Bailey Posted April 3 Author Share Posted April 3 @LotusRising I'm not sure how to determine if I have the interdose withdrawal. I would wonder why my symptoms go on for so long after taking it at 6:30am. You did a direct switch to another med but that was pretty awful? My doctor has wondered about switching me from x to clonezapam, a longer acting agent. I'm terrified of everything right now. I'm terrified that the x is interfering with healing but terrified to make a change and destabilize further. I feel trapped. It's crippling to me to think about and I don't know how to not be paralyzed in fear and looping terror. I'm always afraid I'm doing something wrong to prevent healing and my withdrawal brain functioning is so very vulnerable and also uncontrollable, it seems. Appreciate any thoughts you have on any of this. Thanks much. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 4 Moderator Share Posted April 4 10 hours ago, Bailey said: 'm not sure how to determine if I have the interdose withdrawal. Your symptoms would get worse as you approach your dose and then better after taking it. Since you are quite symptomatic, this might be difficult to ascertain. 10 hours ago, Bailey said: ou did a direct switch to another med but that was pretty awful? I did and I wouldn't advise it. It needs to be done in a stepwise fashion to avoid fluctuation in plasma levels and even then, the equivalents are not exact. And typically, the switch is made to diazepam, not clonazepam. I had no idea about any of this at the time and unfortunately many doctors and pharmacists don't either. I'm certain it's one of the main reasons I had such a long and difficult taper and continue to experience symptoms even at a year off. Switching over is a personal decision, but ideally you would taper from the drug your body is used to. This might mean you switch to an immediate release and dose more frequently. 10 hours ago, Bailey said: I'm terrified of everything right now. I'm terrified that the x is interfering with healing but terrified to make a change and destabilize further. I hear you, I really do. I clearly remember feeling this way. But, I don't think taking the xanax is interfering with healing. I don't believe it when people say you can't heal until the medication is out of your body. That just doesn't make sense to me. The brain and body are working to get back to homeostasis at all times. You're not doing anything wrong. Stability can just take a long time for some of us. I never really did stabilize for my entire taper and I'm doing a LOT better than I was back then. Keep hanging on, you'll get there ❤️ 2 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 4 Author Share Posted April 4 @LostInCanada have you had muscle cramping by any chance in your withdrawal? I've started to have bad calf and foot cramping, especially at night. I've not ever had this before. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LostInCanada Posted April 4 Share Posted April 4 2 hours ago, Bailey said: have you had muscle cramping I did a bit. Are you taking magnesium? I read somewhere if you take magnesium you should also take the same amount of calcium. Just take them apart from each other by at least 2 hours. I found since doing this the cramping has subsided. 20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin "... your strength will be in keeping calm..."-Isaiah 30:15 I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others. Link to comment
Bailey Posted April 4 Author Share Posted April 4 13 minutes ago, LostInCanada said: Are you taking magnesium? I have topical magnesium that I've been putting on my feet. I've been off and on with a very low dose of oral mag glycinate (25mg) b/c I'm hypersensitive and a bit afraid. Thanks @LostInCanada 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Xcaretuk Posted April 5 Share Posted April 5 How are you going Bailey? 1 1998(approx.) 20mg Paroxetine, 1998 -2015 various unsuccessful tapers, 2015 app 6 month taper to 0, 2015 approx 6 months later reinstated original brand after debilitating neurological delayed WD symptoms. Made worse after surgery.2023 Famotidine, Cetirizine, New Generic, muscle relaxer. March/April19th June, 2023 - 23rd July, 2023: Paroxetine Dosage reduced from 20mg to 15mg (on 15mg for 35 days), no significant symptoms. 24th July, 2023 - 26th July, 2023: Paroxetine Dosage reduced from 15mg to 12.5mg (on 12.5mg for 3 days), no significant symptoms. 27th July, 2023 - 3rd September, 2023: Paroxetine Dosage reduced from 12.5mg to 10mg (on 10mg for 39 days), no significant symptoms. 4th September, 2023 - 15th September, 2023: Paroxetine Dosage reduced from 10mg to 5mg i.e. 10mg every other day (on 5mg for 12 days), although not noted, must have experienced some symptoms, as I decided to return to previous 10mg dosage on the 16th September. 