped benefits from it. Can you try it? Very soothing and I felt revitalized.

 

 

http://www.youngevity.net/category/SupraLife.html This is supplement website I mentioned.

 

This stuff is excellent, browse thru it and see if anything applies to you. The Ultra Body Today is amazing stuff. I haven't ordered it in a long time and need to.

 

Lots of healing Hugs today B)

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Barbarannamated Newbie

Barbarannamated

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Posted

Alright. Here's what's going on that I couldnt even speak about earlier this week... I understand this is not to be a journal, but Im desperate for support..

 

Husband not helping, nothing new. I have no support.. not eating regularly.. Noplace to go.. few services in my area. I am not able to get into someplace for assisted care for awhile.

 

My father got wind of all of this and asked me to move back home to PA. I said I would consider. I do have friends and family there, a better support system.

 

He flew out last nite and came to my house this morning. I dont know what info has been filtering to him thru husband about my recent diagnoses, but within 30 minutes of being in my home, he suggested I am "self-diagnosing"! I said he could leave and I left the room and shut myself in bedroom. Husband had no reaction whatsoever. Im still shaking in anger and "PTSDish" reaction.

 

I just received a fairly serious diagnosis after mistreatment for nearly 20 years! I sent info to my father about it. I specifically sent info for lay people. I asked him if he read it. He said no, that he doesnt understand medical information. This is the same man that pored over every detail of my mother's medical records, prescriptions, etc. He didnt even attempt to READ what I sent?? Im losing it!! He said something about "whatever it is that's making me 'nervous'.." NERVOUS??!! Husband still silent. He hasn't bothered to read anything either.

 

I told father I AM PHYSICALLY ILL!! THIS IS NOT DEPRESSION!! He asked what the treatment is

, as if there MUST be a tratment-cure- for everything! I said they are trying to maintain what function i have...still have to get brain MRI, labwork. Him: "so are you saying youre doomed?"

 

How the hell to communicate with people when it's anything short of cancer and has no prognosis??

 

He wants me to move back there. I was considering, thinking he needs me, too. I just dont know anymore. I cannot believe I am in this situation. I have never felt so incredibly alone in my entire life. Why am I begging someone to believe I am sick and it's not in head?! I asked husband if he found place to get MRI. Father said "dont you need a doctor to order that?" Can you just walk in and get a brain MRI?

 

S!My doctor who diagnosed me ordered it!!

 

WHAT THE HELL IS GOING ON?!?! HOLY CRAP!! I need to talk to my mother in law. She seems to be the only one who gets it.

 

The ONLY thing that seemed to get father's attention was my dramatic weight loss. He always used to say "you don't usually see a fat man in a casket".

 

Please talk to me...anyone!! I'm absolutely losing it!! I cannot be around anyone else who dismisses me.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Skyler Newbie

Skyler

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Alright. Here's what's going on that I couldnt even speak about earlier this week... I understand this is not to be a journal, but Im desperate for support..

Barb, I think you are referring to me.. I mispoke yesterday. Please don't think this was in any way addressing the type of posts you make. What was in my mind were questions reasked to the point Ato's original message was being lost, and well, you know the rest.

 

He wants me to move back there. I was considering, thinking he needs me, too. I just dont know anymore. I cannot believe I am in this situation. I have never felt so incredibly alone in my entire life. Why am I begging someone to believe I am sick and it's not in head?! I asked husband if he found place to get MRI. Father said "dont you need a doctor to order that?" Can you just walk in and get a brain MRI?

You need help, and if there are others near your Dad this would seem to be worth a consideration. But as for your father himself, he does not want to help you... instead he wants you to meet his needs. And he does not understand (or want to understand) your situation unless it is something that can be mended.. gotten out of the way. I think he cares in his way, but you are not in a position to make up the difference. JMHO.. (as you are 'wont' to say.)

 

Is your mother in law up to helping, perhaps help you get a fix on where your Dad is coming from? That way you don't need to expose yourself to more of his shenanigans than need be.

 

Please talk to me...anyone!! I'm absolutely losing it!! I cannot be around anyone else who dismisses me.

