Carmie: accidently doubling up on Seroquel one day while tapering

[ShiningLight]

Carmie,

 

My heart goes out to you. Thinking of you. ❤️

[hayduke]

Hey there Carmie.  Hope you are making yourself comfy and enjoying holiday season.

[Rosetta]

Carmie,

 

I’m so sorry to read your thread.  I wish there were something I could do.  I agree that taking a break from tapering is a good idea.  For me, there were various conditions that became more intense when I was in a wave.  I felt that old injuries and other physical symptoms bothered me more when in a wave.  So, perhaps this immune response you are having is a symptom of WD at times?  
 

I was on an inhaler once not too long after I quit ADs.  I had never had asthma before.  I assumed it was a life-long condition once it appeared, but not at all.  It was, apparently, a WD symptom, and it coincided with the blooming of the flowers here which occurs in February and March.  Eventually, I didn’t need the inhaler.

 

I will be keeping you in my thoughts, sweet Carmie.

 

Rosetta

[manymoretodays]

Me too Carmie.......I'm sorry to hear it is so tough right now.

And am rooting for you......in the cheer-leading squad for Carmie.

Sending positive healing intentions and prayers.

I sure hope the light is coming......real soon for you.......the healing and peace that it brings.

 

L, P, H, and G,

mmt

[Longroadhome]

Rooting for you too @Carmie. I think WD picks out our vulnerable spots and intensifies them. 

I had surgery on my foot 5 years ago, well before poop out and WD commenced. Had no problem afterwards and all was well for a few years. Fast forward, and since I started tapering and WD symptoms began, I’ve had so much pain in that foot and big toe. I have pins and needles in part of the foot too. 

So, it could well be WD is playing a part in making your breathing worse at this moment in time. 

Baylissa has also confirmed this, stating WD can play on one’s weaknesses. 
 

Do the best you can to cope until it settles. 
 

May 2023 bring you better health. 

[sunnysideup69]

Hello @Carmie

Just wanted to drop by and send you lots of love and good wishes for healing.

 

I've been reading your thread just now- my heart goes out to you. Am praying the flare up ends soon. 

 

lots of love and good wishes xxx

[manymoretodays]

Hi again oh Carmie.  What happened with Albuteral?  I figured you have tried it all by now.  With kids anyway....that used to get used first....aerosol or inhaler for bronchodilation....also a syrup for oral usage.  Good good that Oxygen sats stay good.  Sounds like some kind of infection on top of the usual chronic lung condition?  Is it warm out now where you are.....down under?  I sure hope the cheering for you and prayers 🙏 help.  Much care.  L, p,h,and g.  mmt  p.s.  type at you next year....maybe it is there already 😀

Edited December 31, 2022 by manymoretodays
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[Carmie]

Hello all you beautiful people on this site, thanks @Cheeky  @ShiningLight  @Rosetta  @manymoretodays   @sunnysideup69 @Longroadhome  @FireflyFyte  @hayduke for all your lovely messages. 
 

Well, I’m still struggling to breathe 24/7 every day. This flare from the vax still won’t die down. It’s almost 16 months now of struggling to breathe 24/7. It’s awful! My immune system has been so triggered that it won’t calm down. 
 

Before the vax my naturopath was able to get me into remission, so I saw him every week for about two months at the end of last year, but no success with this flare. My hopes were dashed and I continue to go into a deep dark hole.

 

I’m going to continue to try different things though. I had a teleconference appointment with a homeopath this week, he  was highly recommended to me. He’s a homeopathic doctor and has studied homeopathy for five and a half years. All his reviews online were fabulous. I’m waiting to receive the homeopathic medicine via mail. Not sure if it will help, but anything is worth a try. 
 

My integrative doctor sent me to an endocrinologist this week for my parathyroid, the parathyroid hormones were too high. Anyway, when I was there I was telling him about my lungs, and he said there’s a lot of inflammation in my body, the cytokines are going crazy.
 

He also said it might be worth a try to get some low dose naltrexone (LDN). He was saying my integrative Dr can prescribe it, not all GP’s will do so, as it’s off label use. It has to be compounded to get the small dose. Some people have had no problems with LDN while going through withdrawals, but others have. I guess I could start with a teeny tiny dose and work my way up a little if that’s okay. I think it’s usually up to 4.5mg. Maybe I could start at 0.25mg. 
 

Anyway, even though my blood vitamin D levels were fine, the endocrinologist said it’s not really being absorbed, and he thinks that why my PTH is high. The calcium levels are fine. He gave me calcitriol, which is the active form of vitamin D, it’s available by prescription. Well, at least my body will now be absorbing the Vitamin D. 
 

Okay, I’m going to write a gratitude list now, it’s been forever. Here goes:

 

1. Some friends popped around today with a pressie, which was a nice surprise. It was a massive, big diamond painting of cockatoos, one black one and one white one. They’re beautiful birds. I haven’t done any diamond paintings in ages because I did millions of them and doing them started flaring up my RSI. I should be okay to do one again, I really loved doing them. 
 

2. A dear friend took me to the hospital this week to see the endocrinologist there. I hadn’t seen her in forever so it was nice catching up. She’s a bird person and has got quite a number of cockatiels. The specialist was at a private hospital, it was actually quite a nice hospital, though I’m not a fan of hospitals because of the trauma they’ve put me through. 
 

3. Just had a nice lunch of sweet potato, salad and salmon. 
 

4. I’ve been doing a Death In Paradise marathon. I bought some of the seasons I was missing, I’ve got them all now. 
 

5. I also got myself six season of Doc Martin. I still have to get the rest. 
 

6. I’m lying in my comfy bed with the fan on. 
 

7. I can’t think anymore… CFS brain fog kicking in with a vengeance…. I love sparkling water, just had some. I’ve got lemons there, I should add some lemon. I also like adding apple cider vinegar. 
 

8. Oh, yes, it’s easier to do things online now as a friend gave me this iPad I’m using. She has a few and wasn’t using this old one. Mine died. It’s actually the exact same model I had. Let’s see how long before I kill this one. 
 

9. Online grocery shopping is fantastic! 
 

10. A friend caught up with me at the park around the corner for a few hours the other day. It was nice chilling with her, though I wasn’t too good when I first saw her as I couldn’t stop crying as I was so claustrophobic with my breathing day in day out.
 

She’s a justice of the peace and I needed her to witness my signature on the QCAT guardianship papers for my husband. I have to do paperwork every year and send it to them. I don’t need to go to a tribunal again for four years though. 
 

