Jump to content
Support our work - please give today

Barbarannamated: pain<-->depression...chicken<-->egg

Barbarannamated

By Barbarannamated
in Introductions and updates

Recommended Posts

  • Moderator Emeritus
Jemima Newbie

Jemima

Posted
  • Moderator Emeritus
Posted

He didnt care if I saw my mom while she was alive but pulled out all the stops to get me to the show. It was about 2-3 hours long and not one personal eulogy. Now I remember why I left that church. Sad.

 

Wow, I've never heard of having a "show" at a funeral. Unfortunately, some churches are not very Christian at all.

Psychotropic drug history: Pristiq 50 mg. (mid-September 2010 through February 2011), Remeron (mid-September 2010 through January 2011), Lexapro 10 mg. (mid-February 2011 through mid-December 2011), Lorazepam (Ativan) 1 mg. as needed mid-September 2010 through early March 2012

"Never attribute to malice that which is adequately explained by stupidity." -Hanlon's Razor


Introduction: http://survivingantidepressants.org/index.php?/topic/1588-introducing-jemima/

 

Success Story: http://survivingantidepressants.org/index.php?/topic/6263-success-jemima-survives-lexapro-and-dr-dickhead-too/

Please note that I am not a medical professional and my advice is based on personal experience, reading, and anecdotal information posted by other sufferers.

 

Link to comment
  • Replies 1k
  • Created
  • Last Reply

Top Posters In This Topic

  • Barbarannamated

    400

  • Skyler

    88

  • Karma

    88

  • tezza

    68

Top Posters In This Topic

Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Went to Urgent Care. EKG showed heart rate of 45. On way to ER.

 

Jemima, "show" was my interpretation from attending many Ukrainian Orthodox ritualistic ceremonies. No personal connection to God.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Barb

 

Let us know how you are doing. Sending you healing energy.

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
  • Moderator Emeritus
Skyler Newbie

Skyler

Posted
  • Moderator Emeritus
Posted

Went to Urgent Care. EKG showed heart rate of 45. On way to ER.

 

Jemima, "show" was my interpretation from attending many Ukrainian Orthodox ritualistic ceremonies. No personal connection to God.

 

Watching for your posts.. . "Our Force is with You"

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Lol! I feel the force!

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
meistersinger Newbie

meistersinger

Posted
Posted

<br />Went to Urgent Care. EKG showed heart rate of 45. On way to ER.  <br /><br />Jemima, &quot;show&quot; was my interpretation from attending many Ukrainian Orthodox ritualistic ceremonies.  No personal connection to God.<br />

<br /><br /><br /><br />If they're anything like the Antiochian Orthodox Funeral Liturgy, it is still probably going on. May your EKG soon be back to normal

History:

1995--Prozac--Quit CT by GP

1995--Effexor--Quit per my GP

1996--Amitriphene--Quit CT when changed GP

2005--Citalopram and BusPar. Prescribed when I decompensated in my GP's office. GP referred me to behavior health. Psychiatrist prescibed these drugs. Taken off citalopram in 2011 due to FDA warning. Quit Buspar during transition to viibryd.

Viibryd--2011 to present. Had a severe reaction in March 2012. Advised both GP and Psychiatrist I was trying to get off these drugs.

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Admitting me for more cardiac testing. Heart rate still very low.

 

Thanks everyone.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
peggy Newbie

peggy

Posted
  • Moderator Emeritus
Posted

Barb, i really hope they can give you some answers soon

sending you healing and calming MOJO!

