btdt: introducing myself

[btdt]

Somebody recommended this for hayfever. It doesn't mention anything on the reviews for hayfever but looks like it's good for a lot of other stuff - especially pain. Thought you may be interested:

 

http://www.amazon.com/Indus-Organics-Nigella-Freshly-Non-irradiated/dp/B0036RKIB0

Look at this Muddles

"This humble, but immensely powerful seed, kills MRSA, heals the chemical weapon poisoned body, stimulates regeneration of the dying beta cells with the diabetic's pancreas, and yet too few even know it exists." 

who knows what is true but if this were we could be cured... lol I can't say it with a straight face... 

mcs is supposedly along the same lines as " chemical weapon poisoned "

[btdt]

my hayfever is so bad. Do you think I would be ok trying this:

http://www.amazon.com/Indus-Organics-Nigella-Freshly-Non-irradiated/dp/B0036RKIB0

 

Sorry for asking on your thread but I need to do something and I don't know what to do.

I think I heard Alto say she used this

https://en.wikipedia.org/wiki/Ketotifen

 

I know she said she uses it as I had looked it up and still had it on my page so just popped it in here

Maybe ask her about it

[btdt]

I have used nasal steroid sprays and don't recommend them but had to in the past.  First I would try apple cider vinegar the Braggs brand in pan of water heated and breath in the steam.  Salt water is better than nothing steamed tho not as good.  I have used the salt water spray too but it seemed to go into a pool.. and stay there.  Perhaps because I had a problem with a neti pot same issue water went outside the useful area and pooled in my ear neck area.  I am not sure what cause this but it has been an ongoing issue and think it may be part of the reason for my neck swelling in the recent past... and infections. 

[btdt]

I know many here may not think it possible at my late stage but I swear I am in a wave.... just everything is off.  I have a song repeating in my head again... am biting myself when I try to eat... again!!!!   trouble keeping thoughts aligned body pain.. again my bones are cracking and plopping maybe they always do but everything seems to be pronounced and bugging me... irritated... that is the word.  I have no energy after a day of being a human doing with repeating songs I am down for the count which allowed me to at least make the connections that something is going on. 

 

I am wondering yet again if the drugs are stored in fat as I am taking two fat supplements vit E phophatidyl choline... thiamine... I have had cyst like things forming all in places of often have the same sort of sores appear that seem to drain this time they are much larger and staying longer in a way it feels like I am draining some kind of poison .. I have also thought drugs are stored in my bones... that is why they hurt so.. but that is likely as crazy as I feel just now. 

 

Tomorrow no supplements... maybe... I have two thoughts on this they are flushing things out of my body... via the fat oh add coconut oil to the list.. as they flush I get to deal with fallout ... or they are just messing me up.  I really can't decide. 

 

Back to basics for me for now. 

peace all

 

ps 

ears ringing 

hot flashes 

burning feet and hands had that one before supplements 

can't breath 

feel twisted in my body again like I am torqued in my spine. 

muscle thigh and calf hard and hurting ... foot same side pins needles pain. mostly this entire side hurts in one way or another think I will have an epsom salt bath

peace

[InvisibleUnless]

im not sure what supplements youre currently on, so if you could relist your current and recent regiments, i can comment further.

 

but as for the symptoms you are experiencing---i can completely relate.  i think that these things can very well be stored in our fat, which is not just the subcutaneous fat lining our muscles, but also encasing our internal organs.  plus, many or most of our organs are very fatty tissues, comparatively, and will require regeneration (which is around 7-9 years for a complete overhaul if we include most vital organs, and 20 or more for a full system reboot, as an estimation).  also, we metabolize differently based on what time of day it is, and what season it is.  our light intake and persistent ambient temperature and all that sort of stuff alters how we utilize our fat stores and other aspects that can affect withdrawal/post-medication problems.

 

all those things you mention, biting yourself, repetitive stuff going on in your brain (especially if its music), abnormal cracking and popping, extreme and constant irritation, etc.  ive found that some supplements and dietary choices can capture some of the drugs or whatever is cycling through my system at that point, and its important to find ones that cleanse it out instead of store it back up.  and the choices for whats best depend on how my system is functioning at any given moment.

