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btdt

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Seizures anyone... 

 

I have had shaking and jerking of different sorts since the last car accident... we have been "watching" it.  It has increased or morphed into something a bit different with a lot of leg jerking especially when I am trying to sleep I also feel a destabilised core I physio has noted difficulty with balance and that jerky eye.. thing sorry I can't recall what the term was. So the doc I am closest to trusting thinks this may be a seizure disorder.  We did talk of testing me a year or more ago at the time we went over the reasons we would both to put me thru that crappy test and an hour ride home on the train after with sticky hair.... :( ... why bother if I can't take the meds anyway... and as he put it he could bet his receptionist money I would react and win every time.  Cause he knows me best.  So why bother still it does not make me feel any better about it.  He suggested I increase the magnesium Threonate sorry if that is spelled wrong I am not into spelling it right.. I did increase the amount for one day and went back to 1/3 of the recommended daily dose.

 

I am still messing about with supplements and sometimes think they are actually helping or hurting.. depending on the day... I am still going to the osteopath and think she is doing something profound given my experience with it which is a bit too much for me to talk about just yet... I am going to see a chiropractor... we will see.  

 

It could be if I am actually having some type of seizure where you do not fall down and shake that it could I was told affect my memory... and I should have asked if a seizure could cause a flash temper... of lasing out such I talked of on here recently with some body.  Mad and lashing out when there was not a thought in my head to do so... like a neuro emotion but I was not really emotional more mindless. 

That is my update for now.

I decided I am not going for testing now I have put it off a few times and I have put of the hernia surgery they called again yesterday to rebook I guess nobody wants to have surgery in June or July I have not called them back.. I don't think I can deal with the drugs I would need to have surgery...but it still hurts sometimes badly sometimes just some... so I know I still need it but it is not an emergency yet and it may never turn into one.  I can't decide so have not called them back.. I know I am not going anytime soon it will depend on the dates she has maybe... even as I type this I know the answer is no... or so I think now.  

 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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? Nystagmus- the jerky eye thing?  And gentle hugs btdt.  I slept a solid 5 hours and can make it through today as calmly and collected as possible.  Car repairs.....the A/C in mine.  Bills.  More work on insurance that my son has.......just one phone call and some copies for his Dad.  AA meetings.

 

It was not good timing for me to decide to split my remaining trileptal into 2 doses.........but I will continue for a couple more days.......give it the good ole college try.  My mind keeps going to old timey sayings like that.

 

((((btdt)))))

 

Thanks for the update.  Healing thoughts and wishes.

 

Love,

 

MMT

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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btdt, I had jerking legs and arms and other issues along those lines (and the eye thing too) after suffering what I am sure had to be serotonin toxicity from Celexa.  In my quest to figure out what was going on I came across a description that fit the symptoms and is caused by SSRIs--myoclonus.

 

I don't know if what I read was true or not but apparently myoclonic jerks are a kind of seizure where your muscle contracts. Obviously I can't tell you if that's what's going on with you but could be something to look up. 

 

Also not sure if this is the same thing but for the sleep jerking you could look up sleep starts.  They happen to everyone but can increase due to health issues.
 

Personally mine did go away, I believe I did a few things that helped one being taking a herb with lots of magnesium in it.  I'm convinced stress would make them worse too (doesn't it always!)

 

I hope you can get it sorted out and see some improvements.  Might be worth it to get the test just to rule in or out what is going on.  I don't blame you for not wanting the meds though. 

 

Take care,

 

US

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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The type of mag suggested I increase increases nmda .. I think it is posted above I don't have time to find it under my library rules... I am not sure that is something I want.. I sti

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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btdt,

 

Sorry not thinking too clearly lately, I forgot how reactive you could be to supplements.  I actually couldn't tolerate supplemental mag myself way back when when I tried it; it's only in food or in the herb that I can manage with it.

 

I believe I read that almonds have a fair amount of mag though, so maybe that's something to look into when you have more time online.  Though I have to wonder how many you'd have to eat to get a decent effect if it does turn out to be relevant. 

 

Wish things were easier for you.

 

US

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I have just seen this article - sounds very much like MCS/EHS illness to me. Bet she's been given meds for this - whih will make matters worse.

http://www.9news.com.au/sitecore/content/news/news/world/2016/07/08/06/30/tennis-champ-marion-bartoli-says-virus-is-causing-rapid-weight-loss

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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  • 2 weeks later...

Blindsight

 

Explanations > Brain stuff > Blindsight

Description | Discussion | See also

 

 

Description

A person with blindsight may, on the surface, be completely or partially blind. When presented with an object in a zone where they cannot consciously see, they will honestly declare that they cannot see it. Yet if they are asked to guess things about the object or point to it, they are able to perform such tasks with accuracy somewhat above chance. When asked about how they did this, they typically rationalize the success as luck.

In Type 1 blindsight, the person is not aware of any stimuli, but can predict quite well aspects such as location or movement of a stimulus. Type 2 blindsight is where the person has some awareness but no visual perception, for example their eyes may follow an object but they cannot point to it.

Discussion

The brain processes vision in more than one place. In particular, it is processed both in the mammalian cortex (significantly in an area called V1) and also in the primitive mid-brain, where basic functions such as eye movement are managed.

Cortical visual processing is more complex, of course; the primitive systems allow for identifying basic objects and movement. Thus if the V1 area is damaged, the mid-brain can still perceive visual signals, which can then subconsciously alert the cortex.

A significant point about this is that consciousness does not exist in all parts of the brain.

Blindsight was first identified by P�ppel, Held and Frost in 1973. This was followed by a a deep study of a patient known as 'DB'.

See also

Confabulation

P�ppel, E., Held, R., and Frost, D. (1974). Residual visual function after brain wounds involving the central visual pathways in man.Nature, 243, 295-296.

Weiskrantz, L. (1986, 1998). A Case Study and Implications. Oxford: Oxford University Press.

 

I had this after a reaction to lidocaine at the dentist... or interaction of withdrawal and dental freezing may be more accurate I am not sure.  The next day I went for a normal eye exam and could not see some of the letters projected onto the wall.. I have had times where I could not see an item after looking right at it several times... to later be able to see it.  Experiencing that can cause a very uneasy feeling about perception and self. 

It is just one more  clue as to what is actually wrong with me... another hint.  I am not sure why I can't seem to get medical help with any of this in part maybe because I no longer believe in medical institutions so I don't make enough noise... I do not have the energy the presence of mind clarity or inclination to push any longer. I don't believe they can fix me or that they could or would admit to the damage. 

I hope your all well as well as can be expected.  I wish you all peace.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I was looking for the quotes thread I can find a few but not the one I want... sadly more and more this site disappoints me. 

 

Here is the quote I wanted to add to the thread I have added to in the past... 

 

"I refuse to see hate live while love dies"

 

Policeman on the news re:  shooting of police in Texas during Black Lives Matter march

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I can't understand why I am having this seizure jerking and worse mind issue now... I have dropped the ginko whatever the name is called for reasons I know longer recall.... perhaps the seizure thing is related to the mcs... I don't know what the cause is.

