Jump to content

Flowers: tapering citalopram


Flowers

Recommended Posts

Hi Flowers,

 

Really sorry to read of your suffering. I can't advise re: dose adjustment as I'm not very experienced in this area.....will leave that one to the Mod's.

 

However, when you feel well enough it could be worth taking up swimming to gradually re-build muscle tone and overall strength. The other thing (which is stating the obvious), are you taking in enough calories?

 

Your body sounds as though it's depleted because of your appetite loss due to this wave.

 

I don't think the blood tests will reveal anything, and as my husband points out to me all the time, look at what's in front of you.

 

Believe me, I know how scary and distressing this is for you and letting you know that I'm thinking of you.

 

Hang in there my fave Brit in Spain :0)

 

Hugs,

JC xxxx

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

Link to comment

Aaaaawww JC Thanks so much my dear.

 

That is good advice about swimming and it is something I usually enjoy.

 

I am not eating properly to be honest due to the nausea and have now lost nearly 2 stone. But my husband does try and tempt me with things I like and put them in front of me.

I normally love my food and have to watch my weight!

 

I am convinced this is all WD related so agree not much will be gained by the blood tests. My husband has high cholesterol and we got a monitor to keep an eye on it. It also can test for glucose. So I checked that out and all is fine as I was wondering if I had low blood sugar!Like your husband says it is right in front of us!

 

Just getting through each day the best I can at the moment and enjoying going to bed when I can get a few hours sleep and blot it all out!

 

I am missing my busy life and getting out and about so much. The dizziness and lack of coordination when I move is awful.

 

Hopefully I will be able to post something positive soon.

 

Hope all is OK with you.

 

Love from Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Flowers, dont let your husband take statins for cholesterol. They are very dangerous. I have one book from one doctor who says that in order to get heart problems there are more things needed not only high cholesterol.And he wrote that this is one of the things on which pharma profits the most always to tell that the people have high cholesterol and immediately they prescribe statins.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to comment
  • Mentor

Flowers, dont let your husband take statins for cholesterol. They are very dangerous. I have one book from one doctor who says that in order to get heart problems there are more things needed not only high cholesterol.And he wrote that this is one of the things on which pharma profits the most always to tell that the people have high cholesterol and immediately they prescribe statins.

 

Oh I'd agree, they are dangerous drugs

http://nutritionfacts.org/topics/statins/

 

there are much safer ways to get your cholesterol down, If you're interested you might want to read Dr Furhman's book The End to Heart Disease

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • PRESENT DAYS:  Loving life! ❤️ with all it's ups and downs ;) 
Link to comment

Flowers, dont let your husband take statins for cholesterol. They are very dangerous. I have one book from one doctor who says that in order to get heart problems there are more things needed not only high cholesterol.And he wrote that this is one of the things on which pharma profits the most always to tell that the people have high cholesterol and immediately they prescribe statins.

Thanks Martina -

 

We researched statins and we decided not to go down that route and bought the cholesterol monitor. We are both pretty much anti drugs - surprise surprise!

His cholesterol has come down to acceptable levels now but we will still monitor it.

 

xxxFlowers

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

 

Flowers, dont let your husband take statins for cholesterol. They are very dangerous. I have one book from one doctor who says that in order to get heart problems there are more things needed not only high cholesterol.And he wrote that this is one of the things on which pharma profits the most always to tell that the people have high cholesterol and immediately they prescribe statins.

 

Oh I'd agree, they are dangerous drugs

http://nutritionfacts.org/topics/statins/

 

there are much safer ways to get your cholesterol down, If you're interested you might want to read Dr Furhman's book The End to Heart Disease

 

Thanks Catnapt!

 

He will not take statins - I will pass on to him the book details. Maybe a birthday present for him. Ha Ha!

 

Thank you.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Walking is getting harder - leg coordination is way off.