Anyway, I managed to get through the gratitude list. Yay! Don’t have the brain power to proofread so hopefully it all makes sense. 
 

Sending hugs🤗🤗🤗

[Kostas]

An inspiration for many of us  dear Carmie..

 

God bless you, and

please

Keep going.!

 

 

[hayduke]

Nice to hear from you @Carmie.

 

I do gratitude lists all the time now, even just out loud or in my head.  Best habit, thank you for teaching it!

 

Be well ❤️

[manymoretodays]

Hi Carmie,

Gratitude that you felt up to posting......and hugs.

Well, we do have a topic on LDN, low dose naltrexone and it is here:

Low-dose naltrexone- LDN anyone?

So the idea is to try this for inflammation then, your pre-existing lung disease and then hopes that it would reduce some of the inflammation in the rest of your body now, as evidenced by cytokines?

 

And ooh, ugh......sorry to hear it remains you going down a deep dark hole. 

I don't know anything about LDN, to be honest.......there is some in the topic here, and a ton came up with a search.

Can you ask the practitioner if they have any scientific data to back up their recommend to you to try it?  I mean in a nice way, so they don't bristle.  I'd just sure hate to see you try something that might be costly.....$$$ or possible untoward effects.

 

On the homeopathy.........for your other conditions.......I mean same, I don't really know......big maybe.

 

How bad is the WD, continuous or after you make a taper of .05 mg?  What do you notice in the week(s) after related to the Seroquel taper?  I'm just wondering.

 

Oh......I wish I had more for you that could help.  So glad your people are being good to you Carmie, and you sound upbeat too, as you often do. 

You are making perfect sense.  I am just saddened that it remains so very difficult.

 

Hugs, L, P, H, and G,

mmt

[Carmie]

Hey there @Kostas @hayduke  @manymoretodays

 

Thanks for popping over to my neck of the woods, hope you’ve all had a fab day. 
 

MMT, I’ve researched LDN and read about it on this site too, but there’s not a ton of info about how it would affect withdrawals. Someone said they had no problems and others have said it’s set them back. I’ve noticed on different threads on this site that the topic on LND gets bumped up so more people can comment, but there haven’t been a lot of comments. 
 

I don’t even know if it will work for this flare, but after 16 months of struggling to breathe 24/7 I need to try different things. My naturopath had me in remission before the vax, but since the vax I get no reprieve despite his help. I’m just existing, lots of tears shed, so claustrophobic.

 

Withdrawals have been bearable because I hold each drop for two months or so and the drops are small. If I drop any faster I get severe withdrawals. I still get withdrawals though, it doesn’t matter how slow I go there’s no escaping withdrawals, as all of us on this site know. It’s just a matter of what are our baseline withdrawals.

 

Well, I think I’ll write another gratitude list, though I’m feeling very downhearted. Here goes: 

 

1. I’ve been lying on my bed for most of the day, don’t have much strength due to CFS, but I’m grateful I got a DVD player recently after my old one packed it in. I use the TV in the bedroom for DVDs and I’ve got Apple TV in the lounge room. 
 

2. I’m grateful for my friends. Actually one of my friends went and got the DVD player for me, my dear little errand runner. They’re always asking me what they can do for me, they’re very thoughtful and kind. I do all my shopping online, but occasionally if they’re already out and about and will be passing through I’ll ask them to get me something I need. 
 

3. Tomorrow I’m going to see my naturopath at the other end of the city and a kind friend is taking me there. It’s nice chatting in the car and we stop at a nearby fruit and veggie store. My diet consists of veggies, some fruit and a bit of seafood. I was eating quite a bit of grass fed meat too, but I haven’t had any for ages. 
 

I like Dr Gundry and he was saying that having a lot of meat is not too good for autoimmunity, just to have it occasionally. I actually don’t feel like any at the moment. I’ve been on the AIP diet forever, I don’t eat grains, nuts, seeds, sugar, dairy, legumes etc.

 

I’ve just recently learnt more about lectins through doctor Gundry and there are a few foods that are allowed on AIP that still have a lot of lectins in them, like zucchini and cucumbers, because of the seeds. I stopped eating those too. There are so many varieties of vegetables around, I think I’ll get into trying some new ones again soon. Variety is the spice of life, so they say. 
 

4. I’m grateful for TV shows that are a great distraction when one is suffering. I’m enjoying my Death In Paradise marathon. I’m into season six now.

 

I didn’t have all the seasons on DVD, so I started on a couple of the later seasons, which I already had, as well as the first two seasons. As I was watching the first two seasons the other DVDs arrived and I’ve been able to continue on in order now. I’ve liked all the inspectors and I love the theme song. 

5. I got myself a pressure cooker the other month, but I haven’t used it as yet. I’ve never used one before, let’s hope when I get around to it I won’t blow my home up😁. A friend of mine gave me a $300 gift voucher ages ago, I used that to pay for it. I’ve still got $200 left on the voucher, I haven’t even spent it yet. Well, I’m grateful for whatever I buy with it once I do spend it. 
 

6. I’m grateful that I compounded my meds for tonight earlier in the day. Sometimes I do it at the last minute because I’ve run out of the formula and it’s such a pain, especially when you’re so sick and barely functional. It feels great it’s already done. Yay! Now, all I have to do is take it. 
 

7. I love my Himalayan salt lamp. Sometimes I leave it on at night because I’m so claustrophobic due to struggling to breathe. It doesn’t disturb my sleep. I do put on blue light blocking glasses in the evening though. 
 

8. I’ve been doing a few crosswords the last couple of days. Good distraction. 

 

9. I managed to do some dishes today, my dishes always pile up because when the CFS is bad I don’t have the strength to do anything. Everything I eat I cook from scratch and it takes a lot of time and effort, so I use my tiny bit of energy for that. 
 

I have been dizzy 24/7 for nearly three decades too and I can’t stand in one spot for long periods of time which makes doing dishes a little hard sometimes too. Maybe I should get a stool. No one has figured out why I’m faint all the time. Anyway, I’m grateful for when I’m able to get things done. 
 

10. Okay, one more……..Oh, yeah, a friend popped around some groceries as a pressie the other day which was so sweet of her. Speaking of sweet, there were sweet potatoes. I looooooove sweet potatoes. I also buy sweet potato noodles, they’re just made of sweet potato starch and water and they are very handy as I don’t eat grains. 
 