 

I had the jerking to before and it went away... it is back and different along with the jerking unstable mood and mind liability as in I just can't think. I feel like I am drugged out of my head.  

 

If I ever figure it out I will let you know. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

http://survivingantidepressants.org/index.php?/topic/8041-how-to-heal-your-mitochondria/

 

maybe it is in part an autoimmune disorder or a immune system impairment... I am aging so badly I feel 30 years older than I am.. plus being sick most of the time... 

it is getting so old... the lifestyle as well as these issues. 

 

the link above speaks to aging how we are aging rapidly 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

about statins... 

 

Excessive CoQ10 inhibition was resulting in buildup of free radicals resulting in increased mitochondrial DNA damage and mutation, primary factors in how we age. Statin drugs were thereby enhancing aging. Statin associated CoQ10 inhibition was leading directly to increased mitochondrial DNA damage and premature senility. My fourth book that covers this is titled The Dark Side of Statins

spacedoc.com

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Still shaking and wobbling... had an event today I could not see properly for a time and a bruise came up on the underside of my arm... something vascular is going down.... I am not sure what.  I had an eye test again last wk and still the one eye cannot see the picture of the blocks and with the dot in the centre... here is a very odd thing... if the eye is covered with a paddle the picture is all jumbled up... if I close the eye myself rather than using the paddle... the picture is not all jumbled up... 

 

so 

READ THIS PHARMA RESEARCH REPS... your next block buster hint may be here 

 

my brain knows if I close my eye and makes adjustments in what I see based on that defect in that particular eye... however if the paddle is used my brain does not make the needed adaption.... run make your new vision drug now... off with you...

 

I think I have MS or something similar my doctor is away so I can't do much about it... I am scared... some... scared it will not stop that it will increase till I am put in a home... but I am trying to be careful not to fall into that hole and trying to just wait it out... as I had something like this in early wd and it eased in time... so maybe it will again.... 

 

brains got to love them 

 

I am hoping nothing big happens but if it does I would have to say my body has given me plenty of warning signs still trying to not get too excited about it as I don't think I can afford it. 

peace all

 

best I can figure I started with this visual issue after lidocaine or that is when it was first noticed... interesting to see it is still there years later I now consider it permanent... no further follow up was suggested ... I find that interesting if I were a doctor I would not rest till I knew all there was to know about this... but all my docs seem complacent maybe they do know and are not telling... who knows I can't waste my energy on them I have too little.

peace all

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

The type of mag suggested I increase increases nmda .. I think it is posted above I don't have time to find it under my library rules... I am not sure that is something I want.. I sti

"Research now recognizes Capsaicin, the main ingredient in hot peppers, as aggravating the NMDA neural receptor, which in turn brings on the MCS syndrome."

"

  • Neural sensitization can also occur by excess activity of brain and nerve cell NMDA (N-methyl-D-aspartate), which then increases brain and other organ (inducible) nitric oxide (NO). 8,16,17"

I am trying to sort out of magnesium L-threonate is good for my brain or not.... increasing NMDA is bad and this quote I think says it increases NMDA but I can't trust my brain just now so will post now read later....

 

 

Effects of Elevation of Brain Magnesium on Fear Conditioning, Fear Extinction, and Synaptic Plasticity in the Infralimbic Prefrontal Cortex and Lateral Amygdala
  1. Nashat Abumaria1
  2. Bin Yin1
  3. Ling Zhang1
  4. Xiang-Yao Li2
  5. Tao Chen2
  6. Giannina Descalzi2
  7. Liangfang Zhao1
  8. Matae Ahn1
  9. Lin Luo1
  10. Chen Ran1
  11. Min Zhuo2, and 
  12. Guosong Liu1,3

+Show Affiliations

  1. Author contributions: N.A., M.Z., and G.L. designed research; N.A., B.Y., L. Zhang, X.Y.L., T.C., G.D., L. Zhao, M.A., L.L., and C.R. performed research; N.A., B.Y., L. Zhang, and X.Y.L. analyzed data; N.A. and G.L. wrote the paper.

  1. The Journal of Neuroscience, 19 October 2011, 31(42): 14871-14881; doi: 10.1523/JNEUROSCI.3782-11.2011
 
Abstract

Anxiety disorders, such as phobias and posttraumatic stress disorder, are among the most common mental disorders. Cognitive therapy helps in treating these disorders; however, many cases relapse or resist the therapy, which justifies the search for cognitive enhancers that might augment the efficacy of cognitive therapy. Studies suggest that enhancement of plasticity in certain brain regions such as the prefrontal cortex (PFC) and/or hippocampus might enhance the efficacy of cognitive therapy. We found that elevation of brain magnesium, by a novel magnesium compound [magnesium-L-threonate (MgT)], enhances synaptic plasticity in the hippocampus and learning and memory in rats. Here, we show that MgT treatment enhances retention of the extinction of fear memory, without enhancing, impairing, or erasing the original fear memory. We then explored the molecular basis of the effects of MgT treatment on fear memory and extinction. In intact animals, elevation of brain magnesium increased NMDA receptors (NMDARs) signaling, BDNF expression, density of presynaptic puncta, and synaptic plasticity in the PFC but, interestingly, not in the basolateral amygdala. In vitro, elevation of extracellular magnesium concentration increased synaptic NMDAR current and plasticity in the infralimbic PFC, but not in the lateral amygdala, suggesting a difference in their sensitivity to elevation of brain magnesium. The current study suggests that elevation of brain magnesium might be a novel approach for enhancing synaptic plasticity in a regional-specific manner leading to enhancing the efficacy of extinction without enhancing or impairing fear memory formation.

Introduction

Fear is essential for survival. However, excessive fear or the experience of strong fearful events can lead to anxiety disorders such as phobias and posttraumatic stress disorder (PTSD). In clinics, cognitive therapy can attenuate excessive fear; however, some cases relapse or resist the therapy (Foa et al., 2002).

In laboratory animals, the extinction of conditioned fear is the cognitive therapy-based experimental model for studying fear attenuation (Myers and Davis, 2007). Progress in understanding the brain circuits involved in fear extinction has been achieved by studying the circuits of Pavlovian fear conditioning in experimental animals (LeDoux, 2000Myers and Davis, 2007). The amygdala is thought to contain circuits that form the conditioned fear memory and drive conditioned responses (LeDoux, 2000). After extinction, ventromedial prefrontal cortex is believed to retain the extinction memory in animals (Morgan and LeDoux, 1995Milad and Quirk, 2002; for review, see Quirk and Mueller, 2008) and in humans (Phelps et al., 2004Rauch et al., 2006). The hippocampus participates in the formation of conditioned fear by providing spatial (Sanders et al., 2003) and temporal (McEchron et al., 1998) information. It is also involved in the retention of extinction (Farinelli et al., 2006) and the modulation of extinction in a context-dependent manner (Hobin et al., 2006Herry et al., 2008). Therefore, conditioned fear memories and responses are believed to be formed and generated by the amygdala, while fear expression is modulated adaptively by other brain regions such as the prefrontal cortex (PFC) and hippocampus.