 

Am going to my Spanish Dr tomorrow to get the results of some blood tests he had done to see if there is anything underlying causing this.

I am betting there isn't and that this is WD.

 

I think he is going to notice a difference in me - I have deteriorated since my last visit 3 weeks ago. The question is do I tell him that I have been tapering off Citalopram all last year without his supervision?

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Flowers, and what about if you try osteopathy or akupunktur? I dont know if that helps, but surely it would not make it worse, and I think it can make it better.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to comment

Hi Martina

 

Thanks for the suggestions - I tried both last time WD hit bad and it didn't help unfortunately.

 

How are things with you?

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment
  • Moderator Emeritus

 The question is do I tell him that I have been tapering off Citalopram all last year without his supervision?

 

Sorry you have not yet come out of this wave, Flowers.  I know you will -- the question, as always, is when.

 

By the way, thank you so much for visiting my thread and sharing your thoughts.  VERY much appreciated.

 

What kind of conversations have you had around this subject with this doctor?  Is he open-minded about getting off the meds or is he a "you must be on the meds" kind of doctor.  It would be best if you could speak with him because concealing it starts to make you feel emotionally bad as well as physically bad.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

Link to comment

 

The question is do I tell him that I have been tapering off Citalopram all last year without his supervision?

 

Sorry you have not yet come out of this wave, Flowers.  I know you will -- the question, as always, is when.

 

By the way, thank you so much for visiting my thread and sharing your thoughts.  VERY much appreciated.

 

What kind of conversations have you had around this subject with this doctor?  Is he open-minded about getting off the meds or is he a "you must be on the meds" kind of doctor.  It would be best if you could speak with him because concealing it starts to make you feel emotionally bad as well as physically bad.

 

Best,

 

Andy

 

Well, first of all I do speak Spanish but am limited with medical terminology especially involving AD's and the brain!

 

I have never spoken to him about tapering off because he was always trying to get me to take Valium when WD first hit and got a bit exasperated when I refused!

He knows that Citalopram gives me weight issues but always says use diet and exercise to lose weight. Easier said than done!

 

I think I am going to have to tell him the truth tomorrow though. He is a nice guy and has helped me a lot with other health issues. It is my body but he needs to know what I am doing even if he doesn't understand it.

 

I am still having the heart palpitations and my blood pressure is too high so he needs to know what is going on. He will probably tell me off!

 

I am taking my Spanish friend with me to help with any translation. Wish me luck!

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Flowers, I am afraid if you tell the doctor, he will only try to persuade you that you need meds, and this will make you even more confused.

 

I know it is your decision, but I dont know if it is a good idea. You need a peace and I worry that he will make you even more unsure.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to comment
  • Moderator Emeritus

While I agree, Martina, that there is the potential for controversy, at the end of the day Flowers is the patient and she has the right to do what she chooses with her body.  He can't force her to take additional meds against her will.  So long as she goes in knowing that is not going to be the result, her goal is simply to try to enlist the doctor in support. 

 

To that end, this is a good thread to consider:

 

http://survivingantidepressants.org/index.php?/topic/4463-how-do-you-talk-to-a-doctor-about-tapering-and-withdrawal/

 

I think the fact that these are psychotropic medications and nobody REALLY knows what they do to our brains is reason enough to want off.  If the doctor fights over that you could always indicate you have a relative who had a bad experience and this is very important to you.

 

I would try to get his support but if he's difficult back off.  Does he write your scripts for the med?

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

Link to comment

Flowers, I am afraid if you tell the doctor, he will only try to persuade you that you need meds, and this will make you even more confused.

 

I know it is your decision, but I dont know if it is a good idea. You need a peace and I worry that he will make you even more unsure.

Don't worry Martina - I am not taking anything else! I think it needs to go on my records that I am tapering Citalopram just incase I have a medical emergency. It will be on my notes that I am taking 30 mgs and not 20.50 mgs. Also they need to know that my CNS is not stable.