Anyway, I think that’s about it. Let’s see if I have the strength to do my dinner dishes. It’s time to put on my blue light blocking glasses and then take my meds in half an hour. I wear glasses and I just put the blue light clip ons over my glasses, they’re really cheap on eBay. 
 

I just got some scam SMS’s again. Apparently the tax department owes me over $14,000🙄 I’m on a disability pension. So many scammers out there, I feel sorry for all the people that go into panic mode and get fleeced by scammers. 
 

Bye for now beautiful people💛

[Thorin]

Hi Carmie, fellow AP reducer here (Lurasidone for me). I just wanted to say that I’m amazed by how far you’ve come with your taper. You’ve gotten down to such a low dose and I see from skimming through your thread that it’s been difficult. Yet you’ve persevered. I just wanted to say that this is giving me a little confidence that I can slowly do it too. Thanks (from a fellow Aussie)

[Carmie]

On 1/22/2023 at 9:01 PM, Thorin said:

Hi Carmie, fellow AP reducer here (Lurasidone for me). I just wanted to say that I’m amazed by how far you’ve come with your taper. You’ve gotten down to such a low dose and I see from skimming through your thread that it’s been difficult. Yet you’ve persevered. I just wanted to say that this is giving me a little confidence that I can slowly do it too. Thanks (from a fellow Aussie)

Yes, slow and steady does it Thorin,

 

It will still take me many, many, years to get off these meds as the smaller the dosage is the smaller the drops become. I won’t be jumping off until I’m down to 0.0something. I’ve suffered so badly with Akathisia in the past and my brain is so messed up with doctors putting me on and off meds that I can’t do the 10% drops a month that some others are able to do either. 
 

My drops are much smaller and I’ve been holding them for almost two months recently. I think it was seven weeks last time. 
 

Wishing you all the best with your tapering🤗

[Thorin]

16 minutes ago, Carmie said:

Yes, slow and steady does it Thorin,

 

It will still take me many, many, years to get off these meds as the smaller the dosage is the smaller the drops become. I won’t be jumping off until I’m down to 0.0something. I’ve suffered so badly with Akathisia in the past and my brain is so messed up with doctors putting me on and off meds that I can’t do the 10% drops a month that some others are able to do either. 
 

My drops are much smaller and I’ve been holding them for almost two months recently. I think it was seven weeks last time. 
 

Wishing you all the best with your tapering🤗

I’m sorry you’ve had such a terrible time and continue to. It’s incredible that despite all that you’re still managing to reduce your dose over time! I reduced WAY too fast (under a doctors instruction….) and have been holding for months. I’m just starting to come good although I’m not anywhere near 100% and it doesn’t take much to send me into a short wave. I’m finding i’m bouncing back a little quicker though which is nice. Good luck with the taper!

[Heath]

@CarmieGood to hear from you! I’m sorry you are still in a tough spot. You’ve inspired us to keep moving forward. I have started doing daily gratitude also. It has made a difference. 
 

The company I work for has started us on a go pivot health app. 2 of the daily activities are mindfulness and gratitude 👍. 
 

sending prayers and good vibes your way 💪

[Carmie]

2 hours ago, Thorin said:

I’m sorry you’ve had such a terrible time and continue to. It’s incredible that despite all that you’re still managing to reduce your dose over time! I reduced WAY too fast (under a doctors instruction….) and have been holding for months. I’m just starting to come good although I’m not anywhere near 100% and it doesn’t take much to send me into a short wave. I’m finding i’m bouncing back a little quicker though which is nice. Good luck with the taper!

 

30 minutes ago, Heath said:

@CarmieGood to hear from you! I’m sorry you are still in a tough spot. You’ve inspired us to keep moving forward. I have started doing daily gratitude also. It has made a difference. 
 

The company I work for has started us on a go pivot health app. 2 of the daily activities are mindfulness and gratitude 👍. 
 

sending prayers and good vibes your way 💪

So very kind of you Thorin and Heath to pop over again, 

 

I’m an absolute mess due to my breathing problems. I know I’ll have them for life, but this latest flare has lasted about 16 months so far. It’s awful struggling to breathe 24/7. Just a little reprieve occasionally would boost my spirits. I’m worried about al the collateral damage in my lungs too. It’s not the actual lobes, it’s the bronchial system, I feel like I’m breathing through a straw😢
 

Thorin, I’ve tapered too quickly in the past too. I was cold turkeyed off a number of meds as well by psychiatrists and put on and off all sorts of things, I don’t even remember what they all were. I didn’t have a psychiatric problem, just chronic pain. 
 

You can do the tapering thing, you just have to go really slowly, you’ll figure out by trial and error how slow to go. You won’t be without withdrawal symptoms, but you’ll figure out what your baseline is. When you’re in a wave though it’s best to have a long hold because if you don’t it can catch up with you. Sometimes I’ve not held long enough a few tapers in a row and it’s hit me like a ton of bricks months after. Then I’ve had to hold for a really long time until I’m in a window again. 

 

Also, it’s not just about how slow you go, it’s also holding long enough after each taper. I’m going through absolute torture with my health issues so I’ve been holding almost two months recently. Actually, this week it’s 7 weeks since my last drop, so I’m still deciding whether to drop again. 

 

Heath, I’m so glad you’re continuing to move forward, good for you! Yeah, it’s great you’re looking at things to be grateful for too. I’m struggling so badly with my lung issues, but I’m trying to still find things that I’m grateful for. Lots of tears shed, but one day at a time does it. 
 

Speaking of gratitude, I’ll try and do a gratitude list today, here goes again: 

 

1. A dear friend took me to my naturopath at the other end of the city yesterday. My friends are the most beautiful people, I ever so grateful for their kindness and caring. 
 

2. I got to go to the fruit and veggie shop before my appointment yesterday. I do everything online pretty much because of my lungs, so it was nice to choose my veggies. I got lots of sweet potato, it was on special. I think I could  sink a ship😜 I don’t eat nightshades, thus no regular potatoes. 
 

I got some wombok, blueberries, red cabbage, onions, shallots, kale and Bok Choy too. I think I got some other stuff too, but my brain is in CFS lala land so I can’t think at the moment. Did I, didn’t it??

 

3. I’ve cut up my kale, washed it, spinned it in my salad spinner and added olive oil and salt and it’s ready to be made into kale chips. Yay! 
 

4. I received my homeopathic medicine today. It got sent via express post but express post seems to be extremely slow here in Australia.
 

