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June 2016

 

In addition to impacting memory, chronically low calcium and magnesium levels in the diet have also been shown to correlate with a high incidence of neurodegenerative diseases.

 

The development of magnesium-L-threonate appears to have shattered that barrier. Studies show that this compound enters brain tissue more effectively than other magnesium preparations, and is significantly more effective at restoring memory functions and brain plasticity in numerous animal models, including those of Alzheimer’s disease.

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http://www.lifeextension.com/Magazine/2016/6/Unique-Magnesium-Compound-Reverses-Brain-Aging/Page-01?sourcecode=CVE601E&utm_source=PRODUCT&utm_medium=email&utm_content=Article&utm_campaign=CVE601E

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I have only had one visit with the osteopath.  She worked on my head most of the time may have been doing a cranial sacral thing as she did get to the sacral area later.  She said something was not flowing in my head... if she had said blood I would have believed her tho I know it would likely not be true.. I use that term a lot I have no blood in my brain it is starving as that is how it feels... when I cannot think or get lost ect.  It is very perturbing to me... when I can't think and those bad moods come with it not sure which came first can't think bad mood seem to be the more normal way it goes. I could feel something changing as she worked on my head it is very difficult to explain... way less intense than a brain zap for sure but some bits of tingling and pulling not painful... just odd. The biggest thing I have noticed since is I have bad reactions on the bus but only some times... I don't get it.. once going to the city the bus was very bumpy... felt horrid second time coming home from a short trip... when I got off the bus I was staggering and losing the light... hit and miss could no see right... I had to sit for a time once I got across the road which I am not sure how I did... then the rest of the day I slept. That is the end of the story. I do not feel any better and she is booked solid so tho she wanted to see me in two wks it will be more like a month before I can get back in.  Getting 3 appointments with her may take 3 months... bit of a lag to make a decision. It maybe the bus issues were something more related to MCS chemical sensitivities.. the first bus for sure was deisle the smell was making me feel ill.  It is so difficult to tell when there is so much crap going on. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

sadly I can't buy this product

"Patients- Researched Nutritionals® products are available only through qualified healthcare professionals. If your doctor has provided you with his or her physician code, please register by clicking the link below. Your account will be active and ready to order immediately."

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I just noticed my signature is wrong... 

 

I went to half dose of celexa in 2005 and to none in 2006 after I had been sick a long time one infection after another always on antibiotics has a gastro bleed pancreatitis sinus and lung infections were constant... I quit the other 20 mg after being sick like this a long time.  Drugs were given to treat all the fallout including ppi drugs and lipid lowering drug called lipitor... I got more and more ill...a hperphilliac drug to slow my periods which were constantly extreme... . I could not work.. I could not get up.

2006 head drops and foot drag sent me to a neurologist who checked me for MS and took me off effexor cold turkey... tried to put me on cymbalta... I could not tolerate it or any of the brain drugs that followed.. mirapex lyrica domparidome and many others... I don't know how to change this I could use some advice... 

I kept trying to do what the doctors said.. in Nov 2007 I quit all drugs including all listed above and any drugs the neurologist had given me.. tho none of them helped me. 

By the time I quit I had been in bed a long time had travelled to other cities to some of Canadas best hosp... it became apparent they could not or would not help me. I could not eat could not go to the bath room could not think... I quit... here i am. 8+ years later it has been a long road.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

Hi btdt,

 

I got a call from Dr. Grace Jackson's office.  Getting some paperwork sent to me.  And then hopefully an appointment in September.  Her intake person said they TAKE my insurance!!  I still have to call to verify that though......with my insurance company.  I will ask about "cash" payments as well when I call for the final scheduling and let you know.

 

Exciting if I do it.......but I am mellowing about all that.  Unknown if she "might be" a supplement peddler as well.......I hope not.  Wary of doctors in general.  They are out of the office alot......another break coming up.....maybe she is on a speaking circuit which would be good.  I hope she has done a lot of reading as well.......here and wherever else she might find how very sensitive we can be.  I did mention SA to her intake person.

 

Best,

MMT

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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I am excited for you I did call her long ago and did not get a call back so she is real and does have an office maybe I will try again.  From what I recall from her books I had a look at them years ago .. she is up on the science and the damage.  I did see one page of what she thought of how to heal this but I can't recall where.  I may have put it here ...likely did but which one of them I can't say.  

I wonder if the person who answers the phone would have anything to say about how she treats people... maybe I will try calling her tomorrow nope Monday.  

 

I have been complaining about appointments this wk every day I have to be some place and most of it is mostly crap... most is... not all..I even turned down three surgery dates to fix the hernias I have been waiting to be repaired since last year... I am just not up to it... and I am going to call a doc in Arizona...there is something a bit irrational about how that sounds even to me. 

 

September is not so far away... I seen a surgeon in Oct last year who said he would have me in Jan - Mar... I got a call saying I would be going on June 1 I actually said yes as I still wonder how much of the pain I have is from the hernias ... the doc said it would not help my pain to have them repaired... so I said yes and then laid down for a few minutes and could find not peace with the idea... so I called back and cancelled it .. I am just not up to a surgery just now. 

 

I am so happy you got a call maybe I will call on Monday who knows how well I may feel by September or December or next year... :) 

I am glad you let her know about SA maybe she will become our MD guru :) that could really step up the credibility for both her and us... the more I think about it the better an idea I think it is. If that is ok with Alto and I can't see why she would not welcome an alliance with a top notch doc.  I hope the secretary tells her and she looks up the site. 

 

please keep me in the loop and thank you for letting me know

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

I think my biggest fear of her.......is.........that she might tell me how damaged I am...........and really, in no way, would that help with my healing.  I think I am looking for someone positive and to validate what my experiences have been.

 

Dr. Jackson's voice on her messaging system does sound right though.......I mean one of those comforting voices right off the bat.

 

Her intake person was understanding and verified that she, Dr. Grace, saw patients with iatrogenic damage and neurotoxicity.  And it does sound like I will get some good individualized and hopefully holistic care from her.  The intake person also had no problem whatsoever with me questioning a bit and always came back with a decent response.

 

So.......I will honor this person Dr. Jackson, in hopes that she reflects that back to me, and we both gain something.  Not knowing what that is yet.......is okay.

 

btdt, I think you must be listening to what your body is telling you now and that should be okay.  On hernias........I mean I know nothing really.........do they ever spontaneously resolve?  Do they cause pain issues?  So, anyway.........nothing sounds so irrational........perhaps it was the surgeons that made you feel that way and all the appointments.  I mean here in the States it's not always a great experience either with all of them...........they can be so abrupt to the point of being downright rude and discount so much that you tell them that it makes you feel like a body without a brain.  Yet......I have had some who are real decent and their staff usually has at least one I can make a positive connection with.