 

ive been seeing a change in my own symptoms, the past week or two.  i have the increased cramping, torquing, and spasms lately, which usually accompany antipsychotic dosing or sometimes antidepressants---certain ones or higher doses.  i speculated just earlier this morning that perhaps some of the pain i feel in my spine and chest from muscle issues are sleep position combined with the drugs, or the localized freeing of toxic chemicals from my abdominal fats (organs and encasings) that causes irritation (inflammation) or rigidity (direct action on the cells, because these are metabolites and also the hormones and other **** that the drugs were initially changing when i was on them).  stored fat is not a catch-all, but they do often contain a rudimentary picture of how things were in our body at that point in time---its not just pure energy sitting around.

 

things like acne and other cysts, bloody noses, menses, sweat, and pretty much every other bodily fluid/excretion can be an outlet for toxic inundation.  if you have cysts building up that are remaining, it might be that they are temporary storage sites so your system is not overrun by what was released, and i think they will diminish in time.  maybe not immediately because so much stuff is hanging around or joining the scene that it cant deal with quite that much at once.  in one sense its awful to deal with it all...but on the other hand, you know that every day you go through it, and every bit you flush out is less that you carry around with you for the rest of your life.  its not always quick, and its never painless, but these are essentially ultimate steps...once its gone, and healed from, its gone.

 

my sister with fibromyalgia takes those baths pretty often.  they creep me out a bit, i havent given them a shot.  seems like itd be overwhelming for me.  my brains a bit fried, but i hope that helps.  i can check back to see your supplement list and give more specific impressions.  most of the time, these days, im 100% supplement free.  was taking krill oil off and on, sometimes rather intensely, and l-lysine+ for a while, but i feel better without them right now.  just going the straight food route, though sometimes eating or digesting can be hard.

[btdt]

Thanks for checking I have been taking 

400mg of vit E for 5 months suggested by a liver doc. 

 

Added 

420mg of phosphatidyl choline 

100mg thiamine 

Medication I take on average 2 tylenon #3 a day... generally broken into halves ... recently going up to full tablet on occasion. 

 

In an attempt to heal the blood brain barrier and hopefully stop chemical sensitivities which was bad in early wd and has now returned. I found this post on the Multiple Chemical Sensitivity site saying this worked for one person. 

http://www.ei-resource.org/forum/multiple-chemical-sensitivity-mcs/319-thiamine-and-the-blood-brain-barrier/

 

What I find interesting is the sores which I had almost constantly for the first few wd years came back after a car accident - stress related maybe.  They seem to me to be on a pathway of some sort as to the places they appear. The salt baths help to clear them... the cysts like things came soon after I started the last two supplements.  I did and do see them as a clearing system tho they may well be a reaction to rancid oils in the supplement base. Hard to say. I have messed around with the dose here and there taking more or less and not really tracking it.  This is all very unusual for me as I am not a supplement taker I react to things I am deficient in... like Vit D can't take mag either only in the bath tube via epsom salt baths. It did help last night I had the bath and went to bed but found I had to supplement with pain meds before the night was over. 

 

I too have thought of sleep position I have a bed of pillows to adapt to this wd pain... the torquing post ct from effexor was extreme so much so I had the bed company come to take a look at my new bed as I thought it was damaged in transit... had a bent frame??? I know... sounds silly now but at the time I just could not lay down on a bed come to think of it I still can't not without pain. I still use pillows hot and cold packs ect. I did break a rib and hurt my back in an accident since then it is difficult to sort. 

 

The chemical sensitivity has been a big problem of late going to stores had been ok as long as I stayed away from the cleaning lane... but that changed lately I seem to be made sick from plastics so now avoid that lane too... cosmetics avoid perfume avoid...some dyed clothing avoid the world is getting smaller and smaller.  I have been thinking lately perhaps the stores are using chemicals to keep bugs or rodents out as some places I just can't go.  Tires sections make me ill too... for me the symptoms are neurological. 

 

Desperation started the last round of supplements. I have been off base since returning from a wkend with family.  The use of things toxic to me have made my condition worse. I take my own pillow soaps towels as I know laundry soap is left in the fabrics they use... I know I hate being like this. It all sounds so neurotic and is.. yet I have to bow down and suck it up I just can't live otherwise. 

 

I was thinking about this today the list of chemicals I have taken out of my life that are in the average home that bothered me while away.  The dishwasher sending a could of poison into the air .. car air fresheners...hair products even on the kids hair so it makes me sick to hug them... perfume and after shave on men... gag... sun screen... hair spray... lingering lemon pledge from dusting ...chemical laden wipes for kids hands and faces... same sort with harsher chemicals for counters ect... 

 

It seems the world has gone toxic on me .. I just can't tolerate it any longer.  I am not sure how it went away last time I had this it seemed to clear up as I recovered.  I did salt baths then a lot more than I do now taking one last night seems to have helped some. 

