Tigz91: My struggles

[Canuck19]

On 1/3/2024 at 12:18 PM, Tigz91 said:

So I’m just coming up to 14 months off cold turkey and still really struggling. I just had Covid over Christmas so that’s definitely caused a set back. 
 

•fast heartbeat/ pounding hard all day but worst at night.

•major GI issues.

• burning sensation in hands and feet but sometimes all over.

•vision. Blurry, floaters, really dry and painful.

•memory issues and forgetting things 

• migraines(last for days and cause severe brain fog)

•flu like symptoms on and off

•severe fatigue 

•anxiety

•cortisol spikes in the morning 

•food intolerances

•swallowing difficulty/ excess saliva but also dry mouth 

• balance issues, feels like I’m on a boat

•feeling like I have brain damage where I can’t think and my mind is blank.

•body temperature fluctuation. (Go from extreme to extreme) 

•feeling like I can’t get a satisfying breath.

•exercise intolerance 

and more.

 

these are symptoms I’m still struggling with nearly day to day but some go for a couple days and then return and some are a constant. I still don’t have days where I am totally symptom free and as it stands I’m unable to work because physically I feel like my body can’t do anything physical.

 

 

I’ve tried magnesium and omega 3 both I didn’t do well with but I believe that’s due to having a bad gut.

 

I feel like coming off antidepressants has damaged my gut and now I think I’m having issues absorbing nutrients from my foods and potentially have a leaky gut. 

 

 

Just wanted to say I am having very similar symptoms coming off escitalopram. I am still on it however and at a loss for what to do. I've had some good moments though so hopefully those outway the bad in the future. 

[Tigz91]

On 1/13/2024 at 12:13 AM, Canuck19 said:

Just wanted to say I am having very similar symptoms coming off escitalopram. I am still on it however and at a loss for what to do. I've had some good moments though so hopefully those outway the bad in the future. 

Sorry to hear you are also struggling. I’m now pretty sure most of my symptoms are not withdrawal related anymore and think I could in fact have lyme or mold issues so I’m going to try save some money for testing as I can’t go on like this.

[HelenR]

9 minutes ago, Tigz91 said:

Sorry to hear you are also struggling. I’m now pretty sure most of my symptoms are not withdrawal related anymore and think I could in fact have lyme or mold issues so I’m going to try save some money for testing as I can’t go on like this.

@Tigz91 I do hope you get the answers to all this. Good luck and keep us posted.

[Tigz91]

40 minutes ago, HelenR said:

@Tigz91 I do hope you get the answers to all this. Good luck and keep us posted.

Thanks 

[Tigz91]

So I’m now just about to come up to 16 months off and unfortunately I still feel awful 95% of the time. it’s like I’m living in a dream(a horrible one) I still don’t feel like I get windows because I’m never symptom free, yes somethings have improved but I’m now getting new symptoms too. Is that normal this far out to experience symptoms? I don’t know.

 

i have health anxiety and ocd issues now which I’m working on. I’ve not been to the hospital or seemed reassurance in 5 months and that has been hard. 
 

my symptoms now are:

 

itchy crawling skin 

hives

Throat tightness and swallowing feels weird

fast and pounding heart most days

fatigue 

red eyes, heavy and tired too

head pressure and migraines

muscle aches and tension

Sensitivities. reactions to food, supplements and medications.

off balance sensation

unable to gain weight, feel like I have lost muscle mass.

gut issues 

anxiety and pacing.

 

 

and more.

 

some of the symptoms I can’t even describe or explain. 

 

Really down about how things have not improved more than this. 

 

 

[modelarz71]

Hello. do you think from your experience that CT has caused nerve damage ? 
I too have a lot of similar to Yours  symptoms most bothered by constant stomach bloating and insomnia. I once reintroduced too high a dose after 3 msec and it blew my stomach.  
 Now I would like to try again. But if it's CNS corruption then maybe it's better to wait? 

[Tigz91]

9 hours ago, modelarz71 said:

Hello. do you think from your experience that CT has caused nerve damage ? 
I too have a lot of similar to Yours  symptoms most bothered by constant stomach bloating and insomnia. I once reintroduced too high a dose after 3 msec and it blew my stomach.  
 Now I would like to try again. But if it's CNS corruption then maybe it's better to wait? 

Hi, I think it’s done something to my nerves for sure. I also get pins and needles, burning and cold sensations all over my body. Sometimes it’s hard to tell what is withdrawal or if it’s something else. 

[Tigz91]

So I’m now 19 months and my biggest worry is my throat sensation. 
 

since December my throat is constantly feeling tight or like it’s closing and being restricted of some sort. It’s every single day and really starting to worry me.

 

I've seen my gp and he’s arranged for a camera test but I am worried it’s allergy related, maybe mcas? 

[Tigz91]

This has completely destroyed me. I’m 19 months off and I don’t see things ever getting anywhere near normal again. 
 

I’ve lost so much weight and muscle mass, I can’t eat loads of foods due to reactions, mcas like symptoms which antihistamines and meds are not touching, gut issues( done a 3 day comprehensive stool tests and so much bad bacteria, parasites and not much good bacteria.) weak abs no energy, dizziness and heart rate all over the place. 
 

I am at a total loss. I have two young kids and I’ve pretty much been absent the last two years due to how severe these symptoms are.