I have to be careful as I am not living in my homeland and need to respect and be honest with my health carers. I can't afford for them to turn me away as private care here is very expensive and not very good from my previous experiences.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

While I agree, Martina, that there is the potential for controversy, at the end of the day Flowers is the patient and she has the right to do what she chooses with her body.  He can't force her to take additional meds against her will.  So long as she goes in knowing that is not going to be the result, her goal is simply to try to enlist the doctor in support. 

 

To that end, this is a good thread to consider:

 

http://survivingantidepressants.org/index.php?/topic/4463-how-do-you-talk-to-a-doctor-about-tapering-and-withdrawal/

 

I think the fact that these are psychotropic medications and nobody REALLY knows what they do to our brains is reason enough to want off.  If the doctor fights over that you could always indicate you have a relative who had a bad experience and this is very important to you.

 

I would try to get his support but if he's difficult back off.  Does he write your scripts for the med?

 

Best,

 

Andy

Yes I get the scripts from him. He and I may have a difference of opinion but I am sure he has found that with other patients too.

I do not want to alienate him as I need the state system here. It is not usual to change your GP either once you have been allocated one.

 

I will see how it goes and play it by ear. I usually get along OK with him so that is a start.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

I would just like to add that it wasn't this Dr who told me to do the too fast taper off the Cit that led me into WD. It was a private one at a different practice.

 

This Dr took me onboard and looked after me when I was in a hell of a state for which I am truly grateful. The Psychiatrist he referred me to agreed that I had been taken off the drug far too quickly.

I stabilisted after updosing and haven't seen the Psych since.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment
  • Moderator Emeritus

That all sounds good, Flowers.  I would go ahead and tell him.  It sounds like the consulting psych doc has some understanding about the topic and that's who this doctor would go to with questions.

 

I think you are in good shape on this.

 

Best,

 

Andy 

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

Link to comment

Thanks Andy and Martina

 

Will post an update tomorrow.

 

Time for bed.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment
  • Moderator

Hi Flowers:

 

Just wanted to stop by and say hi.

 

Hope you are doing better today. :)

 

Take care,

Frogie xx

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day. April 1, 2021 went back on 1mg a day. Started tapering May 19, 2023. July 28, 2023-approximately .87mg. Dr. fast tapered me at the end and realized he messed up. Prescribe it again and I am doing "slower than a turtle" taper.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment

A hug to you, Flowers!

Current dose: 0! Free!  Quit June 2017.

2017: Last dose zoloft: 17 June 0,00065 mg 18 May 0, 001 mg 14 May 0,002 mg 9 May 0,003 mg 28 April 0,006 mg 19 April 0,009 mg 8 April 0,013 mg 25 March 0,019 mg 22 March 0,039 mg 18 March 0,052 mg 16 March 0,079 mg 4 March 0,086 1 March 0,099 mg 22 February 0,11 mg 15 February 0,13 mg 6 February 0,145 mg 24 January 0,15 mg 19 January 0,19 mg 10 January 0,20 mg 3 January

2016: 0,98 to 0,22 mg; 2015: 2,35 to 1,01 mg; 2014: 4,9 to 2,5 mg; 2013: 9,1 to 5,1 mg; 2012: 15,7 to 9,7 mg; 2011: Started on 25 mg - then 50 mg- dropped to 25- to 12.5 mg - back to 25 mg - after 18.75 mg started tiny tapering to 16.6 mg

Started on 25 mg Zoloft in March 2011 due to stressrelated tinnitus that gave me panicattacks. Had a terrible reaction to Zoloft from start, but was told to "hold on". After four months I was stuck. Therefore the long taper. Crazy, I know... Super sensitive to drops and have dropped by 4-6 % from the previous dose.

Link to comment

Hi Flowers:

 

Just wanted to stop by and say hi.

 

Hope you are doing better today. :)

 

Take care,

Frogie xx

 

Good to see you here Frogie.