 

I woke in extreme pain in the middle of the night this past Monday .. my spine one side of my body was messed up again... sometimes I feel it is my brain causing my body to twist like this other times I am just at a loss. This is not what I have experienced as fibro in the past 

[btdt]

my hayfever is so bad. Do you think I would be ok trying this:

http://www.amazon.com/Indus-Organics-Nigella-Freshly-Non-irradiated/dp/B0036RKIB0

 

Sorry for asking on your thread but I need to do something and I don't know what to do.

Ok Muddles I got my brain back today... better than yesterday anyway...

 

I did some looking and while it all sounds good this will affect the P450 .. that picks up my warnings... the active ingredient is. 

Thymoquinone

https://en.wikipedia.org/wiki/Thymoquinone

 HDAC inhibitor

https://en.wikipedia.org/wiki/Histone_deacetylase_inhibitor

Psychiatry and neurology[edit]

HDIs have a long history of use in psychiatry and neurology as mood stabilzers and anti-epileptics. The prime example of this is valproic acid, marketed as a drug under the trade names Depakene, Depakote, and Divalproex. In more recent times, HDIs are being studied as a mitigator for neurodegenerative diseases such as Alzheimer's disease and Huntington's disease.^[17] Enhancement of memory formation is increased in mice given the HDIs sodium butyrate or SAHA, or by genetic knockout of the HDAC2 gene in mice.^[18] While that may have relevance to Alzheimer's disease, it was shown that some cognitive deficits were restored in actual transgenic mice that have a model of Alzheimer's disease (3xTg-AD) by orally administered nicotinamide, a competitive HDI of Class III sirtuins.^[19]

 

It may help but the chance of having a reaction is there. I just want you to have the information so you can do the informed consent thing. Using valproic acid as an example is a bit creepy to me as I took that drug for a time.. way back in the old days when I had a suspected seizure disorder post first accident in 85 hit my head hard a few times in that crash. 

What I can say about it is I would get up in the middle of the night and cook a three course meal .. only to be not hungry by the time I was ready.  I think it dulled me out made me stupid to the point where I did not think too much about my life. It was a long time ago and I would not take it again if it were offered. 

[Muddles]

I will stay away btdt. I don't trust anuyhing to be honest but the pollen count here is worse than it has been in years and people with normal brains are ending up in hospital with severe hayfever. It is terrible and I've got to the point of not leaving the house and keeping windows shut.

 

I'm so sorry about the chemcial sensitivity being so bad. I know it sounds crazy to a lot of people but it so real to us...its hell!! Mine are getting so, so bad that I think it will kill me somehow...sounds crazy but my mind is getting worse.

 

I watched this. Seems like those with chemical sensitivity have abnormal spec scans.

 

[Muddles]

Thanks for researching that for me. Looks like I'm gonna have to just suffer it out.

[btdt]

Did you ask Alto about that one she uses ... if you search the name here you will find her post about it ... ask her why it is ok if others are not.. maybe there is a reason she picked it. 

 

There is a movie about MCS they are trying to raise money for it here

https://www.kickstarter.com/projects/thesensitives/the-sensitives-a-feature-documentary

[btdt]

https://maisonsaine.ca/sante-et-securite/electrosmog/ehs-royfo.html 

 

Canadian doctor mentioned in the video above. Dr. Roy  Fox

 

This doctor has mcs he got at work when a furnace cleaner was accidentally put thru the furnace a lot of people in the hosp got sick the gov't could no longer dispute it.

 

"A chemically-sensitive physician

A gastroenterologist by training and professor of geriatrics at Dalhousie University in Halifax, Nova Scotia, Dr Roy Fox speaks from experience. In 1990-1991, he was among more than 600 people who became illbecause of indoor air quality problems at Camp Hill Medical Centre, near Halifax. The major cause of their illness was thought to be neurotoxic volatile organic compounds (VOCs), specifically mixtures of amines added to the boiler for their anticorrosive properties, accidentally introduced into the hospital’s environment for humidification purposes.

More than 100 of those affected, including senior staff such as Dr Fox, Camp Hill’s first Director of the Centre for Health Care of the Elderly, developed a condition called Multiple Chemical Sensitivity (MCS). Many remained disabled five years later and were unable to pursue any gainful employment. A significant proportion of those who became ill also developed electromagnetic hypersensitivity (EHS), also known as electrical sensitivity (ES).