 

Hang in there.  I call again after June 22.  I believe they may be out of the office until then.......they may still be there on Monday however........from what I recall of our conversation yesterday.

 

Okay.  Rest easy.

 

MMT

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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I think your going in with exactly the right attitude lets see what happens maybe she knows something helpful that we have not found yet that is the hope.  No matter what she has to say it can't change the amount of healing you already have it is yours you worked for it and you own it... she is not the tax man :) 

 

I don't know if hernias can spontaneously heal that is something for me to look up.  All I know is I had one for a long time I was told it is from an incision from the gallbladder removal that the original incision was 8mm too high or too low.  It is the incision in the centrer.  I was in wd when I learned of it.  After the car accident I had in 2012 I had pain on the right side a lot of pain... I learned a few wks after that I had a broken rib so thought the pain was all from that was told it was... tho I had severe digestive issue at that time too and had to go back on a ppi.  So fast forward 2.5 years to last August a God awful pain and a lump came out my side.  After slowly getting into the least painful position I pushed it hard for a very long time it went mostly back in. As soon as I could move I went to the clinic and US showed hernia just to the side of the R incision for the same laparoscopic gallbladder removal.  The pain I had had for 2.5 years eased some after the hernia came out.. it was very painful off and on as it would slip out and I would push it back in.  It has not been out in some time now. I thought the second hernia had something to do with the pain in the side since it eased after the lump came out... seems it moved down.  The surgeon was going to fix both hernias.. the center and the Rside one. He told me at the time fixing both hernias would not affect the pain.  I did not believe him I don't know why instincts I guess.. I hoped it would.  I wanted to try and see if it would fix the problem.  

 

The other thing about this entire situation that I have wondered is this.. when I had the gallbladder out I was on ADs .. after the surgery I was bleeding from the incisions they did not heal well and I had an infection.  

 

Long after all this life I had a gastro bleed.. and learned after I stopped ADs that they can cause bleeding... I am wondering if the not healing the bleeding after surgery ... was caused by the drugs.. just as I suspect the heavy periods that did not stop after my ovary was removed was caused by the drugs... periods so bad that after the ovary and cyst removal did not stop the heavy bleed I was put on haemophiliac drugs.  

 

So I can't help but wonder that none of these incisions sealed properly due to the bleeding issues caused by the drugs... and if I could get it fixed it would be one less AD gift to that could keep on giving. 

 

long old story about hernias... drugs and life... 

 

it all seems so obvious at the time but when walking around with an effexor brain none of it was clear... one day I am going to post that consciousness or lack of how I experienced it while drugged... I could not write it now as I can't remember so it is good I wrote it when I did. 

 

Seems I have lost the plot again... going now 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
 
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The exact cause of narcolepsy is unknown. There may be many causes. Most people with narcolepsy have low levels of the chemical hypocretin (hi-poe-KREE-tin). Hypocretin is an important neurochemical in your brain that helps regulate wakefulness and REM sleep.

Hypocretin levels are particularly low in those who experience cataplexy. Exactly what causes the loss of hypocretin-producing cells in the brain isn't known, but experts suspect it's due to an autoimmune reaction.

 

Research indicates a possible association with exposure to the H1N1 virus (swine flu) and a certain form of H1N1 vaccine that's currently administered in Europe. It's not yet known if the virus directly triggers narcolepsy or whether exposure to the virus increases the likelihood that someone will have narcolepsy.

In some cases, genetics may play a role.

Normal sleep pattern vs. narcolepsy

The normal process of falling asleep begins with a phase called non-rapid eye movement (NREM) sleep. During this phase, your brain waves slow considerably. After an hour or so of NREM sleep, your brain activity changes, and REM sleep begins. Most dreaming occurs during REM sleep.

In narcolepsy, however, you may suddenly enter into REM sleep without first experiencing NREM sleep, both at night and during the day. Some of the characteristics of REM sleep, such as cataplexy, sleep paralysis and hallucinations, occur during wakefulness or drowsiness in people with narcolepsy.

 

tidbits to search when i am up to it.. 

 

The Science of Narcolepsy | Narcolepsy
healthysleep.med.harvard.edu/narcolepsy/what-is-narcolepsy/science-of-narcolepsy
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Jul 19, 2013 - In addition to revealing the normal role of hypocretin neurons in the brain, ... that increase brain levels of norepinephrine and serotonin.
Differential effect of orexins (hypocretins) on serotonin release ... - NCBI
www.ncbi.nlm.nih.gov/pubmed/16820265
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by R Tao - ‎2006 - ‎Cited by 55 - ‎Related articles
Neuroscience. 2006 Sep 1;141(3):1101-5. Epub 2006 Jul 3. Differential effect of orexins (hypocretins) on serotonin release in the dorsal and median raphe ...
Functional link between the hypocretin and serotonin systems - NCBI
www.ncbi.nlm.nih.gov/pubmed/25878157
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by AE Corcoran - ‎2015 - ‎Related articles

Apr 15, 2015 - Functional link between the hypocretin and serotonin systems in the ... We examined effects of acidosis, hypocretin-1, a hypocretin receptor ...

 

Orexin, also called hypocretin, is a neuropeptide that regulates arousal, wakefulness, and appetite. The most common form of narcolepsy, in which the sufferer briefly loses muscle tone (cataplexy), is caused by a lack of orexin in the brain due to destruction of the cells that produce it.

 

just an idea that lack of this Hypocretin.. as cause of sleep issues ..sudden onset sleep .. and maybe lack of brain power and inability to think when it hits on a very regular bases... 

 

note to self and anyone else who care to do research  orexin neurons co-localize glutamate all neuropeptide dynorphin

 

idea lack of brain power ... use of brain caused by fluctuations in hypocretin any way to increase? 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

About  year ago during a neurological examination my leg did some unexpected things... I was told it was a psychogenic movement disorder... I looked that up. 

http://www.ninds.nih.gov/disorders/psychogenic_movement/psychogenic_movement.htm

 

A multi-therapy approach to treating psychogenic movement includes psychotherapy, placebo, or suggestion; antidepressants for symptoms related to depression or anxiety; cognitive-behavioral therapy to identify and alter thoughts and feelings that may be causing the psychological illness; physical therapy;  and rehabilitative and occupational therapy to improve performance of activities of daily living.  An experimental treatment is transcranial magnetic stimulation (TMS), which can alter electrical activity in the brain’s cortex (the region that controls movement) and may reduce movement frequency.

 

bah humbug... 

 

psychogenic disease wiki

https://en.wikipedia.org/wiki/Psychogenic_disease

Examples of diseases that are believed by many to be psychogenic include psychogenic seizurespsychogenic tremor and psychogenic pain.