16th September, 2023 - 25th November, 2023: Dosage increased from 5mg to 10mg i.e. 10mg every day (on 10mg for 71 days), symptoms start dates: Late September sweating, shaking and right side upper back pain., 5th October 23: Upper back pain worsening,21st Oct 23: Night time symptoms: insomnia, nausea, sweats, headaches, some anxiety (predominantly in the mornings)27th Oct 23 admitted to hospital with 1st hypertensive crisis with severe frontal headache (now suspected of withdrawal ) BP 225/115. Admitted twice more with high BP . Doctors at a loss for cause. Given anti nausea, anti anxiety and sleeping tabs in hospital. . 1st Nov 23: , heart palpitations, some anxiety.. 7th Nov 23: Anxiety was now becoming more frequent (not severe). 26th November, 2023 Dosage increased from 10mg to 20mg possibly first time taking 20 mg of Extine, new manufacturer. 3rd Dec 23 - 18th Dec, 23: Started taking 7.5mg - 15mg of Oxazepam when anxiety became unbearable only took 8 in total now stopped. Symptoms now more severe have head pain rather than headache. .Electrical shocks through body overnight accompanied by head pain. Sheer terror,. Sore eyes. 23rd Dec 23: All symptoms remain the same i.e. severe except for the last 2 days where my anxiety levels have not been as severe/ extreme and somewhat manageable (later in the day).22 Jan 24 Have some windows now but still suffering from all day head pain, upper back pain, waking up inner restlessness and terror , nausea, intermittent feelings of fear and wake up 12.30 am every morning and sometimes up to 3 times a night with weird tingling down arms and back, pounding heart head pain and nausea. 2nd March 24, head pain/eye pain everyday and all day and & night wake ups.. Mild Akathisia early morning,, upper back pain, sweats. Anxiety much better. 21st April 24, drop 2.25% drop to 19.5 mg to test help with head /eye nerve pain and new symptom tinnitus. Link to comment
Moderator LotusRising Posted April 6 Moderator Share Posted April 6 Hi @Bailey just wanted to check in and see how you're doing? 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 6 Author Share Posted April 6 1 hour ago, LotusRising said: Hi @Bailey just wanted to check in and see how you're doing? Having such a hard time. Trying to find and hold onto hope. Thanks @LotusRising 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 6 Moderator Share Posted April 6 @Bailey I'm sorry you're not seeing any improvement yet. Are you able to get out at all for short walks, or even just to sit outside? 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 6 Author Share Posted April 6 2 minutes ago, LotusRising said: @Bailey Are you able to get out at all for short walks, or even just to sit outside? @LotusRising I got out for a walk today. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 6 Moderator Share Posted April 6 1 hour ago, Bailey said: I got out for a walk today. That's good to hear. Does it help at all? 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 6 Author Share Posted April 6 1 minute ago, LotusRising said: That's good to hear. Does it help at all? @LotusRising It hasn't seemed to today but I'm glad I tried at least. I feel trapped and without hope, without a way forward. My thoughts are so dark today. I wish they weren't but they are. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 6 Moderator Share Posted April 6 58 minutes ago, Bailey said: My thoughts are so dark today. I wish they weren't but they are. They will pass Bailey. Truly, they will. It takes a lot of strength to keep going, but without a doubt, you can do it. 2 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Xcaretuk Posted April 9 Share Posted April 9 Hi Bailey, How are you ? 1 1998(approx.) 20mg Paroxetine, 1998 -2015 various unsuccessful tapers, 2015 app 6 month taper to 0, 2015 approx 6 months later reinstated original brand after debilitating neurological delayed WD symptoms. Made worse after surgery.2023 Famotidine, Cetirizine, New Generic, muscle relaxer. March/April19th June, 2023 - 23rd July, 2023: Paroxetine Dosage reduced from 20mg to 15mg (on 15mg for 35 days), no significant symptoms. 24th July, 2023 - 26th July, 2023: Paroxetine Dosage reduced from 15mg to 12.5mg (on 12.5mg for 3 days), no significant symptoms. 27th July, 2023 - 3rd September, 2023: Paroxetine Dosage reduced from 12.5mg to 10mg (on 10mg for 39 days), no significant symptoms. 4th September, 2023 - 15th September, 2023: Paroxetine Dosage reduced from 10mg to 5mg i.e. 10mg every other day (on 5mg for 12 days), although not noted, must have experienced some symptoms, as I decided to return to previous 10mg dosage on the 16th September. 16th September, 2023 - 25th November, 2023: Dosage increased from 5mg to 10mg i.e. 10mg every day (on 10mg for 71 days), symptoms start dates: Late September sweating, shaking and right side upper back pain., 5th October 23: Upper back pain worsening,21st Oct 23: Night time symptoms: insomnia, nausea, sweats, headaches, some anxiety (predominantly in the mornings)27th Oct 23 admitted to hospital with 1st hypertensive crisis with severe frontal headache (now suspected of withdrawal ) BP 225/115. Admitted twice more with high BP . Doctors at a loss for cause. Given anti nausea, anti anxiety and sleeping tabs in hospital. . 