Loss of tolerance
“Lessening of ES appeared to parallel improvement in health and reduction of chemical sensitivity… In the [few] patients where this has been identified as a major factor, addressing total body [pollutant] load or the use of desensitization techniques to lessen chemical sensitivity and allergy has resulted in significant amelioration of ES symptoms’’, Dr Fox wrote in a paper presented at the 1997 Annual International Symposium on Man and his Environment, which focused on bioelectricity. He explained how those poisoned at Camp Hill were affected: “The negatively charged amines have a more profound effect on membrane functions such as permeability. These changes in membrane function (…) are likely to result in altered function and altered electromagnetic characteristics.’’

(In a letter written to someone with EHS who forwarded it to us, Parisian oncologist Dr Dominique Belpommehighlights that “most living organisms — including bacteria — are electrosensitive. What individualises electrosensitivity is that certain susceptible organisms become more intolerant to electromagnetic fields (EMFs) than others as a result of prolonged EMF exposure.’’ Dr Belpomme has asked the World Health Organization to stop using the term Electromagnetic Hypersensitivity and adopt the one he coined, Electromagnetic Field Intolerance Syndrome.)

Following the Camp Hill poisoning, Dr. Fox completed a year-long fellowship in Environmental Medicine at theEnvironmental Health Centre, Dallas (EHCD) and Tri-City Hospital, Dallas, Texas. EHCD’s founder, cardiac surgeon William J. Rea, co-wrote the first scientific paper describing an effective method to evaluate electromagnetic field hypersensitivity. It was published in the Journal of Bioelectricity in 1991.

A unique medical centre
In 1994, Dr Fox was appointed Interim Director of the new Nova Scotia Environmental Health Centre, a 2-million-dollar state-of-the-art facility built by the province with ceramic tiles and other healthy building materials tolerated by chemically sensitive patients. He was appointed Director in 1997 and today he is Medical Director. The Centre, part of the Capital District Health Authority and renamed the Integrated Chronic Care Service, specializes in the treatment of individuals with complex chronic conditions such as chronic fatigue syndrome, fibromyalgia and acquired environmental sensitivities.

“We always have about 600-700 patients at any one time.’’ Some of them come from Quebec, which reimburses their medical fees because the province has no similar treatment facility. The fact that Nova Scotia physicians became hypersensitive “certainly helped’’ to convince the Maritime province to take environmental illnesses more seriously, recognized Dr Fox."

 

"Characteristics of chemical sensitivities

In 1999, six consensus criteria were identified by researchers for the diagnosis of MCS, which can be triggered by an acute or chronic chemical exposure:
• Symptoms are reproducible with repeated exposures.
• The condition has persisted for a significant period of time.
• Levels of exposure lower than commonly tolerated result in increased sensitivity.
• The symptoms improve or resolve completely when the triggering chemicals are removed.
• Responses often occur to multiple chemically unrelated substances.
• Symptoms involve multiple organs."

 

Overstimulated nervous system 

The same criteria can be applied to EHS, according to Dr Fox. “I see chemical and EMF sensitivities not as separate and unique illnesses, but as the manifestation of a common underlying change in the central nervous system. In the literature, central sensitivity or sensitization syndrome appears be a pathophysiological change that accounts for MCS, migraines, irritable bowel and bladder, fibromyalgia, chronic fatigue and difficult to treat chronic pain. Those affected have a lower threshold [of tolerance to various stressors] and higher excitation within the nervous system. Reviews on central sensitization were written in the USA by professor of rheumatology Muhammad B. Yunus. A whole variety of things keep this sensitization going, such as infection, endocrine dysfunction, environmental stress, psychosocial stress or chronic joint inflammation. Patients learn to limit their reactivity by avoiding the environmental triggers.’’

 

I would like to see some numbers on how many of these people once had a severe adverse reaction to prozac or some other psych drug...

[btdt]

Quoting McCandless here...."We know LDN increases output of endorphins, which helps mood and immune function. Pituitary controls this output, but pineal obviously plays an important role here also."
Dr. Jaquelyn McCandless 

 

for me to look at later... 

https://web.archive.org/web/20101202091319/http://www.topix.com/forum/drug/effexor/T2E0A0JG5NMQVJFQ3

[Muddles]

Pituitary and pineal part of the endocrine system - yep, these drugs have screwed that.

 

We can pretty much pinpoint the injuries - being the ones that are injured if that makes sense. Getting anyone to listen and take us seriously is he problem.