There are problems with the assumption that all medically unexplained illness must have a psychological cause. It always remains possible that genetic, biochemical, electrophysiological or other abnormalities may be present which we do not have the technology or background to identify.

psychogenic diseases include...

it could all simply be wd still... 

ideas?

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

There is something on my back at the L3 my family doc does not think it is anything much she did say it was a ... I can't think of the word.. oh cyst... but physio guy did not think so.. so we did an ultra sound and it was not a cyst... what it is really is undefined... and there is no interests in looking further to take a biopsy she said could cause more damage and would not be worth the bother.. so it could be that but the memory is not that... 

thought I had better put that in in case it turns out to be caused by whatever that is and I do not want people to worry they will get this if it has nothing to do with the Drugs... 

 

I asked twice for an EMG from the neuro surgeon she sent me too... he tested my arm.. once said the leg did not need it.. it was my leg that was bothering me he would not test it. 

 

it is up in the air... still waiting to see if anyone knows this 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

S'okay to lose the plot btdt.  I have as well.  Morning meditations aren't going so well for me.  So easily overwhelmed.  Then to mostly self pity and tears, although lashing out a bit as well.

 

I'm not totally sure I'll make it to any appointments that far away as Dr. Grace.  I'll continue the process to that end and respectfully cancel if need be.

 

Trying to find a clear enough and calm enough time to contact my brother and wife.......to perhaps act as kind of case managers for me........help get me out of here with dignity......the house and all the responsibilities/financial and other...........maybe find a decent assisted living situation.......or decent enough.  I mean over the next year or twos time.  I just don't expect to see a window like I had last fall again.  And can't imagine finding the "right" kind of housemate that I could tolerate or they could tolerate me........slim chance I suppose of that.  Casper, higher power.......hopefully will make it clear enough soon and give me the strength.

 

I do see my regular Dr. next month as well.  I'll try to have the composure and all and ask for his help as well.  Maybe my insurance would help a bit with costs......I don't know.  Maybe he can give me an iatrogenic diagnosis or something. 

 

Headache this morning from the sobbing again.  Maybe more hopeful later..........

 

Apologies for the downer reply but thank you.........it helps to get it on out.

 

MMT

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

You will get another window... I can't say when but that is how it goes they come and they go.  What kicks my butt is the how the symptoms change it they would stay the same I would know what was going on.  Please don't make any life changing decision when your in a wave ...yes ask for help see what is out there it does not hurt to know your options.  I sure hope you can make it to the appointment... how far is it from you?  Would you have to fly?  How long of a flight would it be?  I too think along those line of a house mate I would not want to strangle she would have to be mother Theresa... a quiet clean one... no masses to feed messing up the place and causing distraction... :) just joking of course. 

 

If you find you can't make the appointment I suggest you offer it up to another SA member who may be interested what do you think?  

 

There may be some takers.  It is worth considering but I am all for playing it out till then and seeing what the universe has in store.. it may be a yes go see her... all systems could be go by then. 

 

I am like this too I worry a lot about being able to see to the issues I need to and usually just force myself but it is not always possible. 

 

Please take good care and don't think about it just now it is a long way away in wd terms... a lot could happen by then. 

wishing you peace B

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

Talked to my brother and just put it out there as a maybe.....let's brainstorm.......think about type thing.

 

I don't even have the appointment yet.......the paper work is coming via mail as my printer is out and they want releases signed for my doctors of the past and all that.......then I call after June 22nd for a date.  I think anyone could call and get wait listed at this point to see her.........I mean if worst comes to worst........I can let you know that I canceled.......my guess would be they have a nice list to plug in when people cancel as well.   Not sure where to post if I cancel that someone else would want the appointment.   So.......a day at a time on that.  Oh......I should ask them if they want me to get any specific labwork when I see my Dr. in July as well.  I need to study up here a bit too.......on lab work and all.

 

Meanwhile.......going strong in AA for both my dependencies(on quick fixes) and alcoholism(in the broad sense but it does fit for me).  Which is helping get me out.....do a program......fellowship, etc.  30 days out from my herb use now and will do my best to abstain from anything else......a day at a time.  :)

 

What will be ironic......truly.......is if Dr. Grace prescribes some form of medical marijuana blend or liquid or something.  I'd be up for it though.  LOL.  The last batch I had was truly making things so much worse in so many ways though. 

 

I haven't really figured out travel plans.......hoping I can drive but possibly fly to Mum's and then go up from there.

 

I am catching rays today and then will go collect my chip at AA..........get closer to my higher power Casper and faith in general and hang out with some pretty cool people.

 

It's sort of like window time.......and reality check time.........and acceptance and all that.  Hope to get the physical going stronger soon too.........a miracle really that whatever was causing my great hip flexor pain is in remittance.  Energy and motivation are slowly.......surely.........on their way now.  I just have to accept this awful slowness of mind and wit sometimes.  Humbling.......is good.

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

It would seem passing the apt around is not an option I am glad she is being through but I am always a bit leary of sending one docs opinion to the next as many can't see their noses in front of their face and will just fall in line with the previous one as to disagree would be back manners or something to hell with the patient.  She is suppose to be of smarter stuff lets hope she is seems her integrity is intact from all that I have read about her ..if it all holds true only good things could come from this.  If she disappoints you she will certainly get a slamming on here and be out the door.. I am fast to judge aren't I.. I don't care I don't have any more time to waste on doctors who can't help. I am looking for the ones that can I think she may be it.  I am so appreciative that somebody is finally going to see her. It maybe she can't do much but I want to know if that is the case... I think we all want to know including you obviously. 

You know I have had so many doctors I have seen in the past year ask me if I have tried medical pot and i have not... I have sensitivities to smells and some really make me sick I don't know if all pot is the same but mostly it just makes me ill to smell it so does perfume and cleaning products and countless other things so it is not just pot.  So I tell all these docs I can't use pot cause the smell makes me ill.  Maybe they know something I don't.. I am not being a nay sayer about pot there are some cases pot is the only things that helps.. like seizures I seen on tv.  A young child could get relief only with pot but it had to be the right strain from the right plant... I am sure it is all quite technical to make it just right for that problem. 

I did try pot one time years ago and had to go to bed and stay there only a little pot for me was like a little bit pregnant... way too much I could not deal at all.  I am not ruling out some drug made from pot may be perfect I just doubt there is any perfect drug at this point as all drugs seem to hurt me now. 

I think you take what you need and leave the rest at any group including AA there is bound to be some things that will grate on you while in wd even with well meaning groups.  I know I tried a group for women a long while back and could not tolerate one meeting I got up and left part way thru... so if you can do it and find help there good going.  As with all things that you find help do them take them work them.. I encourage any kind of activity that has you with the living.. as for brain fog it is to be expected. What I hate is the embarrassment of dead brain in wd when I can't do anything maybe it is just me but I don't think so I have been looking for others with this and have found some... so whatever it is that is bugging you today wait... wd will change and it will be something different before you know. 