5. I had an appointment with my integrative doctor via phone just now. She’s going to prescribe me Low Dose Naltrexone (LDN), I’m still not sure if I’ll react to it. She mentioned starting at a low dose of 0.50, but I said I’d rather start at 0.25. She was very happy with that. She’s so accomodating, always happy to do whatever I’m comfortable with. I’ll get that compounded. 
 

She also mentioned something called PEA, I just googled it and it’s supposed to help with inflammation. I’ll have to do more research on it. We have to be so careful in withdrawals. She said I could open the capsules and take a tiny dose to start with.

 

She’s so lovely, caring and understanding. I’m so glad I have her as a doctor. I do have just a normal, local GP who bulkbills, so I don’t have to pay, but he’s always gaslighting me. He’s a nice person, but doesn’t think outside the box. 
 

6. I started doing my diamond painting today, a lovely present from friends last week. 
 

7. Still on a Death In Paradise marathon for distraction. It’s good ol’ inspector Humphrey. Actually Chris Marshall will be doing a spin off called Beyond Paradise this year. I’m excited! It’s going to be filmed in England. I love the scenery in Death In Paradise, as the beach is my happy place. I wonder what the spin off series in England will be like, I hope they show lots of the outdoors. Death In Paradise is continuing though, as well as this particular spin off series.

 

8. Trying to think of some more things I’m grateful for…. Uhmmm…. I had a delicious lunch. Loooove veggies. 
 

9. I’m grateful for YouTube as you can get videos on any subject you’re interested in. 
 

10. I’m grateful for my bed, which I spend the majority of my time in, due to CFS. It’s comfy. 
 

I did it, another gratitude list down, it’s so hard to do gratitude when you’re struggling so much, so I’m glad I managed to do it today. 
 

Sending hugs🤗

[Thorin]

13 minutes ago, Carmie said:

I’m an absolute mess due to my breathing problems. I know I’ll have them for life, but this latest flare has lasted about 16 months so far. It’s awful struggling to breathe 24/7. Just a little reprieve occasionally would boost my spirits. I’m worried about al the collateral damage in my lungs too. It’s not the actual lobes, it’s the bronchial system, I feel like I’m breathing through a straw😢

I’m sorry this is happening for you. Sometimes as break is all you need to let you keep going. Not getting a break must be exhausting.

14 minutes ago, Carmie said:

Sometimes I’ve not held long enough a few tapers in a row and it’s hit me like a ton of bricks months after. Then I’ve had to hold for a really long time until I’m in a window again. 

This is what happened to me and it’s taken months to stabilise somewhat…… still not fully there.

15 minutes ago, Carmie said:

Speaking of gratitude, I’ll try and do a gratitude list today, here goes again: 

This looks like a great practise. I think I’ll stay this. I’ve done it once or twice in the past and it helped. Hang in there!

[Rosetta]

Thinking of you.  I wish I could fix it.  
 

Hang in there,

Rosetta

[Carmie]

Hi @Thorin @Rosetta

 

Thank you for your messages, that’s very kind of you, I think I’ll  do a gratitude list before I go to bed: 

 

1. I have plenty of food, had lovely meals today and made two lots of kale chips. Yummy!

 

2. Ordered the LDN from the compounding pharmacist today, made another appointment with my integrative doctor in a months time  and rang the dentist. I’m always happy when I organise things and have them in my diary. It’s so easy to put things off, but when you actually do them it’s a relief. Also spoke to the compounding pharmacist about P.E.A. It doesn’t need to be compounded. My integrative Dr recommended it as well. 
 

I just have to try little doses of things one at a time and see how they affect me. I can’t keep going like this, struggling to breathe 24/7. I don’t know if anything will calm this flare, but I need to keep a little hope alive. I’m grateful for hope. When I try things and they don’t work I lose all hope and go into a deep dark hole, but I have to keep pulling myself out and try and aim for some hope again.
 

3. I’m grateful for the specialists and natural therapists I do have. My integrative doctor is the loveliest person and so very caring. When I first started seeing her last year some time I told her what these meds did to me and continue to do to me and she apologised in behalf of the doctors that this to me. I nearly fainted😁
 

The endocrinologist she sent me to was so lovely as well, I’ve got another appointment in five weeks or so. Let’s see if the parathyroid hormones have gone down a little with calcitriol. 
 

I also like my homeopath and my naturopath. I started taking the homeopathic remedies today. Three tablets twice a day. He gave me two different bottles and I have to take them on alternate days. 
 

4. My beautiful cat Heidi is staring at me at the moment😸

 

5. I just did some crosswords. Good distraction. 
 

6. Did some more of my diamond painting today. Good distraction.

 

7. Watched some more of Death In Paradise today. Good distraction. I’m onto season seven now, Inspector Humphrey Goodman has now left the island, and it’s inspector Jack Mooney’s turn. At least they didn’t kill off inspector Goodman, like they did inspector Poole, that was so sad.

 

When I love a series I’ll buy the DVDs. I bought White Collar on DVD a little while ago too, and I’ll probably do a marathon of that series again. I was watching it on Disney Plus. I love the banter between Peter, Neal and Mozzie. Mozzie is a hoot! I love shows with quirky and interesting characters. 
 

8. I’m grateful I remembered to take all my supplements today, I’ve been so sick that I was forgetting the last few days, either that, or just couldn’t be bothered. Today I took my vitamin C, zinc, magnesium, serrapeptase, iodine and vitamin K. I’ve been taking the calcitriol ( the activated vitamin D ) from my endocrinologist every day since I’ve seen him though. I need to get some nattokinase and curcumin soon too. 

 

Oh yeah, and I’m on four drops of Stephania that my naturopath put me on as well, it seems to have settled whatever weird sensations I was getting down my spine, though they still come up occasionally. 
 

9. It’s nearly 10.30pm. I better go downstairs and take the bin out. I’m grateful I have a teeny bit of energy to do that, some days I can barely stand up. 
 

10. I saw friends on Zoom this evening, which was lovely. Well, I better go downstairs and take the bin out and then it’s lights out.

 

Good night✨✨✨

[Carmie]

Hi one and all, 

 

Just wanted to mention to everyone that has Akathisia, or has had Akathisia and finds it impossible to explain it to someone, show them this video: Akathisia ( A public announcement) by Akathisia Alliance For Education And Research.

 

It’s just a two minute video on YouTube. It’s so extremely hard to describe Akathisia to people as there really are no words that can describe the actual torture we go through when we have it. I found this video the most helpful so far, as the graphics really help as well. 
 