[btdt]

I know Muddles we are mimes nobody hears us... a flight of fancy his my not awake yet brain... said how would a mime get the point across to people who did not want to hear.. answer which is silly came up as graffiti  

 

I think we  have to leave the house to make it work but can envision giant wall of graffiti with witty phrases.  Tho I am not creative enough in my NOW state to think of much that is witty. We would have to hire some kids with spray paint to do the actual work call it work experience for the poor  - a summers job incentive if you like. 

 

 Effexor Activist had some nice artwork at one point the idea was to make bumper stickers which they did and present the information to the public.  Another suggestion was to order and distribute their printed supplies some of it was really inspiring tho most what it was about escapes my mind now... one idea I read there was to put pamphlets into waiting room magazines if you had a long wait it was suggested to keep a glue stick with your print materials and paste them over adds for Ads.  This idea and a few others like it are perhaps why the site was the first to be spammed and hacked out of existence. For a time after they were long gone I could find their art work in the form of posters about wd on different wd sites. If I happen to see any ever again (which I doubt I will) I will send it to you so you can see it. 

[btdt]

My latest experiment on myself seems to be a bust and things got so out of had I stopped taking all but the vit E yesterday.  It just does not make any sense to me.  Already day 2 of missing the Thiamine and choline I don't feel as well again physically or cognitively .. stopping seems to have put a stop to the unwanted songs in my head... already they are gone... but I have lost some brain power and my eyes hurt after very little time on here... 

I can't think to read what is to me a complex post on WC blog I tried a few times the words will not go into my head... It could be I am just going to have a migraine today as this is how it sometimes feels before one hits... or it could be I am missing the thiamine as it does not store in the system. 

 

The hope for Thiamine:

Vitamin B1 acts as an antioxidant, protecting the body from the degenerative effects of alcohol, smoking and simple aging. Deficiency symptoms include constipation, edema, fatigue, forgetfulness, gastrointestinal complaints, irritability, labored breathing, loss of appetite, muscle atrophy, nervousness, numbness, tingling sensations, weak and sore muscles and general weakness.

 

I sure feel like I could use some thiamine today... today I feel like I don't have enough... again. 

 

I have had to resort to coffee and half a Tylenol #3 ... yes I know this is not listening to my body this is pushing thru ... I have a lot of experience with mirgraine and if it is hellbent on coming nothing I have in my toolbox is going to stop it ...short of an old drug they took of the market called Wigraine tot his day I have not looked to see what was in that pill maybe today I will look. 

 

Just now I am looking at this site for a clue

http://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

"The lower part of the brain, called the brainstem, is a like computer, controlling the most basic aspects of survival, from breathing and heart rate, hunger and satiety, to fight or flight and reproduction. This computer-like function within the brainstem is called the autonomic system (ANS). The ANS together with the limbic system act in concert to regulate our most basic survival functions and behaviors. Both require thiamine to function."

 

Postural Orthostatic Tachycardia Syndrome or POTS , a type of dysautonomia (dysregulation of the autonomic system) seems to be the among the commonest manifestations of the Gardasil effect. Many cases have been diagnosed already, while others present all of the symptoms but have yet to receive a diagnosis. Dysautonomia and POTS have also been observed with adverse reactions to other medications, as well. Dysautonomia and POTS, at the most basic level, represent a chaotic state of the limbic-autonomic system. Let me explain.  Ok I get this I had it... POTS but what does that mean for thiamine and me today... 7 years later... 

 

Antioxidants like vitamin C protect us from the predictable “sparks” (as a normal effect of combustion) known as “oxidative stress”.  Vitamin B1, is the spark plug, the catalyst for these reactions. As vitamin B1, thiamine, or any other vitamin deficiency continues, more and more damage occurs in the limbic system because that is where oxygen consumption has the heaviest demand in the entire body. This part of the brain is extremely sensitive to thiamine deficiency  ok I get it we need thiamine... 

 

 

Why Might Gardasil Lead to Thiamine Deficiency?

We do not know for sure how Gardasil or other vaccines or medications have elicited thiamine deficiency, but they have. We have two girls and one boy, tested and confirmed so far. More testing is underway. Thiamine deficiency in these cases may not be pure dietary deficiency. It is more likely to be damage to the utilization of thiamine from as yet an unknown mechanism, affecting the balance of the autonomic (automatic) nervous system. It is certainly able to explain POTS (one of the many conditions that produce abnormal ANS function) in two Gardasil affected girls. Beriberi, the classic B1 deficiency disease, is the prototype for ANS disease. Administration of thiamine will not necessarily bring about a cure, depending on time since onset of symptoms, but it may help.