I wish you peace B

 

There is something about signing B... like just BE that is appealing to me today I think for the rest of this evening I will just BE. :) 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

By pot Do they mean cannabis oil? Taking the oil is different and safer to smoking it.

I have a friend with cancer and it is really helping him....it has great benefits for a lot of illnesss' . I am surprised doctors have been recommending this to you! Big Pharma are already losing out because so many are now using the oil instead of their dangerous drugs.

I wouldn't risk the oil though. We are far too sensitive. Something I would definitely recommend to friends and family for certain illness' over addictive dangerous prescription meds though!

 

Always thinking of you.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

Link to comment
  • Moderator Emeritus

Hi btdt,

 

Yah......I balked a bit when Dr. Grace's intake person told me about the old records thing........wanting releases and that "Dr. would look at all that before our appointment".  But it does save time and I do recall way back when learning that.......history is the most important piece of the puzzle when seeing patients and trying to help.  No doubt she sticks to some of her medical school training and background.

 

For me.......I need to do my part and gather my own data and write it up for her.......on myself.......and withdrawal.......and psych history and all.  Get it all sent over to them prior to the appointment time.

 

There is another town in Az. that I have always wanted to visit called Sedona........really close to their location.  So.......with planning and all........I get to go there and explore a bit too, while pursuing what this Dr. has to offer.

 

Feeling really good now.........a window??  Sure hope so.  The herb being out of my system to some degree?  Hope so too.  Originally.......it was really happenstance that I ran into some helpful herb awhile back.  I think it did help when I came off Seroquel as well as last summer when I was really struggling post adderal and less than a year post Lexapro.  Hopefully........I won't have deal with too many repercussions healing wise.  It is what it is.  Choices and such.

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

There is not one thing you can do about what has already been done except consider it when it may affect the future.. that is it.  I spent a lot of time thinking about this when I was in early stages and having somewhat linear improvements if I looked back over  a year (avoided the window wave idea) I could see some linear healing like now i can eat.. go to the bath room not throw up get out of bed walk ect... it looked like I would heal rather quickly as in 3-4 years I could be normal.  At that time I thought a lot about how I would move forward with my work life.  I went from working with kids to being a stripper ... I know very well no stripper is ever getting hired in any of my previous jobs ... so it is not like I can just put that on my resume. It is a problem I did not have to worry about... but I did.  There is nothing I can do about what is done not a thing and I cannot for one moment expect people to take my previous good works into consideration... even I would feel like a fraud then as I cannot do the same level of work or function anywhere near the level I did.  Every job on the old resume required a level of trust and sound judgement it does not equate with the title of stripper and became a bit infamous at one point in a small circle of people. We cannot go back we can only go forward pot smoking and any other illicit drug use once done just like AD use once done it is done and all we can do is move forward.  Use of any sort of drug that changes you and your life completely will bring with it's healing some shut doors and open others perhaps that you did not know existed till the healing starts.  It certainly is a process and one that requires forward movement and forward thinking.  I think as we heal this forward stuff should kick in naturally as our functioning improves so give it time as time may be the greatest healer of all as we keep hearing ... lets hope it is true... have faith in the process as much as possible and faith in something bigger than you could help.. I don't want to be preachy.  Faith has been a big part of my healing .. or should I just say it has been a big part of my enduring while healing happens... both I think. 

We can't undo anything so learning to leave that type of thinking alone is a good idea and may take some work as there is not one thing we can do about the past.  The power of now helped a bit for me with that in it says the past has not power the future has no power both are unseen in this moment... no matter how the algorithms of our new age would like to analyse and categorise us humans decoding us down to the lcd... that fits the computer system.. we are more than that and it misses the essence of the situation... which is I think at the end of the day more important than anything... we will be what we were meant to be and no crunching of the number or code is going to change that should we live and survive this we will beat it all eventually in part by ignoring the code... that is synthetic and relying on what is organic.  The systems have some power without our input but should we buy in than we are owned... I don't want to be owned and I am going to stick around and see what happens.  As I am of the mind that it is all over the second I say it is over and that option will always be there till it isn't. That may sound  bleak but tome it isn't it is a control issue as I have lived a life controlled by many things at this point I am done with it and I will say how much of this crap I am willing to take. I have a bit of knowledge they say that is a bad thing maybe it is but it is all I am allowed so I will take it and with it make new choices for a new life.  What it will look like is anybodies guess but it will be life which I do deem sacred for the most part and it will be my life .. to see what happens.  

Bit long winded perhaps but taking it all in small bites and not being too freaked out by what I see and going on faith has at least kept me here a long time... lol... so I feel in some small way I am winning. kind of... 

 

Past is done we can't do anything about it wasting more present life on it after it has been sucked dry of any lesson is just a waste of now... of life. 

Let it go best you can and seek peace in the now... best you can. We are only human after all. 

 

I am glad you found something else you want to do when in Arizona .. oddly enough my husbands family owned land there for many years... I think it sold.  I hope it is a good trip for you. 

 

As far as previous records there is not much you can do about it .. if she is what I think she is.. she already knows what the fallout of each drug can be... how it affected you would be what I would be putting on the list... drug name effect on specific person... as it does not matter what the drug is suppose to do.. not to us.. what matters is what the drug actually did... end of story. 

 

I think she needs it to streamline the process... if it turns out to be something crappy she will have to be stricken from the list of hopefully helpful doctors... I have a small list in my mind she is at the top.  Given the books she has written and the topics she covers online I am thinking she will be anything but a disappointment... I sure hope I am not wrong but I expect her to understand this better than anyone who has not taken the drugs... she may not have a cure but she may have some ideas of what direction to take to make the road easier.  

 

We will only know by doing like any thing in life... the longer I live the more I know what I don't want to do... I need to add to the list of things I do want to do. I am not sure how to start that list as it has to be changed from what normal things people would do like vacation... I know what it use to mean I use to like it now a typical vacation would be torture for me..( due to chemical sensitivities temp fluctuation in tolerance ect) or heal.. I am still going to try to heal it but if I can't  I need to rethink this new life... there is a lot of that to do... researching new things to see what works and what doesn't. 

 

It is different but it is still life I am happy your in a wave for as long as it lasts and I wish you peace and positive experiences... but mostly peace :)

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

part of my story poor old liver...

 

Published on 24 Mar 2013

For more information, log on to-
http://shomusbiology.weebly.com/
Download the study materials here-
http://shomusbiology.weebly.com/bio-m...
Glycogen phosphorylase is regulated by both allosteric control and by phosphorylation.