Sending sunshine from sunny Queensland to everyone ☀️☀️

[Onmyway]

Hi @Carmie

it is such a delight to see you back here and read your gratitude lists. I am amazed by the unwavering support you show others while suffering yourself. I am grateful for YOU!

 

I am really sorry you are still suffering with breathing. I wish there was something I could do to take your suffering away. 

 

I kept meaning to ask you this and always forget - have you tried any probiotics? The idea is that gut bacteria have an impact on inflammation and autoimmune disease. I have been recently amazed by a friend whose arthritis remitted from a low sodium diet so sometimes help can come from the unlikeliest places. 

 

Sorry for always trying to problem solve rather than just offer support. 

I would really like to alleviate your suffering if possible. 

 

Warm hugs from across oceans!
OMW

[littlebird]

I love your gratitude list! Thank you for sharing

[Thorin]

1 hour ago, Onmyway said:

Hi @Carmie

it is such a delight to see you back here and read your gratitude lists. I am amazed by the unwavering support you show others while suffering yourself. I am grateful for YOU!

 

I am really sorry you are still suffering with breathing. I wish there was something I could do to take your suffering away. 

 

I kept meaning to ask you this and always forget - have you tried any probiotics? The idea is that gut bacteria have an impact on inflammation and autoimmune disease. I have been recently amazed by a friend whose arthritis remitted from a low sodium diet so sometimes help can come from the unlikeliest places. 

 

Sorry for always trying to problem solve rather than just offer support. 

I would really like to alleviate your suffering if possible. 

 

Warm hugs from across oceans!
OMW

Speaking of probiotics. While it is by no means a cure, I have found that daily home fermented milk kefir does help. It’s full of good bacteria and is very healthy.

[Carmie]

5 hours ago, Onmyway said:

Hi @Carmie

it is such a delight to see you back here and read your gratitude lists. I am amazed by the unwavering support you show others while suffering yourself. I am grateful for YOU!

 

I am really sorry you are still suffering with breathing. I wish there was something I could do to take your suffering away. 

 

I kept meaning to ask you this and always forget - have you tried any probiotics? The idea is that gut bacteria have an impact on inflammation and autoimmune disease. I have been recently amazed by a friend whose arthritis remitted from a low sodium diet so sometimes help can come from the unlikeliest places. 

 

Sorry for always trying to problem solve rather than just offer support. 

I would really like to alleviate your suffering if possible. 

 

Warm hugs from across oceans!
OMW

 

5 hours ago, littlebird said:

I love your gratitude list! Thank you for sharing

 

4 hours ago, Thorin said:

Speaking of probiotics. While it is by no means a cure, I have found that daily home fermented milk kefir does help. It’s full of good bacteria and is very healthy.

Good evening OMW, littlebird and Thorin, 

 

Thanks for popping over to my neck of the woods. 

 

Onmyway, yes, I take probiotics twice a day, the integrative doctor prescribed them. I keep forgetting to write down that I take probiotics when I mention the supplements I’m taking, I think it’s because I’m thinking of the supplements that aren’t in the fridge. The other two things that are in the fridge are glutathione cream and fish oil. 
 

Glutathione doesn’t always absorb well when taken orally. I can’t take NAC as I always end up getting stomach pains from it, it doesn’t like me.
 

As regards the fish oil, I bought it a little while ago and have been too scared to take it because every time in the past when I took fish oil my withdrawals ramped up. Yesterday I opened one capsule and had a little from it throughout a couple of hours. Fish breath😁No bad effects. Today I took a whole capsule about an hour or so ago and I’m still okay. Hopefully that continues, I’ll just take one a day to start off with, my Dr wanted me to try it again. So far, so good. I got a wild caught fish one. I only eat wild caught fish now, farmed fish are fed grains and all sorts of things. 
 

I had problems in the past with magnesium too, it ramped up my symptoms as well, but my Dr wanted me to try that again too, so she gave me a liquid and I started on a tiny dose and worked my way up a little. No problems with it whatsoever. 

 

Littlebird, good to hear that you’re thinking of doing gratitude lists too. I’m suffering so much as I’m struggling to breathe 24/7 day in, day out month after month. It’s unbearable. I’m pretty miserable and shed lots of tears. Gotta look at things to be grateful for despite being extremely claustrophobic.
 

Thorin, I’m glad that you find your milk kefir really beneficial, I don’t drink or eat dairy. I guess there’s water kefir. I used to make tons of kombucha for years, it was very yummy and has good bacteria. It’s so delicious, but I gave it up as the yeast in it was stopping me getting candida under control. I didn’t have outward symptoms of candida but tests showed I was riddled with it. Since giving up kombucha I’ve had no problems. Maybe I’ll get a store bought one occasionally, when I make it I can’t stop drinking it😁

 

Okay, time for a gratitude list. 
 

1. Didn’t have much focus today because my CFS brain fog was so severe, so I only watched a few episodes of my TV show, but it was a good distraction for a couple of hours. I had to keep rewinding because my brain was in total lala land and I was missing the clues. 
 

2. I was wondering how to keep distracting myself, so I ended up watching a concert and some music videos. I’ve always been a major music freak, but I’m struggling to find joy in anything. Not withdrawal related, breathing related. I’ve barely listened to music for the last sixteen months. 
 

I watched a Twenty One Pilots concert and then a variety of music videos. I was grateful for the distraction and it didn’t take any brain power. 
 

3. I’m grateful for YouTube Premium, it’s the first time I’ve joined it and it’s great! No more commercials. Yay! I started watching the Twenty One Pilots concert and commercials kept coming on. It kind of wrecks a concert, so I joined premium and now I’ve got it in my mobile devices and my TV in the lounge room. It’s fabulous, bye bye ads. 
 

4. Did a small amount of my diamond painting. Good distraction. 
 

5. Enjoying the fan being on me. 
 

6. Been knitting just for the sake of knitting as it’s soothing. 
 

7. Love water. Don’t have any sparkling water at the moment, must get some of that as well. Cold water on a hot day is great. 
 

8. Every thing is such an effort with CFS, but I’m grateful I’ve been able to cook myself meals every day. When I have a little more strength I’ll do some batch cooking, but at the moment my body won’t let me. Just cooking day to day. 
 

9. Gonna have a nice shower soon. 
 

10. I’m still okay since taking the fish oil. Yay!

 

Well, it’s been seven weeks since my last drop of 0.05. I’m going to drop by the same amount again tonight. I’ll be going from 3.55mg to 3.50mg. All forward movement is a plus. 
 