It is more likely to be damage to the uitlization of thiamine from as yet an unknown mechanism... been a long time too long I guess. I will read on...

 Thiamine deficiency affects the satiety center, wrecking its normal action. Paradoxically it can cause anorexia (loss of appetite) or the very opposite, a voracious appetite that is never satisfied and may even go on to vomiting. It can also shift from anorexia to being voracious at different times within a given patient. That is why Anorexia Nervosa and Bulimia represent one disease, not two.

So heart palpitations are common in thiamine deficiency. Its most vital action is in control of automatic breathing and thiamine deficiency has long been known to cause infancy sudden death from failure of this center in brainstem.

Thiamine Deficiency and Sympathetic – Parasympathetic Regulation

The hypothalamus is in the center of the brain computer and it presides over the ANS, as well as the endocrine (hormone) system. The ANS has two channels of communication known as sympathetic (governs action) and parasympathetic (governs the body mechanisms that can be performed when we are in a safe environment: e.g. bowel activity, sleep, etc.). When the ANS system is damaged, sometimes by genetic influence, but more commonly by poor diet (fuel), our adaptive ability is impaired. A marginal energy situation might become full blown by a stress factor. In this light, we can view vaccines and medications as stress factors. From false signal interpretation, we may feel cold in a warm environment, exhibiting “goose bumps on the skin”, or we may feel hot in a cold environment and experience profuse sweating. The overriding fatigue is an exhibition of cellular energy failure in brain perception.

Sometimes, it really is the simple, overlooked, elements that cause the most devastating consequences to human health. Thiamine deficiency is one of those elements.

there are comments and more articles about thiamine

The person who put this up is Dr. Lonsdale

From a site called Hormones matter... 

Time to lay down for awhile 

peace all

[Skylarblue75]

So sorry the supplements didn't work, I was really hoping and praying for you that they would have. So frustrating.

[btdt]

Thanks Skylarblue I was hoping too... I am not done yet tho.  It seems I have the symptoms of low B1 even tho I was taking it.. maybe it was not enough as I react badly offtimes I was being careful the link where this was suggested for chemical sensitivities had this to say

 

If you have a thiamine absorption/uptake problem, there is a supplement called \"Benfotiamine\" which crosses the intestinal barrier and is utilized far more easily than traditional thiamine supplements. Vitamin C and garlic will also help get traditional thiamine supplements into your blood more effectively. Many B-Complex supplements also contain some Vitamin C... Get this kind if you see it!

""Benfotiamine" may be worth a look. 

 

This link says thiamine deficiency is an effect of adverse drug reactions I have had a few this past year... and many in my life. If low thiamine is indeed a cause of multiple chemical sensitivity maybe I am not getting enough thiamine or with my defective liver ... maybe I need more.. hard to say but I am not done yet I am still looking. 

 

This link

http://www.hormonesmatter.com/sugar-thaimine-adverse-reactions/

Says there is a blood test for thiamine contrary to other articles I have read if a deficiency is proven with a blood test an IV thiamine can be given. Perhaps it is worth a test... 

 

" The mother of a Gardasil affected girl had done her own research and had come to the unlikely conclusion that her daughter suffered from beriberi.  Red cell transketolase, a blood test used to depict TD, showed that she was correct in her conclusion. Her daughter did in fact have beriberi and has responded, at least partially, to thiamine supplementation.  We know, from historical data, that long term beriberi responds slowly to treatment and sometimes not at all, depending on chronicity.  Since she has had her symptoms for approximately four years, I think that it would be fair to call this chronic. When the ANS is not functioning properly, it is called dysautonomia (dys, meaning abnormal: autonomia refers to the ANS).  Beriberi in its early stages is the prototype for dysautonomia, the commonest effect being dominance of the sympathetic branch of the ANS."

 

As you can see my chances are not so hot given the time line I am dealing with if a 4 year problem is a iffy to fix I am not too hopeful... but I would still try it. I don't have anything to lose at this point.. what is one more reaction to me when it comes to something that could really make a difference... this could be it and should be mostly safe.. it is NOT a drug at least. 

 

" The stress of the vaccination or a medication reaction triggers an energy crisis in the “reptilian” brain, specifically evoking autonomic dysregulation, typically with sympathetic system dominance and resulting in beriberi, POTS, or cerebellar  ataxia and potentially other syndromes.  Perhaps a rise in blood triglycerides as suggested by the Bruinstroop study, indicates the partial crippling of the parasympathetic branch of the ANS and sympathetic dominance.  High blood triglycerides might well be a  mark of the early stages of underlying autonomic dysregulation and thiamine deficiency and a potential risk factor for adverse reactions to certain vaccines or medications.