Hormones such as epinephrine, insulin and glucagon regulate glycogen phosphorylase using second messenger amplification systems that are linked to G proteins. Epinephrine activates adenylate cyclase through a seven transmembrane receptor coupled to Gs which, in turn, activates adenylate cyclase to increase intracellular concentrations of cAMP. cAMP binds to and releases an active form of protein kinase A (PKA). Next, PKA phosphorylates phosphorylase kinase, which, in turn, phosphorylates glycogen phosphorylase b, transforming it into the active glycogen phosphorylase a. This phosphorylation is added onto the glycogen phosphorylase b serine 14. In the liver, glucagon activates another G-protein-linked receptor that triggers a different cascade, resulting in the activation of Phospholipase C (PLC). PLC indirectly causes the release of calcium from the hepatocytes' endoplasmic reticulum into the cytosol. The increased calcium availability binds to the calmodulin subunit and activates glycogen phosphorylase kinase. Glycogen phosphorylase kinase activates glycogen phosphorylase in the same manner mentioned previously.

Glycogen phosphorylase b is not always inactive in muscle, as it can be activated allosterically by AMP. An increase in AMP concentration, which occurs during strenuous exercise, signals energy demand. AMP activates glycogen phosphorylase b by changing its conformation from a tense to a relaxed form. This relaxed form has similar enzymatic properties as the phosphorylated enzyme. An increase in ATP concentration opposes this activation by displacing AMP from the nucleotide binding site, indicating sufficient energy stores.

Upon eating a meal, there is a release of insulin, signaling glucose availability in the blood. Insulin indirectly activates PP-1 and phosphodiesterase. The PP-1 directly dephosphorylates glycogen phosphorylase a, reforming the inactive glycogen phosphorylase b. The phosphodiesterase converts cAMP to AMP. This activity removes the second messenger (generated by glucagon and epinephrine) and inhibits PKA. In this manner, PKA can no longer cause the phosphorylation cascade that ends with formation of (active) glycogen phosphorylase a. These modifications initiated by insulin end glycogenolysis in order to preserve what glycogen stores are left in the cell and trigger glycogenesis (rebuilding of glycogen).

Phosphorylase a and phosphorylase b each exist in two forms a T (tense) inactive state and R (relaxed) state. Phosphorylase b is normally in the T state, inactive due to the physiological presence of ATP and Glucose 6 phosphate, and Phosphorylase a is normally in the R state (active).

An isoenzyme of glycogen phosphorylase exists in the liver sensitive to glucose concentration, as the liver acts as a glucose exporter. In essence, liver phosphorylase is responsive to glucose, which causes a very responsive transition from the R to T form, inactivating it; furthermore, liver phosphorylase is insensitive to AMP. Source of the article published in description is Wikipedia. I am sharing their material. © by original content developers of Wikipedia.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I have added 1/8 teaspoon of vitamin C crystals I bought tode- chlorinate my bath water to my diet.  

 

See this thread here for other peoples experiences with Vit C use. 

 

I put it in with apple sauce simple old Motts no sugar added single serving cup I generally add my probiotic to this as per doc suggestion... and yesterday or middle of the night last night I added !/8 t of vitamin C.  

I was hoping I would get the calming effects and sleep I did sleep not sure it was because of the C could have been exaustion and I was at the 4am sleep time ... when I have insomnia I can often sleep at 4-5... adding coffee helps me .. I know sounds like it should not be but it is.... 

 

What I have noticed today is if anything ... the vit C has helped motility in my gut I have had several bm...today nothing odd about them except for the number of them and I have had a problem with motility since going off of E... years ago.. it would sure be nice if I could continue to tolerate the Vit C and it continues to work like this I may lose some stool weight.. I know it is gross but so are most things in wd... will let you know how it goes. I am still planning on using it in the bath to take out the chlorine as it works like a charm for that. 

 

PS 

I use to have a swimming pool and I was in it all the time as it was part of my "therapy" for chronic fatigue to be active oddly enough for 20 before I bought that house I always had a swimming pool where I lived since I was 19 years old... then on to owning my own home with a pool for 10 years.. so for a few decades I was swimming in lots of chlorine now I can't tolerate a bath with the amount in the local water supply... how very odd. 

 

It is just something I wanted to note... 

 

and i have not been eating fruit for ages as it seems to react badly on me so I have likely not been getting enough vit C this could be the missing link... lets hope.  time will tell.

 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
Hi BTDT,

 

I read up a lot about how you experienced loss of love while on these drugs.

 

I would really love to chat with you about your experiences.

 

Is it possible to chat with you on the phone? I live in Vancouver, also Canada :)

 

All the best,

 

Yana

2010 started 10 mg celexa, 2011 went up to 20 mg

06/2014 started tapering (20 mg,10 mg alternate days)

19/09/2014 crashed at 10 mg

20/09/2014 updosed to 20 mg to try and stabilize- Never stabilized and CNS basically plummeted

August 31 2015- Started my 5% taper anyways

May 3 2016- At 14 mg the tapering caught up with me- Withdrawal included severe anxiety, feeling like im on speed, suicidal and homicidal ideation, akathesia, feeling like I was on heroin, memory loss, PGAD, feeling like I was on an acid

May 4 2016- Updosed to 15.5 mg to try and stabilize

​June 4- Started taking 2 mg 5 times a day which adds up to 10 mg because of akathesia when taking my full dose. Akathesia symtpoms smaller

July 27th- Dropped from 15.5 mg to 10 mg because could no longer tolerate taking drug- bad side effects mainly akathesia and emotional deadness.

​Oct 11- Improved a lot since May 4th after my crash. Withdrawal symptoms still left- DR/DP, emotional anasthesia, akathesia, tingling in head, feeling like my body and face disappears, messed up sound interpretation, perception and difficulty reading social and emotional cues during DR/DP, apathy, inability to tell if I am in dream or reality, disturbed sleep. Started having few windows

Link to comment

Sorry I am not up for that right yet.  Maybe when I feel better... I will converse with you in pms better idea generally as I do not think well shooting from the hip these days ... not so hot in print either as some here will attest to.  Feel free to pm me anytime your odds are better of getting coherent answer...not a guarantee just better odds. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Bits from the MCS site

 

People with MCS commonly avoid eating peppers, saying that they sometimes make them sick. Research now recognizes Capsaicin, the main ingredient in hot peppers, as aggravating the NMDA neural receptor, which in turn brings on the MCS syndrome. This shows up just from nibbling a bite of raw Jalepeno pepper and suffering a wipeout the rest of the day.

Another aspect of the MCS illness that is getting attention is the concept of a body burden buildup and collapse process. The body burden is an accumulation of supposedly non-toxic chemicals, often ones that came into the human environment in only the last 150 years or so, that the human body does not have explicit evolutionary protection for. These chemicals are often sequestered in fatty tissue, especially in the brain.