Off to have a shower and freshen up, sending hugs🤗

[Carmie]

Awful, awful day again, struggling to breathe. Same thing every day. Just surviving, just existing. Going to write a gratitude list nonetheless:

 

1. Watching my TV show for distraction. Skipped a couple of seasons that I’ve seen recently already and am watching the last season that I could get on DVD. I hadn’t seen this one yet, I’d seen all the others before, some a number of times. Am still watching this last season. 
 

2. Watched YouTube music videos for distraction. 

 

3. Downloaded music on the YouTube music app, that distracted me for a while. 
 

4. Grateful YouTube is now ad free with Premium. I should have done that ages ago. The ads were so annoying and now I have the music app with it as well. I had Spotify before but I had it with ads because when I tried to pay for no ads it wouldn’t work at all. I got no sound. I never bothered figuring out what was wrong. Anyway, now I have everything commercial free. 
 

5. Made three lots of kale chips, they were yum.

 

6. Had enough strength to do the dishes today, on top of cooking. 
 

7. Did some knitting, another distraction. Good ol’ distractions.

 

8. Got some groceries delivered. 
 

9. Ordered a magnetic white board for the fridge to organise my week. 
 

10. A friend messaged me saying she’s taking me to the dentist next week. Love my friends, they are so kind and helpful and always there for me, no matter what. 
 

🧡🧡🧡

[Carmie]

I’ve been wanting to interact more on different threads, but my CFS brain fog has been too intense to read much the last few days. I will write a gratitude list though, as I haven’t done one in a few days. Here goes: 

 

1. Well, because I haven’t been able to read much I’ve been listening to Podcasts. Good distraction.

 

2. I went for a walk to the chemist this morning as I had to get a couple of things, got some vitamin D. I’m taking calcitriol now (the active form of vitamin D, which you get on prescription) but the endocrinologist said to take 1000 I.U.s of the ordinary run of the mill vitamin D as well. I had plenty of vitamin D here at home but it was 5000 I.U.s which is too much if I’m taking the calcitriol as well. My blood level vitamin D was high, but it wasn’t being absorbed. 
 

3. There’s a health food store attached to the chemist and I got some yummy plantain chips. Autocorrect just changed attached to attacked, so I had to change it back. I’m sure the health food store didn’t attack the chemist😁

 

4. Because there wasn’t really anyone in the newsagents/ gift store nearby I popped in. I don’t usually go into shops due to my lungs. I ended up getting a magazine, a crossword book and a lovely gift and a card to say thank you to one of my friends. This newsagent is new and it’s not cramped, there’s lots of room, so you can social distance too. I just found out it opens at 7.30am, there shouldn’t be too many people there then. I got there before 9am today as I went to the chemist as soon as it opened at 8.30. It’s actually nice to have a little look around as I buy everything online these days. I’m not really a big shopping centre person though. 
 

5. I’m grateful for the gift of giving, it makes me happy. 
 

6. I managed to have enough strength to do all my washing today, as well as my dishes that were piling up to high heaven. I did enough cooking and prepping yesterday for a few days but didn’t have the strength to do the dishes as well. 
 

7. I’m grateful I don’t need to cook today, I just have to heat up my food and add some salad to it, which has already been prepped too. It’s 3pm and I’m not really hungry yet, I did eat some plantain chips a few hours ago though. 
 

8. I might watch the last few episodes of my series now. Good distraction. I’ll knit while reading, the motion of knitting is soothing. I’m not making anything, just doing it as it’s soothing. 
 

9. I’m grateful for my integrative Dr, she is the loveliest, caring Dr ever. The receptionist from where she is rang me today and asked me to make an appointment this week, so I cancelled the appointment in a month. She wants to discuss whatever info the endocrinologist sent to her. When I had the last appointment with her recently he hadn’t sent the paperwork as yet. My doctor ended up telling me he sends everything by post, not by email. That made me smile, I actually like that about him. Technology has kind of put us in this rush, rush frantic do everything right this sec mentality. It’s really not good for our mental health. Anyway, I’m curious as to what she has to tell me. I’ll be chatting to her on the phone. 
 

10. I’m grateful I got through this gratitude list. Haven’t been able to do it for a few days because of my brain fog🤪

 

💛💛💛

[Rosetta]

I’m thinking of you, Carmie.  Listening to podcasts is a great idea.  There are a lot books recorded, too.  I’m finding neat pretty neat documentaries on Netflix and YouTube.  On Netflix, there are 3 I can recommend.  “Great British Castles” is a fun show in Netflix.  Lots of interesting snippets of history in that one.  The first 1/2 of “Fantastic Fungi” is really interesting, so far.  “Secrets of the Saqqara Tomb” is amazing.  
 

Here’s a list of 21 educational cartoons.  Scroll down for the middle and high school level cartoons.  https://graphicmama.com/blog/best-educational-cartoon-channels/ 

Hang in there! - Rosetta

Edited January 30, 2023 by Rosetta
Spelling

[Carmie]

Thanks for all the recommendations dear Rosetta, it’s very kind of you to pop over. I hope you’re having a happy day today. 
 

Time for my gratitude list, I’m pretty brain dead at the moment, but I’ll do one nonetheless as it might brighten my mood. 

 

1. I’m grateful a beloved friend took me to the dentist today. She wants to take me on my next visit too. So grateful for my friends. I have the most amazing support team, we all support one another. This poor friend now has her aunt and mum in a nursing home and she’s finding it extremely stressful seeing her mum go downhill with dementia and her aunt having cancer. She used to be a carer for both of them at home and misses not having them around. My heart goes out to her. We support each other through our ups and downs.
 

2. I decided to go to a new dentist, a biocompatible one. She’s in the same building as my integrative doctor, actually her husband is the founder of the clinic there where my doctor is, he’s also an integrative and environmental doctor. I got rid of most of my amalgam fillings decades ago, but I still have a couple of small ones right at the back. I want to get rid of them safely, so I chose this dentist. I’ll finally get rid of them in my next visit. Yay!

 

3. Today I had a general checkup, low radiation X-rays and a clean. It’s so nice to get your teeth cleaned professionally. I haven’t been to the dentist in years because of Covid as it’s too risky with my lung issues. It’s the first time I haven’t worn a mask indoors when around people. You can’t get your teeth cleaned with a mask on😁

 

I’m just waiting now to get the quote for the work that needs doing, it might take a week. She was pretty happy with my teeth, I just have to get those two mercury fillings removed and I need one filling in a back tooth replaced too. I grind my teeth badly though, I might have to get a splint. I had some composite resin work done on my front teeth ages ago as I was grinding them down. 
 