Based on the above-mentioned fear memory and extinction circuitries, enhancement of activity/plasticity of the infralimbic prefrontal cortex (IL-PFC) and/or hippocampus could be an attractive strategy to augment the efficacy of extinction. Indeed, electrical stimulation in the IL-PFC (Milad and Quirk, 2002) and/or hippocampus (Farinelli et al., 2006) enhances the retention of extinction. Infusion of brain-derived neurotrophic factor (BDNF) into the IL-PFC or hippocampus attenuates fear responses even without extinction (Peters et al., 2010). However, long-term regional-specific enhancement of PFC and hippocampus functions without simultaneously enhancing/impairing amygdala functions has not been achieved.

We found that extracellular magnesium concentration ([Mg2+]o) is an important regulator of synaptic plasticity in vitro (Slutsky et al., 2004). Recently, a novel magnesium compound [magnesium-L-threonate (MgT)] that can elevate brain magnesium via chronic oral supplementation was developed (Slutsky et al., 2010). Using MgT as a tool, we began exploring the relationship between brain magnesium and cognition. We found that MgT treatment increases synaptic density and plasticity in the hippocampus and enhances learning abilities, working memory, and short- and long-term memory in both young and aged rats (Slutsky et al., 2010). Based on the enhancement of working memory, MgT treatment might also enhance synaptic plasticity in the PFC. If so, then MgT treatment may enhance the retention of extinction. Hence, we investigated the effects of an elevation of brain magnesium on fear memory and fear extinction processes and explored the molecular and cellular properties of brain regions implicated in these processes, namely the IL-PFC and basolateral amygdala.

Materials and Methods
Experimental animals

Male Sprague Dawley (4–8 month old) rats were obtained from Vital River Laboratory Animal Technology. All rats were individually housed with ad libitum access to food and water under a 12:12 h reversed light:dark cycle. Behavioral experiments were performed during the dark phase. All experiments involving animals were approved by Tsinghua University and University of Toronto Committees on Animal Care and Use.

MgT treatment

MgT (Magceutics) was administered via drinking water (604 mg/kg/d, 50 mg/kg/d elemental magnesium) as we described previously (Slutsky et al., 2010). The water intake (on daily basis) and body weight (every 3 d) were measured. The concentration of MgT in the drinking water was determined and adjusted based on these parameters to reach the target dose. Chronic MgT treatment at this dose did not influence water and food intake or the normal body weight gain, similar to our previous observations (Slutsky et al., 2010). Rats received rat-chow containing 0.15% elemental magnesium, which is broadly accepted as the basic nutritional magnesium concentration.

 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I stopped two supplements so far one was the ginko one... I can't be bothered to look it up and can't think of the real name for me it seems to increase seizure like activity... so in my book it is a no go... the other is the one above mag threonate... it is a no go too for similar reasons... 

 

I have tried mag mallic something like that and have it on board in case I want to try it.. have considered mag glycinate but have not tried it yet... in hopes of regaining better health I have gone back to mag citrate simple old magnesium supplement I have been using for years. 

 

I have also been to see many natural health care type people ...one being a naturopath who has weeded some things out of my supplement list.... 

 

I have stopped taking a certain Vit E from sunflowers because when I bit a capsule one time it tasted rancid... it is gone and I am looking for a new vit E.... in time. 

 

Not sure where I am heading but you can be sure I will fight this every step of the way... if I find anything amazing I will let you know... 

 

for now I would suggest you avoid those things above.... 

 

CW I do agree eggs are an important part of this healing process yolks in particular ... sadly I can't tolerate them all the time.. they are very hit and miss for me have been since childhood ... my Mom gave up feeding me eggs eventually as they came back up as fast as they went down. I do have times my gut feels like it is lined in lead then I will attempt an egg but only at those times. 

 

I have been reading back in my thread today looking for a post by a member that said this sort of crash I seem to be having has been had by others near the end of the healing process.... I read it here before when I was not as apt to answer it... I can't find it... or recall who posted it... the writer was not a member well known to me... 

 

if you wrote that message on my thread please come back and post me a link to even one person who has gone thru this as I have never read a story like this or noticed the resemblance if I did....

 

thanks 

 

onward 

peace to you all 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I have learned a lot thru this process a lot about when to fight and when to lay down.... when I say fight part of that will be laying down resting my body and mind... I want to make this well known that meditation and relaxation... good food are a big part of this fight ... I did not come this far and go thru all I have to lose in the end.... 

 

There are going to be times that will test your metal... I will guarantee it lean when your well enough apply it when your able and never give up... rest when you can when you can choose to sooth your system it is always the right choice...

 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • 2 weeks later...

In a heat wave which has me eating lots of magnesium to keep migraines away and house bound... wondering if the wobble is something to do with the heat humidity... going to rest 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Posted 07 April 2014 - 12:22 PM

Clare I did read you were sensitive to light so was I for a long time I had the windows in my room covered in tinfoil all I needed was the tinfoil hat to make it a perfect outfit. I could not stand noise either ... had earplugs to drive in the car at the quietest times of day with the windows up as I could not stand the sound of the tires of cars on the road... funny I could hear really good now feel I am half deaf some times.

 

I read that you said you could not tolerate the smallest part of an Effexor pill which has me wondering if you took the pill not the capsule ... the capsule is the extended release which is the drug I took... the pills acts quickly in comparison I think. I am wondering if there is a difference in withdrawal depending on which type of effexor one takes... just a possibility.

 

You are the first person I have talked to on a withdrawal site who had the same sensitivity to light as I had... I have been reading these sites since 2008 I have seen this type of withdrawal effect from others who were withdrawing from benzos but not from an antidepressant. Thanks for the validation I wonder why you and I had it yet I never did see it from another Ad withdrawal person. So many questions and no real answers I am a bit use to it but I don't like it and keep looking.

 

Peace from here on in Clare glad your done :)

 

 

Bdtd

As I came across your post in Claire's success story, I had to write to you that I too have the light sensitivity. I have to wear sunglasses because it seems to trigger more zaps in the glare.

 

Also I'm wondering if you have more info in the differences between withdrawing from Effexor XR verses the immediate release. I chose to add the XR a couple years ago and decreased the immediate by the same Mgs. It helped with the headaches however a month later the depressed state hit. I don't know if it had a correlation to switching half my dose to XR.

I'm still on both and need some help on how to proceed with my taper. Should I finish tapering off the immediate first? I've been decreasing alternatively up to now. Thanks for any help.

Started Effexor August 2012 Sept'12-150mg=extreme anxiety Oct'12 cut half-75mg severe wds

Feb 2013 68.5mg. Mar'13- 65mg. Apr'13-59mg. May'13-57mg. June '13-52mg Aug'13 49.75mg.