 

Just the same at this end unfortunately.

 

Hope things are improving for you.

 

Love and hugs Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

A hug to you, Flowers!

Many hugs back Amy!

 

 

Love too from Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Hi Everyone!

 

Just an update from visiting my Dr this morning.

 

It was a good meeting I think. Nothing bad showed up in the blood tests so that was a relief. As I thought, he wanted to talk to me about my obvious demise and remarked I wasn't looking good!

 

He is of the opinion that it is the effect of taking Citalopram that is causing these awful symptoms. He does understand a little of WD symptoms as has seen it in other patients taken off drugs too quickly.

 

His way of thinking was that I take Cit at bedtime. I struggle to sleep and awake early with cortisol rushes. All the other symptoms are worse in the morning and do get easier as the day progresses. I feel much better just before having to take the next dose.

 

He appreciated why I would want to get off it.

 

Of course that doesn't solve the problems I am having now. My blood pressure and my heart rate is way too high and he says this could be attributable to the Cit. He is concerned about my balance/coordination issues but confirmed there isn't any underlying disease causing this.

 

As I have been like this for 2 months now and slowing getting worse he feels I should accept some medical advice. He wants me off Cit asap and he suggested putting me on another AD (I am not going to say which one) and if I want to taper off that then fine.

 

I have to think about this seriously as am naturally concerned about my state of health.Taking another drug goes against everything I have strived for these last 2 years but I don't really want to end up having a stroke or heart attack!!

 

You guys have been amazing lately and I know I have been spending a lot of time on here as haven't been able to do much else. Your help, advice, support and kindness has been wonderful.

 

So, I think it is now time for me to go away and have a serious think about my next step. I am going to take a break from here for a week or two to get my head together as much as possible.

 

I hope you understand. I'll be back in March.

 

Much love to you all.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Hi Flowers

 

I appreciate you now need your space.

 

The latest thinking is that swapping to Prozac (fluoxetine) can really help as it is slower to go through the body and easier to get off, that is one of my route's forward.

 

I can understand you needing a break from this board.

 

I have recently started to look at boards where SSRI's are described as having their benefits for some people.

 

It can be very intense contributing to and reading these boards.  Sometimes you need a break.

 

I will miss you, but for now, you need to follow medical advice.  You have done well to persevere.  Take care

 

Joy

 

Jan 2023 to July 2023 250mg quetiapine

Tapered off quetiapine again over 2 months - now weight problem

Link to comment

Flowers,

 

Yay! To,your "clean" blood work :0)

 

Totally understand that you need some head space to think through a potential AD "switch".

 

In the meantime, take care and hope you're feeling better about things when you get back here.

 

Hugs,

JC xxxxxx

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

Link to comment

Hi Flowers,

 

glad you're tests came back OK and there's no underlying conditions.

 

I wish you well in finding the right path to take going forward.

 

I've had acold this past week which as you know doesn't help WD! feel like crap today.

 

if I knew I could get relief from going back on something I would do it but we don't get any guarantees...this is such a dredful position to be in.....so tired of it all.

 

anyway wishing you all the best whatever you decide on...hope to hear good things when you return.

 

lots of hugs ...love,ds

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

Link to comment

Flower, I'm so sorry you are in such a difficult situation !

I want to say your doctor is a genius. His analysis is in full agreement with how I think about my situation ( and sounds like yours too as my pattern is same as yours ). Unfortunately I learned it too late until recently my body completely can't take the drug and I was forced to cut doses like jumping off the cliff everyday. But I always feel much better ( like back to life from death) after each cut and I have been cutting every day for months. I Sipo have to deal with WD on the other side, but it was nothing like drug toxicity I got from Lexapro. I have been suspecting that the drug is causing my main problems for over a year but at the same time I was too sacred about WD so tried the best to bear with the toxicity to avoid too fast taper. Eventually my body simply can't take any of the poison.