Started in 2000 - On 150mg most of the time, (but up to 225mg at highest dose for 6 months in the beginning)
Reduced off easily first time - but got depressed (not too much anxiety) 6 months later
Back on effexor for another 9 months.
Reduced off again with no immediate w/d - suddenly got depressed and anxious ++ again 3 or 4 months later.
Back on effexor - this time for 3 years
Reduced off over a month - 6 weeks later terrible anxiety - back on.
Rinse and repeat 4 more times - each time the period before the anxiety comes back got shorter and shorter
Jan - July 2012 75mg down to 37.5mg;, 8/3/12 - 35mg. 8/25/12 - 32mg. 9/11- 28mg, 10/2 - 25mg, 10/29 - 22mg, 11/19 - 19.8mg; 12/11 - 17m,
1/1- 15.5mg; 1/22 -14mg, 2/7 14.9mg, 2/18 - 17.8mg - crashed big time: back to 75mg where i sat for 2 years....

4th  March 2015 - 67.5mg;   31st March - 60mg;  24th April - 53mg; 13th May - 48mg; 26th May - 45mg;  9th June - 41mg; 1 July- 37.5mg; 20 July - 34mg; 11 August - 31mg; 1st Sept - 28mg;  1st Dec - 25.8mg;  28th Dec - 23.2mg; 23rd Jan-21.9mg; Feb 7th- 21mg; March 1st - 20.1mg, March 30th - 18mg

Link to comment
xDebbiejo Newbie

xDebbiejo

Posted
Posted

Barb,

 

Hope to hear some better news soon!

 

I too, are sending healing and hugs for you

 

Thinking of you

 

Debbie x

17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Barb has a separate thread about being in the hospital http://survivingantidepressants.org/index.php?/topic/2652-in-hospital-for-cardiac-monitoring/ I know that many of you are looking for updates, so thought I would share the other thread.

 

We are all wishing her a speedy recovery.

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Thank you all.

 

Having a rough day. I can't think to take action to make appointments. I'm frozen in my head and in my bed. I communicate typing on my mobile and people think that im functional, but im so nonfunctional. Why cant I make a phone call?? I freeze. I can communicate ok in person, but exceptionally difgicult to make a phone call. I feel like I can imagine what it's like to be in a coma, able to hear others but unable to communicate. I tell people "I cant THINK" and nobody understands. We were at RV park in Vegas. I tried several times to gather my things to go to bathhouse to shower: towel, clothes, shaver, etc. Could not do it. Did manage to put swimsuit on, wrap towel around me and get in pool.

 

 

The cardiologist in hospital asked if I had been exposed to anything toxic. I said "YES, I have suspected that!" That line of questioning went no further. His job was done. My problem was not cardiac.

 

I can't think forward and it's so scary.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Barb

 

It is not unusual to be immobilized when the adrenals are struggling or when thyroid is not getting to your cells (we know the thyroid isn't getting to your cells). When I was suffering from adrenal fatigue and hypothyroidisim I would cringe when I had to make a phone call ... I just couldn't expend the energy to do it. If I managed to get through my work day and got home to discover I needed to run up the block to the pharmacy I wanted to cry because of the energy it took to run the errand. These can be classic symptoms of endocrine dysfunction.

 

Now the trick is how do we get you to the endocrinologist to get some help? Could you ask hubby to schedule some appointments and help you get to them? I know he is dealing with his own dysfunction, but maybe since it is doctor-stuff he would help. Can you text or email someone who could schedule the appointments for you? Any friends, family or cousins within an hour or so of you that would help?

 

Barb, I really think that if your Endocrinologist can figure out how to get the thyroid to your cells that the "freezing" will subside.

 

Just know that what you are experiencing is not permanent and there are several potential treatments that can bring you back to a more full, rich life.

 

You are in my thoughts, my friend. Posted Image

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Thank you, thank you, thank you!

 

Have appointment with endocrinologist and pain doc tomorrow. Have been so low and angry since cardiac hospitalization. Made it to Urgent Care yesterday for meds. They refused V (stim) which keeps my mind from going to ThatDarkPlaceWeDontTalkAbout (as Sparrow mentioned). My pdoc had me on 2x max daily dose of V and now I cant get any. Going to Urgent Cares is stressful!