1st Nov 23: , heart palpitations, some anxiety.. 7th Nov 23: Anxiety was now becoming more frequent (not severe). 26th November, 2023 Dosage increased from 10mg to 20mg possibly first time taking 20 mg of Extine, new manufacturer. 3rd Dec 23 - 18th Dec, 23: Started taking 7.5mg - 15mg of Oxazepam when anxiety became unbearable only took 8 in total now stopped. Symptoms now more severe have head pain rather than headache. .Electrical shocks through body overnight accompanied by head pain. Sheer terror,. Sore eyes. 23rd Dec 23: All symptoms remain the same i.e. severe except for the last 2 days where my anxiety levels have not been as severe/ extreme and somewhat manageable (later in the day).22 Jan 24 Have some windows now but still suffering from all day head pain, upper back pain, waking up inner restlessness and terror , nausea, intermittent feelings of fear and wake up 12.30 am every morning and sometimes up to 3 times a night with weird tingling down arms and back, pounding heart head pain and nausea. 2nd March 24, head pain/eye pain everyday and all day and & night wake ups.. Mild Akathisia early morning,, upper back pain, sweats. Anxiety much better. 21st April 24, drop 2.25% drop to 19.5 mg to test help with head /eye nerve pain and new symptom tinnitus. Link to comment
Bailey Posted April 9 Author Share Posted April 9 7 hours ago, Xcaretuk said: Hi Bailey, How are you ? bad akathisia. Hoping things calm down. Thanks for asking @Xcaretuk 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LostInCanada Posted April 9 Share Posted April 9 @Bailey this journey is not for the faint of heart. You are doing so well. ❤️ 1 20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin "... your strength will be in keeping calm..."-Isaiah 30:15 I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others. Link to comment
Bailey Posted April 9 Author Share Posted April 9 Thanks @LostInCanada. How are you? 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LostInCanada Posted April 9 Share Posted April 9 @Bailey I am okay. Thanks for asking. Been struggling with the morning cortisol rush for some time. I know you understand....not a great way to start the day. "Courage doesn't mean not being afraid, but moving forward despite the fear." 2 20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin "... your strength will be in keeping calm..."-Isaiah 30:15 I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others. Link to comment
Bailey Posted April 9 Author Share Posted April 9 1 hour ago, LostInCanada said: Been struggling with the morning cortisol rush for some time. I know you understand....not a great way to start the day. I sure do understand @LostInCanada It's brutal. I'll be praying for both of us in the morning. 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted April 9 Author Share Posted April 9 How are you doing, @Xcaretuk? Meant to add that to my reply. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Xcaretuk Posted April 9 Share Posted April 9 3 hours ago, Bailey said: How are you doing, @Xcaretuk? Meant to add that to my reply. Hi Bailey, yes about the same. Hanging in there trying to read all the success stories. Sorry to hear about the Akathisia I still have mine every morning but it’s milder than it was in the beginning. It’s the head pain for me that hasn’t improved. I joined a FB group called World Tapering Organisation. There is a lady on there called Shiloh Cadieux who healed after a bout of Akathisia. She shares hopeful posts encouraging others that they will heal. Maybe worth a look if you think it would help…😘 1 1998(approx.) 20mg Paroxetine, 1998 -2015 various unsuccessful tapers, 2015 app 6 month taper to 0, 2015 approx 6 months later reinstated original brand after debilitating neurological delayed WD symptoms. Made worse after surgery.2023 Famotidine, Cetirizine, New Generic, muscle relaxer. March/April19th June, 2023 - 23rd July, 2023: Paroxetine Dosage reduced from 20mg to 15mg (on 15mg for 35 days), no significant symptoms. 24th July, 2023 - 26th July, 2023: Paroxetine Dosage reduced from 15mg to 12.5mg (on 12.5mg for 3 days), no significant symptoms. 27th July, 2023 - 3rd September, 2023: Paroxetine Dosage reduced from 12.5mg to 10mg (on 10mg for 39 days), no significant symptoms. 4th September, 2023 - 15th September, 2023: Paroxetine Dosage reduced from 10mg to 5mg i.e. 10mg every other day (on 5mg for 12 days), although not noted, must have experienced some symptoms, as I decided to return to previous 10mg dosage on the 16th September. 