That is right.. you do not need a repeat of what your husband had been giving you, and relying on your Dad is setting you up for same. What do you think your husband's goal was in communicating with your Dad.. the two of them should decide to cohabit. Seems like they deserve each other.

 

What are the options for assisted care.. how long a wait are you talking here., etc. ~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Barbarannamated Newbie

Barbarannamated

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Thanks, Schuyler. I havent been on other forums, so did think I may have been misusing the taper forum. Thanks for clarification.

 

"They should cohabit" LOL! Needed that!

 

I have no options that im aware of for assistance. No LTC insurance. Our society is not prepared for people like me.

 

Even husband said dad sounded "out there". I realize he's in trauma, grieving, but.. not one question about what's going on medically but very quick to tell us our house is a pigsty (not untrue).

 

Ya know... the worst part of this is I end up focusing on the worst to get it across to them. If someone just acknowledges, shows concern, I minimize and try to reassure them that I'll be ok.

 

Gaslight 2.

 

http://en.m.wikipedia.org/wiki/Gaslighting

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Skyler Newbie

Skyler

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Thanks, Schuyler.

Even husband said dad sounded "out there". I realize he's in trauma, grieving, but.. not one question about what's going on medically but very quick to tell us our house is a pigsty (not untrue).

Glad to hear there are some small mercies.

 

Ya know... the worst part of this is I end up focusing on the worst to get it across to them. If someone just acknowledges, shows concern, I minimize and try to reassure them that I'll be ok. Gaslight 2.

 

Is your mother in law well enough to run 'task interference' for you? Some people love to be needed and she sounds like she is of this sort?

 

Err... What say, Gaslight 2..

 

Posted Image Oops, just saw the Gaslight link. No you are not out to lunch.. but your Dad is having a hefty serving of pity party pizza, while your husband is in for a side.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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jr1985 Newbie

jr1985

Posted
Posted

Hi barb, so sorry to hear everything you've been through. I truly hope you get better. It's a shame your husband and dad arent more understanding. Perhaps it would help if you spoke to your mother in law, as you say she seems to understand?

 

Just know that you arent alone, we're all here for you. :)

2003-2011: Paroxetine,Citalopram,Effexor; Aug/Sept 2011: Effexor to Mirtazapine; Oct 2011: C/T Mirtazapine back to Effexor; Nov/Dec 2011: Fast Tapered Effexor - w/d hell; Feb 2012: Reinstated Effexor 37.5mg; June 2012: Dropped to 35.6mg; Jan 2016: Propranolol 2.5mg per day for general anxiety; Feb 2016: Finasteride 0.25mg per week to slow hair loss; 18th May - 8th June 2019: Started Vyvanse 7.5mg and increased by 7.5mg weekly to 30mg (lowest “therapeutic” dose for adults).; 21st June 2019 - 12th July: Cross tapered from venlafaxine brand Rodomel to Efexor (1/4 > 1/2 > 3/4 weekly before ditching Rodomel); 13th July 2019: Cut Vyvanse dose to 15mg; 15th July 2019: Akathisia returned after years of being free; 16th July 2019: Went back up to Vyvanse 30mg

Supplements: Omega-3, Vitamin D, Zinc, Phosphatidylserine 

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tezza Newbie

tezza

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Oh...Barb,

 

I will talk to you and/or listen to you all day, any day. You are the SHINING star of this whole group! You could come over to my pigsty, if you wanna. We all love you SO MUCH! I don't know what's wrong with people not realizing how sick you are, especially those that can see you.

 

Would your MIL be able to help you in any way?

 

You've told me before how you wished we were close enough to go to doc in Atlanta together and now I wish I was close enough to take you to the docs and for tests. I sincerely wish there was something, anything I could do to help you.

 

I love you, Barb...{{{{{HUGS}}}}}

http://survivingantidepressants.org/index.php?/topic/1644-tezza-risperdal-withdrawal/

 

Seroquel and Mirtazipine

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Barbarannamated Newbie

Barbarannamated

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Thanks Tezza and jr.