Sep'13-48.75. Nov'13-47mg Dec'13-45..5mg

May 2014 42mg. Jun'14 40mg (depressive mood started). Aug'14 -40mg/ started brintellix 2.5mg

Oct '14 -39 Nov'14 36.89 Dec'14 34.45

Jan 2015- 31 Feb'15 29mg. Mar'15 26.72. Apr'15 24.48. May'15 22.31mg. Jun'15 20.30mg

Aug'15-18.89. Oct'15 16.96. Nov/16- 16.10. Dec/15- 15mg

Jan 2016-14.22. May'16 11.45. Aug'16-9.60. Sep/16- 8.88mg. Oct/16- 8.39mg. Nov/16- 8.13. Dec/16- 7.89

Link to comment

Lexy it was so long ago I was not on the pill I was on effexor xr and there are many other people who were on the immediate release but their stories for the most part seem to be on older sites that I can't seem to access.  Maybe a person who has decent computer skills could find the old stuff but I can't.  Sites where you can find a lot about immediate release would be Effexoractivist.org maybe paxilprogress.org and some on effexorwithdrawaltopix .  The different between immediate release and xr I am sure has been covered here at SA best as they can tell.  I think the people who took it are always your best source of information and most of them will be found at those old sites as it is from my understanding at least an old sort of drug.  After the xr version hit the wd issues being had with the IR were resolved so docs all gave the xr. 

 

As for the light and sound sensitivity I recall reading an article about how Ad wd is the same as benzo wd... it is just not as well known.  In that article both drugs caused both.. there was a list of symptoms for both types of drugs.  I know I posted it but I may have been mostly posting at effexorwithdrawaltopix at the time generally I would post both here and there but not always it may be around still online. 

 

As for Ads causing this sensitivity you can find others with the same problem here:

 

https://beyondmeds.com/2010/12/22/withdrawalsymptomlist/

Monica is a member here too

 

http://rxisk.org/antidepressant-withdrawal-vs-story/

 

http://www.doctorslounge.com/psychiatry/forums/backup/topic-1013.html

Possible withdrawal symptoms - racing heart; low blood pressure; feelings of small electrical zaps beginning in the brain area and then progressing throughout the body; flu-like illness withvomiting/diarrhea/lethargy; aches in the joints while taking serotonin medications, hopefully alleviating with decrease in dosage; emotions/anxiety/depression worse than when medication was started as the brain is a lot more sensitive to stimulators; risk of suicidal thoughts; loss of concentration, depersonalization or feelings of being in a dream; "whooshes" - you're looking at one object, turn to look at another, and it takes a second or two before the eyes catch up - think of Star Trek and the way the stars look when they go into warp speed; over-sensitivity to light, sound and touch; muscle spasms, most noticeable at night when in bed - so don't take it personally if you get kicked or punched for no reason, entire body can jump without any warning to the person going through withdrawal; possiblehallucinations or hearing of voices; paranois; stomach problems - aches, cramping, nausea, loss or gain of appetite; chills alternating with hot flashes; feelings of skin tinglilng or tickling - usually skin that is exposed to air - always kind of figured it was related to the over-sensatization of the nerves; feelings of chest heaviness - sometimes to the extreme of feeling that you are possibly having a heart attack

Unfortunately these are only a small number of reported withdrawal symptoms. Do a search for "discontinuance syndrome" and see what all you come up with. 

It is around it has been around we will likely learn more... 

 

Best link I just found on this topic here at SA 

http://survivingantidepressants.org/index.php?/topic/9912-overstimulation-and-increased-sensitivity-to-light-sound-etc/

 

post 36 by Karen B is interesting to me as I had both the sensitivities and the chronic fatigue syndrome dx and the mcs... multiple chemical sensitivity and long ago now was dx with ptsd... when all the other labels wore out or so it seemed to me... 

 

I am going to copy it here more about me than you at this point... hope you find it reassuring your certainly not the only one and it is not rare as was thought once. 

 

"

 

The original link to the full article is broken, but Alto had later quoted this from the article:

Quote

It’s one of the most exciting concepts in neuroscience you’ve never heard of. And it’s becoming a key model being examined as a possible theoretical basis for Multiple Chemical Sensitivity (MCS) and Post Traumatic Stress Disorder (PTSD). Recently, a leading researcher in CFS/ME, Dr Leonard Jason, has argued it provides a comprehensive model to explain CFS as well
....
Limbic  kindling  is  a  condition  where  either   repeated  neurological  exposure  to   initially  chronic  sub-­threshold  stimulus,  or  a  short-­term  high  intensity  stimulus  (eg   brain  trauma),  can  eventually  lead  to  persistent   hypersensitivity  to  the  stimulus.  

Kindling  was  originally  discovered  in  1967   by  Graham  Goddard,  who  was  studying   the  effects  of  electrical  stimulation  of  the   amygdaloid  complex  in  the  brain  in  learning   in  rats.(1)  He  found  that  after  long-­term,  low   intensity  intermittent  stimulation  from  electric   shocks  to  their  brains,  the  rats  began  to  have  spontaneous,  epileptic-­like  seizures  –  even   when  no  stimulation  was  given.  Goddard  also   found  he  could  create  similar  reactions  using   chemical  stimulation.

In  1970,  Gellhorn  suggested  that   under  prolonged  stimulation  of  the  limbic-­ hypothalamic-­pituitary  axis,  a  lowered   threshold  for  activation  could  occur.(2)  Girdano   et  al  in  1990  proposed  that  the  excessive   arousal  could  lead  to  an  increase  in  dendrites   of  the  limbic  system,  which  can  further   increase  limbic  stimulation  and  hypersensitivity   to  stimuli.(3)

Ashok Gupta was the first to propose a similar  theory  as  the  basis  for  CFS/ME  in   2002.(4)  (A  diagram  from  his  paper  is  below).   Based  on  the  work  of  Le  Doux  in  the  ‘90s  (5),   Gupta  suggested  that  an  infectious,  chemical   or  psychological  stressor  could  create  a  “cell   assembly”  within  the  unconscious  amygdala   and  that  these  cell  populations  are  particularly   resistant  to  extinction.  As  with  Goddard  and   Gellhorn,  this  again  implied  that  people  could   become  “hard-­wired”  to  respond  more  easily to stimuli and in turn find it more difficult to suppress the chronic stress or "fight or flight" response  established  by  Selye’s  classic   model  of  stress.(3-­5)

Where  limbic  kindling  takes  our   understanding  of  stress  to  new  levels  is  the   idea  that  this  kindling  leads  to  “hard-­wiring”   in  the  brain  for  an  unhealthy  response   to  stress.  This  was  boosted  by  a  2002   paper  in  the  British  Journal  of  Psychiatry,   where  a  systemic  review  of  brain  images   of  patients  with  PTSD  found  “increased   activation  of  the  amygdala  after  symptom   provocation”.(6)

In  2009,  Dr  Leonard  Jason  and   colleagues  suggested  that  chronic  long-­ term  hyperarousal  of  the  central  nervous   system  –  from  this  “kindling”  –  leads  to   chronic  sympathetic  nervous  system   arousal....

 

And these following links by GiaK are really encouraging: 

 

Quote

I posted the above PDF on Beyond Meds today...

 

these are my comments from that post:

 

This is a very interesting article. It’s in keeping with my posts on how the autonomic nervous system is impacted in psychiatric drug withdrawal and how that is similar in many different chronic illnesses. This piece goes into a deeper understanding of these issues.
 