16th September, 2023 - 25th November, 2023: Dosage increased from 5mg to 10mg i.e. 10mg every day (on 10mg for 71 days), symptoms start dates: Late September sweating, shaking and right side upper back pain., 5th October 23: Upper back pain worsening,21st Oct 23: Night time symptoms: insomnia, nausea, sweats, headaches, some anxiety (predominantly in the mornings)27th Oct 23 admitted to hospital with 1st hypertensive crisis with severe frontal headache (now suspected of withdrawal ) BP 225/115. Admitted twice more with high BP . Doctors at a loss for cause. Given anti nausea, anti anxiety and sleeping tabs in hospital. . 1st Nov 23: , heart palpitations, some anxiety.. 7th Nov 23: Anxiety was now becoming more frequent (not severe). 26th November, 2023 Dosage increased from 10mg to 20mg possibly first time taking 20 mg of Extine, new manufacturer. 3rd Dec 23 - 18th Dec, 23: Started taking 7.5mg - 15mg of Oxazepam when anxiety became unbearable only took 8 in total now stopped. Symptoms now more severe have head pain rather than headache. .Electrical shocks through body overnight accompanied by head pain. Sheer terror,. Sore eyes. 23rd Dec 23: All symptoms remain the same i.e. severe except for the last 2 days where my anxiety levels have not been as severe/ extreme and somewhat manageable (later in the day).22 Jan 24 Have some windows now but still suffering from all day head pain, upper back pain, waking up inner restlessness and terror , nausea, intermittent feelings of fear and wake up 12.30 am every morning and sometimes up to 3 times a night with weird tingling down arms and back, pounding heart head pain and nausea. 2nd March 24, head pain/eye pain everyday and all day and & night wake ups.. Mild Akathisia early morning,, upper back pain, sweats. Anxiety much better. 21st April 24, drop 2.25% drop to 19.5 mg to test help with head /eye nerve pain and new symptom tinnitus. Link to comment
Moderator LotusRising Posted April 11 Moderator Share Posted April 11 @Bailey Just checking in to see if you were able to get out for a morning walk? 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 11 Author Share Posted April 11 3 minutes ago, LotusRising said: @Bailey Just checking in to see if you were able to get out for a morning walk? Not today @LotusRising. Too convulsive and also feeling electrocuted. Did the recumbant bike for 30 minutes to try to get some of the akathisia energy out. I pedal and move my arms around like crazy. I hope tomorrow will be better. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted April 11 Author Share Posted April 11 On 3/30/2024 at 2:09 PM, Catina7 said: Sweet potatoes, brown rice, steel cut oats, and some apples. If you're worried about blood sugar spikes, you can first cook the potatoes, rice, or oatmeal and then cool them in the fridge overnight. After that, when you heat them up again they become a "resistant starch" and it doesn't spike your blood sugar as much. @Catina7 I'm so thankful you introduced me to resistant starches. I was totally unfamiliar. I'm carefully trying out sweet potatoes this week -- cooked and then refridgerated overnight. 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Mentor Catina7 Posted April 11 Mentor Share Posted April 11 56 minutes ago, Bailey said: @Catina7 I'm so thankful you introduced me to resistant starches. I was totally unfamiliar. I'm carefully trying out sweet potatoes this week -- cooked and then refridgerated overnight. You're welcome Bailey. I didn't know about them until recently myself. All I know is that if you are having zero carbs then you're no doubt in ketosis, and for some people ketosis can be the kiss of death when it comes to anxiety. Just try a little bit to see how you react. All we can do is try, right? Your body will let you know if it agrees with you or not. 1 Disclaimer: This is not professional medical advice but is based on personal experience only. 1994 - 2017: Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien 2005-present: Trazodone 50 mg 2017: Effexor XR 37.5 >> 75 mg 2020 (March): Began 10% monthly taper of Effexor XR (got down to 12 mg) 2021 (September): Completely crashed. Went back up to 37.5 mg but in doing so I kindled myself 2024: 1/1: 35.6 mg (-6 beads) | 2/1: 33.8 mg (-11 beads) | 3/1: 32.1 mg (-16 beads) | 4/1: (-18 beads) Reasons for starting psych meds: PMDD/Depression, Generalized Anxiety Disorder Other medications: Levothyroxine 75 mcg Supplements: Dr. Berg's Electrolyte Powder on occasion Link to comment