 

I know there is a major life lesson in here... (banging head on wall!)

 

I think what is bothering me most is that I've been diagnosed and treated for depression for so long that a "real" medical diagnosis seems implausible, especially when said medical diagnosis is measured and treated with "hormones".

 

Still baffled that father thought I was just going to go in and request a brain MRI. Perhaps I'll just drive-thru.. stick my head thru the window... OY!

 

Can't believe I'm almost hoping for a pituitary tumor.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Karma Contributor

Karma

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Wow Barb - you didn't need this episode with your dad. You don't have the cortisol to deal with the stress. (BTW - thank you for the huge compliment above - it is a blessing to me that I can help you in any way.)

 

However, I am not sure what your dad's angle is. If I tell my husband about something he wants to help, he wants to solve the problem ... as women we often just need to be heard, we aren't looking for a solution from them. So maybe it is that your dad feels the need to fix your health issues and his angle is that you really aren't that sick because he wouldn't be able to help you if that was the case. Just thinking ...

 

It also sounds like there is a trigger there for you with your dad. Have you traditionally felt dismissed by your father? With your present living situation that could be a trigger. The other thing is that he jumped to "doom" which is probably a trigger for him having just lost your mom.

 

I agree with reaching out to MIL to intervene with your dad. If your dad wants to help maybe he could pony up the money for a stint in a rehab center located near your MIL or your Endo. Don't know if you could handle the travel though. Travel is another stresser. Alternatively maybe you could give your Endo permission to talk to your dad and disclose your personal health information - maybe he is of an age where that kind of information has to come from a doctor.

 

Hope something here is helpful ... if nothing else you know I'm sending your healing energy and thinking of you often.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Barbarannamated Newbie

Barbarannamated

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Wow Barb - you didn't need this episode with your dad. You don't have the cortisol to deal with the stress. (BTW - thank you for the huge compliment above - it is a blessing to me that I can help you in any way.)

 

However, I am not sure what your dad's angle is. If I tell my husband about something he wants to help, he wants to solve the problem ... as women we often just need to be heard, we aren't looking for a solution from them. So maybe it is that your dad feels the need to fix your health issues and his angle is that you really aren't that sick because he wouldn't be able to help you if that was the case. Just thinking ...

 

It also sounds like there is a trigger there for you with your dad. Have you traditionally felt dismissed by your father? With your present living situation that could be a trigger. The other thing is that he jumped to "doom" which is probably a trigger for him having just lost your mom.

 

I agree with reaching out to MIL to intervene with your dad. If your dad wants to help maybe he could pony up the money for a stint in a rehab center located near your MIL or your Endo. Don't know if you could handle the travel though. Travel is another stresser. Alternatively maybe you could give your Endo permission to talk to your dad and disclose your personal health information - maybe he is of an age where that kind of information has to come from a doctor.

 

Thanks, Karma. My dad means well, but just has no idea what I'm going through. It's difficult to describe what "I cant THINK" means. It's fluctuating, too... I am conversing normally one minute, then my brain goes into gridlock and I stammer, trying to find words. That's very unlike me. I've done impromptu public speaking in front of large crowds since high school. Never a problem.

 

What type of rehab are you referring to? I know of rehab for physical/TBI conditions, but not sure where my condition fits. Drs. Giovanna Fava and Nicoleta Sonino have an endocrine rehab in Italy, but I'm unaware of anything in states. I cant seem to communicate how disabling this is.

 

As an aside, my dad said my mom's death certificate listed unspecified cancer and Alzheimer's as cause of death. She did not have Alzheimer's. She was very lucid much of the time but her cognition fluctuated greatly. The similarities scare me. My dad said at my age he and my mom were going out to big band and polka dances every week. Mom wasnt taking a cocktail of psych drugs from the time she was 30.

 

Thanks everyone. You mean the world to me.

 

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Karma

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I don't know if they are called Rehabs ... or short-term care facilities or what ... frequently they offer occupational and physical therapy, but I think they may be able to provide care and support to anyone recovering from an illness. I could be wrong, but it my be worth asking ... or texting someone who can call and ask :rolleyes: .