During a serious illness, the body can draw energy from those fatty tissue reserves. If the tissue had a buildup of chemicals, those supposedly non-toxic chemicals can be released back into the body in a sudden avalanche. If the release is within the blood chemistry of the brain, a wide range of subtle neurological injury processes are possible.

It is a common story from MCS sufferers that they think they got their MCS from a long illness, or extreme exercise, or general weight loss that did not necessarily have anything to do with pesticide, etc., exposure, that they just "never recovered from." And then their health deteriorated into the MCS condition. I.E., The illness forced the body to use fatty tissue energy reserves that caused a release of sequestered toxins.

More information is at the Environmental Working Group site -

the Danish Ministry for the Environment considered the following materials as initiators:

Anesthesia gases Anti-viral Medications Carpets and Glue Degreasing Agents Diesel Exhaust Formaldehyde Hair-care Chemicals Indoor Pollutants Mercury Amalgam Methylmethacrylate New, Renovated Buildings Organic Solvents Paint, Lacquers Pentachlorophenol Pesticides Printing Materials Stress

The report concluded that solvents and pesticides are the most common MCS initiators and noted that claims that stress or psychosocial factors can initiate MCS are questionable.

Source -

Bodily Detoxification Impairment

DNA studies are showing that many people with MCS often have a genetic impairment in one or more bodily detoxification processes, such as the Cytochrome P450 pathway. Some people with MCS also appear to often have a genetic impairment that may facilitate the subsequent neurological injury processes.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Oh I wish there was some cure for this Chemical Sensitivity!

I have been bed ridden again after getting hit after the dog came back from the groomers covered in something. The smell was so strong that even my daughter started wheezing! Why would they put so much crap on a animal?!!

By Saturday I didn't know what I was doing - was still reacting to her even though my sister had washed her....left the house in the car extremely sucidal and in so much pain.

Got home and collapsed in bed - literally out for the count and drooling so my husband says....he was very concerned by this point and kept trying to wake me but I couldn't for the life of me stay awake.

It's really concerning - I mean what exactly are these chemicals doing to the brain? Is this why we are not making progress? It's only got worse for me and in order for me to heal, I need to sort this out. Thing is; I'm too mentally impaired to sort anything out!

How are you getting on with the supps?

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

Link to comment

I would cut the hair off the dog at another groomer ... no soap... or bonner for babies may be ok for dogs take it to them next time if you can... the dog would have to live some place else.  I don't know about the supplements yet... I was feeling better with glutathione vit E from sunflowers vit C... mag threonate even... a doc told me to increase that one yesterday as he had an idea I may be having seizure of a type you don't fall down... I have arm and leg shaking and severe leg jolts. 

 

I did increase it today no big fan of it ... 

 

but I have this lump on my back I was reading about this supplement called serrapeptase... how it gets rid of scare tissue and since this was some sort of damage from the last car accident I thought maybe it would just eat it away and I would escape that surgery... I do not want any drugs after the wk in bed I have not regained my strength still not to where I was before... I am trying hard to stay out of the way of chemicals but I do have to go out and that means perfume... ect..

 

So many men use Axe now I want to blow the Axe plant up... it makes me so sick.. it on the train I swear every second guy wears it how about some originality men out there... I have read that some people get oxygen for after an exposure... my doc is going away I would never get in before she leaves... but it is suppose to help recovery after exposure.. I talked to one lady at walmart who said a person she works with has an oxygen unit she uses at work .. I know it seems extreme but as in all else with wd and it's effects whatever works... 

 

I have used the serrapeptase for 3 days I feel changes in my body since using it at first better this morning I crashed and burned with pain... it was bad enough I just went back to bed... I improved some over the day... if I wake the same tomorrow I am getting my blood checked... if felt like liver or pancreas.. trouble.. I have had both before... last time I asked to have it checked I had pancreatitis.. according to my doc who sent me to a specialist who said I did not have it.. so there you go same old crap around here.  Still it is painful hurts like hell and can't do much... so if it continues I will check it... not sure if I will take the serrapeptase tomorrow as it could be causing the trouble.. 

 

one video I watch from a man who took it said as this drug takes all the dead tissue out of your body it can over load the liver... so maybe that is what is up today...

 

For getting something out of your system I would try the glutothione... vit C ...epsom salt bath if you can... vit c asorbic acid in the tub will take out the chlorine if that makes you sick.. I am liking it...

 

 both start low see what happens... there is always lemon and water and beets... my first two loves... 

 

Sorry Muddles I don't have enough experience with this to know more but those I think helped vit E is the only thing my liver doc suggested I take so if this is indeed an over loaded liver maybe it is worth a shot... I read gamma vit E is the best but I could not find it.. so got mixed i think... sunflower vit E as it sounded ok... I do like best so far. 

 

wishing you well. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I talked to that doc about genetic testing to see if they had it here to rule out what drugs a person should not take.. in hopes of getting a safer surgery drug... he said they don't have it here.... do how to get it... I do wonder as if it is any good I need it... before I get to the rock and hard place state again where I really have to have surgery now and I don't know what drugs are safe for me... who knows?

 

It did cross my mind today that this pain was the hernias and it was going to be an emergency surgery now... I did not want to think about it and went to bed... yep that is how I deal.. go to bed. 

peace all

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Vinegar is what I use on most things that smell I don't know if you can safely put it on a dog.. ask your vet.  

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Muddles... I found this today

http://www.beyondmthfr.com/mao-a-understanding-the-snp/

 

I know you have had testing at 23 and me maybe get your husband to look at this and the beginning there is a mistake in how the test is interrupted

 

I was actually looking up sensitivity to amines and this came up in the search...there is one question near the end that sounds like if he answered it we would know something but the bugger never answered...

 

I hope you feel better...

 

some times there is nothing much I can do to feel better it helps if I do not eat.. not sure why... just water... and waiting couple crackers here and there or some nuts... it can still take a couple of days...

peace...

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I seemed to have a new bout of this lately and I did start a few supplements right before it started.. but on the day it started it was only vit C and a face serum with amines... it just dawned on me.. amines tend to be bad for me... could be you need to be more careful with food.  

 

Like Alto says self care is a great place to get hints... ideas on what helps... and what to avoid in some cases... I was told by the sales person this was an all natural product I told her I react to stuff... 

I had better copy this to my thread so I don't forget...