Addendum

A 5th case of post Gardasil thiamine deficiency has been identified; a young woman who developed severe idiopathic hypersomnia, a variant of narcolepsy, post vaccination. The patient is undergoing treatment with success. A full case study will be presented soon."

[btdt]

http://www.hormonesmatter.com/sugar-thaimine-adverse-reactions/

 

" The stress of the vaccination or a medication reaction triggers an energy crisis in the “reptilian” brain, specifically evoking autonomic dysregulation, typically with sympathetic system dominance and resulting in beriberi, POTS, or cerebellar  ataxia and potentially other syndromes.  Perhaps a rise in blood triglycerides as suggested by the Bruinstroop study, indicates the partial crippling of the parasympathetic branch of the ANS and sympathetic dominance.  High blood triglycerides might well be a  mark of the early stages of underlying autonomic dysregulation and thiamine deficiency and a potential risk factor for adverse reactions to certain vaccines or medications.

Addendum

A 5th case of post Gardasil thiamine deficiency has been identified; a young woman who developed severe idiopathic hypersomnia, a variant of narcolepsy, post vaccination. The patient is undergoing treatment with success. A full case study will be presented soon."

 

Sugar, the Autonomic Nervous System and the Liver

New research provides one more clue to our emerging theory of thiamine deficiency in post vaccine and medication adverse reactions.  The study: The Autonomic Nervous System Regulates Postprandial Hepatic Lipid Metabolism by Bruinstroop et al. demonstrates the influence carbohydrate intake has on autonomic control of liver lipid metabolism. Triglycerides are measured in a medical laboratory as part of what is known as the “lipid profile”, that includes the various components of cholesterol. The Bruinstroop study found that when the parasympathetic system was deactivated and carbohydrates were ingested, triglyceride levels rose significantly, inducing metabolic dysregulation.Other studies have found stress, combined with diets high in refined carbohydrates can increase blood triglyceride concentrations also inducing metabolic syndrome. Indeed, stress and the concurrent increased sympathetic system activity seem key to metabolic functioning with sugar intake triggering the ill-health.

[btdt]

note to self

Wigraine (ergotamine and caffeine) ® Tablets:  Each tablet contains the following:

Ergotamine Tartrate, USP      1 mg

Caffeine, USP      100 mg

[Muddles]

Interesting stuff

[btdt]

It can't hurt to have it tested not all people are completely fixed by adding thiamine but some are made a lot better... 

 

I can't find out why wigraine was taken off the market but in looking for it found why a lot of drugs wreck people even kill people... I posted it already but a few of the deathly reactions involved serotonin and norepinephrine...scary stuff. 

http://www.medscape.com/viewarticle/757499

 

I think in reading it and the next bit I posted with it that I have found one mutation I have based on the drugs I have reacted too.. I will be looking it up later. 

Hope your well Muddles 

peace

[Muddles]

[btdt]

Thanks for the song Muddles  

Bottom interesting word I keep thinking I have seen the bottom and life keeps showing me bottom takes on many forms. 

Still nice to start the day with a song it is time to watch my Sunday morning Coronation Street to see how Steve is getting on with his new antidepressants... I keep hoping he has a SAR... but think it unlikely. 

 

Maybe when he quits taking them he will have protracted withdrawal I can only hope. 

 

Peace to you Muddles 

[bluebalu86]

Hi btdt I wanted to thank you for posting on my thread, your contributions are valuable to me. Hope you have a good day today. Hugs and kisses

[btdt]

Thank you Blue we are all in this together even tho we suffer alone in our lives. I hope to turn this into something positive at times that means reaching an uplifting hand back to those following behind me.  When nobody else gets it I know how hard it is to maintain any semblance of hope. I am maybe an odd one to offer it as I am so long dealing with this subject still I have improved and we can't ever stop trying to get to the next level of improvement...lay down rest ... regroup... rethink .... find a new plan.. sure do all those things they are part of the process...but don't ever give up. Thanks for visiting me

peace

[btdt]

My post are disappearing from this site... I have thought so in the past now I know it. 

[Muddles]

You watch coronation street? Lol

I'm did watch it before this but don't really watch anything now. I remember my mum was talking about Steve taking antidepressants a while ago - you must be a bit behind us there.

 

Why are your posts disappearing?

[Muddles]

I am reading your posts but can't take it in.