 

I don't know what to say about taking another AD. It's a tricky situation as WD is another evil you have to handle.

 

I'm very happy for you that you have such a smart doctor and hope he can make the best decision for you and help you getting over with very tricky situation.

 

Love and hugs,

Lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

Link to comment

Flowers, I had also drug toxicity. And therefore on the end I cut also quicker. But you can find out if the problem is Citalopram if you dont take it one day. This does not make your withdrawal worse because for the body it takes at least 4 days to realize a change in dosing and you would see if the heart palpitations are better.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to comment

Sorry to disagree, even for the toxicity, skip can be risky. Reducing dose is good enough to test the water.

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

Link to comment
  • Moderator Emeritus

That's good that you have a doctor with some knowledge of WD. It's always better not to have to lie about tapering.

 

I've read a lot of stories of people getting toxicity with long term cit use, so it might be worth rolling the dice and trying a different ssri, but that's a really difficult decision to make.

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

Link to comment

Thinking of you Flowers. I know you will decide for the best, and I so much wish you feel better soon. Take very good care of yourself as you always do.

 

Sending you healing vibes and hugs

 

Athena xx

2000-2001: Effexor              2005-2012: Celexa, Zoloft, Effexor, desipramin, Wellbutrin, mirtazepin, Lamictal, Remeron, Abilify, nortriptylin, Cipralex, Cymbalta, and others I don't remember. Really bad side effects to all.
Sept-Nov 2012: Paxil 20mg, Wellbutrin 100mg, Imovane 5mg      Nov 2012: Paxil 20mg --> 10mg
Dec 2012: Paxil 10mg-->0; 1 week later: HUGE WD symptoms. Started to get informed on the internet and back to 10mg Paxil.
Dec 2012-Jan 2013: Paxil 10mg, Wellbutrin 100mg, Imovane 2.5mg        End Jan 2013: P 9mg, W 100mg, I 2.0mg
Feb 2013: P 8mg, W 100mg, I 1.5mg      April 2013: P 7mg, W 100mg, I 1.25mg       May 2013: P 7mg, W 90mg, I 1mg    

June 2013: P 7mg, W 80mg, I 0mg       July 1/2013: P 7, W 70     July 22/2013: P 7, W 60             Aug 2013: P 7, W 50       Sept 2013: P 6.1, W 50     Oct 2013: P up to 6.3, W 50     Nov 2013: P 6.2 to 5.9, W 50      Dec 2013: P 5.9, W 40      Jan 2014: P 5.3, W40        Feb 2014: P 5.3, W 30      March-April 2014: P 5.3, W 26    May 2014: P 5.3, W 20        June 2014: P 5.3 W 15     July 2014:  P 5.3, W 14       Aug 2014: P 5.3, W up to 15     Sept 2014: P 5.3, W 14    Oct 2014: P 4.8, W 14      Nov 2014: P 4.3, W 14     Dec 2014-Jan 2015: P 3.9, W 14     Feb 2015: P 3.9, W 12    March 2015: P 3.6, W 12   April-May 2015: P 3.3, W 12    June 2015: P 3.3, W 10    July 2015: P 3.3, W 8   Aug-Sept 2015: P 3.3, W 6   Oct 2015: P 3.0, W 6   Nov 2015: P 2.7, W 6   Dec 2015: P 2.4, W 6   Jan-Feb 2016: P 2.4, W 5  March 2016: P 2.2, W 5   April 2016: P 2.2, W 4   May-June 2016: P 2.2, W 3  July 2016: P 2.2, W 2  Aug 2016: P 2.2, W 1  Sept 2016: P 2.2, W 0!!  Oct 2016: P 2.0   Nov 2016-Jan 2017: P 1.8  Feb-Mar 2017: P 1.9  April-May 2017: P 1.8   June 2017: P 1.6 July-Dec 2017: P 1.5  Jan-April 2018: P 1.6

Others: Cytomel 25mcg (thyroid), vit. C, vit D, Omega-3 fish oil, Magnesium bisglycinate , Melatonin 1mg, 81mg Aspirin, Milk peptides, L-theanine, Valericalm tincture mix, scullcap tincture, Suan Zao Ren (jujube seeds)

Link to comment
  • Moderator

Hi Flowers:

 

I'm rooting for you in whatever desicion you make.