4. I’m grateful I got my supplements and compounded low dose naltrexone (LDN) from the place right next door to where my appointment was. How handy! Got my curcuma and P.E.A. I’ve never had problems with curcumin but I’m not sure how I’ll react to the LDN or P.E.A. I’m apprehensive but also desperate as I’ve been struggling to breathe 24/7 for 16 months now. I know LDN can cause insomnia too. I’m a little scared. With the P.E.A. my integrative doctor said that I can open a capsule and just take a little and see how I go. As regards the LDN, I got it compounded to 0.25mg, which is fairly low, but you never know how you’ll react to anything in withdrawals. I’ll take one thing at a time and test them. 
 

5. I’m grateful for the the variety in the food we have. 
6. I’m grateful for all the variety in colours. 
7. I’m grateful for all the pretty flowers and gorgeous trees. 
8. I’m grateful for the sun.
9. I’m grateful for the rain. 
10. I’m grateful for animals. 
 

Okay, time to do something that doesn’t require brain power. 
 

Sending hugs🤗

[ShiningLight]

Carmie, I'm behind on your thread, but I hope since you're up and about, that means your breathing is a little better!

[Rosetta]

Thank you, Carmie.  💜

[Carmie]

On 2/1/2023 at 3:42 PM, ShiningLight said:

Carmie, I'm behind on your thread, but I hope since you're up and about, that means your breathing is a little better!

 

8 hours ago, Rosetta said:

Thank you, Carmie.  💜

I appreciate you both popping over here ShiningLight and Rosetta, 

 

Rosetta, it’s lovely to see that you’re slowly recovering from day to day. 
 

ShiningLight, I’m so extremely sorry for what you’ve gone through recently, being an involuntary prisoner in a psych ward and being made to feel like you’re not even human. Please make sure you continue to come on this site to help you to keep on going. 

If anyone is reading this and you feel up to it and don’t get triggered, can you please go over to ShiningLight’s thread and give her some encouragement, thank you so much. 
 

ShiningLight, no my breathing is still the same. I’m so frustrated as I don’t have an official diagnosis, no one knows what’s going on. My naturopath thinks it’s autoimmune, but so far doctors don’t have a clue. Even though I don’t have an official diagnosis my integrative Dr has now put me on low dose naltrexone and some other things. The endocrinologist wants to calm down the cytokines with LDN too.

 

I know it’s autoimmune because every time anything stimulates my immune system I end up in a flare that lasts forever. This last flare has lasted for 16 months since the vax. I had reprieve for a month and a half before then. So much suffering, but no official answers from the medical profession. Same old, same old. I’m really frustrated about the whole situation today. They are always gaslighting me, like the medical profession does with withdrawals as well. 
 

I’m open minded, I’m happy for any of the medical profession to figure out what’s happening with my dyspnea. Anyone???
 

Ahhhh!! I’m just so sick of being gaslighted!!! Okay, enough with my rant! 

 

Okay, time to settle n write a gratitude list, here goes: 

 

1. Despite fuming over the medical system I do have a really lovely integrative doctor and naturopath.

 

2. I’m lying on my bed chilling with the fan on me. Cosy bed and enjoying the breeze. We’ve been having some really humid days lately, the humidity doesn’t really worry me as I don’t really sweat very much, but it can be stifling. Today wasn’t too bad. 
 

I did buy an air conditioner ages ago to put in the window, but I haven’t gotten around to getting my friends to put it in. They offered to do so a long time ago. Oh, well, I’m saving electricity 😁 We ended up in a Covid wave so then it was too dangerous for anyone to come around because of my breathing problems. We aren’t in a wave now though. At the moment one of my friends who offered has a virus of some kind, so definitely not having them around. 
 

3. I might join my husband and his support worker tomorrow now that we’re not in a wave. We will all be wearing masks in the car and then we will go to the beach somewhere, I’ll be outdoors. I haven’t seen my husband in a few months, but I speak to him on the phone. I haven’t been near the beach in forever either, it’s my happy place n I’m looking forward to seeing the water. 
 

……. Just had a look at the weather, it’s going to be 34 to 36 degrees Celsius. Looks like we will all melt outdoors tomorrow if we go out. If we don’t go out tomorrow we’ll hopefully go out together next week. I’m grateful for my husband’s support workers. 
 

4. I’m looking forward to meeting my husband’s Friday external support worker, he’s such a lovely guy, though I haven’t met him in person. I’ve only spoken to him on the phone. I’ve spent time with his other carers though. 
 

5. I’m grateful for all my husband’s support workers. I managed to get the most amazing people to take care of him. Where he lives he has support workers, but I’ve organised carers from external agencies as well, who take him out and about. They are AMAZING!!
 

6. I’m grateful for the NDIS ( national disability insurance scheme ) here in Australia. It pays for the all the support workers and is funded by the government if you’re under pension age. 
 

7. I’m grateful that I got the same amount of NDIS funding for my husband again this year. I have to go back for a review in a year’s time. I’m really hoping we get the same amount, but you never know. Here’s hoping.

 

8. As for the lovely external carers my husband has, they are fabulous. His Monday carer is an islander and is very chill, I don’t think my husband even sees him as a carer, just as a mate to chill with. A perfect fit. 
 

His Tuesday external carer is lovely too. She’s from Mexico and is so extremely caring and conscientious. She’s just been on a holiday to Mexico for a month and a half and it’s nice to have her back. She’s the only female in his external team. 
 

And then there’s his Friday carer who I hope to meet in person in the near future. He’s amazing with my husband.

 

9. I’m grateful I just managed to organise another external carer for Wednesdays with someone who used to care of my husband in the past. This guy was so much fun, and we took him on a holiday with us once.
 

We have extra funding now because it wasn’t used as the facility my husband is in goes into lockdown when there’s Covid cases. The funding that’s used for the external support workers then is still sitting there to be used later, thus we can add this carer to the team for the rest of the year. The NDIS plan is a two year plan before we need to make a new plan and get the next lot of funding. It’s one year this March, so it’s back to another NDIS meeting in March next year. I really am grateful for NDIS.

 

10. I’m grateful I got through this gratitude list because I’ve been very annoyed with all the gaslighting that happens in our society, especially with the medical profession. I think I sometimes even gaslight myself with different things because of trauma. Life is a journey. 
 