 

What supps are good for sensitivites? I am so brain dead at the minute.

[btdt]

supposedly thiamine and phosphatidyle choline that I just stopped taking... 

 

I read a post by Alto about phsophtidyle choline after I started taking it and she said it can be or go rancid... at that time I thought maybe when I finished this bottle I would get the one suggested in the link... it is here some place I did not keep it as I know I can always find it again that is what I do hunt my days away... I have thought if the oil in the choline I have is rancid that could be why I reacted given the sad state of my liver... 

 

choline is good for the liver... that I know 

[btdt]

I can't find it Muddles I looked for the post about the rancid stuff .. can't find it maybe later 

peace

[Petunia]

My post are disappearing from this site... I have thought so in the past now I know it. 

 

If posts go way off topic in a thread, they will sometimes be hidden, this is out of respect for people who have searched for information on a specific topic and don't want to have to wade through a lot of irrelevant material to find what they are looking for. If you are going to post something possibly off topic and you want to be able to find it again. It would probably be better to post it here in your own thread.

 

Sometimes people start topics which would better be suited to another part of the site, in these cases the topic is moved. If there is no obvious place, the topic may be put in off topic or merged with the member's own introduction thread.

 

We try to keep this site well organized so that when people search for specific information they can quickly find relevant links.

 

If you have lost something, it may be here in your own thread.

[btdt]

 

My post are disappearing from this site... I have thought so in the past now I know it. 

 

If posts go way off topic in a thread, they will sometimes be hidden, this is out of respect for people who have searched for information on a specific topic and don't want to have to wade through a lot of irrelevant material to find what they are looking for. If you are going to post something possibly off topic and you want to be able to find it again. It would probably be better to post it here in your own thread.

 

Sometimes people start topics which would better be suited to another part of the site, in these cases the topic is moved. If there is no obvious place, the topic may be put in off topic or merged with the member's own introduction thread.

 

We try to keep this site well organized so that when people search for specific information they can quickly find relevant links.

 

If you have lost something, it may be here in your own thread.

 

It happens to me a lot. 

Some has been put in my thread but a lot the majority of it that has gone had not been put in my thread.  Is there anyway I can access all of the information I have put here and keep it for myself? In my own private storage not on this site.  

[Petunia]

If you click on your name on any of your posts, then go to 'find content', on the right hand side. All your posts will be listed there, you can search in various ways by listing the topics you started or only posts or by date or replies etc. Unfortunately, this only goes back to July 2014, I think this is when the software was upgraded. But I'm not sure, it might just be limited to the previous 12 months.

 

Sometimes its possible to find earlier threads and posts by using google, by typing in survivingantidepressants.org and key words you are looking for, or your own name, but even that doesn't always bring great results.

 

Its always a good idea to keep copies of any of your own material or important links, if they are important to you. Technology is never 100% reliable and things sometimes go missing, even with the best of intentions.

 

Another reason you might not be able to find your posts is because threads are regularly being merged with similar threads, especially in the symptoms forum. Members often start multiple topics on the same subject, once they drop down the list and replies have slowed down, they get merged with a similar existing topic if there is one, there usually is. So if you have followed or bookmarked a topic/post, and it gets merged, then that link will no longer work. But you should be able to find it through your content page.

 

The best way to not lose track of your own posts is to add to existing topics where appropriate, rather than start new ones. Start new topics in the proper places and when adding comments to existing topics, stick to the topic being discussed, usually as set in the first post.

 

You do heaps of interesting research, not all of it related to withdrawal, it deserves to have its own space where you have more control over it.

[btdt]

Update my computer died... won't be here as much.

Peace all

[InvisibleUnless]

i was wanting to mention to you (but your PM box is usually full these days)---perhaps one of the reasons you have a lot of trouble with technological glitches or failures is your EM field.  people with neurological illness are often emanating EM fields differently than healthy people, and shifting states or extreme states can impact surrounding electronics.  computers, hard drives, wireless signals, and even things like street lamps can be interfered with or damage through exposure to some types of fields or field changes.

 

hopefully youll find a way to be back around before the summer is up.

[btdt]

I am hit and miss breaking house rules using this computer but my time is limited here... bit here and there when nobody is home. yes I am bad.... 

 

Odd you should say that... who knows about feilds we know human are part electrical... when electric watches first came out mine kept breaking something was said about it at the store they fix it I tried it broke again... something to that but I don't think I am breaking the computer if I had that kind of Carrie power it would not be my computer that got hit ... can you guess what would get hit... LOL I bet you can.