 

reason I was looking up amines again... amines and histamine are related don't ask me how just now my brain just ran out of fuel peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

https://mthfrsupport.com/2016/05/what-sterling-thinks-are-the-most-important-genes-on-the-variant-report-to-date/

 

 

https://mthfrsupport.com/shop/educational/snpbit-compendium-1/

 

This Compendium 1 is 330 pages, tracks with Sterlings App, and includes the following SNPs :
– Phase 1 and 2 Liver Detox SNPs
– Methylation SNPs
– Alcohol SNPs
– Histamine SNPs
– Neurotransmitter SNPs
– Mitochondrial SNPs (Electron Transport Chain)
This Compendium 1 is a compilation of four years of research gathered by Sterling and Cynthia, and our associate Carolyn Ledowsky, an ND in Australia and MTHFRsupport.com.au, assisting with edits and key inputs. This is a labor of love by us, as we strove to provide information to those who are attempting to understand SNPs on their Variant Report, and their application, without the hassle of solo researching each SNP.
SNPBit Compendium 2 will include immune system SNPs, grouped auto-immune SNPs and cardiovascular SNPs as well the pentose phosphate pathway SNPs and more. I am targeting Febuary of 2016 as the new Variant Report is currently under construction.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

We also see that many people with viral overloads, autism, cancer and lyme are GcMAF deficient. They may even have D levels close to 100 but they are not sulfating their D3 because of the following:

  • Eating GMO’d Roundup ready foods. Glyphosate converts into glyoxylate. Oxalates share the same transport system as sulfation. I call it oxalates “hogging” up the transport system. This causes poor sulfation of D3 where it cannot sulfate D3 into GcMAF.
  • Zinc is needed to sulfate D3
  • DAO is needed to sulfate D3
  • Lysine is needed to sulfate D3
  • P5P is needed to sulfate D3
  • B6 is needed to sulfate D3

 

GAD: GAD is needed to convert the excitotoxin glutamate into the calming neurotransmitter GABA.

Did you know that most heroin users and alcoholics are not converting their glutamate into GABA? Heroin and alcohol temporarily make GABA.

GAD’s cofactor is P5P. B6 converts into P5P on most people. P5P is lysine dependent. Makes you question if B6 toxic people are lysine deficient because many B6 toxic people have hyperoxaluria and P5P as well as lysine are needed to convert glutamate into GABA in order to sulfate D3 into GcMAF.
See the domino effect yet?

 

COMT:  COMT V158M +/+ and COMT H62H +/+ along with VDR Bsm -/- makes for a storm of catecholamines. These people have issues breaking down epinephrine, norepinephrine, dopamine and estrogens.
With that when they are given high dose methyl donors such as methyl b12, methylfolate, trimethylglycine and caffeine, you can cause a huge storm of anxiety and panic.

These people when chronically ill also tend to have high cortisol levels.

IV niacin only (not a cheap mix of niacin with amino acids added) sometimes help these people calm down their catecholamine activity.

COMT’s catalytic activity is S-adenosyl-L-methionine + a catechol = S-adenosyl-L-homocysteine + a guaiacol. And COMT’s cofactor is magnesium. Makes you wonder why some people feel calmer after taking an epsom bath or a magnesium supplement.

 

 

 

Coming in the near future to MTHFR Support:

  • The glyoxylate pathway
  • The iron metabolism pathway
  • The thiamine pathway
  • More videos next to the SNPs
  • 2nd edition SNPbit Conpendium (Cynthia Smith) www.lifezonewellness.com
  • More diagrams (Cynthia Smith) www.lifezonewellness.com
  • Autoimmune variant report

Going to take some P5P and lysine.. lets see... 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Starting to wonder if I will live long enough to figure this all out... it is taking so long... I can't get tests done nothing always a dead end.... but onward as there is no other direction I choose...

 

What Sterling Thinks Are The Most Important Genes On The Variant Report To Date

FVL: Factor V Leiden. When factor V is found heterozygous, the odds of FVL’s having a clotting event in their lifetime is much greater than the someone without this mutation. Factor V Leiden is sometimes called Activated Protein C Resistance because this mutation leads to protein C resistance.
When pregnant, the uterus is fed with capillaries. So miscarriage is related to this particular mutation.
Remember, this is a gene where you will rarely see someone homozygous because it is usually not caught before a major clotting event occurs.
FVL can be serious even when heterozygous. So when someone knows that he or she has FVL, it is best for them to have their physician run platelets, C reactive protein and fibrinogen.

FVL is easily manageable.

These people are at higher risk of developing DVT especially when on hormone therapy or birth oral birth control.

Speak with your practitioner if you have any concerns.

 

F2 (Prothrombin 20210A) : Like FVL, it is extremely rare to find someone homozygous. Heterozygous people are at higher risk of developing a clotting event some time in their life when not monitored.

The F2 gene provides instructions for making a protein called prothrombin (also called coagulation factor II).

This gene is also related to miscarriage as the uterus is fed with capillaries.

Thrombin is also thought to be involved in cell growth and division (proliferation), tissue repair, and the formation of new blood vessels (angiogenesis).

2-5% of Caucasians and 0.3 percent of African Americans are heterozygous for G20210A.

It is important to be monitored throughout your lifetime if you have this mutation.

These people are at higher risk of developing DVT especially when on hormone therapy or birth oral birth control.

 

FUT2: The 3 major FUT2 genes that seem to cause problems are FUT2 A12190G, FUT2 G12447A and FUT2 G12758A. When these three SNPs are homozygous, these people cannot make H antigen.
Why is H antigen important?

The specificity of the H antigen is determined by the sequence of oligosaccharides. Almost everyone to date who has been diagnosed with ulcerative colitis and Crohn’s disease are homozygous for these three particular mutations. These three FUT2’s play a huge role in autism.

FUT2’s catalytic activity is GDP-beta-L-fucose + beta-D-galactosyl-(1->3)-N-acetyl-beta-D-glucosaminyl-(1->3)-beta-D-galactosyl-(1->4)-beta-D-glucosyl-(1<->1)-ceramide = GDP + alpha-L-fucosyl-(1->2)-beta-D-galactosyl-(1->3)-N-acetyl-beta-D-glucosaminyl-(1->3)-beta-D-galactosyl-(1->4)-beta-D-glucosyl-(1<->1)-ceramide.

FUT2 is involved in protein glycosylation.

More or less, if you are lacking the ability to produce H antigen in the gut, your probiotics will not have anything to stick to in the gut.

I normally do not recommend products and I am not affiliated with Klaire Labs in any way but they do have a prebiotic called Galactomune that contains galactooligosacchrides and beta-glucan. These are essential for anyone with the above FUT2’s homozygous in order for probiotics to stick to their gut and be utilized.
Another thing that we see quite often in these homozygouse FUT2’s is hyperoxaluria when a prebiotic containing galactooligosacchrides and beta-glucan is not administered daily. It is nearly next to impossible to heal the gut of these people without these type of prebiotics.
Next, most of the probiotics that they are missing in the gut have to do with breaking down oxalates. Again I do not normally recommend certain probiotics and I am not affiliated or do I get paid for promoting the following companies. It is best to wait about 12 weeks before starting Bravo yogurt in order to have the prebiotics in place. Bravo contains all essential probiotics in order to remove oxalates from the gut and to jump start sulfation in the gut. One product that can be started with Galactomune until you have the prebiotic in place for a few months is Jarro-Dophilus EPS. It does contain a handful of essential probiotics that are needed to remove oxalates but not all of them. Unfortunately Bravo holds the patent on many of the probiotics needed to remove oxalate from the body.