The author concludes that healing from these illnesses requires tending to the whole body/mind/spirit complex. This has become very clear to me as I continue to heal.
 

Frankly it’s also clear to me that understanding a whole host of chronic illnesses from this perspective could change the face of medicine. Right now western medicine tends to treat these illnesses in ways that exacerbate them in the long run because they are only treating symptoms without an understanding of underlying issues.  Most MDs are completely clueless about all the factors mentioned in this article and are even dangerous for many of us. See:  We can know more about our bodies than our MDs do…trust that, develop it
 

This is the greatest and most profound lesson this illness has taught me. Having and healing from these illnesses offer a penetrating look into the nature of humans as holistic beings that exist as part of the world and greater universe.
 

So to repeat my mantra meme, Everything Matters. This idea also got extended into my memoir on Mad in AmericaMy healing has continued greatly since the writing of that article. See: I Actually Woke up This Morning Thinking I’d Arrived, I’m Well . . .

 

see post here: http://wp.me/p5nnb-aLI

Follow those links in GiaK's blog to find the stuff on ways to heal these things.  Particularly a type of meditation called Brainsculpting.  I spent most of yesterday learning about it, because it's such a hope-filled understanding. 

 

If I were you I would be asking Alto for advice on which to taper first or how to go about this.... and it may be the information is already posted here

http://survivingantidepressants.org/index.php?/topic/272-tips-for-tapering-off-effexor-and-effexor-xr-venlafaxine/

 

I do not have the stamina or brain power I use to have or I would read it and send you to the right post. 

 

At this point in time I am wondering if the hypersensitivity is a word about things to come such as mcs... cfs... I do wonder since they seem to all be related

 

hope this helps you

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Whats the bet doctorlounge is a pharma employee.

My goodness did you see that mile long blog underneath ...all the people suffering effexor wdl its just tragic.

Went to sign the effexor banning petition but it had finished

 

Greetings btdt, hope you are thinking better soon.

nz11

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to comment

Yes NZ that site has been around a long time I don't think it actually works any longer but it is resource.  At least it is still up most site concerning effexor can be seen at all.  Effexoractivist stayed up for a time as a read only site after it was hacked but finally gave up the ghost and died to my thinking it was the  best site for effexor at the time. 

 

I am hoping to have a brain soon too the longer it goes on the more I doubt it still this is not the first time for this it is just lasting extra long this go and has some added benefits like I can't keep my balance at times.  In some ways it feels like early wd I did actually do a face plant trying exercise equipment in the early wd days... don't recall the wobbling like I have now.  Hopefully it will all pass but it not I will face whatever it is when we find out what it is. 

 

peace NZ

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Thank you so much for all the info. I will be spending my weekend going over all this.

I appreciate your time and effort in giving me all valuable info and your own experiences.

Much appreciation

Started Effexor August 2012 Sept'12-150mg=extreme anxiety Oct'12 cut half-75mg severe wds

Feb 2013 68.5mg. Mar'13- 65mg. Apr'13-59mg. May'13-57mg. June '13-52mg Aug'13 49.75mg.

Sep'13-48.75. Nov'13-47mg Dec'13-45..5mg

May 2014 42mg. Jun'14 40mg (depressive mood started). Aug'14 -40mg/ started brintellix 2.5mg

Oct '14 -39 Nov'14 36.89 Dec'14 34.45

Jan 2015- 31 Feb'15 29mg. Mar'15 26.72. Apr'15 24.48. May'15 22.31mg. Jun'15 20.30mg

Aug'15-18.89. Oct'15 16.96. Nov/16- 16.10. Dec/15- 15mg

Jan 2016-14.22. May'16 11.45. Aug'16-9.60. Sep/16- 8.88mg. Oct/16- 8.39mg. Nov/16- 8.13. Dec/16- 7.89

Link to comment

Since I looked for and could not find a copy of the effexor petition that had thirty thousand signatures... it only had twenty four thousand last time I looked but I hear it got up to thirty.  I can't find it any longer so decided to share a copy here to add a bit of understanding and validation to others who are suffering effexor effects. 

 

Effexor Petition 

We the individuals listed below have electronically signed this petition for the purpose of making it known that consumers treated with the SSNRI antidepressantEffexor have or are experiencing "often ignored" serious side effects of this medication. And that thousands of patients in the US and worldwide are unable to discontinue Effexor or even reduce dosage due to the rapid onset of severe withdrawal-like symptoms which often initiates before a patient begins dose reduction due to the short half-life of Effexor. Documentation of which the manufacturer, Wyeth-Ayerst has gradually disclosed now some 8 years after this drug was first licensed, being aware of these problems all along but failing to communicate this knowledge to the public and the medical community. 

Wyeth-Ayerst misleadingly advertises through its Effexor labeling that only drug abusers are at risk of physical and psychological dependence, and withdrawal problems when tapering back or abruptly discontinuing Effexor usage. Wyeth-Ayerst knows such representations are false, and that all patients, including patients not having a history of drug abuse, are susceptible to withdrawal problems after tapering back or abruptly discontinuing Effexor

Effexor as prescribed to us by our doctors resulted in anxiety and agitation, sexual dysfunction, hypomania, weight gain, and many other debilitating adverse reactions such as insomnia and bizarre vivid nightmares, deterioration in eyesight, high blood pressure, dehydrating night sweats, memory problems, thyroid disorders which can cause the very depression this medication was first prescribed to treat, among other serious side effects. These iatrogenic (medication induced) effects were ignored or underplayed by its manufacturer, which resulted in our overall inability to function normally for lengthy periods of time during usage and attempted dose reduction. Nor had proper disclosure been made that benzodiazepines had been co-prescribed during clinical trial in order to minimize the agitation that the manufacturer had recognized this medication could cause. Effexor in many cases is not the "stand alone" remedy that it has been advertised to be. Patient in accepting treatment withEffexor are not being forewarned that by their use of Effexor -- sleeping medication, blood pressure medication, and anti-anxiety medication might become a concurrent necessity. Thus the mis-informed consumer totally unexpectedly finds themselves being prescribed many more drugs than they ever anticipated needing. 

We all know that taking prescription medication involves some risks and that with each medication some percentage of patients are likely to experience adverse results. We strongly feel however, that the risks involved with the usage of Effexor is greater than the medical community and the public realize, certainly greater than we were ever told, and that Wyeth-Ayerst knew of these risks but failed to communicate those risks to the consumer and their physicians. 

Our lives have been negatively, unexpectedly, and undeservingly impacted by the antidepressant Effexor. We were not given full disclosure of this medication's known adverse effects, and many of us suffered greatly because of this failure to warn. Therefore, our purpose with this petition is to share information that we have gathered so that others will have adequate knowledge and be able to fully discuss options and risks of the use of Effexor with qualified medical professionals before they make any final choice regarding initiating these types of medications. Thereby being able to be a knowledgeable consumer and make the appropriate decisions together with their physicians in regards to their own medical treatment and might be spared the suffering we have experienced first hand.

 

this use to be found here

http://www.PetitionOnline.com/effexor/

now gone

 

This iAt PetitionOnline.com, we host the petition you've signed, but we didn't

create it. If you would like to comment on the petition, or otherwise 
communicate directly with the petition author, you can contact the author at:

   Doug Tyler , doug@dougtyler.com


   those experiencing difficulty with the prescription antidepressant, Effexors the creator

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Thank you so much for all the info. I will be spending my weekend going over all this.

I appreciate your time and effort in giving me all valuable info and your own experiences.

Much appreciation

Your welcome on the original petition copied above signatures and comments from those who signed included complaints many included light and sound sensitivity. I doubt anyone who was not a pharma rep copied and saved all those pages... thousands of people signed that petition.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I feel suddenly better out of the blue the only changes were bought more B1 as I had ran out and restarted B5 after it stopping awhile back as it was suggested to me to not be a good idea to take it. 

I can think just now and look at the computer but I am not going to over do it. 

I cannot understand how sudden it this is...fingers crossed... in moment it can happen... but it usually doesn't. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

I have just seen this article - sounds very much like MCS/EHS illness to me. Bet she's been given meds for this - whih will make matters worse.

http://www.9news.com.au/sitecore/content/news/news/world/2016/07/08/06/30/tennis-champ-marion-bartoli-says-virus-is-causing-rapid-weight-loss

I tried to find your thread tonight Muddles to see how you are found your name and posts but could not find you... so I will ask here how are you?  

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Glad you are having some improvement btdt.

Sometimes improvements can feel like a curtain being lifted up.

Great stuff, i have got my platinum fingers crossed for you. (Havent got the Titanium ones yet).

 

Thanks for sharing that petition information.

Maybe that wouldbe good to put in its own thread in the media section. What do you think?

nz11

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to comment
  • 2 weeks later...

Glad you are having some improvement btdt.

Sometimes improvements can feel like a curtain being lifted up.

Great stuff, i have got my platinum fingers crossed for you. (Havent got the Titanium ones yet).

 

Thanks for sharing that petition information.

Maybe that wouldbe good to put in its own thread in the media section. What do you think?

nz11

Please put it wherever you like.  My brain has cleared some I am not sure if it will hold of course it seems to come and go with fatigue.  

 

I had a wedding to go to ...for months I have been planning how to get this done with ease and best case scenario... get a room so I can leave when I want and sleep and be cool if it is hot ect... take my own bedding so I do not react to the chemicals they wash their sheets in... check.... rest well before going so I can be clear headed at the service at least and not miss that important part.  

 

This is how it went... got the room..it smelled of cleaners or room freshner in the all but the room seemed ok air was on both good things... movement disorder I have had to a lesser degree and have mostly been able to hide came on full force I could not walk or sit still the entire day the longer I was there the worse it got.  Many people I have not seen in years were asking what it was some commenting their own ideas parkinson ect... it was a personally bad day for me... the wedding was at 6pm I was in my room by 10 pm could not sleep tossed all night left the next day... 

 

on leaving the room noticed all my bedding smelled tho I did not notice the room smelling... with chemical sensitivity and movement problems the wedding was difficult to enjoy but I did do my duty and showed up clean if not beautiful... at peace with people if not full of fun... 

 

Cognitive issues were very apparent in a group of people whos names I should know as most are related to me... other facts distorted and jumbled still with the shaking on the outside I think people were more apt to chalk it up to a disorder not stupidity which is how it felt to have cognitive peoples before the jerking and shaking... now there is something to see on the outside to go with all the crap that goes on inside that people never see... I found it interesting and tho this is not pleasant by any standards I think what I have endures in wd so far makes me more accepting of having my body control taken away a normal person who had not gone thru years of wd would be freaking out... I am waiting it out... we will see what happens I hope it passes tho my hopes are not that high I am guarding myself from spiralling down as that would be really bad and I think it is always what people expect... doing my best that is all I can do.

 

success of sorts I went I was clean I caused no problems was self sufficient

butI sure ... wish this would all go away... 

 

wishing you all peace 

B

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
Polenta scares the **** out of every member of Benzo Buddies by ...
https://lucke59man.wordpress.com/.../polenta-scares-the-****-out-of-ever...
  1.  

Oct 31, 2012 - Re: Post Benzo Protracted Withdrawal Support Group « Reply #770 on: August 8, 2012, 11:36:39 PM » liosnasi Polenta. I see you are benzo ..

 

putting this here so I don't forget to look at it once I am rested. 

suggested I read it ..

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

and this some day I will read this

http://bipolarblast.wordpress.com/20...sgracejackson/



Antipsychotic drugs, thyroid, and cardiac death


— by Grace Jackson MD


February 21, 2011
by gianna kali


Grace Jackson MD has written two of the most important critical books on psychiatric drugs, Drug-Induced Dementia: a perfect crime and Rethinking Psychiatric Drugs: A Guide for Informed Consent. You can read posts about these books here and here.

I’m in an email group with Grace Jackson. She answered a question in the group about neuroleptics and the ways they can lead to premature death with an emphasis on thyroid function. I asked her if I could publish her response. She graciously added references to the piece so that now there is a reading list at the end.

Reply to question about antipsychotic drugs, thyroid, and cardiac death:

There are many mechanisms through which antipsychotic drugs cause or contribute to premature death. Thyroid hormone excess or deficiency would be only one potential mechanism.

When physicians speak of the “endocrine” system, they generally think about the HPA axis = hypothalamus, pituitary (gland), adrenal (glands).

The word endocrine means “inside secretion” >> The organs of the body which are part of the “endocrine” system release chemical mediators that travel into the bloodstream until they hit receptors / targets in other parts of the body.

Dopamine is made by many cells of the body, and is not generally considered to be an endocrine hormone (endocrine chemical that exerts effects at a distance). Under normal metabolic conditions, dopamine suppresses the pituitary [specifically, the anterior pituitary] gland’s production and release of prolactin. When dopamine levels fall, the anterior pituitary is “released” from inhibition >> hence, prolactin levels climb. This is why many antipsychotic drugs cause gynecomastia (right - Vince) (breast enlargement), lactation (milk production and secretion), and infertility. High levels of prolactin have also been linked to osteoporosis and cardiac disease, and == in some studies — to breast cancer. There are a few published studies which demonstrate a correlation between abnormally high levels of prolactin and autoantibodies against the thyroid.

As far as I know, there has never been a finding of dopamine receptors on the thyrotrophs of the anterior pituitary gland (the ant. pit cells that make TSH). However, studies in animals and humans have demonstrated mixed findings with respect to DOPAMINE and thyroid hormone balance — several studies of dopamine agonists (such as bromocriptine) have demonstrated a suppressive effect on TSH secretion, but studies of dopamine antagonists have not always found an effect on TSH or other thyroid-related hormones. There have been few studies in antipsychotic-recipients that have tracked TRH, TSH, T4, T3, and autoantibody levels.

There is evidence in the published medical literature which supports causal links between many psychiatric drugs and thyroid hormone disruption: most notably, SSRIs, TCAs (tricyclic antidepressants), lithium, and Seroquel >> all of which are linked to hypothyroidism; however, some lithium patients have experienced hyperthyroidism.

As for neuroskeletal biology, this is a fairly “young” science —- high levels of prolactin promote bone demineralization and bone thinning. Stimulant drugs appear to affect bone morphogenetic proteins (BMPs) >> ultimately, the stimulant effects on BMPs may represent a joint mechanism through which the drugs stunt bone growth (and brain development). I have written about this in Drug-Induced Dementia.

Serotonergic drugs (SSRIs, some of the antihistamines, and TCAs) also inhibit bone growth and bone remodelling due to effects of serotonin on bone cells. Anticonvulsants also accelerate bone density loss.

As for the cardiac toxicity of antipsychotic (and other) drugs, there is no one pathway. To my knowledge, there is no proven link between antipsychotic-induced changes in thyroid hormone metabolism and cardiac death.

Nevertheless, most of the dopamine antagonists appear to be cardiotoxic. Some of this may be related to Drug Induced PPL (phospholipidosis) >> a phenomenon which results, literally, in cell digestion of the cardiac muscle tissue via autophagy. Some of the damage may be caused by inflammatory changes (myocarditis, often due to eosinophilia). Some of the damage may also be caused by hypoxia/ischemia >> starving the heart tissue of oxygen [i.e., high prolactin can contribute to platelet clumping > risk of clots or arterial narrowing; hyperprolactinemia has also been found to promote blood vessel constriction, via B-adrenergic receptors and nitric oxide changes; in lab studies, prolactin has also been linked to smooth muscle cell proliferation in vascular cells]. Some of the damage may also be mediated by prolactin-related heart enlargement (cardiomegaly) >> the putative mechanism: prolactin induced growth-hormone like effect on heart.

Several animal studies have demonstrated the cardiotoxic effects of antipsychotic drugs

For example:

Saito et al (1985 Heart Vessels Suppl) >> these investigators exposed 6 male Wistar rats to daily injections of thorazine for 30 days >> 30% of the animals experienced thickening of blood vessels (arterioles); all of the animals experienced damage to cardiac muscle fibers (fragmentation, swelling, fibrotic scarring).

Belhani et al (2006 Experimental and toxicologic pathology) >> these investigators exposed male and female New Zealand white rabbits to IM (intramuscular) injections of neuroleptics for 3 months: drugs used included saline (control group), amisulpride, haloperidol, risperidone, olanzapine, levomepromazine, and two kinds of combinations. All of the antipsychotic drugs — all of them — resulted in cardiac lesions (damage) of variable magnitude. Changes included disorganized fibers, myolysis (muscle disintegration), cell death (necrosis), and scar tissue (fibrosis). Based on their discoveries, the authors recommended that all human patients receive an EKG and cardiac ultrasound (echocardiogram) PRIOR to beginning any antipsychotic drug therapy

It is important to remember that “NEUROGENIC” (brain-induced) sudden death
remains a largely unexplored and undiscussed problem in dementia and in drug-induced dementia. Although neurologists have finally started to ask the question: how do anticonvulsants affect the process of SUDEP [sudden death in epilepsy] >> focusing upon brain-mediated interruptions in signals to the heart and lungs >>>>>
you will not find any psychiatrists or neurologists asking this question about antipsychotic drugs.

Regrettably, every time I am interviewed by journalists about “premature death” in patients who take antipsychotic drugs , I mention BRAIN MEDIATED DEATH. The journalists never include my comments, apparently because they cannot grasp the concept that the brain controls the heart and the lungs …………. [of course, cardiologists and pulmonologists want neurologists to believe that the heart and lungs control the brain ]……..

hope this information is helpful to you —– I’ll post a few references for those who would like to read more.

Grace

Selected Readings:

Belhani, D. et al (2006). “Cardiac lesions induced by neuroleptic drugs in the rabbit,” Experimental and Toxicologic Pathology 57:207-212.

Curtarelli, G. and Ferrari, C. (1979). “Cardiomegaly and heart failure in a patient with prolactin-secreting pituitary tumor.” Thorax 34:328-331.

Emiliano, ABF and Fudge, JL (2004). “From Galactorrhea to Osteopenia: Rethinking Serotonin-Prolactin Interactions.” Neuropsychopharmacology 29:833-846.

Fineschi, V. et al (2004). “Sudden cardiac death due to hypersensitivity myocarditis during clozapine treatment.” International Journal of Legal Medicine 118(5):307-309.

Frassati, D. et al (2004). “Hidden cardiac lesions and psychotropic drugs as a possible cause of sudden death in psychiatric patients: a report of 14 cases and review of the literature.” Canadian Journal of Psychiatry 49(2):100-105.

Gitlin, M. et al (2004). “Peripheral thyroid hormones and response to selective serotonin reuptake inhibitors.” Journal of Psychiatry and Neuroscience 29 (5):383-386.

Kelly, DL et al (2008). “Cardiac-related findings at autopsy in people with severe mental illness treated with clozapine or risperidone.” Schizophrenia Research 107:134-138.

Livingston, C and Rampes, H (2006). “Lithium: a review of its metabolic adverse effects.” Journal of Psychopharmacology 20:347-355.

Molinari, C. et al (2007). “Prolactin induces regional vasoconstriction through the beta2-adrenergic and nitric oxide mechanisms.” Endocrinology 148(8):4080-4090.

Saito, K. et al (1985). “Chlorpromazine-induced cardiomyopathy in rats,” Heart Vessels Suppl 1:283-285.

Sauro, MD and Zorn, NE (1991). “Prolactin induces proliferation of vascular smooth muscle cells through a protein kinase C dependent mechanism.” Journal of Cell Physiology 148 (1):133-138.

Wallaschofski, H. et al (2008). “PRL as a Novel Potent Cofactor for Platelet Aggregation.” Journal of Clinical Endocrinology and Metabolism 86 (12):5912-5919.

Witchel, HJ et al (2003). “Psychotropic drugs, cardiac arrhythmia, and sudden death.” Journal of clinical Psychopharmacology 23(1):58-77.

Last edited by bob_jones; 23-02-2011 at 01:58 PM.

 

 

https://forum.davidicke.com/showthread.php?t=141622&page=13#post1059705713

 

thanks for the links people I am just not up to it right now I will be back....

peace all 

B

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

Thanks for sharing btdt.  I guess I better keep that appointment and go.......  waah though..........scared.  The dementia part and the thyroid part.   Oh, the heart part too.   I was feeling so darn healthy lately.......

 

I do have someone, people, I can talk to about this all.  No problem.  Good to have the facts......maybe...... :unsure:

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment
  • Moderator Emeritus

Yes.  It is good to have some of the facts.  Some of what happens to people from these meds. so overprescribed at times.  Rarely is full disclosure of risks given.   I think Dr. Grace E. Jackson says that "we" were aware of some of these harms back in 2006........maybe it was 2008.........and she is out there educating and on our side I think. 