Moderator LotusRising Posted April 11 Moderator Share Posted April 11 9 hours ago, Bailey said: Not today @LotusRising. Too convulsive and also feeling electrocuted. Did the recumbant bike for 30 minutes to try to get some of the akathisia energy out. I pedal and move my arms around like crazy. I hope tomorrow will be better. @Bailey maybe instead of a walk, you could try just sitting outside, or if you have a yard or a deck, sitting or walking there? 1 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 12 Author Share Posted April 12 14 hours ago, LotusRising said: @Bailey maybe instead of a walk, you could try just sitting outside, or if you have a yard or a deck, sitting or walking there? Hopefully I'll be able to @LotusRising. My mornings are often so violent with this morning no exception. No place in backyard where neighbors wouldn't see me writhing or convulsing. This is excruciating torture. I semi slept for maybe 2-3 hours total last night with lots of wake ups. Then at 3am my stomach and chest felt like a bomb had gone off inside. Convulsing, bent over, feeling like I'm being electrcuted, staggering around house around, terror. Then recumbant bike in crazy manner with arms flying to try to lessen the explosion. Very difficult to not unalive myself during those hours. I just don't know how I'm going to make it. The only thing I can say is that it does seem to lessen mid to late morning. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 13 Moderator Share Posted April 13 @Bailey 2-3 hours total sleep sounds like an improvement! You might take that as a small win. It suggests that your nervous system is calm enough to sleep, even if it's short-lived. And the fact that you get a small window in the mid to late morning is also a good sign. Maybe that would be a good time to sit outside or try to get some fresh air? 1 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 13 Author Share Posted April 13 4 minutes ago, LotusRising said: @Bailey 2-3 hours total sleep sounds like an improvement! You might take that as a small win. It suggests that your nervous system is calm enough to sleep, even if it's short-lived. And the fact that you get a small window in the mid to late morning is also a good sign. Maybe that would be a good time to sit outside or try to get some fresh air? Thank you for the encouragment and helping me have perspective @LotusRising 2 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 17 Moderator Share Posted April 17 @Bailey Just wanted to check in to see if you're hanging in? 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 17 Author Share Posted April 17 9 hours ago, LotusRising said: @Bailey Just wanted to check in to see if you're hanging in? trying to. still struggling greatly @LotusRising 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Moderator LotusRising Posted April 18 Moderator Share Posted April 18 @Bailey I'm sorry, I know it's really hard!! You will get there! Are you able to get outside? How are things going with your sister? I remember saying there was a bit of conflict about how to handle what's happening right now. 1 2003-2009 on and off various SSRI's for short periods, Ativan prn 2010-2011 Ativan, up to 1.5mg/day - tapered off without issue 2013-2021 ativan 1-1.5mg 10-12x/month, daily starting Oct 21 to help with buspar WD 2016 - Effexor 75mg, short-term 2021 Mar -Jun Buspar ADR at high dose, tapered 3 months 2021 Aug Wellbutrin 150mg for 5 days (ADR), then MIrtazapine 7.5mg for 7 days (ADR) Oct 22/21 - Direct switch ativan to clonazepam (don't do this) Tapered clonaz Oct/21 - Apr/23 - 0mg! Supplements: omega-3, mag-glycinate "Believe that your tragedies, your losses, your sorrows, your hurt, happened for you, not to you. And I bless the thing that broke you down and cracked you open, because the world needs you open" - Rebecca Campbell *** Disclaimer: Please note, my suggestions/comments are based on my own personal experiences. Please consult a knowledgeable practitioner to discuss decisions regarding your medical care *** *** Please do not send me PM's *** Link to comment
Bailey Posted April 18 Author Share Posted April 18 11 hours ago, LotusRising said: @Bailey I'm sorry, I know it's really hard!! You will get there! Are you able to get outside? How are things going with your sister? I remember saying there was a bit of conflict about how to handle what's happening right now. Thank you @LotusRising. I'm really scared. Yes, get outside once a day for a walk by early afternoon. Doing best I can with that. Things mostly ok with sister, I think, though there are stresses. 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LostInCanada Posted April 18 Share Posted April 18 2 hours ago, Bailey said: I'm really scared It's okay to be scared. Such insanity that these drugs cause. You will heal. Your body is trying to figure out a way.I found this post super encouraging: 20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg/28.4.24-4.4mg/ 8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin "... your strength will be in keeping calm..."-Isaiah 30:15 I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others. Link to comment
Bailey Posted April 18 Author Share Posted April 18 thank you so much @LostInCanada 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted April 18 Author Share Posted April 18 2 hours ago, LostInCanada said: It's okay to be scared. Such insanity that these drugs cause. You will heal. Your body is trying to figure out a way. Yeah, I'm scared I won't heal given how slow and savage this has been. I also struggle with a lot (alot) of fear and terror, day and night. Thanks again, @LostInCanada 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now