Since poor producers of H antigen already have issues maintaining a healthy gut flora because of their lack of prebiotic production, it is obvious that GMO’d Roundup Ready glyphosate which destroys the shikimate pathway of our gut microbiome is not healthy at all for anyone and especially for these individuals.

 

MTHFR: MTHFR requires folate, NADPH, SAMe and FAD.
MTHFR is one of the final steps in methylation.
It can play a huge role in miscarriage. When the blood is folate deficient, red blood cells become oddly shaped and the uterus is fed with capillaries. Also when the body is NADPH deficient due to G6PDD which is the most common enzyme deficiency in the world, red blood cells literally start exploding.

Things to look out for if someone is folate deficient or high or low in homocysteine:
Do they have DHFR and are having trouble converting folic into folate?
Do they have MTHFS homozygous and MTHFD1L mutations and are consuming folinic acid?
Do they have hyperoxaluria which shuts off methionine synthase where MTHFR resides?

Do they have have G6PD deficiency (400 million people do)?

 

G6PD: I like to call G6PD the “Mother SNP” of the Pentose Phosphate Pathway (PPP). This pathway controls the production of NADPH.
What happens when the PPP is not working like it should because of G6PD deficiency?

  • Your red blood cells explode
  • Your reduced glutathione has oxidative damage
  • Your ferritin increases
  • CFS/ME due to mitochondrial dysfunction
  • Cannot make PAPs
  • Cannot make ATP
  • Shut off the citric acid cycle
  • Shutdown of Phase I liver detox where CYP450’s reside
  • Circadian rhythm is compromised
  • Redox signaling becomes impaired
  • EMF sensitivity sets in
  • Higher risk for hemolytic anemia
  • Higher risk for POTS (10% of people with POTS are G6PDD)
  • Higher risk for lupus
  • Higher risk of being injured by a fluoriquinolone

You can learn more about drugs and food to avoid if you are diagnosed with an actual G6PD deficiency atwww.g6pddeficiency.org

 

APOE 2 and 4: Known as the Alzheimer gene. Two of the biggest things that our governments worldwide have seen is that most people with Alzheimer’s seem to have elevated A1C and elevated homocysteine. Why are they not telling us this but making more drugs?

I like to call APOE’s “grain brains”. We do see that their omega 3’s and 6’s are not balanced.

Another thing that many APOE’s have in common that do end up with dementia are metals. Mercury amalgam fillings, aluminum and mercury on the brain.

 

VDR: When the vitamin D receptor gene is impaired, this can lead to many health problems. Vitamin D hormone is needed to break down into GcMAF which is then needed to attack stealth pathogens, viruses and cancer cells.

Did you know that you can only get sulfated D from the sun between 8am and noon?
Many chronically ill do not get out of the bed to get sulfated D from the sun. Also many chronically ill people are low on GcMAF because they are low on D3 which needs to be sulfated and and broken down into GcMAF. Ever wondered why most people with cancer are D deficient? Because GcMAF which is one billionth of a gram in the blood is crucial. GcMAF has six attacks on cancer including the cannabinoid pathway. That is why many who do CBD oils have shrunk their tumors.
We also see that many people with viral overloads, autism, cancer and lyme are GcMAF deficient. They may even have D levels close to 100 but they are not sulfating their D3 because of the following:

  • Eating GMO’d Roundup ready foods. Glyphosate converts into glyoxylate. Oxalates share the same transport system as sulfation. I call it oxalates “hogging” up the transport system. This causes poor sulfation of D3 where it cannot sulfate D3 into GcMAF.
  • Zinc is needed to sulfate D3
  • DAO is needed to sulfate D3
  • Lysine is needed to sulfate D3
  • P5P is needed to sulfate D3
  • B6 is needed to sulfate D3

 

GAD: GAD is needed to convert the excitotoxin glutamate into the calming neurotransmitter GABA.

Did you know that most heroin users and alcoholics are not converting their glutamate into GABA? Heroin and alcohol temporarily make GABA.

GAD’s cofactor is P5P. B6 converts into P5P on most people. P5P is lysine dependent. Makes you question if B6 toxic people are lysine deficient because many B6 toxic people have hyperoxaluria and P5P as well as lysine are needed to convert glutamate into GABA in order to sulfate D3 into GcMAF.
See the domino effect yet?

 

COMT:  COMT V158M +/+ and COMT H62H +/+ along with VDR Bsm -/- makes for a storm of catecholamines. These people have issues breaking down epinephrine, norepinephrine, dopamine and estrogens.
With that when they are given high dose methyl donors such as methyl b12, methylfolate, trimethylglycine and caffeine, you can cause a huge storm of anxiety and panic.

These people when chronically ill also tend to have high cortisol levels.

IV niacin only (not a cheap mix of niacin with amino acids added) sometimes help these people calm down their catecholamine activity.

COMT’s catalytic activity is S-adenosyl-L-methionine + a catechol = S-adenosyl-L-homocysteine + a guaiacol. And COMT’s cofactor is magnesium. Makes you wonder why some people feel calmer after taking an epsom bath or a magnesium supplement.

 

 

 

Coming in the near future to MTHFR Support:

  • The glyoxylate pathway
  • The iron metabolism pathway
  • The thiamine pathway
  • More videos next to the SNPs
  • 2nd edition SNPbit Conpendium (Cynthia Smith) www.lifezonewellness.com
  • More diagrams (Cynthia Smith) www.lifezonewellness.com
  • Autoimmune variant report

 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

How are you btdt? Can you tolerate d3 yet? You really make the rounds so it's difficult for me to pinpoint where you are in terms of your overall condition at this point in time. Can you give me a synopsis?

I am not a medical professional. My comments and posts are based on personal experiences. Please consult appropriate medical professionals for advice. 

I was started on psych drugs back in the late 80's. You name it. I probably was on it. 47 different drugs. Over 57 thousand pills. Tapered off final cocktail February 1st, 2013- September 9th, 2019. For Hashimotos I take Levothyroxine. Liothyronine. BP meds. For supplements I take B12 hydroxy. Fish oil w/D3. Bee pollen. Magnesium Glycinate.

 

 

Link to comment

Who are you Marsha I don't think I have ever read a word from you?  I am going to look up your posts. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I still don't know who you are... sorry if I sound fed up it is because I am... not to take it out on you I just don't feel much like being here.  

 

I do no feel like sharing I feel over exposed and raw. Road hard and put away wet. Horse term... 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

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