 

I'm ok. I have this really stubborn survival instinct. :o

 

Communicated with old horse friend (actually young 30yo) who was just hospitalized with manic episode. Her pdoc is one of the ones who treated me badly. A touch of PTSD hearing her story, perhaps. Put her on lithium and Lamictal which, I was a tad relieved about. This doc used to put everyone on Seroquel, so lithium and Lamictal seem slightly less toxic. Also said they'd DC lithium asap due to thyroid effects.

 

In addition, 2 unrelated friends told me they'd CTd their SSRI after hearing about my misdiagnoses/treatment. One has been taking Lexapro "as needed" or when she remembers and then Xanax for anxiety. NOOO!! The other is a therapist and DCd Prozac after several years on polypharmacy. I try to tell them, but of course their docs say SSRIs arent a problem.

 

Sorry to be all over the place. Having angry day wih a helping of self pity while trying to save the world.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
Skyler Newbie

Skyler

Posted
  • Moderator Emeritus
Posted

Have appointment with endocrinologist and pain doc tomorrow. Have been so low and angry since cardiac hospitalization. Made it to Urgent Care yesterday for meds. They refused V (stim) which keeps my mind from going to ThatDarkPlaceWeDontTalkAbout (as Sparrow mentioned). My pdoc had me on 2x max daily dose of V and now I cant get any. Going to Urgent Cares is stressful!

 

HI Barb, I just left you a message on another thread I would have put here... hope you get the hospital test results, and some real help tomorrow... pulse was as low as 39 or some such, BP in the cellar as well? Wow.. hope that endodoc is in fine for for your visit. Yes indeed.

~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Based on cortisol i was told (2), endocrinologist diagnosed adrenal failure/Addison's and Rx'd Cortef. I like this discussion:

 

http://www.healthboards.com/boards/addisons-disease/530772-need-help-w-hydrocortisone-cortef-dosing-adrenal-insufficiency-addisons.html

 

Also Dx Schmitt Syndrome, Raynauds.... autoimmune polyendocrine failure. Nothing too surprising; they all go together.

 

MRI of brain ordered to look at vasculature and pituitary.

 

Just one thing. I need just one positive thing in my life to look forward to or offset this crap.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Sparrow Newbie

Sparrow

Posted
Posted

All this, and you're still hanging tough. Your courage is truly inspiring to me, Barb.

 

When's the MRI? I've been all round the block with the endocrine stuff -- this sure sounds like pituitary.

 

Hugs to you sweetie.

 

Sparrow

2009-2011: tapered off Trazodone, Namenda, Lamictal, Dextroamphetamine, Zyprexa; cold-turkeyed Pristiq; reduced Lexapro dose 50%.
On clonazepam since 2004, 0.5 - 1.0 mg daily PRN. Three failed (too rapid) partial tapers, 2010 - 2011.
Dec. 2011 - March 2013: Tapered off 0.5 mg clonazepam (Klonopin)

August 2013: Switched to liquid escitalopram (Lexapro) and began tapering from 10 mg.

January 2014: 4.5 mg escitalopram

March 2014: One year off benzos

May 2014: 3.0 mg escitalopram

June 2014: severe depression, updosed to 4.0 mg

Sept 1, 2014: 2.7 mg

Dec 7, 2014: Can't get below 2.5 mg without unbearable symptoms. Doing an extended hold (I hope)

March 2015: TWO YEARS POST-BENZO

Link to comment
Nikki Newbie

Nikki

Posted
Posted

Barb you said these Dx's are related, basically the same thing (I think), adrenals not up to snuff?

 

My understanding is that Addison's is treated with Prednisone and it is very effective.

 

No that there is a diagnosis, will they prescribe anything to reverse the adrenals?

 

Hugs

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

Link to comment
  • Moderator Emeritus
Skyler Newbie

Skyler

Posted
  • Moderator Emeritus
Posted

Based on cortisol i was told (2), endocrinologist diagnosed adrenal failure/Addison's and Rx'd Cortef. I like this discussion:

 

http://www.healthboards.com/boards/addisons-disease/530772-need-help-w-hydrocortisone-cortef-dosing-adrenal-insufficiency-addisons.html

 

Also Dx Schmitt Syndrome, Raynauds.... autoimmune polyendocrine failure. Nothing too surprising; they all go together.