 

You have to do what's right for you. :)

 

Take care,

Frogie xx

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day. April 1, 2021 went back on 1mg a day. Started tapering May 19, 2023. July 28, 2023-approximately .87mg. Dr. fast tapered me at the end and realized he messed up. Prescribe it again and I am doing "slower than a turtle" taper.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment
  • 3 weeks later...

Hi Everyone!

 

Well time for an update and as you will discover I have got myself into a right old mess.

 

I was really scared losing the ability to walk. I had got to the point when I wasn't sure whether I wanted to be here like that and that was really scary. I took advice from my Dr and started another antidepressant. I wasn't functioning very well mentally or physically and in the end had no strength to fight anything.

He took me off 20 mgs of Citalopram straight away and onto 75 mgs of Venlafaxine XR. He assured me this was OK as they are both SSRI's at the Vens low dosage.

 

What happened straight away was amazing. I got my balance and coordination back and energy in a few days and was feeling and looking so much better. My tummy upsets went as well. The depression lifted.

 

Then I started to get really bad effects. I know it was the new drug as I have never experienced anything like this in WD before and they started within minutes of swallowing the tablet. I have never been so sick, dry retching, can't eat a thing, shaking and totally unable to sleep. I went back to my GP and he agrees the drug is not working with me but also feels that I haven't given it long enough. Well, would he like to feel like this?

So, after 3 weeks of taking this I am coming off and going back to Cit. He feels I needed to up my dose of Cit from 20mgs to 30mgs to get back to normal.

 

His crossover plan is to take 30mgs of Cit each morning and 75mgs of Ven in the evening for a week. Then take 30 mgs of Cit and 37.5 mgs of Ven for a week and then off the Ven. He said at these low doses there was no danger of serotin syndrome and that as they are the same SSRi effect I should be OK.

 

Yesterday I took 30mgs of Cit in the morning and felt really rested. Once I had taken the Ven in the evening I felt really wired,heart pounding all night and no sleep.

After all I have read and learned on here over the years why did I do this? Please don't say I told you so.

 

Am I safe after just 3 weeks on Ven doing such a quick switch back? I am sitting here in tears, scared again and so cross with myself.

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

Link to comment

Hey Flowers,

 

Welcome back :)  its wonderful to see you back here again, and I'm sorry the AD swap didn't work out.

 

Don't beat yourself up over it though, you've been through too much to make yourself feel even worse.

 

I'm sure the Mods will come along with brilliant advice as usual....

 

Hang in there!

 

HUGS,

JC xxxx

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

Link to comment
  • Moderator

Hey Flowers:

 

Just stopped by to say hi.

 

You will be fine, don't give up. I have to tell myself that everyday. :)

 

Hope you have a great weekend!

 

Like JC said, a mod will come by and give you their brilliant advice.

 

Hang in there...

 

Take care,

Frogie xx

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day. April 1, 2021 went back on 1mg a day. Started tapering May 19, 2023. July 28, 2023-approximately .87mg. Dr. fast tapered me at the end and realized he messed up. Prescribe it again and I am doing "slower than a turtle" taper.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment

Oh,Flowers my heart breaks for you.....I know how desperate we can get to try anything to feel better...so sorry it hasn't worked for you but don't beat yourself up,we're only human.

 

I've been feeling awful,too and probably would have done the same thing at this point,so tired of it all.

 

hope this will resolve very soon...you'll be in my thoughts and prayers.

 

sending lots of love and hugs, ds

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy