Doctorsrcrap: can't cry and frustrated

[Tigz91]

The fact that you take propranolol and have told them you have had readings of low blood pressure is negligence on their part. Propranolol is known to lower BP as that is what is prescribed for and they should be monitoring it to make sure it don't go too low. Do you get dizziness or lightheaded? If so go back and say you got really dizzy and checked your BP and it was low. Please put in a complaint against your surgery as that is shocking. I'm so sorry you are going through that. 

[Shep]

@Doctorsrcrap Since you're not interested in taking more pharmaceuticals, are you able to see a holistic or functional doctor? They would be more likely to work with you with diet and exercise and may run some tests to rule out things without demanding you take more pharmaceuticals. 

 

 

[Doctorsrcrap]

@Shep

I've seen an osteopath who has says structural there is nothing wrong with me. I've done acupuncture before but that hasn't helped. I'm not sure what else I can do. 

Would you still advise to hold the propranalol for now? 

I dint want to make any more mistakes. 

I get exercise and I eat clean and healthy. I've done all the lifestyle changes but nothing is working. I don't see why I should take a PPI when they dibt know what's wrong with me if anything especially when they have their own host of problems 

[Doctorsrcrap]

Ended up in a and e. 

They did an ECG.

Apparently it seems OK but heart rate a little low. They aren't bothered. 

Said I probably have acid reflux. They won't do a test to confirm it. Said it won't go away unless I take ompremazole. They will only do further testing if I take the drug. 

What am.i supposed to do? 

[Tigz91]

Sorry to hear that, I refused to take PPIs too so agreed to take famatodine which is much more gentle on your body and doesn't give you the anxiety etc that a PPI can. 

 

One thing I do know is that most people that are on them actually have low acid but Drs don't test for that they just assume it's because your body is producing too much and they actually have the exact same symptoms. You can get a private test done too check but I honestly don't think you should have too. 

[Doctorsrcrap]

I don't want to have to take the medication. I don't know what to do. I'm so confused right now. If I knew it was just from withdrawal and it will go on its own then I would just suffer until it was over but what if its something that needs treating. I don't know what to do. I really don't 

[modelarz71]

My thoughts are with You. Don't worry, I'm sure you'll figure something out. Regards
 

[Doctorsrcrap]

Thank you. But I won't figure it out. I honestly don't know what to do. I'm lost. 

[Altostrata]

You need to see a new doctor.

 

Quote

18/05/23 - 01-06/23 doxycycline for a rat bite 

 

Did your digestive symptoms start during or after this course of an antibiotic?

[Doctorsrcrap]

@Altostrata

You are absolutely right about that. Unfortunately they all seem as stupid as eachother. 

 

ive been getting in it waves throughout my withdrawal. Its just been getting worse as time goes on. It used to only last for a couple of days every few months but now it's doing it every few weeks and lasts for weeks. 

[gn11]

4 hours ago, Doctorsrcrap said:

Thank you. But I won't figure it out. I honestly don't know what to do. I'm lost. 

 

4 hours ago, Doctorsrcrap said:

Thank you. But I won't figure it out. I honestly don't know what to do. I'm lost. 

Hi sorry about your struggle. I have that pronll 1s well. Mine is mostly silent reflux. I used to think it was just histamine but ate a bunch of crackers and got very serious gerd. I am on a FODMAP diet and i

that helps some. One thing that makes a difference is my sleep. I have had sleep disturbances for 2 years. If I sleep well I y

usually have less GERD. I have been working on my sleep vía listening to youtube meditation and limbic retraining videos. I have a massage therapist (very gentle) who does  Reiki (energy medicine). This has helped me sleep better sometimes. I've tri

ed many things  but sleeping better and limiting some carbs has worked the best. Still struggling as we speak. 

[bluemojav]

Found this by looking up “acid reflux” because my withdrawals have made my GERD get just as bad as they were prior to me getting on antidepressants (no idea how the antidepressant made it better, but that doesn’t mean I’d ever want to get back on it, lol). I’ve gotten an endoscopy twice for acid reflux related issues and it’s always the same— “you could get a ulcer if it gets worse, take this prescription antacid and don’t eat xyz”. I temporarily took a PPI (omeprazole wasn’t strong enough for me, so I went up to pantoprazole) but frankly they’ve never helped long-term, and my stomach seems to get used to it enough to make it hurt again after a few weeks on a new one.

 

Avoiding caffeine, alcohol, and chocolate/spice helps, as well as not eating at least 3 hours before sleeping and keeping my chest/head elevated by a wedge pillow helps too. I agree with GN that getting a good night’s sleep helps a lot too. At this point, I just carry a container of tums with me everywhere I go. Sorry I can’t offer more solid advice so much as just commiseration.

[Doctorsrcrap]

Honest opinions. Is it OK for me to take omeprazole for a month ti see if it helps amd then taper off or would it be a case of I shouldn't touch it even short term? 

[Shep]

1 hour ago, Doctorsrcrap said:

Honest opinions. Is it OK for me to take omeprazole for a month ti see if it helps amd then taper off or would it be a case of I shouldn't touch it even short term? 

 

Please see:

 

Tips for tapering off stomach acid blockers or PPIs...

 

The first post in that thread gives information and a link to Chris Kessler's site. You may want to check that out before you do anything. Changing your diet may bring you more relief than adding in more drugs. 

[Doctorsrcrap]

@Shep

Thank you. I did read the thread and have read a lot of Chris kressers stuff. Infact about 3 months ago i used that info and got my dad off ompremazole. Typical isn't it. 

Am I right in thinking if the digestion issue if caused by WD that even if u don't do anything about it and just suffer it out that it would eventually just sort itself out? 

[Shep]

I can't answer that question. If you feel you need medical attention that requires additional treatment, it's up to you to get it. All we can do is offer the information on the risks and if available, information on tapering. 

 

Many people find that going on elimination diets can be very effective. Some people find probiotics and prebiotics to be helpful, which can include getting them naturally through certain foods. If you're not already doing so, I would keep a food dairy and note upticks in symptoms after eating certain foods. 

 

But what it sounds like you're asking is if there will be long-term damage caused by letting this symptom persist and that is something you really need to discuss with your healthcare provider. I would research and experiment with your diet. Perhaps consult a nutritionist or join an online forum for people seeking holistic and nutritional care for their GI issues. 

[Doctorsrcrap]

@Shep

Yes OK thank you for your help 

[bluemojav]

9 hours ago, Doctorsrcrap said:

Honest opinions. Is it OK for me to take omeprazole for a month ti see if it helps amd then taper off or would it be a case of I shouldn't touch it even short term? 

To be frank, I hadn’t personally had any real issues getting off of the omeprazole after a month (lucky me!), but the guide linked here is great advice if you do end up taking it. I would second trying non-medication alternatives/lifestyle changes first.

[Doctorsrcrap]

@bluemojav

I have tried quite a few of the things already but its not worked but I've got other horrible symptoms too so what's the liklihood it's all just withdrawal and nothing but time is going to help me 

[Doctorsrcrap]

Update: I'm almost at 13 months off. 

 

So I refused the ompremazole for my supposed acid reflux, my diet is good. I can't see it being that especially with half of my symptoms. It just doesn't make sense. Had a h pylori test done which came back fine. 

I paid for a private b12 blood test and I am borderline low. This apparently needs further testing to find out why. Not sure what to do now. Got another blood test on Wednesday. But not sure if I should start taking a b12 supplement. I've read you should take sublingual tablets but can't find any of those in the UK. Dint know if I can just take normal b12 tablets. 

 

Current symptoms

. Numbness in throat

. Agitation 

. Breathless 

. Tight chested

. Restless 

. Buzzing in head 

. Trouble sleeping 

 

I don't know what to do anymore. 

[Happy2Heal]

52 minutes ago, Doctorsrcrap said:

I paid for a private b12 blood test and I am borderline low. This apparently needs further testing to find out why. Not sure what to do now. Got another blood test on Wednesday

 

you don't need to take the sublinqual, the capsules and other forms of B12 work just as well and can be cheaper

https://nutritionfacts.org/questions/vitamin-b12-deficiency-symptoms-treatment/

 

[Doctorsrcrap]

@Happy2Heal

Thank you. I just read the topic and saw that that was the best version to take. 

Should I wait to have my mma blood test first or start supplementing straight away? 

[Happy2Heal]

19 minutes ago, Doctorsrcrap said:

Should I wait to have my mma blood test first or start supplementing straight away? 

well you said you were "borderline low", not deficient so there's no reason to rush but in my opinion only  I dont see a reason to go and get tested again.

 

 

just take some B12 and your level will almost surely go up.

 

 

here's some info on safety etc

"

Safety and side effects

 

When taken at appropriate doses, vitamin B-12 supplements are generally considered safe. While the recommended daily amount of vitamin B-12 for adults is 2.4 micrograms, higher doses have been found to be safe. Your body absorbs only as much as it needs, and any excess passes through your urine.

 

High doses of vitamin B-12, such as those used to treat a deficiency, might cause:

• Headache
• Nausea and vomiting
• Diarrhea
• Fatigue or weakness
• Tingling sensation in hands and feet

Interactions

 

Possible interactions include:

• Aminosalicylic acid (Paser). Taking this drug used to treat digestive problems might reduce your body's ability to absorb vitamin B-12.
• Colchicine (Colcrys, Mitigare, Gloperba). Taking this anti-inflammatory drug used to prevent and treat gout attacks might decrease your body's ability to absorb vitamin B-12.
• Metformin (Glumetza, Fortamet, others). Taking this diabetes drug might reduce your body's ability to absorb vitamin B-12.
• Proton pump inhibitors. Taking omeprazole (Prilosec), lansoprazole (Prevacid) or other stomach acid-reducing drugs might decrease your body's ability to absorb vitamin B-12.
• Vitamin C (ascorbic acid) supplements. Taking vitamin B-12 with vitamin C might reduce the available amount of vitamin B-12 in your body. To avoid this interaction, take vitamin C two or more hours after taking a vitamin B-12 supplement.

 

 

 

 

 

[Doctorsrcrap]

@Happy2Heal

Thank you so much.

They wanted to do a test called mma to find out why I'm low. I think they want to know if I have an autoimmune disease which is causing it to be low. 

I am assuming I can take the supplement without it affecting the mma result. I have no idea. 

[Happy2Heal]

6 minutes ago, Doctorsrcrap said:

They wanted to do a test called mma to find out why I'm low. I think they want to know if I have an autoimmune disease which is causing it to be low. 

 

 

are these all tests you would pay for yourself out of pocket at a for profit testing facility?

 

I'd be skeptical about their reasons if that is the case. Very skeptical. They may just be seeing dollar signs. These places can try to scare you into getting every little thing tested just in case.....!! most healthy people eating a decent balanced died don't need all these blood tests and other tests.

 

 

if your own dr didn't think it was necessary to even test your B12 levels, I would think that it is unlikely that you need to be worried at all

 

I found this about the MMA test:

What is it used for? An MMA test is most often used to diagnose a vitamin B12 deficiency. This test is also used to diagnose methylmalonic acidemia, a rare genetic disorder. Symptoms of this disorder can range from mild to severe and may include vomiting, dehydration, developmental delays, and intellectual disability."

 

 

you said your B12 was "borderline low" that is not the same as a deficiency.

There is a reference range and being on the low side for most of these tests is meaningless, it's just a natural variation. 

 

Just for reference, I was vegan for a few years. It can take a very long time (like 2yrs I think) for a new vegan with a normal B12 level starting out, to have a lower than normal level, so generally even vegans don't need to worry too much about B12 as long as they are eating fortified foods

 

[Doctorsrcrap]

@Happy2Heal

I paid privately for the the vit b12 but they just recommended I have the mma done to check for a deficiency. 

I am getting that one done in the NHS for free as they agrees it was worth doing on this occasion. 

Maybe I will have the blood test ran because it is free and then start a b12 supplement. 

[Doctorsrcrap]

14 month update

Mma blood test finally came back as normal which indicates I'm not b12 deficient. Just borderline low at the moment. Started taking a b12 supplement just to try and top up my levels. 

 

Symptoms still have: 

. Numbness in throat 

. Weird tongue sensation 

. Agitation 

. Restless 

. Breathless 

. Anxious 

. Startle easily 

. Nausea 

. Headaches 

 

I'm waiting on results of a heart echo just to check everything because of low blood pressure. 

 

Will update when I have something to report 

 

Keep going everyone 

[Doctorsrcrap]

Short update 

Got the results back from my heart echo and all seems normal. 

I'm very fed up at the moment. I am very very nauseas and have a lot of chest, stomach and back pains ans aches. 

Don't know what to do to get relief. Should I have any more testing done or juat accept its all probably withdrawal and will stop eventually. 

 

Results I've had the last few months:

B12 low but not got a defiency 

Echo fine

Ecg fine just a slow heart rate

H pylori negative 

 

Any thoughts are welcome 

[Tigz91]

1 hour ago, Doctorsrcrap said:

Short update 

Got the results back from my heart echo and all seems normal. 

I'm very fed up at the moment. I am very very nauseas and have a lot of chest, stomach and back pains ans aches. 

Don't know what to do to get relief. Should I have any more testing done or juat accept its all probably withdrawal and will stop eventually. 

 

Results I've had the last few months:

B12 low but not got a defiency 

Echo fine

Ecg fine just a slow heart rate

H pylori negative 

 

Any thoughts are welcome 

Great to hear your results are all normal, does this give you any reassurance? I've had the exact same tests and mine are normal too.

I took a nasal spray 4 days ago just for 2 days and since then my heart rate has been through the roof. I stopped taking them as clearly my body is still very sensitive to meds. I'm now thinking that maybe I'm struggling with subconscious anxiety and underneath I'm stuck in fight it flight. I also worry about my health so much now and think maybe I'm making things worse by going to the doctors so much as I think it's just reassurance seeking. I hope you get some relief soon. 