 

MRI of brain ordered to look at vasculature and pituitary.

 

Just one thing. I need just one positive thing in my life to look forward to or offset this crap.

 

How much is the Cortef expected to help, were you given any indication. How does the equation change if there the pituitary is implicated?

 

Positive.. Posted Image.. hopefully you can get your life back. If the Addison's ( and whatever else) was enough to halve your pulse, can you imagine what the effect is on your emotions? Gosh, no wonder the speed script helped.~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

I'm not sure of details or prognosis. Likely will depend on what MRI reveals.

 

Here's an article Alex posted awhile back. Of course, most of these drugs that helped Kennedy function are now taboo due to addiction.

 

http://abcnews.go.com/m/story?id=125593

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
Skyler Newbie

Skyler

Posted
  • Moderator Emeritus
Posted

I'm not sure of details or prognosis. Likely will depend on what MRI reveals.

 

Here's an article Alex posted awhile back. Of course, most of these drugs that helped Kennedy function are now taboo due to addiction.

 

http://abcnews.go.com/m/story?id=125593

 

I read this awhile back. Sobering. JFK must have had the mental fortitude of.. well just amazing. Gosh

 

When do you have the MRI done? And how soon will you know if the Cortef will be helpful?

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Yay - a diagnosis and a treatment plan! I think Barb will notice that the cortef is working fairly rapidly. It is a stunning effect when the adrenals are supported after they have been struggling. It takes a while longer to fine tune the dosage sometimes, but when I experienced it the difference was amazing.

 

I'll be staying tuned for progress updates ... I predict that we will see positive changes.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

All this, and you're still hanging tough. Your courage is truly inspiring to me, Barb.

 

When's the MRI? I've been all round the block with the endocrine stuff -- this sure sounds like pituitary.

 

You're so sweet, Sparrow. [autocorrect tried to change your name to "Sparks" :) ]

 

Your situation has struck me as so similar to mine, especially that bizarre NEED to lay down in very specific area. My mind/brain is absolutely locked up, frozen. Scary as hell.

Can you tell me more about your endocrine/pituitary involvement? I have not gotten MRI yet. Began the Cortef yesterday and had bad palpitations last nite and jittery today. I don't know if that is Cortef-related, but I suspect so. My vision is also extremely bad - inability to focus, all sorts of floaters and clouds, diplopia. I know nearsightedness well and this is definitely not it or any usual eye stuff. Ive been in spectacles since I was 6, always the worst patient in any eye doc's practice with -10D vision, LASIX in late 90s. This is different. It really pisses me off when MDs tell me to go to my eye doc. Gee, I hadn't thought of that!

 

Ive been worse since that hospital ordeal. My ability to handle any stress is nil.

 

Learned yesterday that my old pdoc eas reprimanded for overprescribing stimulants. I guess SS/NRIs are still the go-to drug and "safe". I have mixed feelings about the medical board's legal action.

 

I feel like im not making sense and cant follow threads anymore. Please excuse me if I post anything weird (ya know, more than usual).

 

Thanks everyone.

Youre my lifeline!

B

 

Medical Zebras are said to be unusual cases... "if you hear hoofbeats, it may not be a horse, it may be a zebra". Ill take that a step farther and say it may be a ZORSE - even more cconfusing. Im adopting this cutie as my mascot:

 

http://s1.hubimg.com/u/160340_f260.jpg

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

If they're anything like the Antiochian Orthodox Funeral Liturgy, it is still probably going on.

 

Still laughing at this, Meistersinger! Thanks!