 

Anyway, I was referring to my appointment with her in October.  Once again, I'm not sure if I will be ready then..........hopefully so..........otherwise I will push it to November.  Seems I have a lot going on these days.  Oh, in a good way..........in a very good way...........  I will breath out, relax, get a walk in and then go get my filling at the dentist for these next few hours.

 

Love you btdt.

 

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

Link to comment

I agree with your May 25 post where you wondered if this is no longer withdrawal. I think my nervous system is different. I'm not even lethargic. I'm static. I said in DM that I'm not unhappy day by day, but only because I managed to embrace it for now. Except a few days ago my laptop started hurting my hands. It feels like prickly biting little shocks and eventually my hands ache. It's thing with this model. Even unplugged and running on battery.

 

 

I read about a lady who had severe chemcial sensitivity and had to live in a trailer in the middle of no-where.

 

You fancy that btdt? I'll buy the trailer.

 

One thing you must not do is not to have any scans - the lady who had severe chemical sensitivities went on to having severe EMF sensitivities after an MRI.

I had two scans last year and I reackon that made my EMF Sen. Much worse.

seems odd that I seemed to miss WC tingling hands on using the computer till I read this part of my thread today... EMF is what I thought the problem was when I read it but not much is known about it yet.  Except new studies show changes in the calcium is it calcium or some other metal... in the bodies causing the emf problems....

There is a safety network here

http://emfsafetynetwork.org/safety-precautions/electrical-sensitivity/ 

to learn how to protect yourself.  I have had this same problem so I am not surprise you do.  

 

As for the MRI since I have this new movement disorder MRI is top of the list for the next test to do... maybe I need to rethink that. 

 

I am still taking B1   and other things I am not disclosing yet as I want to know results before I post.  

 

this is another EMF link that covers supplements to help protect and heal.

http://www.best-emf-health.com/protection-from-emf.html

 

oddly enough on that same site I noted Lyme disease and EMS are connected I think if you have a previous injury EMF can piggy back on damaged areas... makes sense to me.  This is how they put it...

 

"The lyme bacteria LOVES to eat heavy metals. Metals attract electromagnetic fields such as in electric, magnetic and wireless radiation.  So when in the presence of this type of radiation which weakens the immune system and damages cells, the lyme bacteria multiplies, eats more metal (which keeps the body from detoxing it out), which in turn draws in more radiation, which weakens the immune system... and then we are back to the beginning - this recurring over and over again as long as the body is the perfect host."

 

 

I have not made a decision about the brain scan to not have it I think would mean no cause or treatment for the movement disorder will be sought or found. Catch 22 yet again around we go. 

peace to you both

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Yes.  It is good to have some of the facts.  Some of what happens to people from these meds. so overprescribed at times.  Rarely is full disclosure of risks given.   I think Dr. Grace E. Jackson says that "we" were aware of some of these harms back in 2006........maybe it was 2008.........and she is out there educating and on our side I think. 

 

Anyway, I was referring to my appointment with her in October.  Once again, I'm not sure if I will be ready then..........hopefully so..........otherwise I will push it to November.  Seems I have a lot going on these days.  Oh, in a good way..........in a very good way...........  I will breath out, relax, get a walk in and then go get my filling at the dentist for these next few hours.

 

Love you btdt.

 

mmt

I think you will find a lot of scary **** and you know what a lot of scary **** I have already lived... I tried to remind myself of that the other day when my head was jerking so bad it hurt my neck... there is a lot of scary **** in the world and some of it is here caused by these drugs.  There are many worse things of course like war and disease and hatred .... but we have to deal with what we get delt this is ours.  

 

I am trying to keep a steady pace inside myself till we find out what this is what should be done about it.. but it is not always easy I find it is helps to rest a lot.  Resting the last few days has stopped the severe jerks the kind that hurt my neck... for the most part I tend to have a few of them at night or when I lay down. Many parts hurt but they always have I try to do my physio but some days I don't.  I am using the things I have learned from wd to to get me thru this... wd was as bad if not worse than this on the fear scale so I went back to basics... pray rest eat don't get too excited about what you see... live on faith... cause that is how to win this or at least survive it I think.  It is what I know how to do ... wait yes I know how to wait I know how to pray and I know how to deduce things from what doctors say to me... Lord knows I have plenty of that.. mostly I am avoiding doctors for now waiting on test and results and trying my own bag of tricks learned in wd to see what works and what hurts. 

 

Seeking and or maintaining peace and wishing all of you the same... I do not want to lose the plot right when I need my brain the most to make medical decisions and I do not want to feel the lost plot side effects either so I refuse to crumble and i refuse to lose ht plot just keep on keeping on. 

 

MMD I think you should go see Grace if you can if nothing else should anything big hit in the future and if there is anything that can be done about it I think she is the best hope. I think she is the best hope medically period but there are always other routes to try like osteo therapy Alto tried...or maybe other things who knows.  

 

I am kind of self centred just now so am behind in what is going on here... 

love you too mmt 

 

you do what is best you will know... may the force be with you ;)

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment

Polenta scares the **** out of every member of Benzo Buddies by ...

https://lucke59man.wordpress.com/.../polenta-scares-the-****-out-of-ever...
  1.  

Oct 31, 2012 - Re: Post Benzo Protracted Withdrawal Support Group « Reply #770 on: August 8, 2012, 11:36:39 PM » liosnasi Polenta. I see you are benzo ..

 

putting this here so I don't forget to look at it once I am rested. 

suggested I read it ..

peace

 

think I got sent this cause I scare people here?

 

ah whatever it is scary stuff going on 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to comment
  • Moderator Emeritus

Hi btdt.......this in response to your last response to mine.

 

Yes I think I should go see her too btdt.  It is kind of the when that is the question.  Hoping early October works for me.........otherwise will probably reschedule around one of the holidays as I really do need to go see my Mum as well.  Life sure can get busier........oh in a good way.........when I least expect it.

 

Fun, fun for me today........my other car had some difficulties that needed immediate attention so got off track pretty early on today.........I suppose it was a good day for it.  To get a bit waylaid just is not so bad once in awhile.........maybe it will happen more often.........lol...........  It's just not a great time for me to be ga ga on committing to even PT paid work..........which would be helpful in the $$$$ regard but not so much for my health right now.  All this catch up still that I seem to be doing........hope I can yard sale some stuff before too long.  And ski when the time comes.  And perhaps employ for $$$$ after the first of the year.  Oh I work alright........just not for pay........for balance in general and finding the correct routines and comfort levels ........and all that more important to me stuff right now.  Those around me do benefit as well.

 

Rest.......yes.  Shorter day light already and should be easier to settle when the days shorten.    My body stuff is good.......had a swim last night..........hopefully yoga in the evening tomorrow.............walking or bike or something on Saturday and a fair amount of Epsom salt baths keep me well enough there.  Steady is good.......like you said.........inner balance for me does not get nearly as thrown off as it used to.  The food is still pretty good around here and tolerated well..........after noon or so........AM's I still do best with my blended concoctions and essential banana.

 

Sheesh, those jerks you are having..........wishing them to begone.

 

Best, wellness,

 

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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