[Doctorsrcrap]

I have a lot of added stress in my life at the moment. Things out of my control. Which is making my ability cope even harder. 

To be honest I'm not sure how I'm going to manage 

[Happy2Heal]

On 10/5/2023 at 5:49 AM, Doctorsrcrap said:

To be honest I'm not sure how I'm going to manage 

 you took the first step! you recognized the problem!

now you can work on finding ways to handle this stress

 

sadly we often can't control what stressors come our way but we can work to handle them better

 

what this means will vary depending on the kind of stress, your own coping methods, what resources you have available etc

If you have supportive people in your life, see if they can be there for you in ways that will help ease your stress

 

if you can, get as much rest as possible

if you are already resting and sleeping maybe more than needed, then perhaps try some gentle exercise It's amazing how much better movement can make you feel!! really!
i'm a couch potato from way back and would rather chill with a book but I started getting out and doing some easy exercise classes at the Senior center and the change in my mood is fantastic! plus it eases a lot of my pain and also keeps me from having those nasty cortisol spikes in the very wee hours of the morning

 

you can do it! we have faith in you!

you will find a way to manage

 

reach out to your support system, if you have one, with specific requests for things you think can help and accept the help if they offer 

sometimes we are afraid to ask for help but honestly it makes others feel better to be able to help! don't deprive your loved ones of the chance to give you that gift, if at all possible

 

hang in there! this won't last forever and soon you barely remember this tough period in your life

 

[Doctorsrcrap]

15.5 months off. 

 

Still very symptomatic. 

 

Still not having waves and windows. Just symptoms cycle through one another over and over again. 

 

Had a lot of stress going on. This probably doesn't give my brain a good environment to do its best healing. 

 

Will try to remain optimistic that this will still get better in time. 

 

Symptoms:

. Anxiety 

. Fast heart rate 

. Low heart rate

. Breathless 

. Chest and back pain 

. Nausea

. Numb throat 

. Agitation 

. Restless

 

 

 

 

[Doctorsrcrap]

16 months off

. Chest pain

. Back pain

. Low blood pressure

. Nausea

. Anxiety

. Agitation

. Heart sensations

. Numbness in throat 

 

Fed up. Used to like having epsom salt baths for my back pain but that's no longer an option. The bath makes my blood pressure drop even more and heart pound. Nothing really helps the aches and pains. Nothing really helps anything. 

I dint know if I'm know experiencing anhedonia or if I'm just depressed and battle weary. 

Hard not to worry that there's something more sinister wrong with you. I told myself to hold on until 18 months and I would see improvement. I'm slowly creeping up on that time frame and improvement is not coming. 

Still supplementing with b12 right now to try and get levels up seeing as they were borderline low. I have no idea how long to supplement for before testing again to check. 

 

Because of the low blood pressure I am on lower propranalol now. Still slowly working my way off more sensibly than before. Not sure at what mg I can stop at so I suppose I will taper all the way down to 1mg. 

 

I read time and time again that you should get medical testing done but where do you stop. I wouldn't know what else at this point to get checked. 

 

Sorry I'm just rambling and getting my thoughts out somewhere. 

 

If your reading thanks for listening and I hope you are all doing well and seeing improvements 

[Doctorsrcrap]

I have no idea if anyone is still reading my topic but anyway time for another update. 

 

This week is 17 months off.

Still not having windows. 

 

Symptoms:

Dry scratchy throat (I have no idea what this is about. If anyone else can relate to this being from withdrawal I would love to hear from you)

Agitation

Anxiety 

Fast heart rate 

Zero stress tolerance

Crying spells 

Irritable 

Throat numbness

Buzzing in head 

 

 

[Doctorsrcrap]

I'm feeling emotional all the time. I feel overwhelmed by almost everything and feel like crying at the drop of a hat or shouting with irritability. 

I'm going to assume this is what happens when your emotions are trying to switch back on but man's it's uncomfortable. 

I've been through a lot lately, this extra stress no doubt won't have helped matters. 

I'm trying to view this as maybe things are changing maybe I'm heading in the right direction but I feel so bad all the time. Having no windows in this process it brutal. 

I feel guilty for being this way, when I have people who need me and need me to be their for them. Its do hard. I feel like such a let down some times. I know this isn't my fault, I didn't choose to be like this but the fact doesn't make it any easier. 

Anyway... I doubt anyone is reading this. It's just me rambling. If anyone is reading, thanks. 

[Angus]

@DoctorsrcrapI’m so sorry to hear your journey has been so frustrating and long. I don’t have any insight but I can empathize with having gi issues and not knowing how to approach them during wd. WD is such an overwhelming situation and then to have health issues on top of everything makes it even more complicated. I hope everything goes away with time or you find more helpful medical advice. You are so strong! Hang in there🌸

Angus