Sending much love💛

[Carmie]

P.S. Just wanted to document too I’m doing okay on the P.E.A. so far. One day at a time does it. Today was the third day of taking one dose of 600mg. I’ll do that for a while and if it’s still okay I’ll up it to twice a day, as instructed by my integrative Dr. 
 

I also took 0.25mg of low dose naltrexone (LDN) last night, and will do so again in a minute before I go to sleep. You have to take it around 9pm or so. It can cause insomnia, but I slept okay last night. I’ll stay on this dose for a fortnight and then go up to 0.50mg if I continue to tolerate it. I need to eventually get up to 4.50 if my body can tolerate it. Just taking a day at a time and playing it by ear. 
 

I really, really hope that something will help my breathing. 
 

My Dr also wants me to go on black seed oil as well. I was just watching a YouTube channel where a Dr said that LDN, P.E.A. and black seed oil are a good combination to get inflammation down. Intravenous vitamins would be something my Dr would  like me to go on as well, but they are so expensive. 
 

Okay, time to take the LDN, I’m still concerned I’ll get a reaction. I’m just taking a day at a time. The last couple of days my WDs have ramped up a little, but it’s been a week or so  since my last drop, so that may have been the reason. The WDs haven’t been severe enough to call it a wave though. I’ve held at my last dose for 7 weeks and it was time to taper again. The last drop was 0.05 again which was a 1.5% drop. 
 

Time for Zzzzzzz soon 😴😴

[Carmie]

Well my brain has almost left the building for the day, before it does I want to write my gratitude list so I can reflect on the positives of my day.

 

1. My breathing is absolutely awful as usual, but I tried to distract myself from it. I went out for a day of leisure for the first time in forever.  I only tend to go out for medical and health appointments as I have to be careful due to my lungs. I got to go out with my husband and his support worker, it was such a delightful time. 
 

2. I finally got to meet this particular external support worker and he’s just lovely. I’ve met all the others. He bought me a bunch of flowers, so sweet. He’s 45 years old but looks like he’s thirty. He’s been a policeman in the past and has been in uni for different things. Recently he’s been studying to be a nurse, he didn’t finish it as he got into support work which he’s absolutely fabulous at. He’s really good with people. He didn’t know there was such a thing as support work, but one of his friends said he’d be great at it and he definitely is. I’m so grateful to have this lovely person on my husband’s support team. I got a bit confused as to how he could already have done so much in his life as I thought he was about thirty😆. He was very happy with the compliment😂

 

3. We spent the whole morning outdoors in the shade with a lovely breeze happening. It’s quite humid today, but where we were there was a gorgeous breeze and it’s was so chill there. It was a takeaway place and seafood market. It’s got undercover outdoor tables and chairs. It’s right next to a marina. I always have to put my feet up as I’m chronically dizzy all the time and there was plenty of space for that. I really love this spot. 
 

4. I was so happy that they have wild caught seafood there as I don’t eat farmed seafood because of all the stuff they feed them. At the supermarket I get my home delivery from they don’t have any wild caught seafood, so I just buy wild caught tinned salmon and sardines. Sardines are pretty much always wild caught. 
 

5. I had yummy prawns for lunch. I don’t usually eat out  because I’m on the AIP diet and food can be cross-contaminated. Prawns straight off the trawler are great!! 
 

6. Before we left I bought some wild caught whiting and snapper. I don’t think I’ve ever had snapper, but I thought I’d try it. Maybe I’ll make it soon. Let’s see what it tastes like. 

 

7. It was nice just to go for a drive that didn’t involve a medical appointment.

 

8. I’m looking forward to a country drive in the near future with my husband and this support worker. Shall we go n say hello to the cows?🐮

 

9. All going well, I’m looking forward to catching up with my husband and another one of his support workers next Tuesday. I haven’t seen her in ages as she just came back from Mexico. 
 

10. Oh, yes, I just remembered, five friends of mine came to visit briefly this morning. That was such a lovely surprise, I just met them outdoors downstairs. They wanted to visit late morning but because I told them I’d be out they said they wanted to see me before I go out. Awww! Too sweet! One of them said to let him know when I’d like my aircon installed. My friends are amazing, they look after me. Ever so grateful. 
 

Okay, time to crash now.

 

Sending hugs to everyone on this site🤗

[Phoenixmama]

love love love this ❤️ 🌞....

[Carmie]

13 hours ago, Phoenixmama said:

love love love this ❤️ 🌞....

You’re too sweet Phonenixmama, 

 

It was great though to finally go out and be in my element near the water, spend time with my husband and meet his amazing new support worker and eat delicious seafood🎉🎉Hope you’re doing okay. 
 

Time for my gratitude list for the day, I haven’t been up to much today. Have been in bed for most of the day due my CFS, but here goes anyway: 

 

1. My comfy bed.

2. My fan. 
3. My comfy pillows.

 

4. I fried the snapper yesterday for dinner and I enjoyed it. So great to find some wild caught fish at a Seafood market too. It’s not cheap, but it’s yummy! I’ll be going back to that Seafood market again. I’ve actually been there heaps in the past, but I mainly got prawns. Actually, there are heaps of different kinds of prawns there, except for one lot all the rest are wild caught. I forgot to ask if the oysters are wild caught or if they are farmed. I definitely don’t want farmed seafood. 
 

As regards prawns, why are there so many varieties? Whatever variety of prawns I eat just taste like prawns. Any prawn connoisseurs out there? Do the different types actually taste different to anyone?😁

 

5. I made some of the whiting for lunch today and it was delectable. Those teeny tiny fillets full of deliciousness. I think I’ll have the same for dinner, I’ll have to get out of bed though. The dishes are piling up as I have no strength to wash them. Yesterdays are there as well. When my body won’t let me do them I keep having to grab more dishes and in the end when I finally have the strength to do them there’s a mountain. Maybe it’s time for paper plates and cups😁, though I can’t fry my fish on paper or cook on it. 

 

6. I saw my friends on Zoom today. 
 

7. Just got a lovely message from a friend who will be going off to America soon for a holiday, her husband has to go over there for his job for a short while. She’s excited. It was lovely to hear from her before she goes. 
 

8. I’m grateful for distractions because as usual I’m struggling to breathe. It’s horrendous. Trying so hard to keep my chin up but fail miserably a lot of the time. Extremely claustrophobic.
 

9. I’m grateful for pen and paper. Love stationery.. 
 

10. I’m grateful for a nice cold glass of water, which I will now get another one of. I think I’ll get up and fry my whiting now too.
 

Well, I did it, another gratitude list down.

 

💛💛💛