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Barb

 

How much thyroid are you taking? It is possible that the sudden ingest of cortef may have gotten a large amount of thyroid to your cells ... in fact, your symptoms sound like how I felt when I first started taking Armour thyroid ... you might run it by your Endo.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Thanks, karma. This is so scary. Took my 2.5mg Cortef at 2pm and got rather freaky. Hard to describe, but not good, very shaky but low mood at same time. Only on 30mg Armour. Endocrinologist not in. No coverage -911 only.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
Skyler Newbie

Skyler

Posted
  • Moderator Emeritus
Posted

Thanks, karma. This is so scary. Took my 2.5mg Cortef at 2pm and got rather freaky. Hard to describe, but not good, very shaky but low mood at same time. Only on 30mg Armour. Endocrinologist not in. No coverage -911 only.

 

Hey Barb, sorry to hear of that. Can you take the 2.5 mgs Cortef (1.25) BID tomorrow? I don't know how the tabs come, but maybe this would ease your system onto it?

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

He wrote for 10mg divided in 3 doses - two 2.5mg doses and one 5mg. Will have to play around with it. I sure can see how people end up in psychiatry when hormones are off or being tweaked. Yowza.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Did you join the Adrenal Group http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/messages? They might have some suggestions. If it were me, I believe that I might try half of my normal thyroid dose to see if I got the same effect ...

 

What I've learned is that even on the inserts that come with Synthroid the provider is advised to ensure the adrenals are supported before adding thyroid treatment.

 

What about vitamin B12? Adrenals love B vitamins. I'm not suggesting that you add vitamins at this time, but if you are very low in B12 that could be contributing to your symptoms. Another thing that helps support adrenals is Celtic Sea salt - I drink up to 2 teaspoons of celtic sea salt in my water during the day to support my adrenals. Usually people start with 1/2 a teaspoon. It has to be an unrefined, mineral rich sea salt and not table salt. I get my Celtic sea salt at Whole Foods or order it online from SelinaNaturally.com ... I get the light grey sea salt.

 

This is why I think you might check in with the adrenal group, we could make suggestions, but they support thousands of patients and could ask good questions to help you get an idea of what is causing the undesirable symptoms. I'm just trying to help ... and I can tell you that the Adrenal Group has really been a life saver for me.

 

Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Karma, I have not yet joined the Adrenal Group. An example of my mind unable to process things in steps... just signing up seems overwhelming - name, password, etc.

 

I am doing a bit better today. Had a good evening and didnt wake with that Groundhog Day "totally disconnected from nite before" feeling. Still had tenuous grip on hope from last night. Perhaps the cortisol slam is being leveled out a bit...?

 

I've always craved salt from the time I was a kid. My parents tried to curtail its use, but I persisted. Now, I think that even then it was my body's way of asking for what it needed. I i still have to do labwork to check the aldosterone part of this. Is that related to SIADH caused by SSRIs?

 

I will keep repeating... it is POWERFULLY apparent how hormone/endocrine imbalances masquerade as psych disorders.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

I did well yesterday until late afternoon and then -BAM!- I was back in my black hole. Just like a switch was flipped. Woke up in same bad state and unable to shake it. It is so strong and fluctuating. It seems more of a delirium/altered state than low mood. Husband is angry at me. I cant explain why - because I'm a bother, I suppose.

 

Thanks for sticking with me. I know this is not quite on topic, but your support means the world.

 

I'm still on only 30mg of Armour thyroid.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
tezza Newbie

tezza

Posted
  • Moderator Emeritus
Posted

Oh Barb,

 

I'm so sorry. Seems that's all I ever know to say but I mean it. I've been in similar situation with husband angry and having no idea why. That's very frustrating so I do sympathize. You are so sweet to always try to help others and then get treated like that for no reason...I can only hope things get better somehow, soon. {{{hugs}}}

http://survivingantidepressants.org/index.php?/topic/1644-tezza-risperdal-withdrawal/

 

Seroquel and Mirtazipine

Link to comment
xDebbiejo Newbie

xDebbiejo

Posted
Posted

Hi barb

 

I'm so sorry too

I am thinking of you and hope relief comes to you soon

 

Hugs

 

Debbie x

17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Go to topic listing
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy

  I accept