 

I'm just thinking that if you could get some help with every day living support ... meals, housekeeping, grocery shopping ... that you could focus on getting well.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Skyler Newbie

Skyler

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I don't know if they are called Rehabs ... or short-term care facilities or what ... frequently they offer occupational and physical therapy, but I think they may be able to provide care and support to anyone recovering from an illness. I could be wrong, but it my be worth asking ... or texting someone who can call and ask :rolleyes: .

 

I'm just thinking that if you could get some help with every day living support ... meals, housekeeping, grocery shopping ... that you could focus on getting well.

 

Posted Image

Karma

 

Where I'm located, they are in nursing homes, but geared to people who will not be staying for more than a few weeks or days. Guess it sounds less than glamorous, but I'm concerned about you. It does not sound like your husband is capable, even if he was highly motivated.

 

Hug to yaaaa!

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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meistersinger Newbie

meistersinger

Posted
Posted

<br />

<br />I don't know if they are called Rehabs ... or short-term care facilities or what ... frequently they offer occupational and physical therapy, but I think they may be able to provide care and support to anyone recovering from an illness.  I could be wrong, but it my be worth asking ... or texting someone who can call and ask  <img src='http://survivingantidepressants.org/public/style_emoticons/default/rolleyes.gif' class='bbc_emoticon' alt=':rolleyes:' /> .<br /><br />I'm just thinking that if you could get some help with every day living support ... meals, housekeeping, grocery shopping ... that you could focus on getting well.<br /><br /><a href='http://www.sherv.net/hugging-emoticon-180.html' class='bbc_url' title='External link' rel='nofollow external'><img src="http://www.sherv.net/cm/emo/hug/hugging.gif" /></a><br />Karma<br />

<br />Where I'm located, they are in nursing homes, but geared to people who will not be staying for more than a few weeks or days. Guess it sounds less than glamorous, but I'm concerned about you.  It does not sound like your husband is capable, even if he was highly motivated.<br /><br />Hug to yaaaa!<br />
<br /><br /><br />

That about describes a rehab hospital. Had to put my mom in there twice when she had knee replacement surgery. First time was after surgery. Second time was 6 months later, since Physical therapy was not working, and she needed more intensive therapy.

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

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Barbarannamated Newbie

Barbarannamated

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I still have to get the brain MRI (with and w/o contrast) ordered by endocrinologist. Searching for 3 Tesla machine. There are not many and the wait is week or more. I have one scheduled for next Wednesday with call into a few other facilities in Southern CA. Doctor has ordered for "vasculitis with neurologic symptoms".

 

It is so hard to function with the fluctuating brain.

 

I'm just documenting, not saying this is drug or withdrawal-related. It's all mixed up in my head at this point. And scary.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Barbarannamated Newbie

Barbarannamated

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Father has been staying with us for last few days. I guess he thought he was going to rush in, remove me from situation and all would be cured. At first he said he would stay as long as needed but after 2 days, sister back in hometown was "needing him" and he said I needed to decide if I was going back or not. This has been the same scenario every time he and my mom visited... sister would have some "emergency" and they'd cut their visit short to go rescue her.

 

I considered going back to hometown where I'd have more support, but I'm reconsidering. I have brain MRI scheduled for Wednesday. Really not thinking or perceiving clearly, but able to fake it much of the time.

 

Went with dad to visit aunt (mom sister) in nursing home about hour away. She hasn't known anyone for many years but seems happy and not in pain. She will sing old songs and parrot answers when elicited. It's very difficult to see so much dementia in my family and wonder what lies in my future. No kids, no nieces/nephews, no long term care insurance.

 

It's morning. I really shouldn't post in the morning.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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xDebbiejo Newbie

xDebbiejo

Posted
Posted

Hi Barb

 

Just a quicki to see how you are.

 

It was good you went out with your dad to see your aunt, wasn't it? So will your dad be going back now on his own as your sisters back?

 

Hope alls ok with scan on wednesday.

 

Thanks Barb for all the support you give me, just wish I could return the favour.

 

Hugs

 

Debbie x

17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

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